This document was produced and published by the Ealing

This document was produced and published by the Ealing Learning Disability Partnership Board. The board comprises: Ealing Partnership Group (service user representatives) Carers Action Group (carer representatives) Provider Forum (representing providers of residential, supported living and day care) Further Education (representing local colleges and the Learning and Skills Council) Ealing Mencap (voluntary sector representative) Ealing Council Ealing Primary Care Trust Photos from Photosymbol Photobank Symbols from CHANGE Picture Bank 2 Working together to make better lives Index Forward 1 2 3 Introduction People with Learning Disabilities in Ealing What have we done since Valuing People? 5 9 13 19 Targets for the Next 5 Years 4 Choice and Control 4.1 Nothing about us without us 4.2 Making a reality of self directed services 4.3 A real partnership with families 4.4 Including everyone Better Lives 5.1 Dealing with people’s health inequalities 5.2 Getting more people into paid work 5.3 Making a reality of housing choice 5.4 Stopping people being sent away 5.5 Being part of the local community 5.6 Making transition to adulthood positive Making It Happen 6.1 Providing the right local support 6.2 Getting better at checking Getting Help from other Policies 7.1 Getting society as a whole involved Action Plan 3 26 26 28 30 32 34 34 36 38 40 42 44 46 46 48 50 50 53 5 6 7 8 Working together to make better lives Statement of Support We are pleased with this plan because it will give people with learning disabilities and their carers more choice and control. This plan will help people live better lives and be part of their community. We will check that everyone is doing their best to make this plan happen. We will make sure our policies and our partners’ policies are easy to read and include people with learning disabilities. Darra Singh Chief Executive Ealing Council Robert Creighton Chief Executive Ealing Primary Care Trust David Archibald Executive Director of Individuals Ealing Council Jo Murfitt Director of Commissioning Ealing Primary Care Trust Mun Thong Phung Director of Adult Services & Co-chair of Partnership Board Ealing Council 4 Working together to make better lives Forward Andrew Treggiden and Mun Thong Phung I am Andrew, and I am Co-chairperson of the learning Disability Partnership Board with Mun Thong Phung. When all this started I never would have thought a person with a learning disability would be doing a job like this. I never would have thought I would get the job as Co-chairperson. 5 Working together to make better lives It is important that the views of people with learning disabilities are heard. We know best about learning disabilities and we know what we want. If we don’t have our say, and if people don’t listen to us we will never get things right. Valuing People says Nothing About Us Without Us. Ealing Partners say ‘our rights, our choice and our voice.’ It is important that we have our say and that people listen to us. This plan talks about important things like housing and jobs. I was lucky to get the housing I need. 6 Working together to make better lives I also have a paid job in the PCT. People shouldn’t be lucky to get these things. We should get them because we are treated the same as everyone else and given the right support to get them. It is very important that people with learning disabilities get information in a way that they can understand. The Partnership Board uses easy words and pictures, but not always. We need to make sure that people with learning disabilities get the right information. We need to make sure that more information is on video, tapes and cd’s. 7 Working together to make better lives Without the right information, know what services are out won’t know how we can get how we won’t know how to about them! we won’t there, we them and speak up Having accessible information is very very important. This plan is for 5 years and by then I would like to see a big change. We need to make sure that this plan gets done. We all need to work together to make sure that things get better and better for people with learning disabilities and their carers and that we get better support. Andrew Treggiden Co-Chairperson of the Learning Disabilities Partnership Board 8 Working together to make better lives 1 Introduction We decided to make this plan after reading a report called “The Story So Far…”. The report is about the progress of ‘Valuing People’ across the country. ‘Valuing People’ is the government’s plan to make better lives for people with learning disabilities and their carers. The government gave Learning Disability Partnership Boards the job of making ‘Valuing People’ happen. Our Partnership Board subgroups have written lots of plans about Valuing People. You can find out what these plans are on page 66. This plan says what we have to do next. It is about working together to make better lives for people with learning disabilities and their carers in Ealing. 9 Working together to make better lives The targets of the plan are: Choice and Control To make sure people with learning disabilities and their carers are being listened to and are getting more power and control over their lives. Better Lives To make sure people with learning disabilities are starting to have better lives and are part of their community. Making It Happen To make sure we have things in place to make Valuing People happen and that we have ways of finding out how people’s quality of life is improving. Getting Help from other Policies To make sure everyone is committed to change and that more and more local and government policies are saying the same things as Valuing People. 