Summarize of the Questionnaire by keara


									                  Summarize of the Questionnaire
     for NGOs in new EU member states on public health issues!

The aim of the questionnaire
Public health as one of the EU policies appeared in 1997 within the
Amsterdam treaty. The Article 152 in Amsterdam treaty states that health
protection should be ensured within European level, but member states
are responsible for health care in national level. Taking into account that
public health is new political issue, that’s why the implementation process
of it is different within the countries.

In that case we would like to get the overview what public health means in
new EU member states and how public health policy is implemented.

Short introduction of the project
The questionnaire is distributed within the project “Development of
national platforms on public health in 10 new EU member states”,
financed by the European Commission. The project is implemented by The
Civic Alliance of Latvia, which is the partner organisation to European
Public Health alliance. The aim of the project is to increase the
participation of NGOs in decision-making processes in national and in EU
level by developing NGO networks on public health issues.

The results
The questionnaire was sent out to the organisations which have expressed
interest for cooperation within the project. Consequently the form was sent
out to 16 organisations from which 6 organisations from 5 countries

          1. Short introduction of your organisations

1.1. What is the name of your organisations?

  1. Egészségünkért a XXI. században Alapítvány/Health 21 Hungarian
  2. Hungarian Society of Allergology and Clinical Immunology (HSACI)

   NGO ”CARS”- “Center for AIDS Prevention and Vulnerable Groups”

   Stop fajceniu, obcianske zdruzenie / Stop smoking, nongovernmental
   organization (NGO).

   NGO Estonian Association Anti-AIDS

  The Pancyprian Organization of the Blind

1.2. What is the aim of your organisations?

Health 21 Hungarian Foundation
  The Foundation’s main objective is to promote better health, to improve
  the health status and to increase the quality of life of all Hungarians in
  the spirit of the "Public Health" Chapter of the Act on Health by
  disseminating the modern concept and practice of health promotion
  and by supporting the development of its professional and institutional
  background.                (For               more                 details:, Our Institution, About the

  The promotion and ACI as a clinical science : prevention, diagnosis ant
  therapy , and patient education ; the improvement of the cooperation
  among specialities related to ACI ; spreading of scientific information;
  promotion of research and publishing activities.

  AIDS prevention, research, education, counseling, awareness raising ,
  programs for specific groups ( injecting drug users, sexual workwers,
  prisoners…); work with media and decision makers

Stop smoking, nongovernmental organization (NGO).
   The main aim of Stop smoking, NGO is to assign tobacco control in
   cooperation with national, european and worldwide organizations.

NGO Estonian Association Anti-AIDS
  It is a non-profit organisation involved with prevention of HIV infection
  and other sexually transmitted infections and the promotion of healthy

The Pancyprian Organization of the Blind
  The main goals of the Organization are-
   promotion of social welfare of the blind,
   prevention of blindness and medical treatment of the blind,
   promotion of the education of the blind,
   the encouragement and promotion of suitable academic and
     vocational education of the blind,
   the rehabilitation and integration of the blind,
   providance of required technical aids and appliances for the work
     and the daily life of the blind,
   the creation of conditions and situations for equivalent living
     standards and the integration of blind persons into the community
     in general,
   the dissemination of information with regard to the problems and
     the welfare of the blind, and
   the development and the promotion of sports among and between
     the blind.

  The Pancyprian Organization of the Blind, P.O. Box 23511, 1684
  Nicosia – Cyprus, was established in 1980 by 30 blind and partially
  sighted people. The Organization is non-governmental and mainly
  charity funded. The Board of the Organization consists of 14 members
  of whom, at present, ten are men and four are women. There are also
  15 permanent standing committees operating in different areas of
  activity. All members of the Organization can participate in the
  standing committees, thus contributing to the administration and
  coordination of the programmes and services of the Organization. Any
  person over 18 years old who has total loss of vision or whose vision
  acuity is below 6/60 in the best eye (1/10 of the usual vision), even
  with the use of any corrective lenses or spectacles, may be accepted as
  a member of the Organization. The Organization has today 1005
  members (464 women / 541 men) out of the estimated 2.000 blind and
  visually impaired people living in Cyprus. About 125 (67 pupils and 58
  girls) of the above 2000 people are children and teenagers under 18
  years old, who are also supported by the Pancyprian Organization of
  the Blind.

