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									                                         Monday Morning Memo
                                           November 9, 2009
                                                (916) 552-6619

Please help support the Monday Morning Memo and all the other publications and projects of The Arc movement.
    Your $25 annual membership contribution entitles you to full membership in the local chapter, The Arc of
  California and The Arc of the United States. Send your check to 1225 8 Street, Suite 210, Sacramento, CA
                                           95814 Attn: “Membership”.

                                         The Week Ahead
“Statement of Policy” – The Consumer Product Safety Commission (CPSC) has released its
“Statement of Policy: Testing and Certification of Lead Content in Children’s Products.”
Based on provisions contained in the Consumer Product Safety Improvement Act of 2008
(CPSIA), CPSC has set lead limits for products that are designed primarily for children 12
years old and younger. Unless CPSC finds that it is not technologically possible to have the
lower lead limits, products that contain more lead than is acceptable are “considered to be
banned hazardous substances under the Federal Hazardous Substances Act (FHSA).” In
addition, children’s products that have not been given a specific exclusion are subject to the
lead limits and to testing and certification requirements. This may be of interest to chapters
who operate thrift stores that resell children’s toys that have lead in them. See the document

The Social Security Administration (SSA) has announced that there will be no cost-of-living
increase in 2010. The following programs of interest will remain at their 2009 levels: Title II
(disability insurance) benefit amount; Title XVI (Supplemental Security Income) benefit
amount; and the dollar fee limit for a representative payee’s services. There is no cost-of-living
increase for these programs because the Consumer Price Index (CPI) for the calendar quarter
ending 9/30/09 is not greater than the CPI for the previous calendar quarter ending 9/30/08. In
addition, as affected by the national average wage index for 2008, the monthly amount that
constitutes substantial gainful activity for non-blind persons with disabilities will be $1,000 in
2010. For more information on the CPI and SSA’s programs, go to: See the document at:

Monday November 9, 2009 – Travel to National Convention

Tuesday November 10, 2009
I’ll be attending the Board of Directors meeting for the National Conference of Executives of
The Arc in Pittsburgh. Other representatives from California include Tim Hornbecker, from The

                                                                                      Monday Morning Memo
                                                                                         The Arc of California
                                                                                November 9, 2009, page 1 of 13
                                                                             Tony Anderson, Executive Director
Arc of San Francisco (Vice President) and Kevin MacDonald from The Arc of Southeast Los
Angeles (Chair Technology).

The National Commission on Children and Disasters (NCCD) will be meeting at 9:30 a.m. at
the Administration for Children and Families, 901 D Street, SW, Washington, D.C. and via
teleconference. To attend either in person or via teleconference, participants must register by
11/6/09 at or call 202-205-9560. NCCD is an independent
commission responsible for conducting a comprehensive study related to the needs of children
and their needs before, during, and after a disaster. On the agenda are discussions on the
Department of Health and Human Services’ (HHS) and the Federal Emergency Management
Agency’s (FEMA) efforts to support children in disaster situations and future work plans of the
commission. Public comments will be accepted during the meeting. Written comments may
be sent to: with “Pubic Comment” in the subject line. For more
information on NCCD, including prior meeting minutes, go to: For more information about the meeting, contact
Jacqueline Have using the e-mail address given above.

The Arc of California Public Policy Committee, chaired by the Treasurer Peter Bowers, will be
meeting by conference call 6:30 pm to 8:00 pm.

Wednesday November 11, 2009
The Partners in Policymaking CA Collaborative will be meeting by conference call work
continue work in preparation for the Partners Class of 2010. Site selection and application
preparations are the main activities.

The Sargent Shriver National Center on Poverty Law is hosting a webinar on “Accessible
Assets: Bringing Together the Disability and Asset-Building Communities” from 11:00 PM- 1:00
PM (PST). The webinar will provide information on how asset building tools can be effectively
used to increase the financial stability and independence of individuals with disabilities.
Speakers will discuss the current research on disability and poverty, successful national and
local programs, and the continued challenges and opportunities in policy and program design.
Webinar participants will gain an understanding of how potential partners, including state asset
building coalitions, disability rights organizations, and financial institutions, can help in these
efforts. Register online at:

