April 2005 _PDF-document_ - IFHOH Journal by lifemate


									                                      IFHOH Journal
           International Federation of Hard of Hearing People

President Marcia B. Dugan                                                        Journal Editor Ruth Warick
E-mail: mdugan@eznet.ne                                                          E-mail: journal@ifhoh.org
Fax: +1 315 531 8761                                                             Fax: +1 604 684-7575 (specify to R. Warick)

                                                                                                                Spring 2005

In this Issue

Editor’s Message by Ruth Warick                                                                           2
IFHOH President Marica Dugan                                                                              3
11th Annual Zennancho National Conference In Tokyo by Dr. Kazuhiko Seya                                   4
Hearing Loss in Prisoners by Dr. Marilyn Dahl                                                             6
Reaching Rural Communities by Sally Harvest                                                               7
Hard of Hearing Persons in Indonesia by Dr. Tony Setiabudhi                                              10
World Flight for Hearing Awareness                                                                       11
Overview of Disability Policy of the European Union by Laszlo Lovaszy                                    12
News bites                                                                                               16
International Federation of Hard of Hearing Youth AGM                                                    17
Dubrovnik, Croatia for IFHOH 2006 AGM                                                                    17

IFHOH is registered as a charitable organization at Vereinsregister Amtsgericht Hamburg, Germany (Nr. 69 VR 10 527) and
is also an International Non-Governmental Organization having special consultative status with the United Nations Economic
and Social Council (ECOSOC). It also works closely with the World Health Organization, having agreed a two-year joint work
programme for developing countries with the Prevention of Blindness and Deafness section of that Organization.

All the views expressed in this Journal are those of the writer for each article and does not reflect IFHOH’s views.

                                      IFHOH EXECUTIVE COMMITTEE
President                     Vice-President                        General Secretary                 Treasurer
Marcia B. Dugan               Barbara Wenk                          Darja Holec                       Harry Piela
USA                           SWITZERLAND                           SLOVENIA                          FINLAND
                            From the Editor’s Desk
                                       Ruth P. Warick

        Spring is here. It is a time of rebirth and renewal for nature and so too it should be for
ourselves. Taking time out to smell the roses, so to speak, is always a good idea. Fortunately, I
get daily floral enjoyment when walking my dog, Max. At first I used to think that the walks
were for him, but now I think that I am the beneficiary.
        Another form of renewal is keeping in contact with each other about hard of hearing
issues and concerns. I hope that this Journal fulfills an important function in this regard. Because
we are worldwide it is so important for us to take advantage of electronic communications to
share our experiences.
        This issue is exceptional in its international breadth with contributions from Japan,
Ireland, Indonesia, Hungary, Sweden, Canada and the United States. We are truly an
international community.
        In closing, I want to express thanks to Mikko Haho and his Nokia colleagues for showing
me their induction loop with the cellular telephone at IFHOH’s 2004 Conference in Helsinki.
Thanks as well for letting me make a transatlantic call to my mother during which both of us
could hear; in my case, the loop used with my hearing aid set to the T-switch made the
difference. Technology does indeed help us keep connected.

Ruth Warick
Editor, IFHOH Journal

            IFHOH President - MARCIA B. DUGAN
                                               President, IFHOH

The IFHOH 7th World Congress is history
but so many pleasant memories linger in my
mind. The venue, Finlandia Hall, was
perfect. The speakers and workshops were
superior and diverse in subject matter. The
social events were well planned and
delightful. The weather could not have been
better. But most of all what made it so very
special were the people. It was wonderful to
have representatives from so many
countries. I knew we could expect
delegations from Europe and was pleased to
see so many represented. I was thrilled with
representation from Kenya, Uganda, and
Zambia as well as India and China. I
enjoyed the many opportunities to exchange
ideas with so many people.

The very large delegation from Japan (60)
was heartwarming. I thank them for their
effort to get so many people to attend.        Marcia with other members of the IFHOH
                                               Board as follows:
It was a most accessible Congress. The         Back row Harry Piela and Jan Peter
induction loops in all rooms worked            Strömgren; Front row Barbara Wenk,
beautifully and the computer-assisted real-    Marcia Dugan and Darja Holec.
time translation in English, Finnish, and
Japanese was excellent.

Much appreciation goes to the planning
committee, headed so ably by Seppo
Matinvesi with support from the Finnish
Federation of Hard of Hearing People…and
especially from Maria Rajalsami, our angel
behind the scenes.

