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					                       Coalition News
Surrey Coalition of Disabled People Issue 15
                 JULY 2009
          Astolat, Coniers Way, Guildford, Surrey, GU4 7HL
         Phone & Minicom 01483 456558 Fax 01483 456561
                  Email info@surreycoalition.org.uk


         ANNA VISITS OLYMPIC SITE
Last month Anna Sartori (Vice-Chair of Surrey Coalition) represented
disabled people in Surrey at a special visit by Surrey dignitaries to see
the Olympic Site in Newham.
Anna described it as „fantastic‟,


     NEWS FROM OTHER USER-LED
             GROUPS
                     UPDATE FROM SILC
Surrey Independent Living Council have been very busy, helping more
and more people now receiving Direct Payments, and providing
brokerage for people on Self Directed Support. More information is
available in their most recent newsletter „Liberty Link‟. Contact SILC for
a copy. Tel: 01483 458111 or email: richard@surreyilc.org.uk
New initiatives include:
A new website offering online services.
PA Finder Online Scheme, backed up with training sessions User
Support Groups - where disabled people can discuss common issues
and share experiences of managing their Direct Payments.
Developing a new strategy for the future. This is being done by NCVO
(National Council of Voluntary Sector Organisations) who asked
Surrey Coalition to arrange a Focus Group so people who have not yet
received a service from SILC could be asked what services and
support they would like to receive from a User-led organisation in
future.
Those who attended the Focus Group in May are pictured here hard at
work giving their views.

SURREY ACCESS FORUM
Surrey Access Forum was created six months ago to bring together the
User-Led Groups which are working to improve access to the
environment, buildings and highways across Surrey. The Forum meets
quarterly and includes representatives of the Borough Access Groups,
the Partnership Boards, Surrey Coalition and SID, supported by County
and Borough Officers
Surrey Access Forum has now gone live with its new Website:
www.surreyaccessforum.org.uk
To begin with, this mainly links up all the Groups and relevant websites,
but Surrey Access Forum have plans to make the website more
interactive to gather people‟s views and concerns - for campaigning
purposes.

NEW ADVOCACY SERVICE IN NORTH SURREY
We are delighted to report that NW Surrey Association of Disabled
People (NWSADP) has won a new contract to extend their information
and advocacy services to people with physical and sensory impairments
living in Runnymede and Spelthorne.

NWSADP is a user-led organisation and member of Surrey Coalition,
and will start to provide the service from 1 st July 2009. Building on the
services they already provide for people in Woking and Surrey Heath,
the new advocacy worker, together with an outreach worker from WIDE
(the information service based in Woking) will work from a base in
Spelthorne Borough Council. The advocate will also develop services
into St. Peter‟s Hospital to reach people with newly acquired
impairments.

For further information contact clive@nwsadp.org.uk or Telephone:
01483 750973
         WHAT COALITION MEMBERS
          HAVE BEEN INVOLVED IN
A ‘THANKYOU LUNCH’ WITH NHS SURREY
Several Coalition members were invited to join other patients, carers and
service users at a lunch hosted by NHS Surrey to thank the many people
who have contributed as volunteers to the work of the PCT. NHS Surrey
Chair Douglas Robertson thanked everyone for their contributions which
ranged from being Expert Patient Tutors and being active members of
Programme Boards to being patient representatives in the Quality and
Outcomes Framework (QOF) processes which review GP Practices.
Some of our members and Expert Patient tutors.


WORKING TO IMPROVE ADULT SOCIAL CARE
Coalition Chair Cliff Bush has met several times with Sarah Mitchell,
Surrey‟s new Director of Adult Social Care, since she started in April, to
raise with her the many concerns that service users have about Social
Care Services. Sarah recognises there is much to do, and we are
already working, with Action for Carers, and members of Sarah‟s staff, on
a number of new projects to tackle some of the priorities. These include:
Mapping advocacy services in Surrey so gaps are identified, and
hopefully filled, so everyone has access to these vital services. A project
to ensure universal access to information on social care by everyone in
Surrey and not just those meeting the Council‟s eligibility criteria. This
will link the many current information sources including SID and SCC‟s
Contact Centre to ensure everyone has rapid access to reliable, relevant
and personalised information. Working on procedures to ensure service
users and carers are involved from the start in the commissioning and
procurement of services. We are also pleased to see increasing
recognition of the importance of public bodies supporting the
development of User-Led organisations, groups and services - as set out
again in recent guidance from Government to Local Authorities under
„Putting People First‟.

