Document Sample
Monday_Morning_Memo_September_07_2009 Powered By Docstoc
					                                         Monday Morning Memo
                                           September 7, 2009
                                                (916) 552-6619

Please help support the Monday Morning Memo and all the other publications and projects of The Arc movement.
    Your $25 annual membership contribution entitles you to full membership in the local chapter, The Arc of
  California and The Arc of the United States. Send your check to 1225 8 Street, Suite 210, Sacramento, CA
                                           95814 Attn: “Membership”.

                                         The Week Ahead
President Barack Obama has issued a Proclamation on the death of Senator Edward M.
Kennedy. In his remarks, the president acknowledged Senator Kennedy’s half century of
service to the nation that included his work on “nearly every major piece of legislation that has
advanced the civil rights, health, and economic well-being of the American People…” In
conclusion, the President ordered the flag of the United States to be flown at half-staff
throughout the nation and in its Territories and possessions until sunset on 8/30/09. See the
document at:

Monday September 7, 2009
The Agency for Healthcare Research and Quality (AHRQ) has issued a notice of intent to
publish grant and contract requests to support comparative effectiveness research (CER)
projects. The estimated funding for the project is $300 million beginning in the fall 2009 with
funding by spring 2010. CER, as defined by HHS, “compares treatments and strategies to
improve health.” The funding is appropriated in the American Recovery and Reinvestment Act
(ARRA), and will focus on 14 priority conditions as authorized in the Medicare Prescription
Drug, Improvement, and Modernization Act of 2003. The list of conditions was developed after
discussions involving federal agencies and the public. The list of priority conditions is relevant
to the Medicare, Medicaid, and State Children’s Health Insurance programs. See the
document at:

The Consumer Product Safety Commission (CPSC) revised rules governing lead content limits
on certain children’s materials or products are now effective (see the 1/15/09 “Proposed Rules”
section of the Federal Register Summary or go to:
714.htm). Based on provisions contained in the Consumer Product Safety Improvement Act of
2008 (CPSIA), the CPSC has revised the rule governing lead content and testing for materials
or products that are “untreated and unadulterated with respect to the addition of materials or
chemicals, including pigments, dyes, coatings, finishes or any other substance, and that did
not undergo any processing that could result in the addition of lead into the product or

                                                                                      Monday Morning Memo
                                                                                         The Arc of California
                                                                               September 7, 2009, page 1 of 16
                                                                             Tony Anderson, Executive Director
material.” These materials or products include: precious/semiprecious gemstones, wood,
natural fibers. See the document at:

Employment and Training Administration (ETA) is withdrawaling the proposed rule related to
the Workforce Investment Act (WIA) (see the 12/20/06 “Proposed Rules” section of the Federal
Register Summary or go to: DOL is
withdrawing the proposed rule for WIA because “The Department no longer considers this
proposed rule viable for final action at this time.” WIA, which replaced the Job Training
Partnership Act, provides employment and training services to many groups, including persons
with disabilities. The proposal addressed the size of state and local Workforce Investment
Boards; core, intensive, and training services; the governor’s authority over training providers;
and the availability of individual training accounts for youth. See the document at:

Tuesday September 8, 2009
The Arc of California Public Policy Committee will be meeting from 6:30 pm to 8 pm by
conference call. Peter Bowers (community volunteer), Chair, Dwight Stratton (parent),
President, Shirley Dove (parent), Kim Olson (exec dir.), Shella DuMong (parent), Sandy
Waterbury (parent), Jim Stream (exec dir.), Barbara Maizie (exec dir.), Connie Lapin (parent),
Pat Napoliello (parent), Kevin MacDonald (exec. dir.), and Pat Heineke (community volunteer).

Wednesday September 9, 2009
Press Release: Alcohol Consumption During Pregnancy Called “Risky Business”
09/09/09 Bell Ringing Warns Women of Alcohol Dangers During 9-Months of Pregnancy
When: 09/09/2009 9:09 AM
Where: State Capitol, South Steps
Why: To warn women about the dangers of drinking during 9 months of pregnancy and
educate others about the public health threat associated with 1 in 100 births affected by
      Sacramento -- On the ninth minute of the ninth hour of the ninth day of the nine month
      of 2009, bells will toll throughout the world to begin a minute of reflection by parents,
      caregivers and professionals to remind others that women should not drink alcohol
      during their nine months of pregnancy. The Sacramento event will be held at the State
      Capitol, beginning with a bell concordance from local churches around the Capitol
      building. “Consumption of any alcohol during pregnancy is a very risky business, all too
      often resulting in permanent brain damage to the developing baby, said Lyn Laboriel,
      M.D., Director of the Fetal Alcohol Spectrum Disorders Center at LA County & USC.
      “The brain injuries caused by alcohol manifest as a wide array of problems from
      developmental disabilities and language disorders to serious emotional and behavioral
      problems, all of which are one hundred percent preventable,” Laboriel said. The Bell
      Concordance started on 9/09/1999 and has continued throughout the world ever since.
      Bells are used because they are they associated with warnings and alarms and
      because they are associated with happiness, marking important moments, and
      communicating and connecting with local communities. The Sacramento Fetal Alcohol
      Spectrum Disorder Awareness Day event will include an address by Assembly member
      Jim Beall (D – San Jose), Eva Carner, parent advocate for people with FASD, Ricky
      Nelson, a person with FASD, and Lyn Laboriel Developmental Pediatrician.

