HULL EAST YORKSHIRE HOSPITALS TRUST PATIENT ADVICE LIAISON SERVICE PALS

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							            HULL & EAST YORKSHIRE HOSPITALS TRUST

            PATIENT ADVICE & LIAISON SERVICE (PALS)

                         ANNUAL REPORT 2002/03
1.   PURPOSE OF THE PAPER
     For 2001/02 the Patient Advice & Liaison Service (PALS) was reported within the
     Patient and Public Involvement Annual Report. The development, activity and
     impact of PALS necessitates that a separate report is produced, this report will
     detail the development, activity and impact of PALS for 2002/03

2.   BACKGROUND
     Hull & East Yorkshire Hospital Trust were a PALS pathfinder and as such have
     had a PALS service since April 2001 with the first PALS Officer taking up post in
     August 2001. The principle aim of the service is to advise and support patients,
     their families and carers, and assist them in their journey through the NHS
     system.

     Feedback through the PALS service provides a focus for improvements to
     services for patients and the public.

     2.1    National Developments
            The Department of Health has established a National PALS Development
            Group in order that the PALS agenda is taken forward in a coordinated
            way. PALS standards published in ‘Supporting the implementation of
            patient advice and liaison services’ (DoH, 2002) are being revised and the
            creation of a central PALS office is being considered. A Department of
            Health guidance document on the evaluation of PALS is being developed,
            it is anticipated that the guidance will be published during 2003/04. There
            is also a drive for PALS to be linked with other initiatives associated to the
            patient and public involvement agenda for example, the review of the
            NHS complaints process (NHS Complaints Reform, Making things right,
            DoH, Feb. 03), Choice for Patients, Local Authority Overview and
            Scrutiny, Strengthening Accountability – Policy guidance on Section 11 of
            the Health and Social Care Act (DoH, Feb. 03)

3.   CONTACTS TO PALS
     The number of people contacting the service continues to increase. The number
     of contacts from August 2001 when the first PALS Officer was appointed to
     March 2003 is detailed below.
                                  Number of PALS Contacts July 01 to March 03 by Month

                        100
                         90
                         80
             Contacts


                         70
                         60
                         50
                         40
                         30
                         20
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The graph below shows the number of PALS and Complaints issues coming into the
Trust from July 2001 to March 2003. In the early stages of the PALS development it
appeared that the PALS was having the impact of reducing the number of formal
Complaints coming into the Trust. The trend does not seem to be continuing as referrals
to both services are increasing.

                                   PALS & Complaints Contacts July 01 to March 03

                                                    PALS    Complaints

                      100
 Number of Contacts




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                          The increase of PALS contacts within Divisions and Directorates can be seen
                          below with comparisons between 2001/02 and 2002/03. The greatest increased
                          being in the Medical and Surgical Divisions. The two years cannot be directly
                          compared as the PALS did not become fully operational until August 2001 and
                          the Division of Cancer services was not in operation for the total of this period of
                          time. This chart does however provide an overview of the PALS activity by
                          Division.

                                                  PALS Contacts by Division/Directorate 2001/02 & 2002/03
     Number of Contacts




                           350
                           300
                           250
                           200                                                                                                                                                 2001/02
                           150                                                                                                                                                 2002/03
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                                                                                       Division/Directorate

4.                        REPORTING MECHANISMS & FEEDBACK
                          The reporting mechanisms to the Trust and feedback to the
                          Divisions/Directorates work at various levels.

                          4.1             Trust Board
                                          During 2002/03 the Trust Board has begun to receive a joint PALS and
                                          Complaints report at every meeting, this report includes the changes that
                                          have taken place as a result of the patient experience as described by
                                          patients to the PALS or Complaints Service.

                          4.2             Shadow Patient Forum
                                          The Shadow Patient Forum have a role in monitoring the activity of PALS.
                                          During 2002/03 they have participated in the Evaluation of the PALS
                                          Service, supporting and agreeing the subsequent action plan. They have
                                          received a report on a quarterly basis on PALS activity.

                          4.3             Trust Committees
                                          The Complaints Committee was reviewed during 2002/03 and is now
                                          entitled the ‘Learning from Patients Committee’; its terms of reference
                                          have broadened to include PALS. The PALS have taken the service
                                          Training Strategy for endorsement and provided details of PALS training
                                          provided in the Trust. The committee have supported PALS in securing a
                                          visible point of contact for patients at the Hull Royal Infirmary site.


                                                                                                                                                                           3
     4.4    Divisions & Directorates
            From June 2002 PALS have produces quarterly reports for Divisions that
            are disseminated to Divisional Managers, Nurse & Service Managers,
            Modern Matrons, Clinical Director and Nurse Advisor. In addition reports
            are sent to all Directorates that have received a patient concern. The
            reports are anonymous from a patient and staff perspective but provide
            information by speciality and contain:
            • Patient ID number
            • Date Received into PALS
            • A synopsis of the problem
            • A synopsis of the outcome
            • Primary subject code e.g. DELAY
            • Sub-subject code e.g. Delay in procedure/investigation
            • Unit i.e. Hospital site
            • Date PALS closed the case
            Clinical Governance Facilitators progress these reports through the
            Division via the Clinical Governance arrangements.

