Cancer Survivorship Programs and Information Childhood Teens and Young

Cancer Survivorship Programs and Information Childhood, Teens and Young Adult Programs City YELLOW SPRINGS Organization A Lion in the House Program Type A LION IN THE HOUSE helps viewers understand the challenges of cancer’s immediate burdens, as well as its aftermath. The unfolding drama shows how families move beyond fighting the disease, and how lives must be restarted, redefined and reclaimed. Issues range broadly from a child’s need to get back on track after months of missed school to a mother’s need to create meaning out of her child’s ordeal and a family’s need to reconnect with each other. A LION IN THE HOUSE goes inside the drama of individual and family survival and powerfully portrays the wisdom of children who have faced death. The series also highlights the critical needs that young survivors and families have for ongoing support from health professionals, educators, youth development specialists and other communityand faith-based organizations. Provides a forum of national patient advocacy groups and medical and scientific organization which meets regularly, shares ideas and concerns, and works collaboratively to advance research and policies to prevent Location 726 Xenia Avenue Yellow Springs, OH 45387 Contact http://www.itvs.org/o ml itvs@itvs.org www.survivoralert.or For more information amy@kcp.uky.edu or 859-219-0772 x265. ALEXANDRIA Alliance for Childhood Cancer Tara Leystra 1900 Duke Street Suite 200 Alexandria, VA 22314 http://www.alliancefo 703.299.1050 Fax 703.684.8364 BSK 4/11/2008 Page 1 Cancer Survivorship Programs and Information Childhood, Teens and Young Adult Programs City Organization Program Type cancer and improve public education and the diagnosis treatment, supportive care and survivorship of children and adolescents with cancer. Created by The National Children’s Cancer Society for survivors of childhood cancer to help them integrate the cancer experience into their new lives as survivors, successfully handle the challenges that are ahead of them and celebrate survivorship. Founded in 1970 by concerned parents of children with cancer and is committed to providing support, education and advocacy for children and adolescents with cancer, survivors of childhood/ adolescent cancer, their families and the professionals who care for them. The overarching goal of the CDC survivorship efforts is to create and implement along with partners, successful strategies to help the millions of people who live with, through and beyond cancer. A comprehensive set of healthcare screening and management guidelines designed for use by Location Contact ST. LOUIS Beyond the Cure 1015 Locust Suite 600 St. Louis, MO 63101 http://beyondthecure. 800-5-FAMILY or 800.532.6459 KENSINGTON Candlelighters Childhood Cancer Foundation National Office P.O. Box 498 Kensington MD 20895-0498 http://www.candlelig 1.800.366.CCCF 1.800.366.2223 301.962.3520 Fax 301.962.3521 ATLANTA Centers for Disease Control and Prevention (CDC) Division of Cancer Prevention & Control Mail Stop K-64 4770 Buford Highway, NE Atlanta, GA 30341-3717 Children’s Oncology Group http://www.cdc.gov/c 770.488.4751 Voice Information Sy Fax 770.488.4760 Childhood Cancer Survivor Long-Term Follow-up Guidelines www.survivorshipgu BSK 4/11/2008 Page 2 Cancer Survivorship Programs and Information Childhood, Teens and Young Adult Programs City Organization Program Type healthcare professionals who are providing ongoing medical followup for childhood cancer survivors. CCCA is a non-profit organization that works as a national catalyst to stimulate drug discovery and development for childhood cancers expand resources for research and treatment, and address the needs and concerns of survivors. The Childhood Cancer Survivor Program at the AFLAC Cancer Center and Blood Disorders Service of Children’s Healthcare of Atlanta – A team of childhood cancer experts treats program participants and offers support and education to help survivors achieve the best possible quality of life. Location Contact SILVER SPRING Children’s Cause for Cancer Advocacy (CCCA) 1010 Wayne Avenue, Suite 770 Silver Spring, MD 20910 http://www.childrens questions@childrensc 301.562.2765 Fax 301.565.9670 ATLANTA Children’s Healthcare of Atlanta Survivor (CHAS) Children’s at Egleston 1405 Clifton Road NE Atlanta, GA 30322-1062 404.785.6000 Children’s at Scottish Rite 1001 Johnson Ferry Road NE Atlanta, GA 30342-1600 404.785.5252 Children’s at Hughes Spalding 35 Jesse Hill Jr. Drive SE Atlanta, GA 30303 404.785.9850 Children’s Office Park 1600 Tullie Circle NE Atlanta, GA 30329 www.choa.org/defaul 404.250.KIDS BSK 4/11/2008 Page 3 Cancer Survivorship Programs and Information Childhood, Teens and Young Adult Programs City NEW YORK Organization Fertile Hope Program Type Provides reproductive information, support and hope to cancer patients whose medical treatment may cause infertility. LIVESTRONG SurvivorCare provides information, education, counseling services and referrals to other resources. NCCS is the oldest survivor-led cancer advocacy organization in the country and a highly respected authentic voice at the federal level, advocating for quality cancer care for all Americans and empowering cancer survivors. A non-profit