The Survivorship Program and the Psychosocial Oncology and Palliative

The Survivorship Program and the Psychosocial Oncology and Palliative Care Department at the Princess Margaret Hospital present: With, Through and Beyond Cancer an Education Course for Health Care Providers Friday, March 23 for Patients, Caregivers and Survivors Saturday, March 24 Sharing theJourney: Delta Chelsea Hotel, Toronto, Ontario, Canada Friday, March 23 and Saturday, March 24, 2007 Please visit www.continumeded.com/sharingthejourney/registration.htm Contact Mary Hooey Tel 416 946 4457 Fax 416 946 4442 Email mary.hooey@uhn.on.ca wa lking tog et h e r With, through and beyond an Education Course for Health Care Providers Friday, March 23, 2007 Objectives This course will focus on the development of the skills and knowledge necessary to manage and cope with the complex problems in psychosocial cancer care with a particular focus on survivorship issues. Plenary presentations and intensive hands-on workshops by distinguished faculty will offer specific approaches to clinical practice issues within a multidisciplinary context. Skills workshops will allow for interactive exchange with participants. Who Should Attend Health care providers, researchers and volunteers from all disciplines in the oncology setting. an Education Course for Patients, Caregivers and Survivors Saturday, March 24, 2007 Objectives This course will focus on helping you cope in your cancer journey. Presentations will focus on some of the practical and important issues survivors and families can do to support each other with, through and beyond treatment. Valuable opportunities to learn new skills and approaches to living with cancer will be offered. Workshops will encourage interaction among survivors, family members, friends and faculty. Who Should Attend This one-day course has been developed for those who have been affected by cancer. It is designed to assist cancer survivors at any point in their cancer journey, along with their family and friends. A survivor is defined as anyone with a personal history of cancer. Program-at-a-Glance FRIDAY, March 23 Health Care Professionals AGENDA 7:30–8:30 8:30–8:40 Breakfast and Registration Rosetti-Foyer, 3rd floor WORKSHOPS 1 Healing Beyond the Body: Opportunities for volunteer support Maja Regehr and Marlene Taube-Schiff Turner, 3rd floor Welcome tba Introduction Gary Rodin, Head, Psychosocial Oncology and Palliative Care Program Rosetti, 3rd floor 8:40–9:15 Keynote Speaker: Pamela Catton, Medical Director, Breast Cancer Survivorship Program Keynote Speaker: Cancer Survivor 2 Maximizing Your Patient Education Skills... An organizational strategy for improving competency in healthcare patient teaching Irene Wright and Audrey Jusko Friedman Austin, 3rd floor 9:15–9:45 Refreshment Break Rosetti-Foyer, 3rd floor 3 Caregivers Need Support Too! Helping family caregivers of cancer patients through the illness trajectory Terry Cheng and Sarah Hales James, 3rd floor 9:45–12:15 Workshop (see below) 12:15–12:45 Lunch Monarchs, Main level 12:45–1:45 Like a Fish Out of Water: Men Being Helpful to Women with Cancer: a reader’s theatre performance Rosetti, 3rd floor 4 The Transition to Palliative Care: Dealing with difficult issues and discussions Dori Seccareccia, Anita Singh and Kerry Knickle Baker, 3rd floor 1:45–2:15 2:15–5:00 6:30 Refreshment Break Rosetti-Foyer, 3rd floor Workshop Dinner Mountbatten Salon, 2nd floor Keynote Speaker: Marla Shapiro, CCFP, MHSc, FRCP(C), FCFP Keynote Speaker: Robert Buckman, MB 5 How to Become an Expert Survivor by “Knowing, Navigating and Negotiating!” Scott Secord Seymour, 2nd floor 6 Mindfulness Based Stress Reduction Tatiana Melnyk Scott, 3nd floor 7 Individual Therapy Mary Elliott Stevenson, 2nd floor 8 Informatics—Reaching patients in the community through virtual chat and support groups David Wiljer and Michelle Arbuckle Rosetti, 3rd floor Local Area Map: Downtown Toronto Casa Lo ma upont Rd Avenue s Davenport Road Yorkville Ave nd Ave to Danfo rth Ave s Bloor St s St Georg e s ROM Cumberla s s Queen's Park y Wellesle St Delta Chelsea Hotel rne St n Parliame t St Harbord St H e oskin Av Ave. St Elm St. Universit Order St . Murray St Spadina Beverly McCall St Gerrard St St Bathusrt s St Dundas City Hall Eaton Centre t Yonge S s s N Art Galle ry of On tario s Queen S t Richmon d St e St Royal Ale xa atre nder The all omson H e SkyDom Adelaid s s s Union Sta tion ck to Ferr y do to Island Toron Hummin gbird Ce ntre Church PMH Bay St y of Universit College Jarvis St St y Ave Toronto Sherbou St s Carleton s St Distillary District King St