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									                    Mid-Ohio Chapter

                 Resource Guide

Produced by the Family Connections (outreach) Committee. We make every effort to keep
this document as up to date if possible. If you find any information is incorrect or outdated,
please notify JDRF at or (614) 464-2873.

As you read through this document, please understand that the volunteers coordinating this
manual, and JDRF, are not healthcare professionals and are unable to provide medical
advice, for which you should consult your doctor or other healthcare professionals. The
information, nor the way it is listed, is meant to be biased toward any medical professional,
service, etc.

Thank you!
                                                                       As of June 21, 2006
                            JDRF Mid-Ohio Chapter
                               Resource Guide

                               Table of Contents

1    Introduction                                       3

2    About JDRF                                        3

3    When Your Child is Diagnosed                      4

4    Ask a Volunteer                                   4

5    Medical Services in Mid-Ohio                      4

6    Endocrinologists in Mid-Ohio                      6

7    Diabetes Educators, Programs and Organizations    9

8    Other Specialists (child care, counseling,        13
9    Support Groups                                    14
10   Websites                                          15

11   Diabetes Camps                                    18

12   Travel Tips                                       20

13   Health Insurance/Government websites              24

14   Medical Supply & Prescription Assistance          25

15   School Issues                                     26

16   Athletics                                         32

17   Publications                                      32

18   Research Update                                   34

19   Mid-Ohio Chapter Information                      35

20   Membership Information                            37


The mission of the Juvenile Diabetes Research Foundation (JDRF) is to find a cure for diabetes
and its complications through the support of research.

The Mid-Ohio Chapter of JDRF is providing this information to inform you of resources
available, research initiatives and its activities to raise funds for research toward a cure for
diabetes. For the most up to date information in any of the following sections, you are advised to
consult the JDRF Mid-Ohio Chapter website ( or contact the chapter
at 614-464-2873 or In individual sections of this guide, specific web pages
relevant to the subject of interest are listed at the beginning of the section.


Please see section 19 or visit for specific information about the Mid-
Ohio Chapter.

JDRF began in 1970, when parents of children with type 1 (juvenile) diabetes founded the
organization to raise money and awareness for diabetes research. JDRF has a clear mission:
to find a cure for diabetes and its complications through the support of research. In a
typical year, more than 80 percent of JDRF‘s expenditures directly support research and
research-related education, making it the leading charitable funder and advocate of type 1
(juvenile) diabetes research worldwide. JDRF continually receives top rankings from the
American Institute of Philanthropy and other independent sources that rate charitable giving.

Since inception, JDRF has awarded more than $900 million to diabetes research, including
more than $98 million in FY2005. In FY2005, the Foundation funded 500 centers, grants and
fellowships in 19 countries. JDRF‘s business like approach for funding research includes taking
requests for funding year round, a unique lay review combined with scientific peer review
system, and accountability through reporting milestones.

Embedded in JDRF's mission are its three cure goals:
   Restoring normal blood sugar levels
   Preventing and reversing complications
   Preventing type 1 diabetes

JDRF leverages research funds by partnering with government agencies around the world. Its
focus is obtaining the best research, anywhere in the world in the quickest timetable.
Approximately 1/3 of the research is now outside the United States. JDRF helps scientists to
collaborate, communicate, and share information across research disciplines and across
traditional research lines. For more information on JDRF, please visit


This section is especially for parents of children with diabetes. A new diagnosis of type 1
(juvenile) diabetes can spark a range of reactions, including anger, sadness and guilt. Whatever
your feelings, they are normal and you are not alone. Life with diabetes poses challenges for
every member of the family. Whether you have diabetes yourself, or are the parent or loved
one of a person with diabetes, it takes time to adapt to the day-to-day demands of the disease.
But treatment options are improving all the time, and diabetes will not prevent you or your child
or loved one from living a full and active life. With medical and emotional support, children with
diabetes and their families will learn to cope with the demands that the disease imposes. A
child with diabetes, depending on age, will learn to take over much of his or her care. As time
goes by, everyone will gain knowledge and confidence, and be able to celebrate successes,
learn from mistakes, and move away from the intense feelings common after diagnosis.

Until there is a cure, we want to provide information that will help you cope with the burdens
diabetes imposes, take advantage of help that is available right now, and keep you and your
loved ones as strong and healthy as possible. The sections below contain some basic
information about diabetes and its management that is based, first and foremost, on input from
parents and children who have ―been there‖ as well as from physicians and diabetes educators.


      The Mid-Ohio Chapter keeps a list of JDRF volunteers (parents, siblings, spouse, adults
       and teens who have diabetes) who are available to talk with you about their experience
       in dealing with diabetes. Please contact the Mid-Ohio Chapter at 614-464-2873 or to be put in contact with one of the volunteers. We will do our best to
       match you with a volunteer who matches your specifications (age, area of town, etc.).

      JDRF also offers an Online Diabetes Support team made up of JDRF volunteers from
       around the country: adults and teens who have diabetes; parents, siblings, spouses,
       grandparents, and others.            To contact a member of the team, visit    and     submit    your      request.
       One of the team members will personally respond by e-mail within 48 hours. If you
       are UNDER 13, our team is unfortunately not able to respond to you directly, but you
       may have a parent contact us with questions


This information is provided to you strictly as a resource. JDRF does not evaluate or
recommend specific programs, corporations, organizations, institutions, or medical care

       Appalachian Rural Health Institute Diabetes Center @ The Ohio University College
       of Osteopathic Medicine
       Parks Hall (West Green)
       Athens, OH 56701
       (740) 593-2424

Central Ohio Pediatric Endocrinology and Diabetes Services (COPEDS)
6353 Presidential Gateway, Suite 120
Columbus, OH 43231
(614) 839-3040

Children’s Hospital
700 Children‘s Drive
Columbus, Ohio 43205-2696
(614) 722-2000

Doctors Hospital
5100 West Broad Street
Columbus, Ohio 43228
(614) 544-1000

Grant Medical Center
111 South Grant Avenue
Columbus, Ohio 43215
(614) 566-9000; scheduling (614) 566-1111

McConnell Heart Health Center
3773 Olentangy River Road
Columbus, Ohio 43214
(614) 566-5356

Mount Carmel West Hospital
793 West State Street
Columbus, Ohio 43222-1560
(614) 234-5000

Mount Carmel East
6001 East Broad Street
Columbus, Ohio 43213

Mount Carmel St. Ann’s
500 South Cleveland Avenue
Westerville, Ohio 43081

The Ohio State University Medical Center
University Hospital
410 West 10th Avenue
Columbus, Ohio 43210-1240

             (614) 293-8000

             Riverside Methodist Hospital
             3535 Olentangy River Road
             Columbus, Ohio 43214-3998
             (614) 566-5000; scheduling (614) 566-1111

     This information is provided to you strictly as a resource. JDRF does not evaluate or
     recommend specific programs, corporations, organizations, institutions, or medical care
     providers. Please visit to find a complete up to date listing of
     endocrinologists in your area.

                                  700 Children's Dr.      (614) 722-5125        Endocrinology/
Juan F. Sotos, MD                 Columbus, Ohio                                Metabolism
                                  43205                                         Pediatric Endocrinology

                                  700 Children's Dr.      (614) 722-4425        Endocrinology/
Monika Chaudhari, MD              Columbus, Ohio                                Metabolism
                                  43205                                         Pediatric Endocrinology

                                  700 Children's Dr.      (614) 722-4425        Endocrinology/
Robert P. Hoffman, MD             Columbus, Ohio                                Metabolism
                                  43205                                         Pediatric Endocrinology

                                  700 Children's Dr.      (614) 722-4425        Endocrinology/
Lawrence A. Wetterau, MD          Columbus, Ohio                                Metabolism
                                  43205                                         Pediatric Endocrinology

                                  700 Children's Dr.      (614) 722-4425        Endocrinology/
Sasigarn A. Bowden, MD            Columbus, Ohio                                Metabolism
                                  43205                                         Pediatric Endocrinology

                                  6353 Presidential       (614) 839-3040        Endocrinology/
William B. Zipf, MD               Gateway, Suite 120                            Metabolism
                                  Columbus, Ohio                                Pediatric Endocrinology
                                  43231                                         Diabetes
Rebecca Dorothy Jackson, MD       1581 Dodd Drive         (614) 292-3800        Metabolic Bone Disorders
                                  485 McCampbell                                Parathyroid Disorders
                                  Hall                                          Osteoporosis
                                  Columbus, Ohio
                                  N924 Doan Hall          (614) 293-8890        Adrenal Disorders
William B. Farrar, MD             410 West 10th                                 Cancer
                                  Avenue                                        Parathyroid Disorders
                                  Columbus, OH                                  Thyroid Dysfunction

James M. Falko, MD, FACC,     McConnell Heart      (614) 566-4248   Diabetes Mellitus
FACE                          Health Center                         General Endocrinology and
                              3773 Olentangy                        Metabolism
                              River Road                            Lipid Disorders
                              Columbus, Ohio                        Thyroid Dysfunction
Elizabeth Anne Diakoff, MD    1581 Dodd Drive      (614) 292-3800   Diabetes Mellitus
                              491 McCampbell
                              Columbus, OH

