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									                                Sample Press Release

                                                                                               SAMPLE PRESS RELEASE

   •   Issue a press release when you have information that is of interest to the media
       or that warrants a public announcement.
   •   Press releases provide key details about new initiatives (e.g., your organization
       and a car dealership collaborating on a fundraising event; to announce legislative
       developments or breakthroughs; to release data or new information; to announce
       an award; or to encourage additional support for mitochondrial disease research
   •   Send the press releases to your local newspapers, radio, television and cable
       stations, and to local Web sites.

                                  PRESS RELEASE

FOR IMMEDIATE RELEASE                        Contact: [NAME OF MEDIA CONTACT]
[DATE]                                                     [PHONE NUMBER]

Commitment to Increased Funding for Mitochondrial Disease Research

his/her leadership and commitment to increasing federal funding for mitochondrial
disease research. More than one in 4,000 children in the United States will be diagnosed
with this devastating disease by age 10; however, because symptoms can vary widely
and because mitochondrial disease can go for years without a correct diagnosis,
scientists believe that many more may be affected.

“Because mitochondrial disease is complicated and difficult to diagnose, many patients
suffer its symptoms for months or even years before being accurately diagnosed.
Additional research is our best path forward to help alleviate this suffering and to provide
hope for better treatments,” said [NAME, TITLE, ORGANIZATION]. “[ELECTED
OFFICIAL] has been a true champion and advocate in the fight to increase funding for
mitochondrial disease research.”

Mitochondrial diseases result from failures of the mitochondria, “the power plants in each
of our cells.” Mitochondria are responsible for creating more than 90 percent of the
energy needed by the body to sustain life and support growth. When they fail, less and
less energy is generated within our cells. Cell injury and even cell death follow. As this
process is repeated throughout the body, whole systems begin to fail, and the life of the
person in whom this is happening is severely compromised. The disease primarily
affects children, but adult onset is becoming more and more common.

Mitochondrial diseases are extremely complex and the range of symptoms include:
progressive muscle weakness; cardiac disease; liver disease; diabetes; gastrointestinal
disorders; blindness and/or hearing problems; strokes and seizures; and susceptibility to
infections. For affected children, these infections can be life-threatening and can cause
irreversible disease progression. Many will not survive their teenage years.

Mitochondrial dysfunction has been implicated in Alzheimer’s disease, Parkinson’s
disease, diabetes, cancer, heart disease, hypertension and the aging process itself.
Even autoimmune disease such as multiple sclerosis and lupus appear to have a
mitochondrial basis. Experts believe that additional research into mitochondrial disease
and mitochondrial dysfunction could open up a world of medical knowledge, ultimately
helping to uncover better diagnostics and treatments not only for mitochondrial disease,
but for a range of diseases.

[ELECTED OFFICIAL] has been a vocal supporter of increased funding for mitochondrial
disease research and has supported/sponsored [LEGISLATION] that would [PURPOSE

“[ELECTED OFFICIAL]’s leadership on this issue has been invaluable. He/She has been
a true hero for those with mitochondrial disease – as well as the millions more who
would be helped by additional research into mitochondrial dysfunction,” continued
[NAME]. “We look forward to working with [ELECTED OFFICIAL] well into the future and
to celebrating the significant advancements that will be made in medicine as we better
understand how mitochondrial dysfunction leads to the development of disease.”

For more information about mitochondrial disease and how to join the fight for more
research funding visit


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