                                                                              Monday Morning Memo
                                                                                 The Arc of California
                                                                       September 7, 2009, page 2 of 16
                                                                     Tony Anderson, Executive Director
The Architectural and Transportation Barriers Compliance Board (ATBCB) will be meeting at
10:30 a.m. through Friday at the Embassy Suites D.C. Convention Center Hotel, 900 10th
Street, NW, Washington, D.C. The ATBCB oversees the development of accessibility
guidelines as they relate to the Americans with Disability Act and other laws. On the agenda
for 9/9/09 is a report on the board’s rulemaking process. On the agenda for 9/11/09 are
reports on accessible design in education, emergency transportable housing, the U.S. Election
Assistance Commission, and the Americans with Disabilities Act (ADA) guidelines/updates.
For more information about the meeting, contact David Capozzi at 202-272-0010 (voice) or at
202-272-0082 (TTY).

Wednesday September 9, 2009 - September 11, 2009
United States Dept of Health and Human Services, Health Resources and Services
Administration, National Advisory Committee on Rural Health and Human Services will be
meeting on Wednesday September 9, 2009, 9 a.m.-4:45 p.m.; Thursday September 10, 2009,
8:30 a.m.-4 p.m.; and Friday September 11, 2009, 8:45 a.m.-11 a.m. at the Sheraton Grand
Hotel, 1230 J Street, in Sacramento, California 95814 (Phone: 916-341-3605). The meeting
will be open to the public. The purpose of the National Advisory Committee on Rural Health
and Human Services is to provide advice and recommendations to the Secretary with on the
delivery, research, development and administration of health and human services in rural
areas. The agenda will include presentations to Overview rural California and the status of
these counties, Primary Care Workforce, Home-Based Care Options for Seniors, Health Care
Provider Integration, then the panel will discuss the Committee Chair’s overview of the site
visits. This will be followed by a call for public comment. Thursday morning, at 8:30 a.m., the
Committee will break into Subcommittees and depart to the site visits. For Further Information
Contact: Anyone requiring information regarding the Committee should contact Jennifer
Chang, MPH, Executive Secretary, National Advisory Committee on Rural Health and Human
Services, Health Resources and Services Administration, Parklawn Building, Room 9A-55,
5600 Fishers Lane, Rockville, MD 20857, Telephone (301) 443-0835, Fax (301) 443-2803.
Persons interested in attending any portion of the meeting should contact Michele Pray
Gibson, Office of Rural Health Policy (ORHP), Telephone (301) 443-0835 . The Committee
meeting agenda will be posted on ORHP's Web site

Wednesday September 9, 2009 - September 18, 2009
The U.S. Election Assistance Commission (EAC) will be meeting at 9:00 a.m. through 9/18/09
at 9:00 p.m. by (1) Virtual Public Forum for EAC Standards Board at
Click on the link to the Standards Board Virtual Meeting Room. Next the Virtual Public Forum
for EAC Board of Advisors at Click on the link to the Board of Advisors
Virtual Meeting Room. The U.S. Election Assistance Commission (EAC) serves as a
clearinghouse on federal election administration and oversees voting system guidelines. The
agenda for both of these meetings includes a review and comment of five draft chapters of the
“Election Management Guidelines.” The draft chapters contain best practices and
recommendations related to community partnerships, certifying an election, communications,
and conducting a recount. For more information about EAC, go to:

Thursday September 10, 2009
The Arc of California Executive Committee, chaired by Dwight Stratton, President, will be
meeting during the noon hour. Committee members also include Dick Fitzmaurice (Vice-
                                                                              Monday Morning Memo
                                                                                 The Arc of California
                                                                       September 7, 2009, page 3 of 16
                                                                     Tony Anderson, Executive Director
President), Sandy Waterbury (Secretary), Peter Bowers (Treasurer), Pat Heineke (Past-
President), and Tim Hornbecker (Representative from the CA Conference of Executives of The

Friday September 11, 2009
National Institutes of Health (NIH) National Institute of Deafness and Other Communication
Disorders (NIDCD) will be meeting at 10:30 a.m. (open portion of the meeting) at the NIH,
Building 31, 31 Center Drive, Bethesda, MD. NIDCD was established in 1988 with a mandate
to “conduct and support biomedical and behavioral research and research training in the
normal and disordered processes of hearing, balance, smell, taste, voice, speech, and
language.” On the agenda are staff reports on divisional, programmatic, and special activities.
Written statements may be filed with the contact person listed below. For more information
about NIDCD go to: For more information
about the meeting, contact Craig A. Jordan Ph.D. at 301-496-8693 or at

Today is the deadline (reopened from a previous deadline) for the Office of Special Education
and Rehabilitative Services (OSERS) request for applications under the American Indian
Vocational Rehabilitation Services (AIVRS) program for fiscal year 2009. AIVRS is authorized
in the Rehabilitation Act of 1973, as amended. The program provides grants to Indian Tribes
that are located on federal and state reservations. The Indian Tribes administer the grants that
are used to pay for 90 percent of vocational rehabilitation services for American Indians. See
the document at:

                        The Bill File & Floor Session Calendar
Tuesday September 8, 2009
   1. #79 SB 543 (Leno) Minors: consent to mental health treatment. (A-2009-09-03)
   2. #87 SB 797 (Pavley) Product safety: bisphenol A. (A-2009-07-15)
  3. #24 AB 108 (Hayashi) Individual health care coverage. (A-2009-07-23) Position
  4. #59 AB 754 (Chesbro) Medi-Cal: mental health plans. (A-2009-09-04)

  5. #154 AB 378 (Cook) In-Home Supportive Services: provider training. (A-2009-05-04)

                                       Action Alerts
The Arc of California (Greg deGiere, The Arc of California Public Policy Director)
The Assembly Bill 1260 by Assembly Member Jared Huffman is moving through the
Legislature thanks in large part to advocates like you. The bill, AB 1260, has been amended
but still has a significant positive impact on respite and the new senior services. While AB
1260 still has an uphill struggle for passage, the author accepted changes and passage looks
                                                                              Monday Morning Memo
                                                                                 The Arc of California
                                                                       September 7, 2009, page 4 of 16
                                                                     Tony Anderson, Executive Director
Thanks to your calls and our advocacy in the Capitol, we now have 17 legislators coauthoring
AB 1260 and we have permission for a hearing on the bill early next week. Those are
significant achievements. Now we need you to make two more calls or fax two letters - one to
your state senator, one to your state Assembly representative - to ask them to vote for the bill.
If you're unable to call or fax letters, please send emails. As usual, my suggestions for how to
make the calls are at the end of this Action Alert.