The general meeting in 2006 will be in
Dubrovnik and plans are also in
progress for Congress 2008 in Vancouver.
The dates will be posted in the next
newsletter but plan to come and enjoy
another exciting and educational adventure.
                                               Seppo Matinvesia, IFHOH Congress 2004
Marcia B. Dugan
       11th Annual National Conference in Tokyo of ZENNANCHO

As we announced in the spring issue of          Open College
IFHOH Journal, ZENNANCHO (All Japan             Nineteen specialized and three free entry
Association of Hard of Hearing People) had      courses were prepared for two days as an
its 11th annual national conference in          “Open College”, covering mainly the fields
Tokyo, Ichigaya from October 8th to 11th,       of medicine, education, administration, and
2004.                                           communication. Each course consisted of
                                                the advanced and substantial lectures or
September and October are the busiest           discussions with question and answer
season to get typhoon’s attack in Japan, and    periods for participants. All the participants
Typhoon No.22 has just hit Tokyo on             enjoyed the sophisticated content of the
Oct.9th as promised. Coinciding with the        courses, and we learned what hard of
typhoon, more than 5,000 participants           hearing people really want to study and talk
joined the conference for four days from all    about. The summary and detail of each
the parts of Japan. This annual meeting         “Open College” will appear in a conference
brings together hard of hearing and late-       report and individual booklet.
deafened persons and others to have new
encounters, to regenerate friendships, and to   Hearing Bazaar (Kikoe no Shoutengai)
engage in new experiences.                      More than 130 public and private sectors
                                                exhibited the various devices, equipment
The themes of the conference were,              and services relating the field of hearing. It
“Identify myself as a person with hearing       was a worthwhile opportunity for hard of
loss. Try! Who can? You can!” and “Our          hearing people to see and learn about
message from Tokyo, to Asia and to the          advanced hearing assistive devices as well
world”. The program was prepared                as well-designed services to improve the
according to these themes.                      quality of life for HOH people. It is our
                                                belief that this kind of exhibition will
accelerate the innovation of the hearing
assistive devices or services, and will lead               Conference Planned
to a barrier-free society.
                                                  You are invited to attend the 2006
Dinner Party with Miss Tenma’s Violin
                                                  conference on Beyond Newborn Hearing
Solo (Tokyo no Shirabe)
                                                  Screening: Infant and Childhood in Science
On Oct.9th, we had a customary dinner
                                                  and Clinical Practice at the Villa Erba
party with a violin solo of Miss Tenma,
                                                  Congress Center, Cernobbio, Italy from
who is reputed in the world playing
                                                  May 31 - June 3, 2006.
“BARADA”. We enjoyed her playing with
the assistance of various hearing assistive
                                                  The conference will focus on the most
devices and an image screen. All the
                                                  recent research in hearing identification and
participants became convinced that music is
                                                  intervention programs, audiologic and
not a matter of the lost world, but it is a
                                                  medical diagnosis, intervention for infants
matter of our world.
                                                  and children with hearing loss, as well as
                                                  models for hearing surveillance and
Plenary Session
                                                  outcomes for infants and children who have
The convention plenary session was held on
                                                  been identified early. Both basic scientific
Oct.10th. Although disability rights are
                                                  advances and clinical studies will be
supported by the United Nations, disability
anti-discrimination legislation is still on the
way in Japan. We have to strengthen our
                                                  The conference will include keynote
efforts to achieve this in alliance with other
                                                  addresses by distinguished scientists and
disability organizations in Japan and in the
                                                  clinicians, round tables, and platform and
world. At the session, five papers were
                                                  poster presentations by colleagues and
introduced as the “Message from Tokyo”.
                                                  experts from throughout the world, in a
                                                  truly international framework.
ZENNANCHO will be hosting a nation-
wide conference annually. The 2005
                                                  The scientific sessions will be
conference is in Nagoya at Aichi Prefecture
                                                  complemented by a comprehensive
on July 16th and 17th, at the same venue as
                                                  Exhibition. Further details are available on
EXPO 2005. We would like to see a lot of
                                                  the website: www.nhs2006.polimi.it
friends from all over the world. Please see
our web site of
http://www.zennancho.or.jp/ for the details.
See you there!                                             IFHOH JOURNAL

                                                  The next issue will be slated for the late
Submitted by
                                                  summer, 2005 with a deadline for
Kazuhiko Seya, Ph.D.
                                                  contributions of May 31-05. Your
Chief of International Division
                                                  contributions are welcomed: short and long
                                                  articles, anywhere from 25 to 1,500 words,
All Japan Association of Hard of Hearing
                                                  with 400 to 500 words (one page) preferred.
People (AJAHHP
                                                  News bites, information about coming
                                                  events and news about people are also
                                                  welcomed. Photographs and illustrations to
                                                  accompany articles would be appreciated.
                                                  Please send pictures in jpeg format and files
                                                  as rich text or word documents. Thank you!
                                                  Send to journal@ifhoh.org

