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					  LOOK AHEAD
  newsletter for parent carers of children and young people with additional needs




                                                                   Tel: (01482) 396469
                                                                   www.fish.eastriding.gov.uk




INSIDE THIS ISSUE:
- Transitions to adulthood - Parent Carers Group news -
- FREE entry to The Deep -


                                                                     Issue two
                                                                     September 2009
    WELCOME                                                                                                                                                                                                   NEWS IN BRIEF



    Welcome to September’s LOOK AHEAD                                                                                     NEWS IN BRIEF
    Welcome back to the LOOK AHEAD newsletter, for all parent carers who have children and young
    people registered on the LOOK AHEAD database.                                                                         Contact a Family update
                                                                                                                          Contact a Family has not been able to secure
    In this issue:                                                                                                        further funding for the family support service
     • News in brief                              3                • Transitions to adulthood special          13 - 15    in Yorkshire so the service will cease on 31
                                                                                                                          August. Contact a Family will still be able to offer
     • FREE entry to The Deep                     4                • National information                      18         support from their helpline on 0808 808 3555.
     • Your news - Josh’s sensory room            5                • Parent Carers emergency                   19         Their website has a range of information and
                                                                     response card                                        publications to download at www.cafamily.org.uk.

     • Design a calendar competition              6                • Money matters                             20 - 21    New website for young
     • LOOK AHEAD feedback                        7                • Reading corner                            22 - 23    people with mental health
                                                                                                                          problems
     • Parent Consultative Group                  8                • East Riding of Yorkshire Council          24 - 26
       update                                                        news                                                 YoungMinds has launched a new website - My
                                                                                                                                                                                 people with disabilities into one place.
                                                                                                                          Head Hurts - for young people with mental
     • Parent Carers event                        9                • Contacts                                  27                                                                The site includes a star rating system showing
                                                                                                                          health problems. It provides information to
                                                                                                                                                                                 whether suppliers have provided prices for the
                                                                                                                          young people diagnosed with anxiety, self harm,
     • Barnardos update                           10 - 11          • Disability sport update                   28                                                                product and whether they have signed up to
                                                                                                                          conduct disorder, depression, ADHD and eating
     • Local support                              12, 16, 17                                                                                                                     the industry codes of conduct. Users can review
                                                                                                                          disorders. The idea for the site came from young
                                                                                                                                                                                 products, discuss products with other parents
                                                                                                                          people and they have been central in its creation
                                                                                                                                                                                 or ask for specific advice from occupational
    Thanks to all of you who sent back your comments on the new look LOOK AHEAD. I really                                 and content. For more information visit www.
                                                                                                                                                                                 therapists. For more information visit www.
    appreciated your feedback, and as you’ll see from this edition we’ve listened to your comments and                    youngminds.org.uk/my-head-hurts.
                                                                                                                                                                                 livingmadeeasy.org.uk/children.
    made some changes! See page 7 for more details. Please remember that this newsletter is for you, so                   On-line advice about
    if you have any articles or advertisements you would like to see in future editions please send them to                                                                      Deaf and hearing impaired
    FISH (Families Information Service Hub) at the address below. Please remember to send in plenty of                    equipment for disabled
    pictures too! The deadline for the next edition is 5 November 2009.                                                   children                                               forum
                                                                                                                                                                                 A forum for people who are deaf and hearing
                                                                                                                          Disability charity, the Disabled Living Foundation,    impaired has been set up in the East Riding.
    I hope you enjoy this issue - Jenne
                                                                                                                          has launched an advice and information website         The forum is seeking deaf children and young
                                                                                                                          on equipment for children and young people             people and their parents/carers to join. For more
                                                                                                                          with disabilities. The site - Living Made Easy for
      CONTACT US                                                                                                          Children - has been created by an occupational
                                                                                                                                                                                 information please contact Kiran Kochar, East
                                                                                                                                                                                 Riding of Yorkshire Council’s senior policy officer,
      Jenne Roantree, editor, FISH, East Riding of Yorkshire Council,                                                     therapist and aims to bring together information       on (01482) 391425 or email
      KG15, County Hall, Beverley, HU17 9BA.                                                                              on products available for children and young           kirandeep.kochar@eastriding.gov.uk.
      Tel: (01482) 396469
      Email: fish@eastriding.gov.uk
                                                                                                                                      HOW CAN FISH HELP?
    East Riding of Yorkshire Council will, on request, provide this document in Braille, audio or   large print format.               The Families Information Service Hub is a FREE information service for children, young people,
    If English is not your first language and you would like a translation of this document, please telephone (01482)                 families and the people who support them.
    393939
                                                                                                                                      Contact us (01482) 396469
    Whilst every care has been taken to provide accurate information at the time of publication, we apologise for any
    errors or omissions. The inclusion of any resource or service does not imply any kind of recommendation.                          www.fish.eastriding.gov.uk

2                                www.fish.eastriding.gov.uk                                   (01482) 396469                                                                                                                             3
CALENDAR COMPETITION                                                                                                                                    YOUR NEWS



                                                        Josh’s sensory
                                                        room
                                                        Josh is 12 and suffers from High Functioning
                                                        Autistic Spectrum Disorder. After receiving
                                                        assessment and therapy at the BIBIC (British               Coloured rope lights hang around the ceiling and a giant lava lamp
                                                        Institute of Brain Injured Children), Josh’s parents       and colour changing bubble lamp give the room a great glow!
                                                        decided to create a sensory room for him at
                                                        home. Keran Fletcher - Josh’s mum - tells                  tank. Mobiles, chimes and posters help decorate
                                                        LOOK AHEAD more...                                         the room and cute teddies high on a shelves
                                                                                                                   give a comforting feeling. Below the shelves is
                                                        My son was receiving assessment and therapy
                                                                                                                   a magnetic wipe board with magnetic letters
                                                        from a charity developmental centre - BIBIC.
                                                                                                                   and shapes and coloured board pens, a standing
                                                        Watching my son in their sensory room, he was
                                                                                                                   punch bag and punch pads and a feelings wheel
                                                        stimulated with the array of lights and happily
                                                                                                                   for identifying his feelings (as he has expressive
                                                        relaxed on the massage mat. That’s when I knew
                                                                                                                   and communication disorders).
                                                        it had to be a sensory room that we created at
                                                        home. With the help of our housing officer we              A sky projector shines wonderful midnight blues
                                                        moved into our new home and transformed the                across the ceiling giving a really soothing effect to
                                                        extra room into a sensory room.                            Josh’s room. There’s also a meditation area, with
                                                                                                                   mantra objects to aid mediation, along with a
                                                        What’s brilliant is my son participated throughout
                                                                                                                   range of thinking games - for example a box of
                                                                                                                   wooden puzzles. The windowsill has a range of
                                                                                                                   crystals and seaside shells he’s collected from the
                                                                                                                   beach, - souvenirs from day trips are purchased
                                                                                                                   specifically for the sensory room to help him