         WHAT COALITION MEMBERS
          HAVE BEEN INVOLVED IN
WORKING TOWARDS DISABILITY EQUALITY
A group of members continue to meet every three months with the
Equality Leads from Surrey PCT and Surrey County Council to monitor
implementation of their Equality Schemes and Action Plans, and to take
new steps to achieve greater disability equality for people in Surrey.
Some of the actions taken recently include:
Promoting the Guidelines produced by Guide Dogs UK to improve care
for visually impaired people in GP surgeries Using the RNID guidance
on hearing loops to bid for funds so Surrey PCT can provide these in all
their premises. Starting a programme of access visits to NHS Surrey
premises including health centres and community hospitals - working
with local Access Groups through Surrey Access Forum. Starting a new
programme of involvement in Equality Impact Assessment work with
Surrey County Council. Commenting on Surrey Community Health
Services‟ User Satisfaction Surrey Protocol.

 TELECARE CONFERENCE
On 8th June several of our members attended the third Annual Telecare
Conference which was organised by Surrey County Council in
partnership with NHS Surrey.            Amongst the speakers was a
representative from Swindon PCT who described the Telecare model
which has been successfully operating there. In the afternoon delegates
attended workshops to discuss the uses of Telecare, for example, in
dementia care, and for people with neurological conditions and with
learning difficulties. We heard exactly how Telecare products could
make life easier for people with learning difficulties.

TRAVELLING IN SURREY
In May, two representatives from the Coalition attended the first meeting
of a Travel Forum for people with learning difficulties where all aspects
concerning travel around the County were discussed. These included
the concerns raised and problems experienced by people using
transport, travel associated risks and assessment and travel training
and accreditation. If you have a learning difficulty and would like to be
involved in future, please contact Alison in the Coalition office.


SAFEGUARDING ADULTS WEEK
Safeguarding Adults Week Launch
This important week of activities across Surrey to raise awareness of
Safeguarding was launched on Monday, 15th June with a Conference
attended by over 100 people. Ten members of Surrey Coalition were
there (as pictured below) to help demonstrate the importance of
safeguarding policies and procedures and actions to prevent the abuse
of vulnerable people. The day went brilliantly and included music and
drama from Lockwood Day Centre clients and an interactive session
with apprentices from the Orpheus Centre. They joined in with
choruses of songs led by Richard Stilgoe and even did one in sign
language! The event was a launch pad for the new Safeguarding DVD
“Because you said something”. If you have an event or organisation
that you belong to where you would like to show the DVD to raise
awareness of the need to stop abuse, please contact Alison in the
Coalition office. DVD‟s will not be available for approximately one
month.

Safeguarding Adults Quiz
The winner of the quiz enclosed with the May Issue of Coalition News
was Mrs Vera Richmond. Congratulations Vera, a voucher will be on its
way to you shortly and a big thank you to all of you who took the trouble
to enter.
Safeguarding Newsletter
The Summer Issue of Safeguarding Adults Board Newsletter was also
published, and includes in its “Service User Corner” a letter from one of
the Coalition‟s Board Directors, Patricia Robertson (who is also our
representative on the Safeguarding Adults Board). Another of our Board
Directors, Michelle Chinery, published a letter in the „Service User
Corner‟ in the Spring Newsletter.

EMPOWERMENT CONFERENCE 2009
The Empowerment Partnership Boards for people with physical, sensory
and cognitive impairments held another very successful Conference on
17th June at Dorking Halls. This year‟s theme was „Employment‟ and
delegates heard from a number of speakers on how disabled people can
be supported into work (paid and voluntary). These included:
A Welcome from Sarah Mitchell, the new Director of Adult Social Care,
who invited disabled people to work with her to develop an employment
strategy over the next three years
 Manuela Solera-Deuchar from the Department of Work and Pensions
 on government policy and the support people should expect from
 JobCentre Plus
 Henry Woodhall from Surrey Supported Employment on the services
 available to help people into employment. Contact the helpline: 0845
 650 2638
 Speakers from organisations providing the Government funded
 „Pathways to Work‟ Scheme
 Maria Zealey from Surrey Welfare Rights Unit giving advice on how
 benefits are affected by work.
After lunch, we heard from 3 excellent speakers giving their own
experiences of finding and keeping employment, as a disabled person.
Our special thanks to James Chilton, Lucy Jaques and Clive Wood.

