IFHOH Journal International Federation of Hard of Hearing People President Marcia B. Dugan Journal Editor Ruth Warick E-mail: email@example.com E-mail: firstname.lastname@example.org Fax: +1 315 531 8761 Fax: +1 604 684-7575 (specify to R. Warick) http://www.ifhoh.org Spring 2005 In this Issue Editor’s Message by Ruth Warick 2 IFHOH President Marica Dugan 3 11th Annual Zennancho National Conference In Tokyo by Dr. Kazuhiko Seya 4 Hearing Loss in Prisoners by Dr. Marilyn Dahl 6 Reaching Rural Communities by Sally Harvest 7 Hard of Hearing Persons in Indonesia by Dr. Tony Setiabudhi 10 World Flight for Hearing Awareness 11 Overview of Disability Policy of the European Union by Laszlo Lovaszy 12 News bites 16 International Federation of Hard of Hearing Youth AGM 17 Dubrovnik, Croatia for IFHOH 2006 AGM 17 IFHOH is registered as a charitable organization at Vereinsregister Amtsgericht Hamburg, Germany (Nr. 69 VR 10 527) and is also an International Non-Governmental Organization having special consultative status with the United Nations Economic and Social Council (ECOSOC). It also works closely with the World Health Organization, having agreed a two-year joint work programme for developing countries with the Prevention of Blindness and Deafness section of that Organization. All the views expressed in this Journal are those of the writer for each article and does not reflect IFHOH’s views. IFHOH EXECUTIVE COMMITTEE President Vice-President General Secretary Treasurer Marcia B. Dugan Barbara Wenk Darja Holec Harry Piela USA SWITZERLAND SLOVENIA FINLAND From the Editor’s Desk Ruth P. Warick Spring is here. It is a time of rebirth and renewal for nature and so too it should be for ourselves. Taking time out to smell the roses, so to speak, is always a good idea. Fortunately, I get daily floral enjoyment when walking my dog, Max. At first I used to think that the walks were for him, but now I think that I am the beneficiary. Another form of renewal is keeping in contact with each other about hard of hearing issues and concerns. I hope that this Journal fulfills an important function in this regard. Because we are worldwide it is so important for us to take advantage of electronic communications to share our experiences. This issue is exceptional in its international breadth with contributions from Japan, Ireland, Indonesia, Hungary, Sweden, Canada and the United States. We are truly an international community. In closing, I want to express thanks to Mikko Haho and his Nokia colleagues for showing me their induction loop with the cellular telephone at IFHOH’s 2004 Conference in Helsinki. Thanks as well for letting me make a transatlantic call to my mother during which both of us could hear; in my case, the loop used with my hearing aid set to the T-switch made the difference. Technology does indeed help us keep connected. Ruth Warick Editor, IFHOH Journal 2 IFHOH President - MARCIA B. DUGAN President, IFHOH The IFHOH 7th World Congress is history but so many pleasant memories linger in my mind. The venue, Finlandia Hall, was perfect. The speakers and workshops were superior and diverse in subject matter. The social events were well planned and delightful. The weather could not have been better. But most of all what made it so very special were the people. It was wonderful to have representatives from so many countries. I knew we could expect delegations from Europe and was pleased to see so many represented. I was thrilled with representation from Kenya, Uganda, and Zambia as well as India and China. I enjoyed the many opportunities to exchange ideas with so many people. The very large delegation from Japan (60) was heartwarming. I thank them for their effort to get so many people to attend. Marcia with other members of the IFHOH Board as follows: It was a most accessible Congress. The Back row Harry Piela and Jan Peter induction loops in all rooms worked Strömgren; Front row Barbara Wenk, beautifully and the computer-assisted real- Marcia Dugan and Darja Holec. time translation in English, Finnish, and Japanese was excellent. Much appreciation goes to the planning committee, headed so ably by Seppo Matinvesi with support from the Finnish Federation of Hard of Hearing People…and especially from Maria Rajalsami, our angel behind the scenes. The general meeting in 2006 will be in Dubrovnik and plans are also in progress for Congress 2008 in Vancouver. The dates will be posted in the next newsletter but plan to come and enjoy another exciting and educational adventure. Seppo Matinvesia, IFHOH Congress 2004 Marcia B. Dugan 3 11th Annual National Conference in Tokyo of ZENNANCHO As we announced in the spring issue of Open College IFHOH Journal, ZENNANCHO (All Japan Nineteen specialized and three free entry Association of Hard of Hearing People) had courses were prepared for two days as an its 11th annual national conference in “Open College”, covering mainly the fields Tokyo, Ichigaya from October 8th to 11th, of medicine, education, administration, and 2004. communication. Each course consisted of the advanced and substantial