Thursday, November 12, 2009
The World Institute on Disability next Public Policy Meeting will be held from 1:50 - 3:30pm and
will focus on Youth and Transition: Synchronizing Youth Career Planning and Information
Services. The guest speakers’ topics include the CHIIP Youth Advisory Committee, the Youth
Leadership Forum (YLF), and the CHIIP Youth Transition Toolkit. Speakers include: Rebecca
Cokley – Invited, Office of Special Education Rehabilitation Services, Confidential Assistant at
U.S. Department of Education; Rachel Stewart, Program Manager, California Health Incentives
Improvement Project, CHIIP; and Catherine Campisi, Ph.D., Former Director CA Department
of Rehabilitation and Faculty Consultant for California Health Incentives Improvement Project,
CHIIP. To participate in this free resource the call in information is: 1-800-977-8002,
Participant Code: 801456#. For more information visit the WID website at:

                                                                                Monday Morning Memo
                                                                                   The Arc of California
                                                                          November 9, 2009, page 2 of 13
                                                                       Tony Anderson, Executive Director
The Arc is thrilled to announce that the band known as FLAME will be performing at The Arc’s
highly anticipated Opening Dinner, scheduled for Thursday, November 12, starting at 7pm at
the Westin in Pittsburgh, PA. This dynamic group from upstate New York is comprised of
eleven (11) people with intellectual, developmental and physical disabilities, including autism,
Down’s syndrome and blindness. FLAME embodies The Arc’s message in our quest to inspire
people and change the way the general public views people with disabilities. With an upcoming
feature on ABC TV's "Good Morning America" Flame will greatly expand their scope of
influence through their exciting rock, country and blues songs loved by all. No other musical
group in the nation says The Arc like the band FLAME. The band from Lexington Center,
Fulton County Chapter, NYSARC, Inc., wants to change the world through music and is doing
just that one gig at a time. See them live at The Arc’s National Convention in Pittsburgh!
Please contact Robin Powers at to purchase your tickets TODAY!

The Arc of California Executive Committee will be meeting in preparation for the upcoming
Annual Public Policy conference in Sacramento which will be held in February 2010.

November 11-14th, 2009
The Arc of the United States National Convention, Inspiring Innovation: With Adversity Comes
Opportunity. The current economic and service climate across the country continues to affect
people with intellectual and developmental disabilities and their families in many ways. In the
midst of these challenges are opportunities for innovation in the way that services and
supports are provided. The focus of this year’s annual convention is to provide information on
best practices and innovation across the spectrum of services, supports and research that
affect people with intellectual and developmental disabilities and their families. The Arc of the
United States Announces Stedman Graham As Featured Speaker at National Convention.
Entrepreneur, best-selling author and premier motivational speaker Stedman Graham will be
the keynote speaker at the national convention of The Arc of the United States to be held in
Pittsburgh, PA from November 11-14. Graham, chairman and CEO of S. Graham & Associates
(SGA) will address a gathering of individuals with intellectual and developmental disabilities,
families, self-advocates, professionals and others on Thursday, November 12 at the David L.
Lawrence Convention Center in Pittsburgh, PA. The theme of this year’s convention is
Inspiring Innovation: With Adversity Comes Opportunity. “As a successful business leader,
educator and inspirational speaker, Stedman will share his outlook on how people with
disabilities are affected in this downturn economy. As a sibling to two individuals with
intellectual disabilities, his message of achievement and inclusion will have resonance,” said
Peter Berns, Executive Director of The Arc.

Friday November 13, 2009
The Infant Development Association of California, Public Policy Committee presents, “What is
the Landscape for Children 0-3 Looking Like in California?” program at the Braille Institute, 741
Vermont Avenue, Los Angeles, CA 90029 from 9:00 am to Noon (registration begins at 8 am).
The speakers include Brigitte Ammons, Senior Advocate, California Disability Rights and Fran
Chasen, IDA Public Policy Liaison. The program is described as “continuing conversation
about Early Start. Changes to California Early Start, Elimination of services for High Risk
Children, Development of a new Prevention Program.” To register by mail: Mail to IDA at PO
Box 189550, Sacramento, CA 95818-9550 / FAX 916-453-0627, Questions: 916-453-8801- the
registration form is at:
                                                                              Monday Morning Memo
                                                                                 The Arc of California
                                                                        November 9, 2009, page 3 of 13
                                                                     Tony Anderson, Executive Director
                                         Action Alerts
The Arc of California (Greg deGiere, The Arc of California Public Policy Director)
The Arc of California has recognized Senator Carol Liu as its pick for the Legislator of the
Year. The president’s selection was made in recognition of Senator Liu’s commitment to
justice for all people with intellectual and developmental disabilities and for her support of the
budget amendments we felt would mitigate some of the harmful cuts made in last year’s
budget. Dwight Stratton, President of The Arc of California, extends his sincere thanks to the
Senator for her advocacy in the legislator. The recognition will be made formally during The
Arc’s upcoming Public Policy Conference in February.