1.3. What are the main activities?

Health 21 Hungarian Foundation
  Tobacco control is one of the five priority areas of action of the
  Foundation. It focuses on tobacco-related research, the introduction of
  best international practice into Hungary (pilot programs), and media
  and policy advocacy.

  The Health 21 Hungarian Foundation is one of the most relevant
  advocacy groups on tobacco policy development in Hungary. It also
  works to improve the use of research findings in supporting tobacco
  policy development. Moreover, it contributes to the professional training
  of public health officials on tobacco control issues.

  Dr. Tibor Szilagyi, CEO of the Foundation, participated in the
  development of the new Hungarian tobacco control action plan adopted
  by the Hungarian Government in the fall 2001. He is also member of
  the expert group responsible for the supervision of the activities of the
  action plan.

  Other main tobacco control-related activities of the Foundation include:

  1. Mobilizing decision makers for the support of FCTC

  After INB1 Dr. Tibor Szilagyi held a presentation for the Health and
  Social Committee of the Hungarian Parliament on FCTC and related
  issues. The presentation aimed at raising awareness on FCTC of the
  members of the Committee, as they have been proved to be the most
  active advocates on health policy issues within the Hungarian
  Parliament. The 25 members of the Committee were distributed leaflets
  on the latest achievements of the FCTC development process.

In addition, the Foundation provides with regularity members of the
Committee with its publications on tobacco policy development issues
(including its two books on policy and media advocacy in tobacco
control and a compilation of tobacco industry documents based on the
translation of Trust us – We are the tobacco industry, respectively).
English summaries of these publications are available at the
Foundation’s website (the first ever Hungarian tobacco control site in
English at

2. Mobilizing the tobacco control community

In order to mobilize scientific community and other stakeholders
involved in tobacco control towards the development of a more
advanced tobacco control policy mix in Hungary, the Foundation
launched the Hungarian Coalition on Tobacco Control Forum, an
informal     network    of    Hungarian   organizations,    institutions,
professionals involved in tobacco control. The Coalition has joined the
European Network for Smoking Prevention. It has already organised a
series of lobbying actions (the amendment of anti-smoking legislation is
pending in Hungary) as well as the first ever public event on November
17, the No Smoking Day.

3. Analysis of the internal tobacco industry documents on

For the first ever time in Hungary, the Foundation started to examine
the formerly secret internal industry documents with relevance to
Hungary. As part of the activities of the fellowship program of Dr. Tibor
Szilagyi at the Public Health Department of the University of Sydney
(supervisor Prof. Simon Chapman), supported by the Australian
Government, more than 1,000 industry documents are being reviewed.
The first articles on the main findings of this research are due in the
next few month in Hungarian and international public health

4. Participation in international tobacco control efforts

Within the frame of TFI’s Don’t be duped! project, the Foundation
published the book entitled ’Betrayed trust – lessons learnt from the
secret industry documents’ in December 2001. The book was launched
at a press conference, where about 40 journalists were present. The
press conference aimed at attracting the journalists’ attention to the
practices of transnational tobacco companies, and suggesting tobacco
companies should not be trusted on issues related to tobacco control.

The CEO of the Foundation, Dr Tibor Szilágyi authored the English
language book on tobacco control in Hungary in 2004. (Tobacco Control
in Hungary: past, present and future).

5. Facilitating networking and communication

The Foundation established and maintains the first ever permanent
communication channel between Hungarian tobacco control advocates
(including policy makers and media representatives), a listserve
provided by Globalink (Globalink-hu or Hungarian Localink). The
Foundation’s staff regularly updates Hungarian colleagues and media
representatives on FCTC issues and on other news of international
tobacco control.

