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									                                                                                                                          a nonprofit organization




                                                                                                                                       J U LY 2 0 0 6




                                  "This is why I wanted to survive."
                                                    – Lindsay, two time cancer sur vivor, 7 months pregnant




                                                            Thanks to you, more and more people are surviving cancer.

                                                            However, most patients don't know that chemo, radiation and

                                                                                      surgery can cause infertility.


                                                                              When treating a patient during their

                                                                                           reproductive years –



                                                                      share the secret.
                                                              For more information, please visit
                                                                        www.fertilehope.org
                                                                       or call (888) 994-HOPE


                                                                                      Made possible by:




                                      share the secret
By Jessica Jacobs, Program Manager

Fertile Hope has recently launched its new Share the          above advertisement in the June 2006 issue of the
                                                                                                                           Highlights in this Issue:
Secret campaign. Through this project, we hope to             Clinical Journal of Oncology Nursing. Conceive
increase public awareness of cancer-related infertility.      Magazine also donated ad space for the campaign.
People know that cancer treatments can cause nausea,          Fertile Hope is currently working with other publications    New ASCO Guideline       pg2
vomiting and hair loss but they may not know that             to place ads.
infertility is a potential side-effect of treatment. This                                                                  New Frontiers in         pg3
campaign coincides with the release of the American           Fertile Hope is also looking for patients, survivors, and
                                                                                                                           Fertility Preservation
Society of Clinical Oncology guideline on fertility           supporters to adopt a local hospital for the Share the
preservation (see page 2).                                    Secret campaign. These volunteers will contact their
                                                                                                                           Partner Spotlight        pg3
                                                              local hospital and ensure that Fertile Hope’s educational
As part of this new endeavor, Fertile Hope has                materials are available for cancer patients. If you are
developed eye-catching advertisements. The Oncology           interested in joining the Share the Secret campaign,
Nursing Society generously donated space for the              contact Fertile Hope.
                                             Letter from the Executive Director
                                             Dear Friends,                                                   As a new mom, I am more determined than ever to solve
                                                                                                             the problem of cancer-related infertility for future patients
                                             As I write this letter, I am overwhelmed with joy after the     and survivors, so that they, too, may have a chance at
                                             birth of my daughter and finally being able to see my           parenthood. While many issues in cancer will take years
                                             parenthood dreams come true.                                    and millions of dollars to solve, cancer-related infertility
                                                                                                             is relatively simple. There are risks and there are options
                                             When my husband and I got married, I found myself in
                                                                                                             – we just need to put them together to solve the problem.
                                             a situation common to many cancer survivors – not yet
                                             infertile, but knowing that because of chemo I would go         Along with Fertile Hope’s outstanding staff (pictured
                                             into menopause early. So, although we did not have to           left), I continue to find strength in the commitment of the
                                             use my frozen eggs this time, we knew that we had to act        dedicated professionals, volunteers and supporters who
                                             quickly to start a family. However, getting pregnant was        work with us everyday on this challenge. I salute all of
                                             not easy. After several miscarriages, three cycles of in        you who give your time, talents and resources to help
                                             vitro fertilization, and uncovering a rare chromosomal          ensure that we continue to meet the needs of the people
                                             problem with my husband’s sperm (go figure!), we finally        we serve. I hope you enjoy our first newsletter as much as
                                             achieved pregnancy. We relied on the expertise of a top-        we’ve enjoyed the work!
                                             notch reproductive endocrinology team and we couldn’t
                                             be more grateful for their tireless efforts.                    Sincerely,
                                                                                                             Lindsay Beck




             Fertile Hope’s
           Board of Directors
                                             New ASCO Guideline
                                             By Joyce Reinecke, Program Director
  Kristin Armstrong, Author and mother
        of Luke, Isabelle and Grace