Here are the most important points to make:
   1. No cost - AB 1260 is very important to people with developmental disabilities and their
      families who already are seriously harmed by this year's budget cuts. ALL THE COSTS
   2. Respite care - The bill will save this vital service for families with the highest need.
      Highly stressed families keeping their families together will become desperate without
      adequate respite, and out-of-home placements at a huge cost to the state will result.
      See the following story in the Contra Costa Times and the impact to the Respite Inn, If you or your
      family make use of respite care more than 90 hours per quarter or 21 days per year,
      your respite time will almost certainly be cut back to that level unless AB 1260 passes.
      Tell them exactly what affect the cut would have on you and your family or families you
      advocate for. As always, be polite but speak from the heart.
   3. Senior programs - The bill allows rather than requires service providers to offer a new,
      less formal (higher staff ratio) program for consumers 50-plus who want it. It gives
      providers flexibility to assure they can offer the program to any senior who wants it.

Pleased call or fax a letter to your state senator AND Assembly representative NOW. If you
don't get this Action Alert until this weekend, you can try calling anyway and keep trying until
you get through. The Legislature may be in session part of this Labor Day weekend, the last
weekend of the legislative session. If you can't get through, call first thing Tuesday morning.

If we can get AB 1260 through the Senate by Tuesday or Wednesday, we will have only
another day or two to get it through the Assembly and to Governor Schwarzenegger - so
please call or write both your senator and Assembly member now. In a year of mostly bad
news for our community, this is a chance to actually reverse some of the damage. Please
make the calls or fax the letters. And please forward this Action Alert far and wide.


The Usual Suggestions for Contacting You State Legislators

If you know someone who works for your state senator or Assembly representative, call him or
her. If not, call the legislator's Capitol office or fax (don't mail) a letter to the legislator's Capitol
office. Calls and letters (especially letters on the letterhead of your group, place of worship, or
business) often have more impact that emails. If you're unable to call or fax a letter, through,
definitely do send an email.

To find out who your state senator and Assembly representative are and get their Capitol
phone numbers, fax numbers and email addresses, go to, go to the red,
                                                                                     Monday Morning Memo
                                                                                        The Arc of California
                                                                              September 7, 2009, page 5 of 16
                                                                            Tony Anderson, Executive Director
white and blue "Write Your Legislators" box, enter your ZIP code, and click on "Go." (If you're
not on the Arc's Action E-List and someone forwarded this Action Alert to you, please join the
list while you're there.) When you talk to a legislator's staff person, give him or her your name
and address so they know you live or work in the district that the legislator represents. If you're
a registered voter in the same party as the legislator, mention that.

Ask for the staff person's name and direct phone number. Save that information for the next
time you need to call. If you are a person with a disability or a family member or caretaker,
start by saying so. Tell the staff person a little about your situation. Make a human connection.
Make sure the staff person is clear what you're asking your senator or Assembly member to do
- usually vote for (or sometimes against) a particular bill. Make sure you give the bill number.

At the end of the call, thank the staff person for his or her time, stress again how important this
is to you, and tell the staff person you will call him or her back to find out how the legislator
voted. Call back later to find the legislator voted. If he or she voted the way you wanted, thank
the staff person and ask them to thank he legislator for you. If they voted wrong, express your
disappointment and ask them to express it to the legislator, too. Either way, the staff person
will remember you next time you call.

The Arc of the United States
      Stop Child Abuse in Residential Programs for Teens Act of 2009, Bill # H.R.911
                        Original Sponsor: George Miller (D-CA 7th)
                   Cosponsor Total: 24 (last sponsor added 02/13/2009)

HR 911 Passed the House without amendment. (There is 1 other summary) (This measure
has not been amended since it was introduced. The summary has been expanded because
action occurred on the measure.) Stop Child Abuse in Residential Programs for Teens Act of
2009 - (Sec. 3) Directs the Assistant Secretary for Children and Families of the Department of
Health and Human Services to require each location of a covered program to meet specified
minimum standards if individually or together with other locations it has an effect on interstate
commerce. Defines "covered program" as one operated by a public or private entity that with
respect to one or more children unrelated to the program owner or operator: (1) provides a
residential environment; and (2) operates with a focus on serving children with emotional,
behavioral, or mental health problems or disorders, or problems with alcohol or substance
abuse. Directs the Assistant Secretary to: (1) implement an ongoing review process for
investigating and evaluating reports of child abuse and neglect; (2) establish public websites
with information about each covered program, as well as a national toll-free telephone hotline
to receive complaints; (3) establish civil penalties for violations of standards; and (4) establish
a process to ensure that complaints received by the hotline are promptly reviewed by persons
with appropriate expertise. (Sec. 4) Requires the Assistant Secretary to refer any violation of
such standards to the Attorney General for appropriate action. Authorizes the Attorney General
to file such a complaint on his or her own initiative regardless of whether such a referral has
been made. (Sec. 6) Authorizes appropriations for FY2010-FY2014. (Sec. 7) Amends the Child
Abuse Prevention and Treatment Act to establish additional eligibility requirements for grants
to states to prevent child abuse and neglect at residential programs. Require such states to
develop policies and procedures to prevent child abuse and neglect at covered programs
consistent with the standards specified by this Act. (Sec. 8) Directs the Secretary of Health and
Human Services to study and report to Congress on outcomes for children in both private and
                                                                                Monday Morning Memo
                                                                                   The Arc of California
                                                                         September 7, 2009, page 6 of 16
                                                                       Tony Anderson, Executive Director
public covered programs under this Act encompassing a broad representation of treatment
facilities and geographic regions. Detailed, up-to-date bill status information on H.R.911.