10 Working together to make better lives This plan is about celebrating how much we have done already. It says what we still have to do and it makes a promise that we will all work together to make better lives. This plan is a work in progress. We will write a report for the Partnership Board every year to say how we are doing. There will be a more detailed plan called the ‘Commissioning Strategy’. It will say how we will change services and how we will spend the money. For the very first time we have a plan that says what we are all going to do to make better lives for people with learning disabilities and their carers in Ealing. We need your help to make this plan happen. Tracey Brook (Commissioning Manager) 11 Cheryl Batt (Service Manager) Working together to make better lives Who is on the Partnership Board? Ealing Partnership Group There are 4 service users who represent the group at the meetings. Carers Action Group There are 4 carers that represent the group at meetings. Provider Forum Residential, supported living and day service providers. Voluntary Sector Staff from the different advocacy projects run from Ealing Mencap. Ealing Council Staff from Social Services, Housing, Education, Leisure and Environment. Ealing Primary Care Trust Staff from Provider Services and Commissioning and Performance. Further Education Staff from local colleges and the Learning and Skills Council. 12 Working together to make better lives 2 People with Learning Disabilities in Ealing What do we mean by ‘Learning Disability’? When we talk about ‘people with learning disabilities’ in this plan we mean people who have problems learning new skills and have difficulty coping independently. Many people with learning disabilities also have physical disabilities, sensory impairments or significant health needs. Some people may also have mental health needs or challenging behaviour. Our meaning of learning disability also includes people with autism who also have a learning disability. It does not include people with autism who have a higher level of intelligence. 13 Working together to make better lives People with learning disabilities have a right to use the same services as everyone else. This includes health, housing, education, employment, transport and leisure services. The Community Team for People with Learning Disabilities (CTPLD) assesses people for social care and health services. To be eligible for this service a person should have an IQ under 70. For social care services you must be a resident of Ealing and meet the Fair Access to Care criteria. For specialist health services you must be registered with a GP in Ealing and meet the Continuing Care criteria. We spend over £25 million a year on social care and health care for people with learning disabilities in Ealing. The voluntary sector also provides lots of support and advice to people with learning disabilities and their carers. 14 Working together to make better lives This is how many people we think there are … Valuing People says we should think that 5 out of 1000 people need specialist learning disability services. We think that there are 1,016 people with learning disabilities aged 18-64 who normally live in Ealing. We think there might be over 100 people with learning disabilities over the age of 65 who normally live in Ealing. Out of these people there are over 500 people with severe or profound learning disabilities (aged 18-64). These people will often need a lot of support with all areas of their lives. Out of these people there are about 46 people with severe challenging behaviour. These people will often need support to help them manage their behaviour. 15 Working together to make better lives This is what we know about people … There are 800 people known to our Community Team for People with Learning Disabilities. Just under half of these people are women. Just over half of these people are men. About half of the people we know about are from minority ethnic communities. This chart shows you the ethnicity of the people. 1% 3% 2% 13% 11% 6% 1% 19% 44% Black Caribbean White British Irish Pakistani Indian Afganisthan African Somalian Others 16 Working together to make better lives Where do people live? There are different housing options for people in Ealing. This table shows you where people live. Age 18-64 Supported Living Residential / Nursing Long Stay Hospital Other Hospital Setting Living unsupported * Living with family carer * Total * These numbers are estimates Age 65 + 10 35 0 0 15 40 100 127 246 0 9 26 608 1016 Most of the people we know about are living at home with a family carer. About 140 families get ‘short breaks’ from caring. There are 230 people who are living in residential or hospital services outside of Ealing. This is mainly because we do not have enough good services in Ealing. Some of these people like living outside of Ealing. 17 Working together to make better lives How many people will there be in the future? We think there will be about 11 more young people with learning disabilities every year who will need adult services. We think there will be about 5 young people with high support needs who will need adult services next year. We think this number will go up every year. We think there will be between 1 and 4 young people in transition to adulthood every year who will use our challenging behaviour service. 18 Working together to make better lives 3 What have we done since Valuing People? Things are beginning to change for people with learning disabilities. There are many good stories to tell in Ealing. 