lectures or September and October are the busiest discussions with question and answer season to get typhoon’s attack in Japan, and periods for participants. All the participants Typhoon No.22 has just hit Tokyo on enjoyed the sophisticated content of the Oct.9th as promised. Coinciding with the courses, and we learned what hard of typhoon, more than 5,000 participants hearing people really want to study and talk joined the conference for four days from all about. The summary and detail of each the parts of Japan. This annual meeting “Open College” will appear in a conference brings together hard of hearing and late- report and individual booklet. deafened persons and others to have new encounters, to regenerate friendships, and to Hearing Bazaar (Kikoe no Shoutengai) engage in new experiences. More than 130 public and private sectors exhibited the various devices, equipment The themes of the conference were, and services relating the field of hearing. It “Identify myself as a person with hearing was a worthwhile opportunity for hard of loss. Try! Who can? You can!” and “Our hearing people to see and learn about message from Tokyo, to Asia and to the advanced hearing assistive devices as well world”. The program was prepared as well-designed services to improve the according to these themes. quality of life for HOH people. It is our belief that this kind of exhibition will accelerate the innovation of the hearing assistive devices or services, and will lead Conference Planned to a barrier-free society. You are invited to attend the 2006 Dinner Party with Miss Tenma’s Violin conference on Beyond Newborn Hearing Solo (Tokyo no Shirabe) Screening: Infant and Childhood in Science On Oct.9th, we had a customary dinner and Clinical Practice at the Villa Erba party with a violin solo of Miss Tenma, Congress Center, Cernobbio, Italy from who is reputed in the world playing May 31 - June 3, 2006. “BARADA”. We enjoyed her playing with the assistance of various hearing assistive The conference will focus on the most devices and an image screen. All the recent research in hearing identification and participants became convinced that music is intervention programs, audiologic and not a matter of the lost world, but it is a medical diagnosis, intervention for infants matter of our world. and children with hearing loss, as well as models for hearing surveillance and Plenary Session outcomes for infants and children who have The convention plenary session was held on been identified early. Both basic scientific Oct.10th. Although disability rights are advances and clinical studies will be supported by the United Nations, disability presented. anti-discrimination legislation is still on the way in Japan. We have to strengthen our The conference will include keynote efforts to achieve this in alliance with other addresses by distinguished scientists and disability organizations in Japan and in the clinicians, round tables, and platform and world. At the session, five papers were poster presentations by colleagues and introduced as the “Message from Tokyo”. experts from throughout the world, in a truly international framework. ZENNANCHO will be hosting a nation- wide conference annually. The 2005 The scientific sessions will be conference is in Nagoya at Aichi Prefecture complemented by a comprehensive on July 16th and 17th, at the same venue as Exhibition. Further details are available on EXPO 2005. We would like to see a lot of the website: www.nhs2006.polimi.it friends from all over the world. Please see our web site of http://www.zennancho.or.jp/ for the details. See you there! IFHOH JOURNAL The next issue will be slated for the late Submitted by summer, 2005 with a deadline for Kazuhiko Seya, Ph.D. contributions of May 31-05. Your Chief of International Division contributions are welcomed: short and long ZENNANCHO articles, anywhere from 25 to 1,500 words, All Japan Association of Hard of Hearing with 400 to 500 words (one page) preferred. People (AJAHHP News bites, information about coming Email:email@example.com events and news about people are also welcomed. Photographs and illustrations to accompany articles would be appreciated. Please send pictures in jpeg format and files as rich text or word documents. Thank you! Send to firstname.lastname@example.org 5 PRISONERS STORY Dr. Marilyn Dahl percent of the custodians talked about hostile, aggressive, and defiant behaviours, which made it difficult to interact with prisoners. This was not surprising, given the setting. These same officials were given a list of 31 different behaviours, and asked what it meant to them when a prisoner behaved in this way. These were all behaviours that are typical of hard of hearing people. In 1993-94 I investigated the presence and Custodians were five times more likely to implications of hearing loss in federal interpret a behaviour as indicative of a prisons in British Columbia, Canada. From personality problem, rather than of a time to time I still get letters or emails from hearing loss. persons who want further information on the