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A Publication of the Northern California Chapter
Vol.40 | No.2 | WINTER 2007
Introducing… Mark
TAKE STEPS Your
for Crohn’s and Colitis!
The walk to cure Crohn’s and colitis has changed its name, not its goal. Calendars
Building on the success of our Guts & Glory to be with us – better therapies and
walks, we are proud to introduce our newest prevention are only a few steps away!
CCFA event: Take Steps for Crohn’s and
Colitis! Take Steps is the largest walk for
RegisteR today at
digestive diseases in the nation and will be held www.cctakesteps.org/chapter/ncal
in May and June of 2008. Take Steps is an
evening 3K fundraising walk with a community Take Steps Silicon Valley
festival featuring music, food and fun! Saturday, May 10, 2008
De Anza College, Cupertino
The walk’s motto is “Take Steps, Be Heard!”
and participants will do just that - make noise
and create awareness in our community about Take Steps San Francisco
the impact of digestive diseases on millions of Saturday, June 7, 2008
Americans. Join us as we TAKE STEPS toward Justin Herman Plaza
finding a cure for IBD!
Meeting the Challenge
One Mile at a Time Announcing our second
Inaugural Team Challenge participants are ready for the race! Team Challenge event…
On October 14th, 36 Northern California Team Challenge The Napa to Sonoma
participants crossed the finish line at the San Jose Rock ‘N’ Roll Wine Country
Half Marathon, bringing the inaugural season of Team Challenge -
Crohn’s and Colitis to a close. Each participant ran Half Marathon
or walked a half marathon (13.1 miles) and raised on Sunday, July 20, 2008!
at least $1,500 to support CCFA’s mission. By the
time they crossed the finish line, they had made Don’t miss an incredible opportunity
new friends, gotten in better shape, gained confi- to have a great time and raise funds to
dence, and completed an entire half marathon! Missy Globerman, improve the lives of millions! For more
Crohn’s patient and Team information, please attend an upcoming
Challenge Superstar
Most importantly, Team Challenge participants Team Challenge information meeting
helped those who suffer from Crohn’s disease and ulcerative colitis. (see back cover for dates).
Chandara Phanachone
Our team raised over $80,000 and the entire program raised more than
$180,000 to support research to find a cure for Crohn’s and colitis and
completes her first
half marathon! fund programs for those who suffer from these diseases.
To learn more, please visit
www.ccteamchallenge.org
Thank you to our Finish Line sponsors: or call 415-356-2234.
Attune Foods, Posh Bagels, Safeway and Trader Joe’s!
Words from Tamara Block, Executive Director
I want to thank all of our supporters for making our 2007 year the most successful in our Chapter’s history. Your
generosity helped us to raise over $1 million, which supports our education programs and allowed us to substantially
increase our research funding for 2007. Thanks to you, leading IBD specialists believe we are closer than ever to better
treatments and a cure. I hope this holiday season you will consider
supporting our work to the greatest extent you can; the quality of
life of millions depends on your support. 2007-2008 Chapter Community
Medical Advisory Committee
Thank you for also helping us make our 2007 Guts & Glory Walk (CMAC) Members
Tamara Block our biggest yet; we raised over $160,000 toward our mission. A
heartfelt thanks also to our first 36 Team Challenge participants. (See the list of teammates CMAC Chair: Madhulika G. Varma, MD
Co-Director, Inflammatory Bowel Disease
below). We hope you will join us as a teammate at our next Team Challenge program on July
Center, University of California, San
20th at the Napa to Sonoma Half Marathon. Francisco Medical Center
While we are working hard to find the cure, the Foundation is here to help. This fall, we Assistant Professor, Department of Surgery,
launched two new programs: the Kids Club and Buddy Connection. In addition, our newly University of California, San Francisco
launched Information Resource Center (1-888-MY-GUT-PAIN) has responded to over 8,625 Oren Abramson, MD
inquiries and is serving over 550% more patients and family members than last year. We hope Pediatric Gastroenterologist
that if you are in need of support or information, you feel welcome to reach out to our trained Permanente Medical Group
professionals at the IRC. Jeffrey M. Aron, MD
Thank you for continuing to generously support us in our quest to end the suffering caused by Director of the Center for Inflammatory
Crohn’s disease and ulcerative colitis. Bowel Disease and Attending Physician
California Pacific Medical Center
Wishing you and your family a very healthy and happy New Year.