                               PRISONERS STORY
                                      Dr. Marilyn Dahl

                                                  percent of the custodians talked about
                                                  hostile, aggressive, and defiant behaviours,
                                                  which made it difficult to interact with
                                                  prisoners. This was not surprising, given the

                                                  These same officials were given a list of 31
                                                  different behaviours, and asked what it
                                                  meant to them when a prisoner behaved in
                                                  this way. These were all behaviours that are
                                                  typical of hard of hearing people.
In 1993-94 I investigated the presence and        Custodians were five times more likely to
implications of hearing loss in federal           interpret a behaviour as indicative of a
prisons in British Columbia, Canada. From         personality problem, rather than of a
time to time I still get letters or emails from   hearing loss.
persons who want further information on
the findings. Some of these persons are           Furthermore, prisoners, when interviewed,
concerned with prisoners, others are often        described ways in which they were
the teachers of hard of hearing children.         punished because their custodian had
                                                  misinterpreted their hearing-loss-related
Findings of the study were that 69% of            behaviour. They also talked about extreme
prisoners tested had some level of hearing        isolation, made worse because they could
loss. Often, this hearing loss had been           not use the telephone or television.
previously unidentified, either by
themselves or by prison officials. Of these       The study showed how easily anyone with
prisoners with hearing loss, 62% were in          power can misinterpret typical hard of
the under 40 age group. Only 10% of all           hearing behaviour, with a resultant negative
subjects said their hearing had been tested       impact upon the person with the hearing
since incarceration. People tend to deny          loss. This is true whatever the age or
having a hearing loss, and not all prisoners      situation of the hard of hearing person. Not
were tested in this study. Thus, there may        only prisoners are affected. Even when
actually be a higher percentage of hearing        people understand that the person they are
loss in prisoners than we found. It could be      talking to is hard of hearing, they tend to
expected that the older prison population         have a poor grasp of the behavioural impact
would show hearing loss, but it was a             of partial hearing loss. Adults who cope
surprise to find so many under 40 with            best with their hearing loss are those who
damaged hearing. Lifestyles which included        tell others that they are hard of hearing and
drug use, gunfire and head trauma appeared        explain what is needed to facilitate
to be contributors to hearing damage.             communication. Hard of hearing children
                                                  within the school system are even more
Another part of the study sought to               vulnerable to misinterpretation of hearing
understand the social dynamics between            loss related behaviours.
prisoners who are hard of hearing and their
custodians. Custodians were asked which
behaviours gave them the most problems
when talking with prisoners. Sixty-eight
                         Reaching Rural Communities
                                         By Sally Harvest

As urbanization has spread, the term – rural      main hospitals have audiologist services
– is generally thought of as an area of Africa    within the ENT departments. Although
or perhaps Asia, where people live in             audiologists are permanently based in the
isolated groups and probably in abject            cities or larger towns, some of them conduct
poverty. They may have very little access to      clinics in the smaller towns – usually once a
clean water, education and health care            week.
services. The reality is that many people in
the developed world live in rural areas and       Services are not always available and so
although their needs may be slightly              people wearing hearing aids cannot access
different, they too find it difficult to access   simple services such as having their plastic
quality education and health care services.       tubes replaced. Batteries are available
                                                  through pharmacies and sometimes
The Republic of Ireland is a relatively small     opticians that are used as a base for visiting
country, population ± 4 million. It is widely     audiologists. When enquiring where to get
accepted that 1/7 people have some degree         replacement plastic tubing in January, a
of hearing impairment. The National               hearing aid user was told that the visiting
Association for the Deaf (Dublin) is              audiologist was only coming back to West
planning a formal survey to confirm this          Cork at the beginning of April. Fortunately
estimate. There are currently 40 ENT (Ear         the user was able to receive new tubes
Nose and Throat) surgeons in Ireland who          through the post from Cork City and fit
are all concentrated in city hospitals. The
herself.                                             about it and receive support in coping with
                                                     the disability.
Doctors (local based General Practitioners)
are available on specific days in the smaller        In West Cork there is an estimated 450
villages. Should anyone have an emergency            aging bachelor farmers living alone on the
on another day they are required to travel to        Beara Peninsula. These farmers and some of
a hospital in the nearest town. Doctors refer        the other rural inhabitants rely on a rural
patients to hospitals in the nearest city            transport bus service to get into the nearest
should they need to see an ENT. This                 village, probably once a week, to buy their
involves organizing transport from home to           necessities. Bantry Rural transport (now
the hospital and back again, sometimes               called West Cork Rural Transport) has just
involving a car journey of two hours each            received funding for the bus. This service
way. Outreach community services have                hasn’t started in Beara yet – it has, however,
been set up to try and meet the day-to-day           started on Sheepshead Peninsula. In West
needs of rural inhabitants. However, access          Cork there is a coalition of service providers
to audiologists and ENT surgeons remains             catering for the needs of physically,
difficult. As hearing impairment is not              intellectually and mentally disabled people.
discussed and there is still the stigma of           Up until March 2004 none of these
being ‘deaf and stupid,’ people with hearing         organizations included hard of hearing or
difficulties need to be encouraged to talk           deaf issues in their programs.