findings. Some of these persons are Furthermore, prisoners, when interviewed, concerned with prisoners, others are often described ways in which they were the teachers of hard of hearing children. punished because their custodian had misinterpreted their hearing-loss-related Findings of the study were that 69% of behaviour. They also talked about extreme prisoners tested had some level of hearing isolation, made worse because they could loss. Often, this hearing loss had been not use the telephone or television. previously unidentified, either by themselves or by prison officials. Of these The study showed how easily anyone with prisoners with hearing loss, 62% were in power can misinterpret typical hard of the under 40 age group. Only 10% of all hearing behaviour, with a resultant negative subjects said their hearing had been tested impact upon the person with the hearing since incarceration. People tend to deny loss. This is true whatever the age or having a hearing loss, and not all prisoners situation of the hard of hearing person. Not were tested in this study. Thus, there may only prisoners are affected. Even when actually be a higher percentage of hearing people understand that the person they are loss in prisoners than we found. It could be talking to is hard of hearing, they tend to expected that the older prison population have a poor grasp of the behavioural impact would show hearing loss, but it was a of partial hearing loss. Adults who cope surprise to find so many under 40 with best with their hearing loss are those who damaged hearing. Lifestyles which included tell others that they are hard of hearing and drug use, gunfire and head trauma appeared explain what is needed to facilitate to be contributors to hearing damage. communication. Hard of hearing children within the school system are even more Another part of the study sought to vulnerable to misinterpretation of hearing understand the social dynamics between loss related behaviours. prisoners who are hard of hearing and their custodians. Custodians were asked which behaviours gave them the most problems when talking with prisoners. Sixty-eight Reaching Rural Communities By Sally Harvest As urbanization has spread, the term – rural main hospitals have audiologist services – is generally thought of as an area of Africa within the ENT departments. Although or perhaps Asia, where people live in audiologists are permanently based in the isolated groups and probably in abject cities or larger towns, some of them conduct poverty. They may have very little access to clinics in the smaller towns – usually once a clean water, education and health care week. services. The reality is that many people in the developed world live in rural areas and Services are not always available and so although their needs may be slightly people wearing hearing aids cannot access different, they too find it difficult to access simple services such as having their plastic quality education and health care services. tubes replaced. Batteries are available through pharmacies and sometimes The Republic of Ireland is a relatively small opticians that are used as a base for visiting country, population ± 4 million. It is widely audiologists. When enquiring where to get accepted that 1/7 people have some degree replacement plastic tubing in January, a of hearing impairment. The National hearing aid user was told that the visiting Association for the Deaf (Dublin) is audiologist was only coming back to West planning a formal survey to confirm this Cork at the beginning of April. Fortunately estimate. There are currently 40 ENT (Ear the user was able to receive new tubes Nose and Throat) surgeons in Ireland who through the post from Cork City and fit are all concentrated in city hospitals. The 7 herself. about it and receive support in coping with the disability. Doctors (local based General Practitioners) are available on specific days in the smaller In West Cork there is an estimated 450 villages. Should anyone have an emergency aging bachelor farmers living alone on the on another day they are required to travel to Beara Peninsula. These farmers and some of a hospital in the nearest town. Doctors refer the other rural inhabitants rely on a rural patients to hospitals in the nearest city transport bus service to get into the nearest should they need to see an ENT. This village, probably once a week, to buy their involves organizing transport from home to necessities. Bantry Rural transport (now the hospital and back again, sometimes called West Cork Rural Transport) has just involving a car journey of two hours each received funding for the bus. This service way. Outreach community services have hasn’t started in Beara yet – it has, however, been set up to try and meet the day-to-day started on Sheepshead Peninsula. In West needs of rural inhabitants. However, access Cork there is a coalition of service providers to audiologists and ENT surgeons remains catering for the needs of physically, difficult. As hearing impairment is not intellectually and mentally disabled people. discussed