The Arc of the United States
Take Action: Support Health Care Reform for People with Disabilities

Health care reform is a marathon, not a sprint. There are many steps in the process to
overhaul our nation's troubled health care system. This is why we have asked you so many
times to contact your Members of Congress. And today, we need to ask you once again.

Why Now?
The House of Representatives' first full vote on health reform legislation (the Affordable Health
Care for America Act, H.R. 3962") may come as early as this week. It'll be the first time in
more than 60 years that the full House votes on comprehensive reform and the vote may be
very close.

What is in the House Bill that Will Help People with Disabilities?
A whole lot. The most important provisions in the bill that benefit people with disabilities are:

      Major insurance market reforms such as the elimination of discrimination based on
       health status, a prohibition on pre-existing condition exclusions, guaranteed issue and
       renewal requirements, and elimination of annual and lifetime caps;
      Creation of a high-risk pool to provide immediate assistance to those currently
       uninsured with pre-existing conditions before insurance market reforms are
      Inclusion of critical services for people with disabilities in the new Health Insurance
       Exchange's essential benefits package such as rehabilitation and habilitation services,
       durable medical equipment (e.g. wheelchairs), prosthetics, orthotics and related
       supplies, vision and hearing services, equipment and supplies for children under 21
       years of age, behavioral health treatment, and mental health and substance abuse
       services in compliance with the Wellstone-Domenici parity law;
      Inclusion of the Community Living Assistance Services and Supports (CLASS) Act, a
       new actuarially sound, premium-based, national long term services insurance program
       to help adults with severe functional impairments to remain independent, employed, and
       a part of their communities, without having to impoverish themselves to become eligible
       for Medicaid;

                                                                                 Monday Morning Memo
                                                                                    The Arc of California
                                                                           November 9, 2009, page 4 of 13
                                                                        Tony Anderson, Executive Director
      Inclusion of a statement of support for the Community First Choice Option to encourage
       states to cover Medicaid community-based attendant services and supports (this was
       included in the manager's amendment);
      Significant investments in Medicaid to dramatically expand eligibility, including EPSDT
       services for millions of children, increased reimbursement for physicians to Medicare
       rates with significant federal funding to offset the burden on states, a and a six month-
       extension of the American Recovery and Reinvestment Act's increase to the federal
       share of Medicaid spending;
      Substantial federal subsidies and out-of-pocket limits to make coverage as affordable as
      A two-year extension of the exceptions process to the Medicare therapy caps on
       physical, occupational, and speech and language therapies;
      Requirements for the development of standards for accessible diagnostic and other
       medical equipment;
      Inclusion of "disability" as a category for purposes of health disparities;
      Inclusion of "disability" as a subpopulation in the provisions regarding Comparative
       Effectiveness Research (CER); and
      Provision of wellness grants that prohibit the use of discriminatory incentives.

Why Should You Take Action?
With just a few days before the vote, the insurance industry and their allies are putting
extraordinary pressure on every representative to defeat the health care reform bill. Every day
there are hundreds of insurance company lobbyists on Capitol Hill working to defeat it.
Fortunately, the people who matter most to Members of Congress are the people who
elected them - their constituents. Can you call your representative right now and tell him/her
to vote in favor of real health insurance reform? If they don't hear from you, they will think that
you don't care and then they will listen to the industry lobbyists that they are hearing from

What Should You Do?
Please click on the "Take Action" link and enter your zip code in the "Call Now" window to get
your Representative's telephone number. Then make the call. All you need to say is "Please
vote for H.R. 3962 - the Affordable Health Care for America Act."

