� Volume 2, Issue 3� Fall 2008 Network News The Ofﬁcial Newsletter of Abilities Network Project ACT • Healthy Families • Support Services • Community & Employment Partners • Epilepsy Services • Autism Services Walkabout Abilities 2nd Annual Time Out for Monday Night Football TouchdownDeck Designs, American Ofﬁce,Network! for Abilities and Systems, Scores a Zoo in Baltimore for Bottling Group, Advance Business Comcast. Lafarge, Creative Everyone enjoyed sun and fun while raising awareness of all dis- abilities on May 31, 2008 at The Maryland Walkabout Abilities, presented by Alex Cooper Auctioneers. Thank you to: On October 13th, 2008 the 2nd annual Time Out for Monday Night Hope to see you at the 2009 Walkabout Abilities! Our Corporate Sponsors Nearly 480 participants came out to help support Abilities Football scored a touchdown with the amount of money and awareness Touchdown Sponsors: Campbell & Company, Kim West Field Goal Spon- Network and raised over $106,000! raised for Abilities Network! With the attendance of over 400 people and sors: The Dyer Kroneberger Group, Play Centers, Inc., Miles & Stock- Thegenerous donations received, the event raised a little over $30,000, the walk began with breakfast provided by The Fresh Market bridge, Kelly & Associates Insurance Group, Wilmington Trust, The Pillas which will directly support the services Abilities Network provides! the and beverages provided by Pepsi. Brick Bodies kicked off Family, MedStar Health, Venable, LLP., Merritt Properties, LLC, VIP Bar walk with Foundation, Thanks to a grant from The Harry and Jeanette Weinberg a warm-up, Sponsor: Richard J. Pricinsky & Associates, Inc., Lobby Bar Sponsor: FBW/ and of$60,000! this money will be matched creating a grand totalSteve Davis from Royal Bank of Canada Registration Table Sponsor: Blue & Obrecht Realty WBAL emceed the morning activities. Abilities Network Executive Director, Lee Kingham, Walkabout Abilities Co-Chair Brian Cooper, and Miss Maryland, Shana Powell, cut the ribbon to get Abilities Network board member, Time Out committee member Quinn Sypniewski, Chris Chester and Haloti Haloti Ngata participating Dan Wilcox participating in Quinn Sypniewski Diana Pillas, with started and her the walkers Dina Moyerinto the zoo! Sainz posing with the Pablo Ngata all participating in the Q&A panel in the Q&A panel the Q&A panel posing with Katie son Evan Moyer Ravens cheerleaders hosted by Keith Mills from WBAL and Stash Marchman in the The "family friendly" walk strolled through exhibits including the 98 Rock! from Studio Grill Room The evening began with a VIP tailgating party for Families, friends, rhinos, giraffes, and even the chimp house. our Corporate Game Arena Sponsor: RSM McGladrey, Inc. Silent Auction Sonsor: Fedder Sponsors, which rounded back up at the Boat Lake Pavilion to and co-workerswas followed by our main event. Several Ravens players & Garten Rookie Sponsors: Next Day Medical, The Harris Family, Gorfine came to show their support by face painting, a moon bounce, gather together and enjoyparticipating in a Q&A panel emceed by & Schiller, Dr. James Rubenstein, M.D., The Ready Family Keith Mills of an exciting magic show provided by Jay Silverman. games, and WBAL and Stash from 98 Rock. Dan Wilcox, Haloti Ngata, Our Media Sponsors Quinn Sypniewski, Chris Chester, and Samari Rolle were played live Senioritis, a trio of seniors from St. Paul’s school,some of the WBAL, 98 Rock, and Patuxent Publishing players and Sprockit the the cause. music, that came to support Robot wowed the crowd with facts about epilepsy, autism, and other disabilities. Special Thanks to: The Q&A panel led into an exciting live auction, featuring items such as Grazie’s Fine Food & Wine, Ironclad, Great Moments, Haloti & Christina a Hearts teams and individual by Smyth Jewelers, and a 1983 World The topon Fire necklace, donated fundraisers received medals that Ngata, Naylor Wine Cellars/Mr. & Mrs. Naylor, Tim & Suzanne Schau- morning. Top Team was Carson’s Crew, Team Noah 2008 took Champion Baltimore Orioles team signed bat. To add to the excitement, man, Geneva Farms, Alex Cooper Auctioneers, Willow Springs Golf 2nd, and Cooper’s Crew was awarded 3rd place. The top fundrais- a Baltimore’s own Ravens cheerleaders sold raffle tickets for guests to win Course, Mitchell’s Golf Complex, Black & Decker, Rams Head Live!, James signed Ravens jersey and football!by Brian Cooper in 2 , and Paul er was Pablo Sainz, followed nd Rubenstein, M.D., Under Armour, Diana Pillas, Crystal Palace Soccer Trinkoff in 3rd. Epilepsy Services took home the group traveling Team/Pete Medd, Tom James Custom Tailors, Aldo’s, San Sushi, Balti- trophy