                                       Project Status Report
Partners in Policymaking
Jim Lockwood, Coordinator (funded by the State Council Developmental Disabilities)
The next Partners in Policymaking session will focus on local, state, and national public policy
development and how the grassroots advocacy can be involved.

                             “We, the Partners In Policymaking class of 2009,
                are committed to creating a world of respect, loyalty, love, and dignity for all.
       We believe in communities that provide seamless inclusion without regard to ability or disability.
                       Partners in Policymaking: Leading. Empowering. Succeeding.”

California College of Direct Support
Carlos Palacios worked closely this week with Walter Glaser of Tool Works, and Shannon
Jurich of The Arc of Alameda County, to help them update their classes. Since the time these
agencies began using the College of Direct Support for their professional development of
Direct Support Professionals CDS has added several lessons. The new lessons focus on
topics such as Civil Rights & Advocacy, Communication, Functional Assessments, Preparing
for the Supervisor’s Job in Human Resources, and Autism. To learn more about the College of
Direct Support in California visit our site:

                                       Prevention Activities
The 10th anniversary of International Fetal Alcohol Spectrum Disorders (FASD) Awareness
Day is September 9, 2009. Across the world church bells will ring at 9:09 am to remind women
not to drink alcohol during the 9 months they are pregnant. In recognition of this day The Arc
of California is hosting an event on the South Stairs of the Capitol beginning at 9:00 am. To
find out more information about this event visit:

“Take Ten” is a new project for this year’s FASD Awareness Day and can be implemented in
any community. The packet can be downloaded for free. It is a simple and effective way to
create awareness, to find out more information visit For other awareness ideas and more
information about FASD Awareness Day visit:

The National Center on Birth Defects and Developmental Disabilities (NCBDDD) defines FASD
as a group of conditions that can occur in a person whose mother drank alcohol during
pregnancy. These effects can include physical problems and problems with behavior and
learning and often a person with FASD has more than one of these problems. The most
important fact about FASD is that it is one of the few intellectual and developmental disabilities
                                                                                          Monday Morning Memo
                                                                                             The Arc of California
                                                                                   September 7, 2009, page 7 of 16
                                                                                 Tony Anderson, Executive Director
that is 100% preventable. To view more information about FASD from the NCBDDD visit

In light of the fact that FASD is 100% preventable from a physiological perspective the key to
Prevention becomes changing behavior and creating awareness about the dangers of prenatal
alcohol exposure. The Centers for Disease Control (CDC) has funded three universities to
develop brief interventions aimed at preventing alcohol exposed pregnancies among women of
childbearing age in special settings. The study is called Project CHOICES – Changing High-
Risk Alcohol Use and Increasing Contraception Effectiveness Study. To find out more details
about this study visit:

For information and resources about FASD visit these sites:

                                     Upcoming Events
September 15, 2009
AAIDD teleconference from the environmental health initiative, A Tale of Three Neurotoxins:
Lead, Tobacco and Maternal Depression by Michael Weitzman MD, Professor of Pediatrics
and Psychiatry, New York University School of Medicine. This presentation reviews what is
known, and what we recognize that we still do not know, about the effects of low level lead
exposure, prenatal tobacco and postnatal secondhand smoke exposure, and maternal
depression on child behavior and development. Although the research and knowledge bases
concerning these extremely common childhood exposures with extensive negative effects
have developed separately, with different investigators and publications in disparate literatures
and fields, their epidemiology (distribution, determinants and consequences) are quite similar,
and even more worrisome, they tend to cluster and co-occur in the same children. At the end
of this presentation the audience will have a much better appreciation of the risks for being
exposed to, and the consequences of each of these exposures, as well as strategies for
prevention and treatment. Call in details: Tuesday September 15th, 2009, 2-3pm Eastern
Time (Please dial in a few minutes before 2:00 p.m. so we can start on time!), moderated by
Laura Abulafia, MHS, Toll Free: 1.800.868.1837, Direct Dial: 1.404.920.6440, Pass Code: 847
815# - FREE! For more information on the teleconference series or AAIDD’s Environmental
Health Initiative, contact: Laura Abulafia at or visit the website at”

October 2, 2009
The American Association on Intellectual and Developmental Disabilities, the Learning
Disabilities Association of America and the Autism Society of America, in partnership with
Illinois PIRG, Environment Illinois, the Association for Individual Development (AID) and
Institute on Disability and Human Development at UIC, are holding a forum on environmental
health policy issues in Chicago on October 2, 2009. The purpose of this forum is to raise
                                                                               Monday Morning Memo
                                                                                  The Arc of California
                                                                        September 7, 2009, page 8 of 16
                                                                      Tony Anderson, Executive Director
awareness among Illinois policymakers of the health risks posed by toxic chemical exposures,
with a focus on chemicals that can harm brain development, and to discuss legislative
measures that would protect Illinois citizens from toxic chemical exposures. Anticipated
speakers include policymakers such as House Representative Elaine Neckritz, health
professionals such as Dr. Peter Orris and Dr. Anju Usman, and concerned citizens. Other
invited speakers include Illinois Attorney General, Senator Bobby Rush, and others TBA. The
forum will be held at the University of Illinois Chicago from 2 to 4 p.m. on Friday October 2nd.
For more information please feel free to contact me, Laura Abulafia, Director of Education and
Outreach at the American Association on Intellectual and Developmental Disabilities, at .

