A Report on Focus Groups about

Document Sample
scope of work template
							 A Report on Public Perceptions of


  Special Education in
         West Virginia

              Prepared by


               AEL, Inc.




                   for


The West Virginia Department of Education
       Office of Special Education




               June 2002
                                                 CONTENTS


Part I       Introduction and Key Themes . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .1


Part II      Detailed Themes . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 7


Part III     System Improvement Recommendations from
             Focus Group Interviewees . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 41


Part IV      Public Hearings . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 52


Part V       System Improvement Recommendations from
             Participants in the Public Hearings . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 59


Part VI      System Improvement Recommendations—A Combined List
             from Focus Groups and Public Hearings . . . . . . . . . . . . . . . . . . . . . . . . . . . .63


Appendixes

             A:   Focus Group Schedule
             B:   Invitation Letter
             C:   Focus Group Registration Form
             D:   Focus Group Registration Confirmation Letter
             E:   Statistics—Focus Group Invitations
             F:   Statistics—Breakdown of Focus Group Schedule
             G:   Statistics—Breakdown of Focus Group Attendance
             H:   Public Hearing Questions
             I:   Coding System for Focus Group Transcripts
             J:   Public Hearing Announcement
             K:   Public Hearing Sign-In Sheet




                                                            ii
              PART I: INTRODUCTION AND KEY THEMES

                                      Introduction


       As part of its planning process, the Office of Special Education of the West

Virginia Department of Education collects data on the impact and effectiveness of special

education programs. Late in 2001, the Department wanted to compare public perceptions

of strengths and public concerns about special education to data they had gathered on

system performance. The Department also sought public input on suggestions for

improving the system. The Department selected focus group interviews as the

methodology for obtaining input and decided to hold a series of focus groups facilitated

by a neutral third-party organization. Department staff developed a series of questions

and prompts designed to extract information that would guide discussions to be useful

extensions of prior work.

       In January of 2002, the Office of Special Education contracted with AEL to

conduct 38 focus groups to document people‘s experiences with special education

services and to solicit ideas for improvements. Focus groups were scheduled in each of

the eight Regional Educational Service Areas (RESA). Within each region RESA staff

provide support and technical assistance to groups of school districts. Together the

RESAs cover all 55 counties/school districts in West Virginia. Working through the

RESAs provided access to representative participants in programs across the entire state.

       Four focus groups were scheduled in each RESA and participants were invited to

join groups of stakeholders with similar roles in the educational process. Separate focus

groups for parents, students, regular education teachers, and special education teachers




                                             1
were held in each RESA. In addition, focus groups were scheduled in Charleston for

superintendents, county special education directors, principals, and Parent Educator

Resource Center (PERC) staff.

       County special education directors nominated potential participants from their

service areas and sent lists to the State Department of Education, which issued invitations

to participate to all individuals nominated by the directors. The target size for each focus

group was 8 to10 participants, so the first 10 people from each role group who responded

were scheduled as participants. The state then issued letters confirming participation to

each person accepting the invitation.

       To enhance an individual‘s ability to attend the focus group meetings, the state

provided funds for substitutes to release teachers, for child care for parents, and for travel

expenses of participants. Confirmation letters described the financial support and

indicated that RESA special education coordinators would assist those applying for

reimbursement.


Focus Group Process

       Focus group leaders received a series of questions and prompts from the Office of

Special Education to guide focus group discussions. Participants were told in advance

the categories of discussion but not the specific questions. The same five questions were

asked of all groups. However, the prompts were designed to fit the different windows of

understanding and experiences expected in the stakeholder groups.




                                              2
       A total of 198 people participated in 31 focus groups, with at least 3 focus groups

held in each RESA region. They included

              special education teachers (63 participants in 8 groups)

              regular education teachers (61 participants in 8 groups)

              parents (49 participants in 8 groups)

              students (14 participants in 3 groups)

              parent Education Resource Center (PERC) staff (8 participants in 1 group)

              special education directors (2 individual interviews)

              principals (1 individual interview)

              superintendents (none attended scheduled group)

       More detailed descriptions of meeting schedules and group composition are

provided in Appendixes F and G of this report.

       Beginning February 11, 2002, focus groups were conducted by AEL, Inc. using

staff and contractors experienced in focus group facilitation. A court reporter was present

at each meeting and provided a full transcript of the discussion.


Analysis

       A system of coding was developed and applied to the transcripts. The coding

identified and created a basis for aggregating comments in relation to the major questions

used in the focus groups. The comments of each focus group‘s participants were first

merged with those of like stakeholder groups from other RESAs and then with responses

from all groups. References to the stakeholder group, the RESA, and the transcript page

where the comment originated were maintained throughout the process, enabling tracking

and analysis of individual comments in the context of the full discussion.



                                             3
       When the coding was complete, individuals who coded the transcripts and some

of the group facilitators met to share and compare themes and issues identified in the

transcripts. They discussed themes that were consistent among groups, looked for

potential differences based on geography and/or stakeholder role, and provided additional

insight to the coded comments as the analysis process began.

       The comments of the coders and facilitators were used to sort the coded

discussions in the 2,385 pages of transcripts. The analysis of discussion and comments

from the focus group participants identified major themes. These major themes were

categorized into 28 detailed themes that are described in detail in Part II of this report.

       The analysis includes distinctions—where they exist—among the perspectives of

parents, regular educators, and special educators. Because participant confidentiality was

assured, the comments included in this report refer only to participant role and group and

do not include names or counties.

       Comments of participants from a variety of groups and roles are included together

where applicable. Small numbers of participants made comparisons of experiences

within groups based on geographic differences impossible. Likewise, comparing

responses of parents, regular education teachers, and special education teachers with

those of students, principals, special education directors, and PERC staff was not useful

because of the small numbers of participants. Also, because there were so few

participants who had experience with gifted programs, the report focuses on students with

disabilities. Finally, while the analysis revealed differences in service levels and

satisfaction within RESA regions, it did not clearly identify differences among RESA

regions.




                                              4
                                      Key Themes


       This report is organized around four main questions provided by the Office of

Special Education:

       1. To what extent are students receiving the special education and related

           services they need?

       2. To what extent are students with disabilities included in regular classrooms?

       3. How are parents involved in the education of students with disabilities?

       4. How well are students with disabilities being transitioned into, through, and

           out of public schools?

       The report provides details of themes that surfaced in each of these areas. Across

all areas, several key, overarching themes emerged:

          The experiences of special education students vary considerably across

           counties, schools, and classrooms. The quality of their experience appears to

           depend largely on the leadership of local administrators, the attitudes and

           training of regular educators, the time and resources available for special

           education services, and the involvement of informed parents.

          Great strides have been made in the inclusion of students with disabilities in

           regular education, though special education is still widely viewed as ―special‖

           and separate. Special educators feel that once children are identified, they are

           often seen as ―their‖ students and treated differently from the rest of the

           student body.

          Collaboration with non-school entities is essential to support the development

           of students with disabilities. This is especially true for identifying and



                                              5
transitioning young children into public schools and for transition planning to

prepare teenagers for their adult lives.




                                  6
                         PART II: DETAILED THEMES

       The following themes surfaced in the focus groups and present a composite of

responses from all role groups. Themes were derived from major issues addressed in

focus group discussion. Each theme is supported by representative quotations from

group participants. While a hard and fast rule was not applied, themes included in this

report distinguished themselves through frequency and intensity of response. In general,

a topic would have been identified more than a dozen times in the transcripts to warrant

inclusion as a theme. While the frequency and intensity of responses indicated the

importance of topics, it should be recognized that not all individuals had the same

viewpoint regarding each theme. The differences of opinion are captured in the narrative

following each theme and the quotes are identified by the stakeholder group of the

respondent (parent, student, regular education teacher, special education teacher, or

PERC staff). Names and locations are not used, because the invitation to the focus group

(see Appendix B) promised participants that their individual responses to questions

would be confidential.

       Question: To what extent are students receiving the special education and

related services they need?

       Theme 1: The availability and quality of services vary considerably across
counties, schools, and families.

       Overall, interviewees characterized special education and related services as

uneven, ranging from excellent to inadequate or inappropriate. Some, such as this parent,

praised their schools: ―Since she got to school, she‘s learned so much. She‘s come a long

way. I‘m thankful that she had good teachers and good schools and people who cared.‖



                                             7
        Both parents and professionals agreed that disparities exist among schools and

counties. ―Kids that have needs where the county provides that service, they get it,‖ a

regular educator said. ―But if the county doesn‘t provide a service, oftentimes they‘re

shoved into a different program or lost in the cracks.‖

        Interviewees identified several factors that influence the availability and quality of

services, one of which is the population size of the county. ―As far as these tiny little

counties like mine are concerned, it‘s really difficult to get physical therapy or

occupational therapy,‖ a special educator said. ―There‘s just not the personnel. They

don‘t want to come to our counties.‖

        Another factor interviewees noted was the leadership of school administrators. ―If

you happen to have a good administrator at your school, I think the kids are going to get

quality services,‖ a parent said. ―If you don‘t have a good administrator, who does not

want these kids in school, they‘re going to find a way to get rid of the kids. If they‘re in

high school, they push them out of school so they quit. In elementary schools, they make

it so miserable parents transfer or do something else with the kids.‖

        A special educator said that lack of oversight and accountability undermines

quality: ―I teach [students with] severe and profound mental impairment, and it‘s been

my experience in the last 10 years that no administrator has ever come in to check the

curriculum I am teaching. They don‘t know what it is I‘m supposed to be teaching and

wouldn‘t be able to recognize if I were teaching the right thing.‖

        Many parents and professionals agreed that students whose parents are informed

and exercise their rights are more likely to get the services they need than those who

don‘t. ―I think you really have to be willing to fight for a lot of things,‖ a parent said.




                                               8
―My parents are raising my nephew, and they actually had a lot to say. I think it‘s the

parents who speak up that actually get some things. That‘s really not right either. Why

aren‘t these children whose parents don‘t speak up being serviced in the same way?‖

       Some said that family income is a factor. ―We have four different areas that feed

into our school,‖ a special educator said. ―We can tell where the kid comes from. We

have a lot of – I guess what we would call country kids . . . that they have a bad home life

or that they‘re poverty-stricken or that they‘re carrying a lot of baggage with them.‖ This

educator indicated that these students were more likely to suffer from the effects of

isolation, lower expectations, and fewer services.

       Theme 2: The process for determining eligibility delays needed services for some
students.

       When a student experiences difficulties in school that may be related to a

disability, West Virginia requires the formation of a student assistance team (SAT). A

school administrator, counselor, special education representative, teacher(s), school

nurse, school psychologist, and social worker (or attendance director) review the

student‘s performance and suggest interventions—particularly instructional—that might

assist learning and avoid a special education placement. If interventions are suggested,

tried, and found to be ineffective, the student may be referred for testing as the next step

toward placement in special education. Focus groups gave the SAT process mixed

reviews.

       While some interviewees found the referral and eligibility determination process

in their schools and counties to be efficient, many others said the process can take months

and sometimes years, delaying the delivery of services that students need. Parents and




                                              9
regular educators expressed concerns about timeliness more often than special educators

did.