Richard M. Auld Jr., MD
All the best, Gastroenterologist
Gastroenterology Associates of Santa Rosa
Tamara Block Rohini V. Bhatia, MD
Gastroenterologist
Permanente Medical Group
Thank you and congratulations to the following
Inaugural Team Challenge Participants! Abby Caplin, MD, MA
Mind-Body Medicine and Counseling
Leadership
San Francisco
Richard W. Hell, MD
Gastroenterologist
Gastroenterology Consultants, Monterey
Aaron M. Levy, MD
Gastroenterologist
Permanente Medical Group
Kenneth McQuaid, MD
Chief, Gastroenterology Section
Veterans Affairs Medical Center
Khosrow Nasr, MD
Gastroenterologist
Capitol Gastroenterology, Roseville
Antonio Quiros, MD
Assistant Professor of Clinical Pediatrics,
Teammates at the pasta party the night before the race! University of California, Davis
Carol Adamski, Jeniffer Alcaide, Kathy Beach, Tanya Director of Pediatric Gastroenterology and
Bokobza, Miriam Boxerman, Patricia Catanzaro, Avantika Nutrition, California Pacific Medical Center
Chitre, Denise Jo Crangle, Carol Earls, Missy Globerman, Sarah Streett, MD
Lauren Gusinow, Barbara Hetland, Julie Hofer, Elena Irueta, Gastroenterologist
Brian Jenkins, Tracy Kuen, Catherine Lewis, Barbara Lokey, Permanente Medical Group
Aileen Manning, Mark Martinez, Kelly McGregor, Babette McKay,
Fernando S. Velayos, MD, MPH
Allana Miner, Mark Martinez, Lauri Montoya, Robin Myren, Dani Associate Director of Translational Research
Nedom, Barbara Nevins, Anne O’Shea, Chandara Phanachone, at the Center for Colitis and Crohn’s Disease
Megan Pillsbury, Jeff Purdie, Miranda Rapp, Helen Regalado, Sean Assistant Professor, University of California,
Roth, Lill Runge and Lisa Tomasello San Francisco
2
Research
Latest News from CCFA’s Chief Medical Officer
Dear Friends,
In recent months, we’ve gained additional important insights into the specifics of how Crohn’s disease develops. Having identified many
of the genes, immune factors, and bacteria that combine to cause the disease, we’re now beginning to understand how these “disease
partners” actually work.
Let’s look at this emerging picture from several viewpoints:
• Bacteria: Normally, the colon and the lower portion of the small intestine are “colonized” by a complex variety of bacteria, viruses, and
fungi—collectively called the microbiota. Most of these are harmless, but occasionally, a bacterium can undergo a change and become
virulent. Researchers are beginning to understand precisely how a common bug like E. coli can turn aggressive, and how it manages to
attach itself to and invade the cells lining the small intestine where it can trigger Crohn’s disease in genetically susceptible people.
• Immune Dysfunction: Once virulent bacteria invade the intestinal cells, the immune system typically kicks in and mounts an attack
to clear them. That’s what happens if you’re healthy. But if you’re genetically predisposed to Crohn’s disease, your immune system may
get its signals crossed and overreact, leading to uncontrolled inflammation, or conversely, fail to kill the invader, leading to persistent
infection.
As we’ve recently come to understand it, the immune dysfunction seen in Crohn’s disease may manifest itself as: a decrease in a person’s
ability to kill bacteria; an overactive T cell response to bacteria and bacterial antigens; an inability to tolerate the presence of commonly
tolerated bacteria; or changes in the intestinal cells that make it easier for bacteria to attach to them.
• Genetics: Interestingly, the most recent gene to be implicated in Crohn’s disease is ATG16L1, which codes for a protein involved in a
process known as autophagy. The word “autophagy” literally means “eating oneself.” In biology, it can be understood as the digestion
within a cell of materials produced by that cell or from a bacterium engulfed by the cell. In people who have an abnormal variant of
ATG16L1, the immune cells responsible for killing bacteria may not be up to the job, and bacteria may resist being destroyed.
The discovery of ATG16L1 fits almost uncannily with recent insights into what goes awry in at least some types of Crohn’s disease. A defect
in ATG16L1 may lead to problems with autophagy, while a defect in NOD2—the first Crohn’s susceptibility gene to be discovered in
2001—may impair the ability to kill bacteria through another route: by causing a deficit in the secretion of defensins, proteins that specialize
in bacterial killing. These two genetic defects correlate with two different routes into the development of Crohn’s disease, and with the new
molecular insights described above.
It is hoped that a more detailed picture of the biology of Crohn’s disease and ulcerative colitis will shape the search for improved
therapies. The more we understand about the many factors that lead to the uncontrolled inflammation seen in these diseases, the more
we can target “upstream,” pre-inflammatory processes for treatment and nip inflammation in the bud.
• Clinical News: One highly promising treatment for Crohn’s disease, called natalizumab, has received
preliminary endorsement by the FDA’s advisory panel and is awaiting final approval. Natalizumab is LOOKING FOR A CLINICAL TRIAL?
an antibody against alpha-4 integrin, a protein involved with the recruitment of immune cells to the site of To participate in a clinical trial in
inflammation. Natalizumab blocks that recruitment process, thus short-circuiting the inflammatory response. your area, please visit
If approved, the new drug could be a welcome alternative for people who have not responded well to anti-TNF agents. www.ccfa.org/trials or
Currently approved for the treatment of multiple sclerosis (MS), natalizumab was briefly taken off the market because three call 888-694-8872.
people developed progressive multifocal leukoencephalopathy (PML), a rare brain infection, while taking the drug. For this reason,
natalizumab is being used in a very select group of patients with MS who are being monitored very closely for side effects. It will be
used similarly in people with Crohn’s disease if it receives final FDA approval.
The drug’s safety issues have drawn attention to a far broader problem: the anti-inflammatory therapeutic strategy itself. By damping down inflammation,
a key function of the immune system, the medications used to treat inflammatory diseases may put patients at risk for infection. The risk may be small,
but we should and can do better.