3.1 Choice and Control We have supported people to have more control over their own lives and for their voices to be heard. There is a speaking up club called Ealing Partners. They have 55 members. They have their own website and newsletter. There are more people getting a direct payment. This has gone up to 43 people in 2005. We have a Person Centred Planning Co-ordinator and a plan to make sure people have good quality plans. The Carers Action group speaks up at the Partnership Board about what carers in Ealing want. 19 Working together to make better lives Good news stories The Ealing Partnership Group is a speaking up group that is part of the Partnership Board. They meet every week to discuss the items on the agenda for the next meetings. A group of service users from Ealing Consortium wrote, performed and edited a DVD that helps people to understand their rights. The areas covered include housing, health and transport. The Ethnic Minority Access and Participation Project has done some good work to support people from minority ethnic communities to become involved in services. They run regular focus groups for carers and have consultation meetings on topics of interest such as health, housing and respite. 20 Working together to make better lives 3.2 Better Lives People want to have ordinary lives and want the chance to have the same things as everyone else. There are 11 people in shared or home ownership. This is a lot compared to the rest of the country. There are 41 people in paid jobs. 28 of these people work for Ealing Primary Care Trust, Ealing Council, Ealing Consortium and Ealing Mencap. We have the Planning Together project to support people living with older carers to make plans for the future. There are travel training projects for young people in transition and for people going to day services. There is an Out and About scheme that supports people who live on their own to make new friends. The OPTIONS project supports people to use the community and helps people work towards employment. 21 Working together to make better lives Good news stories My name is Amanda and I used to live with adult placement carers. When I did my person centred plan I decided I wanted my own place. It took a long time to move. I chose my own flat. It is shared ownership. It was scary when I got my first bill. It is exciting now because I can be independent and make decisions for myself. To start with I had a lot of support. My support worker only visits in the evening 5 days a week now. I can do my own cooking and washing. I have a job with Mencap. I am a Peer Advocate Support Worker and I work 14 hours a week. The best thing about my job is meeting lots of people and helping them to speak up for themselves. I also get a direct payment so I can choose what I do during the day. I go to IMPACT. In the future I would like to be a respite carer so I can help people just like people have helped me. 22 Working together to make better lives 3.3 Making It Happen We have the Partnership Board and many subgroups to help make Valuing People happen. The Valuing People subgroup leaders have had some training to help them become better champions. We review the Partnership Board every year and make an action plan to make it work better. The Learning Disabilities Development Fund was spent on projects for person centred planning, day services and advocacy. We have a new website for the Partnership Board so everyone can see what we are doing to make Valuing People happen. We have a Workforce Plan to make sure we employ good staff, train them well and keep them. We have a commissioning strategy. This is a plan that says how we are going to spend our money. There is also an update every year. 23 Working together to make better lives Good news stories We had lots of Learning Disabilities Development Fund in 2005-06 so we asked for ideas to help us make Valuing People happen. We funded lots of exciting projects such as: Person centred planning project for young people in transition Speaking up project for people in supported living, special care day services and respite DVD on person centred planning and workshops to raise awareness of learning disabilities Weekend breaks for people from minority ethnic communities ‘Multi media profiling’ – using video, computers and photos to help people tell others about themselves 24 Working together to make better lives 3.4 Help from other Policies Since Valuing People a lot has changed. It has had a big effect on other government policies. • ‘Independence, Well Being and Choice’ (2005) tells us what changes we have to make to adult services. • The ‘New Deal for Disabled People’ will help people get into paid work and support them to stay in work. • The ‘Children’s National Framework’ and ‘Every Child Matters’ say that young disabled people in transition should have a person centred plan. Valuing People has also had a big effect on some of our local policies. • The ‘Community Strategy’ (2003) says how the Local Strategic Partnership is going to make life better for people in Ealing. • The ‘Local Delivery Plan’ (2006) says we need to improve the health of people with learning disabilities and to implement Health Action Plans. • The ‘Ealing Supporting People Strategy 2005-2010’ says we need to have more housing and support for people with learning disabilities. 25 Working together to make better lives Targets for the Next 5 Years 4 Choice and Control 4.1 Nothing about us without us We need to make sure people are at the centre of everything that happens about them. We need to respect people’s rights and make sure people are being heard by local services. “Speaking up is going well. People are working well with us and they are coming to our group to talk to us about their reports” (Ealing partnership group) Things to be hopeful about ... We have more advocacy projects. The co-chair of the Partnership Board is a person with a learning disability. Most reports to the Partnership Board are in easy words and pictures. The challenges we have ... Not all services have information in easy words and pictures. Finding ways to include people with high support needs in speaking up. 26 Working together to make better lives What will we do in Ealing? Action 1 We will have an advocacy action plan. We will work with local voluntary groups to increase the amount of self-advocacy. Action 2 We will make sure there are advocates who have the skills to work with people with high support needs so they can be included in speaking up. Action 3 We will offer leadership courses to people who want to become selfadvocates. We have to tell the government … The amount of money spent of advocacy services for people with learning disabilities. In 2005/06 we spent £237,000. In 2006/07 we plan to spend £255,000. 