               IAHLD OF
                                                                                                                   recall memories. There’s a very large digital
                                                                                                                   calendar clock with the temperature and a moon


              C C IL W
                                                                                                                   phase on - he loves this as he struggles with the
                                                        A star light shade with a blue light bulb hangs from the
                                                                                                                   concept of time and dates.
                     EE WORTH IT
                                                        light fittings giving different degrees of light.
                                           FH TWO
       S PE




                                                                                                                   The next addition to the room will be a massage
                          £6.95
              FR




                                            ER




                      This voucher will                 the whole refurbishment. He choose the                     mat and fibre optic lighting - all on the way! It’s
           ONE




                  admit one child free when             wallpaper and the colours for the walls - all blue         a continuing project, but we at least have a multi
                 accompanied with two full
              paying adults any day of the week.        and deep in tones. Each wall blended wonderfully           sensory approach to support his behaviour now.
              Please hand in this voucher page          and he helped wallpaper, paint and furnish his             What is great about Josh’s sensory room is that
                   when purchasing tickets.
                                               S
           FU




                  No photocopies accepted.              new sensory room with some funding from The                it is individual to his needs and it’s no doubt
                                            LT
                                                   RS




                       Expires 31/12/09                 Family Fund. In the room there’s a giant chocolate         supported him. I hope readers of LOOK AHEAD
            LL




                                                   DE




                 Y
                                          U




                                                        bean bag, which he just envelopes into and can             like some of the ideas we’ve shared.
                     PA         D
                                              EA




                       Y IN G A D R                     totally chill out in. A weighted blanket has really
                                                                                                                   If you’ve got a story to share with
                   FO           A                       helped him feel grounded and it’s limited the
                      RL    AHE
                           OOK                          need to restrain him. There’s wooden massage               other LOOK AHEAD readers
                                                        tools to aid relaxation, sensory toys, musical             please contact Jenne at FISH on
                                                        instruments, tactile toys, Kinex and Lego, a CD            (01482) 396469 or email fish@
                                                        player for playing relaxing music and his fish             eastriding.gov.uk.

                                                                                                                                                                                 5
    COMPETITION                                                                                                                                                                    LOOK AHEAD FEEDBACK


    Special Kids in the UK
    Special Kids in the UK is a charity for families
                                                       professionals. In addition you’ll have access
                                                       to a regular newsletter and benefits. For
                                                       more information see
                                                                                                       LOOK AHEAD FEEDBACK
    who have a child of any age with special           www.specialkidsintheuk.org                      Thanks for all your feedback on the                   groups and asked them to submit articles for
    needs. Families of children and young people
                                                                                                       new look LOOK AHEAD. We were                          future issues, and issued a deadline date (on
    with special needs often deal with similar
                                                                                                       really pleased with your positive                     the welcome page of each addition) so that
    challenges. They may have concerns about
    education, services, therapies, short break                                                        comments on the changes. We’ve                        everyone knows when to get articles in!
    and other issues directly related to their                                                         listened to all your comments and
    child. Special Kids in the UK aim to bring                                                                                                               You also told us that you’d like to see a special
                                                                                                       have made some of the changes that
    families together for friendship and support.                                                                                                            focus to each edition. This month our focus is
                                                                                                       you’ve suggested.
    By becoming a member, you will have access                                                                                                               transitions to adulthood and there are various
    to an online forum providing support and                                                                                                                 articles that you should find interesting and
    useful advice from other mums/dads/carers/                                                         Here’s what you told us...                            helpful. From helping people with disabilities to
                                                                                                                                                             find work (Jobstep, page 13) to support events,
    ATTENTION ALL ARTISTS                                                                              “It seems to have a lot more emphasis on
                                                                                                       East Riding services and less on voluntary
                                                                                                                                                             details of a specialist transition magazine and
                                                                                                                                                             a Connexions Humber special feature (centre
    Design a calendar competition                                                                      organisations and interesting snippets of             spread), we hope you find this useful.

    2010 feels like a long way away at the moment, but we are already thinking about                   info, but this is probably just because it’s
    it! Here is a great idea for a rainy day... we’re running a competition to design a                the launch copy”                                      Thanks again for all
                                                                                                                                                                                                                   LOO
                                                                                                                                                             your feedback. It really                            newsle
                                                                                                                                                                                                                                          K AH
    2010 calendar. The theme for the calendar is ‘my favourite place in the East Riding of                                                                                                                                                        EAD
                                                                                                                                                                                                                        tter for pa
                                                                                                                                                                                                                                   rent ca
                                                                                                                                                                                                                                          rers of
                                                                                                                                                                                                                                                    childre
                                                                                                                                                             is invaluable when                                                                            n and
                                                                                                                                                                                                                                                                   young

    Yorkshire’ and the competition is open to all children and young people registered
                                                                                                                                                                                                                                                                           peop
                                                                                                                                                                                                                                                                               le with
                                                                                                                                                                                                                                                                                         additio

                                                                                                                     d include a ‘hot top
                                                                                                       “Please try and i    de         op
                                                                                                                                      topic’
                                                                                                                                                                                                                                                                                                    nal ne

                                                                                                                                                             putting the newsletter
                                                                                                                                                                               etter                                                                                                                           eds


    on the LOOK AHEAD database. We will be choosing 12 winning designs to be
                                                                                                       each month. Perhaps it’s worth                        together. If you have
                                                                                                                                                                                ve
    featured on the calendar. Each household                                                                                                                                                                                                                                       Tel: (01
                                                                                                                                                                                                                                                                                   www.f 482) 39




                                                                                                       asking people for topics?”
                                                                                                                                                                                                                                                                                          ish.ea 6469
                                                                                                                                                                                                                                                                                                stridin


                                                                                                                                                             any other comments nts
                                                                                                                                                                                                                                                                                                        g.gov.
                                                                                                                                                                                                                                                                                                               uk




    registered on the LOOK AHEAD database will
                                                                                                                                                             or suggestions
    receive their calendar as an early Christmas
                                                                                                       “It’s brilliant and bright”                           please keep
    present and in addition the 12 winners will
                                                                                                                                                             them coming
    each receive £10 of vouchers. There’s no limit                                                     “…I much prefer it, like the orange                   in. Remember               INSID
                                                                                                                                                                                               E TH
    to the number of entries that can be sent in,                                                      & green!”
                                                                                                                                                                                       Aimin
                                                                                                                                                                                             g
                                                                                                                                                                                                    IS ISS
                                                                                                                                                                                      the F high for di
                                                                                                                                                                                                           UE:

                                                                                                                                                             too, if you have              ISH te
                                                                                                                                                                                                  am •
                                                                                                                                                                                                          sabled
                                                                                                                                                                                                        Disab children •
    all that we ask is that the picture is on a square                                                                                                       any articles
                                                                                                                                                                                                             led ch          P
                                                                                                                                                                                                                    ildren’ CG news
                                                                                                                                                                                                                           s serv
                                                                                                                                                                                                                                  ice pl
                                                                                                                                                                                                                                          • Mee
                                                                                                                                                                                                                                                t
                                                                                                                                                                                                                                         an
    piece of paper and is as bright and colourful                                                      “It was easier to read, I liked that I                (and pictures June’s
    as possible. Please write your name, age,                                                          was not swamped with information”    n”               please) for
                                                                                                                                                                                   re-va
                                                                                                                                                                                          mped                                                          Issue
                                                                                                                                                                                                                                                              one
                                                                                                                                                                                                         LOOK                                          June
                                                                                                                                                                                                                                                            2009

    telephone number and address on the reverse                                                                                                                                 he
                                                                                                                                                             the next edition the
                                                                                                                                                                                                                        AHEA
                                                                                                                                                                                                                                       D
    of each entry. The competition will be judged in                                                   So, what changes have we                                                    b 2009.
                                                                                                                                                             deadline is 5 November 2009
    three categories - 0 - five, six - 11 and 11 - 20.
                                                                                                       made...
    The deadline for entries is 1 November 2009                                                                                                              Happy reading!
    and all entries should be sent to FISH, East
                                                                                                       We’ve laid out the newsletter with local
    Riding of Yorkshire Council, KG15, County Hall,                                                    information before national and financial articles.
    Beverley, HU17 9BA. Happy colouring!                                                               We’ve also contacted all the local support


6                           www.fish.eastriding.gov.uk                        (01482) 396469                                                                                                                                                                                              7
    PARENT CONSULTATIVE GROUP UPDATE                                                                                                                                 EVENTS




Parent                       In May the PCG (Parents Consultative
                                                                                   WHAT A RELAXING PARENT
Consultative
                             Group) made an application to Aiming
                             High for Disabled Children Parent
                             Participation Funding for a grant of up to
                                                                                   CARERS EVENT...
Group                        £10,000 to be spent between April 2009
                             and March 2010.

                             Happily the PCG has been successful in getting
update…                      the full grant. The Group plans to use the grant
                             to move forward and involve more parent carers
                             in the East Riding by gauging their views and
by Sheena Withers,           opinions on different issues around disabled
                             children, championing these and making a positive
parent carer                 difference to services.

                             The Group’s structure will change slightly as         Parent carers in one of the workshops at the 2009 parent carers event.
                             the funding will allow them to work more
... £10,000 grant            independently. It will have more sub-groups
                             working with East Riding of Yorkshire Council and
                                                                                   In June another successful parent
                                                                                   carers event was held at Beverley
                                                                                                                                   included a key note speech from Gill Dixon
                                                                                                                                   about managing stress in real life parenting

awarded...                   these will feed back into the main Group about
                             four times a year. Already the Group has four
                                                                                   Leisure Centre.Thirty two parent
                                                                                   carers attended the day consisting
                                                                                                                                   situations. She gave parent carers a chance
                                                                                                                                   to understand the stresses of life and learn
                                                                                   of four workshops on relaxation and             ways of dealing with these without feeling
                             enthusiastic sub-groups focusing on transition,       stress, healthy eating, ‘Schools out’           selfish.
...PCG changes               reviews, the ‘Schools out’ programme and
                             information sharing.
                                                                                   and money matters.
                                                                                     In all the workshops parent carers had the
                                                                                                                                     At the event there was also a range of
                                                                                                                                   information stands including FISH, Contact

name to ER VIP...            In order to mark the change and the new
                                                                                   chance to learn about new things and gather
                                                                                   more information to make their, and their
                                                                                                                                   a Family and the NHS. The day ended with
                                                                                                                                   a prize draw for all attendees and everyone
                             direction, the Group has been renamed ER VIP          families lives easier.                          was given a free goody bag packed with a
                             (East Riding Voices In Partnership). ER VIP will be     During the ‘Schools out’ workshop parent      FISH stress ball, a swim pass and a 10 per
                             organising and running a parent carer event in        carers had the chance to meet some of           cent off voucher from Superdrug.
                             December where they will officially launch the        East Riding of Yorkshire Council’s sports and    The feedback from the event was very
                             new group and they would love to see as many          play development team who were running          positive and another is planned for later in
                             parent carers as possible there. Everyone on          the summer activities. This gave the parent     the year – watch this space for more details!
                             the LOOK AHEAD database will be receiving an          carers the chance to learn more about the
                                                                                   activities they ran and give them feedback
                             invite soon so look out for further information.
                                                                                   and tips for future activities.
                             For more information about ER VIP                       In the money matters workshop parent
                             please contact Sheila Close (left) on                 carers had the chance to look at what
                             (01964) 534472.                                       benefits are out there and what else they
                                                                                   could look for. This was run by Linda
                                                                                   Legg from Contact a Family. The day also

8                www.fish.eastriding.gov.uk              (01482) 396469                                                                                                             9
     LOCAL INFORMATION                                                                                                                                  LOCAL INFORMATION




     Barnardos                Barnardo’s is excited to announce the
                              development of the new Disability
                                                                                      child, by offering suggestions and training,
                                                                                      so the group can ensure the young person
                              Support and Inclusion service which will                is fully included. Reviews are carried out
                                                                                      with the group after 12 sessions and the
     ... launches the         be known as the DSI service.The Barn
                              service, Holiday Activity Support Service               worker will reduce or withdraw from the
                                                                                      group as necessary. You don’t need to go via
     new Disability           (HASS) and Developing Inclusion (DI) has
                              had a restructure and are now all together              East Riding of Yorkshire Council’s children’s
                                                                                      disability team to access this service - a
     Support and              in one service.

                              DSI short break service (BARN)
                                                                                      completed Common Assessment is fine or
                                                                                      parents can refer directly.
     Inclusion (DSI)          The focus is to allow the parent carer to have
                                                                                      For further information on any of the
     service...               a short break from their caring role, whilst their
                              child is either taken out or cared for in the home.
                                                                                      above services please contact
                                                                                                                                       Barnardo’s office:Telephone (01430)
                                                                                                                                       810139 or email rita.millhouse@
                              This is specialist short breaks service and a fixed                                                      barnardos.org.uk.
                              allocation of hours on assessed need will vary
                              from family to family. Referrals for this service
                              come via East Riding of Yorkshire Council’s
                              children’s disability team.