Ravi Dhawale, MD              1581 Dodd Drive      (614) 292-3800   Diabetes Mellitus
                              McCampbell Hall                       Obesity
                              Columbus, Ohio                        Nutrition
                              Community            (614) 566-5605   Diabetes Mellitus
Daryl A. Cottrell, MD, FACE   Medicine                              General Endocrinology and
                              500 Thomas Lane,                      Metabolism
                              Suite 2C
                              Columbus, Ohio

Elena A. Christofides, MD     72 West 3rd Avenue   (614) 453-9999   Adrenal Disorders
                              Columbus, Ohio                        Diabetes Mellitus
                              43201                                 General Endo/Metab.
                                                                    Lipid Disorders
                                                                    Parathyroid Disorders
                                                                    Pituitary Disorders
                                                                    Thyroid Dysfunction

                              441 McCampbell       (614) 292-5208   Diabetes Mellitus
Samuel Cataland, MD           Hall                                  General Endocrinology and
                              1581 Dodd Drive                       Metabolism
                              Columbus, Ohio
Angela Christine Bucci, DO    500 Thomas Lane,     (614) 457-7732   Adrenal Disorders
                              Suite 36                              Diabetes Mellitus
                              Columbus, Ohio                        Metabolic Bone Disorders
                              43214-1419                            Thyroid Dysfunction
                              500 East Main        (614) 233-9925   Diabetes Mellitus
John D. Blackman, MD, FACE    Street, Suite 100                     General Endocrinology and
                              Columbus, Ohio                        Metabolism
                              43215-5369                            Metabolic Bone Disorders
                                                                    Pituitary Disorders
                                                                    Thyroid Dysfunction
Romi Bhasin, MD, PhD          Central Ohio Endo.   (614) 684-9581   Diabetes Mellitus
                              LLC                                   General Endocrinology and
                              5969 East Broad                       Metabolism
                              Street, Suite 302                     Thyroid Dysfunction
                              Columbus, Ohio

Samuel R. Anderson, MD           500 Thomas Lane,       (614) 457-7732   Adrenal Disorders
                                 Suite 3G                                Diabetes Mellitus
                                 Columbus, Ohio                          General Endocrinology and
                                 43214                                   Metabolism
                                                                         Thyroid Dysfunction
Rebecca D. Jackson, MD           University Hospitals   (614) 292-3800   General Endocrinology
                                 James Cancer                            Osteoporosis
                                 Hospital                                Metabolic bone disease
                                 University Hospitals
Jennifer Taeko Rittenberry, MD   485 McCampbell         (614) 292-3800   Diabetes Mellitus
                                 Hall                                    Thyroid Dysfunction
                                 1581 Dodd Drive
                                 Columbus, Ohio

                                 941 Chatham Lane,      (614) 457-7746   Diabetes Mellitus
                                 Suite 206                               General Endocrinology and
Charles M. Katz, MD, FACE        Columbus, Ohio                          Metabolism

Raheela Ajmal Khawaja, MD        Ohio State             (614) 688-5878   Diabetes Mellitus
Ohio State University            University 491                          Pituitary Disorders
                                 McCampbell Hall                         Thyroid Dysfunction
                                 1581 Dodd Drive
                                 Columbus, Ohio

John N. Larrimer, MD             6020 Cranberry         (614) 868-9129   Cancer
                                 Court                                   Diabetes Mellitus
                                 Columbus, Ohio                          Thyroid Dysfunction
                                 43213                                   Osteoporosis

William Blair Malarkey, MD       Davis Medical          (614) 293-8775   General Endocrinology and
                                 Research                                Metabolism
                                 Building 2111-E                         Pituitary Disorders
                                 Columbus, Ohio

Manuel Tzagournis, MD            4335 Sawmill Road      (614) 442-1980   Diabetes Mellitus
                                 Columbus, Ohio                          Lipid Disorders

Raheela A. Khawaja, MD           University Hospitals   (614) 292-3800   General Endocrinology
                                 James Cancer

Lawrence S. Kirschner, MD,       University Hospitals   (614) 292-3800   Endocrine Tumors Pituitary
PhD                              James Cancer                            Tumors Thyroid Tumors Adrenal
                                 Hospital                                Tumors

Dara P. Schuster, MD             University Hospitals   (614) 292-3800   Diabetes and Glucose
                                 James Cancer                            Metabolism

Mortimer Dolman, MD              University Hospitals          (614) 471-9788       Diabetes and Metabolism
                                 East                                               Geriatric Medicine

Steven H. Lichtblau, MD          University Hospitals          (614) 527-2562       Endocrinology
                                                                                    General Internal Medicine

     This information is provided to you strictly as a resource. JDRF does not evaluate or
     recommend specific programs, corporations, organizations, institutions, or medical care
     providers.  A    list  of   up-to-date    Diabetes  Educators   can     be  found   via

     Diabetes Educators

Name                      Company/Employer              City                Zip          Phone

Brenda Ames               Medical And Surgical          Newark              43055         (740) 344-6901
Marti Andrews, PhD,       The Ohio State                Columbus            43210        (614) 688-8656
RD, LD                    University
Glenna J. Bell, RD, LD    Memorial Hospital Of          Marysville          43040         (937) 578-2442
                          Union County/Food &
Cherrie A Cherrington,    Mc Connel Heart Health        Columbus            43214         (614) 566-5143
RN CDE                    Center/clinic

Valerie J Christensen,    Va Opc Columbus Ohio          Columbus            43203         (614) 257-5684

Jane E. Collins, RN       Mount Carmel West             Columbus            43222         (614) 234-3823
BSN CDE                   Hospital
Denise Cooper, BSN        Marietta Memorial             Marietta            45750        (740) 568-5433
MSN CDE                   Hosp/Diabetes
Mary Dye, RN CDE                                        Washington          43160        (740) 333-2954
                                                        Court House
Jennifer L Dzwonczyk,     Riverside Methodist           Columbus            43214         (614) 566-5551
BSN                       Hospital
Patricia S. Graves, RN    Central OH Pediatric          Columbus            43231        (614) 839-3040
CPNP CDE                  Endo & DM Services

Cara Harris, CNP          The Ohio State                Columbus            43210        (614) 688-3818

Julia A Hitch, RN BSN     Mt Carmel Health              Columbus            43222        (614) 234-7114
CDE                       Systems

Teresa H Knicely, RN    Licking Memorial           Newark           43055       (740) 348-1834
CCM CDE                 Hospital/comm Case
Tracey Kubik, RD LD     Central Ohio Primary       Columbus         43214       (614) 459-0216 ext 204
                        Care Physician's Inc.
Jan E Martin, RD LD     Endocrinology Assoc        Columbus         43201        (614) 453-9999
CDE                     Inc

Gail M. Meddles, RN     Memorial Hospital Of       Marysville       43040       (937) 578-2280
                        Union Co/Diabetes Ed
Stacey L Newpoff, MS    Mc Connell Heart           Columbus         43214       (614) 566-3801
RD CDE                  Health Center/DM Self-
Allen Nichol, PharmD    Grandview Family           Columbus         43212       (614) 488-5996
Lynda                   Children‘s Hospital        Columbus         43205       (614) 722-6550

Beverly L. Pinkston,    Central Ohio Diabetes      Columbus         43201       (614) 884-4400
RN BSN CDE              Association

Audrey Scott, RD LD     Central Ohio Primary       Columbus         43214        (614) 459-0216 ext 202
CDE                     Care Physicians Inc/DM
Suzanna H Theodoras,     Ohio University / A R H   Athens           45701       (740) 593-2453
RN CDE                  I Diabetes Center

Wynola N Wayne, RN      Childrens Hospital         Columbus         43205        (614) 722-6217
BSN CDE                 Clinical Svcs &cc

Keirsten M. Welch, RD   Paramount Nutrition        Columbus                     (800) 631-3766
LD                      Therapy, Llc

     Education Programs

     Children’s Hospital
     Diabetes Medical Services in Mid Ohio
     (614) 722-4949Community Education
     Institute for Pediatric Education
     700 Children‘s Drive
     Columbus, Ohio 43205

     OSU Division of Endocrinology and Metabolism
     (614) 293-8000
     420 West 10th Ave
     Columbus, Ohio 43210
     Classes to people with (or family of) type 1 or type 2 diabetes
     For general information and newly diagnosed patients. Classes are also offered for: those using

insulin with an intensive schedule (three or more injections daily) and carbohydrate counting;
those beginning to use insulin or using an insulin delivery device; and those beginning to use an
insulin pump or needing review sessions.

Central Ohio Diabetes Association
(614) 884-4400
1100 Dennison Ave.
Columbus, Ohio 43201
Diabetes classes offer a comprehensive look at self-management techniques. A registered
nurse and dietitian, who are both certified diabetes educators, teach a series of four two-hour
classes. Classes include meal planning, medications, stress management and other diabetes-
related topics. Many insurance companies cover the fee. For persons on a limited income,
reduced fees are available on a sliding scale. No one will be denied services because of inability
to pay. Day and evening sessions are offered. To register for the class series and inquire about
fees, call Central Ohio Diabetes Association at (614) 884-4400 or 1-800-422-7946. Registration
is required and class size is limited.