weren’t seen enjoying the If guestsfor the 2 year in a row. delicious food or unlimited video nd more Symphony Orchestra, Travel Advantage Network, Direct TV, Donna game selection, they could be seen bidding on the exclusive silent Shriver Photography, Photos by greg n/Greg Nickey, The Baltimore Thanks to all of our in-kind donors and volunteers for that day auction items in the Studio Grill which was also where 98 Rock’s Opera, Chef’s Expressions, Janice Barbour, Smyth Jewelers, Charm City including The Fresh Market, Pepsi, Steve Davis, Brick Bodies, Irresponsible Radio with Theo aired live! Theo and the rest of the crew in- Cupcakes, Dr. Greg Bergey, 100 West Hair Studio, About Faces, Joe Shana Powell, Jay Silverman, members of the Abilities Network teracted with the guests and created a lot of excitement at the event. Rumenap, Giuseppe’s, That’s Dancing, The Senator Theatre, American staff, the 2008 Walkabout Abilities committee, and everyone Visionary Art Museum, Jon Howland, Ron Ohringer, ESPN Zone, who Out 2008 was a great success, to it could not Time participated and/or donatedbut the event. have been done Courthouse Copy, and Baltimore Magazine. without thanks to the Presenting Sponsor, Alex our Time Special the contribution of many dedicated people including Cooper Thank you to Jackie Sainz for doing all of the photography for the event! Out Committee and co-chairs, Mike and Gerry Harris andWilmington Auctioneers, and our additional sponsors, including; Paul Trinkoff. Trust, thanks go the Ravens players who came out Laboratories, Special Richard J.toPricinsky & Associates, Abbottto support Time Out. Thank you to everyone who contributed to the live and silent auctions and all of the volunteers who donated their time and efforts Grants Update to the event. We hope to see everyone next year as we once again take Abilities Network would like to highlight and acknowledge several grants Time Out to support Abilities Network! that have recently been awarded in support of enhancing the lives of the INSIDE THIS ISSUE individuals and families we serve. 1. The United Way Community Partnership of Baltimore County, which is a part of the United Way of Central Maryland, awarded a grant in the amount InsIde ThIs Issue of $5,000 to support our Healthy Families Baltimore County Program. School is in Session.............................................................2 2. Healthy Families Baltimore County also received grant support in the amount of $2,500 from the M&T Charitable Foundation. Developing an Effective Bedtime Routine ..........................2 3. Our upcoming October 2008 Epilepsy Medical Symposium has been H.O.P.E................................................................................3 awarded grant contributions from the following funders: Children’s Books on Epilepsy..............................................3 Pfizer, Inc. - $10,000 Summer Education Series..................................................4 Shire Pharmaceutical - $1,000 “The Woodnutt”...................................................................4 UCB Pharma, Inc. - $5,000 Ortho-McNeil Janssen Scientific Affairs - $9,996 Third Party Fundraising Update.......................................5 Valeant Pharmaceutical - $2,000 Save the Date ......................................................................5 LifeBridge Health, Brain & Spine Institute, Sinai Hospital - $1,500 An Easy Way to Give...........................................................5 THANK YOU FOR YOUR SUPPORT! School DayS School is in Session! Developing an Effective Tr y This Fun Activity By: Tiffany Noël Hiob, LCPC Bedtime Routine By: Ann DeComo Director of Autism Services Healthy Families Family Support and Assessment Worker Creating an Egg Carton School Bus is a fun and simple activity to do with your class, or with your own child, at the start of the new school year. It is important to provide the necessary supervision and guid- ance to assist in making this an enjoyable and creative experience. • Cut off the top lid of a cardboard egg carton and let the child color or paint it yellow. Everyone knows how important it is to get a good night’s sleep in • Let the child cut or tear two circles out of black construction paper order to do well the next day. This does not only apply to adults and glue this on the bottom of the egg carton for wheels (glue but also to children attending school. It is very important for them sticks work great). to be well rested in order to do their best. Having a bedtime rou- • Let the child try to write “SCHOOL BUS” along the top of the egg tine can help parents ensure that their children are ready for the carton (provide