February 2010 9 Transformation for PEOPLE with disabilities Has begging Who represents become people with disabilities? a choice By Magteld Smith, Hearing impaired the public to understand what a disability is like. While the role of of Non Profitable Organisations I am a revocrat and will be (NPO’s) and government asking disability organi- programmes are crucial in sations to transform their addressing human rights for employment? operations and let people people with disabilities, this with disabilities control their cannot be done without a own destiny. As a point of de- significant leadership role also parture, these organisations being taken by management of need to transform from the top NPO’s, community leaders and structures of their organisa- members of society. Society tions by professional people must work with families of with disabilities. Salaries children with disabilities and are abnormally high for their disability advocacy groups “executive management” to take a leading role in and the organisations are not advocating change to ensure opporated or controlled by inclusion of individuals with people with disabilities, yet disability throughout society. some of them claim to speak NPO’s can play a particularly for us. Persons with Intellectual important role in addressing Disabilities are used to beg for negative attitudes and ENTREPRENEURSHIP money in front of well-known behaviours by also not begging supermarkets by non-disabled for funds at supermarkets people. My message to non- and shopping centres. There disabled people who are is a need for oversight of doing so, sending messages administrators, professionals, OR SCAM? to society. It’s time for you to staff and volunteers for work- stop exploiting people with able, comprehensive reporting disabilities. Exploitation of mechanisms. As Deputy people with disabilities to President Kgalema Mothlanthe raise funds is wrong. People said “ Economic transformation with disabilities are regularly has been frustratingly slow. We used to generate income have to admit that the broad- By Magteld Smith, enduring heavy traffic will almost nobody want to admit to through begging. Charities based part of BEE has seemed Hearing impaired analyse and theorise about the being blind or deaf! in SA have become the major elusive. The story of Black phenomenon: people begging These beggars pretending stumbling block to people with economic empowerment in the pretending to be people with a to be blind, rape the human disabilities with many of the last 25 years has been a story I t seems that begging has disability. While observing these rights and integrity of people organisations that segregating dominated by a few individuals become a choice of employ- beggars as blind people, my with disabilities. The misconcep- people with disabilities from benefiting again and again.” ment for a growing number memory flashed back to the tion that more vision equals mainstream society. Most of Disappointing but true, when of people from all corners of years I stayed in Worcester more competence and no vision the disability organisations in it comes to the transformation our society. What troubles me attending the School for the equals incompetence perpetu- SA are in competition with one of disability, it is a story domi- is the guilt that these street- Deaf. I had a lot of friends who ates the false assumption that another, trying to outdo the nated by non-disabled people corner con artists use to get were blind. So many times we people who can see can also other in raising funds. Some in management positions in your sympathy and relieve you communicate to one another, “do”, and people who cannot non-disabled people with good the last 135 years and a few of a few coins at a time until Who is blind? Who is deaf? see cannot do. Because it is an intentions sometimes create individuals benefiting again and they’ve reached their daily finan- This is an emotionally charged assumption based on false logic more problems and harm to again. The question remains: cial target, which they will use question which invariably leads to it seems perfectly reasonable people with disabilities than Who represents people with as they please. extremely emotional and irrational and people don’t question it, they solve. We’ve got to get disabilities? It’s a typical, busy afternoon answers. In our society to be dis- they accept it as truth! in Nelson Mandela Avenue, abled is considered to be inferior. Regrettably, the falseness of Bloemfontein, I sit needlessly in To lack one sense short of the an assumption does not reduce a queue of traffic, starring at basic five senses, means you lack its power to influence thinking, ence in life. This behaviour of Mokaba, Chairman of the SA everything around me and all of one or more of the five senses. decisions and lives and so this beggars pretending to be blind National Council for the Blind for the sudden I observed two Moreover, the reasoning goes, insidious