                                             The American Society of Clinical Oncology (ASCO)                with the patient their concerns about infertility and
    Lindsay Nohr Beck, Founder and
      Executive Director, Fertile Hope       has recently issued recommendations urging doctors to           interest in fertility preservation, as well as available
                                             notify their age-appropriate patients if cancer treatment       treatment options, and the best time to undergo fertility
     Marcus Berry, Senior Associate,
                Ryder Stilwell
                                             puts their future fertility at risk. In addition, ASCO urges    preservation measures, before beginning cancer
                                             referral of these patients to a reproductive specialist early   treatment.
   Chester Evans, Senior Vice President
                                             in the treatment planning process if they are interested
    and Chief Financial Officer (Retired),
    Coca-Cola Company North America          in fertility preservation. Fertile Hope commends ASCO           •   Patients interested and eligible for fertility preservation
                                             for drawing attention to this critical issue.                   should be referred to reproductive specialists to facilitate
  Madelyn Trupkin Herzfeld, RN, BSN,
                                                                                                             decision-making and fertility treatment planning.”
    OCN, President, Institute for Medical
       Education & Research, Inc.            Fertile Hope’s Executive Director, Lindsay Beck, along
                                             with Fertile Hope Medical Advisory Board members,               Sperm banking and embryo freezing are identified as
    Christy Jones, Founder and CEO,
                                             Drs. Kutluk Oktay, Ann Partridge, Pasquale Patrizio             commonly available and considered standard practice
               Extend Fertility
                                             and Leslie Schover, participated in the expert panel            options. Other fertility preservation techniques, such
   Kimberly Anderson Kelleher, Vice                                                                          as tissue freezing and egg freezing should be seen
                                             convened by ASCO to develop the guidelines. The
  President and Publisher, SELF Magazine
                                             panel undertook a thorough review of the literature             as experimental at this time, and, therefore, patients
       Liz Lange, Founder and CEO,           on fertility preservation techniques and the issues             should be referred to specialized centers for those
            Liz Lange Maternity
                                             surrounding the topic.                                          techniques.

  Chris McKechnie, Senior Vice President,
         Swiss Re Capital Partners           According to ASCO’s press release, “The guideline               In studying this topic and deciding to develop
                                             was developed in part due past studies that found               guidelines, ASCO recognized that infertility resulting
    Elaine Mizer, Senior Vice President,
                  Citigroup                  approximately half of oncologists do not initiate fertility     from cancer treatment is a major quality of life concern
                                             discussions at the time of diagnosis… The new guideline         facing young adult cancer patients and survivors.
    Steve Perricone, Director, Head of
     High Net Worth Derivatives North        makes the following recommendations:
         America, Deutsche Bank                                                                              The complete text of the guideline can be found in the
                                             •   Discussion about infertility as a potential risk of         June 20th issue of the Journal of Clinical Oncology and
   Samantha Saturn, Vice President of
                                             cancer therapy should be initiated with patients of             on ASCO’s website, www.asco.org . In addition, a
         Digital Media Marketing,
            Columbia Records                 childbearing age as early as possible after diagnosis.          Summary Slide Set is available on the ASCO website
                                                                                                             and a Patient Guide is available on the People Living
   Ann Vermes, Business Development,
            Linklaters New York              •   Physicians should identify whether the patient is at        with Cancer website, www.plwc.org.
                                             risk for treatment-induced infertility, and should discuss




  sharing hope:                              Nowadays, many teenagers have to deal with problems             approved immediately.          Brian decided to bank his
                                             like peer pressure, dating, and college decisions. For          sperm for future use, giving him the opportunity to


  a patient’s                                Brian, an 18 year old in California, those issues seem
                                             minor after being diagnosed with Stage 3 Hodgkin’s
                                                                                                             someday start a family of his own.



       stor y                                Lymphoma during his junior year of high school.                 “Cancer affects everyone whether they are rich or poor
                                                                                                             and everyone should have the opportunity to have a
                                                                                                             family regardless of their income. One day when I’m
                                             “During my exam the doctors found numerous small
                                                                                                             looking at my little girl or boy I want them to know about
                                             tumors in my waist, neck and armpits, as well as a
                                  By Brian                                                                   my tough upbringing, my battle with cancer and that
                                             seven-inch tumor in my spleen and a six-inch tumor
                                                                                                             they were able to be brought into this world because I
      as told to Michael Volpatt,            wrapped around my heart. I was shocked to hear the
                                                                                                             discovered Fertile Hope’s Sharing Hope Program.”
                                             news about my tumors and then completely devastated
Larkin/Volpatt Communications                when the oncologist told me that I might become sterile
                                             as a result of my cancer treatment.”                            Brian’s life has dramatically improved in a short period
                                                                                                             of time. He underwent six months of chemotherapy and
                                             While the doctors were deciding on the best treatment           four weeks of radiation treatment and he is now cancer
                                             for Brian, his grandmother discovered the Sharing Hope          free. He plans on moving to Hollywood to pursue his
                                             financial assistance program for fertility preservation.        dream of becoming an actor.
                                             She helped Brian fill out the application and he was
Congressional Resolutions to Raise Awareness
By Joyce Reinecke, Program Director

Over the last year, Fertile Hope has worked with elected          Fertile Hope is grateful for the support of these policy-
                                                                                                                                   • Urge Your Elected Officials
officials in Washington to raise awareness about the              makers and all of the co-sponsors who have signed on to
fertility-related side effects of cancer treatment. As a result   the resolutions. We see the resolutions as an important first     to Support the Resolution •
of our outreach on Capitol Hill, resolutions concerning           step in raising the knowledge level of our elected officials
the issue have been introduced in both the House and the          with regard to this issue. We have been tremendously            Let them know how this issue has touched

Senate.                                                           pleased with the feedback and support that we have              your life.

