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FEBRUARY, 2008

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FEBRUARY, 2008 Powered By Docstoc
					  Hearing Loss Association of
    Delaware, Inc. (HLADE)
                   MONTHLY NEWSLETTER
                      February 2008
  “We give help and hope to people with hearing loss”


  HEARING LOSS ASSOCIATION OF DELAWARE, (HLADE) 2400 West 4 th
    Street, WILMINGTON, DE 19805 (302) 292-3066 (Voice/Relay) Email:
              hlade@comcast.net Web address: www.hlade.org

HLA of Delaware (HLADE), is affiliated with the Hearing Loss Association of
 America, the largest organization in the world for people who are deaf, hard of
hearing or late-deafened. HLADE is an information, education, support and self-
                    help non-profit 501 (3) ( c) organization.

 Note: EDITORS DEADLINE DATE FOR NEWSLETTER INFORMATION IS The
       LAST DAY OF PREVIOUS MONTH FOR FOLLOWING MONTH’S
                          NEWSLETTER.




Volume 6, Issue 1, Pages 7
FEBRUARY, 2008

     IN THIS ISSUE………..

Page 2 – Linda’s Sound Off!
Page 3 – Mark Your Calendar!


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Page 3 -   Upcoming Events for Adults and Parents of Deaf/Hard of Hearing Kids
Page 5 -   Ask the Expert & Cool Websites!
Page 6 -   Technology Corner!
Page 7-    News You Can Use!
Page 8 -   Personal Notes
Page 9 -   Cartoon Corner!!

Linda’s Sound Off!

DEAR MEMBERS AND FRIENDS OF HLADE-

January- a fresh start and new dreams for a New Year and time for new initiatives
for HLADE! There are many issues facing Delawareans with hearing loss and
HLADE members are already at work trying to bring about better services for
children and adults with hearing loss in Delaware!

First on our agenda is working to get CAPTEL telephone relay service in Delaware.
This technology works faster than the traditional TTY and uses voice recognition
software. You only need one party to have a CAPTEL device to carry on a
conversation. We have made some good progress this year working with the
Telecommunications Relay Service Board and via HLADE Board Member, Julia
Sullivan’s advocacy. We are waiting for further negotiations at the state and service
provider level to occur. If no agreement is reached by the end of February, we will
submit a bill to the legislature for CAPTEL service and funding.

Our second agenda item is passage of a Hearing Aid Insurance Bill. House
Representative Gerald Brady will sponsor the Hearing Aid Insurance, Cochlear
Implant and Assistive Listening Device bill this legislative session for insurers to
help pay for hearing aids. Stay tuned for updates on these subjects and more!

Our third new project, is website restructuring. Nick Fina, our “HLADE tech ace”
and HLADE Vice President is making our website more user friendly for everyone!
So if you have any ideas for our website, please let HLADE know! By the way, a new
marketing strategy will be “rolled out” to increase involvement and membership in
HLADE. Our dream then, is to reach every person with a hearing loss in Delaware,
so if you want to help, let us know! After all, our vision is not about the “dreamers”
– it is about the “dream” of helping every person with hearing loss that needs it.

So what are your dreams for 2008? We hope that it includes joining HLADE and
working together to fulfill the HLADE dream!

Yours in advocacy,
Linda
Linda Heller, M.A.C.C.C.A.
President




                                                                                       2
UPCOMING HLADE EVENTS-MARK YOUR CALENDAR!

      February 5 th, Tuesday, 6:30pm,Dover Support Group, Kent General
       Hospital, 6TH Floor (Betty Martin, Support Group Leader).
      February 9 th, Saturday, 10am-12pm, New Castle County Coffee Chat,
       Panera’s, Kirkwood Highway.
      February 23rd, Saturday, “Girl’s Day Out,” King of Prussia Mall, Meet at
       Hollywood Grille, Concord Pike @ 10am. RSVP to hlade@comcast.net.
      March 15th, Saturday, HLADE Seminar, Open to the Public, 10am-12pm,
       Speaker: Matt Denn, Esq., Insurance Commissioner of Delaware, “Hearing
       Aid, Cochlear Implant and Assistive Listening Device Legislation,” Location:
       Agilent Technologies, Centreville Rd and Lancaster Pike, Wilmington. Rep.
       Gerry Brady has also been invited to attend. You will receive a press release
       soon! Bring a friend and anyone who supports this bill! Captioning will be
       provided!

