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ALS Access
Quarterly Newsletter of The ALS Association Florida Chapter FALL 2008
EquiPMENT MAKiNG ALL THE DiFFERENCE
I rv Tobocman is busy cleaning and
making preparations for the arrival of
a few special visitors at his Sarasota
home. Just a few weeks ago, such a
task would have
to fill a gap while a patient waits for a
more permanent solution.
As the DME Coordinator for the state,
Patti Allman assists
been impossible. people with locating
However, today and delivery of the
Irv is successfully equipment.
3242 Parkside Center Circle cleaning his home
Tampa, FL 3369-0907 with the assistance of “I work in partner-
888-257-77 a power wheelchair ship with the pa-
www.ALSAFL.org
he received from The tient’s Care Coor-
Florida Chapter’s dinator, and DME
Board of Trustees Medical Equipment companies,” said
James Moroney Loan Program. “The Patti. “We work as
Chairman chair allows me to a team to ensure
David L. Smith function,” said Irv. that people receive
Past Chairman the equipment they
Dara Alexander Utilizing equipment need as soon as
President closets at several possible.”
Warren Nelson locations across the
Treasurer state, the Durable According to Irv,
James Murphy, Jr., Esq. Medical Equipment the process of
Secretary (DME) Loan Program receiving his chair
Dr. Larry Baratta loans wheelchairs, was quick and
Josh Garrett lifting devices, and easy. “I talked with
more to assist patients with their daily [my Care Coordinator] and one week
Hiram Green
needs. The service is provided free later I was in my chair,” said Irv.
Cynthia Holloway “The organization was like an angel
of charge to those living with ALS in
Marty Koscso Florida. to me.”
Tom McLean
The DME Program is designed to fill The Program is offered on a first-come
Dr. Mark Paris
a specific need. Loaned equipment first-served basis. Availability will vary.
Jack Ratcliffe
is offered to patients who have no If you would like information about the
Donald Smith insurance or are residing in a hospice or Durable Medical Equipment Loan Program,
Leland Talcott nursing facility. Also, loaned equipment, contact your Care Coordinator or Patti by
such as a wheelchair, may be provided calling 888-257-77, ext 08.
ALS Access Fall 2007
A s I write this, Thanksgiving is around the corner,
and people are beginning to note the many
things they are thankful for. I would like to take
a moment to list a few things that I am thankful for.
First, I am thankful that the Red Sox won the World Se-
ries. No, not because I am a Red Sox fan, but because
I am a fan of Curt Schilling. Curt Schilling has shown in-
credible dedication to finding a cure for ALS through his
involvement with The ALS Association. To commemorate
888-257-1717 the Red Sox win, the Florida Chapter is selling special
813-637-9000 Red Sox themed holiday cards. Don’t like the Red Sox?
Don’t worry; there are six designs to choose from. Pro-
STAFF Amy Dunham ceeds benefit cutting-edge ALS research.
Editor, ALS Access Second, I am thankful for the growth of the Florida
Dara Alexander
President Chapter Walk to D’Feet ALS® program. The Florida Chapter has added two new
Joey Adkins Walk to D’Feet ALS® staff team members in an effort to make the 2008 Walk season
Director of Corporate the best yet. Each team member is equipped with skills and determination that will
Development, help propel the Walk to D’Feet ALS® program forward, increase awareness of the
Walk to D’Feet ALS® disease, and raise money for research and patient services.
Patti Allman Third, and most importantly, I am thankful for you. Patients, families, sponsors,
Respite Coordinator volunteers, and donors make what we do possible. Your generosity, willingness,
Judie Benwick and dedication to finding a cure for ALS and supporting those living with ALS is a
Care Coordinator, remarkable accomplishment that all of us here at the Florida Chapter are grateful
Jacksonville to be a part of.
Jessica Bianchi Wishing you all Happy Holidays!
Care Coordinator,
Sincerely,
Southeast Florida
Christine Bright
Care Coordinator,
Southwest Florida
Jonathan Norris
Admin. Assistant and
Events Associate iN THiS iSSuE LiViNG
Dileep Dadlani Resource Groups .................................. 2
Director of Corporate PEOPLE
Durable Medical Equipment
Development, Representive Porth: Advocating Loan Program ..........................................