October 7 - 9, 2009
The 23rd Annual SUPPORTED LIFE CONFERENCE, “A Meaningful Life... Are We There
Yet?” Empowering All People with Developmental Disabilities to be Fully Included in the
Community. The conference will be held at the DoubleTree Hotel, Sacramento and is
presented by the Supported Life Institute and Area Board 3. This year the featured speakers
include: • Dale DiLeo, St. Augustine, Florida (Training Resource Network; Author: "Raymond's
Room"), • Bill Gaventa, New Brunswick, New Jersey (Elizabeth M. Boggs Ctr. on
Developmental Disabilities; Robert Wood Johnson Med. School; Journal of Religion, Disability
& Health), • David Hingsburger, Angus, Ontario, Canada (Diverse City Press; Vita Community
Living Services), • Molly Sullivan, Portland, Oregon (Griffin, Hammis Associates), and • Sue
Swenson, Bethesda, Maryland (Former US Commissioner for Developmental Disabilities;
Parent Advocate). For more information visit the website at:

SAVE THE DATE: October 23rd – 24th, 2009
The Arc of California Board Meeting and annual strategic plan session. We have been
negotiating with Mary Gonzales, Director of the Western Region of the Gameliel Foundation to
work with our association to increase our grassroots effectiveness, use the power of the
advocates, and increase our capacity for systems change. The meeting will be in Los Angeles
Hilton from Friday October 23rd through Saturday.

November 11-14th, 2009
The Arc of the United States National Convention, Inspiring Innovation: With Adversity Comes
Opportunity. The current economic and service climate across the country continues to affect
people with intellectual and developmental disabilities and their families in many ways. In the
midst of these challenges are opportunities for innovation in the way that services and
supports are provided. The focus of this year’s annual convention is to provide information on
best practices and innovation across the spectrum of services, supports and research that
affect people with intellectual and developmental disabilities and their families. The Arc of the
United States Announces Stedman Graham As Featured Speaker at National Convention.
Entrepreneur, best-selling author and premier motivational speaker Stedman Graham will be
the keynote speaker at the national convention of The Arc of the United States to be held in
Pittsburgh, PA from November 11-14. Graham, chairman and CEO of S. Graham & Associates
(SGA) will address a gathering of individuals with intellectual and developmental disabilities,
families, self-advocates, professionals and others on Thursday, November 12 at the David L.
Lawrence Convention Center in Pittsburgh, PA. The theme of this year’s convention is
Inspiring Innovation: With Adversity Comes Opportunity. “As a successful business leader,
educator and inspirational speaker, Stedman will share his outlook on how people with
                                                                              Monday Morning Memo
                                                                                 The Arc of California
                                                                       September 7, 2009, page 9 of 16
                                                                     Tony Anderson, Executive Director
disabilities are affected in this downturn economy. As a sibling to two individuals with
intellectual disabilities, his message of achievement and inclusion will have resonance,” said
Peter Berns, Executive Director of The Arc.

April 12 – 14, 2009
The Disability Policy Seminar will be April 12 - 14, 2010 at the Hyatt Regency Washington on
Capitol Hill.

                             Recently Released Reports, Studies, etc.
2009-118 AUDIT SCOPE AND OBJECTIVES—Department of Developmental Services,
Regional Centers by California Bureau of State Audits. “The audit by the Bureau of State Audits will
provide independently developed and verified information related to the Department of Developmental Services (DDS) and a
sample of regional centers and would include, be not be limited to, the following: 1. Review and evaluate the laws, rules, and
regulations significant to the audit objectives. 2. Examine DDS’s oversight responsibilities for its regional centers and
determine the extent to which DDS performs oversight at the regional centers selected for review. 3. Select a sample of paid
invoices for the past two fiscal years at each regional center and determine if the activities for payment were allowable under
the law. 4. Select a sample of service provider contracts for the past two fiscal years at each regional center and evaluate
the regional centers’ policies and practices for awarding contracts to service providers including how the regional centers
determine that the service providers can satisfy the needs of the consumers, whether past performance by a service provider
was considered, and the potential for conflict of interest did not exist. 5. For a sample of current and past service providers,
conduct a survey to obtain information on whether the providers believe they experienced retaliation from the regional
centers and the reason for the retaliation. 6. Determine if the regional centers’ procedures for allowing public access to
information on operations comply with the law. Specifically, determine if requests made in the past two fiscal years by
service providers for public records were satisfied in a timely manner and within the requirements of the law.”

                                                    News Articles

Corpus Christi 'fight club' is just the tip of the iceberg
Austin Civil Rights Examiner August 31, 7:51 AM
By Michelle Palmer
Many folks were appalled when six employees of the Corpus Christi State School were charged in
connection with what police described as a "fight club" at the school, which houses people with mental
and developmental disabilities. The incidents came to light when a cell phone of one of the workers was
found at a clothing store and turned in to police. Several videos were filmed in early 2008. What this
video revealed is that the employees responsible for the care and well-being of these residents were
using them for their own amusement by creating scenarios that caused the residents to physically combat
each other. This is not an isolated incident in Texas. While the method of abuse or neglect was novel,
the fact remains that the State school system in Texas is plagued by issues of abuse, neglect, and high
turnover. Texas ranks 49th out of 50 states when it comes to per-capita funding for mental health
services, which the State Schools are a part of, and this is reflected in the quality of personnel they hire
to look after our most vulnerable citizens.

