Epilepsy Seizure Disorders (WL 385) by bcs24005


									                    Epilepsy / Seizure Disorders (WL 385)
               Resources in the Kreamer Family Resource Center

Books for Adults:
Answers to Your Questions About Epilepsy
Armstrong—Saving Jesse: A Diary of Rasmussen's Syndrome
Brake—The Ketogenic Cookbook
Brothers & Sisters (two-sided book, one side for young siblings and one side for parents
about how a child's epilepsy affects siblings)
Devinsky—Epilepsy Patient and Family Guide
Epilepsy: A Report to the Nation
Epilepsy Parent and Family Networks Resource Manual (support group information)
Fadiman—The Spirit Catches You and You Fall Down: A Hmong Child, Her American Doctors,
and the Collision of Two Cultures
Freeman—The Ketogenic Diet: A Treatment for Children and Others with Epilepsy
Freeman—Seizures and Epilepsy in Childhood: A Guide for Parents
Health-Related Disorders in Children and Adolescents, chapter 82, p. 583-595.
Huegel--Young People and Chronic Illness (Rachel's story)
Issues & Answers: A Guide for Parents of Children with Seizures, Birth to Age Six
Issues & Answers: A Guide for Parents of Children with Seizures, Ages Six to Twelve
Issues & Answers: Exploring Your Possibilities, A Guide for Teens and Young Adults with
Issues & Answers: A Guide for Parents of Teens and Young Adults with Epilepsy
Karp—Respite Care: A Guide for Families
Krementz--How It Feels to Fight for Your Life (Alisha Weissman, age sixteen)
Lechtenberg—Epilepsy and the Family
Leppik—Epilepsy: a guide to balancing your life
Leppik—Managing Your Epilepsy
Lo que todos debemos saber sobre la epilepsia
Michael—The Educator's Guide to Students with Epilepsy
Singh – 100 Questions & Answers about Epilepsy
Snyder—Keto kid: helping your child succeed on the ketogenic diet
Special Concerns of Family Members and Caregivers
Special Concerns of Teenagers
Summer Camp: A Good Choice for Your Child?
Waltz—Partial Seizure Disorders
Wilner—Epilepsy: 199 Answers, A Doctor Responds to His Patients' Questions
Books for Children:
All About Epilepsy
Benjamin—Take Down (novel about a newly diagnosed epileptic)
Dotty the Dalmation Has Epilepsy (picture book)
Gordon—Let’s Talk About Epilepsy
Gosselin—Taking Seizure Disorders to School: A Story About Epilepsy (picture book)
Living with Seizures
Moss—Lee, The Rabbit With Epilepsy (picture book)
Schachter—The Brainstorms Family: Epilepsy On Our Terms, Stories by Children with
Seizures and Their Parents
Seizure Man: First Aid for Seizures
Seizure Man in the Classroom
Swanson—My Friend Emily
When Mom or Dad Has Seizures: A Guide for Young People

Shadow Buddy: The Seizure Buddy doll is available for loan to health educators; see the
Know Your Buddy Book also (WS 200 P858 2000). To get your own Seizure Buddy, see

Ketogenic diet (1997, VHS or computer disk, 17 min.) (also in Spanish)
Treating epilepsy with vagus nerve stimulation (1996, VHS, 27 min.)
Epilepsy 101: information for people with seizures (2004, DVD, 12 min.)
Seizure First Aid (2004, DVD, 12 min.)
Treating Seizures and Epilepsy (2004, DVD, 14 min.)

Local Organizations:
Epilepsy Foundation of the St. Louis Region
7100 Oakland Avenue
St Louis, MO 63117
(314) 645-6969
(800) 264-6970
Epilepsy Foundation for the Heart of American Region (includes Kansas)
6550 Troost, Suite BC
Kansas City, MO 64131
(816) 444-2800

Epilepsy USA

Electronic Resources:
Ask the librarian to provide full reports from the NORD database and additional
information about rare syndromes involving seizures.

World Wide Web:
Epilepsy Foundation of America http://www.efa.org/ with features for parents, kids, and
teens. Note the Answer Place at http://www.epilepsyfoundation.org/answerplace/ with its
sections on children and on going to school. (English and Spanish)
MedlinePlus: Epilepsy (includes interactive tutorial, English and Spanish)
MedlinePlus: Seizures (includes interactive tutorial, English and Spanish)
Epilepsy Information Page (NIH)
Seizures and Epilepsy: Hope Through Research (NIH)
KidsHealth for Parents: Epileptic Seizures and Epilepsy
KidsHealth for Parents: Seizures
KidsHealth for Teens: Epilepsy
KidsHealth for Kids: An Epilepsy Education
Family Village : Epilepsy / Seizure Disorders (includes non-English resources)
Family Village: West Syndrome (infantile spasms)
Epilepsy in Young Children http://www.kidsepilepsy.com/
Infantile Spasms Information Page (NIH)
Infantile Spasms http://www.geocities.com/Heartland/Flats/2904/infantile.html
Washington University Comprehensive Epilepsy Program
Febrile Seizures Information Page (NIH)
Febrile Seizures Fact Sheet (NIH)
Convulsiones Febriles (NIH—Spanish)
Epilepsy Institute (English, Spanish, French, Russian, Chinese)
Epilepsy Fact Sheet (NICHCY—in English and Spanish)
Citizens United for Research in Epilepsy http://www.cureepilepsy.org/
Medic Alert http://www.medicalert.org/

These resources and others are available in the Kreamer Family Resource Center, ground floor of the
Sutherland Tower in Children's Mercy Hospital, or call 816-234-3900 to arrange pick up from the
Children's Mercy South Information desk. If you are not a patient of Children's Mercy Hospital &
Clinics, books may be borrowed through Interlibrary Loan: contact your local librarian to arrange this.
updated 07/06/08
                             Kreamer Family Resource Center
                             Children’s Mercy Hospitals & Clinics
                                      2401 Gillham Road
                                    Kansas City MO 64108

To top