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					                                         “APPROVED AS CORRECTED”
                                     OFFICIAL RECORD OF ACTIONS TAKEN AT THE
                               STATE COUNCIL ON DEVELOPMENTAL DISABILITIES MEETING


                                             November 27, 2001
                                            MARRIOTT HOTEL
                                             Ontario, California

MEMBERS PRESENT                        STAFF PRESENT                                 GUESTS PRESENT

Lynda Terry                              Judy McDonald                               Lora Connolly
Robyn Wall                               Janet Eaton                                 Becky Thompson
Susan Wakerley                           Diane Curtis                                Ace Atkinson
Mark Switzer                                                                         Jane R. Mercer
Christine Imrie                                                                      Wesley Crawford
Ralph Skoner                                                                         Harry Scahill
Daniel Boomer                                                                        Ron Wolff
Barbara Hunsaker                                                                     Becky Thompson
Thomas Ennis                                                                         Wesley Crawford Sr.
Sunny Maden                                                                          Chala Jitpatima
Bill Moore                                                                           Mary Lynn Clark
Dr. Olivia Raynor                                                                    Donna Sparks
Dr. Robert Jacobs                                                                    Marcia Eichelberger
Paul Carleton
Sherri Martin

MEMBERS ABSENT
Melinda Wilson
Robert Schladale
Kathryn Nack



I.     CALL TO ORDER, Election of Chairperson Pro-Tem (if necessary)
       ROLL-CALL
       R. Wall, Council Chair Elect, established a quorum and called the meeting to order on behalf of Council
       Chair, S. Martin, who would be arriving later, due to airport delays.

II.    OPENING REMARKS
       Chair Elect R. Wall distributed a “Get Well” card for Council Member/Staff to sign and send Council
       Member P. Mendoza, who was recovering from an accident. Chair S. Martin, Member M. Switzer and
       facilitator C. Imrie reported on difficulties with new airport security measures that do not include special
       accommodations for individuals with developmental disabilities. Council Member B. Hunsaker introduced
       Marcia Eichelberger, the newly elected Organization of Area Boards (OAB) Chair.
                                                           NOVEMBER 27, 2001 COUNCIL MEETING MINUTES

III.   CHAIR’S REPORT
       S. Martin reported that she attended the National Association of Developmental Disabilities Councils
       (NADDC) November Conference with Chair Elect Robin Wall, Member Peter Mendoza and Member Dan
       Boomer. Chair S. Martin now serves on the NADDC Olmstead Committee and P. Mendoza serves on the
       NADDC Consumer Committee. Chair S. Martin reported that due to the State’s fiscal difficulties, the
       Interagency Agreement for the Council to provide training to the Board of Prison Terms (BPT) would not be
       implemented by the BPT. Chair S. Martin also circulated several variations on the new State Council Logo,
       for Members to review.

IV.    EXECUTIVE DIRECTOR’S REPORT
       Executive Director J. McDonald reported on several media events. Chair Elect R. Wall presented the
       Council’s grant award to Arts & Services for the Disabled, Inc. for an ASD After School Care Program;
       Council Member Sunny Maden presented the Council’s grant award to all the following recipients: Tri-
       Counties Regional Center/University of California Santa Barbara (UCSB) – A Model for Increasing
       Specialty Services to Children with Autism; The Regents of the University of California, University of
       California, Irvine (UCI) – EZ Access House Calls; Ventura County District Attorney Victims with
       Developmental Disabilities Project; and Casa Colina Centers for Rehabilitation – Career Development
       Center CC’s Ice Cream Dreams.

V.     ACTION TO APPROVE THE AGENDA
       IT WAS MOVED AND SECONDED TO (R.WALL/L. TERRY) AND CARRIED TO APPROVE
       THE AGENDA AS PRESENTED.

 VI.   PUBLIC COMMENTS:
       [Members of the public have the opportunity to present information to the Council. Each speaker is
       afforded at least three minutes to address the State Council. Written requests, if any, are considered first.]

       Harry Scahill – stated that he was representing his 32-year-old son, who had fallen through cracks from
       high school to the age of 28 when he found Ontario-Pomona Arc (OPARC). His son now works packaging
       model airplane and car spark plugs, expresses a great deal of pride in receiving a paycheck every other week,
       and is working to obtain his own apartment.

       Ron Wolff – OPARC Executive Director and several parents presented information about local needs,
       including for recreation and social interactions, as well as opportunities for individuals who need to assist to
       communicate. The parents suggested that the Lanterman Act should become part of the State Constitution,
       to protect it from budget cuts. The parents also expressed appreciation for the efforts of Mary Lynn Clark,
       Inland Regional Center Executive Director, for her efforts to develop more opportunities for individuals
       with developmental disabilities.