and there is still the stigma of Up until March 2004 none of these being ‘deaf and stupid,’ people with hearing organizations included hard of hearing or difficulties need to be encouraged to talk deaf issues in their programs. West Cork Community Partnership has now set up a program delivering a workshop on Deaf and HOH issues the first Friday of each month. Through these workshops they hope to develop a database of children and adults with hearing impairment and provide information and support. In Ireland there are two deaf associations that are able to provide information and support to the Deaf/HOH. They are based in Dublin and Cork City but support and encourage initiatives that reach villages and the rural population. West Cork is found South and South West of Cork City and includes the Peninsulas shown 8 NAD - National Association for the Deaf CAD – Cork Association for the Deaf Has developed programs and services to meet Provides aural rehabilitation, appropriate the needs of Deaf/HOH. They have also been technology, workshops on Deaf/HOH issues, successful in developing the first Aural lip-reading and sign language classes, children’s Rehabilitation Diploma through the University camps and outings, access to work, finding College Dublin. Trained Aural Rehabilitation accommodation and many other forms of therapists will become more readily available, support for the hearing impaired. not only in cities, but in smaller towns and Contact: email@example.com villages. They will raise awareness, provide information and support as well as be able to refer patients to audiologists and appropriate medical services. www.nadp.ie What could be done to address the needs of Deaf/HOH in West Cork? • Develop a database of Deaf/HOH in West Cork • Support and deliver accessible community services for Deaf/HOH • Inform rural inhabitants of available information, support and assistive listening devices • Provide adequate transport to and from services • Lobby for locally-based audiologists and services • Lobby for locally-based ENT surgeon(s) and hospitals equipped for ENT surgery • Provide hearing awareness education for all sectors of the community • Develop and encourage locally-based support groups for adults and children The needs listed above are just some of the common challenges faced by rural inhabitants throughout the world. There are many ‘visible’ disabilities and diseases that governments are hard pressed to deal with. As deafness is largely not seen as an urgent area of need, very little funding is allocated to providing support and services for Deaf/HOH adults and children. Only through extensive and continuous awareness campaigns that include statistics and suggest affordable solutions will Governments be able to work towards addressing the needs of Deaf/HOH in urban, but especially in rural areas. Ms. Sally Harvest Education Consultant for World Health Organisation, Prevention of Blindness and Deafness Editor’s Note: Ms. Harvest is profoundly deaf and has lived and worked in 7 countries, including Ireland where she now resides. 9 Hard of Hearing Older Persons in INDONESIA by Dr. Tony Setiabudhi Editor’s Note: This is a synopsis of a paper WHO (Smith, 2004) found that there are 250 was presented at the International Federation million hearing impairment cases around of Hard of Hearing People/ IFHOH 7th over the world, and most of them are in World Congress; Helsinki – Finland; 2 – 9 developing countries. The Framingham July 2004. For the full text please go to the study showed that the group of 57 – 89 years IFHOH website www. ifhoh.org and then account for 36% of hearing impaired click onto the IFHOH 2004 Congress. persons, while those under 17 years of age, account for 1%. Further findings show that Dr. Tony Setiabudhi, Ph.D is the Director of the incidence among 64 – 74 years will the National Centre for Ageing Studies, increase to 24 % and beyond the age of 75, Senior Lecturer at the Faculty of Medicine, it will increase again to 39 %. The incidence Trisakti University and Clinical Coordinator is higher for men than for women. of the Geriatrics/ Medical Gerontology Department of Tarumanegara Medical We were motivated to get statistics for the School Jakarta.- Indonesian population. We conducted our first examination at the Institutionalized References: elderly group at Cibubur Ria Pembangunan Smith, Andrew. WHO Activities for Prevention Home for the Elderly which has 92 clients. of Deafness and Hearing Impairment; 7th IFHOH World Congress , Helsinki 6 July 2004. We found 12 (4 male) cases out of 71 (10 male) clients had been examined. After a better Whisper test was carried out among Framingham study: An epidemiological 42 cases, this number was increased to 22 investigation, Framingham, Mass. Various cases among them. volumes. 