                                                                  received while doing outreach with Congressional offices
Members of Congress Sue Myrick (R-NC) and Lois Capps              for the resolutions.                                            Let your voice be heard! Please go to
(D-CA) introduced House Congressional Resolution 174,                                                                             www.fertilehope.org/resolution to read
and Senator Mary Landrieu (D-LA) introduced Senate                In order to get even broader support for the awareness,         the full text of the resolution and to draft
Resolution 331.      These non-binding resolutions urge           research and expanded access that the resolutions               an email to your representatives.
lawmakers to help “raise awareness about fertility side           call for, we ask you to reach out to your Congressional
effects and preservation options for cancer patients, to          representatives and ask for their endorsement of H.Con.
encourage research that will strengthen technologies for          Res. 174 and S.Res. 331.
cancer patients, and to consider ways to improve access
to fertility preservation options for cancer patients.”




New Frontiers in Fertility Preservation                                                                                                      Fertile Hope’s

Is Regenerative Medicine a Possibility?
                                                                                                                                         Medical Advisory Board


                                                                                                                                        Ashok Agarwal, PhD, HCLD
By Kutluk Oktay, MD, Center for Reproductive Medicine & Infertility
                                                                                                                                                Archie Bleyer, MD
Fertility preservation is an ever evolving field offering         in the rodents, eggs continue to be produced in adult                    Zeev Blumenfeld, MD
exciting new possibilities every day. From new                    life.                                                                         Jeffrey Boldt, PhD
pregnancies with ovarian transplantation to increasing                                                                                    David Gershenson, MD
success rates with egg freezing the field is burgeoning           What about in humans? Can lost eggs be renewed in                       Roger Gosden, PhD, DSc

with new possibilities. For example, recent research              adult life? While this has not yet been proven and there                     Elizabeth Grill, PsyD

indicates that a method of egg freezing called                    are many skeptics, some observations prompt further                   Bradford Kolb, MD, FACOG

vitrification may yield oocytes that can be fertilized as         investigation. One of the exciting observations is the                  Michael Krychman, MD

                                                                  ability of ovarian transplants to function beyond the                          David Lee, MD
efficiently as fresh ones and may result in pregnancy
                                                                  estimated ovarian reserve in the grafts. For example,                        Marcia Leonard, RN
rates comparable to standard in vitro fertilization cycles
                                                                                                                                               Mark Leondires, MD
(Oktay et al, Efficiency of Ooocyte Cryopreservation:             a breast cancer survivor is continuing to experience
                                                                                                                                           Frederick Licciardi, MD
A Meta-analysis, Fertil Steril, In Press). This heralds the       regular follicle growth in her graft beneath the
                                                                                                                                               John Mulvihill, MD
possibility that egg freezing may soon become a more              abdominal skin for over 4 years despite a very low
                                                                                                                                               Kutluk Oktay, MD
acceptable form of fertility preservation.                        initial numbers of eggs counted in her tissue sample
                                                                                                                                          Ann Partridge, MD, MPH
                                                                  before transplantation (Oktay K et al Lancet 2004).
                                                                                                                                        Pasquale Patrizio, MD, MBE
In my opinion, the most intriguing development of                 Another conceived spontaneously twice, and had a
                                                                                                                                        John Rinehart, MD, PhD, JD
recent years is the possibility of regenerative medicine.         live birth after ovarian transplantation underneath the
                                                                                                                                               Allison Rosen, PhD
Recently, researchers have shown that egg production              abdominal skin, apparently as a result of her remaining                      Zev Rosenwaks, MD
continues through adult life (Johnson J et al, Nature             menopausal ovary being revived (Oktay K. Human                         Peter Schlegel, MD, FACS
2004) and there may be germline stem cells in the                 Reproduction, June 2006).                                                    Leslie Schover, PhD
bone marrow to replenish the ovarian reserve that was                                                                                     Richard Scott, MD, HCLD
depleted by chemotherapy (Johnson J et al, Cell 2005).            The most exciting proof is yet to come. Research in my                  Nancy Snyderman, MD