The event was chaired quite brilliantly by Ken Reissland on behalf of the
5 Partnership Board Chairs, and more detailed feedback will be provided
soon.
If you couldn‟t attend, but would like an Information Pack, please contact
Yasmin on 01483517294 or email: yasmin.broome@surreycc.gov.uk

             SURREY NEWS IN BRIEF
UPDATES FROM THE LEARNING DISABILITY
PARTNERSHIP BOARD IN SURREY
Recent updates on what the Partnership Board have been doing are
available from the Coalition office - for those of our members who have
learning difficulties.
The Bulletins - for March, April and May - cover a wide range of issues,
including all the new schemes being funded from the Learning Disability
Development Fund this year. We are pleased to see funds going to
support 6 new Self Advocacy Groups in West Surrey, and we are
pressing the County Council to fund more user-led groups like these
across Surrey.
VOLUNTEER IN SURREY
The Councils for Voluntary Services in Surrey have been working hard to
promote the benefits of being a volunteer - during the recent
Volunteer Week. For disabled people, work done as a volunteer is an
important stepping stone into employment, or a valuable end in itself.
Hundreds of Coalition members work as volunteers in a range of many
different ways.

WELCOME TO JANE
We are delighted to welcome Jane Thornton as Action for Carers
Surrey new Chief Executive. Jane was formally appointed in May,
having provided interim cover on a part time basis over the previous six
months.
Jane and Carol (from the Coalition) are already working together in many
ways to strengthen the combined voices of users and carers. They are
pictured here running a joint stand at Surrey LINK‟s AGM on 7 th May,
publicising all the work the two organisations have done together to lead
on Social Care issues in Surrey LINK.

OPPORTUNITIES TO GET INVOLVED
EQUALITY 2025
SOUTH EAST CONFERENCE
Join disabled people from across the South East Region at this special
Conference on Thursday 9 th July 2009 at the De Vere Grand Harbour
Hotel, in Southampton. This is being organised by Nick Danagher our
Equality 2025 Representative and a Board Director of Surrey Coalition.
Please contact us in the Coalition Office if you would like to go and give
your views to Government on the issues affecting your lives. Telephone:
01483 456558 or email: alison.white@surreycoalition.org.uk

OPEN MEETING OF THE SURREY
LEARNING DISABILITY PARTNERSHIP BOARD
A special event for people with learning difficulties, their carers and
everyone else who is interested, is being held by the Partnership Board
on Thursday, 16th July 2009 from 10 am to 2 pm at Dorking Halls
Come along and find out about:
What Valuing People Now means, Health, GPs and Action Planning,
Work and Volunteering, Self Directed Support and Advocacy, Day
Services and Travel
Drop in at any time between 10am and 2pm to find out more
Short presentations from 10.30 to 1pm then stay for lunch
Let people know if you are going, Telephone: Suzy or Mary on 01483
517953 or Email: learningdisabilities@surreycc.gov.uk

CONSULTATION ON AUTISM STRATEGY
The Department of Health has started a public Consultation on a future
Strategy for people with autistic spectrum conditions. The purpose of the
Consultation is to seek views on what actions, in which areas, can
deliver the greatest change for the largest number of adults with ASC.
Surrey Coalition has several members with experience of autistic
spectrum conditions and we would like to hold a Focus Group to get your
views and to reply to the questions the Government are asking. Please
contact us in the Coalition office if you would like to be involved - 01483
456558 or Email: carol.pearson@surreycoalition.org.uk. To obtain a
copy of the Consultation go to www.dh.gov.uk/en/Consultations

GIVE YOUR VIEWS ON MENTAL
HEALTH SERVICES
 There are many ways in which people who have experienced local
 mental health services can say what they think and help make services
 better. These include: being a member of the Surrey LINK Mental
 Health Group attending meetings of FOCUS (Forum of Carers and
               ,

 people who Use Services - run by Surrey and Borders Partnership
 Foundation NHS Trust)
 However, we know it can be difficult for people to give their views at big
 meetings, so we want to find out how we can help you give your views
 in other ways.
 Michael Sellors, our Independent User Involvement Facilitator with
 Together is running an informal get together with members of Surrey
 Coalition to discuss with you how we can help you have your say. This
 is being held on Wednesday, 15th July, from 1pm to 3pm at Park
 House, Leatherhead with a sandwich lunch
 Please encourage people with experience of using local mental health
 services to come and talk in a safe environment.
 Contact Michael Sellors : Tel: 07739506601
 Email: michael-sellors@together-uk.org

BEYOND BOUNDARIES LIVE 2009
The UK‟s leading lifestyle event for disabled people is being held this
year at Farnborough FIVE, on Saturday 4th July and Sunday, 5th July
from 10am to 5pm. Contact us in the Coalition Office for reduced price
tickets (£5 instead of £8) or book online at www.bblive.co.uk, quoting
reference number SCI, to get your discount. Beyond Boundaries aims to
give people an inclusive experience of new physical, cultural and
creative activities within an inspirational environment.