R. Balfour Sartor, MD, Chief Medical Officer
Crohn’s & Colitis Foundation
Research Update: Complementary and Alternative Medicine Use
in Pediatric Inflammatory Bowel Disease Patients
From Antonio Quiros, MD, Community Medical Advisory Committee Member
The use of complementary and alternative medicine (CAM) in children with IBD is suspected to be high but con-
firmatory data are lacking. Recent data from five pediatric centers in western North America were presented at the
North American Society of Pediatric Gastroenterology and Nutrition national meeting held in October. A detailed
survey given to approximately 300 families who have children with IBD found that in the western US, approxi-
mately 72% of patients use some form of CAM therapy. Alternative medicine use overall was the same in all the sites surveyed which included
Phoenix, Los Angeles, Sacramento and the greater Bay Area. The most common complementary interventions used were modified diets and
probiotics. CAM use by other family members was significantly associated with CAM use in children with IBD. Also, having multiple hospi-
talizations (>2) was strongly associated with CAM use by patients. The most commonly cited reasons for CAM use for children with IBD was
a desire to feel “normal again,” boost the immune system, or because of a physician’s recommendation. This contrasts what has been reported
from the US Northeast and England where 41% of pediatric patients reported CAM use and only 30% of patients had reported CAM use to
their treating gastroenterologist. Currently, further efforts are underway to expand this survey to other sites and develop a better idea of CAM
use among our pediatric IBD population.
3
Final Guts & Glory Walk
Fundraising a Huge Success!
On Saturday, September 8, 2007, many familiar faces and long-time
supporters of CCFA’s Guts & Glory Walk were joined by many new
participants, including Joseph Vito Markette, a San Francisco college
student. When asked what the walk meant to him, he stated, “The Guts
& Glory Walk is not just about who can make the biggest team, who can
walk the longest, or who can raise the most money. The most important
quality of a walk is to raise awareness.” And we did. Over 800 registered
participants and 100 teams joined together at the Walk to benefit the
Crohn’s & Colitis Foundation of America in three locations: the Music
Concourse at Golden Gate Park in San Francisco, Shoreline Park in
Mountain View, and Discovery Park in Sacramento. Through the support
of walkers and generous donors, we raised over $163,000 to go to CCFA’s
research, education, and support efforts!
Walkers enjoyed a morning of celebration and awareness at all three sites.
Thanks to our wonderful deejays, Cory Hahn, Art Arevelos, and James San Francisco walkers set out on the 5K Walk to
benefit CCFA
Purvis, and emcees, including KOIT Radio’s Sherry Brown, the crowd
was pumped with excitement. Attendees were pampered with goodie
bags provided by Longs Drug Stores and enjoyed refreshments from Peet’s
Coffee & Tea and baked goods from Semifreddi’s, Noah’s Bagels, House of
Bread, and Hobee’s.
CCFA extends a heartfelt thanks to all participants, teams, sponsors,
volunteers and supporters. We hope to see many more familiar and new
faces next Spring for the inaugural Take Steps for Crohn’s and Colitis.
Photos courtesy of Justin Korn and Kady Munroe
ThANk yOU TO OUR Walkers were thrilled to find a stuffed animal of
Eneman in the San Francisco goodie bags
provided by Fleet Pharmaceuticals.
GUTS & GLORy SPONSORS:
Children enjoyed getting their face painted by the
volunteers in Sacramento.
San Francisco
Surgical Medical
Group
ThANk yOU TO OUR IN-kIND SPONSORS:
Attune Cole Hardware Costco Fleet Pharmaceuticals
Hobee’s House of Bread Noah’s Bagels Peet’s Coffee & Tea
Propel Semifreddi’s Sports Basement
4
2007 GuTS & GLORy TEAM & THANK yOu TO OuR 2007 GuTS &
PARTiCiPANT FuNDRAiSiNG AWARDS GLORy TEAMS!
TEAM AWARDS Denise Roby AKTcos Pentastic
Peggy Rubenstein
Gold Spirit Award Shannon Sample Ashley’s Angels Perls-Rado
Larry Wear’s Spirit Team Ben Schuman
Beth Simon
Belly Busters Princess Abby’s Royal Court
Team Captain:
Pam Wear Georgina Smith blue Rectal Rebels
Raising $10,000+ Danielle Smith Bobby’s World Roseville Support Group
Jeffrey Sternberg
Silver Spirit Award Laura Walter Brittstinators SFSU
Team UCSF TightEnds Carrie Walworth Brookes Crohns Crew shake n bake
Team Captain: Jill Wear
Lois Anne Indorf Pam Wear Butt Busters SIGMA GAMMA RHO
Raising $5,500+ Larry L. Wear California Pacific Medical SORORITY INC.
Judith Westall
Bronze Spirit Award Pamela Yaroch Center Sigma Pi Alpha Sorority
Spewing Stomas Camp Oasis Inc.
Team Captain: CHAMPiONS
Diane Griffin $300 & AboVe Capitol Crohnies SITNOL
Raising $5,000+ Emily Anderson
Denise Arger Captian Colitis SleepWalkers
Largest Team Jeff Aron Carisa Scholtes Something Blue
Sue’s CROHNies Joe Ciesinski
Team Captain: Julie Clarke Charlie Sonoma County Gutsy
Susan Lauren Leslie Duffy Cheeks Don’t Fail Me Now! Grapes
36 Teammates! Linette Edison
Rahul Ekbote Chico Nuts Spare a Square?