Walk to D’Feet ALS® for People Living with ALS.....................5
Amy Dunham Keeping in Touch by Webcam ..............3
In Memoriam ............................................5
Communications Specialist Traveling With a Bi-Level Device.........4
Rhonda Rittenhouse Why I Volunteer: Kelly Fason ...............7
Flu Shot Reminder ...................................4
Care Coordinator, Orlando Walk to D’Feet ALS® Staff Team
Welcomes New Members ................... 0 Caregivers: Dealing with
Robin See
Holiday Stress..........................................7
Bookkeeper
EVENTS Bendable Utensils....................................9
Heran Sisay
Care Coordinator, Tampa Chapter Events...................................... 2
GiViNG
Katie Walters On Eagle’s Wings Golf Classic ............3
Team Development Year End Giving ......................................6
Coordinator, Walk to 2008 Walk to D’Feet ALS® Dates ..... 0
Donations, Memorials,
D’Feet ALS®
Step-by-Step Walk Registration ....... Honorariums, and Sponsors ...................9
2 Florida Chapter ALS Association
CONNECTiNG PEOPLE
O n August 4, ALS patient
and member of Strong
Vincent High School’s class
of 962 Gene Robarts attended his
class reunion in Erie, Pennsylvania.
of technology to communicate with
friends and family nationwide
including friends in Maine, California,
South Carolina, and Utah. They
even use it to stay in touch with their
He mingled, caught up with old grandchildren.
friends, and even had a dance
or two, without ever leaving his
home ,00 miles away in Tampa,
Florida.
For Gene, traveling has become
more and more tiresome as the Cindy Holloway and Lou Piniella
disease has progressed. Knowing
it would be too much for him to
travel to his 45 year reunion, Gene
Lou and Anita
decided to sit this one out. However, Piniella’s “On Eagle’s
thanks to a little technology and the The Robarts purchased their first Wings” Golf Classic
T
help of some friends, Gene and his webcam in 200: one for them and he ALS Association Florida
wife Kathy attended the reunion via one for their son and daughter-in- Chapter hosts the Annual Lou
the Internet. law. Because of the webcams, the and Anita Piniella “On Eagle’s
Old classmates Dennis White Robarts were able to catch a glimpse Wings” Golf Classic on Monday,
and Bob Becker heard of Gene’s of both grandchildren as soon as December 0th, 2007 at Avila Golf
situation and immediately set a plan they were born. The Robarts also & Country Club.
in motion to get him home for the use the webcams to enjoy birthdays
The tournament is sponsored in part
occasion. The two friends arranged and holidays with the family and
by Lexus of Tampa Bay, Outback
to have a webcam set up through watch the kids open their presents.
Steakhouse and Tou Jay’s Gourmet
which Gene and Kathy were able “It’s wonderful to just get on and Deli. Entry fee is $500 per individ-
to see and talk to old friends. Gene chat and see them at the same ual golfer with foursome packages
and Kathy even finished off the time,” said Kathy Robarts. “It is so and sponsorship packages also
evening with a dance. much nicer than just a phone call.” available. The tournament begins
with a shotgun start at noon.
This is not the first time that Gene Webcams can be purchased from
and Kathy have connected via many different stores including Wal- You can win a brand new Lexus
webcam. They often use this piece Mart, Target and any electronics RX 400h as the hole in one prize.
store, such as Best Immediately following the tourna-
Buy. The webcams ment, enjoy cocktails as well as a
range in price from steak dinner provided by Outback
$30.00 to about Steakhouse during the awards pro-
$50.00 and include gram and a live auction. Live auction
software that must experiences include a Chicago Cubs
Flyaway donated by Lou Piniella
be installed with
and a week long stay in a cottage
your computer. For
in the south of France, just to name
more information
a few. 00 percent of the proceeds
about purchasing benefit patients and families living
and installing a with ALS (Lou Gehrig’s Disease).
webcam, visit your
local electronics For information please contact
retailer. Patti Palmer at The ALS Association
Florida Chapter at 83-637-9000
Ext. .
ALS Access Fall 2007 3
TiPS FOR TRAVELiNG WiTH A Bi-LEVEL DEViCE
P eople with ALS who use a bi-lev-
el device to assist their breath-
ing (either just when sleeping, or
also during the day), can still travel.
But it demands a realistic assessment
FLU SHOT REMINDER!