                              DSI Holiday Service (HASS)

                              This service runs throughout the school holidays
                              with the exception of Christmas holiday. The
                              service is for disabled children and young people
                              who are unable to access holiday activities without
                              specialist support. Parents are expected to
                              transport to and from an agreed local activity and
                              pay for any activity costs. There is no allocation      ‘All together now!’
                              of hours as it depends on individual need of the        For parents/carers of children with additional needs - with or without your child
                              child and family. Referrals for this service are only
                                                                                                     Meet other parents and share ideas and support.Varied activities available for your
                              accepted via East Riding of Yorkshire Council’s
                                                                                                     child, from craft to messy play, music and sensory. Taking place every two weeks
                              children’s disability team.
                                                                                                     starting 11 September from 10 - 11.30am. Suitable for pre-school and primary
                              DSI Term Time Activity (DI)                                            aged children. For more information call East Riding Children’s Centre, Hornsea
                                                                                                     on (01964) 537160.
                              This service is for children and young people with
                              additional needs, aged five - 18 years, who are not
                              accessing any form of social or leisure activity. The
                              aim is to support a weekly group, chosen by the

10                www.fish.eastriding.gov.uk               (01482) 396469                                                                                                                   11
     LOCAL SUPPORT                                                                                                                                                                                 TRANSITION


     Are you sleeping at night? Is the                                                                                FREE transition magazines
     rest of your family?
                                                                                                     Z
                                                                                                                      Progress magazine is aimed at parent carers and young people who are reaching the
                                                                                                                      transition to adulthood. It is packed full of useful tips and articles to ensure that young
     All parent carers on the LOOK AHEAD database are invited to a new sleep workshop
                                                                                                                      people are aware of all services and opportunities available when moving from


                                                                                                       Z
     run by Sleep Solutions. The workshop will provide basic strategies for parents to deal
                                                                                                                      childhood to adulthood. Some parents and carers may have registered for
                                                                                                                                                                                          gistered
     with sleeping problems and an opportunity to access sleep counselling for more
                                                                                                                      Progress magazine with Action for Children. Unfortunately when the  en
     complex sleep issues. The workshop will also include break out sessions on topics such as       Z                LOOK AHEAD database moved from Action for Children to
     ‘why children don’t sleep’, ‘keeping a sleep diary’, ‘creating a bedtime routine’ and ‘coping
                                                                                                                      FISH, registration information was not moved over. To re-
     with night awakenings’. The event was originally planned to take place in Withernsea, but
                                                                                                                      register call FISH on (01482) 396469.

                                                                                                         Z
     due to low numbers has been re-arranged to take place at Goole Leisure Centre, North
     Street, Goole on Tuesday 15 September, 9.30am - 2.30pm. Places are limited so please hurry                       My Future Choices is a magazine from the Transition
     to book.. To book or to find out more call FISH on (01482) 396469.                                               Information Network. Again it’s a magazine for disabled young
                                                                                                                      people in transition from childhood to adulthood. If you want to o
                                                                                                                                                                                       t
                                                                                                                      sign up for a copy, or want to get back-dated copies, please visit
                                                                                                                      www.transitioninfonetwork.org.uk/magazine/0.
                                                    The FISH website is changing!
     ADHD                                 Jenne and the FISH team are busy improving the site. For
     East Riding                              all your enquiries please call the FISH helpline on
     ADHD East Riding is a                                     (01482) 396469.                                        JOBSTEP MOVES
     support group for families with
     children with ADHD/ADD or
                                                                                                                      TO HULL
     suspected of having ADHD/                                                                                        Jobstep is part of the charity Autism Plus
                                                                                                                      and is set up to help those with autism
     ADD. They offer meetings most months usually in
     the Haltemprice area with topics of interest and
                                                                      Closing time                                    find employment. It was established 20
     lots of time to network and chat to other parents          for Goole and district                                years ago in South Yorkshire and has grown
     and carers. The group runs some training events,
     holiday activities for children and a helpline offering
                                                               ADHD group                                             substantially and now wants to help people
     advice and support.                                       Unfortunately the Goole and District ADHD
                                                                                                                      in Hull and East Yorkshire.
                                                                                                                                                                       More Employment Reaches Adults with
      The next meeting is Thursday 17 September at             Group has closed due to lack of funds. The group       Their new offices are in Prospect Street,
                                                                                                                                                                       Learning Difficulties). EMERALD aims to
     East Riding Children’s Centre, Brough, located at the     organisers have had to stop the meetings as there      Hull, and they aim to help around 90 people
                                                               was no funding for the room hire and activities.                                                        help people with learning difficulties into
     Brough Primary School site. Sue Burgess, inclusion                                                               with autism. The project will not only help
     and reintegration officer for East Riding of Yorkshire     The group had been running on charitable grants                                                        sustained employment. But its not just
                                                                                                                      people back into work, but offer continuing
     Council, will be giving a talk on how her team can        and fundraising but these have all been exhausted.                                                      about finding work – they can also provide
                                                                                                                      support. The project will provide job
     support children with ADHD who are struggling to           If you are interested in getting parenting support                                                     life skills coaching, mentoring, job clubs,
     cope in school and at risk of being , or who have         don’t forget to call FISH for details of the local
                                                                                                                      preparation training, structured job searches
                                                                                                                                                                       post employment support and work based
     been, excluded.                                           support groups across the East Riding and the          and ‘in work’ support. It is really important
                                                                                                                                                                       learning solutions. Anyone seeking support
       For more information call Sue on (01482)                national groups contact details.                       to Autism Plus to be setting up in East
                                                                If you want to know more about these or need                                                           should email Conrad Watson, the team
     666687 or Liz on (01482) 633466 or email                                                                         Yorkshire and helping people for this area.
     addateastriding@yahoo.com. Alternatively visit www.       help then please give FISH a call on (01482) 396469.                                                    leader for Jobsteps in Hull at
                                                                                                                      They are also working with Remploy on
     beehive.thisishull.co.uk/adhd-eastriding.                                                                                                                         conrad.watson@autismplus.co.uk.
                                                                                                                      another project EMERALD (Ensuring

12                               www.fish.eastriding.gov.uk                             (01482) 396469                                                                                                                13
     TRANSITION SPECIAL FEATURE                                                                                                                                        TRANSITION SPECIAL FEATURE


                                                                                                               4. PA attends Transitional Planning Meetings in           at the time of application.


     ng
      g
 Making
                                                                                                                  Year 9 and subsequent reviews. The Transitional    4. PA to complete forms requesting taxi transport
                                                                                                                  Planning meeting starts the process of looking        for young people progressing onto further
                                                                                                                  at what the young person may wish to do after         education who due to their additional needs