PARTiCiPANT AWARDS Catherine Fastert Christina’s Team Spewing Stomas
Patricia Gaitan-Hahn
Platinum Champion Don Garcia Conquest Colitis Starting Coastal
$5,000 & AboVe Julio Garcia Aguilar
Christina Germann
Cory’s Crohnnies Sue’s CROHNies
Diane Griffin
Steven Gessell Crappy Colons Team Baldwin & Friends
Gold Champion Jenny Girsang Crohn’s Crusaders Team Bek
$3,000 & AboVe Trisha Gullard
Darlene Fleming Keri Gurule Crohns-Core Team Binning
Mika Varma Carrie Hardacre Dana Schumacher Team Challenge- San Jose
Kristen Harper
Silver Champions Susan Hobbs Dan’s Team Area
$1,500 & AboVe Laurie Hood DELTA SIGMA PHI-ces Team Challenge- SF Area
Aimee Alexander John Hwang
Donn Baker Lois Anne Indorf Dizzy Lizzy Team Chase
Carmelita Botelho Cristin Keys
Bob Burkhardt Bruce Kilday Don’s Chronies TEAM E.R.I.C.A.
Sandie Faulk Jas Kimbell Fastert Team J&J
Madison Friedman Justin Korn
Susannah Gaterud Olivia Lam GI Joes and Janes of LPCH Team Jassem
Ronald Goedendorp Nancy Lineaweaver GI Trekers Team K-Bear
Mary Hannah Carla Lund
Indu Johal Joseph Vito Markette Go Daddy Go Team Madison
Susan Lauren Nicole Mauldin Goofy Gut Team Monkey
Amy Nardini Shannon McKenna
Dana Schumacher Jamie Meraz Google Team PDL
Lauren Swanson Megan Nardini Gut Busters (Who You Team Remedy
Samuel Todd Susan Perls
Janice Wickham Jeffrey Perls Gonna Call?) Team Royal
Anand Ramasubramanian
Gwendolyn Roberts
Gutsy Genes Team Ruby
BRONzE CHAMPiONS
$600 & AboVe Deborah Rogers Health, Happiness and Team Tricia
Heather Aho Julie Rooney Long Life Team UCSF TightEnds
Amanda Austin Ian Schmidt
Thomas Ball Forrest Scholtes-Dowd Hope Grace and Faith The Belly Achers
Bjorn Barre Merced See Inflammation Infantry The Flare Busters
Sarah Binning Donna Sherwood
Gail Cole Brittany Silva J Davenport The Italian Stallions
Michael Coleman Jennifer Steensen Jamie’s Jewels The LD Express
Grace Colgan Victoria Steensen
Bettina David Harriet Sternberg JayCee’s Crew The Relievers
Karen Dittrich Ann Sullivan
Laura Frank Tamara Szarka Knockout Crohn’s Company The Runs
Johnathan Gadue Jonathan Terdiman Larry Wear’s Spirit Team The Semi-Colons
Tami Gessell Christina Tinsley
Erik Gropp Pearl Torres Laurie’s Glories UCB Pacesetters
Jaime Hessel Pat Walworth Mary Walters Westall’s Crohnies
Bryan Hill Amanda Wear
Carrie Holler Deanna Wear Mikes Milers Weven’s Walkers
Lynne Jassem Alexander Wear Moose Traks Yanagihara
Patricia Jennings Madison Wear-See
Alexina Koba Christi Westall Nokia Young N’ Guns
Wendy Malaspina Megan White Onward!
Erika Meyers Lisa Wolf
Sherry Morris Peter Young Peggy’s Gutless Wonders
Sarah Rivera-Vervaeke
5
San Francisco Patient We were pleased to welcome
Education Update and Family Education
Symposium Inspires
to following faculty presenters
and we thank them for
enriching the knowledge of
our patients and families:
and Informs CCFA kevin Barrows, MD
Director, Mindfulness Programs,
Community Dr. Rachel Naomi Remen
Osher Center for
Integrative Medicine
University of California,
More than 200 patients and families joined our Chapter for our Flagship Patient and Fam-
San Francisco
ily Education Symposium on October 27th at San Francisco State University. We were
honored to welcome Dr. Rachel Naomi Remen,
Juanita de Sanz, MA, MFT
best-selling author of Kitchen Table Wisdom and
Integrative Psychotherapist,
My Grandfather’s Blessings and an accomplished Health & Healing Center,
educator and storyteller, as our opening speaker. California Pacific Medical Center
Dr. Remen provided an inspiring message on “The
Will to Live and Other Mysteries.” Sharon Meyer, DipION, CNC
Certified Nutritionist,
Following Dr. Remen’s session, Dr. Fernando Health & Healing Center,
Velayos, Assistant Professor at UCSF, provided an California Pacific Medical Center
Dr. Fernando Velayos answers questions informative
and interac- Andrew A. Shelton, MD, FACS
tive keynote address on the research and treatment Assistant Professor of Surgery,
of Crohn’s disease and ulcerative colitis. After Medical Director of
lunch and our patient health fair, we offered six Clinical Informatics
workshops with topics ranging Section of Colon & Rectal Surgery,
from nutrition to meditation to Stanford University
surgery. We also incorporated a
new element into the program: Sarah Streett, MD
Enjoying lunch on the patio
a Buddy Connection. Interested Gastroenterologist,
attendees were matched up with one or two people who had a similar Permanente Medical Group
background with IBD. At the end of the day, the buddies met to
Jonathan P. Terdiman, MD
talk and provide support to one another. Please read more about this
Associate Professor of
new program on the next page.