6. Training of tobacco control advocates

The Foundation organized the first ever training on tobacco policy and
media advocacy for emerging Hungarian tobacco control advocates in
May 2001. The program, financed by the American Cancer Society
involved as main collaborative partners Mr Mike Pertschuk (the
Advocacy Institute, Washington DC,), Mr. Imre Holló, (the World Bank,
Hungary), and Mr. Paul Csagoly (WHO, Copenhagen). 18 trainees (12
from the National Public Health Institute’s branches and 6 from NGOs)
participated at the training. A detailed description of the training can be
found on the Foundation’s website. A report on the training was also
published in Filter, the tobacco advocacy newsletter for Central and
Eastern Europe (accessible through the Foundation’s website,

7. Involvement in cancer control in Hungary

The Foundation, supported by a grant of the American Cancer Society,
prepares a stakeholder analysis of organizations involved in primary
prevention of cancers in Hungary. The analysis will be finished in the
fall 2002 and published in form of a book. Also, a set of
recommendations will be drafted for the Health Policy Department of
the Ministry of Health to help improve the effectiveness of cancer
control activities in Hungary.

8. Developing and implementing pilot programs

While the Foundation is not aimed at implementing community based
tobacco control activities, it participates in some field activities provided
these belong to wider research activities or are pilot programs. As part
of the TFI-financed activities, the Foundation published a leaflet on
smoking cessation for patients wishing to quit in February 2002 and it
works now on monitoring its effect.

Main activities – Central and Eastern Europe

Beginning from 2001, the Foundation plays an increasingly active role
in promoting tobacco policy advocacy in the Central and Eastern
European region.

1. Publication of Filter

In March 2001 the Foundation started the publication of the first ever
tobacco advocacy newsletter in English for Central and Eastern
European countries (Filter and its electronic version, Filter Online at
                                                                      5 Updates from both INB3 and
  INB4      have     been      published        in     the     newsletter
  l and of INB4 in press), along with an introduction of FCA
  l)    and     the   FCA      manual       for     FCTC     participants

  About 80 colleagues from the region, including national counterparts
  on tobacco of WHO, received more then 120 hard copies of the
  newsletter four times in 2001. The newsletter focuses on he successes
  and failures of advocacy work in the region, and also provides regular
  updates on the process of development of FCTC (see the electronic form
  on the Foundation’s website).

  2. Website development

  Lately, the Foundation developed a website for documents related to the
  organisation and evaluation of community based tobacco control
  activities, mainly non-smoking days/smokeouts, usually held in
  November every year in an increasing number of CEE countries. The
  website in now accessible through the Foundation’s main site and it
  will be maintained by the end of November 2002 according to an
  agreement with the Open Society Institute, New York.

  1. Any other relevant information

  The Foundation is founding member of the International Network of
  Health Promotion Foundations, an initiative launched in August 1999
  by the Victorian Health Promotion Foundation (based in Melbourne,
  Australia). The network is aimed at promoting the introduction of an
  earmarked tax of tobacco products and channelling these resources for
  funding tobacco control activities. It provides technical assistance to
  countries wishing to establish health promotion foundations using this
  financial mechanism. The network held its second meeting in Bangkok
  in March 2002. Experts of the Health 21 Hungarian Foundation and
  the Victorian Health Promotion Foundation will develop an advocacy kit
  in promoting the establishment of earmarked taxation in countries of
  the CEE region. It was also decided the next meeting of the network will
  be held in Budapest, Hungary in April 2003. For more information on
  the network go to or to

Hungarian Society of Allergology and Clinical Immunology (HSACI)
  Organization of national, regional and international meetings,
  postgraduate courses, publication of scientific books and educational

  Health promotion and health education

Stop smoking, nongovernmental organization (NGO)
   - to prepare, organise and implement activities focused at smoking
     prevention and smoking cessation
   - to organise regional, national antismoking campaigns and events
   - interest presentation and non-smokers laws protection
   - law protection of children and young people against secondhand
      smoking in families and at places, where children and young people
      often take part
   - to cooperate with international institutions and change the
      experiences in fight against smoking
   - educational-preventive programmes for young people at schools
   - organization of trainings, workshops focused at harmful effects of
   - to provide advisory service about smoking prevention, smoking
   - to publish bulletins, leaflets about smoking