assumption contin- can only be vanquished by the becoming role models for other ladies begging for money. Just you have less to work with and so ues, largely unchallenged, to truth, as blind people assume that vision impaired consumers. there and then a little voice in you are, obviously, less capable. affect individuals and society they are competent and then live Sorry, your full-time occupa- my head clicks on when I Regrettably, these days, less alike. The horrible fact is, is that it out in the hope that the sighted tion is no longer conning observe this two ladies for a capable means less valuable, these beggars create a total un- will see. people into feeling pity and long time and says, “Today I indeed, inferior; in the same way truth, based on a totally false as- Congratulations to Blind SA being charitable by using Got you!” that a 4 speed car is considered sumption about the correlation and Dr. William Rowland, Imme- people’s sympathy against It must be inescapable that inferior to a 5 speed car. Nobody between people with a diate past President of the World them and towards the beggars an analytic mind repeatedly want to be inferior so, naturally, disability and one’s compet- Blind Union, Advocate Luckey financial end. We invite people with visible and invisible disablities to send us your biography, Inserts: Volksblad, Daily Sun, and Express. CV and photo. .O. E- mail: firstname.lastname@example.org P Box 38425. LANGENHOVENPARK 9330 2 Voices of Change, February 2010 VOC IS THE BEST “VOC is the best. It is very accommodative and unique piece of information. I love reading about the different stories of achievements of people with disabilities that are published in this newspaper. I want to ask the editor-in-Chief of this newspaper not to stop the good work ever. I say Halala VOC Halala. Thank you.” - Buti Motsamai Buti receives his B.Admin.Hons I was born with a condition called albinism By Buti Motsamai Rele (Aangeheg), the late Mr. tender to build RDP houses in Makhalema (Isawil), Mrs. Majoro Phomolong. I was born 37 years ago with (Isawil) and Mr. Motsoahole - was elected the chair- a condition called albinism (Isawil). They did whatever that person of the Interim Com- and as a result I encoun- was on their power to make it mittee of Matjhabeng tered a problem of a poor easy for me to learn. I was Youth Forum. vision (could not see so well). allowed to stand up and go in • 2002 – became chairperson of My eyes are so sensitive that front at the chalkboard to look Matjhabeng Albinism Society I am unable to look at the sun clearly at what I wanted to write Support Group directly with both eyes open. I that was on the board. In 1987 I - worked at Welkom Book am the first of seven children went to Bahale Secondary School packaging Project as a at home; 3 boys (two of whom at Phomolong in Hennenman treasurer. has albinism) and four girls under leadership of Mr. Molapo • 2003 – registered for B.Admin (one which of whom has who together with his staff also degree with UFS and stayed albinism). I am a father of two, supported me. With all help that I in House Khayalami Mpho (8) is a girl and Mamello had to make me study, life - elected for portfolio of Edu- (3) is a boy and has also has become very easy until 1991 cation and Transformation albinism. I am engaged to when I completed my Matric (now under SASCO at UFS. Nobelungu Kambule and she grade 12). • 2004 – became a Secretary of also has albinism. I grew up From 1992 I left home to look the South African Blind Youth on the farm with people (both for employment and things did not work my way. I only got organization (SABYO) in the young and old) who bullied me because of my looks. There garden work which also was tem- Motheo district. were also those who became porary. In 1996 I registered for B. • 2005 – became deputy- my friends and supported me. Ed with then Vista Welkom Cam- chairperson of Eben-ezer I attended primary pus and only lasted for two years Youth Ministry at UFS. schooling at Aangeheg Bantu due to outstanding fees and lack • 2006 – completed B.Admin School (Sub standard A – stan- of facilities such as units for stu- and registered for B.Admin. dard 1) between 1981 and dents with disabilities. From 1998 Hons in public Administration 1983 and Isawil Primary to 2000 my life came to a stand- • 2007 – got employment at School (standard 2 – standard still until in 2001 when the Mangaung Correctional 5) between 1984 and 1986. following changes took occured; Centre as Administrative The following primary teachers • 2001 – worked as a handyman Assistant. helped me build my character; for a certain construction • 2008 – graduated with Mrs. Kobue (Aangeheg), Mrs. company that was given a B.Admin.Hons at UFS. Buti with his fiancé and son at his graduation. UFS Jool Rag Queen 2010 VOC congratulates Celeste van Drunick Rector of the UFS, Prof Jonathan Jansen and one of the judges, Miss Deaf SA, Vicki Fourie. Jool Rag Queen 2010 – Celeste van Drunick 3 Voices