CAREGIVER SUPPORT SATISFACTION SURVEY

Document Sample
CAREGIVER SUPPORT SATISFACTION SURVEY Powered By Docstoc
					CAREGIVER SUPPORT &
SATISFACTION SURVEY
  Bruce Bondo, SC Dept of HHS
 Bob Oldendick, University of SC
     POMP 2
CAREGIVER SURVEY
  STATEWIDE RESULTS
   212 RESPONDENTS
    POMP 2 CAREGIVER SURVEY
 These are the results of the Family Caregiver
  Support telephone survey conducted by USC
  during the summer-fall of 2002.
 This was part of an Administration on Aging
  Performance Outcomes Measurement Project
  grant.
 Surveys were conducted in all 10 AAA
  regions by USC’s Survey Research Lab.

                                                  3
       POMP 2 Caregiver Survey
 Copies of Statewide Survey results will be
  handed out for your review.
 Sample Populations are too small to provide
  conclusions for a single region.
 We will be conducting further telephone surveys
  in all 10 regions for this service during 2003 in
  conjunction with USC. Survey will be part of
  POMP IV.

                                                4
    DEMOGRAPHICS OF CAREGIVERS

   Spouse              23%       Age Ranges
   Daughter            41%       77-89           9%
   Parent              14%       67-76          16%
   Sibling              6%       57-66          30%
   Other Relative      9.4%      47-56          23%
   Son                  4%       37-46          16%
   Friend / Neighbor   0.5%      36 & younger   3.3%


                                                   5
          Additional Demographics
   Race: White or Caucasian: 49%
   Black or African American: 46%

   Marital status: Married: 58%; Widowed: 8%
   Divorced: 16%; Separated: 7.5%
   Never Married: 9.4%; Refused: 2%

   Gender: Females - 67%; Males – 33%


                                                6
    Caregivers’ Level of Education

   Education: Less than High School: 18%
   High School Graduate: 37%
   Some College, no degree: 20%
   Associate Degree: 6%
   College Graduate: 7%
   Advanced or Professional Degree: 9.4%



                                            7
        TOTAL HOUSEHOLD INCOME
   $11,250 & Under .......................21.2% (100% Poverty)
   $11,251-$ -$22,850 ..........…….19.4% (200% Poverty)
   $22,851-$34,999 .......................29.7% (300% Poverty)
   $ 35,000 or more .................…..18%      (400% Poverty)

   Don’t Know - 6.1%        Refused - 5.7%




                                                            8
    SERVICES USED THE MOST
 RESPITE CARE (In-home) 49%
 CASE MANAGEMENT 39%
 HOME HEALTH AIDE 37%
 HOME DELIVERED MEALS 21%
 RESPITE CARE (ADULT DAY) 20%
 TRANSPORTATION 20%
 HOMEMAKER 19%
 RESPITE (Short-term in LTC facility) 15%

                                             9
     Services Caregivers Received

   Information about services                 68%
   Assistance with access to services         45%
   Individual Caregiver Counseling            21%
   Caregiver Support Groups                   16%
   Caregiver Training or Education            14%

   93% Rated service as good, very good, or
    excellent

                                                     10
Other help that would be valuable
         to the caregiver
   Financial support                         91%
   Tax break, stipend, gov. subsidy          84%
   Help with housekeeping                    69%
   Help with bathing, dressing, grooming,
    toileting, feeding, other personal care   62%
   Respite care or adult daycare             58%
   Help w/transp, getting places             51%
   Help with making meals                    47%

                                                    11
    Other information that would be
         valuable to caregiver
 Help line                          89%
 Help in dealing w/agencies
  (bureaucracy) to get services      87%
 Info about developments/changes
  in laws which might affect your
  situation                          84%
 Help in understanding how to pay
  for nursing homes, ADC, or other
  services                           73%12
     Other information that would be
          valuable to caregiver
   Info about client’s condition/disability   68%
   Someone to talk to/
    counseling services/support group          69%
   Help in understanding how to select
    a nursing home/group home/
    other care facility                        60%



                                                     13
               Activities Performed in
            the Last Month by Caregiver
   Helped by preparing meals, doing
    laundry, or cleaning the house?       97%
   Helped him/her keep track of bills,
    checks, or other financial matters?   91%
   Helped him/her dress, eat, bathe,
    or get to the bathroom?               89%
   Helped with medical needs such as
    taking medicine/changing bandages?    87%
   Helped by taking him/her shopping
    or to the doctor’s office             85%
                                                14
       Burdens Carried by Caregivers
   61% of Caregivers get time off or relief from the responsibility
    of caring for their care recipient with help from agencies, family
    members or friends. 38% get no relief.

   49% of caregivers get relief from caregiving by someone else
    taking over 4 or less times per month.

   13% of caregivers get 2 hours per month relief.

   42% get no help from family or friends.

   39% carry nearly all of the care.
                                                                  15
               Caregiver Burden
   42% get no help from family or friends.

   39% carry nearly all of the care.