NGO Estonian Association Anti-AIDS
  Association carries out projects on HIV/STI prevention and promotion
  of safer sexual behaviour among scoolchildren, adolescent students,
  schoolteachers and army recruits. The Association has developed
  innovative training material in Estonian and Russian based on WHO
  and UNESCO manuals and other International organizations. The
  Association works in close collaboration with State organisations and

The Pancyprian Organization of the Blind
  Among the activities of the Pancyprian Organization of the Blind
  1. Continuous Close collaboration with the School for the Blind on
     issues o training of blind persons as switchboard operators.
  2. Organization and coordination of vocational training             and
     rehabilitation programs for the blind in various sectors.
  3. Annual General Assemblies of the Organization, which were fairly
     well attended (200 out of the 965 members.
  4. Seminars entitled "Latest Developments in the Field of
     Ophthalmology and Ocular Diseases and Current Therapeutic
     Methods" (29 June, 2002 - Amathus Beach Hotel, Limassol & 1st
     October, 2005, Europa Hotel - Nicosia).
  5. Organization of meetings and seminars on various subjects
     concerning health and nutrition, physical fitness and eugenics by
     the Commissions of Youth, Women, Sports, Recreation and Leisure
     of the Organization.
  6. Digitisation of the Catalogues of the talking book library and the
     library of Braille books, that can be searched electronically at the
     website of the University of Cyprus.
  7. Coordination and organization of different events for the celebration
     of the European Year of People with Disabilities in Cyprus.
  8. Implementation of the European Union Programme "Youth for
     Europe", with the participation of 15 members of the Sport Club
     "Ifaestos" from Thessalonica – Greece and 15 young members of the
     Organization (Nicosia – October, 2002).

  9. Hosting the third PanHellenic Conference for people with visual
     disability )Nicosia – Cyprus, October, 2003).
  10.Participation to the 6th General Assembly of the European Blind
     Union (Athens - Greece, 2003).
  11.Participation to the 7th General Assembly of the World Blind Union
     (Cape Town - South Africa, 4-10 December, 2004).
  12.Development of a website in order to celebrate the European Year of
     People with Disabilities 2003, with the support of the European
  13.European Youth Exchange program, in which young people from
     Cyprus, Greece, Austria and Ireland explored several thematic areas
     as the internet, support material and software for the blind and
     information material related to new technology (Thessalonica -
     Greece, June, 2003).
  14.Hosting of the eleventh meeting of the Balkan Consultative
     Committee by the Organization (Nicosia – Cyprus, 16-17 May, 2003.
  15.Participation to the Constitution Committee of the European Blind
     Union (Wachtberg-Niederbachem – Germany, 14 December 2002).
  16.Representation of Cyprus by the sports team of the Organization to
     the Balkan Athletic Games (Thessalonica - Greece, September,
  17.Representation of Cyprus at the                Panhellenic Athletics
     Championship (Athens - Greece, April-May each year).
  18.Participation of athletes to the IPC World Athletics Championships
     (Lille/Villeneuve d'Asq - FRANCE, 20-28 July, 2002).
  19.Representation of Cyprus by the football team of partially sighted
     (Cat. B2/3) to the Five-a-Side Football B2/B3 World
     Championships, (North Italy, 19-29 September 2002 and
     Manchester - Great Britain, 10-19 December, 2004).
  20.Organization of a B2 International Five-A-Side Football Tournament
     for partially sighted (Nicosia - Cyprus, 20-26 November, 2003).
  21.Organization of a B1 International Five-A-Side Football Tournament
     for the Blind (Nicosia - Cyprus, 20-22 May, 2005).
  22.Participation of the Organization to the 2004 Paralympic Games
     (Athens – Greece, 20-30 September, 2004).
  23.Participation of the swimming team of the Organization to the IPC
     World Swimming Championships, (Mar del Plata, ARGENTINA,
     December, 2003).
  24.Organization of an international sports seminar under the auspices
     of the International Blind Spors Association on matters such as the
     management and coordination of activities of Sport Organizations of
     the Blind and guidance/support to sports teams consisting of blind
     and partially sighted individuals (Limassol - Cyprus, 5-6 December,

                          2. Public health

2.1. What does public health mean and include in your

Health 21 Hungarian Foundation
  The term “Public Health” includes all efforts aimed at improving the
  health of the Hungarian population, such as health promotion and
  disease prevention. The sphere of efforts range from public health
  advocacy to organising screening programmes for early detection of
  breast cancer.

