National Family Caregiver Support Program

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					National Family Caregiver Support Program – A Resource for Families with Intellectual/Developmental Disabilities Rick Greene US Administration on Aging AAMR Conference, Washington DC December 2, 2005

National Family Caregiver Support Program
Included in Reauthorization of Older Americans Act Passed by Congress in 2000 $125 Million Appropriated Originally

National Family Caregiver Support Program
Focus on Caregiver vs. Care Recipient A Component of Title III General Provisions of Title III Apply
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Services Delivery System Organization and Structure


State Units on Aging – State Plans Area Agencies on Aging – Area Plans Local Service Providers


Intrastate Funding Formula

National Family Caregiver Support Program
$162 million appropriation – FY2005

Over $155 million allocated to States

Based on proportionate share of 70 plus population and statutory minima


$6.3 million earmarked for Native American Caregiver Support Program

Allowable Services
Information about Services Assistance with Access to Services Individual Counseling; Support Groups; Caregiver Training Respite Care Supplemental Services on Limited Basis

Supplemental Services
Home Modifications Assistive Technologies Emergency Response Systems Equipment Incontinence Supplies Transportation Whatever the Caregiver Needs . . .

Populations Served
Family Caregivers of Older Adults Grandparents and Relative Caregivers of Children Not More Than18 Years of Age

States may use not more than 10% of funds for services to grandparents and older individuals who are relative caregivers

Outcomes – 2003 Data
Over 12 million received information on caregiver services in 2002 and 2003 550,000 – Assistance to Access Services 280,000 – Counseling, Training, Support Groups 180,000 – Respite Care 212,000 – Supplemental Services

NFCSP Grants for Caregivers of Relatives with MR/DD
The ARC of the US Pennsylvania Department on Aging Illinois Department on Aging United Cerebral Palsy of Southern Arizona

The ARC of the United States
Develop and Evaluate a Replicable, Systematic Collaborative Model for Support of MR/DD Caregivers Encourage Culturally-Sensitive Outreach and Service Delivery to this Population Identify Best Practices Produce/Update Training Materials

Pennsylvania Department of Aging
Elder Caregivers of Adults with Disabilities Pilot Project Provide to Primary Caregivers (60 Yrs and Older) of Adult Relative with Disabilities AAAs of Allegheny and Montgomery Co Evaluated by Temple University

Illinois Department on Aging
Prepare Families for Changes with Increasing Age & to Plan for Future Caregivers of Adult Children with DD Rural vrs. Urban/Suburban Counties Partnered with IL Dept. of Human Services, IL Council on Developmental Disabilities & University of Illinois

United Cerebral Palsy of Southern Arizona
Targeted Grandparents Raising Grandchildren with ID Produced Videos to Raise Awareness and Encourage Referrals Developed Educational Materials in English and Spanish

For More Information
Rick Greene US Administration on Aging 202-357-3586

ElderCare Locator 1-800-677-1116

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