NHS SURREY NEWS
NHS SURREY LAUNCH ALCOHOL STRATEGY
2009 - 2012
Following the Drink Debate in which many members participated last
year, the new Surrey Alcohol Strategy has been produced in partnership
with all agencies. Top of the priorities for action is to reduce „Hazardous
Drinking‟ because 1 in 6 people in Surrey are „hazardous drinkers‟, many
more than the national average.
NHS Surrey‟s Director of Public Health says that their plans are to
ensure people only drink safely and sensibly, by understanding the
long-term health risks and how much is safe to drink. The daily limits
are:-
Men should not regularly drink more than 3 to 4 units a day, and Women
should not regularly drink more than 2 to 3 units per day
For a copy of the Surrey Alcohol Strategy.
Visit: www.surreyhealth.nhs.uk or email:
penny.mcgrigor@surreypct.nhs.uk


KIDNEY UNIT PLANS MOVE AHEAD
NHS Surrey has welcomed a national report which highlights how
important it is for kidney patients to be able to get to services easily. The
National Kidney Care Audit “Patient Transport Survey Report” is based
on responses from 12,000 patients at existing kidney units across the
country and covers issues such as travel times, transport systems and
their impact on patients‟ lives.
Many kidney patients need dialysis three times a week and as dialysis
can take between three and four hours, keeping travel times to a
minimum is very important.
Plans for a new kidney inpatient unit in Surrey were part of a
county-wide consultation which ended on 29 May and will provide
another option for patients needing dialysis.

EXPERT PATIENT PROGRAMME                                     COURSE
STARTS IN GODALMING 20 JULY
A new Expert Patients Programme course commences in Godalming at
the Baptist Church in Queen Street on 20 July. This course can help
anyone with a long term health condition. The course will take place
every Monday 1.30 – 4pm for 6 weeks, finishing on 24 August. Do not
forget that the course is free and includes a free course handbook.
Participants learn new skills to manage their conditions better on a daily
basis. They work at their own pace with the support of others who are
facing similar problems. If you would like to join please call 01372
201709A
ssuring Commissioning

ALL ABOARD THE CHOICE BUS!
From 16 to 19 June a „Choice bus‟ travelled across Surrey to raise
awareness about people‟s right to choose where they are treated.
Choice of care and treatment is a fundamental pledge set out in the NHS
Constitution published earlier in the year. It means that patients now have
even more say in their healthcare and an even greater say in where they
are treated.
Stephen Pollard, Choice lead at NHS Surrey explains: “In the past if a
GP referred a patient to a hospital specialist they were told where to go
and when, but this has changed. Now, if a patient needs to be referred to
a specialist, they can choose to be treated by any hospital
organisation that meets NHS standards. Despite this, a recent survey of
Surrey patients found that only half of those asked were aware they could
choose where they wanted to be treated.”
Hundreds of people visited the bus in Woking, Redhill, Camberley,
Guildford and Farnham during the week.
STOP PRESS - NAO SURVEY ON STROKE
The National Audit office wants people with stroke (and their carers) to
take part in a survey. For more information or if you have any questions
about the survey, please contact Louise Oatham of PatientView on 01547
520965 or email info@patient-view.com

NATIONAL NEWS IN BRIEF
UPDATE ON EQUALITY 2025
Equality 2025 is a group of 21 disabled people employed by Government
to advise them on how equality for disabled people can be achieved by
2025.
They have developed a Work Plan for 2009/10 based on the views given
by disabled people from all over the country, and have agreed the plan
with many Government Departments including the Office for Disability
Issues, the Department of Work and Pensions and the Home Office.
The eight Key strands in the Work Plan are:-
                Implementation of the UN Convention
                Employment
                Independent Living
                Statistics and Data (note Census in 2010)
                Hate crime
                UK borders and Asylum
                Equalities Bill
                Engagement with disabled people
Contact our Equality 2025 representative Nick Danagher for more
information - nick@equality2025.org
See information on the South East Regional Conference on 9 th July -
come and give your views.

RIGHT TO CONTROL
The Department of Work and Pensions (DWP) have launched an
important Consultation on proposals to “shake up the way that disabled
people can use the funding they receive from the State”. This is part of
the Government‟s Welfare Reforms and seeks to enshrine in legislation
the principle that disabled people are the expert in their own lives and
have the right to choice and control over their support. Disabled people
and their organisations are being asked to take part in this initiative and
help shape the way “Right to Control” works.
Surrey Coalition will hold an engagement event to get your views so we
can contribute to this Consultation, which closes at the end of September
2009. Please let us know if you are interested in taking part.
For more information go to www.odi.gov.uk/right-to-control or
contact us in the Coalition Office.