10 The World Flight for Hearing Awareness Johan Hammarström and Elvis (aka Thomas Lindgren) This project started in February 2004 and continues to December 31st 2006. If you have a hard of hearing activity planned during this time, the organizers invite you to contact them. They hope to visit as many events as possible in order to optimize the World Flight for Hearing (WFH) project. The main goals of WFH are: • Achieve as much media attention as possible in order to increase awareness about hearing loss. • Inspire and entertain the hard of hearing community. • Encourage others to achieve their goals despite hearing loss As one of the activities of the project, ‘Elvis Presley’ was transported in an aircraft to Norrköping with a young hard of hearing pilot named Johan Hammarström. In this case, Elvis’s real name is Thomas Lindgren. Besides Johan, Thomas is a great example of someone who achieves his goals although he is hard of hearing. During the National Hard of Hearing Congress in Sweden, held last September, Elvis and Johan were invited as secret VIP guests. Thomas showed up and entertained the crowd with his famous Elvis show. After the show a film about Elvis’s arrival to Norrköping in a small private aircraft piloted by a hard of hearing pilot (Johan), was shown to the audience. The guests loved the show and so did media as evidenced by the next day’s media coverage. For more information about the project or to become involved in its activities, contact: Johan Hammarström [firstname.lastname@example.org]. Overview of Disability Policy of the European Union and Anti-discrimination Legislation By Laszlo Lovaszy, University of Szeged, Hungary E-mail email@example.com In October 2003, the European Commission a strong statement about needed published its Communication to the improvements in the participation of people Council, the European Parliament, the with disabilities in terms of technical and European Economic and Social Committee legal aspects. and the Committee of the Regions on Equal opportunities for people with disabilities: On the other hand, the Commission also A European Action Plan 1 which proved a committed itself to improving the social milestone in the history of rights of people situation of people with disabilities not just with disabilities. in terms of legal or technical tools. Social situation and social policy means, in a way, The Communication was welcomed by a kind of positive discrimination for people with disabilities around Europe. vulnerable people and, in this case, people Why? Because they recognized its with disabilities. As the Commission states, importance. The document particularly the fight against discrimination and for the deals with access to, and remaining in, promotion of the participation of people employment; lifelong learning; access to, with disabilities into the economy and and use of, new technologies; and society plays a fundamental role in the accessibility to the public built overall approach of the EU: “The EU social environment. It provides a framework for model of disability stresses the disability policy at the European level. environmental barriers in society which prevent the full participation of people with Equal opportunities for people with disabilities in society 3 .” disabilities? But how? According to the Commission and its Since the European Council of Nice 4 , there communication, it intends to “ensure the is an obligation (and it is extremely removal of technical and legal barriers to important in a more competitive economy the effective participation of people with and common market in Europe) to ensure disabilities in the knowledge-based that the most vulnerable are not excluded economy and society to empower them to from access to basic rights, services and tap the information society potential” 2 . It is resources. 1 3 COM(2003) 650 final, 30.10.2003, Official Journal COM(2003) 650 final, p. 4 4 121 , 30/04/2004 P. 0028 – 0031 Presidency Conclusions, I. More and Better Jobs, 2 COM(2003) 650 final, p. 4 7,8 and 9 December 2000. 12 According to Design for All Project Team’s Facts and trends: description of the Executive Summary Report 6 , in the EU the situation of people with disabilities number of people who are elderly or Figures of the European Community disabled is estimated between 60 and 80 Household Panel survey 5 , based on the data million (2000). Currently, 70% of people of ‘old’ Member States, are reported here. with disabilities are over 60 and by 2020 it is estimated that 25% of the population will To start with, 14.5 % of the EU's working- be aged over 60.The largest increase is age population (i.e. aged between 16 and expected among those 75 plus years. 