UPCOMING COMMUNITY EVENTS/TRAININGS OF INTEREST!

     February 7 th, 3:00pm
Audience Consumers - Adults,Consumers - Children, Professionals -
Audiology, Professionals - Education and Therapy
Event Type Webclass
Title Music: It’s more than meets the ear! 12pm PST
Description This course will discuss the use of active listening as a
way to enhance music appreciation in teen and adult cochlear implant
users. Music perception through the hearing ear, as well as the implant,
will be presented. Helpful tips to maximize the listening experience
through the implant will be discussed. Professionals as well as adult CI
recipients will benefit from the useful suggestions and activities.
Presenter: Chris Barton, M.M., MT-BC, Central Canal Creative Arts
Therapies CEUs offered: AAA, ASHA, IHS Content Level: Intermediate
Start Date Feb 7, 2008
Times 12pm PST / 3pm EST
End Date Feb 7, 2008
Location Online ; class will be captioned!
Website
http://www.audiologyonline.com/ceus/livecoursedetails.asp?class_id=10089

Contact cluckoski@advancedbionics.com




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Brandywine Special Needs PTA, Topic: IDEA and Section 504,
                       Wed, Feb 13th
                       6:30-8:30pm
                      Mt. Pleasant Elementary
                        Wilmington, DE



               Learn the procedural safeguards included in the Individuals with
               Disabilities Education Act (IDEA) and Section 504 of the
               Americans with Disabilities Act.

               Talk to a private attorney who has gone through due process and
               learn from his experiences. Learn skills to successfully advocate
               for a child. Mr. Weiner's law practice is dedicated to representing
               children and adolescents diagnosed with ADD/ADHD, Aspergers,
               Autism, learning disabilities and more. He provides advocacy and
               legal services for obtaining independent educational evaluations
               (IEE), developing Individualized Education Programs (IEP),
               litigating due process hearings and appeals. Services also include
               litigating and negotiating accommodations in high stakes testing
               (e.g. SAT, LSAT, GMAT, MCAT, etc.).

               Ms. Fran Fletcher directs the University of Delaware's Special
               Education Amicable Resolution Center (SPARC), which was
               created in 1997 to comply with IDEA regulations. SPARC offers
               mediation services when parents are in conflict with other
               members of the IEP team, IEP facilitation, and a variety of
               special education trainings for parents, mentors, advocates, and
               educators.

               Upcoming Events

               Brandywine Special Needs PTA Meetings
               IEP Changes Coming Next Year: What You Need to Know
               Wednesday, April 16th, 6:30pm - Harlan Elementary
               Brian Touchette, Education Associate, Alternate Assessment,
               IEPs from the Delaware Dept of Education

               14th Annual Inclusion Conference
               Thursday, May 8th, 8:00am-3:15pm, Dover Sheraton Hotel
               Richard A. Villa, Ph.D., keynote speaker
               Topics include:

                      Accessible Instructional Materials for Students with Print
                       Disabilities
                      Sharing Books with ALL Children Ages Birth-to-Five
                      Response to Intervention
                      Positive Behavior Support

                  FOR FURTHER INFORMATION ON THE BRANDYWINE




                                                                                    4
                         SPECIAL NEEDS PTA FOR SPECIAL NEEDS CHILDREN, GO TO:

                                   email: president@bsnpta.org
                                   web: http://www.bsnpta.org



Parent Information Center of Delaware Announces Parent
Training
All you need to do is call in by pho ne!

 THESE AUDIO CONFERENCES ARE BACK BY POPULAR DEMAND - in the
AFTERNOON! RTI. THIS AUDIO CONFERENCE IS NEW! Learn about this new
tool for helping your child envision his/her future and achieve their goals. This year, the
Dept. of Education introduced the Student Success Plan (SSP). It is a new program that
will help students explore interests, develop long-range career plans, and give them the
support they need during high school to achieve their goals. ALL students will have
Student Success Plans! The SSP is offered in a user-friendly, web based format and
parents can access it, too. Learn about this tool and how you can help your child plan for
a path to success.

Wed, Feb 6, 12:00noon - 1:00pm
Important RTI Audio Conference
Response to Intervention-Presenter: Regina Greenwald, Education Associate, School to
Work Transition/DE Dept. of Education. Participation is easy. You simply need to
have access to a phone. Once registered, you will receive dial-in instructions. For
more information contact: Kathryn Herel (302) 999-7394 ksherel@picofdel.org

More upcoming events:

Thu, Feb 7, 6pm - 7:30pm
Is My Child Eligible for Special Education Services?