                                                                  West Cork Community Partnership
                                                                  has now set up a program delivering
                                                                  a workshop on Deaf and HOH issues
                                                                  the first Friday of each month.
                                                                  Through these workshops they hope
                                                                  to develop a database of children and
                                                                  adults with hearing impairment and
                                                                  provide information and support.

                                                                  In Ireland there are two deaf
                                                                  associations that are able to provide
                                                                  information and support to the
                                                                  Deaf/HOH. They are based in Dublin
                                                                  and Cork City but support and
                                                                  encourage initiatives that reach
                                                                  villages and the rural population.

West Cork is found South and South West of Cork City and
includes the Peninsulas shown

    NAD - National Association for the Deaf               CAD – Cork Association for the Deaf

Has developed programs and services to meet         Provides aural rehabilitation, appropriate
the needs of Deaf/HOH. They have also been          technology, workshops on Deaf/HOH issues,
successful in developing the first Aural            lip-reading and sign language classes, children’s
Rehabilitation Diploma through the University       camps and outings, access to work, finding
College Dublin. Trained Aural Rehabilitation        accommodation and many other forms of
therapists will become more readily available,      support for the hearing impaired.
not only in cities, but in smaller towns and        Contact: mail@corkdeaf.ie
villages. They will raise awareness, provide
information and support as well as be able to
refer patients to audiologists and appropriate
medical services. www.nadp.ie

What could be done to address the needs of Deaf/HOH in West Cork?
• Develop a database of Deaf/HOH in West Cork
• Support and deliver accessible community services for Deaf/HOH
• Inform rural inhabitants of available information, support and assistive listening devices
• Provide adequate transport to and from services
• Lobby for locally-based audiologists and services
• Lobby for locally-based ENT surgeon(s) and hospitals equipped for ENT surgery
• Provide hearing awareness education for all sectors of the community
• Develop and encourage locally-based support groups for adults and children

The needs listed above are just some of the common challenges faced by rural inhabitants
throughout the world. There are many ‘visible’ disabilities and diseases that governments are
hard pressed to deal with. As deafness is largely not seen as an urgent area of need, very little
funding is allocated to providing support and services for Deaf/HOH adults and children. Only
through extensive and continuous awareness campaigns that include statistics and suggest
affordable solutions will Governments be able to work towards addressing the needs of
Deaf/HOH in urban, but especially in rural areas.

Ms. Sally Harvest
Education Consultant for World Health Organisation,
Prevention of Blindness and Deafness

Editor’s Note: Ms. Harvest is profoundly deaf and has lived and worked in 7 countries, including
Ireland where she now resides.

                    Hard of Hearing Older Persons
                           in INDONESIA

                               by Dr. Tony Setiabudhi

                                                Editor’s Note: This is a synopsis of a paper
WHO (Smith, 2004) found that there are 250      was presented at the International Federation
million hearing impairment cases around         of Hard of Hearing People/ IFHOH 7th
over the world, and most of them are in         World Congress; Helsinki – Finland; 2 – 9
developing countries. The Framingham            July 2004. For the full text please go to the
study showed that the group of 57 – 89 years    IFHOH website www. ifhoh.org and then
account for 36% of hearing impaired             click onto the IFHOH 2004 Congress.
persons, while those under 17 years of age,
account for 1%. Further findings show that      Dr. Tony Setiabudhi, Ph.D is the Director of
the incidence among 64 – 74 years will          the National Centre for Ageing Studies,
increase to 24 % and beyond the age of 75,      Senior Lecturer at the Faculty of Medicine,
it will increase again to 39 %. The incidence   Trisakti University and Clinical Coordinator
is higher for men than for women.               of the Geriatrics/ Medical Gerontology
                                                Department of       Tarumanegara Medical
We were motivated to get statistics for the     School Jakarta.-
Indonesian population. We conducted our
first examination at the Institutionalized      References:
elderly group at Cibubur Ria Pembangunan        Smith, Andrew. WHO Activities for Prevention
Home for the Elderly which has 92 clients.      of Deafness and Hearing Impairment; 7th
                                                IFHOH World Congress , Helsinki 6 July 2004.
We found 12 (4 male) cases out of 71 (10
male) clients had been examined. After a
better Whisper test was carried out among       Framingham study: An epidemiological
42 cases, this number was increased to 22       investigation, Framingham, Mass. Various
cases among them.                               volumes.