27 Working together to make better lives 4.2 Making a reality of self directed services We have to give people control over their services if they are to have more control over their lives. We will help people have person centred plans and give them the choice to have a direct payment or individual budget. “Administering a direct payment is like having a full time job, there needs to be more support” (carer) Things to be hopeful about ... The council has promised to increase direct payments. There is support for people to manage their direct payment. There is training on person centred planning for service users and carers. The challenges we have ... There is little support for people who have no family to help them with their direct payment. Making individual budgets for people who don’t want a direct payment so they still have choice and control over their own services. 28 Working together to make better lives What is an individual budget? You tell social services what you really want. You will be told how much money there is for your services. You don’t have to handle the money if you don’t want. What will we do in Ealing? Action 4 We will have workshops for service users, carers and staff on person centred planning and we will monitor the quality of plans. Action 5 We will provide more information and support to people who choose to have a Direct Payment. Action 6 We will learn from the ‘In Control’ project and develop a plan to make individual budgets work. We have to tell the government … The number of people receiving a direct payment. In 2005/06 there were 43 people. 29 Working together to make better lives 4.3 A real partnership with families We need provide good support to family carers to help them carry out their caring role. “Services are not co-ordinated and the system does not work well. Carers expect services quickly to help them care but they take too long to set up.” (carer) Things to be hopeful about ... There is a Carers’ Centre and more services for carers than ever before. We are doing a review of respite. There is a promise from the council to offer all carers their own assessment. We have a project to support older carers to plan for the future. The challenges we have ... We need to make plans with all carers for when they can no longer care, not just older carers. Respite services are not flexible. We don’t have any services to support parents who have a learning disability. 30 Working together to make better lives What will we do in Ealing? Action 7 We will have a review of respite services. We will ask people what is needed and we will report back to the Partnership Board. Action 8 We will make sure there is wider range of services for carers and that there is support for carers of all ages to plan for the future. Action 9 We will find out about the needs of parents who have a learning disability. We will provide support for them to be good parents. We have to tell the government … The number of carers receiving breaks services and the number of carers receiving an assessment. In 2005/06 there were 140 families getting breaks. In 2005/06 142 carers had an assessment. 31 Working together to make better lives 4.4 Including everyone We need to make sure everyone is getting something from Valuing People, including people from minority ethnic communities, people with high support needs and challenging behaviour. “People who don’t speak English have difficulty accessing services, Ealing could employ carers to act as translators” (carer) Things to be hopeful about ... EMAPP is doing good work with people from minority ethnic communities. There is a multi media profiling project for people with high support needs. The challenging behaviour service does really well at supporting people in the community. The challenges we have ... People who don’t speak English have problems getting services. Not all minority ethnic groups have support. Making sure people with high support needs can get mainstream housing, employment, education and leisure. 32 Working together to make better lives What will we do in Ealing? Action 10 We will have a plan to make our services better for people from minority ethnic communities. Action 11 We will have a policy about ‘total communication’. It will make communication easier for people with high support needs. We will make sure the Partnership Board and providers sign up to the policy. Action 12 We will develop person centred approaches for people with high support needs and challenging behaviour. We will use multi media profiling and other tools. We have to tell the government … The number of people receiving services who are from minority ethnic groups. In 2005/06 there were 230 people. 33 Working together to make better lives 5 Better Lives 5.1 Dealing with people’s health inequalities The health of people with learning disabilities is worse than other people. We need to make sure people are getting support to lead a healthy life. “We need better support to be healthy like exercise classes and healthy eating” (service user) Things to be hopeful about ... There is a commitment from the PCT to improve the health of people with learning disabilities. There is a list of GP’s that have signed up to a scheme to make sure people have health checks. The challenges we have ... Not many people have health action plans. There are not enough health staff to make it all happen. We need to make sure GP’s are involved in health action plans. Making sure people are included in all health promotion services and plans. 