 connexions
                                                                                                                  Year 11, looking at appropriate options post 16       are unable to travel independently.
                                                                                                                  and any support the young person and their
                                                                                                                  families may require thus ensuring a smooth        5. If it is proven that local provision post16 is
                                                                                                                  and successful transition.                            not appropriate, then the specialist PAs will
                                                                                                                                                                        support young people and their families
 by Joanne Parker, Connexions Humber                                                                           5. For those young people with a Statement of            with applications to ‘out of county’ provision
                                                                                                                  Special Educational Needs PA will start the           whether it be funded by the Learning & Skills
 A free service for all 13 - 19 year                                                                              process of completing the S139A Assessment
                                                        the area. Connexions also support young people
                                                                                              y                                                                         Council or East Riding of Yorkshire Council. This
 olds with additional needs                             who for whatever reason are educated out of the
                                                                                       educat                     in conjunction with the pupil, parent/carer, and      process does need to start as early as possible,
                                                                                                                  other relevant professionals. The Transition
 Connexions is a free universalal                       school environment. Below is a guide to the work
                                                                                         guide                                                                          preferably in Year 10.
                                                        carried out by PAs working in mainstream and
                                                                                       mainstr                    Planning Meeting / Annual Review would be
 service providing information,n,                                                                                                                                    Post 16
                                                        special schools across the East Riding.
                                                                                        Ridin                     a good opportunity to gather the relevant
 advice and guidance to all 13 – 19                                                                               information required. This assessment aims to      PAs continue to support young people and their
 year olds (up to 25 if they have
                               ve
                                                        13 years (Year 8)                                         paint a rounded picture of the young person’s      families after Year 11 whether they have continued
 additional needs).The Connexionsxions                                                                            strengths and weaknesses and the support they      into the sixth form, gone into further education,
 service has a strong commitment
                               ment                                                        info
                                                        PAs liaise with schools to gather information and         will require if they are to progress in post 16    employment/training or for whatever reason are in
 to supporting all young people with
                                le                      ensure that they are aware of all young people
                                                                                            you                   education/training.                                receipt of alternative provision.
 additional needs and their families.
                               milies.                  on the schools Special Educational N  Needs (SEN)
                                                        register and to see if any early intervention is
                                                                                         interv                6. In the summer term of Year 10 the PA will liaise   For further information contact
              cted bot                    t of
 This is reflected both in the deployment of                                                                      with school to identify other young people
                                                        required.                                                                                                    Joanne Parker on (01482) 862741or
 Personal Advisers (PAs) in our secondary schools
                  rs                                                                                              who do not have a statement but who would
                                                                                                                                                                     email joanne.parker@eastriding.
 targeting work with young people with additional       14/15 years (Year 9 and 10)                               benefit from additional support in education/
                                                                                                                                                                     gov.uk.
 needs, and in its management structure where a                                                                   training post 16. This could include young
 team manager, Joanne Parker, has a special needs       1. Letters sent to all parents/carers of statemented      people at School Action Plus or those educated
 thematic responsibility across the East Riding. This      young people introducing the PA and explaining         elsewhere. The view of parents/carers will also
 ensures that this work has a high profile within          how and where they can access support along            be sought.
 the Connexions service itself and also encourages         with a Transition Pack explaining the transitions
 partnership working with other relevant agencies          process and post 16 options.                        16 years (Year 11)
 and parents/carers in developing a holistic approach   2. PA meets with young person prior to the Year        1. Transition packs sent out to parent/carers of
 in supporting our young people with additional            9 Transitional Planning Meeting where this is          young people at School Action Plus with details
 needs.                                                    appropriate. Alternatively the PA may meet             of post 16 options.
 In addition to the work of PAs in our secondary           them in the classroom context and talk with
                                                           teachers and classroom assistants.                  2. Early careers guidance interview undertaken
 schools we have a team of specialist PAs - Jill                                                                  for young people with a statement and those at
 Gates, Wendy Hibbs, Catherine James and Emma           3. An action plan is completed as a result of the         School Action Plus. Action plan is produced as
 Weinhold - who work across the special schools            meeting and a copy sent to young person,               a result of the interview.
 in the East Riding and also with students attending       parent/carer and school for circulation at the
 specialist courses within the local colleges. They        Transitional Planning/review meetings               3. PA is responsible for ensuring the completed
 also support students who live in the East Riding                                                                Section 139A Assessment form along with
 but who are educated at specialist provision outside                                                             relevant supporting documentation. This is
                                                                                                                  forwarded on to the relevant Post 16 provider

14                          www.fish.eastriding.gov.uk                         (01482) 396469                                                                                                                            15
     LOCAL SUPPORT                                                                                                                                                                 LOCAL SUPPORT



     Introducing Yoga
                                                                                                              NDCS helpline
     for the special                                                                                          hours extended
     child                                                                                                    NDCS (National Deaf Children’s Society)
     by Jane Irving                                                                                           has extended its opening hours.
     My name is Jane Irving and I will be qualified to
                                                                                                              It will now be open on a Monday evening
     teach yoga to the special child by 2 October
                                                                                                              until 7.30pm, on a Saturday morning from
     2009. I am already teaching yoga in the
                                                                                                              9.30am - 12 noon and closed on a Friday
     community to adults and children but am turning
                                                                                                              afternoon to accommodate these hours.
     to a more specialised kind of yoga and was
                                                                                                                                                              This means that there is even more chance
     wondering if any parents or carers who read                                                              The helpline is free for voice and text calls   for families of deaf young people and
     LOOK AHEAD would be interested in the kind                                                               from all landlines and from mobiles on          children to get the information and support
     of support I can offer?                                                                                  O2, Orange, T Mobile, Three, Virgin and         they need.
                                                         social development. Through the use of touch,        Vodafone.
     The course supports children with a wide range      facial expressions, hand signals and voice I’ll be
     of conditions such as cerebral palsy, Downs         able to help with bonding and integration. I can
                                                         also use sound therapy, relaxation and colour
     Syndrome, autism, epilepsy, ADD, ADHD and
     other physical and developmental difficulties.      therapy physical for psychological benefits to the   Autism - FREE public lectures
     I will be able to work with babies (from birth      children in my yoga classes.
                                                                                                              The New Options Group is holding some free seminars on what behaviours are presented
     onwards), children and adolescents on a one-to-
                                                         If you have any queries do not hesitate to call me   by children and young people with autism, and supportive strategies. The seminars are run
     one or group basis. The yoga I teach will be able
     to stimulate co-ordination, mental clarity and      on (01377) 251266 or 07908 711480.                   by Geoff Evans who is the Director of Autism services at the Options Group. They will be
                                                                                                              held across Yorkshire and Humber.

                                                                                                              York – Ramada Hotel, 1 October 2009 between 10.30am - 1pm
      WILF WARD HOLIDAY HOME - BRIDLINGTON                                                                    Hull – Ramada Hotel, 1 October 2009 between 6.30pm to 9pm
      The Wilf Ward Family Trust has a holiday home at the Fir Tree Holiday Park in                           Barton upon Humber – Reeds Hotel, 2 October 2009 between 10.30am to 1pm
      Sewerby, which is near Bridlington. This is available for hire for short breaks or
                                                                                                              For more information and to book a place please contact admin@
      longer hire for holidays. The site has modern facilities including...
                                                                                                              roxbyhouse.co.uk or call 01724 733777 between 3pm to 5pm Monday
      * Heated indoor swimming pool * Games room                                                              to Friday.
      * Play area * Mini-market * Launderette *
                                                                                                              The Autism Treatment Centre of America are also holding free public lectures on Autism
      Ramp access is available for wheelchair users, but please be aware that the
                                                                                                              throughout the UK this October. The lectures, entitled Autism: Beating the Odds – Tools for
      home may not be suitable for all disabilities.
                                                                                                              parents that yield tangible results, offer strategies that can be used at home immediately.
      * Prices from £35 PER NIGHT, discounts available for longer stays.
                                                                                                              They are held in Manchester, Birmingham, London and Bristol. For more information about
      For further information contact Jacqui Sunley on (01723) 891561.
                                                                                                              these lectures and to book a place please contract www.autismtreatment.org/uk.