          The World Flight for Hearing Awareness

                 Johan Hammarström and Elvis (aka Thomas Lindgren)

This project started in February 2004 and continues to December 31st 2006. If you have a hard
of hearing activity planned during this time, the organizers invite you to contact them. They
hope to visit as many events as possible in order to optimize the World Flight for Hearing
(WFH) project.

The main goals of WFH are:
   • Achieve as much media attention as possible in order to increase awareness about
      hearing loss.
   • Inspire and entertain the hard of hearing community.
   • Encourage others to achieve their goals despite hearing loss

As one of the activities of the project, ‘Elvis Presley’ was transported in an aircraft to
Norrköping with a young hard of hearing pilot named Johan Hammarström. In this case, Elvis’s
real name is Thomas Lindgren. Besides Johan, Thomas is a great example of someone who
achieves his goals although he is hard of hearing.

During the National Hard of Hearing Congress in Sweden, held last September, Elvis and Johan
were invited as secret VIP guests. Thomas showed up and entertained the crowd with his
famous Elvis show. After the show a film about Elvis’s arrival to Norrköping in a small private
aircraft piloted by a hard of hearing pilot (Johan), was shown to the audience. The guests loved
the show and so did media as evidenced by the next day’s media coverage.

For more information about the project or to become involved in its activities, contact: Johan
Hammarström [johan@worldflightforhearing.com].
    Overview of Disability Policy of the European Union
            and Anti-discrimination Legislation
                By Laszlo Lovaszy, University of Szeged, Hungary
                                    E-mail lovaszy-zara@axelero.hu

In October 2003, the European Commission              a strong statement about needed
published its Communication to the                    improvements in the participation of people
Council, the European Parliament, the                 with disabilities in terms of technical and
European Economic and Social Committee                legal aspects.
and the Committee of the Regions on Equal
opportunities for people with disabilities:           On the other hand, the Commission also
A European Action Plan 1 which proved a               committed itself to improving the social
milestone in the history of rights of people          situation of people with disabilities not just
with disabilities.                                    in terms of legal or technical tools. Social
                                                      situation and social policy means, in a way,
The Communication was welcomed by                     a kind of positive discrimination for
people with disabilities around Europe.               vulnerable people and, in this case, people
Why? Because they recognized its                      with disabilities. As the Commission states,
importance. The document particularly                 the fight against discrimination and for the
deals with access to, and remaining in,               promotion of the participation of people
employment; lifelong learning; access to,             with disabilities into the economy and
and use of, new technologies; and                     society plays a fundamental role in the
accessibility to the public built                     overall approach of the EU: “The EU social
environment. It provides a framework for              model of disability stresses the
disability policy at the European level.              environmental barriers in society which
                                                      prevent the full participation of people with
Equal opportunities for people with                   disabilities in society 3 .”
disabilities? But how?
According to the Commission and its                   Since the European Council of Nice 4 , there
communication, it intends to “ensure the              is an obligation (and it is extremely
removal of technical and legal barriers to            important in a more competitive economy
the effective participation of people with            and common market in Europe) to ensure
disabilities in the knowledge-based                   that the most vulnerable are not excluded
economy and society to empower them to                from access to basic rights, services and
tap the information society potential” 2 . It is      resources.
1                                                     3
  COM(2003) 650 final, 30.10.2003, Official Journal       COM(2003) 650 final, p. 4
121 , 30/04/2004 P. 0028 – 0031                           Presidency Conclusions, I. More and Better Jobs,
  COM(2003) 650 final, p. 4                                 7,8 and 9 December 2000.

                                                    According to Design for All Project Team’s
Facts and trends: description of the                Executive Summary Report 6 , in the EU the
situation of people with disabilities               number of people who are elderly or
Figures of the European Community                   disabled is estimated between 60 and 80
Household Panel survey 5 , based on the data        million (2000). Currently, 70% of people
of ‘old’ Member States, are reported here.          with disabilities are over 60 and by 2020 it
                                                    is estimated that 25% of the population will
To start with, 14.5 % of the EU's working-          be aged over 60.The largest increase is
age population (i.e. aged between 16 and            expected among those 75 plus years.
64) report some form of disability. This
means that almost 15 % of women (aged               Short history of EU disability issues
16-64) and 14 % of men (aged 16-64)                 The first important document where
report either a moderate or severe disability.      disability was mentioned at the EU level
For 14 Member States, this amounts to               was Resolution of the Council and the
approximately 26 million people of working          Ministers for Education meeting within the
age. In the 10 ‘Candidate Countries’, it was        Council concerning integration of children
reported that 25 % of the population                and young people with disabilities into
experiences some form of disability.                ordinary systems of education in 1990 7 .