       Becky Thompson – provided the following People First report:
       The Board hired Daniel, Larry and Spencer for outreach advisor. Daniel is well known in California and
       beyond for his self-advocacy public speaking and activities. He has been active in People First and other
       self- advocacy organizations for many years and is often called upon to help with a variety of self-advocacy
       groups and seminars and leaderships.

       Spenser is the other outreach self-advocate. Spencer has been a self- advocate for people with
       developmental disabilities since he was in grade school. He is now President for Nevada County People
       First and an active member of Supported Life Institute Self Advocacy Project. Spencer is also an award-
       winning fiber artist and instructor at the Neighborhood Center of the Southside Grass Valley Art Center in
       Auburn.
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                                                    NOVEMBER 27, 2001 COUNCIL MEETING MINUTES


Larry’s background includes property and community management writing, editing and teaching. For the
past 8 years he has taught people with disabilities how to use computers at the Neighborhood Center for the
Arts. He has been the advisor for the Nevada County for People First for the past 5 years. He is a
supporting member of SAPT, helping with Pres. and conferences. Starting 11/1/01 Mike Everson, Robin
Rhodes, Daniel, Larry met with SCDD to iron-out details of the Grant and to get final approval. Before that,
the PFCA Board, at the OCT. Board meeting, voted to hire Larry and Daniel Part-time, for the rest of
October. As of Nov. 1, Larry started full-time, Daniel part-time and Spencer on as-needed. On 11/7 Daniel
and Larry attended SACP Advisory Committee meeting and announced the general outline Outreach Project
and were asked to continue working with the SACP to help develop self-advocacy in area 3. On Nov. 12
Daniel and Larry went to a SABE meeting in Reno, introduced themselves and talked about the PFCA
Outreach Project at the meeting. We also met with Tammy Torum, the helper in Area 2 and talked about
how to help outreach line areas in their regions. On Nov. 13, Larry, Daniel and Spencer attended the
Nevada Co. People First meeting introduced the Outreach Project and talked about how to get more
members, including people working at the Grass Valley Pride. Larry spoke to Andy F. and Debbie Marshall
about holding our Leadership Training before the conferences in May and June. The project budgeted for 40
people to attend the training. Daniel and Larry completed the draft of the introduction letter to all the People
First Chapters about the project. Daniel, Spencer and Larry have met several times to work on a three-
month plan to meet with groups 2, 3, and 6, to start off the project. Nov. 17, Larry attended the EC meeting
and brought them up to date on the project so far. Nov. 19, Daniel, Spencer and Larry met with Robin
Keene and Robin Rhodes and Tammy Torum to get further training about PFCA as the self-advocacy
movement. We planned a training with Sharon Caplan, PFCA and PAC meeting in the near future. Nov.
21, Spencer and Larry met with Matt Rhodes and his video crew from the Southside Art Center for a Comm.
TV interview about People First and the Outreach Project. Nov 28, Daniel, Larry will meet with Nicole
Patterson and Dena Hernandez in Area 6 to talk about the Star magazine. Dec. 7, they will go to a self-
determination workshop in Santa Ana in Region 11. We will meet with Sam Dorman, head of the OCRC
Consumer Advocacy Team and Juda Carter, Ed. Training, and start coordinator for OCRC, introduce
ourselves and the Project, to get input from them and set-up a time to conduct a PFCA training for them, for
their Consumer Advisory Team. They have no chapter or no rep. for PFCA in their area.

Wesley Crawford – identified himself as a parent and announced that after attending the Council’s Public
Hearing in Fresno, he had submitted an application to the Governor, to serve on the Council. Mr. Crawford
expressed concerns regarding the following: 1) Section 8 housing, he proposes instituting a life-time section
8 voucher to keep individuals with developmental disabilities from unnecessary moves; 2) Special
Education, he proposes that a teacher who abuses a child with developmental disabilities should be held
responsible under the Child Protection Laws, however, currently those laws only apply to abuse inside the
home; 3) Special Education Credentialing program is insufficient to prepare teachers to provide quality
education to students with special needs; 4) School Districts that are out of compliance …how do you
legislate compliance and assure that districts will come back into compliance. For example, his son’s school
does not have a handicap accessible restroom. The school has not been in compliance in the last 9 year and
there are no funds to make the bathroom handicapped accessible.