16                           www.fish.eastriding.gov.uk                         (01482) 396469                                                                                                               17
     NATIONAL INFORMATION                                                                                                           PARENT CARERS EMERGENCY RESPONSE CARD




       Swine Flu                                                                                     HAVE YOU GOT YOURS?
       update
       The NHS has launched a
       new website to help people
       check their symptoms if they
       think they may have swine flu.
       The Directgov website states
       that if your child has a serious
       underlying illness and you
       think they have contracted swine
       flu then contact your GP
       immediately, rather than use the pandemic website.

       The website www.direct.gov.uk/pandemicflu was launched on 23 July along
       with the new helplines. For general information you should call 0800 1 513 513                Call FISH for your Parent Carers Emergency Response Card - don’t leave home without one!
                                                                                                     by Sheila Close, parent carer                  good things and the things that have irritated us
       and for treatment call 0800 1 513 100. If you are worried that you, or a member                                                                     as a family. We did not tell the children. We did
                                                                                                     I used to think that nothing bad would ever
       of your family has caught swine flu then the advice is to stay at home and check the          happen to our family. We were indestructible          not want them to be worried about us.
       symptoms on the website. There is also more information about swine flu on the                or so we thought. It took a near miss to make          The shock of the accident made us very
                                                                                                     my husband and I realise that if something did        emotional for quite a while as it dawned on us
       NHS website - www.nhs.uk - and on the Directgov website at www.direct.                                                                              that we had no plans in place should anything
                                                                                                     happen to us how devastating the fall-out would
       gov.uk/swineflu.                                                                              be.                                                   befall us. We kept looking at the children realising
                                                                                                        It was nearly home time and we were both in        that they would be left without help should that
                                                                                                     the car heading for home after a shopping trip.       accident had a different outcome.
                                                                                                     Turning right at a roundabout I was suddenly            Now we have guardians for our children, In
           CARING WITH CONFIDENCE                                                                    aware that whilst I had seen a low loader truck it
                                                                                                     had not seen us. I slammed on my brakes. After
                                                                                                                                                           Case of Emergency (ICE) numbers on our
                                                                                                                                                           mobile phones and Parent Carers Emergency
           Caring with Confidence are now offering FREE on-line courses and self study               what seemed to be an eternity we stopped. The         Response Cards with Lifeline. The card is so
           workbooks. If you care for someone and are over the age of 18 years, then Caring          truck was level with the top of our people carrier.   important as part of our emergency plans. It
                                                                                                     A few more inches and we would have had very          allows us the piece of mind to know that if the
           with Confidence could help improve your health and well-being for FREE. They
                                                                                                     little of our heads left. The lorry had mounted       accident had a different outcome our children
           have set up online courses and self study workbooks to help carers learn new skills,                                                            would have care in place immediately. We would
                                                                                                     the roundabout taking all the chevron signs with
           get advice and information and talk and share ideas with other carers. They have          it.                                                   hate our children to be left having to cope not
           face-to-face sessions, but there are none as yet in the East Riding or Hull. Carers can      Luckily no-one was hurt. We drove away             knowing what had happened to us should we not
           however enrol online to get their free workbooks and support or join the online           unscathed and in shock. The children were             be able to get home. No one should leave home
                                                                                                     picked up and we did not let on what had              without one!
           sessions. For more details visit www.caringwithconfidence.net or call (0113) 385                                                                To get your card call FISH on (01482)
                                                                                                     happened. Every tea time we all discuss the
           4491.                                                                                                                                           396469.

18                        www.fish.eastriding.gov.uk                      (01482) 396469                                                                                                                      19
     MONEY MATTERS                                                                                                                  MONEY MATTERS




                                                              What can Family Fund do for me?
                                                              Family Fund is a grant giving organisation set up to help families with
                                                              disabled children and young people out of poverty. Last year they
                                                              helped around 38,889 families in England by providing grants of around
                                                              £23,553,000.
                                                                                                                          c a e p towards
                                                              Families can get help with a range of things including financial help towa ds
                                                              buying washing machines, computers, hospital visiting and holidays to
                                                              name but a few.
                                                              Families need to have a household income of less than
                                                              £23,000 per year before tax and less than £18,000 in
                                                              savings. For more information visit www.familyfund.org.uk
                                                              or call 0845 130 45 42. For an application form you can
                                                              also contact FISH on (01482) 396469.


                                                              VAT exemptions on                               The installation, repair, maintenance and
                                                                                                              parts of these is also VAT free.
                                                              aids and equipment
                                                              Certain aids and equipment for disabled         Some building work is also VAT free. This
                                                              people are zero-rated for VAT purposes.         includes:
                                                              These include:
                                                                                                                      Work on ramps, doorways and
                                                                      Adjustable beds, chair lifts, hoists            passages
                                                                       and sanitary devices                           Bathrooms, shower rooms,
                                                                      Auditory training aids                          washrooms, and lavatories
                                                                      Low vision aids                                The installation and repair of a lift.
                                                                      Certain medical and surgical
                                                                       appliances                             But these do not include the services of an
                                                                      Emergency alarm call systems           architect, surveyor or consultant.
                                                                      Some vehicles adapted to meet a
                                                                       disabled person’s condition            To get these exemptions you must
                                                                      Any other equipment or appliances      provide the supplier with written
                                                                       designed solely for the use of         declaration that you are entitled to
                                                                       disabled people. It is not enough to   the exception. A parent can sign a
                                                                       show that a piece of equipment is      declaration on behalf of a disabled
                                                                       one that is often used by disabled     child. A suggested declaration can
                                                                       people – it must be specifically       be found at section 10 of VAT Notice
                                                                       designed for their use.                701/7 – www.tinyurl.com/9xrl7.

20               www.fish.eastriding.gov.uk   (01482) 396469                                                                                                     21
     READING CORNER                                                                                                                                                        READING CORNER




     Books                                           Guiding Your
                                                     Teenager with                                    Coping with Epilepsy in Children and            issues, school, college and university, driving

     recommended by                                  Special Needs
                                                     through the
                                                                                                      Young People
                                                                                                      Author: Susan Elliot-Wright, price:
                                                                                                                                                      and careers.


