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					Advocacy Session
Sarcoma Research Funding by the Nonprofit Sector

Jody Cummings, MPH Executive Director

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Sarcoma Foundation of America Mission


Our mission is to act as an advocate for sarcoma medical research AND provide funding to support research focused on discovering and developing new weapons with which to treat and eradicate sarcoma

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To achieve our mission, the SFA, will focus on the following three goals:
Funding of research grants through our internal mechanism as well as by giving financial support to outside foundations, such as ASCO and AACR.  Grassroots Awareness and Education Campaigns  Research Advocacy
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The SFA will achieve its goals by: Continuing to fund state of the art sarcoma research  Creating a critical mass of sarcoma patients and caregivers  By convincing state and federal legislators to pay attention to sarcoma


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Call for Grant Proposals
A call for grant proposals is currently active  Deadline for applications is January 31, 2005  For this funding cycle, grant amounts will be a maximum of $25,000  For more information visit our site at www.curesarcoma.org  The SFA is also funding a Young Investigator Award through ASCO.
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Medical Advisory Board
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Murray Brennan, M.D. Larry Baker, D.O. Charles Forscher, M.D. Lee Helman, M.D. Jonathan Lewis, M.D. Alberto Pappo, M.D. Vernon Sondak, M.D.

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    

George Demetri, M.D. Bob Benjamin, M.D. Richard Gorlick, M.D. Marc Ladanyi, M.D. Robert Maki, M.D., Ph.D. Peter Pisters, M.D.

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2004 Research Grants
Sarcoma Cell Line Resource with Molecular and Kinase Annotation – Jonathan Fletcher, MD  Molecular Classification of Sarcoma Cell Lines – Matt van de Rijn, MD, PhD  Molecular Dissection of a Subset of Gene Fusion-Associated Sarcomas that Lack that Lack the Gene Fusion – Frederic Barr, MD  The Role of RECQ Helicases in the Pathogenesis of Osteosarcoma – Lisa Wang, MD
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Critical Mass
Mobilizing our membership to get others involved in the cause  Outreach to all medical institutions to educate and expand sarcoma community reach  Public relations campaign  Grassroots fundraisers
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Sarcoma Foundation of America Research Advocacy
Mobilization of our constituents to write, call, fax, and email their representatives in government  Creation of strategic alliances within DC to increase funding for sarcoma research  Focus on establishing a united, strong, and vocal sarcoma community


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SFA - Membership
1000 900 800 700 600 500 400 300 200 100 0 2002 2003 2004

Members

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SFA - Database
10000 9000 8000 7000 6000 5000 4000 3000 2000 1000 0 2002 2003 2004 2005

2002 2003 2004 2005

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SFA Website Hits Per Day
500 400 300 200 100 0 2002 2003 2004 2005 2002 2003 2004 2005

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SFA Funding
1000000 900000 800000 700000 600000 500000 400000 300000 200000 100000 0 2002 2003 2004 2005

2002 2003 2004 2005

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The people in this room will find the cure(s) for sarcoma!
We want to help.

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THANK YOU
WWW.CURESARCOMA.ORG Or jody@curesarcoma.org

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