CLAPA Contacts in the South West Frequently asked questions……. South West Parent Contacts If you’ve ever How did Who’s a had a ‘silly you friendly question’ that cope? – Karin Crozier 01275 836 421 face I can any tips? Karen has a son, born 2001 with a you didn’t talk to? unilateral cleft lip and palate. really feel comfortable Caroline Minns 01884 252 336 asking the Where Caroline is an adult born with a cleft lip. What did cleft team… did you say to you people in Natalie Rigg 0117 924 5445 park? Tescos? Natalie has a son, born 1999 with a …If you’ve ever simply wanted unilateral cleft lip and palate. to chat to someone else who has a child with a cleft, or who Esther Rookes 01822 853 862 was born with a cleft Esther has a son, born 1993 with a themselves… unilateral cleft lip and palate. What did you What did …if you’ve ever wanted to tell your your baby meet up with other people other look like CLAPA Branches in the South West who will know what you are children afterwards? talking about… CLAPA Bristol and West Karin Crozier, 01275 836 421 Then why not get in touch with CLAPA Somerset a CLAPA Parent Contact or a Jocelyn Cross, 01823 421 489 CLAPA Branch We are here to help you CLAPA Torbay Please contact us Tina Campbell, 01803 814 334 Charity No. 277842 CLAPA has been around for the past 25 years. The NHS service in the South West: It is a charity that was first set up in 1979 by a CLAPA works closely with NHS staff around the Useful websites: group of parents of children born with clefts region to ensure that families have appropriate help, support and information about their care. and health professionals involved in their www.clapa.com treatment. This group recognised how helpful The South West Cleft Team has specialists it could be for families of children born with throughout the region. The service is part of the clefts to be in touch with each other, to South Wales/South West Managed Clinical www.northbristol.nhs.uk/depts/Surgical provide support to each other, and sometimes Network. Services/cleft just to be around when nothing was particularly ‘wrong’, but when it would be nice The Managed Clinical Network Board, organises and coordinates the delivery of an integrated cleft CLAPA is active in the South West through to simply be in touch. lip and/or palate service with two lead centres the branches and parent contacts. CLAPA Branches are groups of parents and based on the main sites of Morriston Hospital, Swansea and Frenchay Hospital, Bristol. You don’t have to join a branch to get health professionals in different areas. Some have coffee mornings, giving families a Core Members of the South West Cleft Team are involved, but you would be very welcome. chance to meet up, and have parties or other based in the South West Cleft Unit at Frenchay social events at different times of the year. Hospital in Bristol: - Each branch has it’s own programme of • Mrs Liz Albery, Lead Speech & Language activities, social events and fund-raising Parent Contacts are not only parents of children with clefts, or were born with clefts Therapist and Clinical Director projects. themselves, but have also been through a • Ms Julia Cadogan, Lead Clinic training course focusing on active listening. Psychologist Parent contacts are sometimes branch They are not professional counsellors, but are members or may not be involved in a branch. well able to provide a listening ear. • Mr Iain Hathorn, Lead Consultant Orthodontist For information about events or branches in Call one of the numbers on the back of this • Mrs Cathy Marsh, Specialist Cleft Nurse your area, ring the numbers on this leaflet, or leaflet if you would like to be in touch with a contact CLAPA head office if you’re not sure Branch and/or a Parent Contact. • Mr Tom Cobley, Consultant Plastic Surgeon (Primary Surgery) which branch to contact. Their volunteer co- ordinator, Ruth Buchanan, would be very • Mr Nigel Mercer, Consultant Plastic pleased to hear from you. Surgeon (Primary Surgeon) • Mr Peter Revington, Consultant Oral & Maxillofacial Surgeon (Secondary Surgery) Head Office: • Mr Richard Willerton, Cleft Manager CLAPA There are outlying clinics throughout the region, with a lead orthodontist specializing in working with 1st Floor, Green Man Tower cleft lip and palate. They work with speech and 332 Goswell Road language therapists, nurses and psychologists LONDON EC1V 7LG locally who have a special interest in cleft lip and palate. Tel: 020 7833 4883 The Frenchay Hospital website provides details of local NHS staff involved in care in your area.