of Change, February 2010 A diagnoses of Dementia comes as a shock, even if you have been half expecting it ke kelello (Alzheimer). Hape ba na le bonyane ba tse ding ho itlhahisang jwalo ka (dementia). Ho etsa dintho ka tsela e e mabapi le temalo ya boko tsena tse latelang: Maemo ana a kenyelleditse: ho tshwanang tikolohong e ka mora ho hlahelwa ke kotsi • Motho ha a elellwe hore o na nwa jwala haholo, ho se sebetse tlwaelehileng ho thusa e le ka ya hlooho, kapa seterouku le bothata; hantle ha setho se mmetsong sa nnete. Mamello e bohlokwa. le “dementia” e bitswang ya • Ha ba kgone ho phethahatsa kgolo ya mmele, ho ba tlase ha Ha ho kgonahala, thusa ya Parkinson. Tahlehelo e nyenyane ditaelo tse ngotsweng, mme vitamine ya B12 mading, kgatello nang le bothata hore a tle a ya mohopolo ke sephetho puo le mongolo ha di ya maikutlo, le ditlamorao tse tsebe ho ithusa ka boyena. Ho se fumanwang dilemong tsa hlalohanyehe; seng ntle tsa meriana e meng. ka ba bohlokwa ho nka botsofadi bo tlwaelehileng, • Ha ba elellwe tikoloho e Nakong ya jwale ha ho e so mehato ya ho etsa tikoloho empa sena hase hore se senya tlwaelehileng; be le phekolo ya bongaka ya hore e be e bolokehileng tshebetso ho maqheku le • Ha ba kgone ho etsa dipolane (Alzheimer’s dementia). Bokgoni mabapi le motho ya nang le maqhekwana. le ho phetha mosebetsi; ba ho hopola bo ka ntlafala ha bothata, e le ho thibela dikotsi. (Alzheimer) e tsebahala ka ho • Ba na le bothata bo fetel- motho a fumana phekolo e jwalo Mahae a maqheku le fetisisa maemong ana, mme e letseng ba boitshwaro, ho bua ka (cholinesterase inhibitors). maqhekwana, mmoho le bakwa ke disele tsa boko le ho se robale hantle, mme Leqhoko le boitshwaro bo sa mahae a tlhokomelo ya ba sa Dr D Greyling (neurons) tse shwang. Mabaka a esita le ho bona kapa ho utlwa amoheleheng di ka laolwa ka itekanelang a atisa ho ba hlokolotsi ho (Alzheimer) a dintho tse siyo ho ka ba teng. (sedating medications). Division of Geriatrics, bohlokwa maemong a seng a kenyelleditse botsofadi le nalane Matshwao a (Parkinson) le ona a Department of Internal Matshwao ana a boletsweng le hodimo a bohloko bona. ya maemo ana lelokong. ka laolwa ka phekolo. Kgatello ya Medicine, University of the Monyetla wa ho futsa boemo ka hodimo ke tshenyo maikutlo le yona e laolwa ka Ngaka ya mahloko a kelello, Free State bona ho tswa lelokong le tshebetsong le boikemelong ba (serotonin reuptake inhibitors). ya methapo ya monahano, ya haufinyane o etsa 10-30%. Sele motho. Boikwetliso bo bontshitswe bo mahloko a akaretsang, e D ementia e mabapi le ya lefutso ya boemo bona e Mahloko a jwalo ka kgatello e kgona ho theola tswellopele kapa hlahlobang kelello ya mokudi maemo a boko bo bitswa (APOE epsilon 4). phahameng ya madi, lefu la qaleho ya matshwao. ka ho mo fa mosebetsi, le e emisang ho sebetsa Batho ba nang le (dementia) tswekere, le ho tsuba, a Bahlokomedi ba bakudi ba phuthullang mesifa; dingaka karolwaneng e itseng, e ba sokola ho beya mabaka/ amahanngwa le kgolo ya hloka mamello yohle le tsebo – tsena kaofela di bohlokwa kenyelleditse bohloko ba dintlha hantle, ho nka diqeto le (dementia). Ho na le maemo a kopana le sehlopha sa tshehetso mabapi le taolo ya mokudi ho lebala le ho lahlehelwa bothata ba ho hopola; mme hape mang a phekolehang a ka sa lehae. enwa. Dementia A special thank you and good-bye to Marianna Truter Dr D Greyling Division of Geriatrics, 30%. The gene identified for the Illnesses such as hypertension been shown to slow the progres- inheritance of this condition is (high blood pressure and sion or onset of symptoms. Department of Internal named APOE epsilon 4. diabetes mellitus, as well as Care-givers need a lot of Medicine Persons with dementia have smoking are associated with the patience and information – University of the Free State problems with reasoning, judge- development of dementia. There contact your local support D ementia refers to a ment and memory and have at are treatable conditions that may group. group of degenerative least one of the following: present like dementia. These Keeping the same routine brain conditions which • The person does not realise include: excessive alcohol intake, in a familiar environment cer- includes Alzheimer’s, brain in- they have a problem an under-active thyroid gland, low tainly helps. Patience is essen- jury after head trauma or stroke • They cannot carry out written vitamin B12 blood levels, depres- tial. If possible, help the per- and Parkinson’s dementia. instructions, and speech and sion, and side effects of certain son to help themselves. It may Normal ageing results in mild writing are incomprehensible medications. be necessary to take steps to memory loss, but this does not • They do not recognize a There is currently no medical make the environment safer for Thank you for the cour- impair function in the elderly. familiar environment cure for Alzheimer’s dementia. the person, in order to prevent age, hard work, dedication Alzheimer’s is the most • They cannot