Aspects of respiratory care in neuromuscular disorders_ by malj


                                           Dalnair Street,
                                               G3 8SJ
                                         Tel: 0141 201 0704

9th Annual Meeting, Western Infirmary Lecture Theatre (off Dumbarton Rd), Glasgow.
                          Thursday 11th September 2008

   1. Aspects of respiratory care in neuromuscular disorders:

“Overview of modern respiratory care in neuromuscular conditions, particularly dealing with transition”
Dr Anita K Simonds, Consultant in Respiratory Medicine, Sleep & Ventilation Unit, Royal Brompton & Harefield
NHS Trust, Sydney St, London, SW3 6AP

“Travel & the neuromuscular patient”
Dr Steve Banham, Consultant Respiratory Physician, Gartnavel General Hospital, Glasgow

Lunchtime Workshop on Cough assist techniques (sign up for this via registration form)
Mrs Betty Forrest, Home Ventilation Support Sister, Western General Hospital, Crewe Rd, Edinburgh, EH4 2XU

   2. Spinal surgery/ post-operative management

“Unravelling the neuromuscular spine-a spine surgeon’s view”
Mr Christopher I Adams, Consultant Spinal Surgeon, Scottish National Paediatric Spine Deformity Service,
Royal Hospital for Sick Children, Sciennes Road, Edinburgh, EH9 1LF

“Occupational Therapy support in the Post (spinal surgery)-operative period”
Ms Lynne Rule, Senior Occupational Therapist, Armitstead Child Development Centre
94 Monifieth Road, Broughty Ferry, Dundee, DD5 2SJ

   3. Ion channel disorders and their management

Dr Sameer Zuberi, Consultant Paediatric Neurologist, Yorkhill, Glasgow, G3 8SJ
Dr Robert McWilliam, Consultant Paediatric Neurologist, Yorkhill, Glasgow, G3 8SJ

   4. Myotonic Dystrophy

“Update on current research following 6th International Myotonic Dystrophy Consortium meeting “
Professor Darren Monckton, Professor of Human Genetics, Division of Molecular Genetics
Institute of Biomedical and Life Sciences, University of Glasgow, Anderson College Building, 56 Dumbarton
Road, Glasgow G11 6NU

“Feedback from Myotonic Dystrophy type 1 management guidelines workshop”
Dr Cheryl Longman, Consultant Geneticist, Ferguson-Smith Centre for Clinical Genetics, Yorkhill, Glasgow, G3

   5. Carer experiences

Two short presentations will be made

   6. Paediatric Standards of Care guideline update & the way forward for the Scottish Muscle Network

   7. Dr Karen Naismith, Consultant Paediatrician (with an interest in Neurodisability, Armitstead CDC, 94
      Monifieth Rd, Broughty Ferry, Tayside. Current Lead Clinician Scottish Muscle Network

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