In the last year there have been allegations of sexual abuse, injury to one resident by another resident,
and again, an unacceptably high turnover in staff. Beyond incidents of direct abuse, litigation has
brought the Texas State Schools under fire for many years. In 1965, the Texas Mental Health and
Mental Retardation Act authorized county mental retardation centers, with the goal of helping people
with mild retardation to live with their families. This has been good news for those with mild disability.
Austin Area businesses have been very cooperative with this effort, hiring many mentally disabled
individuals and giving them a chance at a normal and productive life. Some large employers, such as
                                                                                                     Monday Morning Memo
                                                                                                        The Arc of California
                                                                                             September 7, 2009, page 10 of 16
                                                                                            Tony Anderson, Executive Director
HEB, have embraced this population, and lessened the stigma of their disabilities. This attitude and
effort caused a shift in the population of residents in State Schools to those with more profound mental
retardation and multiple disabilities. By 1974, Austin State School's population had been reduced to
1,400. Even in those clients that have been able to live outside the State School System there have been
issues, as a recent Statesman article implies:

Upholding our promise to people with disabilities
The Davis Enterprise September 03, 2009
By Chad Carlock
Forty years ago today, on Sept. 4, 1969, Gov. Ronald Reagan signed into law a bill known as the
Lanterman Mental Retardation Services Act, a law now commonly known as the Lanterman
Developmental Disabilities Services Act. This landmark civil rights legislation established California at
the forefront of community inclusion, dignity and respect for people with developmental disabilities. It
guaranteed 'opportunities for individuals with developmental disabilities to be integrated into the
mainstream of life in their home communities,' and provided for an array of community-based service
and supports to meet those objectives. … While the state still operates several institutions, at a per-
person cost of more than $250,000 per year to the taxpayers, there has been a concerted effort over the
past 40 years to provide alternative community-based options for people with developmental disabilities
to live, work, recreate and integrate into public life. These community based options are cost-effective
and successful. Back in 1969, key Republicans - including Reagan and Assemblyman Frank Lanterman,
with support from parents and local advocacy groups such as the Association for Retarded Citizens (now
known as The Arc), pushed through the legislation, which began: 'The State of California accepts a
responsibility for its mentally retarded citizens and an obligation to them which it must discharge.'
Outdated language aside, that promise made 40 years ago still holds and resonates today.

The importance of the Lanterman Act was recognized by the California Supreme Court in its unanimous
1985 decision, Association for Retarded Citizens v. Department of Developmental Services, in which
the court formally recognized (for the first time) the 'right' of the developmentally disabled to receive
services, and the 'obligation' of the state of California to provide those services. To this day, no other
state in the union has such an entitlement, and it is a precious legacy that we must continue to protect.
Much good has come from the Lanterman Act over the past 40 years. Many people with developmental
disabilities who otherwise would have gone without services, or been confined to a state institution, are
living productive and integrated lives in the community. But as with so many areas in our state's current
fiscal crisis, the Lanterman promise is in jeopardy. This year's budget process resulted in a $334 million
cut from the developmental disabilities area, much of which will come out of direct care services. For
example, more than 17,000 children will no longer have access to early intervention services. Families
who have relied on respite care or in-home supportive services will have fewer hours of service.
Programs to help the developmentally disabled find and keep employment will be cut. …

ARC of Butte County Suffers Through State Budget Cuts
KSHLTV September 1, 2009
By: Britt Carlson Email:

                                                                                     Monday Morning Memo
                                                                                        The Arc of California
                                                                             September 7, 2009, page 11 of 16
                                                                            Tony Anderson, Executive Director
A north state program helping people with disabilities is starting to feel the latest cuts from the state
budget. Now employees and clients at the ARC of Butte County are feeling the tough changes the
chapter is enduring. It's a lot of work caring for a child, but it's a lifetime commitment caring for a child
born with disabilities. Sandra Pooley is a parent of an ARC client and says, “Most people have children
who grow up and have their own families, but with a disabled child they're your responsibility you’re
entire life.” Pooley's son Phillip requires constant care, which can be draining on a single mother, but
ARC of Butte County provides helpful services she needs to make it possible. Pooley says, “I would get
help with how to deal with problems that would arise in counseling and get good ideas to solve those

But now those counseling services along with two socialization programs are being suspended at
ARC. Executive Director of ARC of Butte County Michael McGinnis says, "The tutor program teaches
adults how to access and integrate into the community and gives them skills where they feel comfortable
being out in the communities they live in." The state budget cut $750,000 from ARC, which means a
decline in services and a 20% cut in staff. Another parent of an ARC patient Arthur Lenner says, “When
they cut those services, Wesley will lose because we can't afford to take him to somewhere to replace
those services.” Families are already starting to feel the repercussions of the loss of the socialization
programs. Lenner adds, “The routine is now broken that causes Wes to withdraw. He's not participating
and becomes more of a problem for us to manage and help him enjoy things.” …

Mothers Question Schools Ability to Assist Special Needs Students
WSAZ News 3 August 30, 2009
By Eric Fossell
HUNTINGTON, W.Va. (WSAZ) – Seeing her son come home from school in tears after classmates
called him “Retard” and placed a “Kick Me” sign on his back marked the turning point for Mary
Calhoun Brown. Likewise, Kim Scott pulled her son out of Cabell County Schools after a diagnosis of
bipolar disorder failed to bring him the educational attention she said he needed. Both mothers decided
to home school their sons, and they’re on a mission to educate parents and educators about the lack of
resources in public and private schools for kids with behavioral and mood disorders. Throughout our
region – in West Virginia, Ohio and Kentucky – suicide ranks as one of the top three leading causes of
death for 11- to 18-year-old youths, according to the latest statistics from the Centers for Disease
Control and Prevention. Furthermore, 90 percent of youth suicide victims had a major psychiatric
disorder – typically bipolar disorder or depression.

