END OF LIFE CARE PROGRAMME Joyce Wilcock Associate Director of Nursing Cheshire and Merseyside Strategic Health Authority BACKGROUND The care of all dying patients should be raised to the level of the best – Cancer Plan 2001 Announcement of £12 million over 3 years to help support implementation of GSF, LCP & PPC – December 2003 Building on the Best: End of Life Care Initiative – 2004 Committed the DoH to take forward training programmes so all adult patients at the end of life will have access to high quality specialist palliative care to enable them to live, and die, in the place of their choice Letter to SHA Chief Executives – 1 July 2004 Identified inequalities -50% of all patients wish to spend their final days at home yet less than 20% able to do so -95% of all referrals to specialist palliative care teams are for cancer patients Set out action to be taken to access allocation of funding CHESHIRE AND MERSEYSIDE ALLOCATION - Receive 2nd highest amount each year allocated on a population weighted basis 2004-2005 - £112,000 - part year 2005-2006 - £195,000 - full year 2006-2007 ? - full year 2007-2008 ? - part year PROPOSAL 1. Appointment of SHA wide End of Life Care Education/Project Lead. - to carry overall responsibility for co-ordination, implementation and ongoing evaluation of comprehensive action plan 2. Appointment of an SHA wide Gold Standard Framework Project Manager. 3. Provision of backfill arrangements within existing hospital palliative care teams, working in close collaboration with Community Teams to ensure continuation of the roll-out programme and sustainability of LCP. 4. Education contingency to support events, resources and tools for implementation of overall plan. 5. Provision of appropriate administrative support to the End of Life Care Project Team. PROGRESS Task group set up September 2004 Action plan to DoH November 2004 allocation for 2004-2005 received. Task group became Steering Group November 2004. - Membership reviewed and expanded to include all stakeholder reps - Patient reps involved from the start Development of project lead roles. Recruitment to project lead roles ongoing - Education/programme Lead appointed (p/t secondment) - Deputy Programme Lead advertised (p/t secondment) - GSF Project Lead advertised - Administrator post advertised Scoping current use of LCP and GSF Action plan to DoH to access full year funding 2005-2006 submitted.