Chala Jitpatima – Thanked the Council for the information provided to her after the Public Hearing in Los
Angeles. She is a lot happier -- the communication is much better between the school district, the regional
center and the client rights advocate, and her family is beginning to have good outcomes. But it is still very
difficult for families, who face daily challenges. The California economic crisis will hurt people with
developmental disabilities. Ms. Jitpatima asked the Council to support parents and families, not just with
services, but also with education and training as to how to best raise their children to be more independent
and productive. Parents are just trying to get through the system and are getting lost. Training from parents
to parents would be most helpful.

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                                                        NOVEMBER 27, 2001 COUNCIL MEETING MINUTES


VII. PRESENTATIONS:

  A. Ace Atkinson, Executive Director, Area Board XII – Mr. Atkinson distributed a packet of information
     about the area board, and described the many areas of advocacy provided by the area board. Mr. Atkinson
     reported on unmet needs identified by Area Board XII, as follows: a) The needs of individuals with
     developmental disabilities who are aging or living with aging care-givers. Currently within Area Board XII,
     Intermediate Care Facilities house about 1000 individuals and 500 of those individuals have no known
     relatives in their life space. Their lives are spent with paid staff. Seniors call the area board and want to
     know who will take care of their children. The Individual Family Support Plan (ISFP) should apply to
     anyone with developmental disabilities who is currently totally reliant on only one other human being. b)
     Meeting the needs of all school–aged children in integrated/included school settings. Discrimination in the
     schools applies to children with developmental disabilities. All children should be educated in the public
     system with all other children. All children with developmental disabilities need to play and learn with
     children who are not disabled. c) Need to expand availability of self-determination to all individuals with
     developmental disabilities. Self-determination includes helping individuals to determine their own priorities,
     including where and how they live work and play.

     Council Member P. Carleton stated that Area Board XII was helpful in supporting the Canyon Springs
     transition homes, developed for individuals to transition from Canyon Springs into a small (four-bed) home.
 B. Mary Lynn Clark, Executive Director, Inland Regional Center – Reported on a number of special
    regional center sponsored events such as: Empowerment Day for Families; Legislative Day; Safety Training;
    Grief Counseling; Self-Advocacy; Vendor Training and Special Incident Training; and very popular Dances
    for consumers (the Harvest Ball was attended by over 500 consumers). Inland Regional Center’s new
    initiatives include: a Communications Program works to find ways to communicate with and help
    consumers learn how to communicate with individuals who are not disabled; a Job Development program
    that pays for the job the client gets and keeps and not just for “trying”; establishing “Clubs” throughout the
    area, where consumers can hang-out and enjoy the company of other individuals their same age. Inland
    Regional Center helped create the private non-profit agency that created the small transition homes for
    transition from the Canyon Springs facility. Ms. Clark offered the Council a tour of the transitional homes,
    when the Council meets in Palm Springs. Inland Regional Center’s challenges include the following: a)
    difficulties in meeting the needs of individuals and families who live in rural/remote areas of the regional
    center; and b) difficulty keeping quality regional center staff, due to stiff local competition from other
    agencies offering higher paying jobs and bonuses. Ms. Clark stated that the Regional Center staff work very
    hard and are dedicated. However, it is difficult to stay at the regional center when the pay is so much higher
    at other local agencies and businesses.

  B. Lora Connolly, Assistant Secretary, California Health and Human Services Agency (CHHSA) – Ms.
     Connolly is the staff to the CHHSA’s Long Term Care Council (LTC). She distributed an informational
     packet (attached), and identified the LTC’s participating California departments, as follows: Department of
     Aging; Department of Alcohol and Drug Programs; Department of Developmental Services; Department of
     Housing and Community Development; Department of Mental Health; Department of Rehabilitation;
     Department of Social Services; Department of Transportation; Department of Veterans Affairs; Health and
     Human Services Data Center; and Office of Statewide Health Planning and Development.

     The LTC’s goals are: to strengthen state-level administration of public LTC programs; coordinate LTC
     policy development and program operations; improve the access and quality of consumer information on
     LTC services; better monitor the consumer responsiveness of current LTC services; streamline the


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                                                        NOVEMBER 27, 2001 COUNCIL MEETING MINUTES

       regulatory process; enhance the overall availability and quality of LTC services; and develop a LTC policy
       strategic plan. The Governor has also assigned California’s response to the Olmstead decision to the LTC.

