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EASTER SEALS UCP NORTH CAROLINA POST POLIO NETWORK NEWS
Summer, 2006
2006 CAMP SKY RANCH REUNION -AUGUST 25-27, 2006
The Post-Polio Support Group of the High Country invites you to the Annual Reunion at Camp Sky Ranch near Boone, NC.
All Polio Survivors and Their Families Are Welcome!!!
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Begun in August 1990, the reunion is three days and nights of fun, fellowship, and relaxation at this memorable camp for polio children during the 1940’s and 1950’s. Note: Camp Sky Ranch is for sale, so this may be our last reunion at the camp. • Bring a lounge chair and a good book; rest under a shade tree during the day and count the stars during the night. Sit back and enjoy really fun entertainment. • Meals will be served starting with a buffet Friday lunch and ending with a buffet supper on Sunday evening. • A church service will be held in the chapel at 11:00 a.m. Sunday. • Bring items (e.g., arts and crafts and other fruits of your labor) to sell at the camp store. The camp has been reserved for Friday, Saturday, and Sunday nights if you wish to stay. The cabins are rustic, with sinks and toilet facilities (the bathhouse is a separate cabin). Bring linens or sleeping bags and towels if you are staying in a cabin. Remember to bring warm clothing! Due to breathing difficulties associated with Post-Polio Syndrome, no smoking will be allowed inside any of the camp buildings. If you prefer staying in a local motel instead of a cabin, numbers for some local motels are: Hampton Inn (828) 2640077; Super 8 (828) 264-4133; Comfort Suites (828) 268-0099; Holiday Inn Express (828) 264-2451. We must have your reservations in order to plan menus and activities. Our Group pays for these accommodations, and there is a lot of hard work in making up the menus, cooking, and completing the countless duties, all performed out of love. Questions: call Kathryn Pennell, (336) 877-1154, or Shelby Duane (828) 495-9371. If you want to join in the fun, it is important that you register by August 16, 2006.
Directions to Camp Sky Ranch
In Boone, on Highway 321 (Blowing Rock Road) near the 321/105 intersection, turn at Bojangles onto Winkler's Creek Road. Continue on Winkler's Creek Road through traffic light and past mall on left. Winkler's Creek Road will take a right after crossing a small bridge. Follow Winkler's Creek Road out of Boone for approximately 2.5 miles to the Camp Sky Ranch sign on the left. Take the drive down into a beautiful valley to the camp.
The Triangle Post Polio Group is wishing a warm Thank You and Good Bye to their longtime group leader Gerry Carroll, who will be enjoying his ‘second retirement’ (though he will still be an active group member). Gerry has been helping people in his group and in the Triangle Area for the past five years as this region’s group leader. Thanks, Gerry! The group is now seeking a new leader, or co-leaders to step up to the plate! Interested?.... Please call Gerry.
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The following article was reprinted from Post-Polio Health (formerly called Polio Network News) with permission of Post-Polio Health International (www.post-polio.org). Any further reproduction must have permission from copyright holder.
Non-Fatiguing General Conditioning Exercise Program (The 20% Rule)
Stanley K. Yarnell, MD (now retired), San Francisco, California The non-fatiguing general conditioning exercise program using the 20% rule was designed to restore stamina or endurance for those individuals who have continued to be bothered by profound fatigue following surgery, illness, or trauma. The program begins by determining the polio survivor's maximum exercise capability with the help of the clinic physical therapist. The type of exercise can be in a pool or on dry land, using an arm erqometer or an exercise bicycle, depending on the individual's abilities and preferences. If one prefers swimming, the maximum number of laps that the patient can swim is used as the maximum exercise capability. If the survivor has considerable residual weakness and is only able to swim one lap in half an hour, then the amount of time actively swimming can be used as the maximum exercise capability rather than the number of laps. Having established the maximum exercise capability, the polio survivor is instructed to begin his aerobic swimming program at 20% of the determined maximum exercise capability. He can swim three to four times per week at that level for one month, and then he is instructed to increase by 10%. For example, if an individual is able to actively swim in a pool for half an hour, then one-half hour would be his maximum exercise capability. He would begin swimming just six minutes per session three to four times per week for a month before increasing the amount of time actively swimming to nine minutes three to four times per week for another month. Then he would increase by 10% once again so that he was actively swimming 12 minutes per session three to four times per week for another month, and so on. After three to four months, our patients have reported that they feel an increase in their general stamina or endurance. Alternatively, if an arm ergometer or exercise bicycle is used, the same basic principle can be utilized, calculating distance pedaled or time spent actively pedaling. The individual begins his aerobic or