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Ectodermal Dysplasia _ED_

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					Ectodermal Dysplasia (ED)




       Max’s story
Max is four years old and has ED
He lives with his mum and dad, and his brother, Thomas
Having ED means Max doesn’t have any teeth and not much hair
Having ED also means that Max get’s hot easily, so he has to sleep
   on a special chilled pillow with fans blowing on him at night
He also has to make sure he drinks lots of water
He has a false pair of teeth that he wears sometimes
Even though he has false teeth Max sometimes still
          prefers to eat with his gums
Having ED is tough sometimes, but it doesn’t mean Max can’t have any fun!
Max wants to be a footballer when he grows up
Max also loves playing on his Nintendo Wii
The money raised on Jeans for Genes Day helps children like
             Max lead healthier happier lives

				
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