       A cause of delays in some counties is a shortage of psychologists and other

evaluators. ―The psychologists are always understaffed,‖ a regular educator said. ―I feel

sometimes we‘re a little behind in identifying children who have been referred for special

education. Sometimes the process takes a year. And so if that‘s a special ed child, they‘re

not getting the service they need because it‘s taking too long to get them identified.‖

       ―Sometimes it takes several months,‖ a parent agreed. ―And sometimes it takes a

year or two because the caseloads are so high.‖

       While some interviewees shared positive experiences with the SAT process,

others said it caused unnecessary delays in some cases. ―SAT may have suggestions or

not,‖ a regular educator said regarding children she has referred. ―Then you wait two

weeks. Then you have another meeting. Then you go into the possibility of testing the

child. It kind of aggravates me because, as a teacher of 27 years with training in Learning

Disabilities (LD), I feel I‘m going into this having done everything I can possibly do for

this child already. Now he‘s going to sit in my class for two more weeks and feel more

frustrated with himself.‖

       The same teacher described a student for whom it took three months to get

testing: ―Now he‘s on medication. He has gone from making 20s to 90s. I get real teary

about this kid because we‘ve gone from base one to a very successful child. But it could

have happened last year.‖

       Parent participation can speed up or slow down the process, interviewees said.

―Sometimes the problem is that the parent just doesn‘t take the time to get us the




                                             10
information we need or we have to chase them down to get a signature on a paper,‖ a

regular educator said.

        Some parents feel cautious about having their children identified and labeled.

Others may not understand the reports. ―A lot of folks can‘t read the report,‖ a principal

said. ―And they are too embarrassed to come to us and say they can‘t read the report.‖

      Theme 3: Eligibility guidelines allow some students in need of services to fall
between the cracks.

        Many interviewees expressed concern about students they described as the ―gray

area‖ children—those who need extra help but do not qualify for special education or the

accommodations required by Section 504 of the Rehabilitation Act of 1973. These

include ―average‖ students who have occasional learning problems, children with mild

learning disabilities, and children with difficult-to-diagnose learning problems. This

concern was raised most often by regular educators.

        ―I find that it‘s those middle children who just don‘t make the numbers and

maybe don‘t qualify for 504,‖ a regular educator said. ―I think right now it‘s almost

impossible for the kids in our school system to even make it into special education. It‘s

very frustrating for a classroom teacher to know that this child . . . just needs a little extra

help, and it‘s not there.‖

        ―PL94-142 (the original federal legislation that required special education for

students with disabilities—1975) stated at the very beginning, ‗all children have the right

to an equal education,‘‖ a regular educator said. ―Special ed is not fulfilling that for those

children that fall just a little above.‖

        ―It‘s hard for educators to identify these children or be able to adapt to them,‖ a

parent said. ―I know they don‘t have an IEP [Individualized Education Plan], but I think


                                               11
they need to be identified somehow and an adaptation made. I think special ed should

branch out just ever so slightly more to where they adjust for those children also.‖

        Theme 4: Developing Individualized Education Plans (IEPs) that effectively meet
student needs requires adequate time and the participation of all parties. Full
participation by all stakeholders in the Individualized Education Plan process is
important.

        Nearly everyone felt that the IEP is essential to providing students the special

education and related services they need. They felt that an effective IEP needs to be a

team effort that involves all parties.

        Most of the parents and students who attended the focus groups participate in the

development and monitoring of IEPs on a regular basis. Some reported positive

experiences using the IEP process to get the services students need. ―I felt with our son‘s

IEP we had a little bit more control—that we could call an IEP meeting whenever we felt

a need,‖ one parent said. Another said, ―When I say we have an IEP meeting, we do. We

have a team.‖

        But many parents said that, at least in the beginning, they found the IEP process

confusing, intimidating, and sometimes overwhelming. ―I know in the early years, there‘s

nothing positive to be said about your child, and it absolutely rips you deeply,‖ a parent

said. ―At the first IEP meeting, my son had just been labeled with autism. There must

have been 15 people there—intimidation, you know—plus me, who doesn‘t know

anything, or they think you don‘t.‖

        Most of the regular education teachers who attended the focus groups also

participate in IEPs, although the quality and extent of their participation varies. ―I‘m

invited to the IEPs as a regular education teacher,‖ said one teacher who is satisfied with

the process. ―For all the students I have this year, I will go in and consult on and help


                                             12
write their IEPs for next year. I think it really helps having the regular education teacher

in there.‖

        But many regular educators said they didn‘t have enough time for meaningful

participation in IEPs. ―We weren‘t all there at the same time,‖ said a regular educator.

―We just were pulled in and out on our planning period.‖

        Some special educators also felt pressed for time to monitor and develop IEPs,

which impacted how well they were able to design and monitor the services the students

needed. ―I don‘t want to do it in the hall while I‘m watching through the window and

maintaining my classroom,‖ a special educator said. ―I‘m out here in the hall with the

student because I don‘t have enough time to do it. That is not a committee meeting.‖

        Both parents and professionals felt that more time and training for IEPs would

help. ―You could write an IEP in a federally correct manner in an hour,‖ a special

educator said. ―You can check every box you‘re supposed to and put modifications down,

and it‘s correct federally. But is it going to give that child exactly what that child needs?

That takes a lot of thinking.‖

        Theme 5: Many Individual Educational Plans are not fully implemented due to
lack of time, services, and sharing of information.

        Interviewees reported that what‘s written in IEPs is not necessarily what students

actually get. ―It‘s a matter of time and support and the services we can deliver for

everybody,‖ a special educator said. ―The IEP is a good document when I get time to do

IEPs. Do I actually meet everything on those? I would say no.‖

        The effectiveness of an IEP depends in large part on how actively it‘s used and

revised when needed. ―I think we do a great job with IEPs and we get them started and




                                              13
we send them out and then that‘s it until the next IEP. And sometimes that‘s not working,

and I think we need to be actively intervening all the time.‖

       ―I think the IEP kind of gets stuck in the homeroom,‖ a parent said. ―The

information is not shared enough. I think that is where it breaks down.‖

       Time is another big hurdle in implementing IEPs. ―I feel that the students are

receiving services to the best of our ability to give them,‖ said a special educator. ―I

worry about the time, because we don‘t have time to really do what we need to do.‖

       Time is a concern to regular educators as well. A Parent Educator Resource

Center staff person said, ―A common complaint we get is, the teacher will say, ‗I have 25

kids and seven of them have IEPs. I don‘t have time to implement these IEPs.‘‖

       Theme 6: Counties’ shortages of related services professionals affect availability
and provision of services.

       People said that many students do not receive the amount of occupational therapy

(OT), physical therapy (PT), speech therapy, and counseling called for in their IEPs. ―I

feel like we‘re getting related services, but there‘s a ‗but,‘‖ a parent said. ―The school

system contracts for OT, and so you have OT services based on their availability at the

school. Say your child needs OT twice a week; that‘s not what you get. Our OT is at our

high school one day per week, so you can only get that OT one time per week. It‘s the

same way with PT. The PT only comes one time per week. My son‘s doctor

recommended two to three times per week. In order for him to get the physical therapy he

needs, we have to take him to the facility to get his PT. I know many other parents are

doing the same thing.‖




                                              14
       Some interviewees blamed the shortage of school therapists on low salaries.

―There‘s just no way to compete with the fees they are receiving in outpatient rehab or

hospital rehab,‖ a special education director said.

       Some saw the problem as more than financial, because even when counties have

the money for these services, some are unable to find qualified people to provide them. A

regular educator from a rural county said, ―There is nobody, really, who wants to work in

our county. Nobody wants the job, and if they get the job, they can‘t keep it because they

can‘t do the work.‖

       Theme 7: Assistive technology has great potential but is often underutilized.

       Interviewees generated a long list of devices and adaptations being used in West

Virginia schools. These include communication boards, special keyboards, touch screens,

talking calculators, calculators with large numbers, textbooks on tape, voice recorders,

braillers, squeeze machines, power wheelchairs, and large-size tools and chemistry

equipment.

       Many interviewees felt that more could be done with assistive technology. People

spoke positively about counties that have assistive technology teams to provide

information and consultation around a student‘s particular needs. ―I have two physically

handicapped students in computer electronics,‖ one special educator said. ―They do not

have very good fine-motor skills, but with the assistive technology team and our

physically handicapped teacher going in with them, they were able to get all the things

they need to be successful in that field. We‘ve had great success. I have seen the dragon-

speaking device and I‘ve seen the magnetic tools and the big tools. I‘ve seen a lot of it,

and it‘s been very successful for our students.‖



                                             15
       In other counties, however, interviewees expressed frustration about the lack of

technology support for individual teachers and therapists. ―We don‘t have a tech team in

our county,‖ another special educator said. ―So we‘re kind of on our own trying to

investigate which approach to take.‖

       Training is key to the successful use of assistive technology. ―All of this student‘s

equipment was delivered the summer before,‖ a special educator said. ―So the teacher

had time to get used to it and figure out how it works, the regular ed teacher had time to

look at it and see how it works, and then they trained the student.‖

       A Parent Educator Resource Center staff member raised a concern about students

not being allowed to take equipment and devices home with them. ―The committee

decides, yes, the child needs a communication device but they can only use it at school;

they cannot take it home. And inevitably, we get calls from a parent who says, ‗How can

I reinforce it at home and how can my child communicate at home the same way he does

at school if he can‘t take it home?‘‖

       ―I had to put my son‘s communication device on my homeowner‘s insurance,‖ a

parent said. ―But some can‘t afford homeowner‘s, you know.‖




                                            16
       Question: To what extent do students with disabilities participate with non-

disabled students?

        Theme 8: Inclusion is often viewed as beneficial to students with and without
disabilities.

       Both parents and educators had many positive things to say about the benefits of

inclusion. ―I found that, if the kids are integrated more, it does more for their self-

esteem,‖ a parent said. ―They learn better because they want to do better. They want to

keep up with their peers.‖

       An elementary school teacher felt that multi-age classrooms are ideally suited for

inclusion: ―Because every child is developmentally placed in the classroom, no child sees

any other child as dumb or real, real smart. They just know that each child has a different

gift, and if you need to use someone else‘s mind for something, you‘re allowed to

because we work together as a team. One of my rules is none of us is as smart as all of

us.‖

       The same teacher described another way inclusion benefits students without

disabilities: ―I had a parent write a letter thanking me for allowing children with physical

and mental disabilities to be included in the room, and it was from the parent of a child

who is now labeled gifted. She said it added so much to their life at home because when

they go out and they see a person in a wheelchair, their child does not react in any way,

but will go up and talk to the person.‖

       Several regular educators said that modifications they developed for special

education students benefited all their students, and one provided this example: ―One year

I had a child who needed special assistance in language and spelling. It was written in his

IEP to give him next week‘s spelling words the weekend before so his parents could


                                              17
practice with him. So I made 25 copies instead of one, and every child could go home on

Friday afternoon with those words. Well, that benefited everyone.‖

          Some interviewees expressed reservations about inclusion, however, because they

felt that students often aren‘t getting what they need academically in the regular

classroom. A parent said, ―I would like to see my son in learning disability for every

class, but they say you can‘t do that.‖ A special educator said, ―We have no self-

contained program, so my kids are involved in everything at school, but they sit in the

(regular) classroom a lot with nothing to do. If they‘re not with me, they‘re just sitting

there.‖

       Theme 9: Modifications are widely used to support students with disabilities in
regular classrooms.

