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Organ Donation “The Gift of Life

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					         Organ Donation
           “The Gift of Life”

University of Wisconsin Hospital and Clinics
     Organ Procurement Organization
Organ Procurement Organizations
University of Wisconsin Hospital and Clinics OPO (Madison) – Red
          Wisconsin Donor Network (Milwaukee) – Green
                  LifeSource (Minneapolis) - Blue
                 Recovery Agencies
 Organ Recovery Agencies:
      UW Health OPO – most of WI, UP of MI, Rockford, IL
      Wisconsin Donor Network – Milwaukee & SE Wisconsin
      LifeSource OPO – Minnesota, N. & S. Dakota, NW WI

 Tissue Agencies: Have contracts with individual hospitals
       Wisconsin Tissue Bank
       RTI Donor Services

 Lions Eye Bank of Wisconsin
          National Transplant
              Waiting List
Type of Transplant              Waiting       Transplanted in ‘08
    Kidney                      79,252           16,514
    Liver                       15,845            6,318
    Lung                         1,954            1,478
    Heart                        2,782            2,163
    Heart-lung                      85               27
    Kidney-pancreas              2,269              836
    Pancreas                     1,535              437
    Intestines                     220              185

    Totals                   101,524               27,958

  Source: Organ Procurement and Transplant Network - As of 4/14/2009
Wisconsin Transplant Waiting
Type of Transplant              Waiting        Transplanted in ‘08
    Kidney                      1,071                  445
    Liver                         218                  155
    Lung                           66                   40
    Heart                          82                   29
    Heart-lung                       0                    1
    Kidney-pancreas                57                   49
    Pancreas                       11                   15
    Intestines                       2                    0
    Total                       1,470                      734

  Source: Organ Procurement and Transplant Network, As of 4/14/2009
Illinois Transplant Waiting List
Type of Transplant              Waiting        Transplanted in ‘08
    Kidney                      3,707                  726
    Liver                         637                  251
    Lung                           65                   60
    Heart                         109                   92
    Heart-lung                       4                    0
    Kidney-pancreas              155                    41
    Pancreas                       83                   34
    Intestines                       8                    4
    Total                       4,618                    1,208

  Source: Organ Procurement and Transplant Network, As of 4/13/2009
Michigan Transplant Waiting List
 Type of Transplant              Waiting        Transplanted in ‘08
     Kidney                      2,502                  578
     Liver                         307                  209
     Lung                           45                   43
     Heart                          84                   52
     Heart-lung                       0                    0
     Kidney-pancreas                48                   19
     Pancreas                       25                     7
     Intestines                       0                    0
     Total                       2.959                      908

   Source: Organ Procurement and Transplant Network, As of 4/14/2009
 There are more than 101,000 people currently
  waiting for an organ transplant in the United
  States, more than 2,500 are children.
 The list is growing at the rate of one person
  every 13 minutes, or more than 3,000 patients
  each month.
 Nearly 200 children and 6,300 adults died while
  waiting for an organ transplant last year.
 17 people die every day waiting for transplants.
 More than 90% of Americans support organ
  donation, yet less than half say “yes” when
  approached at the time of donation.
      Organs That Can Be Transplanted &
       Conditions Causing The Need For
– Heart
    Cardiomyopathy, Coronary Artery Disease, Congenital Heart Disease,
     Valvular Heart Diseases
– Lungs
    Emphysema/COPD, Cystic Fibrosis, Pulmonary Fibrosis, Primary Pulmonary
     Hypertension, Congenital Pulmonary Defects
– Liver
    Hepatitis A,B,C, Cirrhosis, Biliary Disease, Metabolic, Neoplasms
– Pancreas
    Diabetes Type I without Renal Disease, Hypoglycemic Unawareness,
     Pancreas after Kidney Transplant
– Kidneys
    End Stage Renal Disease, Diabetes with Renal Disease
– Small Intestines
    Short Gut Syndrome, Severe Vascular Disease
   Tissue & Eye Donation
 Skin
 Bone
 Connective tissue
  (ligaments & tendons)
 Heart valves
 Veins
 Corneas
The Gift of Tissue & Eye Donation
 Skin is used for burn
  victims, and in
  reconstructive and
  cosmetic surgeries
 Bone and connective
  tissue are often used for
  sports injuries or trauma
 Veins are used for
  vascular surgeries
 Corneas are used for
  certain types of blindness
         The Differences….