                                   Project Status Report
Partners in Policymaking
Jim Lockwood, Coordinator (funded by the State Council Developmental Disabilities)
This week has had little excitement as I have spent the majority of my time completing the
year-end report for the State Council on Developmental Disabilities and preparing for the
Collaborative’s hotel selection meeting coming up next week. The final report will also be
                                                                                Monday Morning Memo
                                                                                   The Arc of California
                                                                          November 9, 2009, page 5 of 13
                                                                       Tony Anderson, Executive Director
submitted this week. As is evident in that report, the Partners in Policymaking graduates are
having a broad impact in their community, leading and training others to get more involved in
speaking up for the disabilities community. We now have more than 160 graduates from
Partners in Policymaking programs in California. Next week we will be reviewing the proposals
from the Ontario hotels in preparation for the 2010 class of Partners in Policymaking. Out of
the more than a dozen hotels that were contacted and/or visited, we have only four properties
that can meet our primary criteria of availability, accessibility, space and cost. My hope is that
we are able to select a hotel at the meeting on Wednesday, November 11, 2009. Once a hotel
has been selected, I would like to get the 2010 applications ready for distribution prior to the
Thanksgiving holiday. The application will also be available online at our website
(, as it was last year.

California College of Direct Support
Carlos Palacios has continued to work with several agencies that wanted to update their
records in preparation for transitioning their administration in house. As an incentive for early
adaptors of the College of Direct Support The Arc of California agreed to administer the
program for some of the agencies who needed that help. Any agencies planning to transition
by the first of the year should give us a call if they need any assistance (916) 552-6619.

                                   Prevention Activities
Update report to the national committee in The Arc by Shirley Dove on the The Arc of
California Prevention Projects 2009/2010…

The Arc of California along with the American Academy of Pediatrics and First 5 Association of
California are sponsoring the California Screening Initiative (CSI). The CSI is a statewide
effort to increase developmental screening through the use of standardized tools. It is our goal
to have all children screened before 24 months of age as the Early Start Criteria in California
has changed. California has been successful at negotiating discounts with the publishers of
several developmental screening tools. The Initiative is schedule to be released to the public
within the next 2 weeks, press releases, tools kits, and op-eds are in the final stages of review.

The California Department of Alcohol and Drug Programs asked the Arc of California to
participate in the State Interagency Team (SIT) on FASD. This groups serves as a workgroup
and advisory panel to the larger State Interagency Team for Children and Youth. As a member
of this team we are active in creating the state plan to address providers and the public
through state level interventions such as: making recommendations to have additional
questions about alcohol placed on the Medi-Cal Staying Healthy Assessment, development of
a social marketing campaign to create awareness about the dangers of drinking alcohol during
pregnancy, convening a conference with experts in the field and working with providers to
ensure screening occurs.

The Arc of California chairs the state FASD taskforce and has created a website dedicated to
the TF mission, goals and activities. Current efforts include legislative advocacy for screening
and brief intervention, Senate Office of Research inquiry about the cost impact of FASD in CA,
development of FASD Day Event and promotion of prevention and awareness materials.

                                                                                Monday Morning Memo
                                                                                   The Arc of California
                                                                          November 9, 2009, page 6 of 13
                                                                       Tony Anderson, Executive Director
Implementation of water safety information in babysitter training programs through local parks
and recreation classes

Prevention Goals 2009/2010

Establish Prevention Committee in CA and develop a state plan to include:
       Prevention of primary disabilities
       Prevention of secondary disabilities
       Research on health promotion for those in the disability community – risk reduction for
       diabetes, hypertension, heart disease and other health related complications
       Increase access to health promotion materials and activities (i.e. discount membership
       for health clubs, online support for organizations like weight watchers, participation in
       community health classes through HMO’s such as Kaiser, etc)

Host a State Prevention Conference to include experts from various fields.

                                         Upcoming Events
April 12 – 14, 2009
The Disability Policy Seminar will be April 12 - 14, 2010 at the Hyatt Regency Washington on
Capitol Hill.