          Regular and special educators described numerous modifications they employ to

support students with disabilities in regular classes. These include pre-teaching, re-

teaching, reading tests aloud, adapting the length of assignments, adapting grading scales,

and providing extended time for tests and assignments.

          Many teachers talked about using modifications that do not single out students in

special ed. ―I am now using a sound system in my classroom for a child who has

difficulty focusing on the teacher‘s voice because he has difficulty filtering out other

sounds,‖ said a regular educator. ―There are small, non-intrusive speakers in each corner

of the classroom, and I wear a mic when I teach, and then my voice is amplified. That

benefits everyone in the classroom, not just this student, and I don‘t think anyone in the

class really knows which student it‘s there because of.‖

          Using modifications is a new experience for many teachers. ―It used to be that all

special ed was self-contained,‖ said a special educator. ―The regular teachers did not have


                                              18
any dealings at all with special ed students. So they‘re an older generation of teachers,

and they have an older mind-set. But you‘re also dealing with special ed teachers who

have not worked with modifications either because they have been pretty much self-

contained.‖

       Several special educators described ―winning over‖ regular educators on

modifications. ―Modifications are not always popular; I think there‘s a need for a whole

lot of P.R.‖ one special educator said. Another described a student who needed

substantial modifications: ―That teacher was petrified. But now he loves that boy to

death. He‘s one of his best students.‖

       Theme 10: Special education students are not always viewed or treated as full
and equal members of their schools.

       Special educators frequently reported that even when their students are included

in regular education, they are still viewed as the special educator‘s students. ―We

shouldn‘t have to beg to place our students [in regular classes],‖ a special educator said.

―If we think that they are able and the committee decides that they are able to do regular

education, why should we have to go in and ask a teacher to allow them in their

classroom? Then in the lunchroom, they tell you what your student did in their class

today—it‘s ‗your student.‘‖

       ―The regular ed teacher does not see those children as their responsibility, and

they are,‖ another special educator said. ―I think that‘s where the problem lies.

Sometimes I think the regular ed teachers think they‘re only supposed to teach those kids

that are average and above.‖

       Many parents felt that inclusion in regular education was treated more as a

privilege than as a right. One parent described a situation at her child‘s school: ―The other


                                             19
teachers did not want this teacher‘s students in the lunchroom with them. Well, the

teacher‘s feelings were hurt so bad. She was about ready to just say, ‗We‘ll eat in the

classroom.‘ I said, ‗No, we‘re not.‘ The principal agreed with the other teachers. But we

went to the Board over it and had it settled. And the children are in the lunchroom.‖

          Special educators said they have to pick and choose which regular educators to

place their students with if they want the experience to be successful. Sometimes they

have to pull a child out of a regular class who could have succeeded with a different

teacher. A former special educator who now teaches regular education explained, ―One of

the struggles I had as a special education person was . . . you had teachers who you knew

your kids would be okay with . . . but you can‘t put them all in the good teacher‘s class.

So you end up pulling kids who you probably wouldn‘t have pulled. You can‘t put them

all in eighth-grade English because you can‘t have 15 LD students in one teacher‘s

class.‖

        Theme 11: Many students with disabilities are included physically but do not
participate or feel socially included in regular education settings.

          Many interviewees said they were concerned about students with disabilities who

are physically present in regular education but do not fully participate or feel socially

included. ―Some of the kids get made fun of, and they‘re treated differently,‖ a gifted

student said about students with disabilities. A high school student with physical

disabilities described being snubbed by some of her non-disabled peers: ―It feels kind of

upsetting. And I thought, fine, be like that if you want to. They‘re ignoring me. In middle

school, they were hanging out and talking to me. Since they‘re dating, it‘s kind of hard

being friends with them. It‘s weird for me in high school.‖




                                             20
        Many people felt that inclusion is easier and more successful in elementary school

than it is in higher grades. ―I really pushed to get my autistic child in a mainstream class

with a full-time aide,‖ a parent said, ―because I know if those kids start with him in

kindergarten it‘s going to help the process. My fifth-grade daughter is in a class with an

autistic child now, and so they just accept him. He just sits there, and they jabber all

through class. But, you know, he can do the work. And they just accept him . . . I think it

depends how much they are in a regular classroom.‖

        Some efforts to integrate students with disabilities have enhanced their social

standing. ―We had the autism class last year at our school, and it was wonderful,‖ a

regular educator said. ―They taught the autistic kids to deliver [hand carry] our daily

announcements [to classrooms across the building]. The regular ed kids looked forward

to it every day because they were hilarious . . . it created an environment of acceptance

because they [regular education students] were able to see some strengths [in the autistic

students].‖

       Theme 12: Placement in regular education classrooms varies according to the
student’s disability type. Students with learning disabilities are more likely to be
included in regular classrooms, and students with severe intellectual impairments and
those with behavioral disorders are least likely to be included.

        Interviewees consistently described students with mild disabilities as the most

likely to be included in regular education. ―To me, I don‘t even think of inclusion as

being LD students,‖ a regular educator said. ―They‘re just kids.‖ A math teacher pointed

out that being in special ed doesn‘t mean being in special ed for everything: ―For many of

the special ed kids I get in class, their disabilities are not math disabilities. The way I look

at them, they‘re not special ed kids, they‘re in there because they all can learn Algebra I,

and it‘s okay that way.‖


                                              21
       Although there are numerous exceptions, students with severe disabilities are the

least likely to be included. Students with severe intellectual impairments or behavior

disorders are often placed in self-contained classrooms. ―Children who have conditions

that have left them profoundly retarded remain in a classroom with a specific assigned

teacher,‖ a regular educator said about her school. ―They do have lunch in the lunchroom

with other students, but they do not attend music classes, art classes, PE, or parties. About

the only socialization that those children do have is in the interaction in the lunchroom.‖

       Some students are sent to self-contained classes that are not in their home schools.

A special educator said: ―So the kids that get identified as BD [Behavioral Disorder] have

to leave all of their friends and their community and be bussed out of their community to

a different school. The same thing happens in our county when a child is identified as

having a severe or profound mental impairment. They don‘t get to go to school with their

friends that they grew up with.‖

       Some regular educators are particularly concerned about having students with

behavioral disorders in their classrooms. One teacher said, ―My worst case scenario is

that child who cannot behave or has behavior problems in the regular classroom. LD

problems or moderately impaired kids—you can overcome those problems. But it‘s the

child that can‘t attune that‘s causing all of the disruptions. It‘s really a BD child—I think

they‘re the worst case.‖ Another regular educator said, ―I feel that what‘s happening with

the BD students is interfering with the whole school‘s environment. I don‘t think it‘s fair

to the BD student, and I don‘t think it‘s fair to the regular students as well.‖




                                              22
        Theme 13: The degree and quality of inclusion are highly influenced by local
attitudes and leadership.

       Attitudes are a driving force—positive and negative—for including students with

disabilities in regular education. When asked if the general classroom is considered first,

one special educator responded, ―We were a little confused about the way your question

was stated because that‘s probably not the way we speak about it. When we go to an IEP

meeting, we start with the student‘s test scores and their needs and build on that

assumption. We don‘t start by thinking of the classroom as foremost. The first thing is the

student‘s needs.‖

       On the other hand, a special educator at another school responded, ―Our kids start

at regular ed and they come down to special ed. When I first started at my school eight

years ago, it was like, ‗So your student is coming to me during science.‘ Now they say,

‗My student is going to you for help with reading.‘ It has completely flip-flopped.‖

       Many felt that school administrators have a powerful effect on how well students

with disabilities are included. ―I think the administration for the school sets the tone for

everybody else,‖ a special educator said. ―If you have an administrator that‘s not going to

accept or promote inclusion, none of the teachers are either because it takes extra effort.‖

       ―The administrator kind of makes it or breaks it,‖ said a Parent Educator Resource

Center staff member. ―We have such wonderful principals out there who will go beyond

the extent of what a normal administrator would do. Then you have some who just don‘t

care and don‘t monitor and don‘t oversee their schools the way they should. So there is a

breakdown with that administrator‘s experience, or practice, or beliefs, or values they

already hold.‖




                                              23
        The attitude of the classroom teacher is also critical. ―It all depends on how the

classroom climate is set and how the classroom teacher deals with any child with any

different ability,‖ a parent said.

        Theme 14: Educators need time and support to work together on implementing
inclusion successfully.

        Most interviewees felt that successful inclusion hinges on the quantity and quality

of support provided to students with disabilities in the regular classroom. This requires

ongoing collaboration and communication between regular and special educators. One

special educator said her positive relationship with regular educators came from ―week

after week, month after month, my stopping by and asking, ‗Do you understand? Do you

need anything else?‘‖

        Another special educator expressed concern that staff turnover in special

education disrupts effective collaboration: ―What concerns me is that so many people are

leaving special ed. You‘re not going to have the situation where someone has been at the

school and teachers feel comfortable trusting their judgment. It takes a while to develop

that level of trust and relationship.‖

        Collaboration is frequently undermined by inadequate funding and staffing of

special education positions. Many echoed one regular educator‘s comment: ―At my

school, I guess the most important positive aspect is our special ed teacher and how well

she works with everyone. I guess the only negative is that there‘s just one of her, and her

time is so limited.‖ Numerous parents agreed. ―I know these special ed teachers are

loaded. They‘re covered up.‖

        Many special educators reported feeling that they‘re stretched too thin. As one

put it, ―Right now I don‘t have a planning period. It was either take a planning period or


                                             24
take care of kids who needed services. And I‘m not going to leave them without the

services. I spend my planning period with an extra class.‖

       Peers, aides, and volunteers are often used to support inclusion. While many

spoke positively about these situations, several expressed caution. ―I can put my best

students with a high school student and tell them what they need to do,‖ said a special

educator. ―But the ones that need the most help—that‘s where I should be.‖ A regular

educator gave an example of a peer being used inappropriately: ―She [the special

education student] threw an incredible tantrum. They pulled another student out of my

classroom and had her go sit with her. She doesn‘t know what to do with the child. I

don‘t know what to do with that child. How can you give this situation to another student

who doesn‘t know what to do?‖

        Theme 15: Regular education teachers need more training in disabilities and
special education.