Diabetes Services at the McConnell Heart Health Center
(614) 566-5356
3773 Olentangy River Road
Columbus, Ohio 43214
     Classes covering diabetes, ketone testing, insulin and oral medications, home blood
        sugar testing, meal planning, grocery shopping, eating out, hyper-hypoglycemia,
        exercise, foot care and travel.
     Setting personal behavior change goals with assistance from an educator; follow-up
        through individual appointment by phone and/or mail.
     Individual instruction on diet, home blood sugar monitoring and insulin administration.
     On-going continuing education and follow-up visits available.
     Up-to-date education materials, resources, films and visual aids.
     Education during pregnancy.
Classes are offered both daytime and evenings. Family members or significant others are
encouraged to attend classes at no additional charge. Classes are offered at the McConnell

Diabetes Self-Management Program at Mount Carmel
Several locations available. Please call: (614) 234-2628
A collection of classes, consultations and support groups about the demands of your disease
and put you in touch with the people who can help you manage it. The program gives you the
tools to control your diabetes - so it doesn't control you. In addition to offering education, the
Diabetes Self-Management Program introduces you to others who are dealing with the disease
and living well. Taking part in the program left them more in control of their illness and better
prepared to cope with the disease.
The American Diabetes Association has recognized the Diabetes Self-Management Program at
Mount Carmel for Quality Self-Management Education.

Applachian Rural Health Institute Diabetes Center Ohio University College of Osteopathic
011 Grosvenor Hall (West Green)
Athens, OH 45701
(740) 593-2453

National Kidney Foundation Central Ohio Chapter
(614) 481-4030
1373 Grandview Avenue
Columbus, Ohio 43212
    Printed materials
    Medical ID bracelets
    Summer camp

Life Care Alliance
(614) 278-3130
1699 West Mound Street
Columbus, Ohio 43223
     Call for location of individual centers
     Wellness centers to assess blood glucose, blood pressure and some nursing services
     Housekeeping services
     Home care, diabetes teaching

Bureau of Services for Visually Impaired
(614) 466-7730
3333 Indianola Avenue, Suite 402
Columbus, Ohio 43214-4192
    Vocational rehabilitation
    Adoptive training
    Restoration
    Vocational development for school age youth

Ohio Society to Prevent Blindness
(614) 464-2020
1500 W. Third Avenue, Suite 20
Columbus, Ohio 43212
    Free glaucoma and visual acuity screening
    Information and referral services

Vision Center
(614) 294-5571
1393 North High Street
Columbus, Ohio 43201
    Personal and work adjustment in activities of daily living with a vision deficit

Diabetes Organizations

Juvenile Diabetes Research Foundation
(614) 464-2873

134 A2 Northwoods Boulevard
Columbus, Ohio 43235
    Literature about research efforts, diabetes, care-giving, self-management, etc.
    Education
    Support groups and resources for children and parents

Central Ohio Diabetes Association
(614) 884-4400
1100 Dennison Avenue
Columbus, Ohio 43201
    Public education programs
    Adult support groups
One month free supply of strips and lancet once a year (for people in need)

American Diabetes Association
(614) 436-1917
937 High Street
Worthington, Ohio 43085
    Membership programs
    Equipment loans
    Emergency patient assistance


This information is provided to you strictly as a resource. JDRF does not evaluate or recommend specific
programs, corporations, organizations, institutions, or medical care providers.

Sitters Unlimited – have sitters identified who have experience with type 1 diabetes
Contact: Julie O‘Donnell at 614-799-9116

Anthony Alioto, PhD
Children‘s Hospital Psychology Department

Jolie Brams, PhD
Children‘s Hospital Guidance Centers Intake

Dan Davis, PhD

Marcia Huhn, MS, LPCC
Gerlach, Lear & Assoc., Inc.

Sawmill Family Counseling

Erin K. Torson, Ph.D.
Children's Hospital Behavioral Health

Susan Welner-Brunton, PhD

Mary McGregor
Pediatric Ophthalmology Assoc. Inc.


Columbus Area

    1. POLO (Parents of Little Ones) – bimonthly support/networking group with guest speakers.
       Parents, family and friends are encouraged to attend. POLO is not designed just for parents of
       young children; those with older children are encouraged to attend. Children are welcome.
       Contact: announcements are posted on JDRF chapter website (
       Calendar of Events, or contact the JDRF office at 614-464-2873 or to be added
       to the mailing list (email or hard copy).

    2. Mom’s Night Out – an opportunity for mom‘s to get together. Meets monthly at Columbus area
        restaurants. Contact: Kathy Feeley at; announcements posted on
        chapter website.

   3. Playgroups - North Columbus area coordinated by Megan Jaycox,
      also posted on the chapter website calendar of events.

   4. “Insulin Pumpers' Support Group” – meets monthly at Columbus area restaurants. This is an
       un-structured, friendly, stress free group of men and woman ages 20-50, who are using the pump,
       but everyone is welcome. It is a chance for people to swap ideas, new techniques or products,
       ask for suggestions or contacts, etc. Contact: If you have any questions or would like to be
       included in the email notification/reminder list, please email Kristen McMahon at or Cheryl Manbeck at

Mansfield Area
   1. MedCentral Mansfield Juvenile Diabetes Support Group – meets 3 Monday of the months
      throughout the school year (Sept. – Nov. and Jan. – May) at 335 Glessner Ave. (Mansfield) in the
      Patient Education Suite. Contact: Donna Dillinger, 419-526-8923.

Knox County Area

   1. Support Group – meets every other month during the school year at the Knox County Health
      Department, first Thursday of the month, 6:30 p.m. Contact: Lindsay Davis at

        JDRF website. Includes the latest news and breakthroughs in diabetes research, the
        activities of JDRF and ―Kids Online‖, a special site devoted to children
        with diabetes.
JDRF Kids Online. The website for kids with diabetes and their friends and family.
        Med Help - Juvenile Diabetes Forum. This extensive resource for consumer health
        information on the Web features a Juvenile Diabetes forum staffed by JDRF volunteers.
         The National Diabetes Information Clearinghouse (NDIC). A service of the National
         Institute of Diabetes and Digestive and Kidney Diseases (NIDDK). Established in 1978,
         the clearinghouse provides information about diabetes to people with diabetes and to
         their families, health care professionals, and the public.
         This dictionary from the NIDDK defines words that are often used when people talk or
         write about diabetes. It is designed for people who have diabetes and for their families
         and friends.
        The National Diabetes Education Program is a federally-sponsored initiative that
        involves public and private partners to improve the treatment and outcomes for people
        with diabetes, to promote early diagnosis, and to prevent the onset of diabetes.
        The Centers for Disease Control and Prevention (CDC), an agency of the Department of
        Health and Human Services, provides answers to frequently asked questions about
        Diabetes, along with information about prevention and treatment. serves as a total diabetes hub, featuring the latest information and exclusive
        content about both types 1 and 2 from many of the top experts in the world. Topics
        include diagnosis, research, lifestyle, and diabetes treatment and management
        An "online community" for kids, families, and adults with diabetes. Includes sample 504
        and IEP plans. -
        U.S. Food and Drug Administration website. The FDA regulates the medical products
        used to treat diabetes, including glucose meters, insulin pumps, diabetes medicines, and
        insulin. Its Web site is an excellent source for new products that have received FDA
        approval and other current information about diabetes care.

       "Monitoring diabetes happenings everywhere in cyberspace."
        Diabetes Research Wellness Foundation/Diabetes Wellness Letter website.
        Articles on treatment, diet and exercise, and lifestyle.
        Banting Digital Library website. History of discovery of insulin; links to U.S./international
        diabetes organizations.
        Insulin Pumpers. Provides information and support for adults and children with diabetes
        and their families interested in insulin pump therapy.
        American Association of Diabetes Educators (AADE) website. General diabetes
        information; find a diabetes educator.
        Diabetes Exercise and Sports Association (DESA) website. DESA exists to enhance the
        quality of life for people with diabetes through exercise and physical fitness.
        American Association of Clinical Endocrinologists (AACE) website. A professional
        medical organization devoted to the enhancement of the practice of clinical
        Diabetes Camping Association. Lists diabetes camps worldwide.
        The Ohio State University Medical Center has information on diabetes classes that are
        offered through the OSU Division of Endocrinology and Metabolism.
        Central Ohio Diabetes Association.
        American Diabetes Association website.
        Provides prescription medication for people who do not have adequate insurance
        coverage or are experiencing financial hardship- no toll free number but can be reached
        at (573) 966-7300.
      T.H.O.R. Foundation has a good up to date news section.
      For people who are interested in a Jewish diet and lifestyle while coping with diabetes.

      Commercial website for diabetes medical help.
      An online support website with a good teen chat room.
        American Dietetic Association
        The Ohio Dietetic Association‘s site provides food and nutrition information in Ohio.
        This site includes a variety of nutrition information and features specific nutrition
        information on a variety of foods.
        Canadian Diabetes Association
        Diabetes Interview
        Diabetes Life Network
        Health-related search engine.
        American Heart Association website has information on ways you can reduce your
        chance of heart disease and other complications of diabetes.
        Health Finder: English and Spanish health information.
        National Women‘s Health Information Center.
        The New York Online Access to Health features information in English and Spanish.
        The site has extensive diabetes information with links to many other diabetes related
        Type1Tools offers educational tools designed to simplify everyday tasks and build
        knowledge and confidence in children with type 1 and type 2 diabetes.
        This site specializes in type 2 diabetes.