hand-over-hand assistance as needed for writing). challenges of learning. Here are some proven tips to assist in • Let the child cut out small pictures from magazines or photos, or developing a bedtime routine: let them draw people onto construction paper. Paste images into the holes in the center of the egg carton. • Have the same routine every night. This allows the child’s brain to tell their body that they are preparing to go to sleep. • Turn off the TV at least 45 minutes before you start the bedtime routine. • Talk to your child about the bedtime routine (what will happen This activity, along with other back to school crafts, and when it will happen). Tell them what they should do if they may be found at www.dltk-kids.com wake up during the night. Children are sometimes nervous about the first day of school. It is • Have your child participate in making choices such as selecting not uncommon for children to take two to three months to adjust which book to read and which stuffed animal they want to sleep to school routines. It is helpful to keep ongoing communication with with. your child and his/her teachers, reviewing school routines, sched- ules, rules, and expectations. Some of the best ways to facilitate • Turn off the light, but have a night light if your child is afraid of communication with teachers is by email, setting up a time to meet the dark. periodically or even logging daily or weekly notes into a communica- tion journal. For parents, volunteering is an excellent way to become • When you have completed the routine and your child is cuddled more familiar with the children, teachers, and school activities. in bed, do not entertain any additional requests (i.e. giving them It is important to have conversations with children about going to something to drink, etc.). If they get up, take their hand and school, riding the bus, etc. This not only helps children adjust to lead them back to bed. Do not make eye contact! Simply say going to school but it builds important language and literacy skills. some thing like, “It’s time for bed” and leave the room. Do not Based on a plethora of research, it is certain that children learn read another story, get water or give additional hugs and kisses. literacy skills through consistent language-rich opportunities. When children interact with teachers and parents in “conversation stretch- ing” activities, these opportunities build language and literacy skills. Remember routine, routine, routine! Essentially, these meaningful conversations that take place daily with children assist them with being better readers and writers. For example, instead of asking, “What color is the school bus?” ask a child, “Tell me some things you do on the school bus?” Open-ended questions and statements require children to answer with their own knowledge and feelings rather than responding with a quick, one word remark. Questions starting with “how” or “why” encourage a full and meaningful discussion. School days can provide wonderful opportunities for fun activities and learning! The important thing to remember is to do activities with your class, or child, which are enjoyable and incorporate literacy and language opportunities! November is EpliEpSy awarEnESS Month H.O.P.E By: Mary Wontrop, Education Coordinator Imagine living life as an active teenager; attending school, partici- Epilepsy Services is offering a mentoring program. The Epilepsy Founda- pating in sports and extracurricular activities, and hanging out with tion’s H.O.P.E. (Helping Other People with Epilepsy) Program provides friends. One day you are informed that you have been diagnosed trained speakers, who are directly or indirectly affected by epilepsy, with epilepsy (seizure disorder). This quote was taken from a 17 for community presentations about this complex and diverse medical year old: condition. “Growing up, I had the best of friends, and the best of girl friends, too. H.O.P.E. presentations For a long time it seemed my life was perfect. For example, in sports I • Present facts about epilepsy including causes, diagnosis, was always one of the best athletes, no matter what the sport (except soc- treatment, and seizure first aid cer). I was always able to quickly make friends... But when I developed • Offer shared personal experience and discuss the impact of seizures a couple years ago, it seemed like I lost everything. “ epilepsy on education, employment, safety, and coping with emotions Or, imagine being the parent of a beautiful baby. You are enjoying • Serve as a valuable resource for the epilepsy patient, family, all of the pleasures of watching them develop and grow when the and caregiver unexpected happens: • Provide information to find community resources and learn good self-management habits “We are parents of a precious little girl. One day in August, all of our hopes and dreams changed suddenly. What was once important to us was These presentations can be tailored to different audiences. Groups no longer of great significance. Our little 4 month old girl was sleeping that can benefit from a H.O.P.E. presentation include: churches, civic so peacefully in her crib while daddy was at work, and her 3 year –old organizations, corporations or any other interested community group. brother and I watched a circus on television. I heard something from her Other people that would benefit from a H.O.P.E. presentation are newly crib, turned on the light, and saw that our little baby was stiff, and then diagnosed epilepsy patients, their families, and loved ones. she began jerking and salivating heavily. She was blue in the face and was not breathing. “ If you are interested in becoming a H.O.P.E. mentor, or would like to schedule a presentation, please contact Mary Wontrop at 410-828- Epilepsy offers many struggles and challenges for the 50,000 Mary- 7700 or email@example.com. landers living with the disorder. In order to help these individuals deal with the difficulties of seizure disorder, Abilities Network, (Quotes are from the book The Brainstorms Family, Steven C. Schachter, M.D., Georgia D. Montouris, M.D., and John M. Pellock, M.D., page 36 and page 117) Children’s Books on Epilepsy May we suggest the following children’s books for your library: Becky the Brave: A Story About Epilepsy by Laurie Lears Nothing seems to scare Sarah’s big sister Becky, until having an epileptic seizure makes her reluctant to return to school, and so Sarah summons her own courage to explain the disease to the other students. Pre-school Dotty the Dalmatian has Epilepsy by Tim Peters - A delightful illustrated story for young children. Dotty the Dalmatian discovers she has epilepsy. At first she feels embarrassed and afraid, but she learns to accept and control her seizures and goes back to her important job of helping the firefighters save lives. A large colorful poster accompanies the book. ages 2-6 The Rabbit with Epilepsy by Deborah M. Moss - Read your child this delightful story about the young rabbit with epilepsy. It tells how Lee and her family cope with the challenges of epilepsy, beginning with Lee’s first seizure and initial visit to the doctor, through her diagnosis and treatment. Use it to explain epilepsy to your child with epilepsy, as well as to brothers, sisters, and friends. ages 3-6 Taking Seizure Disorders to School : A Story About Epilepsy by Kim Gosselin This story dispels the myths and fears surrounding epilepsy in a positive, upbeat and entertaining style while explaining seizures in an understandable fashion. ages 9-12 Epilepsy on Our Terms: Stories by Children with Seizures and Their Parents (The Brainstorms Series) by Georgia D. Montouris and John M. Pellock This enlightening book presents the firsthand personal accounts of children with seizure disorders and their parents. In their own words, these children and parents vividly describe the experiences of handling the crisis of the initial seizure, adjusting to the diagnosis of epilepsy, coping with seizures, managing medications and side effects, and dealing with health care providers, teachers, schoolmates, siblings, and friends. For all ages WHAT AN EVENT! The summer educaTIon serIes By: Laurie Moran, M.Ed., Director of Project ACT Abilities Network’s Project ACT and the Family Empowerment Network held an exciting and informative two-part education series event for families, teachers, and early childhood professionals. Both of these events were free for all, and onsite childcare and dinner were provided. The event was held in the Training Institute at the Abilities Network Towson Office. Although the panel discussion was the big event for both nights, people who attended this event had the opportunity to network, visit vendors, collect resource information at the vendor tables, and participate in raffles. Through a generous grant from Maryland State Department of Education (MSDE), Project ACT is training childcare professionals on School Readiness and offering community events that promote inclusion and school readiness opportunities. As a result of this grant, Project ACT has formed a collaborative partner- ship with Baltimore County Public Library! The library brought their Read Rover bus for all to enjoy the first Sammy Larrimore, age 15 months, enjoying childcare night. Teachers, providers, parents and children toured the bus and saw this “library on wheels” first