plan and carry Memory may improve with medi- injuries. Old age homes and and passion contributing to well-known of these conditions out tasks cation such as cholinesterase frail care or home care is usual- the Voices of Change Project and occurs as a result of neu- • They have behavioural abnor- inhibitors. Aggression and unac- ly necessary in advanced (VOC). We appreciate all rons (brain cells) that die. Risk malities, speech and sleep ceptable behaviour may be man- cases of the disease. A psy- your assistance, patience factors for Alzheimer’s include disturbances, and even hal- aged with sedating medications. chiatrist, neurologist, general and effort put into the old age and a family history of lucinations are possible Parkinson’s symptoms may also be practitioner, occupational thera- success of VOC! the condition. The chance of The above symptoms are managed with medication. Depres- pist and physiotherapist are all May the journeys ahead inheriting the condition from a detrimental to the functioning and sion is managed with serotonin important for the management be as successful & direct family member is 10- independence of the person. reuptake inhibitors. Exercise has of such a patient. rewarding as this one. 4 Voices of Change, February 2010 The diagnosis of To advertise in VOC Williams syndrome The most important step in piece missing from chromosome making the diagnosis, is suspec- 7 is hardly ever visible under a ting the disorder. WS has typical normal microscope. Please e-mail Magteld at facial features but these features Routine chromosome email@example.com are sometimes variable and not analysis in a patient with WS will always apparent, especially to a invariably be normal. The mis- or clinician not familiar with the diag- sing piece that causes WS is 082 828 9131 (sms only - deaf) nosis. The facial features are within area 7q11.23. The FISH mainly described for Caucasian procedure marks chromosome Dr. BD Henderson children making the clinical diag- area 7q11.23 orange and chro- Neurology, Human nosis more difficult in other ethnic mosome area 7q.31 green (this Genetics, UFS groups. The cardiac findings and is the control region). The neurocognitive and behavioural chromosome is then examined Diagnosis: patterns are very typical and this under a special fluorescent Infants W illiams syndrome (WS), is why the diagnosis is more microscope. For a diagnosis of swallowing. Freflux is • Low birth weight – often 2.3 kgs common or rather Williams- frequently made by Paediatric WS to be confirmed, the area or less • Irritability (severe Beuren syndrome, is Cardiologists or Paediatric Neuro- marked orange is missing the • Slow weight gain – often colic) during infancy – one of the many microdeletion development specialists. chromosome 7. This test is characterized as “failure to thrive” sometimes traced to syndromes. A microdeletion To confirm the diagnosis of positive in at least 95% of people • Feeding difficulty – poor suck hypercalcemia and/ or occurs when a small piece of WS, a FISH probe needs to be with WS. Because the probe reflex, poor muscle contrill for stenosis. genetic information is deleted or performed on the patient’s blood looks at the elastin locus only, missing from a specific chromo- or other cells from the body. FISH some people may have a some. This missing piece is so is an abbreviation of Fluorescent positive FISH test but not have small that it cannot be detected In Situ Hybridization. In this the full spectrum of WS features. with a regular light microscope technique special labels or probes From the above it is clear that and special techniques must be are made that attach to specific the clinician must suspect the utilized to identify it. WS is due regions of a chromosome. Under presence of WS and specifically to a small piece missing from a special fluorescent microscope ask the laboratory to do the ap- the long arm of chromosome 7. these probes glow in a specific propriate test before the It was first described in 1961 but colour and this allows visualization diagnosis can be made. If the the cause was only discovered of the presence or absence of this test is not specifically requested, in 1993. It probably occurs in piece of the chromosome. This the result will neither confirm nor about 1/20,000 live births. needs to be done because the refute the diagnosis. The forgotten disability Not special treatment special needs Dr. S.A Barrett, Colour Blindness red or green colour blindness. jobs and makes others Cool! “We are all special, while Department of One in twelve males and one in difficult. Tests for colour other kids have Ophthalmology, UFS 200 females are red-green colour blind. (Asian: 5%, French and blindness are generally given to children and to people special needs!” I f your clothes don’t Scandinavian : more than10%) applying for jobs where colour By Magteld Smith, special needs, too. A kid who discrimination is important, has hearing trouble might need match, someone