Epilepsy Seizure Disorders (WL 385) by bcs24005

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									                    Epilepsy / Seizure Disorders (WL 385)
               Resources in the Kreamer Family Resource Center




Books for Adults:
Answers to Your Questions About Epilepsy
Armstrong—Saving Jesse: A Diary of Rasmussen's Syndrome
Brake—The Ketogenic Cookbook
Brothers & Sisters (two-sided book, one side for young siblings and one side for parents
about how a child's epilepsy affects siblings)
Devinsky—Epilepsy Patient and Family Guide
Epilepsy: A Report to the Nation
Epilepsy Parent and Family Networks Resource Manual (support group information)
Fadiman—The Spirit Catches You and You Fall Down: A Hmong Child, Her American Doctors,
and the Collision of Two Cultures
Freeman—The Ketogenic Diet: A Treatment for Children and Others with Epilepsy
Freeman—Seizures and Epilepsy in Childhood: A Guide for Parents
Health-Related Disorders in Children and Adolescents, chapter 82, p. 583-595.
Huegel--Young People and Chronic Illness (Rachel's story)
Issues & Answers: A Guide for Parents of Children with Seizures, Birth to Age Six
Issues & Answers: A Guide for Parents of Children with Seizures, Ages Six to Twelve
Issues & Answers: Exploring Your Possibilities, A Guide for Teens and Young Adults with
Epilepsy
Issues & Answers: A Guide for Parents of Teens and Young Adults with Epilepsy
Karp—Respite Care: A Guide for Families
Krementz--How It Feels to Fight for Your Life (Alisha Weissman, age sixteen)
Lechtenberg—Epilepsy and the Family
Leppik—Epilepsy: a guide to balancing your life
Leppik—Managing Your Epilepsy
Lo que todos debemos saber sobre la epilepsia
Michael—The Educator's Guide to Students with Epilepsy
Singh – 100 Questions & Answers about Epilepsy
Snyder—Keto kid: helping your child succeed on the ketogenic diet
Special Concerns of Family Members and Caregivers
Special Concerns of Teenagers
Summer Camp: A Good Choice for Your Child?
Waltz—Partial Seizure Disorders
Wilner—Epilepsy: 199 Answers, A Doctor Responds to His Patients' Questions
Books for Children:
All About Epilepsy
Benjamin—Take Down (novel about a newly diagnosed epileptic)
Dotty the Dalmation Has Epilepsy (picture book)
Gordon—Let’s Talk About Epilepsy
Gosselin—Taking Seizure Disorders to School: A Story About Epilepsy (picture book)
Living with Seizures
Moss—Lee, The Rabbit With Epilepsy (picture book)
Schachter—The Brainstorms Family: Epilepsy On Our Terms, Stories by Children with
Seizures and Their Parents
Seizure Man: First Aid for Seizures
Seizure Man in the Classroom
Swanson—My Friend Emily
When Mom or Dad Has Seizures: A Guide for Young People




Shadow Buddy: The Seizure Buddy doll is available for loan to health educators; see the
Know Your Buddy Book also (WS 200 P858 2000). To get your own Seizure Buddy, see
http://www.shadowbuddies.com




Videos:
Ketogenic diet (1997, VHS or computer disk, 17 min.) (also in Spanish)
Treating epilepsy with vagus nerve stimulation (1996, VHS, 27 min.)
Epilepsy 101: information for people with seizures (2004, DVD, 12 min.)
Seizure First Aid (2004, DVD, 12 min.)
Treating Seizures and Epilepsy (2004, DVD, 14 min.)

Local Organizations:
Epilepsy Foundation of the St. Louis Region
http://www.epilepsyfoundation.org/stlouis/
7100 Oakland Avenue
St Louis, MO 63117
(314) 645-6969
(800) 264-6970
Epilepsy Foundation for the Heart of American Region (includes Kansas)
http://www.epilepsyfoundation.org/local/kansas/
6550 Troost, Suite BC
Kansas City, MO 64131
(816) 444-2800

Periodicals:
Epilepsy USA

Electronic Resources:
Ask the librarian to provide full reports from the NORD database and additional
information about rare syndromes involving seizures.


World Wide Web:
Epilepsy Foundation of America http://www.efa.org/ with features for parents, kids, and
teens. Note the Answer Place at http://www.epilepsyfoundation.org/answerplace/ with its
sections on children and on going to school. (English and Spanish)
MedlinePlus: Epilepsy (includes interactive tutorial, English and Spanish)
http://www.nlm.nih.gov/medlineplus/epilepsy.html
MedlinePlus: Seizures (includes interactive tutorial, English and Spanish)
http://www.nlm.nih.gov/medlineplus/seizures.html
Epilepsy Information Page (NIH)
http://www.ninds.nih.gov/health_and_medical/disorders/epilepsy.htm
Seizures and Epilepsy: Hope Through Research (NIH)
http://www.ninds.nih.gov/health_and_medical/pubs/seizures_and_epilepsy_htr.htm
KidsHealth for Parents: Epileptic Seizures and Epilepsy
http://www.kidshealth.org/parent/medical/brain/epilepsy.html
KidsHealth for Parents: Seizures
http://www.kidshealth.org/parent/firstaid_safe/emergencies/seizure.html
KidsHealth for Teens: Epilepsy
http://www.kidshealth.org/teen/diseases_conditions/brain_nervous/epilepsy.html
KidsHealth for Kids: An Epilepsy Education
http://www.kidshealth.org/kid/health_problems/brain/epilepsy.html
Family Village : Epilepsy / Seizure Disorders (includes non-English resources)
http://www.familyvillage.wisc.edu/lib_epil.htm
Family Village: West Syndrome (infantile spasms)
http://www.familyvillage.wisc.edu/lib_west.html
Epilepsy in Young Children http://www.kidsepilepsy.com/
Infantile Spasms Information Page (NIH)
http://www.ninds.nih.gov/health_and_medical/disorders/infantilespasms.htm
Infantile Spasms http://www.geocities.com/Heartland/Flats/2904/infantile.html
Washington University Comprehensive Epilepsy Program
http://www.neuro.wustl.edu/epilepsy/pediatric/Information.html
Febrile Seizures Information Page (NIH)
http://www.ninds.nih.gov/health_and_medical/disorders/febrile_seizures.htm
Febrile Seizures Fact Sheet (NIH)
http://www.ninds.nih.gov/health_and_medical/pubs/febrile_seizures.htm
Convulsiones Febriles (NIH—Spanish)
http://www.ninds.nih.gov/health_and_medical/pubs/convulsiones_febriles.htm
Epilepsy Institute (English, Spanish, French, Russian, Chinese)
http://www.epilepsyinstitute.org/
Epilepsy Fact Sheet (NICHCY—in English and Spanish)
http://www.nichcy.org/disabinf.asp#fs6
Citizens United for Research in Epilepsy http://www.cureepilepsy.org/
Medic Alert http://www.medicalert.org/

These resources and others are available in the Kreamer Family Resource Center, ground floor of the
Sutherland Tower in Children's Mercy Hospital, or call 816-234-3900 to arrange pick up from the
Children's Mercy South Information desk. If you are not a patient of Children's Mercy Hospital &
Clinics, books may be borrowed through Interlibrary Loan: contact your local librarian to arrange this.
updated 07/06/08
                             Kreamer Family Resource Center
                             Children’s Mercy Hospitals & Clinics
                                      2401 Gillham Road
                                    Kansas City MO 64108
                                        816-234-3900

								
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