Flu immunizations are highly recommended for people with ALS, their
caregivers, and anyone who comes in regular contact with them. The flu
vaccine helps protect against this year’s most common strain of flu. The
of individual needs, and some impor- strain changes each year, so even if you were immunized last year, you
tant information and support. will need a new immunization to protect you this year. The flu can lead to
Cynthia Knoche, RRT, Director of serious life-threatening problems, such as pneumonia. Pneumovax immu-
Chapter Patient Services for the ALS nizations are also recommended for people with ALS. This vaccine helps
Association, suggests that before a protect against certain types of pneumonia and does not need to be given
person with ALS plans a trip, it’s im- each year. Persons over age 65 may need a second immunization if it has
portant to understand their daily been over five years since their first pneumococcal vaccine. Please talk to
needs at home and define what they’ll your physician about these vaccinations.
need to ensure they will be able to
travel smoothly and safely. Matching trical sources, and such adventure is TiPS
the type and scope of travel – from a possible for those using bi-level de-
visit to a relative in the same state to Knoche offers a wide range of sug-
vices. They’ll need either a DC cord
a cross-continental trip up the Ama- gestions for people with ALS who use
that plugs into a car’s cigarette light-
zon – to their particular needs is very bi-level devices:
er, or they can hook up to a marine
important, she says. type deep-cycle battery. For that • Talk with the R.T. on their clinic team,
they’ll need an inverter and/or a DC if possible, about the trip they’d
Bi-level devices are fairly transport-
battery cable adapter, which should like to take and what they should
able; they weigh about ten pounds or
be authorized by the machine’s man- consider in planning the trip.
less and there is no problem getting
ufacturer. Knoche says it’s important • Be sure to call the home care pro-
them through the security process at
to discuss the type of inverter with the vider and the manufacturer to learn
airports, Knoche says. They can also
home care provider or manufacturer. what specific inverter you’ll need if
be packed and checked as bag-
gage. Those who use the bi-level device dur- traveling beyond the Americas or
ing the day, say while in the car or in Europe.
FACTORS TO CONSiDER a wheelchair, will need a 50-pound • If you’re using a battery, turn
If the person with ALS is going to battery. The Deep cycle, marine-type the humidifier off. It uses lots of
South America or Europe, only a plug batteries are quite heavy, generally power.
adapter is needed for the electrical about 40 to 50 pounds, and may only
last from two to a maximum of eight • Don’t forget to ask the home pro-
connection. But those going to other
hours, based on their service rating. vider to reset the pressure settings
continents should check with the man-
if you’re going to a higher or lower
ufacturer of the bi-level device to see If someone is on a bi-level device for altitude than the machine is typi-
what sort of adapter is necessary. 20 hours or so a day, it may be wise to cally set for.
switch to equipment that is designed
For those traveling to a different al- • Bring some key phone numbers
to serve as a life-support device be-
titude – say from Miami to Denver with you:
cause such machines have lithium bat-
– the bi-level device will need an ad-
teries which are considerably smaller • The manufacturer
justment. That’s because the machines
and lighter. Such machines can be set
are set up based on the current geo- • Your home care provider and
to provide the same bi-level support
graphic barometric pressure at the the number of a home care pro-
at the same pressure settings as are
user’s location. A change in altitude, vider where you’re going
the regular bi-level devices. But the
higher or lower, of more than 2,000
transition from the use of a bi-level The bottom line: Look at your situation
feet may necessitate an adjustment
device to a portable non-invasive realistically and consider your need
to the machine by the home care pro-
ventilator is multi-faceted, and may for additional equipment and your
vider.
be associated with issues or limita- safety when planning the trip.