    Organ Donation          Tissue/Eye Donation

• The patient must be     • Occurs in the first 24
maintained by a           hours after the heart has
mechanical ventilator     stopped beating

• Organs must be          • The tissues can be
properly preserved and    preserved and used at a
transplanted quickly      later date

• Life-saving procedure   • Life-enhancing
         Organ Preservation
            Time Limits
   Heart: 4 to 6 hours
   Lungs: 4 to 6 hours
   Liver: 12 hours
   Pancreas: 12 to 18 hours
   Kidneys: up to 72 hours
   Small Intestines: 4 to 6
  Current Criteria for Organ Donation

 Patients who have been declared brain dead
 Patients with severe neurological injury and family and
  MD are discussing withdrawing ventilator support
 Up to age 75 – flexible – there was a 96 y.o. donor last
 HIV – (at this time)
 No active malignancy
   – Exception: Primary CNS tumors

  Note: Only the OPO can determine
         donor suitability
If I want to be a donor….
          Say “Yes” to Donation:
 In Wisconsin you can legally
  consent to donation by signing
  the Anatomical Gift Statement
  on the back of your driver’s
  license or state issued ID card.
 You can indicate your support
  of donation by attaching an
  orange “donor dot” to the front
  of your license or ID card.
 You can also include your
  donation decision in writing in
  your living will or healthcare
  POA documents.
   The Most Important Step
Tell your family or
legal next of kin your
wishes. Hospital
staff will ask them
about your wishes
as they relate to
Who is my Legal Next of Kin ?
 Healthcare Agent/POA
  (if enabled to do so)
 Spouse
 Adult Child
 Parent
 Adult Sibling
 Grandparent
 Grandchildren
 Legal Guardian
 Coroner or ME
 Can Your Family Go Against
       Your Wishes ?
 If you haven’t legally
  documented your decision in
  writing, your legal next of kin
  has the right to make the
  decision, even if it’s not the
  decision that you wanted.
 It’s important to make sure
  that you have properly
  documented your decision
  and that they know your
  wishes about donation.
      Through Organ & Tissue
One donor can…
 Save up to eight lives
  through organ
 Give sight to up to
  two people
 Enhance the lives of
  40 or more people
  through tissue
      State Donation Data - DMV
    Wisconsin Organ & Tissue Donor Program:

•   Website query capabilities on organ donation according to:
    Age range, ethnicity, county, dates, etc.

•   Allows you to view/print intent map
     Organ Donation Websites
 United Network of Organ Sharing - UNOS
 US Dept. Of Health and Human Services - HHS
 Donate Life America or
 Wisconsin Dept. of Health Services
 University of Wisconsin OPO
 Donate Life Wisconsin
       Volunteer Opportunities
 Sharing your personal story:
  Churches, civic groups, media, hospital
  staff who work with donors/recipients, etc.
 Staffing a booth on organ donation
 Educating others: Driver’s ed classes,
  friends, community at large
 Be a Dottie the Dot mascot/escort
      Tips for Staffing a Booth
Display or Table Set Up:
 Keep it simple. Group materials neatly.
 Stand or sit at different ends of the table.

Talking Points:
 Phrases to break the ice:
  “Hello – would you like a donor dot?”
  “Hi – have you made a decision about organ
      Tips for Staffing a Booth
If they answer YES to either question:
 Offer a giveaway item (if available)
 Ask if they have discussed their decision with
    their family.

If they answer NO:
 Offer the one-page info sheet
 You can say “This is a good reference with
     information and common questions about
     Tips for Staffing a Booth
If you are asked questions & you don’t know
   the answers:
 Be honest. Say you don’t know but would
    be happy to have someone from the OPO
    follow up with them. Offer the websites on
    the one page info sheet.
 If they would like OPO follow up:
 Forward their contact info & question to
    Trey Schwab
    Tips for Staffing a Booth
If someone is “on the fence” about donation –
you may say something like: “If you aren’t sure
about donation, ask yourself this: If you or one of
your loved ones needed a transplant to live,
would you accept it? If so, I would certainly
hope that you would be willing to give that
opportunity to another person.”