                        Recently Released Reports, Studies, etc.
SSI/SSP and IHSS Programs Face More Budget Fallout by Scott Graves California Budget
Project. “Yesterday, grants for low-income seniors and people with disabilities were cut for the third
time this year as part of the state’s effort to close the massive budget gap that consumed policymakers
for much of 2009. The maximum monthly Supplemental Security Income/State Supplementary Payment
(SSI/SSP) grant for couples dropped from $1,489 in October to $1,407 (5.5 percent), while the
maximum grant for individuals fell from $850 to $845 (0.6 percent). Combined with previous cuts that
took effect on May 1 and July 1, the maximum SSI/SSP grant for couples has fallen by a total of $172
per month this year, and the maximum grant for individuals has declined by $62 per month. The grant
for couples is now at the minimum level required by federal law. California cannot cut that grant any
further without triggering a stunning penalty – the loss of all federal funding for the Medi-Cal Program.
However, the grant for individuals is about $15 above the federal minimum, which could make it a
target of future state budget-cutting efforts. Many of the state’s more than 1.1 million SSI/SSP recipients
also receive in-home care through the In-Home Supportive Services (IHSS) Program. IHSS recipients
got a measure of good news earlier last month when a federal judge blocked the state from
implementing service reductions that were included in the July 2009 budget agreement. Those cuts were
scheduled to take effect November 1 and would have affected more than 130,000 IHSS recipients. But
those weren’t the only IHSS changes included in the July budget agreement. A number of new
requirements for in-home care providers were due to take effect yesterday, including new provider
enrollment forms, fingerprinting and criminal background checks, and orientation and training.
However, county officials testified at a legislative hearing last week that they would not be able to meet
that deadline because of the state’s failure to finalize needed instructions, problems with state
instructions that had been issued, and other implementation issues. The Assembly Budget Committee
may hold a follow-up hearing to sort through more of the details this week, and legislation could be
                                                                                      Monday Morning Memo
                                                                                         The Arc of California
                                                                                November 9, 2009, page 7 of 13
                                                                             Tony Anderson, Executive Director
introduced to address the situation.

                                            News Articles
New rules trip up caregivers, cost state more
San Francisco Chronicle Friday, November 6, 2009
By Marisa Lagos, Chronicle Sacramento Bureau
California is paying six to seven times more per day to care for some elderly and disabled people in
nursing homes because a state-funded in-home care program is turning them away, welfare advocates
and lawmakers said Thursday. Advocates for the disabled and for counties told the Assembly Budget
Committee that the public is incurring new costs because state officials refused to delay the Nov. 1 start
of new rules governing In-Home Supportive Services. The welfare program pays about 300,000
caregivers to help about 460,000 elderly, blind and disabled people in their homes. The new rules,
designed to prevent fraud, require caregivers who are either new to the program or have taken on a new
client to complete an enrollment form, criminal background check and orientation session before they
can get paid. Gov. Arnold Schwarzenegger, who pushed for the rules, said the state could save $500
million a year by reducing fraud.

But many California counties said it was impossible to implement the rules by Nov. 1, a deadline set by
the Legislature and Schwarzenegger, who signed the legislation in July. Under the rules, counties that
missed the deadline cannot pay new caregivers. The result is that many of those sick and elderly people -
98 percent are on Medi-Cal - are ending up in costly care facilities on the state's dime, advocates for the
disabled and county representatives said at Thursday's hearing. Others are simply going without care
because they cannot secure a provider. "A lot of people can't be discharged because no one is at home to
take care of them. On Sunday we got a call from a woman who had a hip replacement surgery and is still
in the hospital because she couldn't get a provider approved," said Frank Mecca, director of the County
Welfare Directors Association. "The state is still paying." Mecca said county officials don't object to the
anti-fraud rules - they just need more time to implement them. For example, the rules require caretakers
to take an orientation class - but counties didn't receive funding for the classes until Oct. 28, he said. In
addition, final instructions on implementation weren't issued until Nov. 3 - two days after the rules took
effect, Mecca said. A bill by Assemblywoman Noreen Evans, D-Santa Rosa, that would have delayed
the deadline was killed in the Senate this week. "The worst of it is that people will probably die as a
result of this situation," said Evans, who vowed to continue her fight to get people care.