Roy Th n St Wellingto Front St r CN towe Queens Quay Blvd ssway keshore La er Expre Garden tt map no o scale Harbourf ront Program-at-a-Glance SATURDAY, March 24 Patients, Survivors and Caregivers AGENDA 7:30–8:30 8:30–8:40 Breakfast and Registration Rosetti-Foyer, 3rd floor SATURDAY WORKSHOPS 1 Peer-to-Peer Support: Sharing the journey Maja Regehr and Marlene Taube-Schiff Turner, 3rd floor Welcome tba Introduction Audrey Friedman, Director, Patient Education and Survivorship Rosetti, 3rd Floor 2 Let Your Cancer Speak: The courage to re-frame the life you have, not the life you imagined! Marc Doucet and Sharon Konyen Austin, 3rd floor 8:40–9:15 Keynote Speaker: Pamela Catton, Medical Director, Breast Cancer Survivorship Program Keynote Speaker: Cancer Survivor Refreshment Break 3 Nutrition and Diet During and After Treatment: Strategies for a healthy lifestyle Daniela Fierini and Susan Haines James, 3rd floor 9:15–9:45 4 Survivorship and Sexuality: What men are afraid to tell their partners Andrew Matthew Baker, 3rd floor 9:45–12:15 Workshop (see below) 12:15–12:45 Lunch Monarchs, Main level 12:45–1:45 Like a Fish Out of Water: Men Being Helpful to Women with Cancer: a reader’s theatre performance Rosetti, 3rd floor 5 Caregivers are Survivors Too: Finding hope, balance and support Maureen Daniels and Cheryl Kanter Seymour, 2nd floor 1:45–2:15 2:15–5:00 Refreshment Break Rosetti-Foyer, 3rd floor Workshop 6 Dispelling Myths and Maintaining Hope: Palliative care as part of survivorship Dori Seccareccia, Anita Singh and Kerry Knickle Scott, 3rd floor 7 How to Become and Expert Survivor by “Knowing, Navigating and Negotiating” Scott Secord Stevenson, 2nd floor 8 Google Rehab: How to search effectively for health information on the internet Michelle Arbuckle and Todie Winter Rosetti, 3rd floor FRIDAY WORKSHOPS 1 Healing Beyond the Body: Opportunities for volunteer support Maja Regehr, MSW, RSW and Marlene Taube-Schiff, PhD, C Psych This workshop will highlight the unique and innovative types of psychosocial oncology support that may be offered to patients through volunteer roles in a hospital setting. We will focus on how volunteering can be broadened beyond more “traditional” roles. Particular attention will be placed on ideas for implementing a comprehensive hospital wide program, including all aspects of volunteer management such as screening, training, orientation and evaluation, as well as cautions related to risk management. 2 Maximizing Your Patient Education Skills... An organizational strategy for improving competency in healthcare patient teaching Irene Wright, MEd and Audrey Jusko Friedman, MRT(T), BA, MSW Patients today want care that addresses their needs for information and education. Healthcare professionals want to empower patients through education. Patients and providers form a key partnership that ensures teaching, support and care are tailored to individual needs and preferences. The University Health Network (UHN) Organization and Employee Development Department and the Patient Education Network (PEN) developed an evidence-based professional development program to enhance clinical staff competencies as patient educators. A three-part education program, Maximizing Your Patient Education Skills, was designed to support translation of the guidelines into action. Course topics included: adult education, communication and learning styles, curriculum development, instructional methodologies and collegial mentoring. In addition to interactive teaching methods, an innovative education strategy employing “standardized patients” was utilized. Since May 2004, over 200 clinical staff engaged in this learning program. Findings indicate that participants found the course enhanced their perceived competency and skills as patient educators. Staff found the curriculum valuable and use of standardized patients an effective strategy to enhance their learning experience. 3 Caregivers Need Support Too! Helping family caregivers of cancer patients throughout the illness trajectory Terry Cheng, MSW, RSW, ResDip SW and Sarah Hales, MD FRCP(C) As the “co-sufferer” family caregivers are in the , unique position of needing support as well as providing it. This workshop will draw on clinical case examples and the research literature to highlight the needs of caregivers from disease diagnosis through to bereavement. Learning Objectives: • Understand the multiple factors (including gender, relational factors, and place in the illness trajectory) that may influence the caregiving experience. • Be familiar with clinical interventions to better assist this population. 