Some people with ALS enjoy camping tions related to reimbursement, insur-
or traveling away from ready elec- ance or hospice qualifications. by Barbara Bronson Gray, RN, MN
4 Florida Chapter ALS Association
Remington Longstreth, Rep. Ari Porth, and Ed Kourt
ALS Access Fall 2007 5
‘TiS THE SEASON OF GiViNG
can usually make larger gifts using GiFTS FROM yOuR iRA
stock than they otherwise thought
Thanks to a law signed in August 2006,
possible.
if you have an IRA and are at least
Most securities are held in a brokerage 70 ½ years in age, you can make a
account. Transferring shares to The direct transfer from your IRA to The
ALS Association Florida Chapter is ALS Association Florida Chapter
a simple matter. Call us to obtain without including the transfer in your
our transfer information. Your gift is gross income. As the law currently
complete once the shares are received states, 2007 will be the last year this
W ith the holiday season in our account. As long as we receive will be available. You can transfer up
approaching, thoughts your shares by December 3, your to $00,000 each year from your
turn to giving. A majority gift will qualify for a tax deduction IRA. Your transfer counts toward your
of charitable gifts are made at this (up to 30% of your adjusted gross minimum required distribution.
time of year. income). Your deduction will be for
the fair market value of the shares,
You can use a variety of assets to
and you will avoid paying capital GiFTS THAT PAy AN iNCOME
make year-end gifts to your favorite
gains tax on the appreciation. You can use cash, stock, real estate,
charitable organizations, including
Pitfall: if your stock has dropped in and other assets to establish a gift
The ALS Association Florida Chapter.
Your gifts might even be used to value, you would generally be better arrangement that pays you an
generate an income stream for off selling the stock yourself and using income. There are several different
you. And if you itemize your the cash proceeds to make your gift. arrangements available. Call our
deductions, charitable gifts are Check with your tax advisor for more office if you’re interested in learning
eligible for an income tax deduction – information. more.
as long as you complete the gift by With a little planning, you can make
If you hold stock certificates, you will
December 3. the most of the year-end giving
need to mail the certificates to us. You
Here are some tips to remember as will also need to mail a signed stock season. We can help. Call our office
you consider your year-end giving: power form in a separate envelope. at 888-257-77 or e-mail us at
Call us for details on sending us stock dalexander@alsafl.org.
GiFTS OF CASH certificates.
Gifts made with cash – which also
includes checks and credit cards – are
the most common type of charitable
gift. Your gift is considered complete
on the day that your gift is mailed (or
the date your credit card is processed
if using a credit card), not the day the
gift is received by the charity. As long
as your gift is mailed by December
3, your gift will qualify for a tax
deduction (up to 50% of your adjusted
gross income). The December 3 mail
rule only applies to the US Postal
Service, not to gifts sent via a private
courier such as FedEx or UPS.
GiFTS OF STOCK
The second most common year-end
gift, appreciated securities, can make
an attractive gift asset. Individuals
6 Florida Chapter ALS Association
WHy i VOLuNTEER: KELLy FASON
I n 2003, one of my co-workers was diagnosed with ALS. My
employer at the time knew that I was committed to volun-
teerism and asked me to create a walk team for the upcom-
ing Walk to D’Feet ALS®. I agreed and was so touched by the
people I met through the Walk that I have continued to support
the Walk every year since.
Each year I see people living
with ALS and watch them as
their disease progresses. It
breaks my heart. I know that
someone’s dollar will find
a cure. My goal is to raise
as many dollars as possible
until we reach that goal. THANK yOu, CAREGiVERS
I’ve been an avid pageant The Florida Chapter wants to thank all
competitor for many years. caregivers for their amazing work
I’ve been blessed to hold and selfless courage.
several state, local, national, The Chapter also wants to remind
and international titles. I’ve caregivers to take care of themselves,
Kelly Fason
found that walking into a especially during the often stressful
Mrs. Palm Beach County 2007
room wearing a banner holiday season. Recognize the
and a sparkling crown can be a great way to capture the valuable work you do and realize
attention of those around me. I enjoy using my titles to help how important you are.
increase awareness and raising funds to find a cure for Lou
Gehrig’s disease. In the near future, I’d like to use my network CAREGiViNG TiPS AND HiNTS
of pageant friends throughout the state to increase attendance
and donations at all of our Florida walks. Take care of yourself both
physically and mentally.
I’ve stuffed walker packets, attended Kick-off events, sold
bracelets and raffle tickets at Roger Dean Stadium, recruited Have a “wish list” available when people
volunteers, hosted a fundraising party, and am now actively ask what they can do to help you.
participating on the Jupiter walk committee.