       The single concern that both parents and educators raised most often was the

special education training and experience of regular educators, even though this issue was

not specifically included in the probe questions. ―I think that our number one problem is

education for teachers,‖ a parent said. ―I know it was for my daughter—the teachers who

had never had a special needs child in their room.‖

       ―I think what is really lacking is the education of regular education teachers for

special ed,‖ a regular educator said. ―I wasn‘t trained in West Virginia. I was trained in

Virginia, and we had a great deal of special education in our training. I‘m doing

inclusion, and I‘m constantly having to teach other teachers what is MI (Mentally

Impaired), what is LD (Learning Disability), what‘s happening, and how to deal with




                                             25
these students. I think the regular education teacher needs more education on what is a

special education student and what their needs are.‖

       ―I‘ll go back to pre-service,‖ a regular educator said. ―We‘re missing it already.

It‘s hard to change people who are already there.‖ Another regular educator said, ―I think

at the college level you should tell people, ‗if you don‘t have the heart for the needs of

those children, then you need to get into some other line of work.‘‖

       In-service training for veteran teachers is also crucial. ―There are some teachers

that would say no all the time,‖ a regular educator said. ―But the child has a right to take

driver‘s ed and the child has a right to take STEPS, so the teacher has to take them. But

they‘re not being trained to take them. I think that‘s the big thing—they‘re not being

trained.‖

       ―She (the regular educator) is scared. She‘s frightened,‖ another regular educator

said. ―How will I know how to do this? What do I do?‘ I think we need to make sure that

all regular ed teachers have in-service in the special needs area before those students are

placed in the room.‖

       Theme 16: Extensive paperwork takes time away from teaching.

       Both regular and special educators expressed concern about the volume of

paperwork required for special education students. ―I think they (the special educators)

are overwhelmed with paperwork,‖ said a regular educator. ―A lot of the time is taken

from teaching the child because of the paperwork. I know if you‘re going to go to court

(and sometime or another every school ends up in some type of mediation or something),

you need that paper trail. But there has to be a better way. I don‘t understand why we

have so much paperwork.‖



                                             26
       ―They just keep adding,‖ a special educator said of the paperwork. ―They‘re not

taking away when they add; they just keep adding. The Medicaid billing was something

that was thrown on us last year. And now it‘s more monitoring.‖

       While everyone felt that accountability is important, some interviewees felt that

paper reporting doesn‘t assure that students get what they need. ―I‘d like to have

something where they could just drop in because they would catch some [regular

education] teachers who are not doing their jobs,‖ a special educator said.

       Some said the same was true for special educators. ―I‘m surprised at the number

of special ed teachers who do not do their jobs,‖ a special educator said.

       Question: How are parents involved in the education of students with

disabilities?

        Theme 17: Students whose parents get involved in their education are more likely
to get the services they need.

       Both parents and teachers emphasized the importance of regular communication

in assuring an appropriate education for students with disabilities. They especially noted

the need to be involved in formal IEP meetings, as well as more frequent informal

conversations. A parent of young twins said, ―We had a meeting before the actual IEP

[meeting]. I called it a pre-IEP meeting. There are so many things involved, such as

whether they needed psychological testing and what else would be needed. Then we gave

it about a month to six weeks, and then went back and had the actual IEP [meeting]. So

there has been a lot of talking time, and I think that‘s important.‖

       A parent of a middle school child stressed the power of meeting face-to-face with

regular educators: ―I think it is the parents‘ responsibility to make sure they get to meet

every teacher and tell them the very important things about their child and the most


                                             27
important things that are on the IEP. I think the parents need to be involved in letting that

teacher know about the child themselves.‖

       A regular educator agreed that involved parents help ensure that the IEP is

followed. ―If there are active parents, the IEPs are being followed. If there are not active

parents, then until it comes around in the next year, it‘s not being followed.‖

       Many interviewees gave examples of parents being strong advocates for the

placements and services they feel are best for their children. A regular educator described

one parent who challenged a decision to place her child away from her home school: ―We

didn‘t have special ed at all, and a parent was the one who got angry and said ‗I will not

move my child.‘ She dug her feet in and wasn‘t going to move to another school. Her

child had been going there for three or four years and finally got tested, and that‘s the

reason. It‘s kind of sad for other parents who didn‘t do the fighting and had to move

rather than staying with their peers they grew up with.‖

       Others expressed concern about students without involved families. ―You have

some strong parents, and the system does bend over backwards to accommodate that

parent,‖ a Parent Educator Resource Center staff person said. ―But we all know that a lot

of our parents—from poor families, or less educated families, or whatever the reason—

are not really involved. I do not believe the system picks up and takes care of those

students.‖

       Theme 18: Like most parents, the parents of special education students are more
involved during elementary school than during middle and high school years.

       Both parents and teachers felt that parent involvement was important throughout

the school careers of students with disabilities, but acknowledged that it commonly drops

off after elementary school. ―I think it‘s the nature of the way parents in general are.


                                             28
There is much less involvement between elementary and middle school, but even more

marked when you get to the high school level.‖

       ―By the time they reach middle school, the parents stop coming, which is just like

in regular education,‖ said a special educator. ―I‘d be lucky to have 40% [parent]

attendance at an IEP meeting even though I talk to them on the phone a lot and ask them

to come and be part of the process.‖

       A woman who is a regular educator and the parent of a student with disabilities

said, ―By the time they get to middle school, there are parents who simply don‘t show up.

A lot of times they‘re fed up and frustrated. In their eyes they don‘t see a lot happening.

Some of them just have so many personal problems they have a hard time getting

involved—income, family problems, whatever. I think the main reason is probably

because of frustration by that point.‖

       Theme 19: School and county practices affect parent involvement.

       Interviewees reported wide variations in efforts by the school and county to

involve parents. At one end of the spectrum, a special educator said, ―Our school is not

really that open to parent involvement. We don‘t have a big welcome mat. We have a list

of parent volunteers who are to be at these parties, and that is just about who is

welcome.‖

       At the other end are counties that take a countywide approach to parent

involvement. ―It‘s essential that in any county you start at the preschool level with an

emphasis on family involvement and that, as you change from one site to the next site,

you have teachers . . . who are going to reach out and say, ‗The connection is between the




                                             29
schools so that it‘s really a county focus that families are important and that is how we‘re

going to involve them and keep them involved.‘‖

          There was also variability in how well parents are informed about their rights. As

one regular educator said, ―Most parents don‘t know they can file for due process. They

don‘t have a clue they can do that. They [administrators] don‘t want them to know they

can do that.‖

          On the other hand, a special educator felt that a lot of attention is paid to parent

education. ―We always give them a copy of Parent Rights before the meeting. But also,

my principal sits in on all the meetings, and she‘ll say, ‗This is what we think. If you

disagree with it, we can change anything on the IEP. This is just a draft. If you don‘t like

it or if you want to think about it, we‘ll reconvene and start the meeting over at a later

date.‘‖

          Flexibility in meeting times affects parent participation. One parent said, ―You

don‘t ever have after-school meetings. You might get them at 7:30 in the morning when

they‘re there. Trying to work out a meeting is always an issue because they‘re not going

to stay after school or after work. Parents take time off work to come, and that‘s the only

way to have meetings.‖

          Other schools are much more flexible about connecting with parents. ―We‘re very

flexible about our meeting times,‖ said a special educator. ―I‘ve met at 6:00 p.m. When I

know there‘s a ball game going on and there‘s going to be a principal there, I‘ll schedule

the meeting at 6:00. And I‘ve had meetings at 6:30 in the morning before parents go to

work.‖




                                                30
        Some teachers visit parents at home. A special educator said, ―In general, if the

parents don‘t show up at the IEP meetings, most of us go out and meet with the parents

and take the IEP to them.‖

        Theme 20: Information is not readily accessible to many parents.

        Both parents and teachers agreed that it‘s important for parents to be informed. ―I

think a parent really has to educate yourself on a lot of things,‖ a parent said. ―Not just

what your rights are, but what your child‘s disability is. That gives you a lot more to say

in what you present at your IEP meetings.‖

        But many parents said the information they need is hard to come by. ―Anything I

read I had to get on my own,‖ a parent said. ―I had to do my own research. They [school

staff] had provided me nothing in terms of what to expect or what to read or how to

prepare. It was really never laid out for me. They really gave me no guidance.‖

        Some of the information that is provided is not in understandable language.

―Sometimes our special educators who are in those meetings say ‗this is the test data‘ and

they use these great big words. Since I am a primary teacher, I will say in one- and two-

syllable words, ‗Now she really means… ‘ It‘s not parent-friendly.‖

        Sometimes the information resources are available, but parents don‘t know about

them. ―Information is there,‖ a parent said. ―As far as making sure someone realizes it is

there, it is a little hard.‖

        Sources of information that focus group participants had used included Parent

Educator Resource Centers, West Virginia Parent Training and Information, West

Virginia Advocates, and the West Virginia Learning Disability Association. Parents also




                                              31
said that much of what they‘d learned about special education they learned from other

parents.

        Theme 21: The special education process is intimidating to many parents.

        Both parents and teachers commented that IEP meetings and other aspects of

special education are intimidating to many parents. ―I think even with the best teachers,

the parents are very intimidated,‖ a regular educator said. ―They‘re afraid to sign

anything. Everything is like a legal, binding document that‘s going to guide their child for

the rest of their education. I think it is very intimidating.‖

        Some said the process is difficult for parents because the focus is often on their

children‘s deficits. ―I‘ve had parents tell me that they were apprehensive to come in

because every time they were there, they were told about what their child could not do,‖ a

special educator said.

        Another special educator said: ―I think we sometimes stress the bad behaviors,

and we don‘t call if the behavior improves. Or for a child that‘s good all the time, that

child needs to hear that, too, and the parents need to hear that. So that‘s one thing I try to

do.‖

        For some parents, negative feelings can be tracked back to their own past

experiences in school. ―Some people had a very negative experience with school,‖ a

regular educator said. ―They have a bad attitude because they have a bad feeling about

school. And then suddenly their kid‘s there, too, and that carries over to the child.‖ A

special educator said, ―I had one parent who wouldn‘t walk into the building because the

current principal had been his social studies teacher and had failed him.‖




                                              32
       Theme 22: Most disagreements are resolved without resorting to due process
hearings.

       Both parents and teachers talked about the importance of having constructive

relationships in which everyone focuses on what‘s best for the student. A regular

educator said, ―I‘ve found that the best experiences I‘ve had with special ed students are

where the parents are involved and supportive of the child, and the teacher‘s working

with the child and supportive of the program.‖ A special educator said, ―Even with

parents you have sometimes been locking horns with, it can really be a help when

everybody sees that you really have the child‘s best interest at heart.‖

       Some people said that educators don‘t always have all the answers, so it‘s

important that everyone work together as a team. ―If you ever hear a teacher say, ‗we

don‘t know what to do,‘ that‘s okay because sometimes we don‘t know what to do

either,‖ a parent said. ―That‘s when you get the parent, the principal, the phys ed teacher,

the special ed director, anyone you can ask—you get them together and that‘s when you

work as a team.‖

       Most focus group participants had little or no experience with formal due process

hearings and viewed them as a last—and not very desirable—resort. ―Our county really

goes to the furthest limit to avoid due process,‖ a special educator said. ―I think the parent

usually gets the services once they push, especially if they come in with an attorney.‖

       A parent said, ―When you hit due process, your child is held without services until

it is resolved. I always try through the parent center to go through the steps of the teacher

and the principal, then the special ed director and the superintendent before I ever involve

the State.‖




                                             33
       Question: How well are students with disabilities being transitioned into,

through, and out of public schools?