Developmental Disabilities workers get pay hike Revised contract gives 2 percent pay raise this year
but no increases in 2010 and 2011.
Oxford Press (Ohio) Thursday, November 5, 2009
By Josh Sweigart, Staff Writer
HAMILTON — Butler County commissioners unanimously approved a contract Thursday, Nov. 5, with
the union representing caregivers working for Developmental Disabilities. This breaks an impasse
between county and the Professionals Guild of Ohio — which represents 75 agency employees, most of
whom are direct care staff — after commissioners voted down the first proposed contract 2-1. The
revised contract includes a 2 percent pay raise this year, but does away with raises in 2010 and 2011
included in the first contract. It also gives union members an additional day off starting in 2010 —
which agency officials say other employees there already get — and allows them to accrue vacation
days faster, starting in 2011.
                                                                                       Monday Morning Memo
                                                                                          The Arc of California
                                                                                 November 9, 2009, page 8 of 13
                                                                              Tony Anderson, Executive Director
―If raises weren’t going to be provided during certain periods, then employees needed to receive
something else,‖ said union negotiator John Campbell-Orde. Commission President Donald Dixon, who
opposed the original contract along with Charles Furmon, called the revision ―a good compromise.‖ ―I’d
say we didn’t get everything we wanted, but we got a lot,‖ Dixon said, estimating the county’s savings
at $80,000 per year. ―They had come a long way from where they wanted to be.‖ Commissioner
Gregory Jolivette had sided with the union on the original contract, arguing Developmental Disabilities
is levy funded and operating in the black, unlike the county general fund. But Dixon and Furmon said it
was unfair to cut other offices and give out raises at that agency.

California might miss swine flu inoculation goal because of vaccine shortage
Los Angeles Times November 5, 2009
By Molly Hennessy-Fiske
If H1N1 flu vaccine shortages persist, California may not be able to vaccinate those most at risk by the
end of December, public health officials said today. Health officials have said that at least 25 city and
county health agencies have received less than 45% of the vaccine doses they ordered. The state's goal
had been to have all "high-risk" patients vaccinated by Dec. 31 -- but the shortage of vaccine is putting
that goal in jeopardy. ―We may not be able to meet the target if the vaccine does not get here," said Dr.
Gil Chavez, epidemiologist for the California Department of Public Health. Chavez said state officials
are monitoring the problem and plan to deliver more vaccine within two weeks to the agencies with
significant shortfalls. ―As we move forward, we are actually able to tell who has received vaccine, who
has not, and try to bring people to parity,‖ he said. ―We believe, by and large, that the vaccine is being
given to those who should receive it,‖ he added.

Vaccinations for the so-called swine flue are supposed to be directed to five priority groups: pregnant
women, people ages 2-24, healthcare workers, caregivers of babies under 6 months old, and people ages
25-64 with chronic health conditions that put them at increased risk of complications from the flu.
Nationwide, 32.3 million doses of H1N1 vaccine have been made available, but there are more than 159
million in the priority groups that should get it, according to federal estimates. In Los Angeles County
alone, priority groups include 5.5 million people. Public health officials across the country have said
they may have trouble supplying priority groups with the vaccine by December. The problem, they say,
is that the vaccine manufacturing process is taking too long. California was supposed to have received
6.25 million doses of the vaccine by now, but has received about half that, and state officials ordered
another 500,000 doses yesterday, Chavez said. … The state has yet to release a list of private providers
that received the vaccine. As of this week, more than 4,800 people have been hospitalized with H1N1
flu statewide and 266 have died, including 17 last week alone, Chavez said.

Steele Center Researcher Receives $1.25M From CDC to Study Fetal Alcohol Syndrome
Dr. Christopher Cunniff - The project will study the prevalence of Fetal Alcohol Syndrome in
Arizona and Nevada.
University of Arizona News November 4, 2009
By Darci Slaten, AHSC Office of Public Affairs
Pediatric geneticist Dr. Christopher Cunniff, a professor in the University of Arizona College of
Medicine's department of pediatrics and researcher with the Steele Children's Research Center, received
                                                                                      Monday Morning Memo
                                                                                         The Arc of California
                                                                                November 9, 2009, page 9 of 13
                                                                             Tony Anderson, Executive Director
a five-year $1.25 million surveillance grant from the Centers for Disease Control and Prevention to
study the prevalence of fetal alcohol syndrome in children. The project, named "Arizona Fetal Alcohol
Syndrome Surveillance Network," will study prevalence of Fetal Alcohol Syndrome, or FAS, in Arizona
and Nevada. Arizona was one of three awardees – the other two were Colorado and Western New York
State. "This work builds on a previous FAS surveillance grant which was awarded to us in Arizona by
the CDC from 1997 to 2003," said Cunniff. "We also are building on our surveillance programs in
autism spectrum disorders, mental retardation and Duchenne and Becker muscular dystrophy, which
also are funded by the CDC and are ongoing."