     YOU                                             Transition From
                                                     School to Adult
                                                                     m
                                                                     lt
                                                                                                      £7.99
                                                                                                      Living in the shadow of epilepsy obviously
                                                                                                                                                      Published by Sheldon Press

     The following books are a small                                                                  has enormous consequences for young
                                                     Life: tools for
     selection of those available for                                                                 people, and there is a real need for an up-
                                                     parents
     parent carers and professionals                                                                  to-date book which looks at behavioural and
                                                     Author: Mary
     recommended by your friends and                                                                  emotional issues as well as medical ones,
                                                     Korpi, Price:
     colleagues.                                                                                      and which also explores complementary
                                                     £13
                                                                                                      therapies and self-management issues.
     Learn to Sign and Cook with Olli                                  eat
                                                     This book is a great guide for
                                                                                                      Coping with Epilepsy in Children and Young
     Author: Garry Slack, Price: £12.99              any parent with a child with special needs       People looks at the causes and triggers of
     Learn to Sign and Cook with Olli is a fun,      who is coming up to that tricky time of          childhood and teenage epilepsy, types of
     colourful book aimed at both hearing and        transition between a teenager and an adult.      epilepsy, including those particular to young
     deaf children and their parents, helping them   The book is split into two parts. Part one       people (i.e. juvenile myoclonic), seizure
     learn British Sign Language while making        deals with family expectations that facilitate   control and outgrowing epilepsy, transition
     tasty recipes. It’s a great way to enhance      growth. It talks of the parent’s role in the     from childhood to teenage years, including
     communication and cooking skills. Order         life of the young person, what that role         transition to adult care, hormones, sex and
     online at www.signwitholli.com.                 has been in childhood and what it should         contraception, behavioural and emotional
                                                     become. Another useful part is about work
     Published by Sausage Dog Publishing             ethic and how this should be developed. The
                                                     second part of the book deals with life after
                                                                                                      Managing Stress for Carers                                    Signed stories...
                                                     high school and the options ahead, higher        There are still some copies left of psychologist
                                                     education or employment. The author, Mary        Ann Edworthy’s book ‘Managing Stress for Carers’.             There is now a website
                                                     Korpi, has done a lot of work with special       Dr Ann Edworthy, a Chartered Psychologist and                 that offers signed stories
                                                     needs throughout her career. Even though         Principal Lecturer at SIHE, manages the Cerebra               for children. Run by the
                                                     this book is written for America, many of the    counselling service and has extensive practical and           ITV it is sponsored by
                                                     ideas can be transferred to work over here       research experience in stress counselling. She also           celebrities and there
                                                     too.                                             is principal researcher in a UK wide survey of stress         are currently around 23
                                                                                                      among parents and carers of brain injured children.           book titles for children
                                                                                                      You can download a copy at www.cerebra.org.uk/                to choose from. To find
                                                     Published by Jessica Kingsley Publishers
                                                                                                      parent_support/support/stress.htm or request one by           out more visit www.
                                                                                                      telephoning the parent support helpline on                    signedstories.com.
                                                                                                      0800 328 1159.

 2
22                         www.fish.eastriding.gov.uk                       (01482) 396469                                                                                                               23
     EAST RIDING OF YORKSHIRE COUNCIL NEWS                                                                                                 EAST RIDING OF YORKSHIRE COUNCIL NEWS




     Aiming                                   Transition to adulthood
                                              As mentioned in the last issue of LOOK
                                                                                                      THE DISABLED CHILDREN’S
                                                                                                      SERVICE INDICATOR - NI54
     high for                                 AHEAD all local authorities have to complete
                                              another Self Assessment Questionnaire
                                              about transitions to adulthood by the end of
                                                                                                      The national N154 questionnaire                       1. Information about entitlements and accessing


     disabled
                                                                                                      asked parents about their experience                    services across health, care and family support
                                              December 2009. To help us do this we are keen           of local services for disabled children                 services and education - please contact FISH
                                              to hear what disabled young people and parent           (aged 0 - 19) and whether or not those                  for information about services and support. They


     children…                                carers think. All families on the LOOK AHEAD            services (health, care and family support,              have access to a wide range of information
                                              database who have a child aged 13 years or              education) are delivered to the standards               including short breaks and support for parent
                                              older will be invited to attend a workshop              set by the Government.                                  carers as well as information about out of school

     update...                                during October half term to give their views.
                                              East Riding of Yorkshire Council’s children’s
                                              participation team is also helping us get the
                                                                                                      East Riding has recently received their local
                                                                                                      report for NI54. The national average score of
                                                                                                      parent’s satisfaction of services was 59/100 and
                                                                                                                                                              clubs and activities.
                                                                                                                                                            2. Ensuring parent carers and their children are
                                                                                                                                                              asked for their opinion or feedback about
                                              views of disabled young people and are making           the East Riding of Yorkshire score was 57/100.          services they receive - questionnaires for
                                              contact with local special schools and groups.          This figure needs to increase to show progress or       parent carer views are regularly sent out to all
                                              The East Riding Aiming High for Adulthood               changes in perceptions and experiences in future        the families registered on the LOOK AHEAD
                                              group is focusing on three key areas at the             years.Parents in the East Riding who completed          database – just recently one for views on play
                                                                                                      the questionnaire felt that clear, accurate and up      areas in the East Riding was sent out. In the
                                              moment – developing a clear pathway for the
                                                                                                      to date information is available from health, care      last couple of years three parent carer events
                                              move to adulthood, information for parent
                                                                                                      and family support and education. Also over 90          have taken place which gives the chance to say
                                              carers and ensuring the views of disabled young
                                                                                                      per cent of parents said they understood the            what they think as well as meet others and gain
                                              people are listened too. A parent from ER VIP           decisions that have been made about which               information. Meetings across the East Riding were
                                              (East Riding Voices In Partnership) is part of the      health and education services their child receives.     arranged to consult with parent carers about
                                              East Riding Aiming High for Adulthood group.                                                                    short breaks and the Autistic Spectrum Condition
                                                                                                      Some of the comments made by parents
                                                                                                                                                              Strategy and an event for families moving into the
                                                                                                      included:
                                                                                                                                                              transition to adulthood is being planned.
     AIMING HIGH FOR                                needs to share views and experiences about
                                                                                                      “Healthcare professionals are good”                   The next NI54 questionnaire is due out
                                                    transition into adulthood, meet others
     ADULTHOOD -                                    and gather information from numerous              “The school is supportive”
                                                                                                                                                            very soon. Just a reminder that if you do
                                                                                                                                                            receive a questionnaire please make sure
     TRANSITION EVENT                               information stands. People will also be given
                                                    the opportunity to hear about current             “Unaware of what help is available”                   you complete and return it.The survey
     All families on the LOOK AHEAD database,                                                                                                               is a unique chance for parents to have
                                                    progress in the East Riding on transitions        “Not enough communications between                    their say - if you get the opportunity to
     with a young person aged 13 years or over,     to adulthood. Young people with additional        everyone involved”                                    take part, please do so, and encourage
     are invited to the East Riding Aiming High     needs will also be able to join in a wide                                                               other parents to do the same. Remember
     for Adulthood Transition Event. The event is   range of activities such as boccia and disc       “Childs needs not met”
                                                                                                                                                            the survey is strictly confidential and the
     being held in Driffield in the October half    golf while parent carer’s attend their session.                                                         information made available will relate to
                                                                                                      “Would like more information about out of
     term.                                            Places are limited and you must                                                                       large groups of parents and never to any
                                                                                                      school clubs”
      The event will be a chance for parent         contact FISH on (01482) 396469 to                                                                       one family.
     carers and young people with additional        book a place.                                     Some things parents said could better are;