might Hearing impaired have teased you about such as in the case of pilots, hearing aids to hear and being colour blind. But some Can colour blind train engineers, or electricians. speech training, too, since it I Colour blindness is tested in people really are colour people see colours? daylight, using special colour sn’t every child special? can be hard to say words blind. We think so, but what do correctly when you can’t hear cards. A more complicated we mean when we say very well. Colour blindness is a Non colour blind condition where the eyes have test uses an instrument called “kids with special needs”? Kids with learning problems trouble distinguishing certain an anomoloscope. It shines a This means any kid who might often have special needs. It is colours, and is most common- changing mixture of red and need extra help because of a an invisible disability but they ly due to an inherited condi- green light and the person is medical, emotional, hearing, have special needs when it Protanope asked to change the mixture tion. Most people have either vision or learning problem. comes to learning. red or green colour blindness. until it looks the same as a These kids have special needs You might be able to spot a Blue colour blindness and yellow light. The examiner can because they might need medi- few kids with special needs, but monochromatism, a condition tell how severely colour-blind a cine, therapy, assistive devices you probably don’t notice all of in which a person sees only Deuteranope person is by looking at the or extra help in school, stuff them. A kid could have a pro- black, white, and grey, are very redness or greenness of the other kids don’t typically need blem that isn’t noticeable un- rare. Most people have mild adjusted mixture. or only need once in a while. less you know the person well. forms of colour blindness that Inherited colour blindness Maybe you know of kids in For instance, someone could is not treatable. In cases of your school who need a wheel- have trouble with anxiety don’t interfere much with their Tritanope daily lives. acquired colour blindness, a chair or use braces when they (worry), but you wouldn’t know doctor will treat the underlying walk. Hearing aids, a cochlea it unless the kid told you about disease or injury. People with implant or glasses. Those kids it. Privately, their parents, How common is mild colour blindness lead have special needs. They not teachers, and counselors may fairly normal lives, however colour blindness? Colour blindness can be very people with severe colour only need the equipment that be working to help them with helps them get around, but this problem. Eight percent of Caucasian frustrating for individuals affected blindness shouldn’t do tasks they might need to have ramps Never ever call anybody men and less than 1 % of by it. Being colour blind does that require colour or elevators available. ”insane,” “mad,” “crazy,” Caucasian women have either keep one from performing certain discrimination. Kids who have an illness, “lunatic,” “psycho,” “nutter,” such as epilepsy, diabetes, or “looser,” and phrases such as cerebral palsy, would have “not leka in the head”. This is For any other enquiries please special needs, too. They might serious allegations, don’t use To Advertise in VOC e-mail to: need medicine or other help as “trash” words, be a super firstname.lastname@example.org they go about their daily special cool kid that can identi- or write to: activities. Kids with sight pro- fies a super special cool kid Corné Boshoff blems might need Braille books with special needs and email .O. P Box 38425. Cell: 079 766 0637 to read. Kids with hearing or voices of change and stand a LANGENHOVENPARK Marketing Consultant speech problems would have change to win R100.00!!!! 9330 5 Voices of Change, February 2010 It’s been called ‘the invisible disease’, although as many as one in 10 of us will experience it in our lifetime. But depression can be managed, and it’s vital that you seek help. You don’t have to live with it U ma Thurman, will experience a depressive illness called depression. In ‘blue’, but this is not to be Ashley Judd, episode in a year. modern medicine, it is well confused with depression. Sinead O’Connor, Interestingly, new research recognised that depression Depression is a full- Robbie Williams, Steven suggests that it may be a is an illness caused by an blown and serious medical Fry, Brooke Shields, case not of men escaping imbalance of condition. It is not merely a Winona Ryder, Owen depression, but rather neurochemicals in the down mood, and Wilson, Harrison Ford, that their manifestations of brain,’ he says. Depression depressed people can not JK Rowling...This is not depression are markedly comes in mild, moderate ‘just snap out of it’. It is only a list of the rich, different to those of women, and severe forms, too, and defined as a melancholy, famous and successful. with men being seen rather the type determines the angry, glum