       To ensure that organizations and groups representing California’s broad cross-section of consumers and
       advocates are provided the opportunity to be active participants, the LTC works through sub-committees
       and workgroups whose members are representatives of all the following: consumer and advocacy
       stakeholder groups; private and public agencies; and organizations interested in long term care services
       The LTC invited stakeholder groups, including the State Council on Developmental Disabilities (SCDD), to
       participate in a broadly representative workgroup to developed and submitted Real Choice Grants to the
       federal government. SCDD was an active workgroup participant. The grant proposals were to help
       individuals who made the choice, to transition from a nursing home into the community; and to enhance
       training for consumers. Neither of California proposals received funding in this first round of Real Choice
       Grants. While that was a disappointment, the workgroups are continuing to develop recommendations. In
       response to a question from Council staff regarding the LTC’s efforts to include stakeholder groups, Ms.
       Connolly reported that at least 59 separate California organizations, representing individuals with
       disabilities as well as advocacy organizations, were invited to participate in the LTC workgroup that
       developed the Real Choice Grants. She also stated that the LTC would continue to think outside the box
       regarding long-term care. Council Member L. Terry commented that due to the size of California, it is
       difficult to receive grant funding. She also stated that the LTC continues to work on big issues and
       complemented Ms. Connolly for all her efforts. Council Member S. Maden thanked Ms. Connolly for all
       the efforts the LTC made to include stakeholders on the workgroups.

12:30 P.M.
VIII. CONSENT CALENDAR:
    [NOTE: Any member can request removal of any Consent Calendar Item.]


         A. Council and Executive Committee Items:
            1. Minutes of the September 18, 2001, Council Meeting
            2. Conflict-of-Interest Waiver requests for Board Members from Redwood Coast,
            3. Harbor and Far Northern Regional Centers
            IT WAS MOVED/SECONDED (R. SKONER/R. WALL) AND CARRIED TO APPROVE
            THE CONSENT CALENDAR, INCLUDING APPROVING THE MINUTES WITH
            CORRECTION OF CLERICAL ERRORS.

IX.   ACTION ITEMS: (by Committee)
      A. Items Removed from the Consent Calendar (if any)
         No items were removed.

      B. Executive Committee
        1. CLOSED SESSION: (Standing Item)
           [In compliance with Government Code 11126 (a) and (q) to discuss appointment, employment
           evaluation or lay-off of public employees and pending litigation.]
           The Council will reconvene in Open Session, after the CLOSED SESSION, to take any action(s)
           necessary as a result of the CLOSED SESSION discussion.

             Closed Session began at 12:30 p.m. The Council reconvened Open Session at 1:15 p.m. No
             action resulted from the Closed Session.


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                                                  NOVEMBER 27, 2001 COUNCIL MEETING MINUTES

  2. Dr. Anderson Award Process Recommendations
     The Council annually determines the Dr. Albert L. Anderson Health Care Professional Award.
     Council Member Dr. Robert Jacobs presented a suggested modification in the award process to the
     Executive Committee.
     IT WAS MOVED/SECONDED (B. HUNSAKER/T. ENNIS) AND CARRIED TO APPROVE
     TAKING INTO CONSIDERATION BOTH NEW AND PAST NOMINEES WHEN
     CHOOSING THE DR.ALBERT L. ANDERSON HEALTH CARE PROFESSIONAL AWARD.
     PAST NOMINEES CAN BE CONSIDERED AGAIN, ONLY IF THE NOMINEE IS STILL A
     HEALTH CARE PROFESSIONAL IN CALIFORNIA AND IF THE INDIVIDUAL(S) WHO
     SUBMITTED THE ORIGINAL NOMINATION WISHES TO HAVE THEIR NOMINEE
     RECONSIDERED.

C. Council Items
   1. 2002-06 State Plan (Standing Item)
      On August 9, 2001, the 2002-06 State Plan was submitted to the federal Administration on
      Developmental Disabilities (ADD) for approval. California’s Secretary of Health and Human
      Services also submitted the required letter of assurances to ADD.
      IT WAS MOVED/SECONDED (R. JACOBS/R. SKONER) AND CARRIED TO
      AUTHORIZED COUNCIL CHAIR AND CHAIR ELECT TO FINALIZE AND SUBMIT A
      FINANCE LETTER REGARDING THE COUNCIL’S PREVIOUSLY APPROVED
      GOVERNOR’S ACTION REQUEST AND THE CALIFORNIA HEALTH AND HUMAN
      SERVICES AGENCY LETTER OF NOVEMBER 21, 2001 TO THE COMMISSIONER OF
      THE ADMINISTRATION ON DEVELOPMENTAL DISABILITIES.
      Abstentions: Member P. Carleton and Member L. Terry

   2. DDS – Report on Status of Regional Centers on Probation
      The Department reported on three regional centers (East Bay, Alta, and South Central Los Angeles)
      that are currently on probation. They are all working cooperatively with DDS to resolve the issues.
       No action was taken.