34 Working together to make better lives What will we do in Ealing? Action 13 We will make sure people have a health action plan that has been started or checked by a primary care professional. Action 14 We will work with local health services to help them improve the experiences of people. We will ask people with learning disabilities to train health staff. Action 15 We will make sure people have access to health promotion such as healthy eating programmes. We will have to tell the government … The number of GP practices that have a system for identifying people with learning disabilities. The number of people with learning disabilities that have a health action plan and health check. We don’t have the numbers yet. 35 Working together to make better lives 5.2 Getting more people into paid work Work is very important to a lot of people. It gives people more money, more friends and helps people be part of their community. Jobs should be real and should be properly paid. “I didn’t get paid for working, it wasn’t fair” (service user) Things to be hopeful about ... The PCT employed disabilities. and the council have people with learning We have partnerships with the Job Centre and local businesses. We have an employment strategy. The challenges we have ... The welfare benefits system gets in the way of people getting into paid work. Getting mainstream employment services to develop projects to include people with learning disabilities. Getting jobs for people with high support needs. 36 Working together to make better lives What will we do in Ealing? Action 16 We will find more ways of getting people into paid work. We will follow examples of good practice around the country. Action 17 We will work with colleges and employment services to develop courses that lead to paid work. Action 18 We will grow our expertise so the benefits trap does not stop people having a chance at a real, paid job. We have to tell the government … The number of people with learning disabilities in paid work. In 2005/06 there were 41 people in paid work and 63 people in voluntary work. In 2006/07 there will be 60 people in paid work and 75 people in voluntary work. 37 Working together to make better lives 5.3 Making a reality of housing choice We need to make sure there are enough housing choices and there is good quality support for people. “There is a need for more housing options, people want to move into their own home” (carer) Things to be hopeful about ... The Housing Panel makes sure people’s needs are known to Housing. We have 5 places for older people in an extra care sheltered housing scheme that will open in 2007. The Commissioners in North West London won a bid for housing people with forensic needs and severe challenging behaviour. The challenges we have ... There is not enough social housing in Ealing for everyone who needs it. There is little floating support for people who are not eligible for social services. Social care for people with high support needs in ordinary housing is expensive. 38 Working together to make better lives What will we do in Ealing? Action 19 We will develop housing options for people living with older carers, older people and for people who don’t meet the Fair Access criteria. Action 20 We will make sure people with high support needs and people with challenging behaviour have ordinary housing choices. Action 21 We will support providers who want to change their services from care homes to supported living. We have to tell the government … The number of people helped to live at home. In 2005/06 there were 460 people. The number of people living in residential or nursing care. There were 199 people in 2005/06. 39 Working together to make better lives 5.4 Stopping people being sent away from their community We are still sending people away from Ealing because we don’t have enough good quality local services. “People should live closer to home, I like my son being in Ealing” (carer) Things to be hopeful about ... There are more people supported to live at home than before because we have more housing options. We are working with providers who want to develop local services to bring people back to Ealing. The challenges we have ... We need to change the culture of ‘placing’ people in existing services outside of Ealing. Monitoring services for people living far away from Ealing is very difficult. Making sure there are good local services to meet the needs of people with high support needs. 40 Working together to make better lives What will we do in Ealing? Action 22 We will use person centred plans to help us create good services. We will use information from people’s plans to shape our plans for future services. Action 23 We will develop local respite, community and housing options for people with challenging behaviour, mental health or forensic needs. Action 24 We will make sure we have a skilled and flexible workforce and lots of good providers so people have the choice to stay in Ealing. We have to tell the government … The number of people in assessment and treatment services after the end of their treatment. There were no people in 2005/06. 41 Working together to make better lives 5.5 Being part of the local community People with learning disabilities want the same life chances as everyone else. This includes being involved in community activities, going on holidays and having friendships and relationships. “I want to go out and see my friends. I want to have a boyfriend who can visit me at home” (service user) Things to be hopeful about ... There is a plan to modernise day services. There are some activities offered on weekends. There are lots of exciting projects running from day services that support people to access education, sports, leisure and community services. The challenges we have ... There are not enough opportunities for people to develop friendships and relationships in a safe way. A lot of people don’t have enough money for social activities and can’t afford to go on holiday. 