or sad mood It is a list of celebrities as irritable and aggressive, treatment. disorder that, in chronic who suffer from instead of depressed, and The key symptoms are cases, lasts for an extended depression, who know thus being misdiagnosed. lack of energy, feelings of period and interferes with first-hand the feelings Most frightening of all, hopelessness and everyday life, including of anger, helplessness, WHO has estimated that by helplessness, troubled social functioning and even despair and futility 2010, it will be the world’s sleep or excessive sleep, work performance. commonly associated leading cause of death. appetite changes, feelings ‘Everybody feels “blue”, with this condition. While having a good of guilt, self-loathing and “sad” or “upset” at times or According to the South social network and the worthlessness, withdrawal, at some stage in their life,’ African Depression and support of friends and irritability, restlessness, explains Dr Hans Dreyer, a Anxiety Group (SADAG), family is no guarantee of impaired concentration, low Centurion-based counsellor approximately six to 10 immunity, it seems that self-esteem and morbid specialising in depression. percent of the population depression is more likely to thoughts. There can also be Transitory feelings of will experience a show itself in people who physical symptoms, like sadness or discouragement depressive episode in are socially isolated and back pain, headaches or are perfectly normal, any given year. More lack close interpersonal stomach pains that do not especially during women than men are relationships. The average respond to treatment. The particularly difficult times in affected, by as many as age at which diagnosis of a number of these symptoms a person’s life, and the three times, according major depressive episode that present it appears length of time they last, to the World Health is made is around 40, across all age groups, from indicate the severity of the Organization (WHO), although life. But a person children to the elderly. We depression. (There is also as many as one in five who cannot get over these all experience times when postpartum depression, 011 262 6396 • 0800 20 50 26 women (i.e. 20 percent) feelings may suffer from an we’re unhappy or a bit seasonal affective disorder). SMS 31393 • www.sadag.co.za 6 Voices of Change, February 2010 Nuwe hoop vir kinders met outisme Deur Dr. Liesl Smith Departement Neurologie, Universiteit van die Vrystaat OUTISME IS ‘N MEDIESE TOESTAND • Sintuie werk anders in outistiese kinders. Hulle kan een oomblik hulle ore toedruk omdat geluide hulle ore seermaak. Die D volgende oomblik kan ie vereniging vir hulle jou glad nie hoor outismespektrum- nie. Hulle kan na ‘n kenmerke is baie storie op TV kyk en glad trots om aan te kondig nie hoor dat jy met hulle dat ons uiteindelik praat nie. Hulle reageer ‘n skool oopgemaak dikwels nie as jy hulle het. Die skool is met op die naam roep nie, die hulp van die SNAP maar sal wel geluide personeel van die grond hoor. Hulle sien baie af gekry. Drie ervare goed. Ligte interesseer mense van SNAP het na hulle. Hulle hou baie Bloemfontein gekom om die onderwyseres amper • vrywilligers om te help seer balk, ‘n lamineer Ek is baie dankbaar van goed wat spin: ons te help om die skool onmoontlik om effektief met met die hantering van masjien, ‘n drukker, ink, aan almal wat gehelp het Wiele, propellers van ‘n te begin. Ons is ook die kinders te werk. Hulle die kinders. Daar is tafels en stoeltjies, liaseer om die skooltjie van die helikoptertjie. Die bevoorreg om ‘n ervare het meer hande per klas sekerlik ‘n moontlikheid kabinette, skryfbehoefte grond af te kry. SNAP , kinders is geneig om onderwyser vanaf nodig. Maksimum 6 dat onderwys studente kas. Die lys is lank. Ons Tim en die helpers. Ek is hulle hande te flap as Engeland te hê, wat kinders per klas met 2 vol- by die skool kom roteer, benodig ook rekenaars ook oortuig daarvan dat hulle opgewonde raak. gratis vir ons sy dienste wassenes om te help. en dat die arbeidstera- om verslae op te tik en ons ‘n verskil maak in die Sommige kinders hou lewer tot die einde van Outisme is ‘n mediese peute hulle opleiding die nodige programme drie kinders wat na die glad nie daarvan as jy die kwartaal. toestand. Dit het profes- gedeeltelik by die skool om dit te maak werk. skool toe kom. aan hulle raak nie. Outisme is ‘n baie Hulle kan ook “tantrum” sionele mense nodig om dit sal kom doen. • R2000-00 per maand vir Paul Kruger Laan 86. besonderse gestremd- as hulle bv piesang aan te diagnoseer en te behan- • Papier, Velcro wat kan gesubsideerde heid. Dit is ‘n ontwikke- del. Kinders moet evalueer plak, koukies, ‘n balan- skoolfonds. Tel: 082 856 6618 hulle hande het. lingssiekte wat een uit word om ‘n diagnose te Al die kinders is maak en sy vlak van funk- elke 100 kinders wat ge- verskillend. Hulle het almal sionering te bepaal. Die bore word betrek. Dit kenmerke van wat bo be- span wat dit doen, sluit in: word al