Patient Health Fair Clinical Medicine and Surgery,
Photos courtesy of Justin Korn
University of California, San Francisco,
Co-Director of the UCSF Center for
UPCOMING PATIENT EDUCATION PROGRAMS Colitis and Crohn’s Disease
February 7th – Santa Rosa Patient Education Evening Workshop
April 5th – Sacramento Patient and Family Education Symposium
May 14th – San Jose Patient Education Evening Workshop
ThE PROGRAM WAS MADE POSSIBLE ThROUGh ThE GENEROSITy OF
CCFA MEMBERS AND ThE FOLLOWING SPONSORS:
Gold
Silver
The Lisa and Douglas Goldman Fund
Bronze
6
Making the “Buddy” Connection
Support
Have you ever wished there was someone you could talk to, someone who could relate to living with
Crohn’s disease or ulcerative colitis? Then, join our Chapter’s Buddy Connection program! Whether
you want someone to talk to or would like to provide support for others, this is the program for you.
Here’s how the program works: The Buddy Connection is for friends, family, and patients of all ages
who need support during a difficult time or would like to connect with others to end the feeling of
isolation associated with these diseases. We will match you according to your background and interests
-- the program will be what you make of it! You can be in contact via phone, email, or in person
and discuss personal experiences or just offer a listening ear. We are also starting a hospital visitation
program to provide understanding visitors or phone calls to those in the hospital. Help someone
today! Lend a hand and provide support to others. For more information, please fill out the form on
page 11 or contact Miriam Boxerman at 415-356-2233 or mboxerman@ccfa.org.
Get your questions answered….
Contact the CCFA
iNFORMATiON RESOuRCE CENTER
Call: 888-My-GuT-PAiN (888-694-8872)
Email: info@ccfa.org Web chat: www.ccfa.org
Available from Mon-Fri, 9 am to 5 pm, EST
CCFA Support Groups
All support group listings are subject to change. Please call the CCFA office at
(800) 241-0758 for more information on support groups in your area.
PALO ALTO SAN FRANCiSCO
Facilitator: Ted Wallace Facilitator: Susan Shwartz
Location: Stanford Medical Center, Location: California Pacific Medical Center
3rd floor, H3210 2333 buchanan St., Anne Thornton board
Meets: 1st Wednesday, 7-8:30 p.m. Room, Lobby Level
Meets: 2nd Tuesday at 7:30 p.m
PALO ALTO CPT - Contact Susan Shwartz at 415-661-8038
Children, Parents, Teens
Facilitator: Denise Lehman, RN SANTA ROSA
Location: 750 Welch Road, Suite 116, Facilitators: Meg McNees, Teresa Clarey, and NeW CeNTRAL VALLeY
Stanford Debbie Rogers SUPPoRT GRoUPS
Meets: 4th Wednesday at 7 p.m. Location: Kaiser Medical offices bldg.,
Next meeting: January 23, 3008 3rd Floor, A new support group is forming in
Dermatology Waiting room the Stockton area and a new
PLEASANTON Meets: 1st Monday at 6:30 p.m. teen/young adult group is forming
Facilitators: Cindi bontempo and Carolyn in the Tracy area.
Paredes WALNuT CREEK
Location: 5725 West Las Positas blvd. Facilitators: Teddy Palmer and Pat Doughty
For more information, please
Number 270 Location: John Muir Medical Center, contact Miriam Boxerman at
Meets: 3rd Thursday at 7 p.m. Sterns Room, 415-356-2233 or
1601 Ygnacio Valley Rd., Walnut Creek mboxerman@ccfa.org.
ROSEViLLE/ROCKLiN/AuBuRN Meets: 4th Wednesday at 7 p.m.
Facilitator: Guy Randazzo Contact Teddy Palmer at 925-944-9656
Location: Lobby of Sutter Roseville The following support groups are
Hospital, on North Sunrise PuLL-THRu GROuP currently inactive. If you are
Meets: Last Wednesday of the month, 7 p.m. (iLEOANAL ANASTOMOSiS):
interested in starting a support
Facilitator: ernie Moor
group in these areas, please
SACRAMENTO Location: Conference Room Lilac 2
Facilitator: Charles Schaefer Kaiser Permanente Medical Center
contact Miriam Boxerman at
Location: Sutter General Hospital, (Lilac and South Main Street), Walnut Creek 415-356-2233.
2nd Floor, board Room Meets: bi-Monthly. Oakland ~ San Jose ~ Santa Cruz
Meets: 3rd Sunday, 5:00 -6:30 p.m. Next meeting: February 5, 2008
7
kids Club
Youth Activities kicks Off with
halloween
Bowling
Extravaganza!