24                         www.fish.eastriding.gov.uk                     (01482) 396469                                                                                                                            25
     EAST RIDING OF YORKSHIRE COUNCIL NEWS                                                                                                                                                                         CONTACTS




       ELANIE
 MEET MELANIE ...                                                                                                                             SEPTEMBER 2009 LOOK AHEAD CONTACTS
                                                                                                                          Organisation                         Telephone               Email and/or
 Hello, my name’s Melanie Parsons                                                                                         name                                 number                  website
 and I’m the new project and                                                                                              FISH (Families Information Service   (01482) 396469          fish@eastriding.gov.uk
 practice development officer for                                                                                         Hub)                                                         www.fish.eastriding.gov.uk
 short breaks in the East Riding.                                                                                         Parent Partnership Service           (01482) 392108          parent.partnership@eastriding.gov.uk
                                                                                                                          Directgov                                                    www.direct.gov.uk
 I’ll be focusing on the quality and
                                                                                                                          Contact a family                     0808 808 3555           www.cafamily.org.uk
 quantity of short break services
                                                                                                                          Caring with Confidence                (0113) 385 4491         www.caringwithconfidence.net
 for disabled children, young                                                                                             Wilf Ward - holiday home             (01723) 891561
 people and their families.                                                                                               Jobstep - Autism Plus                                        conrad.watson@autismplus.co.uk
                                                                                                                          NDCS (National Deaf Children’s       0808 800 8880
                                                                                                                          Society)
 I started at the end of June 2009 as East Riding               I am sure most of you will be aware, a short break
                                                                                                                          ER VIP                               (01964) 534472
 of Yorkshire Council’s project and practice                    can mean a number of things. Depending on the
                                                                                                                          Special Kids                                                 www.specialkidsintheuk.org
 development officer for short breaks. This new                 needs of the disabled children and their family, it
 post is to continue                                                                    could be anything from a          National Pandemic                    0800 1 513 513          www.direct.gov.uk/pandemicflu
                            “I am looking forward to the challenges that lie                                              Flu                                  0800 1 513 100
 to deliver the             ahead and hope that my background of working                child going to an activity for
                                                                                                                          Family Fund                          0845 130 45 42          www.familyfund.org.uk
 Government’s Short         in disability services and my previous post, with the       a few hours to an overnigh
                                                                                           ew                overnight
 Breaks Transformation East Riding of Yorkshire Council, as a transitions               stay within a residential or      Hornsea autism support group         Sheila - (01964)
                                                           cil,                                                                                                534472 or Di -
 Plan as part of Aiming assessment officer will be of benefit.This role gave            family-based home. In the
                                                                                                                                                               (01964) 532472
 High for Disabled          me a real insight into the range of services available East Riding we are striving
                                                           ge                                                             Beverley ASD support group           Kathy Smith - (01482)
 Children, which was        to both children and adults and what the issues
                                                          nd                            to improve access and make                                             881531
 launched in 2007.          are regarding the different types of provision within
                                                          pes                           more inclusive mainstream
                                                                                                                          Bridlington ASD support group        Linda - (01262)
                            these service areas. There is still a way to go to          and universal services. This is                                        851973
 You may remember
                            ensure that services meet the needs of disabled             to enable families to access      ADHD support group                   Sue - (01482) 666687 adhd-eastriding@yahoo.com
 last year that some
                                                                                        things locally rather than just                                        or Liz - (01482)
 workshops took place children, young people and their families and that
                                                           eir
                            participation and consultation remain central to the accessing specialist provision                                                633466
 to ask you about
                                                                                        for disabled children.            Hull and East Riding Asperger’s      Tracey - (01482)        gill@gillstephenson.co.uk
 short breaks and what shaping and delivery of services.”  es.”
                                                                                                                          support group                        650014
 you thought needed                                                                     A leaflet about short breaks
                                                                                                                          Kiran Kochar                         (01482) 391425          kirandeep.kochar@eastriding.gov.uk
 to be improved and                                                                     has been produced, in
 developed. My job now is to focus on this and the              partnership with parent carers, which gives more          Barnardo’s                           (01430) 810139          rita.millhouse@barnardos.org.uk
 quality and quantity of short break services for               detail about getting a short break in the East Riding.    Joanne Parker                        (01482) 862741          joanne.parker@eastriding.gov.uk
 disabled children, young people and their families.            To get a copy of this leaflet please call FISH on
                                                                                                                          Jane Irving                          (01377) 251266
 A short break should provide a positive activity for         (01482) 396469. Watch out too for updates about
 the disabled child or young person, whilst also giving       short breaks in future LOOK AHEAD’s to tell you
 the parent carer a break from their caring role. As          the latest news and developments.


26                             www.fish.eastriding.gov.uk                               (01482) 396469                                                                                                                         27
S          Disability sport update
     Developing talent
     among disabled young
     athletes
     Playground to podium is a new national
     scheme to spot, develop and support
     talented young disabled athletes. The
     scheme has been developed by the
     Youth Sport Trust, Sport England, UK
     Sport and the British Paralympic As-
     sociation. It’s hoped that playground to    by Sarah Green, sports co-ordinator in
     podium will lead disabled young people      partnership with East Riding of Yorkshire
     from PE, through participation to high      Council’s sport and play development
     level performance and competitions.         service. 15 talented young people were
     Pupils from across the East Riding were     spotted on the day, and will now go on
     invited to attend a talent day organised    to attend a regional assessment day.


     2009 disability                             Get your walking boots
     sports directory                            on with the active
     The sport and play development
     team has also launched the 2009
                                                 walking challenge
     edition of the disability sports            Make the most of the great natural spaces
     directory, including information            we have in the East Riding with the active
     on inclusive and disability specific        walking challenge.
     activities in the East Riding. All the       The challenge rewards young people
     clubs in the directory have, or are         for completing walks over set distances.
     working towards, gaining ERCAS              Supported by the play development
     (East Riding Community Activity             service, the aim of the challenge is to
     Sports) status. ERCAS is the club           get children and young people active.
     accreditation scheme run by the             Accredited through the national ‘Walk your
     service that enables clubs to set           way to Health’ programme, all walks are
     and meet standards that will lead to        led by qualified walk leaders.
     better quality sports provision in the
                                                   Already Kingsmill Special School in
     East Riding. Check out the directory
                                                 Driffield is leading the way with lots of
     at www. eastridingsportandplay.org
                                                 pupils achieving the gold award for walking
     and click on the ‘disability sport’ link.
                                                 over 20 miles.

28   For further information contact Matt Rhodes on (01482) 392512

				
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