Hungarian Society of Allergology and Clinical Immunology (HSACI)
  Its aim is the improvement of the general health status of the
  population by organized activities of the society and by the resources of
  the community
  It includes demography, epidemiology, the determination of the health
  needs and priorities and their fulfilment.

  It means the medical ( and multisectoral) science and practice of
  protecting and improving the health of the populations. It includes
  monitoring of the health of communities and populations at risk, health
  promotion and health education, disease prevention , application of
  other intervention measures etc. It helps to formulate of public policies
  designed to solve health problems.

Stop smoking, nongovernmental organization (NGO)
   - Public health in the Slovak Republic means providing activities
      connected with health protection in these fields:
   - environmental hygiene
   - hygiene of children and young people
   - nutrition hygiene
   - preventive work medicine
   - health protection against ionizing radiation
   - epidemiology
   - medical microbiology
   - health education
   - medical statistics
   - teaching and education

NGO Estonian Association Anti-AIDS
  Health lifestyle

The Pancyprian Organization of the Blind
  Health care is provided by the Government Medical Services and the
  private medical sector.

   The Government Medical Services can be used by any person who
   chooses to be treated at a Government Medical Institution.

   Free of charge or at reduced fees care is provided by the Government
   Medical Services to certain groups of the population. Patients not
   belonging to these groups pay the fees prescribed from time to time.

   The government medical institutions are administered by the Ministry
   of Health through the Department of Medical and Public Health
   Services and are financed by general taxation through the budget.
   The Public Health Sector System consists of eight hospitals and a
   number of Primary Health Care Centres around the country. The
   hospitals offer services for primary, secondary and tertiary care. One of
   the hospitals in Capital of Cyprus (Nicosia) is specialized in services for
   mother and child whereas the other hospital in Nicosia is being used as
   a referral hospital for very serious health care problems.

   Services that are not offered by the public hospitals may be bought by
   the private sector through procurement procedures and contract

   Persons making use of the private medical sector pay the fees out-of-
   pocket. Certain groups are covered by medical funds, operated by trade
   unions or employers. These funds provide full or partial coverage of
   medical expenses incurred by their members.

2.2. What kind of organizations, institutions and public
authorities are involved and responsible for public health?

Health 21 Hungarian Foundation
  There are a number of NGOs and public agencies working in public
  health. The most relevant among them are:

      The Office of the Public Health Commissioner acts as co-ordinator
       for the country’s public health efforts. Administratively it belongs to
       the health ministry but it is enough independent to be able to also
       participate in advocacy efforts, with special regard to media
      The Public Health Department of the Ministry of Health co-ordinates
       public health efforts directly related to the health ministry.
      The National Public Health and Medical Officer Service has a
       countrywide     network      of    public    health/health     education
       departments, which do plan and implement public health
       programmes in all counties and major towns of the country.
      The National Institute for Health Development is (should be) a
       professional centre of excellence for the development and evaluation
       of public health programmes.
      There are more than 6,000 NGOs working in some aspects of public
       health and disease prevention. The tobacco control field is one which
       has the most developed network of NGOs working on it.

Hungarian Society of Allergology and Clinical Immunology (HSACI)
  Ministries (health, environment etc) , independent public health
  authorities, national institutes of public health, epidemiology etc, and
  their regional and local branches.

  Mostly the Institute of Public Health with Regioanal Organisations, the
  Ministry of health and NOGs
Stop smoking, nongovernmental organization (NGO)
   - General Office and Regional Offices of Public Health in Slovak
   - WHO Country Office in the Slovak Republic
   - Health Ministry of the Slovak Republic
   - Slovak medical society
   - General Secretariat of Ministers Committee for Drug Addiction and
      Drug Control in the Slovak Republic

   -   National Coordination Committee For Drug Control
   -   Slovak Red Cross
   -   Centre for Drug Addiction Therapy
   -   Slovak League Against Cancer
   -   Slovak National Coalition For Tobacco Control
   -   Stop smoking and other non-governmental organizations closely co-
       operate with governmental organizations.