FAS is the most severe disorder in the diverse group of structural, developmental and behavioral
abnormalities known as fetal alcohol spectrum disorders that result from maternal alcohol use during
pregnancy. FAS is widely considered the most common preventable cause of birth defects and
developmental disabilities in developed countries. The personal burden of FAS may be striking, and
children and their families often find it difficult to cope with the medical, developmental, adaptive and
social effects of this disorder. Estimates of how frequently FAS occurs vary widely among studies in the
United States and in other countries. FAS and partial FAS occur in 90 out of 1,000 children in the
Western Cape Province of South Africa, while the highest reported frequency in the United States is
about 4 children per 1,000 in Alaskan Natives. The Fetal Alcohol Syndrome Surveillance Network,
known as FASSNET, was funded previously by the CDC to develop a population-based, multiple source
surveillance system for FAS. The methods of the FASSNET surveillance system have been published as
well as results from the participating sites. …

Healthy soup business is latest Arc Enterprise to employ people with disabilities
The Times-Picayune November 05, 2009, 5:45AM
By Judy Walker Kathy Anderson
Maybe you’ve seen or tasted the soups from The Vintage Garden Kitchen at the Freret Market, or
Hollygrove Market, or the Lakeview Market, or somewhere else. Or maybe you’re one of the people
who already is getting delivery of the soups at home. At least half of the people who sample the healthy
offerings buy the product, organizers say. But it’s a good bet that even those who’ve eaten the soup
don’t know the unusual backstory. If you know right where to look off the Earhart Expressway, you can
see part of it growing. The soups come from a professional kitchen operated by Arc Enterprises of
Greater New Orleans, a United Way nonprofit agency that owns and runs several social enterprises to
employ people with intellectual disabilities, such as recycling Carnival beads, grounds maintenance and
more. One of their projects is The Vintage Garden, two small urban farms that provide specialty peppers
to chef Donald Link. Before Hurricane Katrina, their Uptown garden grew specialty crops for local

So why soup? ―We did some research,‖ said director Nicole Blair. ―We were looking to find some
unmet needs of the market, and something healthy. We looked at baked goods, but the shelf life was
short and there’s already a lot out there.‖ ―We wanted to find something that didn’t exist and grow our
own produce for it,‖ said Cliff Doescher, executive director. In their discussions, somebody thought of
soup. They found lots available at local supermarkets, but not many healthy selections. This was about
two years ago. Executive chef Leo Tandecki was hired to manage development of the kitchen and create
the line of soups for retail sale. A native of Washington state and a graduate of the California Culinary
Academy, Tandecki moved to New Orleans in 2003 and worked at Emeril’s Delmonico. A small deli
and retail store he and his wife operated was destroyed by Katrina, and Tandecki was executive chef of a
catering business when he was hired by Arc. The soup kitchen also fits neatly with Arc’s employment
                                                                                    Monday Morning Memo
                                                                                       The Arc of California
                                                                             November 9, 2009, page 10 of 13
                                                                           Tony Anderson, Executive Director
aims. Management of restaurants and catering is crisis-oriented, Doescher said. (Pre-Katrina, Arc
operated a cafe on the West Bank.) ―Routine elements work better for what we do,‖ Doescher said.
―You can take segments of things people do routinely‖ and teach how to build on each task. Plus, the
soups and the gardens are labor-intensive, needing lots of hands. The kitchen currently employs four
people with disabilities. Two more work in the garden, and the horticulturist is hiring four others,
Doescher said. Kitchen employees start with cleanup tasks. One worker already has become ―on the
level of a prep cook, or even exceeding that,‖ Tandecki said. …

                                        Funding Opportunities
HHS - Department of Health and Human Services National Institutes of Health Paul B. Beeson Patient-Oriented
Research Career Development Award in Aging (K23) Grant

HHS - Department of Health and Human Services Agency for Health Care Research and Quality Partnerships in
Implementing Patient Safety II (R18) Grant