            Divisional and Directorate senior staff are encouraged to contact PALS to
            request further details on the cases if required.

5.   PALS STAFF
     During 2002/03 the number of PALS staff has increased to 3.00 WTE including
     the establishment of a Senior Management Post. This has been in direct
     response to the increase in the number of referrals to the PALS service.

     In line with the national recognition that the role of PALS Officer is very stressful,
     the provision of external counselling for PALS Officers has continued. PALS
     Officers find this helpful and have requested that it continue.

     Core training requirements for PALS Officers has been identified and addressed
     locally; this includes core investigation skills in line with the aim of the
     Directorate. An induction package that includes PALS training requirements has
     been developed for new staff. In addition PALS staff are undertaking specific
     training that ensures the direction of the service for example, Counselling
     Certificate and Certificate in Education.

6.   PALS BASELINE AUDIT AND EVALUATION AGAINST CORE STANDARDS
     The PALS baseline audit and evaluation against core standards covered August
     2001 to March 2002 and reported in August 2002. The evaluation takes an
     inclusive approach considering the Hull and East Yorkshire Hospitals NHS Trust
     PALS from a number of perspectives, including users of the service, partner
     organisations, Trust staff and examines the statistics covering the eight month
     period.

     The evaluation report has been shared with other NHS organisations both locally
     and nationally. The approach to the evaluation has been adopted by a number
     of local NHS Trusts and the Trust has agreed to it being shared as an example of
     good practice in a Department of Health PALS evaluation framework document.



                                                                                          4
           The baseline audit and action plan informed the development of the PALS during
           2002/03. The PALS Baseline Audit and Evaluation Against Core Standards is
           attached as Appendix 5 (Page 22).

           6.1    Training
                  A PALS Training Strategy has been developed and agreed by the
                  Learning from Patients Committee. The purpose of the strategy is to
                  ensure staff are aware of their role, responsibilities to help patients
                  pursue concerns, raise comments and feedback compliments.

                  PALS have developed a number of training packages that are flexible in
                  order to meet the needs of specialties and specific staff groups. Real
                  case studies and open debate are an important element of the training,
                  and where possible PALS statistics and examples of the patient
                  experience are used in sessions. During September 2002 a PALS
                  training database was developed and data inputted from October 2002.
                  Accurate information on the numbers and profession of staff is held.
                  Below are the numbers of staff by profession (where available) that have
                  received PALS training from October 2002 – 31 March 2003.

                               Training October 2002 - 31 March 2003

          450
                                                       397
          400

          350


          300
Numbers




          250


          200

          150
                                                                           98
          100

                     42
           50                         21
                                                                                          3
            0
                 Lay Members        Managers     Mixed Staff Groups   Nursing Staff   Pharmacists


                                               Staff Groups


                  The 42 lay people who have received PALS training are from a lay group
                  working in the Trust, the Cardiac Support Group and members of a non
                  profit young people’s organisation from ‘The Warren’

                  PALS have been presenting jointly on the Trust Induction Programme
                  with Complaints since September 2002 evaluation from attendees has
                  resulted in the time allocated to the PALS/Complaints element of
                  Induction to be increased. Further, the combined PALS and Complaints
                  Training is one of the most requested training sessions that PALS
                  provides, as seen below. Combined training is also delivered on the
                  Trust Induction programme




                                                                                                    5
                                          Type of Training Delivered Oct.02 - March 03

                      400
Number of Attendees

                      350                                 367
                      300
                      250
                      200
                      150
                      100                                                                            107
                      50             39                                            48
                       0
                            PALS Basic Awareness        Induction           PALS Workshop      PALS/Complaints

                                                                Type of Training


                             All training sessions are evaluated and training modified as a result of the
                             feedback from participants. The availability of training is promoted in the
                             Trust Training Manual, on the PALS intranet site and opportunistically at
                             meetings.

                      6.2    Accessibility of PALS
                             6.2.1 Presence at Hull Royal Infirmary
                                   It is recognised that PALS requires a visible point of contact at the
                                   Trusts main hospital site. During 2002/03 the Complaints
                                   Department were relocated and became less accessible to
                                   undertake ‘face to face’ consultations. A suitable area in the main
                                   entrance of Hull Royal Infirmary has been identified for a visible
                                   PALS frontage. This will be further progressed during 2003/04

                             6.2.2    Modifications to CHH
                                      Modifications have been made to the PALS reception area at
                                      Castle Hill Hospital to ensure that the PALS Officers are
                                      accessible to children and wheelchair users.