       Theme 23: Interagency collaboration is key to identifying and transitioning
young children.

       Interviewees described both positive and negative experiences with transitioning

young children into public education, which many attributed to how well the

organizations worked together. Special educators mentioned a variety of agencies they

work with, including county health departments, doctors‘ offices, Birth to Three

programs, Head Start programs, behavioral health centers, and home visiting programs.

       One parent described a highly successful collaboration in her county called

Operation Tadpole. ―That is a birth-to-five network. We meet every week for an hour and

a half. After that, we have face-to-face meetings with our parents who are transitioning

from Birth to Three to either Head Start, preschool special needs, or regular pre-K. We

have the people at the table together—including the psychologist and the special ed

specialist—for a face-to-face meeting. We share programs. Like we have one child in our

pre-K special needs program in the morning who goes to Head Start in the afternoon.‖

       Others expressed concern about interagency collaboration in their counties,

particularly between public schools, Head Start, and Birth to Three programs. ―The

majority of my students come through the Birth to Three program,‖ a regular educator

said. ―That‘s been in bad shape the last few years. We‘ve not had good referrals. We‘ve

not had adequate assessments. The kids have not had adequate services. But that‘s being

remedied with the new program that‘s being put in place beginning this summer.‖

       ―We have a hard time communicating with Head Start and with centers that work

with children under three, getting them to refer to us, the school system,‖ a special


                                             34
educator said. A special education director said, ―I‘m not having a whole lot of success

with those transitions being made in a timely manner. I feel like it‘s a breakdown on their

end, because I can get a referral for a child to schedule a face-to-face meeting, and that

child will be turning three in a week. I‘m like, you guys, where were you 90 days ago?‖

      Theme 24: Transitions involving young children should be developmentally
appropriate.

       Several teachers stressed that services and transitions for young children should

be appropriate to their developmental levels. ―We expect our four-year-olds to all know

the same thing, and five-year-olds to all know the same thing,‖ a regular educator said.

―Particularly at that age, I think we‘re not using developmentally appropriate practices,

because all children are not the same, and we expect them to be. We put extra pressure on

those children, and they can‘t handle it.‖

       ―In my county, if a child is in preschool handicapped, most of us feel the

progression should be from preschool handicapped to the pre-K class, then to

kindergarten,‖ a special educator said. ―A lot of times, they‘re going straight from

preschool handicapped to kindergarten. So many of these children are missing the extra

socialization time, time to develop, time to grow. And then they‘re going on and they‘re

winding up being held in kindergarten.‖

       ―I would like to see a larger window for deciding where a child is going to go,‖ a

regular educator said. ―We transition our children from preschool right into the regular

kindergarten or some other kind of service, and I would like to see a longer period of time

given to make those determinations.‖




                                             35
       Theme 25: Advance visits and meetings improve transitions into middle and high
schools.

        Many teachers and parents commented on the challenges of transitioning from

elementary to middle or high school. ―It was difficult for me when my daughter went

from elementary school to middle [school],‖ a parent said. ―They‘re like in a little cocoon

when they‘re in elementary school. All of a sudden you feel like they‘re going to the big

kids‘ place.‖

        One of the biggest changes for students in general—and for students with

disabilities in particular—is going from having one teacher to several. For included

students, this means that more regular teachers need to understand each student‘s

disability and IEP, and special educators need to cover more classrooms.

        Interviewees felt that advance visits to the middle school and meeting the middle

school teachers helps students make the transition. ―I take my kids in the summer and

show them their lockers,‖ a special educator said. ―And then I go around and help make

up the schedule. And then we go around and, if the teachers are in their rooms before

school, I introduce them. I usually tell them I will be there the first day. I can do all that

because I only have a couple of kids that move up at a time.‖

        Pre-orientations also help. ―We have an orientation about three days before school

starts, when the parents come with their child in the evening,‖ a special educator said.

―They go through their schedules. We teach them how to work their lockers. This is the

information all seventh graders are given the first day of school. They get it ahead of

time. They walk through the schedule and meet the teachers so they‘re a little more

comfortable on that first day of school.‖




                                              36
        Theme 26: Transition planning begins by age 14 for most students with
disabilities, but the quality of the experience varies.

        Interviewees generally expressed that transition planning from school to college

or work happens for most students when they turned 14, but that the nature of the

experience varies greatly depending on the teachers and schools involved. One parent

described her positive experience, ―We have a transition coordinator who works with the

special needs students. And he has been fantastic in getting our special ed kids involved

in a lot of different things—vocational schools, college, the Rehab Center. He even goes

out to different places throughout the state and gives in-services to high school teachers

and administrators as to what they can do to help kids once they hit 14.‖

        But many parents—more so than teachers—expressed concerns about the

transition process. ―It‘s non-existent,‖ a parent said. ―I have yet to come across a 14-year-

old and up that the team actually planned transition services. They come in with the

transition part of the IEP already filled out and have their little pat answers that they

check. I have begged for mapping—let‘s find out from this child where they want to be

as an adult. Let‘s find out from mom and dad what goals they have for this child as an

adult. And the more complicated the child is, the more critical it is. But this is all we do;

we provide career awareness and driver‘s license application info. And that‘s it. I cannot

get anyone to budge on that.‖

        ―Planning process? There is no planning process,‖ another parent said. ―They dot

their I‘s and cross their T‘s, but that‘s the extent of it. I had to fight tooth and nail to get

my son in real jobs because they (Vocational Rehabilitation) have their own training

program that‘s one-size-fits-all. I don‘t agree with that. One size does not fit all.‖




                                               37
       Theme 27: Some students leave high school without the vocational and life skills
they need.

       Many educators voiced concerns about increased academic requirements and

declining opportunities for developing vocational and life skills for students with

disabilities. ―We are offering so little for the technical and occupational,‖ said a regular

educator. ―I know one of the things our special ed department is saying is ‗we‘re killing

these kids‘. There‘s not even anything that they can actually take anymore for them to

graduate, and they have to take this in order for them to graduate, and we don‘t have the

modified classes in order for them to pass.‖

       ―They‘re less likely to cut a class that‘s going to benefit your regular ed students

and prepare them for college than they are to prepare a child who‘s not going to college

for a job,‖ another regular educator said. ―That seems kind of strange to me, because the

ones that can go to college can make it and the ones who can‘t go to college have no

other option.‖

       ―I always felt that the more I can do with them with the stove, with the

refrigerator, with the washer and dryer, those are transition skills that we need to teach

them that we are not teaching them,‖ a special educator said. ―We‘re so focused now on

achievement and academics that we‘re not giving them the skills they need.‖

       Interviewees did have positive things to say, however, about school-to-work

programs that are available to some students. ―We have a program called Job Skills

where we take MI, LD, and BD students out every Tuesday morning to a job site,‖ a

special educator said. ―They‘ve worked at Hardee‘s, McDonald‘s, the Tourist Center, the

college. They‘ve worked everywhere. They go out and get real-life work experience, and




                                               38
our MI teachers go out and monitor them. A lot of kids get summer jobs at places like

Hardee‘s because they worked there during the school year.‖

       Theme 28: Programs and services appropriate for adults are scarce in many
counties.

       Parents and teachers said programs for adults with disabilities—especially

employment programs—are lacking in many communities. ―Unfortunately, the only

vocational program in our county right now is a sheltered workshop,‖ a special educator

said. ―The trend for the last 30 years has been to place students in competitive or

supported employment locations, and nothing like that exists for the severe and profound

population in our county. I would guess that other counties that are as rural as we are

suffering the same thing.‖

       ―I would love it if Vocational Rehabilitation would take a lot more responsibility

as far as supported and competitive employment,‖ another special educator said. ―They

know the sheltered workshops are out there. We keep sending state and federal money

into the sheltered workshops, and they‘re not being tapped to move people into

competitive sites.‖

       One special educator explained how her students have to work their way up

through several programs, ―They have the sheltered workshop, they have Voc Rehab, two

colleges, and the skills program. I explained to my kids before we go in, because some of

my LD kids are very high, that you‘re going to have to sit through the sheltered workshop

and work your way up, which is very insulting to a lot of kids.‖

       Even when appropriate jobs and training programs exist, transportation can be a

huge barrier, especially in rural counties. ―With the job opportunities when they get out

of high school, one of the biggest drawbacks around here is transportation,‖ a regular


                                             39
educator said. ―I know there are times that they could be working in custodial

maintenance-type things. But unless you‘re a non-working parent who can run them back

and forth all the time, it‘s almost impossible.‖




                                             40
 PART III: SYSTEM IMPROVEMENT RECOMMENDATIONS FROM
                FOCUS GROUP INTERVIEWEES


           After the focus group interview transcripts were analyzed for general themes, they

were reread for specific recommendations on improving the special education delivery

system. The following suggestions and recommendations for improvements were made

by the focus group participants. They represent the range of ideas expressed, not a

consensus among the participants, and aggregate around the detailed themes identified in

Part II.

           Question: How can special education and related services be improved?

   Theme 1: The availability and quality of services vary considerably across counties,
schools, and families.

          Strengthen state, county, and school oversight of special education services;

           provide state monitoring to assure that corrective action and mediation

           agreements are implemented, that related services and assistive technology are

           being provided, and that illegal suspensions and expulsions are prevented.

          Improve teacher in-service training.

          Improve local leadership by providing training for administrators on special

           education regulations and issues.

          Educate parents about their children‘s rights in special education.

          Do a better job of identifying students with emotional disturbances, providing

           them with appropriate services, and distinguishing them from students with

           behavioral disorders.




                                                  41
    Theme 2: The process for determining eligibility delays needed services for some
students.

      Enforce the time limits for the assessment and identification process.

      Develop better methods of early identification of students with learning

       disabilities and better ways of providing appropriate support.

      Streamline the Student Assistance Team process; Eliminate or shorten the

       modifications period when a disability is apparent or when the regular education

       teacher has already tried all appropriate modifications (especially when the

       teacher has a background in special education).

      Meet parents at their level of intellectual and emotional understanding.

       Professional staff in the education system must understand that some parents are

       reluctant to have their child labeled.

   Theme 3: Eligibility guidelines allow some students to fall between the cracks.

      Provide more educational support to students who do not meet eligibility criteria

       for special education or 504 services.

    Theme 4: Developing Individualized Education Plans (IEPs) that effectively meet
student needs requires adequate time and the participation of all parties. Full
participation by all stakeholders in the Individualized Educational Plan Process is
important.

      Provide training to all parties about the purpose and requirements of the IEP.

       Write the IEP as a team instead of prior to the meeting; include short-term,

       attainable goals; focus on individual strengths (not just weaknesses); take enough

       time to do the IEP well.




                                                42
      Make it easier for parents to participate in IEPs; hold IEP meetings during hours

       when parents are not working; enable parents to participate in meetings from

       work via conference calls.