…Despite some inherent problems with mainstreaming, it has helped children with special needs and
disabilities relate to their peers, according to Mufson. “Essentially, what's happened is schools have
changed dramatically in the last 20 years,” she said. “In general, those who work with kids with special
needs -- a lot of that has improved. What they've tried to do is recognize all kinds of abilities that are
different from kids’ peers – things that make kids special … It’s probably difficult to give every kid with
special needs opportunities that would be viable.” Despite the argument for or against educational
mainstreaming, Scott said addressing educational issues early is important -- not only for youngsters but
for our entire society. The state of Illinois, for example, saved more than $44 million because of early
screening and support of children with mental health issues, according to information from the Illinois
Children’s Mental Health Partnership. Mufson said parents can help by being as honest and supportive
with their children as possible. …

                                                                                       Monday Morning Memo
                                                                                          The Arc of California
                                                                               September 7, 2009, page 12 of 16
                                                                              Tony Anderson, Executive Director
Women Urged Not to Drink While Pregnant, Doctors still telling women they can drink
Fetal Alcohol Spectrum Disorder (FASD) Awareness Day September 9 marked by
Illinois Forum and new brochure
Reuters September 4, 2009
By Newswire
CHICAGO, Sept. 4 /PRNewswire-USNewswire/ -- Learning disabilities, mental health issues and
behavior problems are just some of the issues that afflict babies exposed to alcohol in the womb, yet
some doctors still tell their patients it is safe to have a drink now and then while pregnant. Those hoping
to change that are meeting on September 9, the ninth day of the ninth month, for a forum dedicated to
raising awareness about the dangers of drinking while pregnant and the plight of children and families
affected by Fetal Alcohol Spectrum Disorders (FASD). State legislators, health care professionals,
parents, social workers and drug prevention and treatment specialists are coming together at Prairie State
College in Chicago to mark international FASD Awareness Day. A new brochure titled "It's Only Nine
Months" is also being released by Prevention First, a nonprofit drug prevention organization
participating in the forum, addressing some of the common questions and misperceptions women have
about drinking while pregnant.

"Our research found that women are getting conflicting information about drinking while pregnant,"
explained Karel Ares, executive director of Prevention First. One focus group participant said she had
heard that wine or Champagne were good for a woman's blood while pregnant, Ares said. Others
thought drinking was safe in the first few months of pregnancy. "There is no research that proves that
any amount of alcohol is safe at any time for unborn babies," Ares pointed out. "But there is a great deal
of research about the many lifelong problems caused by permanent brain damage from drinking alcohol
while pregnant." Ares said that one of the most important groups of people she wants to get this
message are doctors. "FASD is preventable, yet some obstetricians are still telling their patients they can
have a glass of alcohol now and then.It's like playing Russian Roulette with babies' lives, and we are
working to educate them about the risks."

                                     Funding Opportunities
HHS - Department of Health and Human Services Health Resources & Services
Administration MCH Research Modification 2

ED - Department of Education Personnel Development To Improve Services and Results
for Children With Disabilities--Paraprofessional Preservice Program Improvement
Grants CFDA 84.325N Grant

HUD - Department of Housing and Urban Development Section 811 Supportive Housing
for Persons with Disabilities Modification 1

HHS - Department of Health and Human Services Health Resources & Services
Administration Healthy Start Initiative-Eliminating Racial/Ethnic Disparities
Modification 3

ED - Department of Education Centers for Independent Living CFDA 84.132A Grant

                                                                                      Monday Morning Memo
                                                                                         The Arc of California
                                                                              September 7, 2009, page 13 of 16
                                                                             Tony Anderson, Executive Director
ED - Department of Education Centers for Independent Living CFDA 84.400 American
Recovery and Reinvestment Act of 2009 (ARRA) Grant

HUD - Department of Housing and Urban Development Section 811 Supportive Housing
for Persons with Disabilities Grant

HUD - Department of Housing and Urban Development Service Coordinators in
Multifamily Housing Grant

HHS - Department of Health and Human Services Health Resources & Services
Administration Healthy Start Initiative-Eliminating Racial/Ethnic Disparities
Modification 1

                                               Career Ladder
The Arc of California posts job announcements in the Career Ladder section every week because we would like
to contribute to steering quality candidates to professional positions that support people with disabilities and we
are trying to communicate to Direct Support Professionals and People with Disabilities that there is a real “career
ladder” in their chosen profession.

Position: Director, St. Louis Tri-County Regional Office
Description: The Missouri Department of Mental Health, Division of Developmental Disabilities seeks a Director
for the St. Louis Tri-County Regional Office to direct and coordinate the delivery of community-based programs
and services for persons with developmental disabilities. The St. Louis Tri-County Regional Office serves St.
Charles County, Jefferson County and St. Louis City. Minimum qualifications include a Master’s Degree in
psychology, social work, human development and family studies, nursing, education, public or business
administration and 7 years of professional experience in the field of developmental disabilities, mental health,
public health, education, public or business administration of which at least 5 years must have been in a
supervisory or management capacity directing programs and services for persons with developmental disabilities.
Additional years of qualifying experience may substitute for graduate coursework.
Salary: $77,785.20 annually with excellent benefits. This is a non-merit system position.
How to Apply: Send resume and cover letter by September 15, 2009 to: Patrick Murphy, Director, Office of
Human Resources, Department of Mental Health
P.O. Box 687, Jefferson City, MO 65102, FX (573) 526-4561,

                  Deputy Commissioner, Division of Developmental Disabilities The
Position: Assistant
Georgia Division of Developmental Disabilities
Description: The Assistant Deputy Commissioner, Developmental Disabilities will serve in the capacity of the
Deputy Commissioner in their absence. The incumbent will be responsible for the supervision of state services
and programs for Georgians with developmental disabilities. The majority of these individuals live at home or
receive 24 hour care in contracted community residential settings, while less than 800 individuals are in one of
four state hospitals of which this position will take a leadership role in improving additional community choices.
Salary: In addition to our competitive starting salary, we offer a generous benefits package that includes
employee retirement plan, deferred compensation, 12 paid holidays, vacation & sick leave, dental, vision, long
term care, and life insurance.
How to Apply: Please email a cover letter and resume in Microsoft Word format to: To
ensure proper routing/handling of your credentials, copy/paste or type the following in the subject line of your
email: DD/Assistant Deputy Commissioner