Be aware of the early signs of depression
I’ve had a lot of people ask me why I’ve gotten so involved and see you healthcare professional is
with The ALS Association. First, I felt an emotional connection to you think you are becoming depressed.
the people I met living with ALS and their caregivers. Second,
Communicate your feelings with
the staff and volunteers at The ALS Association Florida Chapter someone you can speak with freely, such
made me feel welcome, like I was part of a family. Third, as a professional counselor or friend.
there is always something to do and the environment within the
organization allows for creativity and the sharing of ideas. Most Set limits and make decisions to
importantly, I volunteer because I can. do things for yourself.
I know that my involvement in the community around me will make Get as much information about
my city and state a better place to live and raise the children ALS and care giving as you can.
I hope to one day have. I’m blessed and I feel a responsibility
to help those who aren’t as fortunate. I look forward to the day Attend a support group
when we find a cure for ALS!
ALS Access Fall 2007 7
2008 Presenting Sponsor, Walk to D'Feet ALS®
VITAS is about life, some of the
most important moments of life.
I’m not a nurse. But my wife’s ALS turned
me into one.
Before we called VITAS, it felt like I was
all by myself. I was overwhelmed ...
I was a cop for 35 years—I’d never felt
so helpless.
Then, there was VITAS.
The pain medication was delivered.
The medical equipment came when they
said it would. Never a check to write.
Nurses, nurses aides, social workers,
chaplains … even their doctor came to
the house.
When things got tough, VITAS was there
around the clock.
VITAS calls it Intensive Comfort CareSM.
I call it a lifesaver, a friend.
Innovative Call 1.866.93.VITAS
Hospice Care
www.VITAS.com
8 Florida Chapter ALS Association
DONATiONS, MEMORiALS, HONORARiuMS, AND SPONSORS
T he ALS Association Florida Chapter is grateful for all the support we receive. Because of space limitations, the
following acknowledgement only lists persons and groups who contributed $250.00 or more to the organization
during July, August, September, and October of 2007. Thank you to all who contributed. Because of your caring
and support, we are able to continue providing valuable patient services to individuals with ALS and their families,
and to support needed research.
Richard Ackert Marks Gray Miller Electric Co. Douglas Solomon
Gerald Agresti Herman Griffin Sam Northrop Southcoast Capital
Donald Allebach Gulfstream Business Bank Daniel O’Day Mgmt. Corp.
Amelia Island Paints, Inc. Timothy Hall Steven O’Day Southwest Signal
Amelia’s Fine Jewelry Brian O’Day Engineering Co.
Tom Harris
American Hospice Billy Hatcher Al Odum Robert Stormoen
Management HDM Furniture Industries, Inc. Matthew Ott Swisher International, Inc.
Anheuser-Busch, Inc. Head, Moss, Fulton and Harry Parsons Synovus Bank of Jacksonville
Auld and White Constructors Noble, P.A. Paul Clark Ford-Mercury, Inc. Tenant Contractors, Inc.
Charles Battle Edward Helquist Len Pelletiere The Oak Fund
Thomas Becker
Kevin Boylan
D. Brannan BENDABLE uTENSiLS
Rod Brannen
Designed for people with arthritis, upper extremity weak-
John Brennen
ness, or reduced range of motion, Ableware® Ubend-ItTM
Brightworth, LLC stainless steel utensils feature a twist in the shaft that al-
Richard Brock lows them to be readily hand-bent to the left or right at
Joseph Brychta any angle needed. Angling the utensil reportedly reduces
Jeffrey Brychta wrist strain and the amount of rotation needed for users
Capri Isles Men’s Golf to feed themselves. The built-up handles are contoured and textured for easier
Association holding. A tab on the end can be used to attach a wrist strap. Handles are made
Jack Casagrande of polypropylene, and the utensils are said to be top-rack dishwasher safe. Visit
Brian Chappell www.ableware.com for more information.
Richard Clements
Andrew Cook
Julie Covington
Howard and Mary Eliza Perdue Office Interiors The South Financial Group
J.J. Crowley McMillan Foundation
Plantation General Hospital The Village Market
Julie Cunkle Island Aviation Inc. Incorporated
Prosperity Bank
David C.G. Kerr Kelly Jefferson The Winston-Salem
Memorial Fund Putnam Investments
Glenda Johnson Foundation
E. Dehnert Reeves Import Motorcars, Inc.
Michael Jorgan Tickets Sports Bar
D. Derby RepSource
Kate Obstgarten Michael Toner
Michael Donahue Private Foundation Reynolds, Smith and Hills, Inc. R. Van Bogan
Roger Duffala Robert Kealey Robert Ross Victory Church
Daniel Dunleavy Larry Kerr Rotary Club of Deerwood Neal Von Stein
Exclusive Sports Marketing Charities, Inc.