HHS - Department of Health and Human Services National Institutes of Health Paul B. Beeson Clinical Scientist
Development Award in Aging (K08) Grant

HHS - Department of Health and Human Services National Institutes of Health Drug Abuse Dissertation
Research: Epidemiology, Prevention, Treatment, Services, and/or Women and Sex/Gender Differences (R36)

HHS - Department of Health and Human Services Health Resources & Services Administration Nurse Education,
Practice and Retention Modification 1

HHS - Department of Health and Human Services Substance Abuse & Mental Health Services Adminis. Offender
Reentry Program Grant

                                               Career Ladder
The Arc of California posts job announcements in the Career Ladder section every week because we would like
to contribute to steering quality candidates to professional positions that support people with disabilities and we
are trying to communicate to Direct Support Professionals and People with Disabilities that there is a real “career
ladder” in their chosen profession.

UPDATED: November 9, 2009
The following are leadership opportunities in Developmental Services posted by Human
Services Connections. To learn more about these positions visit their site at:

NEW! Executive Director - Nebraska
Salary: Please include salary requirements with application
Values-based provider of developmental disability services is looking for an innovative leader with solid values to

                                                                                            Monday Morning Memo
                                                                                               The Arc of California
                                                                                     November 9, 2009, page 11 of 13
                                                                                   Tony Anderson, Executive Director
head up their residential services in Nebraska. The organization provides residential services to approximately
200 people in small ICF and group home settings. This is a wonderful opportunity to join a dynamic organization
with great opportunities for advancement.


NEW! Assistant Executive Director - Wyoming
Salary: Please include salary requirements with application
Progressive, mid-size, developmental disability service provider is looking for an Assistant Executive Director to
head up a wide array of services including residential, case management, nursing and day/vocational supports in
the state of Wyoming. This is a non-profit organization with a clear focus on values and giving the person
receiving services and their families the best support possible. It is a great opportunity to work in a beautiful area
with a low cost of living.


NEW! Director - Ohio
Salary: Please include salary requirements with application
We are looking for a Director to head up a well-established, stable developmental disability program in OH that
provides in-home supports and case management services. The program supports approximately 300 people with
a budget of $5.5mm. Position will have four direct reports.


NEW! Habilitation Coordinator - Indiana
Salary: Mid-$30s
Developmental disability service provider in Indiana is looking for a person-centered, detail-oriented professional
to join their team as Habilitation Coordinator. The Habilitation Coordinator will ensure quality programming and
outcomes for people with developmental disabilities. This is a great opportunity to work for a national organization
with excellent potential for advancement. Great benefits.


Area Director - Wisconsin
Salary: Please include salary requirements with application
A national disability services provider is seeking an Area Director to oversee its services in Wisconsin. Programs
include residential and case management. The Area Director will have the support of Program Directors and
clerical staff.


Program Manager - Pennsylvania
Salary: Please include salary requirements with application
Provider of developmental disability and additional social services is looking for a confident and decisive leader to
act as their Program Manager. Position will oversee residential and foster care services. Program Manager will
have the support of a seasoned management team and two administrative staff. Reports to State Director.


State Accounting Manager- Maryland

                                                                                              Monday Morning Memo
                                                                                                 The Arc of California
                                                                                       November 9, 2009, page 12 of 13
                                                                                     Tony Anderson, Executive Director
Salary: Please include salary requirements with application
Progressive social service organization seeks a highly motivated detail-oriented individual to manage our state
accounting activities. Responsibilities include supervision of A/R, collections, A/P, P/R, cost report, audits, other
applicable accounting functions, budgets, analyzes F/S. Some travel required. Excellent salary and benefits


State Director for private provider - Arizona
Salary: Please include salary requirements with application
Multi-state provider of developmental disability and mental health services is looking for an experienced leader to
head up their services in the state of Arizona. The organization provides a wide-array of services throughout the
state including residential, day and vocational services.


State Director for private organization - Colorado
Salary: Please include salary requirements with application
Well-established, stable, national provider of developmental disability services is looking for an experienced
leader to head up their services in the state of Colorado. The organization provides residential "Host Home"
services as well as day habilitation programs with a budget of 8mm.


                                                                                               Monday Morning Memo
                                                                                                  The Arc of California
                                                                                        November 9, 2009, page 13 of 13
                                                                                      Tony Anderson, Executive Director

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