Today 63 % of people with disabilities are          The European Parliament has referred, on
older than 45 and the incidence of disability       several occasions, to the adverse situation
is likely to increase, since many people            of people with disabilities who face
develop disabilities in later life. Twenty          discrimination (as well as violence)
percent of people aged between 60 and 64            throughout the Union. In its Resolution 8 in
have a severe disability; 17.1 % report a           1993 it called on the Commission, inter alia,
moderate disability, while only 6.3 % of            to set up a forum to investigate violence
those who report no disability belong to the        against people with disabilities and to draw
age group 60-64.                                    up annual reports on their situation within
                                                    Member States.
Demographic trends indicate better health
care for disabled adults alongside longer           In 1993, the Commission adopted a
life expectancy. It is therefore clear that the     Community Action Programme for
number of people with disabilities in the           Accessible Transport whose aim was to
European Union is increasing and will               increase the usability of transport for
continue to do so as a consequence of the           persons with reduced mobility.
aging of the population.                            The first official document mentioning
                                                    rights, and not just needs, of people with
Figures also reveal an important and                disabilities was issued by the
untapped potential for the development of           Communication of the Commission on
economic growth. Only 42 % of people                equality of opportunity for people with
with disabilities are employed, compared to         disabilities 9 . Within this Communication,
almost 65 % of non-disabled people, and as          the Commission declares under the sub
many as 52 % of disabled people are                 point of Mainstreaming: Policy Formulation
economically inactive, compared to only 28          that “the Commission will review the range
% of non disabled people, and finally, about        of possible initiatives in different policy
48 per cent of people over 50 years old in
                                                      31 May, 1990
5                                                   8
                                                      83-580/93 of April 1993
http://epp.eurostat.cec.eu.int/cache/ITY_OFFPUB/K      COM (96) 406 final of 30 July 1996, Official
S-AW-01-001/EN/KS-AW-01-001-EN.PDF                  Journal C 012 , 13/01/1997 P. 0001 - 0002

sectors, including in particular research,             that have emerged in Member States during
education and transport.”                              the past several years, it is clear that, in
                                                       many cases, employers simply do not know
So far the most important legal instrument             how to identify and make reasonable
was introduced by the Treaty of                        accommodation for people with disabilities.
Amsterdam 10 in 1997 creating a new and
breakthrough approach (Article 2, subpoint             The European Year of People with
7) to disability by amending the Treaty of             Disabilities 2003 13 was a great impetus to
Rome. Its Article 6a ( in the consolidated             raising awareness across Europe. As in the
version of Treaty of Rome is Article 13)               Communication of 650 issued in 2003
declares: “Without prejudice to the other              mentioned, after having completed the
provisions of this Treaty and within the               European Year of People with Disabilities,
limits of the powers conferred by it upon              there is an obligation for the Commission to
the Community, the Council, acting                     reinforce the mainstreaming of disability
unanimously on a proposal from the                     issues into all relevant Community policies,
Commission and after consulting the                    improving accessibility for all.
European Parliament, may take
appropriate action to combat                           Also an important document dealing with
discrimination based on sex, racial or                 the interest of people with disabilities is the
ethnic origin, religion or belief, disability,         Charter of Fundamental Rights of the
age or sexual orientation.”                            European Union 14 , signed by the
                                                       Presidents of the European Parliament as
After Amsterdam, the greatest step was                 well as the European Council and the
made in disability policy at level of                  European Commission on December 7th
secondary legislation by the adoption of the           2000. In this document people with
general framework for equal treatment                  disabilities have rights to non-
in employment and occupation                           discrimination and integration (Article 21
(2000/78/EC) 11 . The directive has proved a           and 26) 15 at the same time.
milestone because all Member States had to
implement its provisions. However, some                The European Council conclusions of
Member States have failed as yet to do so.             December 1-2, 2003 on the follow up of the
                                                       European Year of People with Disabilities
According to the EU Network of Expert on               and the promotion of Equal Opportunities
Disability Discrimination, it is not clear             for People with Disabilities, 16 stresses in
what reasonable accommodations for                     the third point that: “the Brussels Council of
people with disabilities means in each                 March 2003 renewed the commitment of the
member state. As the EU network of                     European Union to promoting e-inclusion
Experts on Disability Discrimination notes,            and the elimination of all kinds of barriers
the requirement of Article 5 "obliges                  that obstruct the full integration and
employers not to ignore disability, but                participation of persons with disabilities in
specifically to take it into account." 12 And          the knowledge-based economy and society”.
in a sense, it also requires positive actions,
(which is sometimes referred to as positive
discrimination). Considering the legal cases           13
                                                            Council Decision of 3 December 2001
10                                                     14
   Official Journal C 340 of 10 November 1997             2000/C 364/01
11                                                     15
   Official Journal L 303, 02/12/2000 P. 0016 - 0022      ‘the right of persons with disabilities to benefit
    Implementing and Interpreting the reasonable       from measures designed to ensure their
accommodation provision of the framework               independence, social and occupational integration
employment directive: learning from experience and     and participation in the life of the community’
achieving best practice, by Lisa Waddington, EU
network of Experts on Disability Discrimination, p.         http://www.europa.eu.int/comm/employment_so
7                                                           cial/index/council_eypd_fu_en.pdf