organization committed to improving the quality of life for Latino children with cancer and their families. It is the only Latino organization that focuses on pediatric oncology and operates throughout the U.S. to provide educational resources and emotional support for pediatric cancer patients and their families from ay racial or ethnic background. It began as a program funded by the American Cancer Society and has mushroomed to serve more than 3,000 families. An online community of young Location 65 Broadway, Suite 603 New York, NY 10006 P. O. Box 161150 Austin, TX 78716-1150 1010 Wayne Avenue Suite 770 Silver Spring, MD 20910 Contact www.fertilehope.org 888.994.HOPE (4673 www.livestrong.org 1.866.235.7205 AUSTIN Lance Armstrong Foundation (LAF) SILVER SPRING National Coalition for Cancer Survivorship (NCCS) http://www.canceradv info@canceradvocac 301.650.9127 Fax 301.565.9670 LOS ANGELES PADRES Contra El Cancer 3479 Cahuenga Blvd W Los Angeles, CA 90068 http://iamhope.org/ 800.269.4186 or 323.850.7901 Fax 323.850.7914 AUSTIN BSK 4/11/2008 Planet Cancer 314 East Highland Mall www.planetcancer.or Page 4 Cancer Survivorship Programs and Information Childhood, Teens and Young Adult Programs City Program Type adult cancer survivors who share their own experiences with others who are facing similar situations. SuperSibs The mission is to honor, support and recognize brothers and sisters of children with cancer. Their services include a scholarship program, parenting resources and “Surprise and Delight” services all focused on helping siblings feel valued and supported. Surviving and Moving Forward: The A non-profit organization created SAMFund for Young Adult Survivors to help young adult cancer of Cancer survivors by providing financial support through grants and scholarships. Teens Living with Cancer An online resource dedicated to helping teens deal with the effects of cancer. The resource provides information on exercise and nutrition. There is an online support group. Website is available in English and Spanish. The Ulman Cancer Fund (UCF) for UCF focuses on older adolescents Young Adults and young adults. It sponsors eight support groups nationally with participants ranging in age from 15 to 35 years, including other cancer patients, survivors, spouses, friends and children of people with cancer. It offers networking, peer mentoring and Organization Location Blvd., Ste. 306 Austin, Texas 78752 4300 Lincoln Ave Suite I Rolling Meadows, IL 60008 Contact 512.452.9010 ROLLING MEADOWS http://www.supersibs 847.705.SIBS (7427) 1.866.444.SIBS (742 Fax 847-776-7084 BOSTON 35 Channel Center Street #208 Boston, MA 02210 3111 Winton Rd. S. Rochester, NY 14623 www.thesamfund.org 617.780.9606 ROCHESTER www.teenslivingwith COLUMBIA Office Location: 5575 Sterrett Place Suite 320 Columbia, MD 21044 Mailing Address: PMB #505 4725 Dorsey Hall Drive Suite A http://www.ulmanfun info@ulmanfund.org 410.964.0202 or 1.888.393.FUND (38 BSK 4/11/2008 Page 5 Cancer Survivorship Programs and Information Childhood, Teens and Young Adult Programs City Organization Program Type higher education scholarships for young adults whose lives have been impacted by cancer. UCF partners with many national and private agencies who serve cancer survivors. 2-1-1 is an easy to remember number that connects individuals with resources in their community. 2-1-1- offers information on a broad range of services. 2-1-1 helps people find and give help. VICC and Vanderbilt Children’s Hospital have developed a comprehensive cancer survivorship/ late-effects program for survivors of adult onset and childhood cancer. The first organization dedicated to supporting young adults with cancer. The Group RoomR is a weekly radio talk show that’s all about cancer. YSC is the only international, nonprofit network of breast cancer survivors and supporters dedicated to the concerns and issues that are unique to young women and breast cancer. The YSC serves as a point of contact for young women living with breast cancer. YSC is the only international, nonLocation Ellicott City, MD 21042 Contact ALEXANDRIA United Way 2-1-1 Changing the Way Americans Find Help 701 North Fairfax Street Alexandria, VA 22314 www.unitedway.org Email 211information Dial 211 NASHVILLE Vanderbilt-Ingram Cancer Center (VICC) 691 Preston Building Nashville, TN 37232 http://www.vicc.org/c 615.936.5847 STUDIO CITY Vital Options International: Support for Young Adults with Cancer ALPHARETTA Young Survival Coalition (YSC) 4419 Coldwater Canyon Ave. Suite I Studio City, CA 91604-1479 375 Sable Court Alpharetta, GA 30004 www.youngadultswit www.vitaloptions.org 800.477.7666 www.youngsurvival.o suitt@bellsouth.net 770.752.9731 Cell 770.377.8956 ATLANTA BSK 4/11/2008 Young Survival Coalition (YSC) 5825 Glenridge Dr. Phone: (404) 250-650 Page 6 Cancer Survivorship Programs and Information Childhood, Teens and Young Adult Programs City Organization Program Type Location profit network of breast cancer Building 3, Suite 101-E survivors and supporters dedicated Atlanta, GA 30328 to the concerns and issues that are unique to young women and breast cancer. The YSC serves as a point of contact for young women living with breast cancer. Contact Fax: (404) 250-6509 Email: yscatlanta@yo www.youngsurvival.o BSK 4/11/2008 Page 7