42 Working together to make better lives What will we do in Ealing? Action 25 We will fight to make leisure services, sports centres, colleges and shopping centres accessible to people with mobility and personal care needs. Action 26 We will ask advocacy groups and providers to plan social events and we will have a travel buddy scheme to get people to and from places. Action 27 We will make sure people going to day centres have a plan that says what they want to do now and what they want to do in the future. 43 Working together to make better lives 5.6 Making the transition to adulthood a positive experience The transition into adulthood is difficult for many people. We need to make this transition as easy as possible. “It is really hard leaving school but my Connexions PA helps me” (service user) Things to be hopeful about ... We are working with everyone to make sure the transition process is improved. Person centred planning is seen as best practice for young people. There are transition workers at Mencap and in adults and children’s services. Connexions have staff working with young people with learning disabilities. The challenges we have ... Young people should have person centred plans from the age of 14 so we can plan services for the future. There are not enough courses for young people that lead to paid work. There are no local college courses for people with high support needs. 44 Working together to make better lives What will we do in Ealing? Action 28 We will make sure all young people in transition have a person centred plan and that this shapes our plan for services in the future. Action 29 We will make sure young people and their carers have easy to read information about their choices when they leave school. This will include education, work and housing. Action 30 We will form a ‘transition team’ of staff from adults, children’s and voluntary services. Someone from the team will be involved in person centred reviews at the age of 14. We have to tell the government … The percentage of young people who have a person centred plan. This was 41% in 2005/06. 45 Working together to make better lives 6 Making It Happen 6.1 Providing the right local support We need to keep up the pressure for change and make sure people with learning disabilities and their carers are high up on everyone’s agenda. “You need to advertise the vision and let people know about your progress and success” (provider) Things to be hopeful about ... We have a Partnership Board members’ pack so that everyone knows what their responsibility is. We have a workforce plan that says how we will support our staff to provide good services. The challenges we have ... There are not enough staff in the Community Team to meet the demand for services. Most people on the Partnership Board are not able to make decisions and can’t commit to change straight away. 46 Working together to make better lives What will we do in Ealing? Action 31 We will campaign to the government for more resources and support to deliver our vision. We will ask service users and carers to lead the campaign. Action 32 We will review the Community Team for People with Learning Disabilities. The review will look at the size of the team, the roles in the team, how it is organised and how it is managed. Action 33 We will set aside some ‘change funding’ to help find new ways of using big budgets. We have to tell the government … The amount of Learning Disabilities Development Fund we get and what we spend it on. In 2005/06 we had £285,000. 47 Working together to make better lives 6.2 Getting better at checking We need to have good systems in place to check if people’s lives are improving. We also need to check that we are meeting the targets set in Valuing People. “There needs to be better monitoring of services and we need to be confident you are checking” (carer) Things to be hopeful about ... The Partnership Board has action plans and reports that come to the board. We check on our providers and we visit local and out of borough services. The challenges we have ... We need to get better at the way we gather information, especially about the quality of people’s lives. We need to make sure services are person centred and that they don’t become trapped by too many rules. We need to involve service users and carers more in checking on services. 48 Working together to make better lives What will we do in Ealing? Action 34 We will work out a way to collect information that tells us more about people’s quality of life. Action 35 We will get better at our contract monitoring of providers. We will make sure people have person centred plans, health action plans and a good quality of life. Action 36 We will fill in the ‘person centred approaches’ checklist every year. This will tell us how well we are doing to make people’s lives better and to make our services better. 49 Working together to make better lives 7 Getting Help from other Policies 7.1 Getting society as a whole involved We need to make sure that people not involved in learning disability services are including people with learning disabilities in all of their policies. “Other organisations don’t understand the needs of adults with learning disabilities and their carers” (carer) Things to be hopeful about ... There is pressure on all public and private organisations to improve services for disabled people. We have a website for the Partnership Board so everyone can find out what we are doing. The challenges we have ... Valuing People is not a priority for all of our partner agencies. We need to make sure our partners come to Partnership Board meetings. We cannot make the changes alone. 