       CDF's mission is dedicated to providing services and support regarding Celiac Disease
       and Dermititis Herpetiformis through programs of awareness, education, advocacy and

Below is a listing of camps for children with diabetes in Ohio.                       Please visit for a full listing of camps for children with diabetes worldwide.

Stepping Stones Camp
Central Ohio Diabetes Association
1100 Dennison Avenue
Columbus, Ohio 43201
1-800-422-7946 (in Ohio)
(614) 884-4400
(614) 884-4484 Fax
Introductory program designed for first-time campers and those recently diagnosed to assist in
learning more about themselves and diabetes. Stepping Stones is a three-day day camp with an
overnight campout. Located at Hoover Y-Park, 1570 Rohr Road, Lockbourne, Ohio, just south
of Columbus; 9:00 a.m. to 4:00 p.m.

Camp Hamwi Programs
Central Ohio Diabetes Association
1100 Denison Avenue
Columbus, Ohio 43201
1-800-422-7946 (in Ohio)
(614) 884-4400
(614) 884-4484 Fax
From beginners to more practiced individuals, Camp Hamwi offers a diverse program for any
skill level. The camp environment promotes a sense of team spirit and good sportsmanship in
individual and group activities, and competitive and non-competitive challenges. Campers are
encouraged to try new skills and explore their unique individual potentials. Activity options
include horseback riding, archery, volleyball, soccer, canoeing, swimming, arts and crafts,
drama, dance, outdoor living skills, nature crafts, and outdoor adventure. Incorporated into the
daily schedule are diabetes education sessions to increase campers' understanding of diabetes.
The program is specially designed to address the interests of a particular age group.

Trailblazers Week (ages 7 - 10)
Activities and programs are geared to entertain and encourage the youngest resident campers.
Hayrides, water games, a talent show and a treasure hunt are a few of the activities that make
this program full of wholesome fun and delight. Special programs highlighting the Trailblazer
week include a spectacular carnival celebration where everyone comes dressed in their zaniest
Explorers Program (ages 11 - 13)
A week of adventure created to inspire this energetic group of campers. Rafting along the
Mohican River or spending a day swimming, boating and tubing at the lake. Explorers are busy
with an exciting array of activities. Evenings find campers dressing up for a variety show or
preparing for a day of Olympic competition.

Senior Challenge (ages 14 - 17)
A more advanced program structured to challenge our oldest campers. Seniors are exposed to
rappelling, river canoeing, overnight camping, initiative games and much more. Senior campers
are privileged to invite a friend to attend Hamwi with them. Friends can use the application form,
checking the appropriate "Friend" box.
Counselors-In-Training (ages 17 - 18)
For individuals entering their senior year of high school and looking for an opportunity to
develop their leadership potential. No longer campers and not yet staff, C.I.T.s undergo a
comprehensive counselor training program designed to increase their awareness of counselor
responsibilities and leadership roles. To apply for this program, please contact the camp

Camp Ho Mita Koda
Camp Ho Mita Koda Administrative Offices
3601 S. Green Road, Suite 100
Cleveland, Ohio 44122
(216) 591-0800
Camp Ho Mita Koda's mission is to enable children to live well with diabetes through an
enjoyable camp experience.

Camp Ko-Man-She
Diabetes Association / Dayton Area - DADA
West Medical Plaza
1 Elizabeth Place, Suite 180
Dayton, Ohio 45408
Phone: (937) 220-6611
Fax: (937) 224-0240
Camp Ko-Man-She provides a safe, healthy and natural environment for your child's camping
adventure. Programs offered at camp have been well thought out and planned for maximum
stimulation and enjoyment. A goal of camp is to teach skills to your child that will help them
manage their own diabetes.

Diabetes Resident Camp
The Diabetes Youth Program
3100 W. Central Avenue, Suite 158
Toledo, Ohio 43606
(419) 578-1796
Robin Condon BSN, RN, CDE
The Diabetes Resident Camp is the only camp of its kind in northwest Ohio to offer a weeklong
outdoor adventure for pre-teen and teenage children with diabetes. Campers with diabetes are
welcome to share the week with friends or family members who may not have diabetes and
care about someone who does.

Summer Day Camp
The Diabetes Youth Program
3100 W. Central Avenue, Suite 158

Toledo, Ohio 43606
(419) 578-1796
Robin Condon BSN, RN, CDE
The Diabetes Educational Summer Day Camp provides specialized learning programs designed
for elementary school students with diabetes. In a fun-filled recreational setting, the camp offers
these children practical solutions to problems they confront daily because of their diabetes.

2005 Kids Day Camp
Hoover Y-Park, 1570 Rohr Road, Lockbourne, Ohio just south of Columbus; 9 a.m. to 3 p.m.
This three-day program, June 20-22, is for young children with diabetes, ages 3 to 7, to
participate in three days of outdoor fun, group games and diabetes education. Parents and
siblings are welcome. Cost is $85 per camper. Call the Central Ohio Diabetes Association at
614-884-4400 or 1-800-422-7946 to register.


Diabetes care needs continue, even if you are traveling. However, with a few simple precautions
and a little planning, you should be able to travel without any difficulty. When traveling, follow
the tips listed below:
      Carry a first aid kit with bandages, gauze pads and antibacterial soap.
      Wear diabetes identification. Travel with someone, if possible. Carry the telephone
        number of your doctor.
      Request a diabetic meal if you are flying. Most airlines do provide special meals with 24-
        hour notice.
      Follow your meal plan and try to eat on time.
      Carry a supply of food in case of delayed meals. Try small cans of juice, dried fruit,
        cheese, crackers, peanut butter, and glucose tablets. Maintain fluid intake (diet sodas,
        decaffeinated tea/coffee, water, etc.).
      Drink bottled water in countries where drinking water may be unsafe.
      Carry your medications and glucose meter with you if you are flying. Baggage can be
        lost during travel and temperatures not controlled in airline baggage compartments may
        affect your insulin.
      Bring extra medications in case you are delayed in returning home. You may need a
        prescription or letter from your doctor stating that you are on insulin if you are going
        through customs. Bring extra monitoring supplies.
      If changing time zones, you may need to change your medication schedule. Discuss this
        with your doctor.
      If traveling by car, do not store insulin in the car overnight or where it will freeze or
        become overheated.
      Carry a list of your medications in your wallet at all times. Include your drug allergies.
      Take medications to control vomiting or diarrhea, and bring antacids to counteract new
If you have type 1 diabetes, carry urine ketone strips to monitor your urine as needed.

Travel Tips
Whether you‘re planning short day trips or a voyage of several weeks, thinking ahead will
alleviate many problems, not to mention a lot of stress. Although diabetes requires extra work,

you will find that virtually any trip or event you have planned is do-able. So read on and prepare
to have a fabulous family vacation.

Put together a support team
Discuss vacation plans with your doctor and other diabetes care providers to work out a tailored
plan. Any change in activity can affect blood sugar levels. For big trips, added excitement may
cause lows, so you may want to consult your doctor for help with changing insulin dosages at
such times. Also, ask your doctor for a letter explaining your medical condition and treatment
needs, and get a prescription for insulin in case of an emergency. Make any special
accommodations for your child with diabetes well in advance of camp trips and other events.
Speak to camp counselors, coaches, relatives, friends, etc. ahead of time to be sure you and
your child will have enough support wherever you go. If you‘re not comfortable with the level of
support, change your plans.
Pack extra supplies of everything you use to treat diabetes, and pack them in more than one
bag, including a carry-on or purse. Make sure you wear your medical ID bracelet, or other
medical identification, and let friends or family members know your itinerary. You may also want
to make reservations at restaurants to avoid long waits, and ask if they can provide you with
nutritional information on their menu items.

Check blood sugar levels more often
In general, people with type 1 diabetes should check blood sugars at least six times a day as
part of their regular routine, and more whenever their schedule changes. Heat and excitement
are two factors that can significantly affect blood sugar levels. The more often you check blood
sugars, the more easily you‘ll be able to anticipate and avoid problems.

The insulin pump is becoming more and more popular, as it provides quite a bit of flexibility in
your routine while also eliminating the need for insulin injections. Kids are becoming ―pumpers‖
at very young ages and immediately after diagnosis as the technology improves and word
spreads. If you have a child with diabetes, ask your doctor if the pump is right for him or her
and, if possible, speak to other parents about their experiences with their children or teens on
the pump.

Beat the heat
People with diabetes may experience more low blood sugars in the heat, so take extra
precautions. Dehydration can be a serious problem, whether or not you have diabetes, so make
sure you carry water with you at all times, even when going to the beach or pool for the day.
Most experts recommend drinking at least eight 8-oz. glasses of water a day in order to avoid
problems, and even more if you‘re going to be very active.
Keep meters, test strips, and insulin out of direct sunlight and use insulated containers or ice
packs, but be sure insulin does not freeze.

Special considerations for amusement parks
If you are taking a child with diabetes to a major amusement park like Disney World, the first
thing you should do when you arrive is go to the guest relations office. Explain to the staff that
your child has diabetes and must eat, check blood sugars, and take insulin at specific times.
Some of them will give you a pass that will get your family in the handicapped line for most
rides, which will drastically cut the amount of time you will have to wait in lines. Bring a
backpack with snacks, juices, water, and all your diabetes supplies. You may also want to pack
meters and insulin pumps in waterproof bags so they don‘t get wet on water rides. If your child
is relatively young, you can also rent a stroller for the day and stash supplies in there—and
when he/she gets tired, he/she can rest in it, too. Many parents also suggest making

reservations for sit-down meals at amusement park restaurants before leaving for your trip.