64) report some form of disability. This means that almost 15 % of women (aged Short history of EU disability issues 16-64) and 14 % of men (aged 16-64) The first important document where report either a moderate or severe disability. disability was mentioned at the EU level For 14 Member States, this amounts to was Resolution of the Council and the approximately 26 million people of working Ministers for Education meeting within the age. In the 10 ‘Candidate Countries’, it was Council concerning integration of children reported that 25 % of the population and young people with disabilities into experiences some form of disability. ordinary systems of education in 1990 7 . Today 63 % of people with disabilities are The European Parliament has referred, on older than 45 and the incidence of disability several occasions, to the adverse situation is likely to increase, since many people of people with disabilities who face develop disabilities in later life. Twenty discrimination (as well as violence) percent of people aged between 60 and 64 throughout the Union. In its Resolution 8 in have a severe disability; 17.1 % report a 1993 it called on the Commission, inter alia, moderate disability, while only 6.3 % of to set up a forum to investigate violence those who report no disability belong to the against people with disabilities and to draw age group 60-64. up annual reports on their situation within Member States. Demographic trends indicate better health care for disabled adults alongside longer In 1993, the Commission adopted a life expectancy. It is therefore clear that the Community Action Programme for number of people with disabilities in the Accessible Transport whose aim was to European Union is increasing and will increase the usability of transport for continue to do so as a consequence of the persons with reduced mobility. aging of the population. The first official document mentioning rights, and not just needs, of people with Figures also reveal an important and disabilities was issued by the untapped potential for the development of Communication of the Commission on economic growth. Only 42 % of people equality of opportunity for people with with disabilities are employed, compared to disabilities 9 . Within this Communication, almost 65 % of non-disabled people, and as the Commission declares under the sub many as 52 % of disabled people are point of Mainstreaming: Policy Formulation economically inactive, compared to only 28 that “the Commission will review the range % of non disabled people, and finally, about of possible initiatives in different policy 48 per cent of people over 50 years old in 6 Europe. http://www.ictsb.org/Activities/Documents/execsum. pdf 7 31 May, 1990 5 8 83-580/93 of April 1993 9 http://epp.eurostat.cec.eu.int/cache/ITY_OFFPUB/K COM (96) 406 final of 30 July 1996, Official S-AW-01-001/EN/KS-AW-01-001-EN.PDF Journal C 012 , 13/01/1997 P. 0001 - 0002 13 sectors, including in particular research, that have emerged in Member States during education and transport.” the past several years, it is clear that, in many cases, employers simply do not know So far the most important legal instrument how to identify and make reasonable was introduced by the Treaty of accommodation for people with disabilities. Amsterdam 10 in 1997 creating a new and breakthrough approach (Article 2, subpoint The European Year of People with 7) to disability by amending the Treaty of Disabilities 2003 13 was a great impetus to Rome. Its Article 6a ( in the consolidated raising awareness across Europe. As in the version of Treaty of Rome is Article 13) Communication of 650 issued in 2003 declares: “Without prejudice to the other mentioned, after having completed the provisions of this Treaty and within the European Year of People with Disabilities, limits of the powers conferred by it upon there is an obligation for the Commission to the Community, the Council, acting reinforce the mainstreaming of disability unanimously on a proposal from the issues into all relevant Community policies, Commission and after consulting the improving accessibility for all. European Parliament, may take appropriate action to combat Also an important document dealing with discrimination based on sex, racial or the interest of people with disabilities is the ethnic origin, religion or belief, disability, Charter of Fundamental Rights of the age or sexual orientation.” European Union 14 , signed by the Presidents of the European Parliament as After Amsterdam, the greatest step was well as the European Council and the made in disability policy at level of European Commission on December 7th secondary legislation by the adoption of the 2000. In this document people with general framework for equal treatment disabilities have rights to non- in employment and occupation discrimination and integration (Article 21 (2000/78/EC) 11 . The directive has proved a and 26) 15 at the same time. milestone because all Member States had to implement its provisions. However, some The European Council conclusions of Member States have failed as yet to do so. December 1-2, 2003 on the follow up of the European Year of People with Disabilities According to the EU Network of Expert on and the promotion of Equal Opportunities Disability Discrimination, it is not clear for People with Disabilities, 16 stresses in what reasonable accommodations for the third point that: “the Brussels Council of people with disabilities means in each March 2003 renewed the commitment of the member state. As the EU network of European Union to promoting e-inclusion Experts on Disability Discrimination notes, and the elimination of all kinds of barriers the requirement of Article 5 "obliges that obstruct the full integration and employers not to ignore disability, but participation of persons with disabilities in specifically to take it into account." 