50 Working together to make better lives What will we do in Ealing? Action 37 The Partnership Board will continue to work with partners to make sure all policies are easy to read and inclusive of people with learning disabilities. Action 38 The members of the Partnership Board will represent people with learning disabilities on other planning groups. Action 39 The Partnership Board will have committed members who own this plan. Members will come to meetings with ideas and resources to help us make this plan happen. 51 Working together to make better lives Nothing About Us Without Us What will we do? Who will lead? Who will help? How will we fund it? SS and PCT Grants LDDF We will make sure there are Ealing advocates who have the skills to work Partnership with people with high support needs Group so they can be included in speaking up. We will offer leadership courses to people who want to become selfadvocates. Ealing Partnership Group Lorna Duval SS and PCT Grants LDDF Mike Bloodworth LDDF VPST funding June 2006 June 2007 When will work start? Nov 2006 1 We will have an advocacy plan. We Ealing will work with local voluntary groups to Partnership increase the amount of self-advocacy. Group Tracey Brook EMAPP 2 3 66 Making a Reality of Self Directed Services What will we do? Who will lead? Who will help? How will we fund it? LDDF When will work start? June 2006 4 We will have workshops for service users, carers and staff on person centred planning and we will monitor the quality of plans. We will provide more information and support to people who choose to have a Direct Payment. Lee Hubbard Choice and Control Group CTPLD 5 Tracy Chilton (DP Team) Social Services Sept 2006 6 We will learn from the ‘In Control’ project and develop a plan to help make individual budgets work. David Cooper Tracey Brook LDDF Social Services Dec 2006 A Real Partnership with Families What will we do? Who will lead? Who will help? How will we fund it? Carers Grant When will work start? April 2006 7 We will have a review of respite services. We will ask people what is needed and we will report back to the Partnership Board. We will make sure there is a wider range of services for carers and that there is support for carers of all ages to plan for the future. We will find out about the needs of parents who have a learning disability. We will provide support for them to be good parents. Tracey Brook Carers Action Group Providers 8 Sylvia Robinson Anne Fryer CTPLD Carers Grant June 2007 9 Tracey Brook Marcella Phelan Carers Grant June 2007 Including Everyone What will we do? Who will lead? Who will help? How will we fund it? LDDF When will work start? June 2006 April 2006 10 We will have a plan to make our services better for people from minority ethnic communities. We will have a policy about ‘total communication’. It will make communication easier for people with high support needs. We will make sure the Partnership Board and providers sign up to the policy. We will develop person centred planning for people with high support needs and challenging behaviour. We will use multi media profiling and other tools. Ruhi Grover Lorna Duval Cheryl Batt Provider Forum 11 Social Services and PCT 12 Lee Hubbard Surinder Dhesi Tracey Brook Noreen Merideth LDDF April 2006 Dealing with People’s Health Inequalities What will we do? Who will lead? Who will help? How When will we will fund it? work start? PCT LDDF June 2006 13 We will make sure people have a health action plan that has been started or checked by a primary care professional. We will work with local health services to help them improve the experiences of people. We will ask people with learning disabilities to train health staff. We will make sure people have access to health promotion services such as healthy eating programmes. CTPLD Access to Health Worker CTPLD Access to Health Worker CTPLD Access to Health Worker Geoff C Cheryl Batt 14 Ealing Partnership Group SS and PCT grants April 2007 Geoff C 15 SS and PCT grants Sept 2006 Getting more People into Paid Work What will we do? Who will lead? Who will help? How will we fund it? ESF and grants When will work start? April 2006 16 We will find more ways of getting people into paid work. We will follow examples of good practice around the country. We will work with colleges and employment services to develop courses that lead to paid work. We will grow our expertise so the benefits trap does not stop people having a chance at a real, paid job. We will campaign to the government to make changes. Sue Graham Edith Simon, David Veale, Kiri Kiryaku 17 Linda Gooch WL college, LSC Job Centre funding Sept 2006 18 George Venus Sue Graham SS and PCT grants Sept 2006 Making a Reality of Housing Choice What will we do? Who will lead? Who will help? How will we fund it? Housing grants SP funding Capital grants, SP, SS and PCT SS and PCT revenue April 2007 When will work start? Oct 2006 19 We will develop housing options for Lorna people living with older carers, older Fleming people and for people who don’t meet LD Housing the Fair Access criteria. Officer We will make sure people with high support needs and people with challenging behaviour have ordinary housing choices. Lorna Fleming LD Housing Officer Tracey Brook Support People Tracey Brook Tracey Brook 20 21 We will support providers who want to change their services from care homes to supported living. Pierre C CTPLD June 2006 Stopping People being Sent away from their Community What will we do? Who will lead? Who will help? How will we fund it? LDDF When will work start? April 2007 22 We will use person centred plans to help us create good services. We will use information from people’s plans to shape our plans for future services. We will develop local respite, community and housing options for people with challenging behaviour, mental health or forensic needs. Tracey Brook Lee Hubbard CTPLD 23 Tracey Brook Cheryl Batt Patricia Bridgen LDDF capital grant, PCT revenue Training grants