Thu, Feb 7, 6pm - 7pm
What Parents Should Know About Discipline Regulations In Schools

Tue, Feb 12, 6:30pm - 7:30pm
Mediation Again!

Tue, Feb 12, 5pm - 6:30pm
Is My Child Eligible for Special Education Services?

Wed, Feb 13, 5pm - 6pm




                                                                                          5
Advocate or Adversary ?

Tue, Feb 19, 5pm - 6:30pm
Is My Child Eligible for Special Education Services?

Tue, Feb 19, 6:30pm - 7:30pm
New! Student Success Plans (SSPs)
New - SSP Audio Conference

Tue, Feb 26, 5:30pm - 6:30pm
What Can You Do If Your Child Is Not Succeeding in School ?

Wed, Feb 27, 7:30pm - 8:30pm
Print Disabilities Again!

ASK THE EXPERT
A recent caller to HLADE asked-
Question:
“ I am 85 and just bought one in-the-ear hearing aid for my poorer ear, but all it seems to
do is amplify everything and even water running sounds loud and I still can not
understand my grandchildren. Is the hearing aid the right one for me?”
Answer: The average person waits 7 years to get a hearing aid and so usually your
hearing gets worse a little every year. As your hearing gets worse, background noise- like
running water, gradually disappears. Also, wearing a hearing aid in both ears will help
you understand speech and separate speech from noise. Often when a person gets older,
they have presbycusis or difficulty understanding/processing words. This problem can
also make it harder to get used to a hearing aid. Anytime someone gets a new hearing aid,
it is a partnership between the person with a hearing loss and the hearing aid dispenser.
Sometimes a number of visits must be made to adjust the hearing aid and the new hearing
aid wearer should go back as often as needed during the trial period. If he/she is not
comfortable about purchasing the new aid, they should ask for their money back if they
are not satisfied. The person with a hearing loss should continue to ask the dispenser to
adjust the hearing aid, especially during the federally mandated 30 day trial period. The
Hearing Loss Association of America, actually encourages a 60 day trial period as one
month is usually not enough time for some people to get adjusted to the hearing aid and
know if it will work for them. Sometimes people need additional counseling, training,
support groups like HLADE’s, and communication classes as well. Talk to your hearing
aid specialist or ear doctor to find out what is best in your situation. (Answer by Linda
Heller, audiologist)


COOL WEBSITES TO CHECK OUT!

International Center for Disability Resources: http://www.icdri.org



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New Pregnancy education DVD for deaf women available in sign language:
http://www.signsforintelligence.com/pregnancy/

National Women’s Health Week website: Please visit www.womenshealth.gov/whw.

TECHNOLOGY CORNER




                          Starkey’s new Destiny 1600 hearing aid with integrated real-ear
measurement, first introduced in April 2006, is the fastest-growing product line in the
hearing aid industry. It has other advanced features as well, including Active Feedback
Intercept (AFI), which uses a digital algorithm to provide resistance to feedback. "For
pediatrics," T. Yanz, Starkey product researcher says, "anytime you can eliminate
oscillation, you increase the ability to hear higher frequencies, which is very important."
The Destiny 1600 also has "directional speed detection" for switching between
omnidirectional and directional reception, and "acoustic signature," a set of
environmental detection algorithms that, Yanz says, "improve comfort level in a noisy
world."

Phonak, has also generated excitement about the Naida hearing instruments. With "Sound
Recover," a Phonak proprietary algorithm first seen in Naida, users can hear speech,
birdsongs, telephones, and other high-frequency sounds "like never before," according to
Christine Jones, Manager, Wireless Technology, who adds, "Clinical results have shown
dramatic improvements in speech understanding and production in just a few weeks of
Sound Recover use." Additionally, field studies show high user acceptance and rapid
acclimatization. The CORE technology at the heart of Naida provides users with high-
fidelity, stereo, and wireless connectivity. Communication Optimized Real-audio Engine
(CORE) is also the basis for enhanced directionality, automatic functions, and wireless
programming. MP3, Bluetooth, FM, and many other devices are easily accessed. This
instrument comes in an "unexpectedly small" water-resistant casing. For more
information go to: www.hearingproducts.com.