4 The Transition to Palliative Care: Dealing with difficult issues and discussions Dori Seccareccia, CCFP-EM, MclSc, Anita Singh and Kerry Knickle The transition from active chemotherapy/ radiation therapy to palliative care can be frightening and challenging for patients and their loved ones. Communication around introducing palliative care is often very emotional, intense and challenging. Learning Objectives: • • • • Describing the myths surrounding palliative care. Defining hope and its place in palliative care. Describing the therapeutic dialogue. Developing the necessary communication skills to transition patients and loved ones from active care to palliative care using standardized patients. 5 How to Become an Expert Survivor by “Knowing, Navigating and Negotiating!” Scott Secord, MSW, RSW Focus on building essential survivor selfmanagement skills. Three critical areas will be addressed: Knowing – yourself by exploring and identifying what supports and information will personally work best, Navigating – selecting and locating key resources needed to support your cancer journey and Negotiating – learning practical skills to help you work effectively with your treatment team maximizing your understanding of your care. This course is designed for survivors and caregivers at any point in their cancer journey. 6 Mindfulness Based Stress Reduction Tatiana Melnyk Jon Kabat-Zinn introduced Mindfulness Meditation into hospital care in the 1970s. Since then Mindfulness Meditation has been applied to a variety of emotional and psychological disorders. Recently, Mindfulness has been used in cancer care addressing issues such as pain control, emotions such as anger, fear, sadness and in dealing with existential concerns. There are many misconceptions about Mindfulness, for both patients and health care providers. These misconceptions include the idea that Mindfulness Meditation is a relaxation technique, that it involves learning how to have only positive thoughts, or that it involves having a blank mind. For clinicians, the practice of Mindfulness Meditation presents challenges as well. Meditation is somewhat of a paradox in that we learn to help patients by non-doing, focusing instead on cultivating compassionate awareness. In Mindfulness, we learn to step back and view all of our experiences, negative or positive, with non-judgmental awareness. Ultimately patients learn that they have the inner strength to deal with any circumstance and face it with centredness, resolve and self trust. 7 Individual Therapy Mary Elliott DESCRIPTION TO COME 8 Informatics—Reaching patients in the community through virtual chat and support groups David Wiljer, PhD and Michelle Arbuckle, MLIS The Patient Education and Survivorship Program at Princess Margaret Hospital have developed a number of evidence-based web-interventions designed to improve the continuity of care between the clinic and the community. In this workshop, we will describe strategies for patient empowerment that harness the power of Health Information Technologies, and methods for engaging patients and providers to ensure the success of these programs. Learning Objectives: • Define strategies for utilizing new Health Information Technologies to build stronger community support programs. • Define the state of the research and the levels of evidence in this emerging field. • Illustrate the implementation of these new technologies through several ongoing initiatives and resources. SATURDAY WORKSHOPS 1. Peer-to-Peer Support: Sharing the journey Maja Regehr, MSW, RSW and Marlene Taube-Schiff, PhD, C Psych “Now that I am finished treatment, I want to give something back.” This common desire amongst cancer survivors reflects a need to find personal meaning and a way to ease the stress of the journey for others. While offering benefit for both long-term survivors and the newly diagnosed patient, volunteering within a cancer organization presents challenges. This workshop focuses on the benefits and cautions of volunteer opportunities, highlighting training, supervision and self-care requirements. 2. Let Your Cancer Speak: The courage to re-frame the life you have, not the life you imagined! Marc Doucet, BA MDiv and Sharon Konyen, BA, BEd, MTS A diagnosis of cancer brings changes to our relationship with ourselves, with others, and with the world, affecting the course of our lives. An interactive workshop, participants will be presented with a Narrative Approach and how it can be utilized to inform our spiritual understandings. Participants will have an opportunity, using a variety of mediums, to re-frame and express their story and spirituality in light of their cancer diagnosis. 