Tips for Flying with Diabetes Supplies
If you are traveling by air, be sure you have the latest information about flying with diabetes
supplies. The information below is an excerpt from the guidelines for travelers with diabetes
provided by the Transportation Security Administration of the Department of Homeland Security.
Please note that JDRF is not responsible for the accuracy of this information. You may want to
print this page to take with you to the airport, as well as call your airline for additional
information. 1375.xml

Persons with Diabetes
    Notify the screener that you have diabetes and are carrying your supplies with you. The
      following diabetes-related supplies and equipment are allowed through the checkpoint
      once they have been screened:
            insulin and insulin loaded dispensing products (vials or box of individual vials, jet
              injectors, pens, infusers, and preloaded syringes);
            unlimited number of unused syringes when accompanied by insulin or other
              injectable medication;
            lancets, blood glucose meters, blood glucose meter test strips, alcohol swabs,
              meter-testing solutions;
            insulin pump and insulin pump supplies (cleaning agents, batteries, plastic
              tubing, infusion kits, catheters, and needles);
            Glucagon emergency kit;
            Urine ketone test strips;
            Unlimited number of used syringes when transported in sharps disposal
              container or other similar hard-surface container;
            Sharps disposal containers or similar hard-surface disposal container for storing
              used syringes and test strips.
    Insulin in any form or dispenser must be clearly identified.
    If you are concerned or uncomfortable about going through the walk-through metal
      detector with your insulin pump, notify the screener that you are wearing an insulin pump
      and would like a full-body pat-down and a visual inspection of your pump instead.
    Advise the screener that the insulin pump cannot be removed because it is inserted with
      a catheter (needle) under the skin.
    Insulin pumps and supplies must be accompanied by insulin.
    Advise screeners if you are experiencing low blood sugar and are in need of medical
    You have the option of requesting a visual inspection of your insulin and diabetes
      associated supplies.

If you encounter problems with the screening process, ask to speak with the TSA security
supervisor. You can report problems encountered while traveling by calling the TSA Consumer
Response Center toll free at 1-866-289-9673.

Below are some checklists to help you prepare for your trip:

What to pack for a:

One-Night Sleepover
   Pajamas
   Clean underwear
   Toothbrush and toothpaste
   Glucose tablets or other emergency sugar source
   Snack for low blood sugar
   Glucose meter and strips (check the supply before you go!)
   Insulin and syringes (again, check before you go!)
   A Glucagon emergency kit
   Emergency phone number easily accessible to your friends
   Your diabetes ID bracelet or card, with a note explaining what to do if you start acting

What to add for a:

Several-Day Camp Away
    Enough nonperishable snacks (granola bars, crackers) for each day
    Glucose meter and enough strips, insulin and syringes for each day
    A few bottles of water to help you stay hydrated
    Information about where to find medical care in the area

What to add for a:

Vacation of a Week or More
    A note from your doctor explaining how to contact him or her
    A copy of your prescriptions (including nondiabetes medications)
    Enough insulin and strips for the whole trip, plus extra for unforeseen situations
    Enough snacks to make up for a lost meal (fruit, crackers, string cheese, peanut butter
       and jelly, bread)

What to add for a:

Trip to a Foreign Country
     A prescription from your doctor in case of stomach upset or diarrhea
     A card that says "I have diabetes" in the language of your destination
     Enough phrases in the language to be able to order meals and get medical help

Traveling? Here's how to pack your insulin:

       Cushioned, such as between layers of clothing
       In an insulated container (like a thermos) that has been cooled first
       At a comfortable, cool temperature: not too hot or too cold
       In bags that you will carry with you (do not check at the airline counter or stick in a hot
     In more than one bag, in case you lose one.
Put your insulin in a refrigerator as soon as you have arrived at your destination. It may be
helpful to call ahead to arrange for refrigeration.


From the JDRF Life with Diabetes E-Newsletter (November 2005)
Ask a medical professional - Insurance Answers & Questions
By Kathy Spain, R.N., C.D.E., Mother of Will, age 10, diagnosed age 2

If you or a family member has recently been diagnosed with diabetes, chances are that meeting
the cost of diabetes medications and supplies such as insulin, meters, and test strips, and
finding good health coverage are significant concerns for you. You may wonder how your family
can afford health coverage or how you would go about finding health insurance for your child
with diabetes. Are large-ticket items such as pumps covered? What are the rights of a person
with diabetes when it comes to medical insurance? There are many resources to help you
answer your questions and to assist you in finding satisfactory coverage. If you have trouble
obtaining or keeping your insurance, there are resources to help you explore options.
Covering the Cost of Your Coverage
If you are concerned that you cannot cover the costs of diabetes care, a publication titled
―Financial Help for Diabetes Care‖ can help you learn about your options. Published by the
NIH‘s National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), this easy-to-
read guide offers an overview, with contact information, about resources such as Medicare,
Medicaid, and health insurance programs that cover diabetes-related medical expenses or low
or no-cost health care for people with diabetes. You can view this publication on the NIDDK
website at or order copies from the National
Diabetes Information Clearinghouse at 1-800-860-8747.

Laws to Protect You
An important insurance issue a person with diabetes may face is when a new insurer defines
diabetes as a ‗pre-existing condition‘ and excludes or limits diabetes-related care coverage.
There are laws that protect people with diabetes who encounter pre-existing condition
exclusions. For people with individual (as opposed to employer-sponsored or group) health
insurance coverage, 46 states now have laws requiring health insurance coverage to include
treatment for diabetes. (The exceptions are Alabama, Idaho, North Dakota and Ohio.) Laws
governing health coverage vary from state to state, and you will want to start with the healthcare
regulations and laws for your state. ―A Consumer Guide for Getting and Keeping Health
Insurance,‖ a resource published by the Institute for Health Care Research & Policy at
Georgetown University is available for each of the 50 states. It can be accessed online at For those insured through an employer-sponsored group health
plan, protection from coverage being denied to a person with diabetes is offered by the Health
Insurance Portability and Accountability Act of 1996 (HIPAA). The Act also helps workers who
change or lose jobs to maintain their health insurance. (The HIPAA provision, however, only
refers to group plans, such as employee health plans, and not individual health plans.) You can
read detailed information about HIPAA on the US Department of Health and Human Services
website at

Insurance Programs for Children
For children of families with limited financial resources, there are multiple programs available at
the state level. Medicaid is a state-administered program and each state sets its own guidelines
regarding eligibility and services. You can find information for your state at the Medicaid site for
consumer information at For families who
earn too much to qualify for Medicaid yet still find their resources too modest to cover their

children‘s diabetes care, the states operate a lowcost private insurance program called the
State Children‘s Health Insurance Program, or SCHIP. To find out more about this program
covering eligible children until the age of 19, go to the Insure Kids Now! Web site offered by the
US Health & Human Services Department:, or call 877-KIDS-NOW.


From the JDRF Life with Diabetes E-Newsletter (November 2005)
Ask a medical professional - Insurance Answers & Questions
By Kathy Spain, R.N., C.D.E., Mother of Will, age 10, diagnosed age 2

Help with Supplies and Prescriptions
Many drug companies offer pharmaceutical assistance programs to help offset the cost of
supplies or prescription medications for people with diabetes who have little or no insurance.
Enrollment in the programs requires a letter or application from your doctor. Listed below are
some of the companies offering patient assistance:

Aventis: 800-221-4025
Bayer Corporation: 800-998-9180
Bristol-Myers Squibb: 800-437-0994
Eli Lilly & Company: 800-545-6962
Novo Nordisk: 800-727-6500

In addition, the Partnership for Prescription Assistance offers a point of access to 275
assistance programs, including 150 programs through pharmaceutical companies that have
joined together to provide savings to the uninsured. To see if you qualify for any of these
programs, visit or call 1-888-477-2669. The Children with Diabetes Foundation
also offers diabetes supplies on a short-term basis for children with diabetes who are in
emergency situations in which their families are unable to obtain basic supplies for diabetes
care. You can find information on this program at:

Are Pumps and Pump Supplies Covered?
Last, but certainly not least, pumps can present a financial burden for families, with the devices
themselves costing on average $5,000 and basic supplies more than $100 a month. Insurance
companies vary in their coverage of pumps, but most insurance plans cover costs associated
with pump use. Pumps and supplies are usually included in the Durable Medical Equipment
(DME) component of major medical plans. Some plans have a deductible or co-pay, so ask your
health insurance carrier or check your benefits summary to find your level of coverage. The
major pump manufacturing companies have insurance experts who can verify your benefits and
out-of-pocket expenses when you consider the purchase of a pump. These manufacturers are
aware that their products are costly, and they often are able to work with potential customers
and/or their insurance companies to make them more affordable. Here is contact information for
several leading pump manufacturers:

Accu-Chek (Disetronic): 800-280-7801
Animas: 877-767-7373
CozMore (Deltec Cozmo): 800-826-9703
Medtronic MiniMed: 800-646-4633

As one further option, the Diabetes Trust Foundation (in partnership with Animas) provides
financial assistance through its Insulin Pump Program for Children, as well as assistance for
medications and testing supplies for individuals who qualify. For more information, visit their
web site at


Back to School Basics
Back to school season is an exciting time of year… especially for parents! But before you can
celebrate, chances are you have a lot of preparation and planning to get out of the way—
especially if you are the parent of a child with type 1 diabetes. Wondering where to begin? In
the links below (visit to access if you are using a hard
copy of the resource manual), you will find topics and strategies that parents of kids with Type 1
diabetes across the country consider important in making the school year a success. While
every child and school is unique, these guidelines should help you get started. In addition, JDRF
has a school information packet, available upon request (email, with further
information on managing diabetes in school.