      Make it easier for regular educators to participate for the entire meeting, rather

       than moving in and out of the meeting. Provide substitute teachers to cover

       classes during IEP meetings

      Provide more time for special educators to work with all parties to develop a

       meaningful IEP. Provide extra planning periods for special educators and/or

       substitute teachers to fill in for them when they are pulled out of their regularly

       assigned classes.

    Theme 5: Many Individualized Educational Plans are not fully implemented due to
lack of time, services, and sharing of information.

      Make sure that all parties have and use the IEP.

      Provide sufficient time for regular and special educators to communicate with

       each other and implement IEPs as written.

      Provide sufficient and equitable resources (e.g., textbooks, supplies, computers) to

       special education classrooms.

      Provide year-round schooling so students can maintain and further their skills.

      Encourage all parties to request meetings as needed to revise IEPs.

   Theme 6: Counties’ shortages of related services professionals affect availability and
provision of services.

      Improve recruitment and retention of psychologists, counselors, occupational

       therapists, physical therapists, and speech therapists. The shortage of these

       support personnel is most pronounced in rural and border counties.



                                             43
      Require graduating therapist to have training in developmental needs of

       preschoolers.

      Hire more school nurses to meet the ratios required by state law; amend state law

       to specify ratios for students with special needs.

      Provide support and incentives for teachers to become certified in special

       education and/or obtain multiple certifications.

      Look at characteristics other than seniority to recruit, establish, and maintain a

       qualified teaching staff.

      Require special education substitutes to have training in special education.

   Theme 7: Assistive technology has great potential but is often underutilized.

      Provide training and technical assistance to teachers and therapists on assistive

       technology; one good model is a county technical assistance team.

      Provide opportunities for students, parents, and teachers to try out devices prior to

       purchasing them.

      Overcome liability issues that prevent some students from taking their devices

       home.

       Question: How can efforts to include students with disabilities in regular

education be improved?

    Theme 8: Inclusion is often viewed as beneficial to students with and without
disabilities.

      Provide diversity and disability awareness training to regular education students

       and regular education teachers.

      Start inclusion in preschool and primary grades.

      Reinforce that placement in a regular classroom is to be considered first.


                                            44
      Provide more self-contained and alternative programs for students who have

       serious difficulties learning in the regular classroom and for whom inclusion has

       not been successful.

   Theme 9: Modifications are widely used to support students with disabilities in
regular classrooms.

      Provide training and technical assistance to special and regular educators on

       making modifications.

      Whenever possible, incorporate modifications that benefit all students and do not

       single out special education students (e.g., giving all students their spelling words

       for the next week on Friday, so they can practice at home over the weekend).

      Make all schools accessible to people with physical disabilities.

   Theme 10: Special education students are not always viewed or treated as full and
equal members of their schools.

      Provide diversity and disability awareness training to regular education students

       and regular education teachers.

      Provide training and hold expectations that all regular educators will teach

       students with disabilities in their classrooms. In the short term, however, many

       special educators say it‘s important to pick and choose those regular educators

       who are most open to inclusion and dedicated to helping special education

       students succeed. But this can result in a disproportionate number of special

       education students being assigned to those teachers‘ classrooms.

   Theme 11: Many students with disabilities are included physically but do not
participate or feel socially included in regular education settings.

      Increase interactions between students with and without disabilities through

       programs like peer mentoring.


                                            45
      Provide integrated after-school programs for socialization and tutoring.

      Allow differential grade requirements that enable students with disabilities to

       participate in extracurricular sports.

    Theme 12: Placement in regular education classrooms varies according to the
student’s disability type. Students with learning disabilities are more likely to be
included in regular classrooms and students with severe intellectual impairments and
those with behavioral disorders are least likely to be included.

      Allow all students to attend their home schools, regardless of their disabilities.

      Provide more training and technical assistance in positive behavioral supports for

       special and regular educators.

      Hire inclusion specialists to help more severely disabled students succeed in the

       regular classroom.

      Theme 13: The degree and quality of inclusion are highly influenced by local
attitudes and leadership.

      Provide training to administrators and educators on the value of inclusion and

       practical strategies for implementing it.

    Theme 14: Educators need time and support to work together on implementing
inclusion successfully.

      Provide more time for regular and special educators to communicate and plan for

       their students through extra planning periods, common planning periods, and/or

       the use of substitute teachers.

      Use team teaching in which a regular and a special educator share responsibility

       for all students in the classroom.

      Reduce class size so that regular educators have more time to support special

       education students in their classrooms.




                                                46
      Hire additional special education teachers to provide sufficient support to special

       education students in regular classrooms.

      Utilize aides, volunteers, and peers to support students with disabilities when

       appropriate, but not in situations where the expertise of teachers is needed.

   Theme 15: Regular education teachers need more training in disabilities and special
education.

      Provide better pre-service instruction on disabilities, special education, and

       inclusion for regular education majors; make teacher preparation programs five

       years long and require all teachers to be certified to teach students with mild

       disabilities.

      Provide better in-service and continuing education opportunities focused on

       disabilities, special education, and inclusion for regular educators.

   Theme 16: Extensive paperwork takes time away from teaching.

      Reduce paperwork requirements to those that are essential and meaningful.

      Provide aides and/or clerical support to allow special educators to spend more

       time with their students and less time with paperwork.

      Computerize IEPs as has been done in RESA VI; Provide laptops for special

       educators.

   Question: How can efforts to involve parents in the education of students with

   disabilities be improved?

    Theme 17: Students whose parents get involved in their education are more likely to
get the services they need.

      Adopt practices that welcome and support parent involvement.




                                            47
      Assure that the needs of students who don‘t have involved parents are equally

       addressed.

    Theme 18: Like most parents, the parents of special education students are more
involved during elementary school than during middle and high school years.

      Adopt practices that welcome and support parent involvement.

   Theme 19: School and county practices affect parent involvement.

      Develop local administrative leadership that supports parent involvement.

      Provide flexible times when working parents can visit the school and meet with

       teachers; offer multiple means for communication (e.g., notes, phone calls).

      Support parents in helping their children learn at home (e.g., a preschool teacher

       sends home books and cassette tapes for parents to use with their children).

      To enhance parent involvement, require parents who receive welfare to attend

       parenting classes at their children‘s school.

   Theme 20: Information is not readily accessible to many parents.

      Provide information to parents in understandable language and multiple formats

       (brochures, workshops, a statewide information clearinghouse, the Internet, one-

       on-one advice) about their rights and responsibilities in special education; many

       interviewees say written information is not enough.

      Encourage parent networking; many parents say much of what they learned about

       the special education system and its operation they learned from one another.

      Make sure parents know about their Parent Educator Resource Center and other

       supportive resources.




                                            48
   Theme 21: The special education process is intimidating to many parents.

      Focus on student assets, not just deficits; be sensitive to the fact that parents and

       students spend a lot of time hearing about what the students cannot do.

      Create a welcoming, non-hierarchical meeting environment (e.g., meet at a round

       table; take time and don‘t be rushed).

      Provide support people to parents to help them understand and negotiate services

       for their children and resolve disputes.

   Theme 22: Most disagreements are resolved without resorting to due process
hearings.

      From the start, encourage all parties to work as a team in the student‘s best

       interest, so they are able to successfully resolve differences; ensure that all parties

       understand special education requirements and that parents understand their

       rights.

   Question: How can transitions into, through, and out of public schools be

improved?

    Theme 23: Interagency collaboration is key to identifying and transitioning young
children.

      Encourage strong local collaboration to identify and serve young children with

       special needs among pediatricians, public health departments, Birth-to-Three

       programs, Head Start, behavioral health centers, and home visiting programs;

       publicize successful collaborative models such as Operation Tadpole.

      Encourage timely referrals (90 days in advance) of three-year-olds transitioning

       into public school programs.




                                             49
   Theme 24: Transitions involving young children should be developmentally
appropriate.

      Transition children from preschool handicapped classes to a pre-K program prior

       to transitioning them to kindergarten, so they have a little extra developmental

       time.

   Theme 25: Advance visits and meetings improve transitions into middle and high
schools.

      Have middle school teachers come to elementary schools to meet and talk with

       students who will be transitioning.

      Schedule visits during the spring or summer for students to become familiar with

       their new school.

      In addition to the regular orientation, provide a pre-orientation meeting to the new

       school for students with disabilities and their parents.

    Theme 26: Transition planning begins by age 14 for most students with disabilities,
but the quality of the experience varies.

      Use a meaningful process (e.g., personal futures planning, mapping) for transition

       planning that involves the student, parents, teachers, and others who are

       concerned about that student.

      Employ transition coordinators to facilitate the process.

      Engage adult service providers (e.g., Division of Vocational Rehabilitation,

       behavioral health centers, and other community agencies) in planning and

       arranging for services after high school.




                                             50
   Theme 27: Some students leave high school without the vocational and life skills they
need.

      Reduce certain academic requirements (especially math) to enable more special

       education students to graduate with a regular diploma; allow more vocational and

       life-skills instruction to count toward graduation requirements; allow students to

       attend voc-tech schools prior to their junior year, especially if they‘re the age of

       high school juniors.

      Expand community-based school-to-work programs that help prepare students for

       employment.

   Theme 28: Programs and services appropriate for adults are scarce in many
counties.

      Expand the availability of community programs for adults with disabilities,

       especially in the areas of supported and competitive employment and

       transportation.




                                             51
                         PART IV: PUBLIC HEARINGS

                                   An Additional Step


       Organizing 38 focus groups represented a tremendous effort by the Department of

Education‘s Office of Special Education to seek public perceptions about its services.

However, the Department felt that the nominating process and the daytime schedule for

the focus groups may have excluded people who would have liked have to provided input

to the Department‘s planning process. In an attempt to include those voices and allow

individuals to self-nominate their participant in the process, a series of evening public

hearings was proposed.


                             The Public Hearing Process


       In May of 2002, in an effort to obtain additional public comment, the Department

engaged AEL to conduct three public hearings on its behalf. As noted in this report, AEL

facilitated the focus groups in the first phase of the Departments‘ effort to gain

information about public perceptions.

       The hearing schedule was set by the Office of Special Education. Dates, times,

and locations of the hearings were

       1. Tuesday, May 28, 6-8 p.m., Capital High School, Charleston

       2. Wednesday, May 29, 6-8 p.m., Mountaineer Conference Center, Beckley

       3.   Friday, May 31, 6-8 p.m., Holiday Inn, Fairmont




                                             52
       More than 5,000 flyers announcing the public hearings were mailed by the

Department of Education, Office of Special Education. They were sent to a list of

individuals and organizations that included

          newspapers (every news paper in the state received the announcement for

           inclusion in their community calendar and public service announcements)

          principals and faculty senate chairpersons (every principal and faculty senate

           chair at each of the state‘s 800+ schools received the announcement)

          superintendents of each of the state‘s school districts

          individuals nominated to participate in the focus groups (the list contained the

           names of 900+ parents, students, teachers, special education teachers,

           superintendents, principals, local special education directors‘ and PERC staff)

          West Virginia Advisory Council for the Education of Exceptional Children

           (mailing directed to each individual council member)

          Part C Interagency Coordinating Council (mailing directed to each individual

           council member)

Packets of the announcement were sent to the following groups for distribution through

their networks:

          Parent–Educator Resource Centers (there are 39 centers serving the state)

          local special education directors (there are 57 directors serving the state)

          West Virginia colleges and universities

          West Virginia School Psychologist Association

          West Virginia Parent Training Center

          Mountain State Parents CAN




                                              53
          West Virginia Advocates

          West Virginia School Boards Association

          Mountain State Family Alliance

          Commission on the Deaf and Hard of Hearing

          The Federation of the Blind

          West Virginia EA

          West Virginia AFT

          The Office of the Secretary of Education and the Arts

       The meeting announcement invited the recipient to attend, requested that

recipients post the announcement where other stakeholders and organizational

representatives would see it, and asked recipients to pass the information along to other

agencies and interested parties in their personal and professional networks. A copy of the

announcement is contained in Appendix J of this report.