   3. DDS – Restructuring Developmental Centers / Waivers (Standing Items)
      The Department report that the report regarding restructuring the Developmental Centers has not yet
      been released by the administration, and updated the status of the Home and Community Based
      Services and Continuous Nursing waivers. The State has submitted an application for the new Five-
      Year Home and Community Based Services Waiver.
      No action was taken.

  4.   2001-02 Business Plan Update (Standing Item)
       The State Council reviewed progress in implementing the 2001-02 Business Plan.
       No action was taken.

  5. Quality Development Committee (Standing Item)                                (S. Maden)
     Quality Development Committee – Council Chair S. Martin announced that as of January 1, 2002, she
     was appointing Barbara Hunsaker to continue serving on the Quality Development Committee, even
     though Barbara will no longer be the OAB Chair and therefore no longer be a Council Member. QDC
     Chair S. Maden announced that the December QDC meeting would be changed to December 19.




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                                                          NOVEMBER 27, 2001 COUNCIL MEETING MINUTES

       6. Federal 2001 Program Performance Report (PPR)
           Each year the Council is required to report Plan-related outcomes achieved with federal funds by
          submitting a PPR to the federal government by December 31. Due to the Council's meeting schedule,
          the full Council has historically reviewed the first draft of the document, and given the Executive
          Committee authority for all required action on the final report, at the December meeting.
           IT WAS MOVED/SECONDED (B. HUNSAKER/S. WAKERLEY) AND CARRIED TO
           AUTHORIZED THE EXECUTIVE COMMITTEE TO TAKE FINAL ACTION
           REGARDING APPROVAL OF THE 2001 PROGRAM PERFORMANCE REPORT. THE
           CHAIR AND CHAIR-ELECT WERE AUTHORIZED TO TAKE ACTION IF THE
           EXECUTIVE COMMITTEE COULD NOT MEET IN DECEMBER.
        7. Planning and Program Development (PPD) Committee (Standing Item)
           The PPD Committee met on October 30, 2001, to recommend the focus of the Council’s Cycle XXV
           Community Program Development Grants. The Committee’s recommendations were based in part on
           learning of a Federal Office of the Inspector General (OIG) Program Audit that will occur during the
           coming year. The text of the OIG’s workplan states:
   Elderly Caregivers With Developmentally Disabled Children -- We will assess how State developmental
   disability councils and other State agencies address the needs of elderly caregivers who take care of their adult
   developmentally disabled children. The shift in caring for developmentally disabled children at home rather
   than in institutions has now matured to the point that the parents are becoming elderly. For FY 2001, the
   Congress appropriated $125 million for the National Family Caregiver Support Program. This program was a
   component of the reauthorized Older Americans Act, which became law in November 2000. The act mandates
   that States give priority to services for older individuals with the greatest social and economic need and older
   individuals who provide care and support to persons with mental retardation and related developmental
   disabilities.
             IT WAS MOVED/SECONDED (R. SKONER/S. MADEN) AND CARRIED THAT THE
             PPD COMMITTEE’S RECOMMENDATIONS (see attachment) FOR CYCLE XXV
             COMMUNITY PROGRAM DEVELOPMENT GRANTS BE ADOPTED.
        8. Reauthorization of Temporary Assistance for Needy Families (TANF)
           In 2002, the Temporary Assistance for Needy Families (TANF) program goes before Congress for
           reauthorization. The U.S. Department of Health and Human Services is inviting public comments on
           what changes should be proposed for this program. ADD has stated that councils are in a unique
           position to comment on how TANF affects people with developmental disabilities and how it could
           be changed to serve them better. ADD requested that interested councils submit comments by
           November 30, 2001. The Council may choose to submit comments.
           No action was taken.
        9. Council Members/Agency Reports -- No reports were given
        10. Proclamations and Resolutions (Standing Item)                                   (S. Martin)
            No action was taken.
X. INFORMATION/DISCUSSION ITEMS:
   No items were discussed.
XI. ADJOURNMENT:
   IT WAS MOVED/SECONDED(R. JACOBS/ S.WAKERLEY) AND CARRIED TO ADJOURN
   THE MEETING AT 3:35PM. The next meeting will be January 15, 2002, in San Francisco, California.

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