#1: Do your homework
Before meeting with staff at your child‘s school — ideally, before the beginning of the school
year, although it‘s never too late—you‘ll need to get organized, and perhaps do some research
on your child‘s rights and Section 504 plans (see below for more information or click on the
links). Look through the new publication from the National Diabetes Education Program
(NDEP): Helping the Student with Diabetes Succeed: A Guide for School Personnel and
download or order copies for your child‘s school.

You should not assume that the school will know how to provide the best care for your child,
even if there are other students with diabetes in the school. As the parent, take the initiative to
educate your child‘s teachers, principal, school nurse, coaches, etc. about your child‘s specific
needs. Create and gather informational materials about your child and diabetes for school

#2: Meet with school staff
The most important thing to do is contact the school before classes start. Speak to the principal,
any teacher the child will have, the gym, P.E. or coaching staff, school nurse, and cafeteria
manager. This meeting is usually the best time to go over your proposed 504 plan or other
health plan, and distribute informational materials about your child and type 1 diabetes,
including warning signs for hypo- and hyperglycemia. The child may also be a part of this

#3: Develop your strategy
After you‘ve spoken with the school, you should have a clearer idea of what you need to do to
prepare your child for their day-to-day activities. Many parents prepare snack and supply
“kits” for the classroom teachers, school nurse, coaches, etc. Nancy Gaynor supplies syringes,
pump insertion sets, a glucose monitor, lancet needles, and snacks. ―I provide baggies of high
carb snacks already counted out. For example, 10 to 20 baggies with 15 Skittles per baggie,
which equals a 1 carb snack,‖ she says. ―And don't forget to include a glucagon kit.‖

Michelle Alswager, whose son Jesse, 6, has diabetes adds, ―Make sure the classroom teacher
also has a sheet with your child‘s picture on it with instructions for a substitute teacher. A
sub may not have a clue what diabetes is.‖

Your child may also want to prepare a presentation for the class in order to help the other
students understand what diabetes is. Stephanie Vasi, mom of Tyler, 11, says, ―We have found
that letting Tyler tell his story has been the best way for him to feel like he is in control. At the
beginning of the year we set a time with the teacher to come into the classroom and do—in
essence—a ‗show and tell.‘ We take everything that Tyler uses on a daily basis. The children
can ask Tyler questions and we have found that it lessens the resentment in the classroom
when Tyler gets more bathroom breaks and more trips to the water fountain. It has also helped
with the kids‘ awareness, so if Tyler starts acting weird they can go get help.‖

Other children with diabetes may not be comfortable with such attention from
classmates. Michelle Alswager explains, ―My son wants diabetes to be like brushing your
teeth…just one more thing that has to be done during the day, nothing more. He does not like
attention drawn to his pump and he appreciates the respect the kids give him in not talking
about it.‖

Develop a communication plan with the school, particularly for emergencies, but also for daily
issues and concerns. Make sure that all those responsible for your child know who to call, and
when, and that they have the appropriate contact numbers.

#4: Stay involved
An ongoing, open relationship between you, your child, and the school is vital to your child‘s well
being throughout the year. Do everything you can to create the best possible environment.

More Back to School Advice
Back to school time can be very stressful, particularly for families with children with diabetes.
Will your child be properly cared for? Who is prepared to respond in emergencies? Will your
child be able (and willing) to check blood sugar levels frequently enough? How will students,
teachers, and coaches view your child? The list of questions goes on and on. The best thing to
do to alleviate fears and ensure a successful school year is to get educated about diabetes in
school, and form a plan. No matter how alone you may feel in your plight, you're not—parents
across the country, if not in your very own school or district, are dealing with the same issues
you are, and can be a vital resource. In the links below, you'll find wisdom and advice from
some experts—parents and kids who have been dealing with diabetes in school for years. If you
still have questions after reading their suggestions, contact the Mid-Ohio Chapter Family
Connections Committee (via 614-464-2873 or or our Online Diabetes Support
Team with your specific concerns.

Make it a Team Effort: Building good relationships with your child's school personnel right from
the start, if possible, is important in making sure your child is well cared for. If you begin with a
positive, team-oriented approach, teachers and other school personnel will be more willing to
listen to your needs and work with you as the year goes on.

Educate the Educators: While your child's teachers probably know a great deal, they may not
necessarily know anything about diabetes. It's important to provide teachers and staff with at
least the basics of the disease, along with information about your child's regimen and needs.

Supplies, Supplies, Supplies: Many parents suggested providing snacks and extra supplies

for every classroom, as well as the nurse's office, to ensure that your child is safe and prepared,
especially for lows, while at school.

Know Your Rights: JDRF believes that all children with diabetes should be allowed to manage
their diabetes to the maximum extent possible in school—including being able to test blood
sugars and treat highs and lows wherever they are in the school. However, different schools
have different rules regarding diabetes care, so it is important that parents be aware of their
rights. A helpful resource can be found through

Taking Academic Tests: RN and diabetes educator Kathy Spain teaches the teachers at her
son's school how high and low blood sugars can affect cognitive function. "This is especially
important for the older kids," she says. "I encourage having kids check their blood sugars an
hour or so before a big test, since stress (i.e., test anxiety) can affect blood sugars."

Keep Learning: In addition to these great tips and advice from our experts, JDRF has a special
school packet—with brochures, a Warning Signs card, a Low Blood Sugar Emergencies card for
schools, a book list, and more. This kit is available upon request, by sending your name and
mailing address to

Your Child’s Rights
Relationships between schools, teachers, and the parents of children with Type 1 diabetes are
often as unique as the individuals themselves. While there are federal and, in some cases, state
laws protecting the rights of children with diabetes in school, such laws only provide general
guidelines and are enforced differently in different areas. At the beginning of each school year,
you will need to communicate with your child‘s principal, teacher, nurse, and any other adults
who will share responsibility for your child during the day, to come up with a plan to make sure
your child is well cared for throughout the year.

504 plans
By far the most important legal document you can have to protect your child‘s rights is a 504
plan. 504 plans are relatively easy to create (see examples by visiting or contacting the chapter office if you do not have
internet access), and are an invaluable tool for allowing your child the same access to
educational opportunities as their peers. 504 plans can be particularly useful in allowing special
accommodations for your child during standardized testing. 504 plans may be as detailed as
you like, and should clearly specify roles and instructions for the school personnel, as well as for
the parent/guardian, and the child.

Even with a 504 plan, however, problems may arise between you and the school. Should you
have a conflict, there are a number of things you can do to improve the situation. But first,
determine where the problem lies. Unfortunately, lack of awareness about diabetes is still a big
problem in some areas. Schools may not be well informed about Section 504, or what‘s covered
under it. Be sure to give them all the information they need to understand your child‘s special
needs and rights. Take the initiative, and be careful not to assume the school is being
uncooperative when the issue may be just a misunderstanding. Consider bringing a Certified
Diabetes Educator (CDE) or other diabetes expert to the school, if possible, to train the staff and
help them understand your child‘s needs.

JDRF volunteer and mom Julie Costakis strongly advocates a proactive approach after her own
experience with son Grant‘s kindergarten and first grade teachers. ―It is amazing what some

schools, nurses, and teachers will do to help their students with diabetes,‖ she says. Julie
approached Grant‘s kindergarten teacher last year at the beginning of the summer to explain
her son‘s case. The teacher agreed to meet with Grant privately during the summer in the
Costakis‘s home to learn about his diabetes care regimen and how his high and low blood
sugars affect his behavior. The first grade teacher did the same this year. Julie is very grateful
for such support and says, ―We shower these teachers with thanks for giving their time and

Handling Conflicts
On the other hand, there are a number of documented cases where the school will not
cooperate. One such case involved William Cross, whose daughter Katelyn has type 1 diabetes.
In 1996, Katelyn‘s school refused to agree with Katelyn‘s 504 plan request to check her blood
sugars and have snacks in the classroom, despite the fact that the plan was proposed by her
doctor at Yale University School of Medicine. As a result, Katelyn had to go to the nurse‘s office
and miss valuable class time every time she needed to check her blood sugar. After repeated
attempts at negotiation with the school for a better arrangement, William Cross finally filed a
lawsuit. In 1999, an acceptable agreement was reached, and today Katelyn (now at a different
school) has no difficulties with her diabetes plan at school.

Since most parents don‘t have the resources or desire to engage schools in long legal battles,
JDRF encourages using legal action only as a last resort. At the same time, however, it is
important that you don‘t allow yourself to be pressured into an agreement that compromises
your child‘s safety and well-being in any way. In other words, don‘t be afraid to ―make waves‖ if
necessary. The way a school ―has always done it‖ may not be the best way for your child.
Whenever possible, document things in writing—this offers protection for both you and the
school. You may also file a complaint with the U.S. Department of Education‘s Office for Civil
Rights in case of disputes.