Leo Landers James Walker
First Guaranty Bank Dennis Sacha
John Lawson Kelly Wasmer
Florida Alliance for Assistive Bradley Lesher Paul Schutt
Al Watson
Services and Technology, Inc. Sean Maguire Bruce Schwinger
Ronald Weaver
Ronald Fost John Manor Scott-McRae Group, Inc.
Pat Williams
Roy Foster Martin and Maxine Sharp Mortgages, Inc.
Zurich Insurance Services, Inc.
Janet Foster Solomon Fund Silverfield Development Co.
Freedom High School Bill Merman Garry Smith
Henry Graham Andrew Messina Nancy Smythe
ALS Access Fall 2007 9
2008 Walk to D’Feet alS® DATES & LOCATiONS
Jacksonville Walk – MARCH 29 – Seven Bridges Grille
Aventura/Miami Walk – APRiL 12 – Founders Park South
Tampa Walk – APRiL 12 – Bright House Networks Field
Jupiter Walk – APRiL 19 – Roger Dean Stadium
Orlando Walk – APRiL 19 – Blue Jacket Park
Walk to D’Feet alS® STAFF TEAM GROWS
T he ALS Association Florida
Chapter is very excited about
the 2008 Walk to D’Feet ALS®.
We look forward to a year of dy-
namic growth in the Walk program.
In an effort to make 2008 the best
it can be, The ALS Association is re-
vamping the Walk to D’Feet ALS® by
adding Walk team staff and defining
and enhancing their roles.
With a passion for people and an
enterprising spirit, Joey Adkins has
joined the team and is very excited
about being a part of this monumen-
tal program. Joey will work in the
Tampa, Orlando and Jacksonville
markets to increase participation and
revenue. With a background in sales,
Joey has worked with many diverse
groups, motivating and encouraging
them to reach goals. 2008 Walk to D’Feet ALS® Staff team: Amy Dunham, Katie Walters,
Joey Adkins, Jon Norris, Dileep Dadlani
Also joining the staff is Katie Walters,
who will be providing assistance to Katie agrees that 2008 will be good Amy Dunham and Jon Norris.
help teams in effective fundraising. year, “I’ve already met many won-
Katie is a graduate of UCF Nicholson derful people here on staff and in “We are excited to take a new
School of Communications and while the community and I’m eager to work team approach with key staff
she’s new to staff, she isn’t new to the with them on the Walk” members playing a pivotal role
Walk to D’Feet ALS®. Florida Chapter supporting volunteer committees,
got a good look at Katie’s energy, Ashton Chase, Senior Director, Nation- securing sponsorships and enhancing
enthusiasm and organizational skills al Signature Event, welcomed the two communication statewide,” said
while she was on the 2007 Tampa new members and gave the whole Dileep, who has been a Florida Walk
Walk Committee as a volunteer. staff team words of encouragement, to D’Feet ALS® Coordinator for three
“I look forward to working with the years.
“I am excited about this year,” said Chapter staff to grow the Walk to
Joey upon accepting his new role with “We can provide a fun Walk
D’Feet ALS® program in Florida.”
the Florida Chapter. “I am planning experience while focusing on raising
to nearly double the revenue from Joey and Katie join Walk to D’Feet valuable funds for research and
both Tampa and Orlando Walks.” ALS® team members Dileep Dadlani, patient programs.”
0 Florida Chapter ALS Association
yOuR STEP-By-STEP GuiDE
to Online Registration and Fundraising for the 2008 Walk to D’Feet alS®
it’s time to start registering for the ENTER your fundraising goal, and
2008 Walk to D’Feet ALS®!
You can register and begin fund-
raising using the Walk online sys-
then SELECT Next Step .
COMPLETE the form by entering your
personal information in each field.
tem. Follow the steps below and join CLICK Next Step
Next Stepwhen you have EMAiL yOuR FRiENDS
the fight against ALS! If you need finished. AND FAMiLy
additional support, please contact ADD friends and family to your
Amy at 888-257-77 ext. 07 or Read the legal notice and indi-
cate that you agree with the terms address book.
adunham@alsafl.org.
by CHECKING the box x and You can use one of the existing email
Next Step
CLICKING Next Step. . templates, or create your own.