On October 7th, our Chapter launched a new Kids Club for children and teens (aged
7 to 16) living with Crohn’s disease or ulcerative colitis. Our first event was a festive
Halloween costume and bowling party in Sacramento. Kids Club members and their
families arrived in elaborate costumes, enjoyed two rounds of bowling and got to know
each other – all while having fun. The Kids Club is a new program of CCFA that creates
social and educational opportunities for youth living with Crohn’s disease or ulcerative
colitis throughout the year, complementing our Camp Oasis experience.
CCFA’s Camp Oasis at the
Painted Turtle – Another
Sensational Summer!
This past summer, our Chapter sponsored and accompanied 30 youths with
IBD to Paul Newman’s acclaimed state-of-the-art camp, the Painted Turtle
Camp, in Lake Hughes, California for a third amazing year. Our Northern
California campers joined 80 of their peers from across the Western United
States for five glorious days of new friends, water sports, arts and crafts, sing-
ing, dancing and the camp favorite – “Silly Olympics.” Camp Oasis provides
an opportunity for children with IBD to be themselves and participate in
a full range of activities, all within a supportive and medically supervised
environment.
What Camp Oasis Meant to Me (from a few of our 2007 campers):
“Camp meant everything to me. It’s a place where I meet the most amazing
people who understand me and don’t tease me because of my disease.”
Cailey, age 15
“I love being able to feel so normal for one week every year.”
Rachel, age 14
“A week to get away and forget about all the
stresses of normal life – you see you are not
the only person with this disease.”
Nic, age 16 If you would like to contribute
“Camp meant pushing yourself to try new and help send a child to camp,
things. Also, having a lot of fun!” please mail to your donation
Molly, age 11 to our office at 111 New
Montgomery Street, Suite 208,
San Francisco, CA 94105.
THANK yOu TO OuR 2007 PREMiER SPONSORS
Mr. and Mrs. Van Van Auken • Yahoo! Employee Foundation Thank you for your help in
Lisa and Douglas Goldman Fund • James Irvine Foundation supporting the life of a child
living with Crohn’s or colitis.
8
Look for the Rainbow
Making An Impact
By Jennifer Teeters, 2007 Camp Oasis Volunteer Counselor and 8th Grade
Teacher at New Jerusalem Elementary School in Tracy, California
I will always remember the phrase “Look for the rainbow.” This past summer, I
volunteered at CCFA’s Camp Oasis at the Painted Turtle and experienced abundant joy
as I watched young campers evolve socially and emotionally. I had the opportunity to
work with 12 and 13 year-old girls who were insightful, talented, funny, smart, creative
and brave. One camper wanted to go home the first day but instead grew to be a part of Jennifer (second from the left) with the
our cabin and conquered the elements of the high ropes course. I was so proud of her! other Red-1 Cabin Counselors
Camp is about the human spirit, joy, being yourself, dancing, singing - even if off-key – and being silly. Our campers
enjoyed “Turtle Time” in the evening when they talked about the day, their dreams, or simply asked the other kids in their
cabin questions about their lives. I wish everyone could experience a camp like this. One afternoon, we had a field day
with fun and messy games for “Silly Olympics.” The highlight was the arrival of a local fire truck which released freezing
cold water all over the dirty campers and counselors. In the mist of water, I saw a rainbow. I couldn’t help but think of my
campers and myself as we challenged the storm of Crohn’s and colitis, still looking for the rainbow. I volunteered because
I value the camp experience for kids and because I was diagnosed with ulcerative colitis in 2005. Even though we may have
to go through storms in our lives, we have to gain perspective and remember to look for the rainbow.
Months later, as I am teaching 8th grade and have ongoing treatments for my UC, I have fond memories of my campers
and the staff. Camp Oasis equips kids with memories that will last a lifetime...or at least until next summer. It is an
experience I will always treasure.
Don’t throw your BART tickets away! help provide research, education
and support to the 50,000 people in Northern California with Crohn’s
disease or ulcerative colitis!
Mail your BART tickets to:
Don’t know what to do with those 5 cent BART tickets in your wallet? Don’t throw CCFA, Northern California Chapter
them away - donate them to CCFA! The Northern California Chapter of CCFA Attn: Tiny Tickets Program
participates in the Tiny Ticket Program with the East Bay Community Foundation. 111 New Montgomery St., Ste. 208
Through this program, 100% of the proceeds will go to CCFA and help improve San Francisco, CA 94105
the lives of those with IBD.
This holiday Season, Leave a Legacy
Use your assets to help find a cure! Year-End Gift Savvy:
Save Taxes and Make a Difference
Write a check. Cash is always appreciated by the Crohn’s & portion of the securities’ fair market value, in addition to
Colitis Foundation of America. avoiding up-front capital gains taxes.
Charge your credit card by simply calling us. Take a capital loss on your tax return by selling your
Contribute appreciated securities you have held more securities that are worth less now than when you purchased
than one year. You can claim a deduction equal to the fair them; then contribute the proceeds. If you donate the securities
market value and avoid any tax on the appreciation. directly, you will not be entitled to take the capital loss.
Prepay a pledge, either the entire amount or an upcoming Give real estate, artwork and other tangible
installment. personal property. For the highest possible tax deduction,
give property that is related to our tax-exempt function.
Invest in a life income plan that provides you with secure
income for life and ultimately benefits CCFA. If you use Donate an insurance policy you no longer need. For this
long-term appreciated securities to fund the plan, you will be to qualify as a gift, we must become the owner of the policy.
entitled to an income tax deduction based on the charitable Your tax deduction for a typical policy is usually the cost basis
or fair market value of the policy, whichever is less.