   81% CARRY ALMOST THE TOTAL BURDEN

   43% provide care 24 hours during a week day
   53% provide care 24 hours during week-end day

                                                    16
Caregiver’s Impact on Employer
       and the Economy
 Retired vs. Working Caregivers
 34% of caregivers surveyed are retired
 35% are not working
 22% work full time
 7% work part time
 37% of those surveyed had time conflicts
  between working & caregiving



                                             18
      Because of Caregiving
        Responsibilities:

 34% Stopped working
 22% Retired early


 26% Reduced official working hours
 17% Took a leave of absence to provide care
 38% Get into work late or leave work early

                                           19
   Impact on the Economy for 56% of
Caregivers that Quit Work or Retire Early
 Median Income for Females:            $23,329
 Median Income for Males:              $32,027
 Potential Lost Wages w/Females: $13,134,227
 Potential Lost Wages w/Males:      $8,871,479
 Potential Lost Expenditures in Economy for
  one year is:                      $22,005,706
   (67% of caregivers in survey are female, 33% are
    males)

                                                       20
    Economic Impact with State
    Taxes Lost from Wages Lost
 Potential Lost Expenditures in Economy for
  one year is: $22,005,706
 Multiplier of 2 for further economic impact:
  $44,011,412
 State Taxes Lost: $44,011,412 X .075 =
  $3,300,856
 $3,300,856 divided by $400,000 (state funds
  to match Family Caregiver support Program
  in S.C.) = 8.25 Benefit/Cost
                                             21
              Impact on Employer
   For Those That Quit Work or Retire Early:
    – Retraining Costs:                      $3.59 billion
    – Caregiver absenteeism:                 $7.89 billion
    – Productivity loss:                    $13.22 billion
    – Continuing insurance and cost for workers on leave &
      fees for temp agencies:                $1.32 billion
    – Cost of Employee Assistance Programs: $5.5 million
    – TOTAL: $26.0255 billion dollars for ONE year
    – **National Study of Caregivers of Alzheimer’s
      patients; Sept., 1998, Ross Koppel, Ph.D.

                                                      22
     POSITIVE REWARDS OF CAREGIVING
   88% of caregivers “nearly always or quite frequently”
    feel that they are helping their families.
   79% of caregivers “nearly always or quite frequently”
    feel satisfaction for providing care for someone who
    cared for them.
   75% of caregivers “nearly always or quite frequently”
    feel that the person for whom they are caring
    appreciates the care that they are providing.
   64% of caregivers “nearly always or quite frequently”
    feel a sense of accomplishment for what they do.
   50% of caregivers “nearly always or quite frequently”
    feel that caregiving provides them with companionship.

                                                      23
                 CAREGIVER BURDEN
    Never          Rarely         Sometimes      Nearly Always

   How often does caregiving leave you with not enough time for
    yourself?
     7.5%         8%             26%             56%
   How often does caregiving create stress for you?
     10.4%        7%             34.4%           46%
   How often does providing care create a financial burden for you?

     17%          9.4%           29%            43%
   How often does caregiving leave you with not enough time for
    your family?
     21%          10.4%          25%            40%
   How often does caregiving create problems in your social life?
    26%            9%            24%            39%
                                                                 24
       GREATEST DIFFICULTIES
          IN CAREGIVING

   FINANCIAL BURDEN               30%
   CREATES STRESS                 24%
   NOT ENOUGH TIME FOR SELF       14%
   CONFLICTS WITH SOCIAL LIFE      6%
   NOT ENOUGH TIME FOR FAMILY      4%
   AFFECTS FAMILY RELATIONSHIPS    3%
   INTERFERES WITH WORK            2%
   INTERFERES WITH PRIVACY        1.4%

                                          25
      Benefit/Cost of Caregiver Services
   Based upon the Survey statistics, we can see some
    very likely benefits from the caregiver program.
         Approximately 1,500 persons are receiving
    financial assistance and services this year
        81 % of caregivers are primarily one person,
    and most are daughters or spouses
        Loss of the primary caregiver places the care
    recipient in high “at risk” position of being
    institutionalized
        Maintenance of caregiver support can be very
    cost/beneficial to keep the care recipient from
    being institutionalized
                                                     26
                Benefit/Cost Ratio
   Net cost of one year of Medicaid sponsored
    nursing home care is approximately $32,700
    State cost is $9,900
    If we assume that if caregivers had to give up
    their supportive role, 50% could be Medicaid
    eligible for a nursing home.

   Total state cost is 750 x $9,900 or $7,425,000

   $7,425,000 divided by $400,000 (state match for
    Family Caregiver Support Program) is 18.6 for a
    Benefit/Cost ratio
                                                      27
Comparison with Findings from
Project COPE and Robert Wood
        Johnson Survey




                            28
 South Carolina participated in an AoA
  funded program called Project COPE which
  provided respite services for caregivers
  during 1992 – 2000.
 Overall client satisfaction was 4.6 in a 1 to 5
  scale (4 = quite satisfied; 5 = extremely
  satisfied).


                                                29
 Findings from Robert Wood
 Johnson Foundation National
 Strategic Indicator surveys; A
 Portrait of Informal Caregivers
 in America, 2001


                                   30
   Demographics mirrored S.C. POMP II
    findings.

   38% report financial burden is a burden

   There were many barriers to service or
    equipment:
    – Finances
    – Hassle factor
    – Lack of knowledge how to get services

                                              31
                 Conclusion
   Caregivers are a population at risk. Many
    are depressed. They feel isolated and
    burdened.

   Caregiving is a long-term commitment and
    requires increasing time and personal
    investment.



                                                32