NEWS YOU CAN USE!

“Getting the best from your hearing aid,”- a great article discussing how you can get
the most help from a hearing aid. Website:
http://www.rnid.org.uk/information_resources/hearing_aids/getting_best_from_hea
ring_aid/

NEWS FROM HLAA NATIONAL!




                                                                                          7
This was Brenda Battat’s (Acting Executive Director, Hearing Loss Association of
America) January 31, 2008 response to a recent hearing aid article in the Wall
Street Journal (WSJ). Check out the link! LInk to WSJ article and our response@

http://online.wsj.com/article/SB120156046709123567.html?mod=hpp_us_personal_
Dear Melinda:

More than 80% of The Hearing Loss Association of America's members are hearing aid
users and I know many of them have been stimulated to respond to your article in the Wall
Street Journal on trying the latest technology hearing aid.

You, like many baby boomers, are starting to have difficulty hearing in certain situations.
Early hearing loss often is not seen as pressing enough to persevere with hearing aids
and get used to the high frequency sounds that we haven't heard for a while and will never
hear again without amplification. The reluctance to stick with the hearing aid is not hard to
understand given the high cost of the top end devices. And yet high frequency hearing
loss is more than likely progressive and so the sooner we adjust to using hearing aids the
better.

It actually takes a long time to get used to using hearing aids and return visits to the
hearing health care professional for fitting adjustments is a very important part of
successful hearing aid use and satisfaction. HLAA recommends and pushes for at least a
sixty day trial period as we know adjustment can take that long and sometimes even
longer.

As for using hearing aids with phones there are some basic things people need to know
when shopping for a hearing aid and or a phone. Cell phones are tested according to a
standard and rated M3 or M4 (the higher the number the better the performance) to
indicate hearing aid compatibility. For telecoil users the rating is T3 or T4. Hearing aids
also have certain immunity levels to interference and you should purchase one with at
least an M2 rating. There are also hearing aid compatible cordless phones, just check the
label.

These ratings are relatively new and are the result of collaboration between the wireless
and cordless phone industry, hearing aid manufacturers and consumer groups led by the
Hearing Loss Association of America.

When you decide to try a hearing aid again give it longer and be sure to check the
immunity of the hearing aid and that the phone is hearing aid compatible.

Good luck!

Brenda Battat
Acting Executive Director
Hearing Loss Association of America

Personals

Ed Minch, member Shelley Minch’s husband recently retired and Ed and Shelley are building a
new home that will be designed to be acoustically and environmentally friendly! Rumor has it
Shelley’s house will be so acoustically perfect that she will now hear Ed tiptoeing to the
refrigerator!



                                                                                              8
Linda Heller, M.A. and Peggy Mack, APN, presented a research paper in Washington, D.C. in
December at the National Association of Prevention Teaching and Research Annual Conference.
The paper was entitled, “An Evidenced-Based Senior Acquatic Fall Prevention Model,” on behalf
of Delaware’s Emergency Management System and Injury Prevention Program. The research
was selected for presentation from over 1000 competitive entries.

Welcome New member Joe Martucci to HLADE. Joe is recently retired college professor with
many talents and will be a great addition to HLADE! Joe will become the Editor-in-Chief of our
HLADE newsletter! Thanks Joe for volunteering to do this important job!

Linda Heller spoke to the Delaware Academy of Medicine, New Castle County Otolaryngologists
in January, 2008 at Harry’s Savoy Grille at the invitation of Dr. Jay Luft, Chair. The “docs” had
some great questions and appreciated the work HLADE does in the community. New
partnerships were formed! If you need a powerpoint presentation to give to a community group,
contact HLADE as we have one ready made!

Thank you to Nancy Colley, RN for donating hearing aids for a low-income person to HLADE!

Thank you to Ameriphone, Inc for donating a new Clarity XL50 amplified phone to HLADE! For
more Ameriphone products, go to www.ameriphone.com.

By the way, folks, you can download HLADE’s membership form online and go to our national
association’s website link on our homepage and join national at the same time!

Send us your personal news! Know anyone with a cochlear implant? Have them contact HLADE
so we can have a group meeting of CI wearers!

Next Month’s Issue-Watch for more on the Hearing Loss Association of America’s
2008 National Conference in Reno, Nevada June 12-15th this summer! Plan your
vacation around this exciting event!




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