                             6.2.3    Modern Matrons
                                      A specific relationship exists between Modern Matrons and PALS
                                      (HSC 2001/010). How this relationship translates into practice
                                      has been examined with the Trusts first two Modern Matrons
                                      based in ICU. There has been an acknowledgement that this
                                      work has been limited as the Modern Matrons were not generic,
                                      however an evaluation has been undertaken and the modified
                                      model will be rolled out across the organisation.

                             6.2.4    Choice for Patients
                                      The Choice for Patients initiative promoted the relationship
                                      between Choice for Patients and the PALS. A national job
                                      description was developed that made the role of the Patient Care



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             Advisor (PCA) accountable to PALS. The relationship between
             the PCA and PALS in the Trust is established and cohesive.

6.3   Partnership Working
      The Hull and East Yorkshire Hospitals NHS Trust PALS has continued
      during 2002/03 to work in partnership with local NHS organisations (the
      four local PCT’s, the Ambulance and Community Trusts). The
      partnership working continues to ensure that the PALS across the ‘patch’
      are seamless from the perspective of the patient. This approach also
      ensures that PALS is promoted across the primary and secondary
      interface, for example, most GP practices in the area have leaflets and
      posters promoting the PALS.

      PALS networks exist at a strategic and operational level, through
      structured meetings as identified in the Patient & Public Involvement
      Annual Report 2002/03.

      Further partnership working has been explored and agreed with East
      Yorkshire Council with the Citizenlink Project. This ensures that hard to
      reach people that live in rural area are able to access the PALS service
      through the use of interactive technology.

      The ongoing development and co-ordination of the PALS activity in the
      patch continues to be supported by the two local Community Health
      Councils.

6.4   Promotion of PALS
      During 2002/03 a number of initiatives have taken place, in addition to the
      provision of training, for example
      • 10,000 leaflets have been circulated across the Trust.
      • All wards and departments have been supplied with PALS posters
      • Articles in the staff and GP newsletters
      • Poster presentation at the ‘patch’ Service Improvement Day
      • Presentations to Hull City Council Overview and Scrutiny for Health
         Committee
      • Presentation to Social Workers in East Yorkshire
      • Attendance at team meetings
      • Roadshow at the new Women’s and Children’s Hospital

6.5   Patient Surveys
      Within the PALS Standards (DoH, 2002) there is a requirement for PALS
      to actively seek the views of services users, carers and the public to
      ensure effective services. During 2002/03 a staged approach has been
      taken to achieving this standard, as follows
      • PALS Baseline Audit and Evaluation against Core Standards
      • A patient survey database has been established within the Clinical
          Audit Department
      • Patient Surveys are registered on the Clinical Governance Project
          Registration Form, which ensures that they have been approved




                                                                                  7
                through the Divisional Clinical Governance structures prior to
                commencement.
            A small working group has been established to ensure that the Trust has
            a regular programme of structured surveys to assess the views of
            patients and their carers on the services provided. An inclusive approach
            is being taken and foundations are in place to base the surveys around
            the Essence of Care agenda.

     6.6    Quality Standards
            A number of operational guidelines have been developed during 2002/03
            for PALS Officers that address the consistency of the quality provided by
            the PALS, these include:
            • Operational Guidelines for facilitating meetings
            • Operational Guidelines for requesting a case review from a
                Consultant
            • Operational Guidelines for training

     6.7    Ongoing Evaluation
            Findings from the baseline audit of PALS indicated that evaluation of the
            service from a patient perspective should take place nearer the contact
            with the service. An evaluation tool has been developed to address this.

7.   RISK MANAGEMENT
     In January 2003 PALS discontinued the use of the dedicated PALS database
     and integrated issues raised by patients with the Complaints, Claims and Risk
     agenda via the Datix Risk Management database adopted by the Trust. Themes
     and trends can now be tracked across these elements to provide a more
     cohesive picture of the patients experience in the Trust.

8.   LEARNING LESSONS
     In 2002/2003 the following are examples of learning from patients arising from
     PALS issues:
     2002
     • Content of “access to medical records” letter altered
     • Routine admission letters changed to include more information.
     • Plinth placed across entrance door for easier access for disabled
     • Visitors toilets fitted with shelves and hooks
     • Urology, a major service investigation and review was undertaken prompted
         by an increase in the number of patients raising concerns about their
         experiences in the service to PALS.

     2003
     • Diary of events of an individuals experience used for staff awareness
        sessions
     • Department protocols altered regarding faxing information external to the
        Trust
     • Gaps in training identified in a ward area
     • Faulty vacuum replaced on a ward
     • New signage for reception area at CHH



                                                                                        8
9.   RECOMMENDATION
     That the Trust accepts this report and notes the considerable progress made
     during 2002/03.




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