Another option is to pursue state legislation to protect your child. A number of JDRF volunteers,
who are also parents of children with diabetes, have had success with this approach, and JDRF
fully supports such efforts on the local level. Currently, six states have their own laws
addressing diabetes management in schools: Montana, North Carolina, Tennessee, Virginia,
Washington State, and Wisconsin.

The Family Connections Outreach Committee can also be a resource for coming up with a
strategy for dealing with a school. Perhaps there are other parents in your area who share your
frustrations, or who have overcome similar ones, and can help you improve your situation.
Please contact the office at 614-464-2873 or for more information.

Remember that your goal is to establish a good long-term relationship with your child‘s school,
so try to be positive and communicate frequently with teachers, nurses, or other relevant staff.

Laws Protecting Children with Diabetes

The educational rights and interests of children with diabetes are protected by several federal
laws, and sometimes state laws as well:

• Section 504 of the Rehabilitation Act of 1973 states that no "otherwise qualified handicapped
individual" can be excluded from programs or activities receiving federal financial assistance
simply because of his or her disability. The handicap is defined as an impairment that
substantially limits one or more of such persons major life activities. "Programs or activities"

include all kinds of schools as well as social services like day care centers. The Act gives
parents of children with diabetes the right to develop, with the school's agreement, a plan to
accommodate any special needs as a result of the condition.

• The Americans with Disabilities Act (ADA), enacted in 1990, sets forth laws that essentially
mirror many of the requirements of the Rehabilitation Act of 1973.

• The Individuals with Disabilities Education Act (IDEA), a federal law passed in 1975, mandates
that all children "receive a free, appropriate public education regardless of the level or severity
of their disability." IDEA also provides funds to assist states in the education of students with
disabilities and requires that states make sure that these students receive an individualized
education program (IEP)—a written statement of the educational program designed to meet a
child‘s unique needs. A fundamental principle of the IEP is the right of parents to participate in
the educational decision-making process. You should be involved in the development of your
child's IEP, and the school is required to accommodate you regarding meeting times when you
may discuss and formulate the program.
In developing an IEP, you should work with your child's school toward the common objective of
fulfilling the student‘s educational goals, related services needed and the placement decision.
Do your best to educate school personnel about how diabetes affects your child and the steps
he or she must take to properly manage it. For a child with diabetes, particular needs might
include (1) permission to check blood glucose levels at any point during the day; (2) freedom to
immediately treat high or low glucose levels; (3) advance permission for extra trips to the
bathroom or water fountain; and (4) ensuring that staff members are present who are trained in
testing blood glucose levels, recognizing symptoms of high or low blood glucose and giving
immediate treatment for the conditions.

If you are dissatisfied with any aspect of the IEP and are unable to resolve the problem, you can
refuse to sign the IEP and, if necessary, pursue due process options guaranteed by the law.

Understanding 504 Plans
If you have a child with diabetes attending elementary through high school, JDRF highly
recommends that you set up a Section 504 plan. A 504 plan (named for Section 504 of the
Rehabilitation Act of 1973) is an agreement between the parent and the school, which gives
guidelines for your child's diabetes management in school. 504 plans are a legal right only in
schools that receive federal funding, however, students attending schools that do not take
federal monies are covered under the Americans with Disabilities Act or the Individuals with
Disabilities Education Act (IDEA), and can set up similar plans. 504 (and similar) plans can and
should be tailored to the individual child's age, abilities, and needs, making all aspects of your
child's life in school easier to handle.

How do I set up a 504 plan?
Parents should first identify their child to the school as qualifying for protection under the
Americans with Disabilities Act and Section 504, if the school has not done so already. That
identification requires the school to give special consideration to accommodate the student's
needs (diabetes is legally considered to be a disability).

What if my child's school is already cooperating without a 504?
Even if the school is cooperative without a 504, it is advisable to put one in place, to be
prepared should problems arise in the future.

Is there anything I need to do besides set up a 504 plan?
Yes. While 504 plans are very helpful, they are not foolproof. As the relationships among you,
your child, and school personnel develop, you will get a sense of how much you need to be
involved in your child's diabetes care at school.

What happens when my child goes off to college?
It is important for parents to be aware that things change a bit at the college level. At the
elementary and secondary levels, the school district is responsible for identifying, evaluating,
and providing the appropriate services. At the postsecondary level, on the other hand, colleges
have no responsibility to identify disabilities. It is the student's responsibility to make his or her
disability known and to request special accommodations. Once the student or parents have
done that, the college should be willing to fulfill the requirements of Section 504.

As parents, you may want to inquire about special accommodations while exploring colleges
with your teen in order to help guide their decision based on their specific needs. Once your
teen is accepted to the college and you begin the enrollment process, housing applications, etc.,
you can work with a disabilities coordinator to complete the necessary paperwork. If your teen is
living on campus, put in writing in your accommodation plan the need for nutritional data from
food services.

Regarding confidentiality: Most colleges will request that parents indicate on a special signed
form who needs to know about the student's disability. In most cases, the Dean of Students, the
accommodations coordinator, food services, the RA, and professors need to know. That form
does not give them consent to discuss your student's health issues with other parents, students,
or outside personnel who have no need to know why certain accommodations are being made.

JDRF Position Statement Regarding Diabetes Management in Schools (October 15, 2001)
The Juvenile Diabetes Research Foundation International (JDRF) believes that it is essential
that children with diabetes be able to monitor their blood glucose levels, eat food and administer
insulin when necessary, in order to manage — to the maximum extent possible — their
diabetes. Failure to do so could lead to life- threatening insulin shock and coma caused by low
glucose levels and long-term complications such as kidney failure, blindness, amputation, heart
disease and stroke exacerbated by high blood glucose levels.

Children with diabetes need to be able to test their blood glucose at school and apply whatever
means necessary to bring these levels to near normal quickly and with as few encumbrances as
possible. For some students this can be done independently; other students — who are younger
or who have less experience with the disease — need assistance from trained school
personnel. All students with diabetes need assistance from trained school personnel in the case
of medical emergencies. These trained personnel need not be medical professionals.

Accordingly, JDRF fully supports efforts to enact state legislation to ensure that students with
diabetes are medically safe at school and have the same access to educational opportunities as
do other children. This includes making sure that there are trained adults available to assist
students with diabetes as needed during school hours, extracurricular activities and field trips;
that students have access to blood glucose testing; that medications, including insulin and
glucagon, are available at school; and that students who are able to do so are allowed to test
their blood glucose levels in the classroom or anywhere else that the student happens to be,
and to administer corrective measures immediately.


The issue of diabetes and athletics is an important one, as children with diabetes are
encouraged to pursue the same activities as other kids in spite of their diabetes. JDRF has
focused on this issue a number of times in Countdown for Kids Magazine. The profile of a
number of athletes with type 1 diabetes can be found on the JDRF Kids Website: These profiles include tips about training and the special needs of
athletes with diabetes. The JDRF Kids Website also contains a section on exercise:

For information to give to coaches or gym instructors, the packet that is given to teachers and
school staff is appropriate. You can also receive information form the Diabetes Exercise and
Sports Association: You might also consult The Diabetes
Sports & Exercise Book, by Claudia Graham, June Bierman and Barbara Toohey (see
publications below).


Mid-Ohio Chapter E-Newsletter
The Mid-Ohio Chapter provides a monthly e-newsletter with local information, family highlights,
research updates, legislative information and more. To be added to the monthly E-Newsletter
mailing list or to make suggestions for future issues, please email

A quarterly 4 page publication that includes local and international JDRF information. To be
added to the mailing list, please contact Jean Jones at

Life With Diabetes E-Newsletter
JDRF's Life with Diabetes e-mail newsletter is published eight times a year to provide
information and support for families with a recent diagnosis of type 1 diabetes. The newsletter is
available in HTML format, with links to additional information and a printer-friendly Adobe
Acrobat version. Subscribe by sending an e-mail to Please include
"Subscribe Life with Diabetes e-mail newsletter" in the subject line.

Countdown Magazine
In-depth analysis of cutting-edge diabetes research and treatments, profiles and more.

Countdown for Kids
The first magazine especially for kids with diabetes; information, fun, role models, pen pals.

Research E-Newsletter
Published monthly to provide all those interested with the latest information about research on
type 1 diabetes and its complications.


Even Little Kids Get Diabetes
Ages: 2–6
By Connie White Pirner
Illustrated by Nadine Bernard Westcott

Rufus Comes Home Rufus, The Bear with Diabetes
Ages: 3-10
By Kim Gosselin

The Best Year of My Life Book 1: Getting Diabetes
Ages 4–10
By Jed Block

Matthew Takes His Shot
Ages: 4–10
By Owen Coleman
Illustrated by Judy Bullock

Taking Diabetes to School
Ages: 6–11
By Kim Gosselin

Everyone Likes to Eat: How Children Can Eat Most of the Foods They Enjoy and Still
Take Care of Their Diabetes
Ages: 6–14
By Hugo J. Holleroth, Ed.D. and Debra Kaplan, R.D., M.S. with Anna Maria Bertorelli, M.B.A.,
R.D., C.D.E.