The European Council, in its Resolutions of             possible” with “criteria for people with
May 6, 2003 on accessibility of cultural                disabilities or design for all users” (Chapter
infrastructure and cultural activities for              IV, Specific rules governing specifications
people with disabilities 17 and of May 21,              and contract documents, Article 23).
2002 on future of European tourism 18 ,                 National governments must transpose these
expressed its commitment to promoting the               rules into national legislation by January 31,
rights of people with disabilities and                  2006. Although both directives are
Member States declared to undertake more                important, there is more to be done in
efforts to facilitate accessibility to tourist          respect of setting the requirement or
sites for people with disabilities.                     dissemination of information related to
                                                        standards and proper tools for accessible
The Treaty on the European Constitution                 solutions.
declares the requirement of non-
discrimination of people with disabilities in           Strategic objectives of the future set
Article II-80. It states: “The Union                    by the Commission
recognises and respects the right of persons            As noted by the Commission:
with disabilities to benefit from measures              “Special attention will be given to the
designed to ensure their independence,                  mainstreaming of disability issues in
social and occupational integration and                 employment related policies, especially in
participation in the life of the community” 19          education and lifelong learning, using all
                                                        means through which the Commission has
Finally, since 2004, there has been a new               the possibility to act. […]
Design for All policy. EU Directives
2004/17 20 and 2004/18 21 specify new rules              Mainstreaming should focus in particular
governing public procurement. Directive                 on the area of accessibility and should be
2004/17 covers all acquisitions made by                 clearly linked with the principle of Design
governments and their agencies in the area              For All. Accessibility to goods, services and
of water, energy, transport and postal                  the built environment is a central issue for
services. (Chapter IV, Specific rules                   people with disabilities which also of
governing specifications and contract                   concern to all EU citizens. The Commission
documents, Article 34). Directive 2004/18               intends to promote the elaboration of
covers all acquisitions made in the area of             European technical standards,
public works, public supplies and public                standardisation documents and other more
services.                                               general guidelines giving technical
                                                        expression to the concept of ‘Accessibility
An identical article in both Directives order           for all’’ 22 .
that procurement must comply “whenever                          Finally it is important to realize that
                                                        the European Union declared that it intends
   OJ C 134, 7 June 2003                                to put more emphasis on Design for All in
   OJ C 135, 6 June 2002                                the field of services, accessibility to goods
    Article II-86, Title III, OJ C 310 Volume 47 16     and the built environment. These intentions
     December 2004                                      bode well for the future.
   Directive 2004/17/EC of the European Parliament
and of the Council of 31 March 2004 coordinating
the procurement procedures of entities operating in
the water, energy, transport and postal services
sectors, Official Journal L 134, 30/04/2004 P. 0001 -
   Directive 2004/18/EC of the European Parliament
and of the Council of 31 March 2004 on the
coordination of procedures for the award of public
works contracts, public supply contracts and public
service contracts, Official Journal L 134, 30/04/2004
P. 0114 – 0240                                               COM(2003) 650 final, p. 13