SAVE, PREVIEW and SEND your
Now that you’re registered, here’s
email. Your friends and family will
what you can do NEXT!
receive your email with a link for
STEP 1: GO TO www.alsafl.org them to visit your Walk page and
&
and CLICK ON the Walk to D’Feet make a donation.
ALS® logo.
Follow-ups
The Follow-ups button will allow
you to send thank you notes to your
STEP 2: REGiSTER CuSTOMizE yOuR donors and reminder emails to those
who have not given.
CLICK ON the name of the event for PERSONAL PAGE
which you want to register. CLICK on My Walk Center and SELECT
If you participated in last year’s Personal Page
the Personal Page button near the
top of the page.
quiCK TiPS
Walk, LOG IN at the bottom of
the page using your username and Don’t forget to save your
Customize your page by SELECTING
password. You will then have instant work as you are setting up
Click here to open this page for editing.
access to your profile and email your personal page and your
address book from last year’s walk! You can upload an image to show on emails.
your page and add your own mes-
CLICK ON one: Keep your personal page
sage.
Form Join Register as an current to help motivate your
a Team a Team Individual Walker Go to preview
CLICK Go to Preview mode button friends and family to support
to make sure your page looks just the your fundraising efforts.
If you are forming a team, choose a way you want it.
team name and a team fundraising Check your reports regularly to
goal. Remember to SAVE your changes! see who has given. Send thank
you emails to those who have,
If you are joining a team, SEARCH
and reminder emails to those
for the team name, and then SELECT who haven’t.
Join
the Join link to the right of the team
name.
after you select your participation CHECK yOuR PROGRESS
type, consider entering a donation to My Progress
My Progress will show how close
jump-start your fundraising efforts! you are to reaching your goal!
ALS Access Fall 2007
CHAPTER EVENTS RESOuRCE GROuP MEETiNG LOCATiONS
December 9 For dates and times visit the Florida Chapter website at
Celebration of Life www.ALSAFL.org or call 888-257-1717
Lakes Regional Park
Ft. Myers, Florida Brevard Resource Group Orlando Resource Group
0 East Florida Ave 720 Denning Dr.
December 10
Melbourne Winter Park
On Eagle’s Wings Golf Tournament
Avila Golf and Country Club Ft. Myers Resource Group Polk Resource Group
Tampa, Florida 8359 Beacon Blvd., Ste. 30 600 Lakeland Hills Blvd.
January 13 Ft. Myers Lakeland
Research update Gainesville Resource Group Pensacola Resource Group
Grand Hyatt 2000 SW Archer Rd. West Florida Hospital
Tampa, Florida Gainesville Pensacola
March 29, 2008
Jacksonville Walk Jacksonville Resource Group Tallahassee Resource Group
Seven Bridges Grille 420 Belfort Rd. 325 John Knox Rd. Bldg. 400,
Jacksonville Ste. 420, Tallahassee
April 12, 2008
Aventura/Miami Walk Palm Beach Area Tampa Resource Group
Founders Park South Resource Group 2502 N. Pine Dr.
2600 Quantum Blvd. Tampa
April 12, 2008 Boynton Beach
Tampa Walk Treasure Coast/Stuart
BrightHouse Networks Field Leesburg Resource Group Resource Group
April 19, 2008 800 Lake Port Blvd. (Craft Room) Martin Memorial Hospital
Jupiter Walk Leesburg Stuart
Roger Dean Stadium Manasota Resource Group Ormond Beach Resource Group
April 19, 2008 8330 Lakewood Ranch Blvd. 0 Clyde Morris Blvd.
Orlando Walk Bradenton Ormond Beach
Blue Jacket Park
Ocala Survivor Group Weston Resource Group
For more information about these 8880 SW 27th Ave. 2950 Cleveland Clinic Blvd.
events and more, visit Ocala Weston
www.alsafl.org and click on Events.
NONPROFIT ORG
US POSTAGE
3242 Parkside Center Circle PAID
Tampa, FL 3369-0907 TAMPA FL
Permit No 290
2 Florida Chapter ALS Association
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