Position: Training Coordinator San Francisco Family Support Network
Description:. Working with the SFFSN Training and Technical Assistance Committee and SFFSN staff, the
Training Coordinator is responsible for coordinating and ensuring the successful planning and implementation of
the SFFSN’s training and technical assistance efforts. These activities are designed to support staff who work
with families to do so most effectively. The position is supervised by the SFFSN Director. Responsibilities:
                                                                                            Monday Morning Memo
                                                                                               The Arc of California
                                                                                    September 7, 2009, page 14 of 16
                                                                                   Tony Anderson, Executive Director
    1. Identify the Technical Assistance needs of SFFSN members and develop plans to address them
    2. Coordinate a minimum of 30 workshops, convenings, and other trainings annually for direct service staff
    3. Conduct workshops for direct service staff on the SFFSN Family Support Standards and Family Support
    4. Coordinate the peer mentoring program including recruiting, training, matching, and supporting mentors
        and mentee organizations
    5. Plan, coordinate, and execute the annual Family Support special convening
    6. Provide direct technical assistance to members as needed
    7. Develop and update training calendars, curricula, materials, registration flyers, and evaluations
    8. Research, identify, and develop content for Family Support resource library
    9. Provide staff support to the Training and Technical Assistance Committee
    10. Provide and update Training and Technical Assistance website content
    11. Assist with gathering information for and preparing reports to funders
    12. Co-supervise the SFFSN Administrative Assistant
    13. Participate in special projects and tasks as they are assigned.
Salary: $50,000-$55,000 DOE, plus benefits
How to Apply: Please submit resume and cover letter to: Andrew Russo, SFFSN Director, 1390 Market Street,
Suite 900, San Francisco, CA 94102. You may fax your resume and cover letter to 415-554-8965, or send it via
email to

Position: ExecutiveDirector/ Chief Executive Officer, the American Association on
Intellectual and Developmental Disabilities (AAIDD)
Description: The Executive Director of the American Association on Intellectual and Developmental Disabilities
(AAIDD) functions as the Chief Executive Officer of the association and is the association’s primary representative
to the professional community, the media and policymakers. The Executive Director represents AAIDD to other
national disability organizations on a regular basis and is the voice of AAIDD to the news media, Congress and
the Executive Branch and other national entities. The Executive Director works regularly with volunteer
leadership and association members and must be capable of communicating effectively with professionals at all
levels of sophistication and the general public. The incumbent is responsible for implementation of policies set by
the Board of Directors as well as annual goals and objectives, and financial, program, and administrative
management of the corporation. Guidance and direction is provided by the President and by the Board. The
Executive Director reports to the President of the Board of Directors.
Salary: Salary commensurate with experience.
How to Apply: Resumes with a cover letter should be sent to the Search Committee via email to The close date for accepting resumes is 9-30-09. All resumes will be
kept in strict confidence.

Human Services Connection: You want to provide quality services to people with disabilities... We can
help. Human Service Connections provides real solutions for the issues facing disability organizations today. If
your organization is facing an immediate need for leadership, HSC provides nationwide executive level
recruitment searches. We can help your organization find qualified individuals that fit your agency's culture and
will lead your organization toward providing excellent supports to people with disabilities. If your organization's
leadership changes will be in the future, HSC provides assistance with succession planning to ensure a
seamless transition of leadership for your organization. In addition, HSC provides other consultative services in
the areas of strategic development & implementation, business development, executive coaching, turnaround
assistance for agencies in crisis, and training on various topics for audiences from direct support to executive
level leadership.

NEW! State Director for private organization - Colorado
Salary: Please include salary requirements with application
Well-established, stable, national provider of developmental disability services is looking for an experienced
leader to head up their services in the state of Colorado. The organization provides residential "Host Home"
services as well as day habilitation programs with a budget of 8mm.

                                                                                             Monday Morning Memo
                                                                                                The Arc of California
                                                                                     September 7, 2009, page 15 of 16
                                                                                    Tony Anderson, Executive Director

NEW! State Director - Arizona
Salary: Please include salary requirements with application
Multi-state provider of developmental disability and mental health services is looking for an experienced leader to
head up their services in the state of Arizona. The organization provides a wide-array of services throughout the
state including residential, day and vocational services. $40mm


NEW! Senior Financial Analyst - Maryland
Salary: Please include salary requirements with application
The Senior Financial Analyst will plan and conduct analyses to improve the operational and financial effectiveness
of the organization's operations in Maryland. The Senior Financial Analyst will perform statistical, cost and
financial analysis of financial reports and data and prepare subsequent narrative analysis for the management


NEW! Accounting Operations Consultant - Maryland
Salary: Please include salary requirements with application
Large developmental disability provider in Maryland is looking for an Accounting Operations Consultant to assist
them with accounting needs during a transition period of approximately 3-4 months.


Associate Director - Indiana
Salary: Please include salary requirements with application
Well-established, progressive, financially stable organization is looking for an Associate Director for its programs
in west-central Indiana. This position will supervise administrative staff of the organization's group homes and
supported living programs. The hiring organization is looking for a flexible, multi-tasker with excellent
communication skills to complete their leadership team.


Senior Director- Madison, Wisconsin
Salary: Please include salary requirements with application
Large values-based multi-state disability service provider is looking for a Senior Director to manage the agency's
services in the state of WI. Services provided include in-home, supported living, community-based day program
and supported employment services.


                                                                                             Monday Morning Memo
                                                                                                The Arc of California
                                                                                     September 7, 2009, page 16 of 16
                                                                                    Tony Anderson, Executive Director