       The format of the public hearings was designed to gather testimony from large

numbers of participants at each site. Individuals would be asked by the AEL hearing

officer to address the same questions that were used in the focus group discussions. The

hearing officer would indicate that other topics, while important, would not be

appropriate for the hearing and should be discussed with representatives of the

Department at the state or local level. The focus of the hearings was to gather input on

specific topics that would provide a basis for a report to the Office of Special Education

and use for planning by its steering committee.

       Individuals testifying would be asked to identify themselves and indicate the

stakeholder group(s) they represented. They would be asked to limit their comments to




                                            54
three minutes and to address question(s) of interest to them. This format would allow

individuals to address issues that concerned them and/or issues that would indicate

success and progress and to make recommendations for changes to make the system more

effective. The department hoped to gain as much information as possible through the

process.

       Because attendance at public hearings is difficult to predict, a fallback plan was

designed, in case of any hearing attracted only a small group. The fallback plan was to

move away from three-minute presentations and convert the meeting to a focus group,

replicating the activity of the original 31 groups. Attendees would discuss all of the

questions and provide their perceptions of strengths and concerns they see in the special

education system. During the discussion they would be asked for their recommendations

for improving the system.

       Attendance at all three public hearings was light – a total of 24 people

participated. The break down of attendance is as follows:

       1. Charleston—6 participants

       2. Beckley—12 participants

       3. Fairmont—6 participants

       Participants were asked to sign a registration log as they entered the hearing room

and to identify the stakeholder group they represented. The following is a record of the

stakeholder groups in attendance based on participant sign-in sheets:

          superintendent—1

          special education director—1

          parent—9




                                            55
           assistant principal—1

           regular education teacher—4

           special education teacher—7

           special education advocate—1

           West Virginia Birth to Three Program—2

           Parent Education Resource Center coordinator—1

           nurse—1

           physical therapist—1

           CIMP Steering Committee member—1

           project director West Virginia PTI—1

The number of stakeholder roles represented exceeds the number of attendees, because

many participants indicated they played multiple roles in the lives of special education

students.


The Hearings

        Attendance patterns triggered the engagement of the fallback strategy, and the

focus group format was used in the public hearings at all three locations. A court reporter

was present at each meeting to capture the discussion, and a full transcript of each

meeting was made. To ensure that no potential participant would be left out, an

interpreter was present at each hearing to provide support services for hearing-impaired

attendees. In addition, to assist any potential participant who was visually impaired, the

questions being addressed in the hearing were available in Braille. No participant at any

site needed the services of the interpreter and none required the Braille questions.




                                             56
Analysis

        The transcript of the proceedings was reviewed against the coding system

developed for the focus groups to identify themes and suggestions for system

improvement strategies. The information gleaned from the process was compared to the

results of the original 31 focus groups.

        The themes drawn from attendees at the public hearings were consistent with

those identified in the initial series of focus groups.


Key Themes

      The comments, concerns, and recommendations for system improvement from both

the public hearings and the original focus groups came out of discussions around the four

main questions provided by the Office of Special Education:

           To what extent are students receiving the special education services they

            need?

           To what extent are students with disabilities included in regular classrooms?

           How are parents involved in the education of students with disabilities?

           How well are students with disabilities being transitioned into, through, and

            out of public schools?

      Information gathered at the public hearings was consistent with the following

overarching themes that emerged from the initial focus groups:

           The experiences of special education students vary considerably across

            counties, schools, and classrooms. The quality of the experience appears to

            depend largely on the leadership of local administrators, the attitudes and




                                              57
            training of regular educators, the time and resources available for special

            education services, and the involvement of informed parents.

           Great strides have been made in the inclusion of students with disabilities in

            regular education classrooms, though special education is still widely viewed

            as ―special‖ and separate. Special educators feel that once children are

            identified, they are often seen as ―their‖ students and treated differently from

            the rest of the student body.

           Collaboration with non-school entities is essential to support the development

            of students with disabilities. This is especially true for identifying and

            transitioning young children into public schools and for transition planning to

            prepare teenagers for their adult lives.

        No new themes emerged in the public hearings. The reader should refer to Part II,

where the 28 detailed themes of specific concern and interest to the focus group

participants are listed.

        The public hearing participants did, however, provide additional

recommendations for system improvement.




                                              58
 PART V: SYSTEM IMPROVEMENT RECOMMENDATIONS FROM
          PARTICIPANTS IN THE PUBLIC HEARINGS

       The following are recommendations for strategies to improve the special

education system in West Virginia. They were suggested by participants in the public

hearings conducted by AEL on May 28, 29 and 31, 2002, on behalf of the State Office of

Special Education. They represent the range of ideas expressed and do not represent a

consensus among participants.

       The themes referenced here are identified in Part II of this report. The

recommendations for improvement made by participants in the public hearings are sorted

according to the themes they impact. Some themes listed in Part II are not included here

because suggestions from participants in the public hearings did not impact all themes

identified in the initial 31 focus groups.

       Question: How can special education and related services be improved?

   Theme 1: The availability and quality of services vary considerably across counties,
schools, and families.

      Publicize information about ―best practices‖ in special education.

    Theme 4: Developing Individualized Educational Plans (IEPs) that effectively meet
the student needs requires adequate time and participation of all parties. Full
participation by all stakeholders in the Individualized Educational Plan process is
important.

      Incorporate information and recommendations from outside experts (e.g.,

       physicians, psychologists) into the IEP when available.




                                             59
   Theme 6: Counties’ shortages of related services professionals affect availability and
provision of services.

      Improve recruitment and retention of qualified psychologists, counselors,

       occupational therapists, physical therapists, and speech therapists, especially in

       rural and border counties; provide more student internships for pre-service

       teachers in special education. (new)

      Require graduating therapists to have training in the developmental needs of

       preschoolers.

      Hire more school nurses to meet the ratios required by state law; amend state law

       to specify ratios for students with special needs.

       Question: How can efforts to include students with disabilities in regular

education be improved?

    Theme 8: Inclusion is often viewed as beneficial to students with and without
disabilities.

      Reinforce that placement in a regular classroom is to be considered first.

   Theme 15: Regular education teachers need more training on disabilities and special
education.


      Provide training and support to teachers to meet their students‘ health-related

       needs (e.g., blood sugar monitoring). Offer or require training for teachers in first

       aid and CPR.

       Question: How can efforts to involve parents in the education of students

with disabilities be improved?




                                              60
   Theme 19: School and county practices affect parent involvement.

      Provide and require all educators to receive training in family-centered practice

       and support and how to implement those activities.

      Establish a special education council in every county, mandating that a majority

       of members should be parents and youth in special education.

      When parents are divorced, make sure both are informed about and have access to

       their children‘s records.

       Question: How can transitions into, through, and out of public schools be

improved?

    Theme 23: Interagency collaboration is key to identifying and transitioning young
children.

      Provide needed intensive services early on, because it‘s more effective and saves

       money in the long run.

      Amend state law to include immunization requirements for three- and four-year-

       olds entering public school programs.

   Theme 24: Transitions with young children should be developmentally appropriate.

      Make developmentally appropriate kindergarten mandatory for all four-year-olds.

   Theme 25: Advance visits improve transitions into middle and high schools.

      Offer home visits by teachers when students are transitioning.

    Theme 26: Transition planning begins by age 14 for most students with disabilities,
but the quality of the experience varies.

      Employ transition coordinators to facilitate the process; have a transition class

       during the final semester (in addition to earlier efforts). (new)




                                            61
        Hire a state-level transition coordinator to provide training, resources, and

         consultation to county programs.


Comments and Recommendations

         Several people expressed concern about the scheduling of the public hearings on

the night of high school graduations in the Fairmont area. They also expressed concern

about the short length of time between the receipt of the meeting notice and the meeting

date. They thought participation in the public hearings would have been larger if the

dates had been different and there had been more lead time between the invitation and the

event.




                                              62
  PART VI: SYSTEM IMPROVEMENT RECOMMENDATIONS—A
    COMBINED LIST FROM FOCUS GROUPS AND PUBLIC
                      HEARINGS

        The following is a combined list of suggestions and recommendations for special

education system improvements made by the focus group and public hearing participants.

These comments represent the range of ideas expressed and are not a consensus among

the participants. The recommendations are aggregated around the detailed themes

identified in Part II of this report.

        Question: How can special education and related services be improved?

   Theme 1: The availability and quality of services vary considerably across counties,
schools, and families.

       Strengthen state, county, and school oversight of special education services;

        provide state monitoring to ensure that corrective action and mediation

        agreements are implemented, that related services and assistive technology are

        being provided, and that illegal suspensions and expulsions are prevented.

       Improve local leadership by providing training for administrators on special

        education regulations and issues.

       Improve teacher training.

       Educate parents about their children‘s rights in special education.

       Do a better job of identifying students with emotional disturbances, and providing

        them with appropriate services, and distinguishing them from students with

        behavioral disorders.

       Publicize information about ―best practices‖ in special education.




                                             63
    Theme 2: The process for determining eligibility delays needed services for some
students.

      Enforce the time limits for the assessment and identification process.

      Develop better methods for early identification of students with learning

       disabilities and better ways of providing appropriate support.

      Streamline the Student Assistance Team process; eliminate or shorten the

       modifications period when a disability is apparent or when the regular education

       teacher has already tried all appropriate modifications (especially when the

       teacher has a background in special education).

      Meet parents at their level of intellectual and emotional understanding.

       Professional staff in the educational system must understand that some parents are

       reluctant to have their child labeled.

   Theme 3: Eligibility guidelines allow some students to fall between the cracks.

      Provide more educational support to students who do not meet the eligibility

       criteria for special education or 504 services.

    Theme 4: Developing Individualized Educational Plans (IEPs) that effectively meet
student needs requires adequate time and the participation of all parties. Full
participation by all stakeholders in the Individualized Educational Plan process is
important.

      Provide training to all parties about the purpose and requirements of the IEP;

       write the IEP as a team instead of prior to the meeting; include short-term,

       attainable goals; focus on individual strengths (not just weaknesses); take enough

       time to do the IEP process well.