These findings in rodents raised many eyebrows as they            laboratory and other researchers’ laboratories are                           Yukio Sonoda, MD

went against the convention that “women are born with             currently looking at exciting findings which may one                  Andrea Speck-Zulak, RNC

all the eggs they could have”. More recently, research            day change the way we look at how eggs are made                              Seang Lin Tan, MD

                                                                                                                                           Anthony Thomas, MD
by a few others showed that this proposition may not be           and the finality of reproduction may come into question.
                                                                                                                                               Jonathan Tilly, PhD
that off target. In one study, researchers were able to           Whether this ambitious proposition will come through
                                                                                                                                       Lynn Westphal, MD, FACOG
regenerate eggs from the stem cells beneath the skin of           or not, ethical and social considerations will always
                                                                                                                                          Kevin Winslow, MD, PA
pigs. In another, scientists generated sperm from bone            prompt us to continue this research in a responsible
                                                                                                                                               Brad Zebrack, PhD
marrow cells. Furthermore, research that will soon be             manner. Welcome to the new frontiers in fertility
published confirms the recent observation that, at least          preservation.




par tner spotlight: Organon U.S.A. Inc.
By Beth Layman, Director of Development

In addition to sponsoring our fundraising galas,                  “Organon is pleased to be the sponsor of this Cancer and
Organon U.S.A. Inc. enhanced its commitment to Fertile            Fertility educational effort to help foster communication
                                                                  between oncologists and reproductive healthcare
Hope this year by becoming the sponsor of our Professional
                                                                  professionals. Advances in fertility treatments are
Education Program. The purpose of this program is to              occurring very rapidly. This valuable program allows
educate oncology physicians and other professionals               healthcare professionals to make their patients aware
about the reproductive risks of cancer treatment, as well         of the options for preserving their fertility.”

as the fertility preservation options available for their             -- Lawrence Ewell, Senior Brand Manager, Organon
patients. Organon’s support has allowed Fertile Hope to
expand the reach of this program so that reproductive             We applaud Organon’s efforts to reach out to the

endocrinologists can deliver educational presentations            cancer community, and we are grateful for their ongoing

across the country, helping oncology professionals to             support.

understand all of the fertility options that are available for
their patients right in their own communities.
announcements:
Fertile Hope 5K Success
The Fertile Hope 5K and Kids 1K was a smash hit. More than 400 people attended the event which raised over
$100,000 in cash and in-kind donations. Fertile Hope is grateful to Board Member Kristin Armstrong, Paige
Alam, Up Hill Productions, the sponsors, media, and all of the volunteers who worked hard to make this event so
successful. We look forward to next year’s 5K!


Save the Date
Mark your calendars for Fertile Hope’s upcoming fundraising galas:
•   Thursday, September 14, 2006 - A Magical Night, San Francisco, California
•   Friday, November 17, 2006 – Sweet November, New York, New York


Both of these spectacular events feature food, cocktails, dancing, and a silent auction. If you are in the San
Francisco or New York area, please plan on joining us. The money raised from the galas goes directly to supporting
Fertile Hope’s programs.




How You Can Help
Beach Party/ Pool Party                                    Young Professionals Club
This summer, why not host a BBQ or Clam Bake to            Fertile Hope recently launched Young Professionals
support Fertile Hope? This is an easy and effective        Clubs in New York, San Francisco, and Los Angeles.
way to introduce Fertile Hope to your local community.     The Young Professionals Clubs will be hosting fun
Fertile Hope staff will work with you to organize the      activities designed to raise awareness about Fertile
event. You just need to provide food, beverages, and       Hope’s mission, while raising funds to support our work.
a warm, sunny day. When possible, we will send a           Contact Fertile Hope to join a local Young Professionals
staff member or survivor to speak about Fertile Hope’s     Club or to start one in your city.
mission and programs. By inviting potential supporters
to learn more about us, you can have a huge impact on
those patients and survivors who need the resources
that Fertile Hope provides.




Fertile Hope                                                                                                                       NON-PROFIT ORG.
                                                                                                                                     U.S. POSTAGE
P.O. Box 624                                                                                                                              PAID
NY, NY 10014                                                                                                                      STATEN ISLAND, NY
                                                                                                                                     PERMIT # 169




                                             our mission
                                             Fertile Hope is a nonprofit organization dedicated
                                             to providing reproductive information, support,
                                             and hope to cancer patients whose medical
888 994.HOPE

                                             treatments present the risk of infertility.

                                                                                                               Made possible by

								
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