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					Vol.10.07- October
www.step@asdk12.org



                                             The pumpkin technically belongs to the squash family, but
                                             works wonderfully as a pie filling so many consider it a fruit. It
                                             is an excellent source of Vitamins A and C, iron and potassium
                                             while being low in calories, sodium and fat.
Pumpkins are ready to harvest when they are orange in color and the skin is hard, not easily penetrated by a
thumbnail. They smaller ones are best for storing. Additionally, they store best if the stem is left on them.
They will last for about 2-3 months if stored at about 55 degrees in a dry place. For long-term storage, it needs
to be canned in a pressure canner as cubes, not mashed or pureed. Prepared pulp can be frozen, canned, or
dried for use in the future. A five (5) pound pumpkin will produce about 4 ½ cups of cooked pumpkin.

ROASTED PUMPKIN SEEDS: Rinse the seeds until the pulp and strings are detached. Boil the seeds for 10
minutes in 6 cups of water with 1 teaspoon of salt. Drain and dry the seeds. In a separate bowl, combine 1-
teaspoon Worcestershire sauce, and 3 tablespoons melted butter (or margarine). Add the seeds and stir well.
Spread the seeds out on a baking sheet. Bake them at 325°F for about 30 minutes or until the seeds are a light
brown. Seeds should be crisp when fully roasted.

Visit: http://www.ext.colostate.edu/pubs/columncc/cc041019.html for additional recipes and fun information.




        Front page: Pumpkin Lore and More              Karren Johnson, Teacher Consultant, STEP Center, is
        Bits and Pieces                                available for presentations regarding the Alaska
                                                       Family Directory.
        A Piece of the Puzzle: What is Celiac
        Disease?                                       She is able to provide presentations as an outreach to
        Catching the Dream: Assets 4-6                 the rural communities, as part of her role with the
                                                       STEP Center.
        Spectrum Reflection: “Normal”

        Gift for the Day
                                                       In addition, Karren is available for local (Anchorage
                                                       Area) presentations.
        Around the Country: Laptop
        computers – an extended classroom…             If you are interested in scheduling a visit to your
        STA TEWI DE AREA CAL E ND AR                   community please contact her directly at 742-3870.
        OF MO NTHL Y EVE NTS
                                                       The only cost to the community or organization is
                                                       Karren’s travel cost.
Stone Soup Group
   They have a new and improved site – give it a
    look at www.stonesoupgroup.org
If you are interested in learning more about Fetal Alcohol Spectrum
Disorders, here is the contact for the FASD team in your area:
                 Anchorage: Michael Baldwin, 729-4250
                 Fairbanks: Shireen Deitrick, 456-4003 x126
                 Tok: Pam Gingue, 883-5151 x110
                 Juneau: Ric Iannolino, 463-7373
                 Kenai Peninsula: Vickie Tinker, 262-6331
                 Mat-Su Valley: Jean Kincaid, 352-1200
                 Bethel: Shane Welch, 543-6100
                 Bristol Bay Area: Luisa Hansen, 842-4936
                 Cooper River Region: Gay Wellman, 822-5241
                 Kodiak: Nancy Wells, 486-4643
                 Sitka: Marilyn Lande, 966-8616
                 Ketchikan: Jasmine Stewart-Nelson, 228-4947


  This is a paraphrased notice found on the Governor’s Council on Disabilities and Special Education website:

  HELP WANTED: Disaboom.com launched in September 2007. It will change the world of
  people with disabilities and functional limitations. Designed by doctors and other
  Disaboomers, it is the first interactive, online community dedicated to providing
  comprehensive resources for people with disabilities, their caregivers, families, rehabilitation
  providers and employers.

  If you or someone you know has a disability or functional limitation , or you work with people
  with disabilities, Disaboom needs you….

  Sign up to be a beta tester and let us know what you want to see on
  Disaboom.com. log on to www.disaboom.com/ltmd and become a beta tester. It won’t
  take much time, it’s free, and you even get a free movie download.


Hav e yo u ev er h ea rd o f th e Mo u ntai n V iew 360° p roj ect ? It’s a o n e-st op reso u rc e c ent er f or
famili es i n t h e Mou nta in Vi ew c o mmu nit y co nc erned wit h a cc ess to c o mp reh ensi v e s yst ems of
famil y s up po rt s erv ic es rel at ed to d ev el op men tal d isab iliti es . P a rtn ers i ncl ud e th e Mu nic i palit y,
the Al aska Go v ern o r’s C ou nc il, an d U A A j us t to n a me a f ew.