non-fatiguing general conditioning exercise program at 20% of maximum exercise capability three to four times per week for one month before increasing the distance by 10%. He continues with that level of activity for another month before increasing by another 10%, so that he is exercising at 40% of maximum exercise capability. For example, if an individual is able to pedal an exercise bicycle for one mile or is able to actively pedal the bicycle for up to 20 minutes, then that is his maximum exercise capability. He is instructed to begin his exercise program at one-fifth of a mile (or, if time is used, then four minutes is the beginning exercise time). This is repeated three to four times per week for a month before increasing the distance to one-third of a mile or six minutes. Our patients are encouraged to maintain that for an additional month before increasing by another 10%, and so on. Individuals are cautioned to stop if they become fatigued during their exercise program, or if they experience pain or aches in their muscles. Most polio survivors are able to continue increasing their exercise program to nearly the maximum exercise capability, though it clearly would take a full nine months if this program were strictly followed. Conditioning or aerobic exercise at this submaximal level allows the individual to regain a healthier sense of stamina without damaging delicate old motor units. It is imperative to incorporate the concept of pacing and spacing within the non-fatiguing general conditioning exercise program, meaning that rests are to be taken every few minutes. The 20% rule is sometimes also applied to polio survivors when they are given instructions in a home flexibility and stretching program so they do not exercise too vigorously. This exercise program can be modified with the supervision of a physical therapist, depending on the progress made by the polio survivor. This program may not eliminate fatigue, but we have found it effective for those who have a significant element of deconditioning contributing to their sense of fatigue.
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```````````````````````````````````````````````````````````````````````````````````````````` POSTAL SERVICE ISSUES STAMPS HONORING DR. JONAS SALK AND DR. ALBERT SABIN The US Postal Service has issued stamps to honor two of America's most esteemed scientists, Dr Jonas Salk and Dr Albert Sabin. The two were instrumental in developing vaccines for paralytic poliomyelitis, or 'polio' as it is better known, as well as a number of other infectious diseases. Both men have now been honored as part of the Distinguished Americans series of stamps. Salk is depicted on the 63-cent stamp, the rate for two-ounce First-Class mail, and Sabin on the 87-cent stamp, the three-ounce First-Class rate. ````````````````````````````````````````````````````````````````````````````````````````````
Please detach and mail the registration form below.
2006 Camp Sky Ranch Reunion Registration Form
(Remove and return this form by August 16, 2006) Name Address Home Phone Do you need help finding a motel room? Emergency Phone
Circle the amount that applies to you and include the amount with your registration form. The cost is $15.00 per day/night per person. This includes all food, entertainment, overnight accommodations, and access to camp recreational facilities. Due to higher costs to use the camp, no day-only cost option is available this year.
Name
Fri, 8-25 $15 $15 $15 $15 $15 $15
Sat, 8-26 Sun, 8-27 $15 $15 $15 $15 $15 $15 $15 $15 $15 $15 $15 $15 Amount Enclosed
Total $ $ $ $ $ $ $
Make check to: Post-Polio Support Group of the High Country Mail to: Kathryn Pennell
PO Box 144, Deep Gap, NC 28618
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THE POST-POLIO INSTITUTE "HYPOGLYCEMIA" DIET
Dr. Susan J Creange
The most recent research at The Post-Polio Institute has shown that polio survivors with fatigue have slowed brain waves, reduced levels of brain activating hormones and a significantly decreased ability to think of words they want to say, pay attention and concentrate. Dr Susan Creange has discovered that polio survivors with blood sugar levels in the low normal range have as much difficulty paying attention and concentrating as do diabetics with extremely low blood sugars as a result of their taking too much insulin. Polio survivors often have a "Type A" diet, drinking three cups of coffee for breakfast, not having lunch and eating cold pizza for dinner. The Post-Polio Institute "Hypoglycemia" Diet, recommends about 16 grams of protein at breakfast as a long-lasting energy source, has been found to reduce many of the symptoms of post-polio fatigue POWER BREAKFASTS FOR POLIO SURVIVORS: A 150 pound person needs 70 grams of protein per day. Polio survivors need protein in the morning for long-lasting energy. So, how about getting 25% of your daily protein need met at breakfast? 12 minute breakfast 2 hard boiled eggs (12 g) and an English Muffin (4.5 g) 8 minute breakfast 3 scrambled egg whites (10 g) and a bagel (6 g) 6 minute breakfast Toasted bagel (6 g), lite cream cheese (6 g), 1/2 glass 2% milk 4g) 4 minute breakfast Yogurt (12 g) and 1 oz of low-fat cheese (6 g) 2 minute breakfast 1/2 cup low-fat cottage cheese (14 g) Reprinted from The Seagull; Triad Post Polio Newsletter 2/06 ……………………………………………………………………………………………………………………………………
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