Jan 2007 24 We will make sure we have a skilled and flexible workforce and lots of good providers so people have the choice to stay in Ealing. David Veale Provider Forum Noreen Merideth Pierre C April 2006 Being Part of the Local Community What will we do? Who will lead? Who will help? How will we fund it? Capital grants When will work start? April 2007 25 We will fight to make leisure services, sports centres, colleges and shopping centres accessible to people with mobility and personal care needs. Health and Ealing Leisure Partnership Group Group, Providers Provider Forum 26 We will ask advocacy groups and Ealing providers to plan social events and we Partnership will have a travel buddy scheme to get Group people to and from places. Tracey Brook We will make sure people going to day centres have a plan that says what they want to do now and what they want to do in the future. Chris Jones Grant funding April 2007 27 Day Centres Lee Hubbard LDDF April 2006 Making the Transition to Adulthood a Positive Experience What will we do? Who will lead? Who will help? How When will we will fund it? work start? LDDF April 2007 28 We will make sure all young people in transition have a person centred plan and that this shapes our plan for services in the future. We will make sure young people and their carers have easy to read information about their choices when they leave school. This will include education, work and housing. We will form a “transition team” of staff from adults, children’s and voluntary services. The team will be involved in person centred reviews at age 14. Dorothy Duffy Lee Hubbard Sarah Mepham 29 Connexions Sarah Mepham Ann Fryer Grant funding Sept 2006 30 Judith Finlay MT Phung Dorothy Duffy David Cooper Adult SS, Children Trust June 2007 Providing the Right Local Support What will we do? Who will lead? Who will help? How will we fund it? SS and PCT grants When will work start? Oct 2006 31 We will campaign to the government for Service more resources and support to deliver Users and the vision. We will ask service users Carers and carers to lead the campaign. We will review the Community Team for People with Learning Disabilities. The review will look at the size of the team, the roles in the team, how it is organised and how it is managed. We will set aside some ‘change funding’ to help find new ways of using big budgets. Cheryl Batt Ealing Mencap 32 Tracey Brook Service Users and Carers Social Services and PCT Sept 2006 MT Phung Jo Murfitt 33 Tracey Brook Social Services and PCT LDDF April 2006 Getting Better at Checking What will we do? Who will lead? Who will help? How will we fund it? Commiss ioning, CTPLD, Grants Social Services and PCT When will work start? April 2008 34 We will work out a way to gather information that tells us more about people’s quality of life. Cheryl Batt Fahmida R Tracey Brook Patricia Brigden 35 We will get better at our contract monitoring of providers. We will make sure people have person centred plans, health action plans and a good quality of life. We will fill in the ‘person centred approaches’ checklist every year. This will tell us how well we are doing to make people’s lives better and to make our services better. Tracey Brook LD Commissioning Team Nigel Turner Chris Jones April 2007 36 Tracey Brook Existing funding Dec 2006 Getting Society as a Whole Involved What will we do? Who will lead? Who will help? How will we fund it? Existing funding from agencies Existing funding When will work start? Sept 2006 37 The Partnership Board will continue to work with partners to make sure all policies are easy to read and inclusive of people with learning disabilities. The members of the Partnership Board will represent people with learning disabilities on other planning groups. The Partnership Board will have committed members who own this plan. Members will come to meetings with ideas and resources to help us make this plan happen. Darra Singh Choice and Control Group David Colley 38 David Cooper June 2006 MT Phung Andrew T 39 All partners Statutory and voluntary agencies April 2006 Thanks Thank you to the service users, carers and providers who came to the consultation sessions in September 2005. They were well attended and very informative. Thank you to the members of the Learning Disabilities Partnership Board and everyone who has worked so hard to make sure that Valuing People happens. Thank you to the Valuing People champions. We would also like to thank Angela Cole for training us to become better champions. Thank you to Ola who did a very detailed report called “Learning Disabilities in Ealing: A focus”. This gave us lots of information on the people in Ealing and about the people we will need to plan for in the future. 66 Other Plans and Reports All of these plans are also available on the Learning Disability Partnership Board website www.openupealing.net Housing and Support Plan ‘Your Place to Live’ Tracey Brook, 020-8825 6876 brookt@ealing.gov.uk Employment Strategy Sue Graham, 020-8752 1907 grahams@ealing.gov.uk Transition Action Plan Sarah Mepham, 020-8567 9185 sarah.mepham@ealingmencap.org.uk Person Centred Planning Framework Lee Hubbard, 020-8825 5947 hubbardl@ealing.gov.uk Day Services Modernisation Plan Chris Jones, 020-8825 8906 jonesc@ealing.gov.uk Workforce Plan Noreen Merideth, 020-8993 6283 meridethn@ealing.gov.uk Integrated Commissioning Strategy (Adults) 2006-11 Tracey Brook, 020-8825 6876 brookt@ealing.gov.uk Fair Access to Care Criteria, Continuing Care Criteria CTPLD, 020-8566 2360 If you want to find out how get a copy of any other plans and reports we have talked about please contact Tracey Brook. If you need this information in your own language please tick one of the boxes below, fill in your name, address and telephone number and return it to the address below. Tracey Brook 4th floor SW Perceval House 14-16 Uxbridge Road Ealing W5 2HL