Ba rb Neeso n is th e P rog ra m Man ag er an d P arent Nav igat o r fo r th e p roj ect . Fo r i nfo rmatio n
on ho w th e 360 °p roject may b e of h elp to yo u o r so meo n e y ou kn ow , yo u ca n reach Ba rb e a t
Sto n e Sou p G ro up . T h ei r n u mber is 907 - 564 -37 0 1 or t oll f ree 1- 877 -78 6-7 327. H er emai l is
barb en@ sto n eso up grou p. o rg .
                     Celiac Disease as defined in the Journal of the American Medical Association is a
                     genetic disorder of the small intestine manifested by interference with absorption of
                     nutrients from food. People who have Celiac cannot tolerate a protein called
                     GLUTEN, which is present in wheat, rye, and barley. When people with Celiac eat
                     foods containing gluten, their immune system reacts, resulting in damage to the
                     lining of the small intestine. Celiac disease can be diagnosed with blood tests and by
                     examining a small piece of the intestine from a biopsy.

Another way of defining Celiac disease is that the body views gluten as an enemy and
creates antibodies in response. Villi exist in the small intestine. The job of the villi is
to absorb nutrients from our food intake. The gluten damages the villi. If they are
damaged, they can’t effectively do their job. Therefore Celiac disease can result in
symptoms like malnutrition, anemia, diabetes, and osteoporosis to name a few.

               Until relatively recently, Celiac was not considered to be a disease “common” to the US.
               As such the medical community was not knowledgeable in how it presents. As
               uncommon as Celiac appeared to be in the US, it is considered relatively common in
               Europe. The European medical community is trained to easily recognize it. As doctors
               in the US become better trained, the diagnosis rate of Celiac is increasing. The
               presumption is not that the disease is increasing, rather the diagnosis is being better
               recognized and therefore the numbers are going up.

According to an article published in PARENTS magazine (www,parents.com/articles/health/5557.jsp) In the
US, about 1 in 4000 people are diagnosed. A recent study by the University of Maryland School
of Medicine indicates that the disease actually affects about 1 in 133 people. That means that 97%
of people with it go undiagnosed.



      SYMPTOMS OF CELIAC DISEASE

      *failure to thrive in infants                   * developmental delay in infants and children
      * slow weight gain in infants and children      * persistent abdominal pain, gas, and bloating
      * chronic diarrhea                              * weight loss
      * anemia                                        * fatigue, irritability, depression
      * bone loss                                     * joint pain
      * muscle cramps                                 * inability to concentrate
      * short stature
 Discussing body functions can be a tricky proposition. However, in
 order to determine if someone has specific issues that may be
 characteristics of the disease, it is important to break through those
 barriers in order to properly care for our loved ones – and us.
        ***************************************

Recognizing Celiac can be difficult because the symptomology is similar to those of
several different diseases more commonly diagnosed such as irritable bowel
syndrome (IBS), iron-deficiency anemia, Crohn’s disease, diverticulitis, intestinal
infections, and chronic fatigue syndrome.
Testing is not regularly done and is not conclusive in children under 5. However,
since it is a hereditary disease, it is important to have at least first-degree family
members tested. About 5-15 percent of first-degree family members will also be
positive for the disease. About 3-8 percent of people with type 1 diabetes and 5-
10 percent of people with Down’s syndrome will be positive as well.

Although there is no specific cure or surgery for celiac disease, there is a way to
live with it. One must eat a diet free of any gluten. A gluten free diet will
promote healing of the intestinal damage. One must avoid WHEAT breads or baked
goods, cereals, pasta containing wheat, barley, rye, or semolina. They must avoid
creamed or breaded vegetables, salad dressings.


    Gluten f ree p ro duc ts inc lude: San-J Wheat free Tamari, Annies Rice Pasta & Cheddar, Thai
    Kitchen Instant Rice Noodle Soup, Ancient Harvest Quinoa Spaghetti and corn/quinoal elbows,
    Tinkyada pasta, Nutrition Kitchen whole soybean pasta, Natures Path Mesa Sunrise Flakes, Lundberg
    Risotto and pastas, Annies salad dressings, Kinnickinnick Brown Bread and bagels
    (http://www.kinnikinnick.ca/) Blue Diamond nut thins, Crunch Master Rice Crackers (COSTCO carries
    them in 6-packs), several items made by Amy’s (also at COSTCO), EnerG foods
    ** when cooking pasta, make sure to use PLENTY OF WATER.



CREATE a recipe card. It’s nice to have on hand if you have to go to a restaurant. Some places are
even starting to address items that are gluten free. If there’s a restaurant you frequent, consider
giving them one to keep on hand. If possible, you can fax or call ahead a day to let the chef know.
Many establishments are becoming increasingly accommodating.



National website connection for Alaska for Celiac Disease: http://www.gigbranches.org/anchorage/index.html
The contact person in Alaska is Alison Smith. Her *current email address is kegelhofer@customcpu.com
She can be reached at 346-1405. The Anchorage Ciliac Support Group meets on Thursdays. The location
will vary depending on the topic, and the desire of the group. Watch the website for meeting information.