Always Seek Counsel Discuss your charitable gift plans with financial and legal advisors as well as the Crohn’s & Colitis
Foundation of America. Please call Jessica Miley-Brubaker at 1-800-932-2423, or email her at jbrubaker@ccfa.org. CCFA meets
extensive standards of America’s most experienced charity evaluator, the BBB Wise Giving Alliance Standards (www.give.org).
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Involvement Physician and healthcare Professional Membership Roster
We are grateful to the many physicians, nurses, and healthcare professionals throughout Northern California who support
CCFA through our Professional Membership program. Inclusion on this list does not mean the healthcare professional is
recommended by CCFA.
PREMIER PhySICIANS PARTICIPATING PhySICIANS & Samuel N. Marcus, M.D.
Jeffrey M. Aron, M.D. hEALThCARE PROFESSIONALS James F. Martin, M.D.
Christine Cartwright, M.D. Michael Abel, M.D. Harry B. Matossian, M.D.
Yanek S. Chiu, M.D. Lolita M. Adrien , R.N., CETN Kenneth R. McQuaid, M.D.
Mel Heyman, M.D. Richard M. Auld, Jr., M.D. Debbie Moran
Marjorie McCracken, M.D., Ph.D. Pirow Bekker, M.D. Subhendu Narayan, M.D.
David Siegel, M.D. Michael Bender, M.D. James W. Ostroff, M.D.
Peter Simpson, M.D. Robert F. Bronstone, M.D. Mary P. Pauly, M.D.
Tim Sowerby, M.D. Alvaro D. Davila, M.D. Antonio Quiros, M.D.
Jeffrey A. Sternberg, M.D. Robert Logan Faust, M.D. Saurin Pandya
Jonathan P. Terdiman, M.D. Brian L. Hanson, M.D. Mark E. Rosenberg, M.D.
Madhulika G. Varma, M.D. Steven A. Jacobsohn, M.D. Paul C. Rubinstein, M.D.
Dale E. Wadatz, M.D. Susan Jeiven, M.D. Marc Silverstein, M.D.
John A. Kerner, M.D. Marna M. Skaar, M.D.
Stephen M. Lee, M.D. Sarah Streett, M.D.
Aaron M. Levy, M.D. Richard A. Sundberg, M.D
Martin S. Liberman, M.D. James W. Stricker, M.D.
Jason Lichtenstein, M.D. Fernando Velayos, M.D., M.P.H.
David Lin, M.D. David Watts, M.D.
Uma Mahadevan-Velayos, M.D. Laurence F. Yee, M.D.
Zen Majuk, M.D. Kendall Yoshisato, R.N.
Honors & Memorials
Making a donation in honor or in memory of others is a meaningful way to recognize your commitment to an important cause and will make a
difference in the lives of others with IBD. Each contribution is acknowledged with a card to the designated recipient, indication of the occasion
and the donor’s name. To make a gift, please contact the chapter office at 415-356-2232 or online at www.ccfa.org.
IN hONOR OF
Robert Arenson Susan Lauren Jeffrey A. Sternberg
Norma Kaufman Jon Eager Arthur J. Kolatch
Kathy Braren Louisa Passman Robert W. Temple
Norma Kaufman Anonymous Steven K. Wolfe
Peggy Duffy Ken Solin Sheila Titlebaum
in honor of Retirement – Joe Hegje in honor of Marriage! – Anonymous for the 50th wedding anniversary –
Anna Greenberg
IN MEMORy OF
Wendi A. Ashworth Bernyce Buckley Arnold Hershey Loya Mott
Lori Hokerson Mayra Wilder Neil Madonick Louise B. Faggetti
Toto Austad Virginia Wilder Karen K. Hines Jerry Pass
Anonymous Bonagene Minor Janis Kawasaki Bob & Ellen Jasper
Jeanne G. Baer Irene Kludt Evelyn Kalman Robert W. Temple
Muffie Meier Robert Cary Bob & Ellen Jasper Al and Jane Ward
Louise P. Zobel Sherri Moebus Gloria J. Kelly Billie Tornquist
Denise Castle Frank Crosetti Patrick Souza Darlene Fleming
Letty Morris Clara Pecci Kathryn Mariani Bernice Urzi
Josephine Markovich Manuel Duarte Joe and June Murphy Darlene Saso
Sally Weiner Elliott Yellin De Goff Larry C. Wear
Bruce Baer Marcella Finegold Norma Muniz Christiane and Eric See
John Eastman Bob & Ellen Jasper Jeffrey Moskowitz Kenneth & Judy Kuhlmann
Barbara Smith Norman Goldman Lido Towers Larry See
Sheila Medvin Marc Pernick
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VOLUNTEER INTEREST FORM
All information requested is confidential and for office use only.
PLEASE PRINT CLEARLY
FIRST NAME LAST NAME
HOME ADDRESS CITY/TOWN
Supervisor_______________________________________________ STATE ZIP
PHONE: ____________________________ EMAIL:____________________________
I have IBD I have Telephone___________________
Organization/Company ____________________________________ a family member or friend with IBD
HOW ARE YOU CONNECTED TO CCFA?