It’s Time to Learn about Diabetes
Ages: 7–11
By Jean Betschart, M.S.N., R.N., C.D.E.

Sugar Was My Best Food: Diabetes and Me
Ages: 8–13
By Carol Antoinette Peacock, Adair Gregory and Kyle Carney Gregory;
Illustrated by Mary Jones

Diabetes at 14: Choosing Tighter Control for an Active Life
Ages: 12–17
By Bill Melluish
Illustrated by Paul Bourgeois

In Control: A Guide for Teens with Diabetes
Ages: 12–18
By Jean Betschart, M.S.N., R.N., C.D.E. and Susan Thom, R.D., L.D., C.D.E.

Sarah and Puffle: A Story for Children About Diabetes
By Linnea Mulder
Illustrated by Joanne H. Friar

The Diabetic Athlete
By Sheri Colberg, Ph.D.

Parenting a Child with Diabetes, Second Edition
By Gloria Loring

Diabetic Low-Fat & No-Fat Meals in Minutes!
By M.J. Smith, R.D.
Real Life Parenting of Kids with Diabetes
By Virginia Nasmyth Loy

Living with Juvenile Diabetes: A Practical Guide for Parents and Caregivers
By Victoria Peurrung

Guide to Raising a Child with Diabetes, Second Edition
By Linda M. Siminerio, R.N., Ph.D., C.D.E. and Jean Betschart, M.N., M.S.N., C.P.N.P., C.D.E.

The Ten Keys to Helping Your Child Grow Up with Diabetes, Second Edition
By Tim Wysocki, Ph.D.

Growing Up With Diabetes
By Alicia McAuliffe

Diabetes Care for Babies, Toddlers, and Preschoolers
By Jean Betschart, C.R.N.P., C.D.E.

Everyday Law for Individuals with Disabilities
By Ruth Colker and Adam Milani


Since diabetes research is such a rapidly changing area, please refer to: A sampling of articles recently posted follows:

Islet Transplants Found to Improve Cardiovascular Function
Type 1 diabetic patients with end-stage renal disease receiving a kidney transplant showed
improved cardiovascular function when they received a subsequent islet transplant, Italian
researchers found.
JUL 20 05

Researchers Prompt Human Adult Liver Cells to Produce Insulin
Results of a recent study by JDRF-funded researchers in Israel offer patients new hope of

regaining control of blood sugar levels by having their liver cells reprogrammed to secrete
JUN 8 05

Drug Preserves Beta Cell Function in Type 1 Diabetes Patients
In a major finding, a JDRF-funded human clinical trial in Europe has shown that treating newly
diagnosed type 1 diabetes patients with a drug called an anti-CD3 antibody can preserve
residual beta cell function for up to 18 months.
JUNE 22 05

Tight Glucose Control Reduces Heart and Kidney Disease
Recent studies have found further evidence that intensive insulin therapy, or tight glucose
control, can significantly lower the risk of two life-threatening diabetes complications — heart
disease and kidney disease.
JUL 13 05


134 A-2 Northwoods Blvd.
Columbus, OH 43235
Phone: 614-464-2873
Fax: 614-464-2877


The Mid-Ohio Chapter serves 27 Ohio counties around Columbus. They are: Athens,
Coshocton, Crawford, Delaware, Fairfield, Fayette, Franklin, Guernsey, Hardin, Hocking, Knox,
Licking, Madison, Marion, Meigs, Morgan, Morrow, Muskingum, Noble, Perry, Pickaway, Pike,
Richland, Ross, Union, Vinton and Washington.


The Mid-Ohio Chapter is staffed by an Executive Director, Staci Perkins (,
Special Events Coordinators, Pat Alcorn ( and Melissa Salamony-Fulling
( and an Administrative Assistant, Jean Jones ( Support for
activities comes from volunteers dedicated to finding a cure for diabetes. Additional volunteers
are recruited as needed for special events. A Board of Directors elected by the Mid-Ohio JDRF
membership makes policy and oversees strategic development, financial matters and
fundraising activities for our chapter.

Besides the outreach efforts provided by the Family Connections Outreach Committee, the Mid-
Ohio Chapter focuses on the following fundraising events and activities:

Walk to Cure Diabetes
The Mid-Ohio Chapter took its first fundraising steps at a Walk in September 1994.
Contributions made through our first Walk totaled over $25,000. Thanks to the increasing
generosity and commitment of corporate sponsors, family teams and volunteers, gifts made
through Mid-Ohio's fall 2005 Walk raised $720,000. Nationally, JDRF received more than $81
million in contributions through Walks last fiscal year.

Fund a Cure Gala
Our annual Fund a Cure Gala began in 1998 and is held every spring. The Gala is a wonderful
evening of silent auctions, live auctions, entertainment and excellent cuisine. Through corporate
table sponsorships, individual ticket sales and generous bidding on must-have auction items,
Gala revenues have grown from $85,000 in 1999 to almost $500,000 in 2006. Next year‘s Fund
a Cure Gala is scheduled for Saturday, April 2`, 2007.

Other Fundraising Activities
Major Gifts, Planned Giving (e.g. wills, estate planning), Combined Appeal Campaigns
(employees giving through Community Health Charities, United Way, etc.), Memorials and
Tributes, Third Party Fundraisers (gifts received from non-JDRF hosted events), Miscellaneous
(e.g. contributions from individuals and organizations, grants, sale of merchandise, etc.).

Calender of Events
Below is a listing of events occurring throughout the year. Please call 614-464-2873 or email for more information on any of these events. A complete calendar can be
found on the Mid-Ohio Chapter website,

       POLO (Parents of Little Ones) – Meets bi-monthly. Please note this is not designed
       just for parents of young children.

       Mom’s Night Out – Meets monthly and various locations throughout Columbus.

       Fund a Cure Gala – April 21, 2007 at Hyatt Regency, downtown Columbus. Please
       contact the JDRF office at 614- 464-2873 for more information regarding sponsoring,
       attending and volunteering for the event.

       Walk to Cure Diabetes – October 1, 2006 at The Ohio State University. Please contact
       the JDRF office at (614) 464-2873 regarding this event including sponsorship
       opportunities and volunteer participation.

       Ride to Cure Diabetes – various dates and locations throughout the year
       For more information about participating or sponsoring a rider, please contact Pat Alcorn

       Holiday Parties and other Youth Events co-hosted by CODA and JDRF.

       Diabetes Awareness Month (November)

Volunteer Opportunities:
At the Mid-Ohio Chapter, we have a host of volunteer opportunities available for many ages,
abilities and time allowances. Below are several upcoming volunteer needs. Please contact us
at 614-464-2873 or by email at for more information and to discuss your
specific volunteer interests. .

      Walk to Cure Diabetes, October 1, 2006 - We are in need of volunteers to serve in
       both long (planning committee and family and corporate committees; office help prior to
       and after the Walk) and short-term capacities (day of volunteer needs including
       registration volunteers, set-up, food and beverage distribution, etc.).
      9th Annual Fund a Cure Gala, April 21, 2007 – Please contact the office for more
       information about volunteering in advance of the event (committee involvement and
       office help) and the night of (registration, auction, set-up, clean-up, etc.).
      Youth Ambassador - JDRF Youth Ambassadors are children with juvenile diabetes
       who are matched with Corporate Walk Teams, Ride to Cure Diabetes Riders, etc. to put
       a face on juvenile diabetes that is close to home and help them understand the everyday
       challenges of living with diabetes. Their stories of living with diabetes will move anyone
       to fundraise, complete a 100 mile bike ride, etc. A Youth Ambassador may be asked to
       participate in an internal kickoff and other Walk related events, write an article for a
       company newsletter about juvenile diabetes, display their picture on internal recruitment
       materials, serve as a spokesperson, cheer on a Ride participant through letters and
       email, send a Rider decorated equipment to remember the child during the Ride. etc.
      Government Relations - JDRF partners with the federal government to implement
       research funding increases, policy changes, and research freedom to find a cure for
       juvenile diabetes and its complications. By focusing efforts on a core plan of legislative

       goals, JDRF Government Relations staff, volunteers, and grassroots advocates work to
       accelerate research toward a cure. Two signature campaigns are Children's Congress
       and the Promise to Remember Me Campaign. Lori Payne, Board Government Relations
       Chair, heads up the Mid-Ohio Chapter's efforts.
      General Office Work - We periodically have general office work needs that may be
       done at our office or at home. This is a great opportunity for students needing to fulfill
       community service hours.
      Committee Involvement - Contact the office for current committee needs.
      Third Party Events - Contact the office to discuss hosting a third party event to help
       raise money to advance our mission.


Your support of JDRF is greatly appreciated. By becoming a Member of JDRF you are helping
to find a cure for diabetes and its complications. We hope you'll take the time to find out more
about JDRF-funded diabetes research by visiting the research portion of our web site,

JDRF is an accredited 501(c)(3) nonprofit agency; all donations (including membership
donations) are tax deductible. You can become a member by visiting or by calling 1-800-223-1138. A receipt will be
provided. Additionally, donations of $250 or more will receive a letter of acknowledgment.

Benefits of Membership
A JDRF Membership is accompanied by a one-year subscription to Countdown Magazine and
its accompanying Countdown For Kids.


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