There is also a ROCK support group in Alaska based in Chugiak: Raising Our Celiac Kids (R.O.C.K.) -
ROCK'n Alaska Contact: Debbie Saddler Chugiak, AK 99567 Tel: (907) 688-6879 E-mail:
alaskadebbie@gmail.com
Continuat ion of External Asset s: Main area: Support
       Sub category: Caring neighbors:
               3-5yo (year old): The child’s network of relationships includes neighbors who provide
                                  emotional support and a sense of belonging.
               Grades 4-6: Child experiences caring neighbors
               Grades 7-12: Young person experiences caring neighbors
       Sub Category: Caring Climate in child-care and educational settings:
               3-5yo: Caregivers and teachers create environments that are nurturing, accepting,
                       encouraging, and secure.
               Grades 4-6: Relationships with teachers and peers provide a caring, encouraging school
                       environment
               Grades 7-12: School provides a caring, encouraging environment
       Sub category: Parent involvement in childcare an d education:
               3-5yo: Parent(s), caregivers, and teachers together create a consistent and supportive
                       approach to fostering the child successful growth
               Grades 4-6: Parent(s) are actively involved in helping the child succeed in school
               Grades 7-12: Parent(s) are actively involved I helping young person succeed in school

          For additional information and connections to other topics, visit http://www.search-institute.org/




             Normal: [1. Conforming to the usual standard, type or custom 2. Physically, mentally,
             and emotionally healthy 3. Maintained or occurring in a natural state]


As our society matures, hopefully we gain a better and broader understanding of certain words or phrases
and their greater meaning. The above definition is the one available from my computer. There are
additional phrases dealing with hydrocarbons, but none that would apply here.
The part of the world community that lends itself to an attachment to children and adults with FASD would
perhaps challenge the definition as not broad enough. The FASD community will tell you that in their
world, days in which their loved one only has one outburst is normal, or when their loved one allows a touch
is a normal day, or when their loved one is able to articulate their needs within 20 minutes is a normal day.
Normal is defined these days not necessarily by the dictionary, but by the people who live in the real world,
who confront effects that are 100% avoidable with love, courage, and outstretched arms, by people who live
with the after effects of alcohol consumption by their creator. Normal is defined by people who have no
agenda other than assisting in the contentment and fulfillment of a loved one who is trapped in a world not of
their doing, yet is their normal every day.
If you have a moment, visit http://come-over.to/FAS/grieving.htm to read some beautiful poetry from loved
ones who are celebrating the normal children in their world, while grieving the loss of normal according to
the dictionary.
                                                       We all have ability. The difference is
                                                       how we use it.
                                                                                    Stevie Wonder, 1950. American
                                                                                    Musician, singer, songwriter, producer




                                                             Children in Arkansas are given iPods and
                                                             laptops for long bus rides...


In the rural lands of Arkansas going to school can involve packing a pillow and blanket in your
backpack. The trip to school for many of the children is a 1 ½ hour bus ride each way. Billy Hudson,
a biochemist at Vanderbilt and his wife, anesthesiologist Dr. Julie Hudson know what the trip is like.
Billy grew up in Grapevine and had to make a similar trip each day. They want to encourage kids to
get involved in math and the sciences. So they have a plan. Provide an iPod or laptop with downloaded
science and math programs to grab their interest. It’s working. The kids are watching the programs
and they actually want more. The jobs that are being outsourced will someday be available to them if
they keep on the path. The bus becomes a “one room school house” as reported on the MSNBC article.
According to Cathy Gassenheimer, president of the Alabama Best Practices Center, “having teachers
stand up all day and talk” is not enough. There is only so much a teacher can do. Over the past 2
years, 40 schools have been recruited with amazing results. Some things are as simple as definitions.
Reading is one thing, but when you are reading about a trampoline, and you’ve never seen one, the
understanding is lost. This allows other students to go out, take a picture of a trampoline, and the
next time the student reads about it – they know what it is.

The program has expanded to kids who live in some of the economically challenged neighborhoods. The
“online” education is opening up the world to the students as well. Some of these kids have never been
farther than a couple of blocks from their homes. As an example, a group of children from Paine
Intermediate School learned of children in Africa dying of malaria due to the lack of mosquito nets.
They rallied together and raised funds for a group “Nothing But Nets”, then a phone call was placed
over the internet with the help of Skype to a relief worker to let her know that nets were on the way. A
difference was made.

There is the fear that internet use will be misused, or that predators will invade this new terrain. In
Arkansas, the Hudson’s load the iPods, and they are not allowed to take them home. For the users of
the laptops, internet safety guidelines are issued and a contract is signed. If there is any misuse of
the tool, it is taken away.

There is the risk of misuse of any knowledge, by anyone. The most important thing we can do as
parents it to be present in the moment with our children, to learn and grow along side them, doing our
best to protect them along the way.
             For more information visit: http://www.msnbc.msn.com/id/20623843/ to read the article in its entirety