RATIONALISING HEALTH INFORMATION SYSTEMS TO IMPROVE HEALTH OUTCOMES
Public Health Services Queensland Health Australia
1998-2000
Dr Magnolia Cardona
Coordinating Epidemiologist
MB.BS, MPH, Grad DAE, CHEcon
Objectives of this lecture
Provide an overview of information system types and potential uses Increase awareness on need to balance amount of data with cost and confidentiality concerns Present case scenarios to set up and enhance information systems
Characteristics of Good Health Surveillance Systems
Clear objectives
• administration • routine documentation • monitoring • research/evaluation
Simple (MDS) Standard item format
Justification and validation of items
Characteristics of Good Health Surveillance Systems (cont) •Relevant to users •Minimum burden to providers •Amenable to modification •Provision for security/confidentiality •Associated reporting system •Feedback to collectors •Linked to action
Options
•Paper-based centralised •Sentinel/selected surveillance •Computerised stand alone •Single site •Multicentre
Options
•Computerised networked
•Encrypted data transfer
•Combination •Paper-based notifications •electronic entry at central location
Setting up a Health Information System
Which option is best?
SCENARIO: Cholera epidemic in Africa No routine surveillance Poorly kept clinical records Understaffed facilities Unreliable communications No ongoing funding No computers
Cholera epidemic in Africa
Example of a paper-based system that worked in an endemic area for at least 2 years
Occupational exposure to bloodborne illnesses among health staff Hundreds of health facilities Infrequent incidents Non-compulsory recording No ongoing funding Confidentiality issues Compensation issues
Nutritional Status Monitoring in a remote indigenous community Routine surveillance of some conditions Somehow comprehensive clinical records Services staffed by community Unreliable communications Some funding available Some computers usable
Major stakeholder’s concerns
•How the data will be collected •How the data will be used •Who will have access to the data •Confidentiality issues •Perceived discrimination •Financial implications
Indigenous Community Health
Computerised system Easy front-end Complete patient information (alias/residence) Promotes opportunistic P.H. action Capability for health worker plans Population based reporting system Generates customised prevalence/incidence
Burden of depression at Medical Practitioners rooms Non-standard recording practices ? Availability of clinical records Busy medical practices Variable communication systems Low computer coverage Ethical issues Incentives required for doctors
Doctors-based Sentinel Surveillance
•Enables documentation of non-hospital data •Burden of disease measurement •Paper-based with weekly notifications •Limited patient information & # conditions •Selected Locations (self-selected doctors) •Inability to calculate prevalence/incidence
Example of project to maximise efficiency of existing health information systems
Real case scenario
Aim
Improve health outcomes through enhancement of Public Health information systems
Objectives
High quality /timely data Minimise duplication/cost Standard coding practices Common table structures Common operating environment Shared hardware Data Linkage
Inventory of Databases
Purpose/Scope /Contents Size/Accessibility Operating system/server/interface Data tables Remote access/re-development Special requirements Staff involved
Integration Protocols
Hardware /software Data definitions {NHDD} Reference tables Data Entry & Transfer Security /Confidentiality
Working Group
Discuss IT requirements Re/development experience Security Principles Sharing of reference tables Integration protocols Recommendations
Integration
Business
Levels
User interface
Data use (structure) Database (execute instructions)
Platforms (hardware) Network (WAN, LAN)
*BSR PSR Lead *NOCs VIVAS *MODDs
Business Interface Data use Database Platforms Network
How does this improve Health Outcomes?
Outbreak response/timing Immunisation rates Prescription control Standard Indigenous identifiers Early cancer detection\QA
Summary
Relevance & cost-effectiveness Consultation with users and data holders Financial considerations Ethical implications Ultimate goal to improve health