12 And the knowledge-based economy and society”. in a sense, it also requires positive actions, (which is sometimes referred to as positive discrimination). Considering the legal cases 13 Council Decision of 3 December 2001 (2001/903/EC) 10 14 Official Journal C 340 of 10 November 1997 2000/C 364/01 11 15 Official Journal L 303, 02/12/2000 P. 0016 - 0022 ‘the right of persons with disabilities to benefit 12 Implementing and Interpreting the reasonable from measures designed to ensure their accommodation provision of the framework independence, social and occupational integration employment directive: learning from experience and and participation in the life of the community’ 16 achieving best practice, by Lisa Waddington, EU network of Experts on Disability Discrimination, p. http://www.europa.eu.int/comm/employment_so 7 cial/index/council_eypd_fu_en.pdf 14 The European Council, in its Resolutions of possible” with “criteria for people with May 6, 2003 on accessibility of cultural disabilities or design for all users” (Chapter infrastructure and cultural activities for IV, Specific rules governing specifications people with disabilities 17 and of May 21, and contract documents, Article 23). 2002 on future of European tourism 18 , National governments must transpose these expressed its commitment to promoting the rules into national legislation by January 31, rights of people with disabilities and 2006. Although both directives are Member States declared to undertake more important, there is more to be done in efforts to facilitate accessibility to tourist respect of setting the requirement or sites for people with disabilities. dissemination of information related to standards and proper tools for accessible The Treaty on the European Constitution solutions. declares the requirement of non- discrimination of people with disabilities in Strategic objectives of the future set Article II-80. It states: “The Union by the Commission recognises and respects the right of persons As noted by the Commission: with disabilities to benefit from measures “Special attention will be given to the designed to ensure their independence, mainstreaming of disability issues in social and occupational integration and employment related policies, especially in participation in the life of the community” 19 education and lifelong learning, using all means through which the Commission has Finally, since 2004, there has been a new the possibility to act. […] Design for All policy. EU Directives 2004/17 20 and 2004/18 21 specify new rules Mainstreaming should focus in particular governing public procurement. Directive on the area of accessibility and should be 2004/17 covers all acquisitions made by clearly linked with the principle of Design governments and their agencies in the area For All. Accessibility to goods, services and of water, energy, transport and postal the built environment is a central issue for services. (Chapter IV, Specific rules people with disabilities which also of governing specifications and contract concern to all EU citizens. The Commission documents, Article 34). Directive 2004/18 intends to promote the elaboration of covers all acquisitions made in the area of European technical standards, public works, public supplies and public standardisation documents and other more services. general guidelines giving technical expression to the concept of ‘Accessibility An identical article in both Directives order for all’’ 22 . that procurement must comply “whenever Finally it is important to realize that the European Union declared that it intends 17 OJ C 134, 7 June 2003 to put more emphasis on Design for All in 18 OJ C 135, 6 June 2002 the field of services, accessibility to goods 19 Article II-86, Title III, OJ C 310 Volume 47 16 and the built environment. These intentions December 2004 bode well for the future. 20 Directive 2004/17/EC of the European Parliament and of the Council of 31 March 2004 coordinating the procurement procedures of entities operating in the water, energy, transport and postal services sectors, Official Journal L 134, 30/04/2004 P. 0001 - 0113 21 Directive 2004/18/EC of the European Parliament and of the Council of 31 March 2004 on the coordination of procedures for the award of public works contracts, public supply contracts and public service contracts, Official Journal L 134, 30/04/2004 22 P. 0114 – 0240 COM(2003) 650 final, p. 13 15 News Bites Conference in Canada vacation, hearing aids, and cochlear CHHA BC and CHHA Kelowna invite you implants. It also includes an entire chapter to their 2005 National Conference of the of contact information for organizations and Canadian Hard of Hearing Association at agencies of interest to deafened and hard of the Grand Okanagan Lakefront Resort and hearing individuals. Conference Centre in Kelowna in the Sunny Okanagan of Beautiful British Columbia. Profits from book sales go to ALDA, a Dates are June 