3. Nutrition and Diet During and After Treatment: Strategies for a healthy lifestyle Daniela Fierini, RDs and Susan Haines, RDs Learning Objectives: • To understand the difference between good nutrition during cancer treatment and good nutrition after treatment. • To learn coping strategies for some common nutrition problems that cancer patients face. • To learn how to get back on track with healthpromoting nutrition when treatment is over. • To understand the role and limitation of complementary therapies. It will be a dynamic and interactive session utilizing a question and answer format. 4. Survivorship and Sexuality: What men are afraid to tell their partners Andrew Matthew, PhD, C Psych This workshop examines how cancer and its treatment may affect sexuality in men and their intimate partners. Combining information collected from the scientific literature and excerpts from patient and partner interviews to explore: • The type and prevalence of sexual dysfunction and associated distress. • Medical treatments for sexual dysfunction. • Patient and partner response to medical treatments for sexual dysfunction. • An innovative combined medical-psychosocial treatment approach to sexual dysfunction. 5. Caregivers are Survivors Too: Finding hope, balance and support Maureen Daniels and Cheryl Kanter This interactive presentation will take an in-depth look at the stresses that impact on a caregiver when a loved one is diagnosed with cancer. It focuses on how stresses affect the caregiver and their ability to live well while also managing the many challenges that they must now cope with. Useful, effective and practical ways of coping are discussed. Participants will have a handson opportunity to explore several complementary therapies that may be useful for successful ongoing survivorship. Learning Objectives: • Participants will understand how the diagnosis of cancer in a loved one can impact on their own well being. • Participants will be able to identify ways for improving their own ability to cope and meet the challenges of their loved ones‘ diagnosis. • Participants will be exposed to a number of approaches and tools for successful coping, and will be able to identify what kinds of activities, strategies and tools would be most helpful in maximizing their personal coping abilities. 6. Dispelling Myths and Maintaining Hope: Palliative care as part of survivorship Dori Seccareccia, CCFP-EM, MclSc, Anita Singh and Kerry Knickle The transition from active chemotherapy/radiation therapy to palliative care can be frightening and challenging for patients and their loved ones. There are often many misconceptions about what it means to be referred to the palliative care team. This case-based workshop focuses on enabling participants to: • Understand the philosophy of palliative care • Dispel the myths surrounding palliative care • Maintain hope in the face of terminal illness • Realize that one can be a survivor and be palliative at the same time 7. How to Become an Expert Survivor by “Knowing, Navigating and Negotiating!” Scott Secord, MSW, RSW Focus on building essential survivor selfmanagement skills. Three critical areas will be addressed: Knowing – yourself by exploring and identifying what supports and information will personally work best, Navigating – selecting and locating key resources needed to support your cancer journey and Negotiating – learning practical skills to help you work effectively with your treatment team maximizing your understanding of your care. This course is designed for survivors and caregivers at any point in their cancer journey. 8. Google Rehab: How to search effectively for health information on the Internet Michelle Arbuckle, MLIS and Todie Winter, MLIS A Google search of the word Cancer yields an overwhelming 200 million results. Developing strategies to focus an Internet search and determine the credibility of these sites is essential for patients and families seeking quality health information. REGISTRATION FORM Education Course for Health Care Providers Sharing the Journey: With, Through and Beyond Cancer Delta Chelsea Hotel, Toronto, Ontario, Canada Friday, March 23, 2007 NAME (as it is to appear on name badge): Address: Phone Number: I will attend the Friday evening Dinner Yes No Food restrictions: Email: WORKSHOPS Morning Session: Please select two workshops in order of preference Afternoon Session: Please select two workshops in order of preference 1. Healing Beyond the Body: Opportunities for volunteer support 2. Maximizing Your Patient Education Skills … An organizational strategy for improving competency in healthcare patient teaching 3. Caregivers Need Support Too! Helping family caregivers of cancer patients throughout the illness trajectory 4. The Transition to Palliative Care: dealing with difficult issues and discussions 5. How to Become an Expert Survivor by “Knowing, Navigating and Negotiating!” 