NGO Estonian Association Anti-AIDS
  Ministry of Social Affairs, Health Protection Inspectorate, National
  Institute for Health Development and others.

The Pancyprian Organization of the Blind
  Ministry of Health, Health Services, NGOs (Organizations of patients,
  Organizations of Persons with Disability, Self-help organizations and
  groups, Supportive organizations and groups, etc.)

2.3. Do you have active public health NGO networks in your

Health 21 Hungarian Foundation
  Yes, there are some topic driven networks, such as cancer control
  organisations (under the umbrela of the Hungarian Cancer League),
  tobacco control organisations (Hungarian Coalition on Tobacco Control
  and Hungarian Alliance for Tobacco Control), drug-prevention
  networks, etc.

Hungarian Society of Allergology and Clinical Immunology (HSACI)
  Yes, like AIR Working Group

  CNVOS- Center of NGOs of Slovenia.
  Coalition of NGOs in the drug field…

Stop smoking, nongovernmental organization (NGO)
   In Slovak Republic there is not active working public health NGO
   network, but Stop smoking, NGO strives to co-operate with other NGOs
   and governmental organizations at the purpose of creating effective and
   active public health network.

NGO Estonian Association Anti-AIDS
  Country Coordinative Mechanism (CCM) at Ministry of Social Affairs –
  public commission as a national consensus group on HIV/AIDS. It
  seeks to co-ordinate efforts to respond effectively to HIV epidemic
  including designing national programmes and seeking the required
  resources. In particular, the CCM will responsible for managing all
  relations with the Global Fund to Fight AIDS, TB and Malaria.

The Pancyprian Organization of the Blind
  No we don’t.

2.4. Do your organisation has co-operation with other NGOs
  and governmental organisations?

Health 21 Hungarian Foundation
  The Health 21 Hungarian Foundation’s one primary objectives is to
  promote     communication      and    collaboration   between    various
  organisations working in public health, with special regard to tobacco
  control. As such, the Foundation has lanuched the Hungarian Coalition
  on Tobacco Control on 30 August 2005 and manages an electronic
  listserve/mailing list for more than 65 professionals working in tobacco
  control. The Foundation is in daily contact not only with NGOs, but
  also with governmental agencies and the media.



Stop smoking, nongovernmental organization (NGO)
   Yes, we co-operate with other NGOs and governmental organizations
   mostly with those which are focused at tobacco control. Stop smoking
   in closely co-operation with official Drug information website attempts to integrate all the governmental and non-
   governmental organizations in the field of tobacco control and in
   providing complete smoke-free information service.

NGO Estonian Association Anti-AIDS
  Association Anti-AIDS cooperate with other AIDS-service and
  governmental organizations in structure of CCM.

The Pancyprian Organization of the Blind
  Yes, we do.

2.5. Do your organisation participates on decision- making
  processes? If yes, how?

Health 21 Hungarian Foundation
  The Foundation has initiated a number of lobbying efforts so far. These
  include letter writing campaigns, providing members of the Parliament
  with written
  background materials, orchestrates international letter writing
  campaign to raise awareness on effective tobacco control interentions
  among decision makers (such as the Globalink-petition campaign of
  October-November 2005).

   The Foundation regularly contacts members of the Parliament and
   government ` officials to promote its and its partners positions.

  Not , but we often present our scientific opinion.

  No or not enough

Stop smoking, nongovernmental organization (NGO)
   Stop smoking, NGO as a member of National Coordination Committee
   For Drug Control has the possibility to participate in decision - making
   processes, e.g. at creating and adherence of the Nonsmokers Protection
   Act, Law of Advertisement of Tobacco Products, etc.

NGO Estonian Association Anti-AIDS
  Only as member of CCM

The Pancyprian Organization of the Blind
  Yes. We have meetings, organisations of seminars and workshops on
  public health, submission of memos and reports to the public health


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