hoe meer alge- skryf is, maar almal van Pediatriese neuroloë, meen. Autisme se simp- hulle is uniek. Dit is ‘n Spraak, Arbeids, Fisio- tome begin voor die spektrum gestremdheid. terapeute en Sielkundiges. ouderdom van drie jaar, Die graad verskil van lig of Dit is onwys dat ander maar word dikwels eers hoogsfunksionerend, tot ouers met min ervaring, ‘n na die ouderdom van 3 laagfunksionerend. kind evalueer. Van die on- jaar gediagnoseer. Hierdie kinders het uit derrig kant, het mens dan Simptome wat voor- die aard van die saak, baie mense nodig wat ervaring kom is die volgende: spesiale onderrig nodig. in outisme-onderrig het. En • Die kinders se spraak Daar is nog nie ‘n staat- laastens, maar volgens my is meestal aangetas. skool vir hierdie kinders in die belangrikste: Ingeligte Hulle praat miskien ‘n die Vrystaat gebou nie. Die ouers wat baklei vir hul paar woordjies maar onderrig is duur. Dit is ar- kinders. Want dit is ‘n stryd dan verloor hulle dit beidsintensief. Ideaal moet om op die oomblik vir jou weer. As ‘n kind dus daar een (ingeligte en em- kind die regte onderrig te op 2 jaar nog nie patiese) volwassene vir elke kry in die Vrystaat. praat nie, soek eerder kind wees om in ‘n klas- Volgens my is die ‘n professionele opi- kamer te kan funksioneer. jonger kinders van kritiese nie. Moenie wag nie. Veral as die kind net begin belang. Hoe vroeer jy met Jy kan geen skade skoolgaan. As die kind die regte onderrig begin, doen deur vroegtydig eers aangepas het, het hy hoe beter. So ‘n vroee inter- op te tree nie. minder “hands-on” aandag vensie sentrum is my • Hulle sosiale inter- nodig. Dan is dit moontlik hartsbegeerte. aksie is anders. Hulle om drie kinders per volwas- Ons onderwyser gaan kan bv nie mense se sene te akkommodeer. terug na Engeland aan die gesigsuitdrukkings Dit is seker waarom die einde van die eerste kwar- herken nie. Hulle sien onderwys department dit taal. SNAP se mense kom nie of iemand kwaad nog nie goedgedink het om een keer ‘n maand, maar of hartseer is nie. Hul- ‘n skool vir die kinders te daar moet iemand wees le skryf op ander bou nie. Dit gaan baie geld wat met die programme kinders se kunswerke, kos. Twee jaar gelede is kan voortgaan. hulle tree impulsief daar al samesprekings ge- op. Hulle persoonlike hou dat daar ‘n skool vir die Ons benodig ruimtes is anders. kinders geskep moet word. Hulle staan naby aan Hetsy uit die bestaande die volgende: ander mense. Hulle strukture of ‘n spesiale • ‘n perseel om op te gaan in plekke in waar aparte skool. Sover het werk, hetsy ‘n huis of hulle nie moet wees daar nog niks van die onder- selfs ‘n groter plek. nie. wys department (inclusive • ‘n onderwyser met • Kinders met outisme education) se kant af nie ervaring van outisme en speel anders. Hulle gekom nie. wat ‘n passie vir kinders pak hulle karretjies in Hulle het wel ‘n outisme met outisme het. rytjies of stapel dit klas begin in Pholoho • befondsing om hierdie opmekaar. Hulle kan skool, maar die klas het onderwyser te betaal. vir ure speel met iets meer as tien kinders in en Tensy die onderwys de- wat hulle interesseer. daar is een onderwyseres partement ons van so ‘n Water fassineer hulle. en ‘n hulp. Dit maak dit vir persoon voorsien. 7 Voices of Change, February 2010 “Hey Sista, take 5 and Chill!” 1. Specific, realistic goals changes will become a new yourself of what you want and you retrain your brain into a work best. When it comes routine and part of your life. what you’re working for. new way of thinking. It may to making a change, the That’s because your brain 4. Pleasing other people doesn’t take a few tries to reach a people who succeed are needs time to get used to the work. The key to making any goal. Just remind yourself to those who set realistic, idea that this new thing change is to find the desire get back on track. specific goals you’re doing is part of your within yourself, you have to do 2. It takes time for a change regular routine. it because you want it No one was ever beaten to become an established 3. Repeating a goal makes it 5. Roadblocks don’t mean unless he gives up the fight, habit. It will probably take a stick. Say your goal out loud failure. Slip-ups are actually Cool huh?! couple of months before any each morning to remind part of the learning process as “Oh yeah man, I hate school, most of the teachers have a learning disability! My brain is special and it takes special people to understand special brains!!” disability, such as dyslexia or Huh? What Are Learning Disabilities? dyscalculia (serious trouble with math), remember that you are not slow or dumb, you only have special needs! Learning disabilities happen because of the way a person’s brain takes in and processes infor- By Prof André Claassen L mation. As a result, people learn earning disabilities aren’t to name a few. Someone with a But you know what is cool? differently. The trick will be contagious, but they learning disability probably has learners today have an ad- figuring out how you