                                                64
      Make it easier for parents to participate in IEPs; hold IEP meetings during hours

       when parents are not working; enable parents to participate in meetings from

       work via conference calls.

      Make it easier for regular educators to participate for the entire meeting, rather

       than moving in and out of the meetings. Provide substitute teachers to cover

       classes during IEP meetings.

      Provide more time for special educators to work with all parties to develop a

       meaningful IEP; provide extra planning periods for special educators and/or

       substitutes when they are pulled out of classes.

      Incorporate information and recommendations from outside experts (e.g.,

       physicians, psychologists) into the IEP when available.

    Theme 5: Many Individualized Educational Plans are not fully implemented due to
lack of time, services, and sharing of information.

      Make sure that all parties have and use the IEP.

      Provide sufficient time for regular and special educators to communicate with

       each other and implement IEPs as written.

      Provide sufficient and equitable resources (e.g., textbooks, supplies, computers) to

       special education classrooms.

      Provide year-round schooling so students can maintain and further their skills.

      Encourage all parties to request meetings as needed to revise IEPs.

   Theme 6: Counties’ shortages of related services professionals affect availability and
provision of services.

      Improve recruitment and retention of qualified psychologists, counselors,

       occupational therapists, physical therapists, and speech therapists. Shortages of



                                            65
       these support personnel are most pronounced in rural and border counties.

       Provide more student internships for pre-service teachers in special education.

      Require graduating therapists to have training in the developmental needs of

       preschoolers.

      Hire more school nurses to meet the ratios required by state law; amend state law

       to specify ratios for students with special needs.

      Provide support and incentives for teachers to become certified in special

       education and/or obtain multiple certifications.

      Look at characteristics besides seniority to recruit, establish, and maintain

       qualified teaching staff.

      Require special education substitutes to have training in special education.

   Theme 7: Assistive technology has great potential but is often underutilized.

      Provide training and technical assistance to teachers and therapists on assistive

       technology; one good model is a county technical assistance team.

      Provide opportunities for students, parents, and teachers to try out devices prior to

       purchasing them.

      Overcome liability issues that prevent some students from taking their devices

       home.

       Question: How can efforts to include students with disabilities in regular

education be improved?

    Theme 8: Inclusion is often viewed as beneficial to students with and without
disabilities.

      Provide diversity and disability awareness training to regular education students

       and regular education teachers.


                                            66
      Start early with inclusion in preschool and primary grades.

      Reinforce that placement in a regular classroom is to be considered first.

      Provide more self-contained and alternative programs for students who have

       serious difficulties learning in the regular classroom and for whom inclusion has

       not been successful.

   Theme 9: Modifications are widely used to support students with disabilities in
regular classrooms.

      Provide training and technical assistance to special and regular educators on

       making modifications.

      Whenever possible, incorporate modifications that benefit all students and do not

       single out special education students (e.g., giving all students their spelling words

       for the next week on Friday, so they can practice at home over the weekend).

      Make all schools accessible to people with physical disabilities.

   Theme 10: Special education students are not always viewed or treated as full and
equal members of their schools.

      Provide diversity and disability awareness training to regular education students

       and regular education teachers.

      Provide training and expectations that all regular educators will teach students

       with disabilities in their classrooms. In the short term, however, many special

       educators say it‘s important to pick and choose those regular educators that are

       most open to inclusion and dedicated to helping special education students

       succeed. But this can result in a disproportionate number of special education

       students being assigned to those teachers‘ classrooms.




                                            67
   Theme 11: Many students with disabilities are included physically, but do not
participate or feel socially included in regular education settings.

      Increase interactions between students with and without disabilities through

       programs like peer mentoring.

      Provide integrated after-school programs for socialization and tutoring.

      Allow differential grade requirements that enable students with disabilities to

       participate in extracurricular sports.

    Theme 12: Placement in regular education classrooms varies according to the
student’s disability type. Students with learning disabilities are more likely to be
included in regular classrooms and students with severe intellectual impairments and
those with behavioral disorders are least likely to be included.

      Allow all students to attend their home schools, regardless of their disabilities.

      Provide more training and technical assistance in positive behavioral supports for

       special and regular educators.

      Hire inclusion specialists to help more severely disabled students succeed in the

       regular classroom.

   Theme 13: The degree and quality of inclusion is highly influenced by local attitudes
and leadership.

      Provide training to administrators and educators on the value of inclusion and

       practical strategies for implementing it.

    Theme 14: Educators need time and support to work together on implementing
inclusion successfully.

      Provide more time for regular and special educators to communicate and plan for

       their students through extra planning periods, common planning periods, and/or

       the use of substitute teachers.




                                                68
      Use team teaching in which a regular and a special educator share responsibility

       for all students in the classroom.

      Reduce class size so that regular educators have more time to support special

       education students in their classrooms.

      Hire additional special education teachers to provide sufficient support to special

       education students in regular classrooms.

      Utilize aides, volunteers, and peers when appropriate to support students with

       disabilities, but not in situations where the expertise of teachers is needed.

   Theme 15: Regular education teachers need more training in disabilities and special
education.

      Provide better pre-service instruction on disabilities, special education, and

       inclusion for regular education majors; make teacher preparation programs five

       years long and require ALL teachers to be certified to teach students with mild

       disabilities.

      Provide better in-service and continuing education opportunities focused on

       disabilities, special education, and inclusion for regular educators.

      Provide training and support to teachers on meeting their students health-related

       needs (e.g., blood sugar monitoring). Offer or require training for teachers in first

       aid and CPR.

   Theme 16: Extensive paperwork takes time away from teaching.

      Reduce paperwork requirements to those that are essential and meaningful.

      Provide aides and/or clerical support to allow special educators to spend more

       time with their students and less time with paperwork.




                                             69
      Computerize IEPs as has been done in RESA VI; Provide laptops to special

       educators.

       Question: How can efforts to involve parents in the education of students
with disabilities be improved?

    Theme 17: Students whose parents get involved in their education are morel likely to
get services they need.

      Adopt practices that welcome and support parent involvement.

      Assure that the needs of students who don‘t have involved parents are equally

       addressed.

    Theme 18: Like most parents, the parents of special education students are more
involved during elementary school than during middle and high school years.

      Adopt practices that welcome and support parent involvement.

   Theme 19: School and county practices affect parent involvement.

      Develop local administrative leadership that supports parent involvement.

      Provide and require all educators to receive training in family-centered practice

       and support and how to implement those activities.

      Provide flexible times when working parents can visit the school and meet with

       teachers; offer multiple means for communication (e.g., notes, phone calls)

      Support parents in helping their children learn at home (e.g., a preschool teacher

       sends home books and cassette tapes for parents to use with their children).

      Establish a special education council in every county mandating that a majority of

       members should be parents and youth in special education.

      To enhance parent involvement, require parents who receive welfare to attend

       parenting classes at their children‘s school.




                                            70
      When parents are divorced, make sure both are informed and have access to their

       children‘s records.

   Theme 20: Information is not readily accessible to many parents.

      Provide information to parents in understandable language and multiple formats

       (brochures, workshops, a statewide information clearinghouse, the Internet, one-

       on-one advice) about their rights and responsibilities in special education; many

       interviewees say that written information is not enough.

      Encourage parent networking; many parents say that much of what they learned

       about the special education system and its operation they learned from one

       another.

      Make sure that parents know about their Parent Educator Resource Center and

       other supportive resources.

   Theme 21: The special education process is intimidating to many parents.

      Focus on student assets, not just deficits; be sensitive to the fact that parents and

       students spend a lot of time hearing about what the students cannot do.

      Create a welcoming, non-hierarchical meeting environment (e.g., meet at a round

       table; take time and don‘t be rushed).

      Provide support people to parents to help them understand and negotiate services

       for their children and resolve disputes.

   Theme 22: Most disagreements are resolved without resorting to due process
hearings.

      From the start, encourage all parties to work together as a team in the student‘s

       best interest, so they are able to successfully resolve differences; ensure that all




                                             71
       parties understand special education requirements and that parents understand

       their rights.

       Question: How can transitions into, through, and out of public schools be

improved?

    Theme 23: Interagency collaboration is key to identifying and transitioning young
children.

      Encourage strong local collaboration to identify and serve young children with

       special needs among pediatricians, public health departments, Birth-to-Three

       programs, Head Start, behavioral health centers, and home visiting programs;

       publicize successful collaborative models such as Operation Tadpole.

      Provide needed intensive services early on because it‘s more effective and saves

       money in the long run.

      Encourage timely referrals (90 days in advance) of three-year-olds transitioning

       into public school programs.

      Amend state law to include immunization requirements for three-and four-year-

       olds entering public school programs.

   Theme 24: Transitions with young children should be developmentally appropriate.

      Transition children from preschool handicapped classes to a pre-K program prior

       to transitioning them to kindergarten, so they have a little extra developmental

       time.

      Make developmentally appropriate kindergarten mandatory for all 4-year-olds.




                                            72
   Theme 25: Advance visits and meetings improve transitions into middle and high
schools.

      Have middle school teachers come to elementary schools to meet and talk with

       students who will be transitioning.

      Schedule visits during the spring or summer for students to become familiar with

       their new school.

      Offer home visits by teachers when students are transitioning.

      In addition to the regular orientation, provide a pre-orientation meeting to the new

       school for students with disabilities and their parents.

    Theme 26: Transition planning begins by age 14 for most students with disabilities,
but the quality of the experience varies.

      Use a meaningful process (e.g., personal futures planning, mapping) for transition

       planning that involves the student, parents, teachers, and others who are

       concerned about that student.

      Employ transition coordinators to facilitate the process; have a transition class

       during the final semester (in addition to earlier efforts).

      Engage adult service providers (e.g., Division of Vocational Rehabilitation,

       behavioral health centers, and other community agencies) in planning and

       arranging for services after high school.

      Hire a state-level transition coordinator to provide training, resources, and

       consultation to county programs.

   Theme 27: Some students leave high school without the vocational and life skills they
need.

      Reduce certain academic requirements (especially math) to enable more special

       education students to graduate with a regular diploma; allow more vocational and


                                             73
       life skills instruction to count toward graduation requirements; allow students to

       attend voc-tech schools prior to their junior year, especially if they‘re the age of

       high school juniors.

      Expand community-based school-to-work programs that help prepare students for

       employment.

   Theme 28: Programs and services appropriate for adults are scarce in many
counties.

      Expand the availability of community programs for adults with disabilities,

       especially in the areas of supported and competitive employment and

       transportation.


Comments and Recommendations

      Several people raised questions about how representative the focus groups were

       of parents and teachers in general. They were also concerned that the scheduling

       of the focus groups during the day prevented some working parents from

       attending.

      Several people expressed concern about the scheduling of the public hearings on

       the night of high school graduations in the Fairmont area. They also expressed

       concern about the short length of time between the receipt of the meeting notice

       and the meeting date. They thought participation in the public hearings would

       have been larger if the dates had been different and there had been more lead time

       between the invitation and the event.

      A number of people expressed interest in reading the report on the focus groups

       and forums.



                                             74

						
Related docs