2 to 4, 2005. consumer organization that provides social opportunities and advocacy for deafened The conference will include workshops, individuals. To order a copy e-mail Shawn specific and independent of each other for Lovley SDLovley@comcast.net. adults, young adults and parents of hard of hearing children, will be offered. As well, there will be a full Children's Program, a Hearing Loss Video Available Silent Auction, and Trade Show. Unheard Voices, a video that looks at the Kelowna is the largest city in the Okanagan impact of hearing loss on people’s lives, is Valley with a population of 98,000. It is a available in closed-captioned format four hour drive from Vancouver and is (captions can be turned on and off) and serviced by Greyhound Bus and major open-captioned format (with captions airlines. For more information contact permanently on the screen). In addition, CHHA National. Unheard Voices now includes a study guide E-mail: firstname.lastname@example.org that helps viewers identify and discuss how Web Page: www.chha.ca hearing loss affects them and those with whom they communicate. Resource on Life After Deafness Through a series of dramatic and humorous vignettes, Unheard Voices opens a rare Baffled by your acquired inability to hear? window of understanding into the lives of Know someone who's wondering how to people of all ages who deal with the often- deal with his or hers? Simply want to know overwhelming challenges of frayed more about adult-onset deafness? Then the communication. Gael Hannan, an actor book “I've Lost My WHAT??? — A with a severe-to-profound hearing loss, Practical Guide to Life After Deafness” is gives a powerful performance in this video for you. adaptation of her one-woman play created with writer Dalene Flannigan. Written by Shawn Lovley, a former member of the board of directors of the Unheard Voices can be used individually or non-profit Association of Late-Deafened in family situations, group discussions or Adults (ALDA), the book discusses included in university curriculums. It is assistive devices, the psychology of adult- also useful for hearing healthcare onset deafness, communication options for professionals and organizations seeking to deafened individuals, the Americans with better understand hearing loss. The 23- Disabilities Act, daily life for people who minute video is available for $24.99 can't hear anymore, post-deafness (Canadian funds) plus applicable tax and relationships with family and friends, shipping. Contact Gael Hannan romance after hearing goes on a permanent email@example.com or www.gaeldalene.com International Federation of Hard of Hearing Youth INVITATION TO AGM IN THE NETHERLANDS De Organisatie van Slechthorende http://www.ifhohyp.org/php/page.php?page Jongeren, SHJO welcomes the current and =members. future member organisations of IFHOHYP to participate in the Annual General During the last weeks of April, participants Meeting (AGM) in Utrecht! The AGM will will receive further information and a more be held 5th – 8th of May 2005. SHJO offers detailed AGM program will be available on bed and board and some thematic IFHOHYP’s homepage www.ifhohyp.org. workshops will be arranged by the AGM organisers and IFHOHYP Board. Participants will stay at the hostel ”B&B The participants have to pay for their own Utrecht City Center”. It is a new youth trips to/from the Netherlands. hostel in the centre of Utrecht, near the canals, the cathedral and the city theatre, in Only 1 delegate and 1-2 observers per an old, just renovated building from 1870. IFHOHYP member organisation can If you are interested, they have their own participate. Any youth or other website: www.hostelutrecht.nl. You can organisation, which is not a member of read the information in English. IFHOHYP, can send its representatives as observers to the AGM. Hard of hearing The program will finish on Sunday morning individuals from non-member countries are after the breakfast. Those who stay in also welcome to apply to participate in the Utrecht on Sunday afternoon are welcome AGM as observers. Since places are to continue their work on IFHOHYP future limited, the amount of observers can be projects or in AGM working groups. discussed directly with the organisers. But remember that we will also have fun! ☺ The applications should be addressed to: You can always contact us for more firstname.lastname@example.org and must contain: your name, information. address and country, the name of your organisation and Email address. Deadline Also have a look at the programs of for the applications was scheduled to be previous IFHOHYP AGMs and about the April 8th. Only 30 participants can next AGM at participate in the AGM. http://www.ifhohyp.org/php/page.php?page =agm. Please note that only delegates of member organizations who paid their membership The AGM team, fees before or at the AGM have a right to Natasja Geelen-Rietveld vote. For membership in IFHOHYP and Lianne de Jonge membership fees please see Christi Menheere Plan to attend the next IFHOH AGM in Dubrovnik, Croatia April 27-29, 2006.