YES, I AM INTERESTED IN VOLUNTEERING!
I AM INTERESTED IN (CHECK ALL THAT ARE OF INTEREST):
TAKE STEPS (Walk & Festival):
Team Captain Planning Committee Sponsorship Committee Medical/Family Teams
TEAM CHALLENGE (½ Marathon Run/Walk)
Honoree
WINE CLASSIC
Planning Committee Sponsorship Committee Media/PR Committee
PATIENT AND FAMILY EDUCATION
Symposia/Workshops (SF, San Jose, Santa Rosa or Sacramento) Support Group Leader Kids Club
OFFICE VOLUNTEER (assorted projects, Monday – Friday, 9am – 5pm)
YES, I AM INTERESTED IN THE PATIENT BUDDY CONNECTION!
I HAVE: CROHN’S DISEASE
ULCERATIVE COLITIS
AGE: _____ GENDER:___________
DISEASE SEVERITY: LENGTH OF TIME WITH THE DISEASE: ______ years
mild moderate ______ months
severe remission
I AM INTERESTED IN (CHECK ALL THAT ARE OF INTEREST):
Providing support to someone else when s/he is experiencing a difficult time.
Receiving support to help me through a difficult time.
Being a part of a new hospital visitation program to provide support to someone with IBD during a stay at
the hospital.
I am a friend/family member of a patient who is interested in meeting other friends/family members of
people living with IBD.
RETURN COMPLETED FORM TO:
CCFA, Northern California Chapter – Attn: Trish Wynne, Development Coordinator
111 New Montgomery St, Suite 208 • San Francisco, CA 94105 • pwynne@ccfa.org • Phone: 415-356-2232 • Fax: 415-356-0880
11
BOARD OF TRUSTEES
Non-Profit Org.
President U.S. Postage
Jonathan Terdiman, M.D. PAID
Santa Ana, CA
Associate Professor of Clinical Medicine NORThERN CALIFORNIA ChAPTER Permit # 310
Director of Clinical Programs, IBD Center Director, 111 New Montgomery St., Ste. 208
Colorectal Cancer Prevention Program, San Francisco, CA 94105
University of California, San Francisco
Vice President
Sherry Brown
News Director, KOIT Radio
Community Medical Advisory
Committee Chair
Madhulika G. Varma, M.D.
Co-Director, Inflammatory Bowel Disease Center,
University of California, San Francisco Medical Center,
Assistant Professor, Department of Surgery,
University of California, San Francisco
Trustees
Mark Horne
Pharmacist
Owner of Pharmpak
Robert Jasper
President (retired),
Enterprise Rent-A-Car of San Francisco
Saurin Pandya, MBA
Executive Director (retired),
America Online, Inc.
President, MarketGuru, Inc.
Jeffrey Sternberg, M.D. MISSION STATEMENT
Surgical Director, Inflammatory Bowel Disease Center To cure Crohn’s disease and ulcerative colitis, and to improve the quality of
California Pacific Medical Center
life of children and adults affected by these diseases.
2008 Calendar STAFF
Executive Director
Please join us for the following events!
Tamara Block
JANUARy 12 Th iNFORMATiON MEETiNGS Education and Support Manager
Young Adults event – CCFA benefit at the Cellar Miriam Boxerman
in San Francisco SAN FRANCiSCO
Thursday, March 6th at 6:00 pm Team Challenge Coordinator and
FEBRUARy 7Th Sports basement, 1590 bryant Street, San Francisco Development Manager
Santa Rosa Patient education evening Workshop Breanne Long
Saturday, March 8th at 9:30 am
MARCh 2 ND Sports basement in the Presidio, Special Events Manager – Take Steps
Kids Club event/Camp oasis Recruitment, Peninsula 610 Mason Street (at Crissy Field), San Francisco Stephanie Levin
APRIL 5Th Saturday, March 15th at 9:30 am Development Coordinator
Sacramento Patient and Family education Sports basement in the Presidio Trish Wynne
Symposium 610 Mason Street (at Crissy Field), San Francisco
MAy 10Th PENiNSuLA
Take Steps Walk and Festival – De Anza College Saturday, March 1st at 9:30 am
Sports basement, 1177 Kern Avenue, Sunnyvale
CCFA Northern California Chapter
111 New Montgomery St.
MAy 14 Th
San Jose Patient education evening Workshop EAST BAy Suite 208
Thursday, March 13th at 6:00 pm San Francisco, CA 94105
JUNE 7Th Sports basement, 1881 Ygnacio Valley Road, Walnut Creek
Take Steps Walk and Festival – Phone: 415-356-2232 or
Justin Herman Plaza, San Francisco SANTA ROSA 1-800-241-0758
Tuesday, March 4th at 6:00 pm
JULy 18Th – 25Th Fusion Fitness, 791 Lombardi Court, Santa Rosa Fax: 415-356-0880
CCFA’s Camp oasis (for 7-16 year-olds) Email: ncal@ccfa.org
For more information or to RSVP for a meeting,
JULy 20 Th please contact Breanne Long, Team Challenge Coordinator, Website: http://california.ccfa.org
Team Challenge – Crohn’s and Colitis at the at 415-356-2234 or blong@ccfa.org.
Napa to Sonoma Half Marathon
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