                                        News Bites

Conference in Canada
                                               vacation, hearing aids, and cochlear
CHHA BC and CHHA Kelowna invite you            implants. It also includes an entire chapter
to their 2005 National Conference of the       of contact information for organizations and
Canadian Hard of Hearing Association at        agencies of interest to deafened and hard of
the Grand Okanagan Lakefront Resort and        hearing individuals.
Conference Centre in Kelowna in the Sunny
Okanagan of Beautiful British Columbia.        Profits from book sales go to ALDA, a
Dates are June 2 to 4, 2005.                   consumer organization that provides social
                                               opportunities and advocacy for deafened
The conference will include workshops,         individuals. To order a copy e-mail Shawn
specific and independent of each other for     Lovley SDLovley@comcast.net.
adults, young adults and parents of hard of
hearing children, will be offered. As well,
there will be a full Children's Program, a     Hearing Loss Video Available
Silent Auction, and Trade Show.                Unheard Voices, a video that looks at the
Kelowna is the largest city in the Okanagan    impact of hearing loss on people’s lives, is
Valley with a population of 98,000. It is a    available in closed-captioned format
four hour drive from Vancouver and is          (captions can be turned on and off) and
serviced by Greyhound Bus and major            open-captioned format (with captions
airlines. For more information contact         permanently on the screen). In addition,
CHHA National.                                 Unheard Voices now includes a study guide
E-mail: conference@chha.ca                     that helps viewers identify and discuss how
Web Page: www.chha.ca                          hearing loss affects them and those with
                                               whom they communicate.

Resource on Life After Deafness                Through a series of dramatic and humorous
                                               vignettes, Unheard Voices opens a rare
Baffled by your acquired inability to hear?    window of understanding into the lives of
Know someone who's wondering how to            people of all ages who deal with the often-
deal with his or hers? Simply want to know     overwhelming challenges of frayed
more about adult-onset deafness? Then the      communication. Gael Hannan, an actor
book “I've Lost My WHAT??? — A                 with a severe-to-profound hearing loss,
Practical Guide to Life After Deafness” is     gives a powerful performance in this video
for you.                                       adaptation of her one-woman play created
                                               with writer Dalene Flannigan.
Written by Shawn Lovley, a former
member of the board of directors of the        Unheard Voices can be used individually or
non-profit Association of Late-Deafened        in family situations, group discussions or
Adults (ALDA), the book discusses              included in university curriculums. It is
assistive devices, the psychology of adult-    also useful for hearing healthcare
onset deafness, communication options for      professionals and organizations seeking to
deafened individuals, the Americans with       better understand hearing loss. The 23-
Disabilities Act, daily life for people who    minute video is available for $24.99
can't hear anymore, post-deafness              (Canadian funds) plus applicable tax and
relationships with family and friends,         shipping. Contact Gael Hannan
romance after hearing goes on a permanent      gaelh@rogers.com or www.gaeldalene.com
   International Federation of Hard of Hearing Youth


De Organisatie van Slechthorende                 http://www.ifhohyp.org/php/page.php?page
Jongeren, SHJO welcomes the current and          =members.
future member organisations of IFHOHYP
to participate in the Annual General             During the last weeks of April, participants
Meeting (AGM) in Utrecht! The AGM will           will receive further information and a more
be held 5th – 8th of May 2005. SHJO offers       detailed AGM program will be available on
bed and board and some thematic                  IFHOHYP’s homepage www.ifhohyp.org.
workshops will be arranged by the AGM
organisers and IFHOHYP Board.                    Participants will stay at the hostel ”B&B
The participants have to pay for their own       Utrecht City Center”. It is a new youth
trips to/from the Netherlands.                   hostel in the centre of Utrecht, near the
                                                 canals, the cathedral and the city theatre, in
Only 1 delegate and 1-2 observers per            an old, just renovated building from 1870.
IFHOHYP member organisation can                  If you are interested, they have their own
participate. Any youth or other                  website: www.hostelutrecht.nl. You can
organisation, which is not a member of           read the information in English.
IFHOHYP, can send its representatives as
observers to the AGM. Hard of hearing            The program will finish on Sunday morning
individuals from non-member countries are        after the breakfast. Those who stay in
also welcome to apply to participate in the      Utrecht on Sunday afternoon are welcome
AGM as observers. Since places are               to continue their work on IFHOHYP future
limited, the amount of observers can be          projects or in AGM working groups.
discussed directly with the organisers.
                                                 But remember that we will also have fun! ☺
The applications should be addressed to:         You can always contact us for more
info@shjo.nl and must contain: your name,        information.
address and country, the name of your
organisation and Email address. Deadline         Also have a look at the programs of
for the applications was scheduled to be         previous IFHOHYP AGMs and about the
April 8th. Only 30 participants can              next AGM at
participate in the AGM.                          http://www.ifhohyp.org/php/page.php?page
Please note that only delegates of member
organizations who paid their membership          The AGM team,
fees before or at the AGM have a right to        Natasja Geelen-Rietveld
vote. For membership in IFHOHYP and              Lianne de Jonge
membership fees please see                       Christi Menheere

         Plan to attend the next IFHOH AGM in Dubrovnik, Croatia April 27-29, 2006.

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