OTHER INFORMATION ON DISABILITY ISSUES
We receive Newsletters from many national organisations giving updates
on disability issues. Recent Issues have been received from:
Disability Lib  -   to     register     for    their     monthly   Update,
email:contact@disabilitylib.org.uk
The Wheelife - have launched a                new      Newsletter providing
information,   products,  services            for      wheelchair    users.
Visit www.thewheelife.com
The National Information Forum - working for the inclusion of
disabled people by encouraging the promotion of better information
Email: ann.darnbrough@btinternet.com
“Our Rights” - published by Disability Awareness in Action
Visit www/daa.org.uk to download a copy.
Contact us in the Coalition Office if you want a paper copy of any of
these Newsletters


UPDATE FROM THE ODI

News from the Office for Disability Issues is available through their
ODInsight Newsletter or on their Website. Give your views by emailing:
office-for-disability-issues@dwp.gsi.gov.uk.
Latest news includes:
The appointment of a new Director for ODI - Tim Cooper. Tim has
worked and volunteered on disability issues for 28 years, and is himself
profoundly deaf.
Government ratified the UK Convention on the Rights of Disabled People
on 8th June 2009, and the ODI will now be coordinating across
Government and working with disabled people and their organisations
on implementing the Convention. ODI have launched a new and even
more accessible Website at www.odi.gov.uk

ACTION AGAINST SHARED SURFACES
John Welsman is pictured here with Sorrel, protesting outside City Hall in
London against plans for major investment in a shared surface scheme in
Kensington. Coalition member John, now works for Guide Dogs and was
interviewed by the BBC to explain why open shared streets without kerbs
and pavements make it so difficult for blind people to know where to walk
safely and avoid traffic. Locally in Surrey we continue to challenge
similar „shared surface‟ schemes.

CARE QUALITY COMMISSION
CQC came into being in April this year as the new Independent
Regulator of health and adult social care services in England, whether
they are provided by the NHS, local authorities, private companies or
voluntary organisations. They are there to make sure people get better
care by
Driving improvement across health and social care
Putting people first and championing their rights
They are committed to involving people in all they do, and want your
views. Find out more by visiting the website:- www.cqc.org.uk

HUMAN RIGHTS INQUIRY LAUNCHED
Carol Pearson represented Surrey Coalition at the Launch in
Westminster on 15th June of the Human Rights Inquiry undertaken by the
new Equality and Human Rights Commission.
The Inquiry Report provides a baseline assessment of the state of
human rights in the UK; shares good practice and sets out what should
happen next to make changes.
To find out more or obtain a copy of the Human Rights Inquiry report, visit
www.equalityhumanrights.com or telephone the Helpline: 0845
6046610 or email: info@equalityhumanrights.com (Information
available in range of formats).
The Coalition Board will be discussing the Inquiry Report at their July
meeting and considering how best to use the Human Rights Act to
challenge public bodies to improve services for disabled people.
DATES FOR YOUR DIARY
BEYOND BOUNDARIES LIVE 2009
4th and 5th July
Farnborough FIVE
10.00am to 5pm Only £5

FREEWHEELERS THEATRE COMPANY
Evening of Dance and Film on Wednesday, 15th July, 7.30pm at Epsom
College - bring a group along
Will be performing a play by Rachel Bennett at    Leatherhead Theatre
on Thursday, 22nd October
To find out more or buy their DVD, visit www.freewheelerstheatre.co.uk
or contact us in the Coalition Office

SAVI AND RNIB
invite visually impaired people to a TASTER DAY
on Thursday 6th August from 10.30 to 3pm at RNIB College in Redhill
Come along and find out about the RNIB Community Living Service
and test out some of the activities, which include Fitness, ICT, Music
and Cooking Contact: Katherine Bacon at SAVI for more information
Telephone: 01372 377701

EQUALITY 2025 SOUTH EAST CONFERENCE
Thursday, 9th July
Southampton
See under Heading Equality 2025 for more information

NHS SURREY
CO-DESIGN ON
Commissioning Strategy for Community Services
Wednesday 8th July
10 - 3 pm, HG Wells, Woking
Contact the Coalition Office for more information
GIVE YOUR VIEWS ON MENTAL HEALTH
SERVICES
15TH July
1 - 3 pm (including lunch)
Park House, Leatherhead

				
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