Offer them a Got Your Dot flyer to take with
them. Show them the web site on the back,
where they can go to learn more.
      Tips for Staffing a Booth
Please Remember….
 A certain percentage of people will say “No”.
 Organ donation is a very personal decision.
 Our goal is to ask everyone to make an
  educated decision about donation and to share
  their decision with their family.
 We aren’t trying to coerce people into being
  donors and we must respect personal decisions.
 You are representing UW Health OPO.
   Tips For Working With The
  Per UW Policies – UW Health Public
  Affairs needs to be notified of ANY media
  request for an interview or data.
 Contact Kathy Schultz in Public Affairs:
   608.262.9374 or 719-9086 or pager 4016
     Tips For Working With The
Before the Interview:
 Kathy will follow-up with the reporter to get a feel for the type of
  story they are interested in. She will educate the reporter and/or
  share current data and facts, and will determine who to ask to
  do the interview.
 She will then follow-up with the appropriate person and help
  them prepare for the interview.
 Once she does that – please respond to reporters quickly.
 Ask Kathy or the reporter for a list of questions or topics.
 Make sure you have consent before discussing any patient

       Tips For Working With The
During an Interview:
   Message, Message, Message!
   Speak clearly and use regular language (Avoid abbreviations and acronyms
    that are unfamiliar to people who haven’t experienced donation or
   Don’t lie or try to fudge the truth. If you don’t know the answer, just say so.
    A good reporter will follow-up to find the answer elsewhere, and/or the
    question will not be included in the edited interview.
   Stay “on the record.” There is no “off the record” with the media. If you say
    it, they can use it.
   Use brief examples. Think “quotable sound bite” >20 seconds.
   Use good posture and retain eye contact with the reporter.
   Mind your facial expressions and gestures. Body language speaks loudly.
   Dress appropriately. Look professional, tidy and prepared. This raised the
    audiences perception that you are important and know what you’re talking
         Sensitive Terminology
  Please Use

“Recover or recovery”   Instead of   “Harvest or harvesting”
 of organs                            of organs

“Deceased” donor or                   “Cadaver” or
                        Instead of
“Deceased” donation                   “Caderveric” donor
Common Questions in
 Regards to Donation

“ Will the doctors do everything they can to try and
 save me if they know my wishes to be a donor?”


  The OPO team is separate from the medical team
   treating the patient. This ensures that there is no
   conflict of interest.
  Donation is only considered after all efforts to save a
   patient’s life have been pursued by the medical team.
“How does religion relate to organ donation?”

 The majority of religions support organ donation.

 Most religions view organ and tissue donation as a
  charitable act.

 Talk to your religious leader about donation.
   “Will donation disfigure the body?”


 Organs are removed through surgical incisions.

 Areas affected by tissue donation are reconstructed
  and concealed by clothing.

 A family is able to have an open casket funeral.
       “Does donation cost a family money?”
 Individual recovering agencies pay for all expenses associated
  with the recovery.

 Those costs are passed on to the recipients and their insurance

 The donor’s family is responsible for the typical funeral expenses.
   “Will donation cause any delays with funeral


 The recovering agency will make certain the body is
  released to the funeral home on time.

 No extra planning is required by families of organ and
  tissue donors.
“Can you pay to get an organ?”


     Allocation Criteria
        • Blood type
        • Medical urgency
        • Tissue match
        • Waiting time
        • Organ size
        • Immune status
        • Geographic distance
“Will the organs be transplanted locally?”

                      Yes, If….
 There are local recipients for the organ.
 There are no status-one patients in our region.
  (livers only)
 There are no recipients in the U.S. who are a perfect
  tissue-typing match.
  (kidneys only)
 Approximately 85-90% of all organs donated here are
  used for transplants here.
Introducing Dottie the Dot!
 Dottie is Wisconsin’s very own
  organ donation mascot.
 She is designed to look like the
  orange “donor dot” (organ
  donation sticker) that Wisconsin
  residents place on their driver’s
  license if they wish to be listed
  as a donor.
 She was made possible by a
  generous donation from WPS
  Insurance. The Dottie program
  is managed by UW Health.
        Dottie’s Mission:

To increase the number of Wisconsin
residents who declare their wish to be
a donor.
               Dottie’s Goals:
 Currently, 2.2 million (52 percent) of Wisconsin
  residents have already declared their intent to donate.
 The Dottie program, along with several other state-wide
  initiatives, is working to raise that figure to over three
  million people, (75 percent) of Wisconsin residents.
 That figure would put Wisconsin at the top of donation
  rates throughout the nation.
Understanding the Job
   and the Rules
 Doing your job as a Dottie mascot
          and/or escort:
 You will appear at public and private events in
  communities throughout Wisconsin to promote organ,
  eye and tissue donation.
 You will promote the “Got your Dot?” campaign
  encouraging residents to place an orange donor dot on
  their driver’s license or state ID.
 You will ask people if they’ve “Got their dot?” and answer
  their questions about how to be listed as an organ, eye
  and tissue donor.
 You will direct people to to learn
  more and share their wishes.
           Dottie’s escorts are…
 Champions for the cause.
 Able to answer basic questions about organ donation.
 Always directing people to the Donate Life Wisconsin’s
  Web site to learn more.
 Responsible for ensuring Dottie’s safety and comfort level
  at all times.
 Clean, neat, respectful and appropriate.
How Do I Become a Mascot/Escort?
 Email: or complete a volunteer
  form today.
 Anyone can be a Dottie escort, however mascots must
  meet specific height, size and physical requirements to
  wear the costume.
 Join the team of more than 75 people who are
  volunteering their time and energy to the Dottie the Dot
 Dottie will be a big part of the Transplant Games in 2010,
  so don’t miss your chance to join the fun!
An Overview – Madison
 What are the U.S. Transplant
 Olympic-style competition that is held every
  two years.
 Competitors have all received organ
 12 sports with 41 different events.
 Ages - 18 months to 80+ years.
 Programs, ceremonies and workshops.
 Organized by the National Kidney
  Foundation and the Wisconsin Local
  Organizing Committee

   Badminton        Road Race
   Basketball       Swimming
   Bowling          Table Tennis
   Cycling          Tennis
   Golf             Track & Field
   Racquetball      Volleyball
             Additional Activities
   Games Expo/Athlete
                                 Giving, Grieving, Growing –
                                  Workshop for Donor Families
   Opening & Closing
                                 Donor Recognition Ceremony
                                 Living Donor Recognition
   Kids Time Activities
   5K Public Road Race
                                 Workshops for Living Donors
   Nightly Social Lounge
                                 Donor Quilt Pinning Ceremony
   Donor/Recipient Golf
                                 Coffee House
                                 Family Fun Night
   Professional Conference
       Program Objectives
 Demonstrate success of transplantation.
 Call public attention to need for more
 Rehabilitation of transplant recipients.
 Honor both living and non-living donors.
 Involve the transplant community and the
  local community as a whole.
      Who Attends?
   Transplant recipients
   Donor families
   Living donors
   Transplant professionals
   Family and friends
   Local community
                     Games Growth

                                                   7000 7000
6000                                        6500

2000          2000 2500
        800                1200    1550    1720    1420   1500   1250   1700
       600    900   1000
       1990 1992 1994 1996 1998 2000 2002 2004 2006 2008

                       Athletes     Total Participants
              Games Locations
   1990 – IUPUI (Indianapolis, IN)
   1992 – UCLA (Los Angeles, CA)
   1994 – Emory (Atlanta, GA)
   1996 – U of Utah (Salt Lake City, UT)
   1998 – Ohio State (Columbus, OH)
   2000/2 – Disney World (Orlando, FL)
   2004 – U of Minn. (Minneapolis, MN)
   2006 – Conv. Ctr./U of L (Louisville, KY)
   2008 – UPMC/Pittsburgh, PA
   2010 – Madison, WI (Statewide LOC)
                  Coming Soon:
 Complete information will be released to the public
  and the media. This communication will include the
  following areas:
 Volunteering Opportunities and How to sign-up.
 Participation information for transplant recipients who want to
  compete for Team Wisconsin.
 Participation information for donor families and/or living
  donors who wish to attend and take part in the 2010 Games.
 Information for companies and corporations that would like to
  get involved.
 A list of contacts for people who are looking for more
  information, someone to speak to their group, etc.
           How Can You Help?
 Let your employer, community groups, etc. know that the
  Transplant Games are coming and see if they would like to
  get involved.
 We will need donations – both cash and in-kind (printing
  services, professional assistance, etc.)
 Spread the word to your friends and families.
 Identify any contacts that you have that would be of
  assistance to Trey Schwab.
 VOLUNTEER – we will need approximately 3,000
  volunteer days to make the Games a success.
          To Get Involved
 Contact Trey Schwab at the UW Health
  OPO - (608) 890-9451 or via e-mail at:
Proceeds go to Donate Life WI to help support a WI State Donor Registry