6. Mindfulness Based Stress Reduction 7. Individual Therapy 8. Informatics: Reaching patients in the community through virtual chat and support groups 1. Healing Beyond the Body: Opportunities for volunteer support 2. Maximizing Your Patient Education Skills … An organizational strategy for improving competency in healthcare patient teaching 3. Caregivers Need Support Too! Helping family caregivers of cancer patients throughout the illness trajectory 4. The Transition to Palliative Care: Dealing with difficult issues and discussions 5. How to Become an Expert Survivor by “Knowing, Navigating and Negotiating!” 6. Mindfulness Based Stress Reduction 7. Individual Therapy 8. Informatics: Reaching patients in the community through virtual chat and support groups by credit card Complete form and fax to: 416 946 4442 VISA Card number Expiry date Name on card Authorized signature Total amount Mastercard PAYMENT Registration FEES before February 3, 2007 $200 (CND Funds) by cheque Complete form and send with cheque payable to: Princess Margaret Hospital after February 3, 2007 $250 (CND Funds) Mail to: Ms. Mary Hooey Princess Margaret Hospital 610 University Avenue, 5-957 Toronto, ON Canada M5G 2M9 wa lking tog et h e r With, through and beyond REGISTRATION FORM Education Course for Patients, Caregivers and Survivors Sharing the Journey: With, Through and Beyond Cancer Delta Chelsea Hotel, Toronto, Ontario, Canada Saturday March 24, 2007 NAME (as it is to appear on name badge): Address: Phone Number: I will attend the Friday evening Dinner Yes No Food restrictions: Email: WORKSHOPS Morning Session: Please select two workshops in order of preference Afternoon Session: Please select two workshops in order of preference 1. Peer to Peer Support: Sharing the Journey 2. Let Your Cancer Speak: The courage to re-frame the life you have, not the life you imagined! 3. Nutrition and Diet During and After Treatment 4. Survivorship and Sexuality: What men are afraid to tell their partners 5. Caregivers are Survivors Too: Finding hope, balance and support 6. Dispelling Myths and Maintaining Hope: Palliative care as part of survivorship 7. How to Become an Expert Survivor by “Knowing, Navigating and Negotiating!” 8. Google Rehab: How to search effectively for health information on the Internet 1. Peer to Peer Support: Sharing the Journey 2. Let Your Cancer Speak: The courage to re-frame the life you have, not the life you imagined! 3. Nutrition and Diet During and After Treatment 4. Survivorship and Sexuality: What men are afraid to tell their partners 5. Caregivers are Survivors Too: Finding hope, balance and support 6. Dispelling Myths and Maintaining Hope: Palliative care as part of survivorship 7. How to Become an Expert Survivor by “Knowing, Navigating and Negotiating!” 8. Google Rehab: How to search effectively for health information on the Internet PAYMENT Registration FEES by cheque Complete form and send with cheque payable to: Princess Margaret Hospital $50 (CND Funds) by credit card Complete form and fax to: 416 946 4442 VISA Card number Expiry date Name on card Authorized signature Total amount Mastercard Mail to: Ms. Mary Hooey Princess Margaret Hospital 610 University Avenue, 5-957 Toronto, ON Canada M5G 2M9 wa lking tog et h e r With, through and beyond Delta Chelsea Hotel, Toronto, Ontario, Canada Friday, March 23, 2007 and Saturday, March 24, 2007 Presented by The Survivorship Program and the Psychosocial Oncology and Palliative Care Department at the Princess Margaret Hospital With, Through and Beyond Cancer Registration Information Registration form is also available on line at www.continumeded.com/sharingthejourney/registration.htm Sharing theJourney: Friday, March 23, 2007 Registration Fees Health Care Professionals before February 3, 2007 after February 3, 2007 $200.00 (CND) $250.00 (CND) Saturday, March 24, 2007 Registration Fee Patients, Survivors and Caregivers $50.00 (CND) Contact Mary Hooey Tel 416 946 4457 Fax 416 946 4442 Email mary.hooey@uhn.on.ca Accommodations $109.00 /night Delta Chelsea Hotel 33 Gerrard Street West Tel: 416 595 1975 Fax: 416 585 4375 Toll-Free: 1 800 243 5732 When booking your room, please refer to the event code GJAPSS. wa lking tog et h e r With, through and beyond