learn best. can be genetic. That other family members who have vantage over their parents. By Prof André Claassen There are people who know means they can be passed had some learning troubles, too. Why? Because learning how to do just that. Your parents down in families through Learners with learning experts now know a lot and teachers can help you and H the genes, like many other problems are sometimes more about the brain and aving a learning they can find you a learning traits we get from our parents surprised to find out that one of how learning works and it’s disability doesn’t specialist or a school psycholo- and grandparents, such as their parents had similar troubles easier for learners to get the mean you can’t learn. gist. These professionals can help deafness and colour blindness when he or she was in school. help they need. But you’ll need some help figure out what a child’s learning and you’ll need to work extra problem is – and come up with hard. If you have a learning ideas for how to make it better. 8 Voices of Change, February 2010 People with disabilities are vulnerable to medical-social and economic exclusion By Magteld Smith, promise and guides the action of and contribution of all sectors of increase awareness of gains to be persons with disabilities in Hearing impaired the government. It often leads our society, including persons derived from the inclusion of every aspect of life. the government to adapt and with disability and disability T here has been a lot of change its own laws to support organisations such as Voices of progress in the last 20 the goals of the convention.” Change, is crucial to assist years around awareness Voices of Change urges all government to achieve this goal. and some knowledge of dis- role players to mainstream issues Magteld Smith added that we all ability issues internationally. A of disability and fully implement need to work together so that very important resource for us is disability related policies in all government can achieve its the United Nations Convention aspects of life. VOC has had employment equity target of two on the Rights of Persons with several meetings together under percent by 2014. Disabilities, which came into the leadership of The Public Pro- These meetings with the force on 3rd May of 2008. This tector and some Commissions. Commissions outlined in the is a major breakthrough in the In the next five years, we must Constitution of the Republic of struggle for service delivery, and ensure that persons with disabili- South Africa, Act no. 108 of 1996, is potentially the most significant ties are beneficiaries and equal aim to promote an understanding Front left: Carol Maila, Manager Delivery Capacity (IDT), Suné development in the history of partners in all our programmes to of disability issues and mobilise Griesel, Free State Public Protector, left back: two staff the worldwide disability rights halve unemployment and poverty. support for the dignity, rights and members of the public protector’s office, Marianna Truter, VOC, movement. The Public Protector acknow- well-being of persons with Paul Prins, Office of the Premier, Magteld Smith, Faculty of South Africa signed the Con- ledge that the active participation disabilities. It also seeks to Health Sciences, UFS. vention and the Optional Proto- col on 30th March 2007 and rati- fied both on 30 November 2007 and this means that our Govern- ment signals the intention to Belastingkorting vir adverteerders en skenkers undertake legal rights and obli- Voices of Change is deur die hierdie opbouende geleentheid hul belasbare inkomste aftrek en bydraes skenk kan gestuur word gations contained in the Con- Inkomstediens as ’n openbare gebruik te maak en ons bylae te dan belastingkorting kry. Voorlet- aan: Voices of Change Trust, Pos- vention and Optional Protocol. welsynsorganisasie geregi- ondersteun deur advertensies te ters, van en volledige adres en of bus 38425, Langenhovenpark, In simple terms “A conven- streer om skenkings te ontvang plaas of in die vorm van geld- besigheidsbesondere moet ver- 9330. Tjeks moet aan Voices of tion is an agreement between en ’n kwitansie (sertifikaat) inge- skenking om noodsaaklike dien- skaf word en aandui of ’n Artikel Change uitgemaak word. countries to obey the same volge Artikel 18 van die Inkom- ste, alle vorme van ontwikkeling, 18-kwitansie verlang word. Bankbesonderhede: Voices law about a specific issue. stebelastingwet uit te reik. hulptoestelle en tegnologie te ver- Dié sertifikaat sal aan skenkers of Change Trust, rekeningnom- When a country signs and Ons doen ’n beroep op kor- skaf aan mense met gestremd- gepos of gefaks word. Voices of mer: 4072119782 (tjekrekening), ratifies (or approves) a poratiewe ondernemings, indi- hede. Adverteerders en Skenkers Change se vrystellingsnommer is tak: Absa Brandwag, takkode: convention, it becomes a legal vidue en organisasies om van kan gevolglik hul skenkings van 63112 . Mense wat asseblief wil 632005.