hand. at the Summer Education Series event! Parents were able to get a library card application for their child. On August 6th, parents and early childhood teachers were invited to come to this event and learn about School Readiness. It was a wonderful opportunity for participants to ask questions and listen to the distinguished panel of experts. On August 13th, the panel discussion topic was on Child Care, Early Intervention and Special Education Services. Teachers, child care providers, and parents had the opportunity to listen to experts in the field and to ask a variety of questions related to this topic. For some of the families that attended it was an ideal opportunity to hear from other parents who had similar questions related to inclusion, special education and the IEP / IFSP process and to receive helpful information. After this event, many of the panelists met with families to answer more specific questions and to offer additional resources. Overall, both nights were a huge success and many of the participants requested that more of these Inside Read Rover and the Librarian Steve Janowski education series events be held quarterly. from the Baltimore County Public Library A Special Thank You! I would like to take this opportunity to thank the following companies for their generous dona- tions for the raffles. A big thank you to Lakeshore Learning Store for donating two $25.00 store gift certificates and to Brookes Publishing Company for donating six books!! Thank you to Port Discov- ery Children’s Museum for their generous dona- tion of a Port Discovery Fun Basket with a Port From left to right, Mary Coster: from PACT, Yvonne Bell: PT Discovery Family Membership included. Also, a Consultant, Carol Marsiglia from The Coordinating Center Yvonne Bell, a vendor and a panelist big thanks to Make -A -Bear-Anywhere for donat- ing two $150.00 gift certificates! We extend our sincere appreciation! “The Woodnutt” variety of carpentry including; fencing, shelving, roofing, siding, and other advanced work. He has a workshop that can rival any professional workspace By: Natasha Lett, Community and Employment Associate Assistant and business cards for his unofficial business, “Woodnutt Woodworks.” It is always an exciting inspiration to work at the Abilities Network. As a Jonathan shared a funny story that once while building the shed, his mother Community and Employment Associate Assistant, I have been fortunate was concerned about him working on the roof. Not only was she concerned enough to work on many successful teams. One such team is that of Jona- that he might fall off, she was worried about his lack of roofing experience. than, aka the “Woodnutt.” Amazingly Jonathan’s middle name is Woodnutt, So, she called in a family friend, who was also a professional roofer, to check which is a family name that I find to be both fitting and ironic. on his work. The roofer confirmed that Jonathan was doing excellent professional grade work, that was very impressive! Jonathan is a quiet man in his 30’s. He is kind, funny, and the most considerate person one could possibly meet. He One day Jonathan hopes to be able to sell his woodcrafts loves to cook, go hiking, and eat at his favorite restaurant. for a living, but until then he is employed at a local home However, he has one main passion in life and that is improvement center. This is an ideal position for Jonathan, woodworking. His interest began while he was watching and he may soon be working in the lumber department, The New Yankee Workshop in his early teens, and he which is very exciting for him. Jonathan has been told many wanted to try to complete the projects he saw on TV. He times that his goals are unachievable, but he has proved taught himself how to work with wood, and his first project them wrong time and time again. He never lets people take was to make Adirondack chairs. In his 20s, Jonathan honed away his motivation to work hard, and he is possibly the his skills by serving as an apprentice at a cabinet makers shop. hardest worker I know. In fact, woodworking has helped Jonathan through some tough times and serves as a stress Along with being a self-taught carpenter, an interesting aspect of Jonathan is reliever in his life. that he was born with Congenital Hydrocephalus. Congenital Hydrocephalus is a build-up of excess fluid found in the brain at birth. Jonathan has never I wish that everyone reading this could spend a day or two with Jonathan, so let this stand in the way of his passion, and is therefore an extremely tal- that he could inspire you as well. In case you don’t get the chance to meet ented carpenter who has completed many professional grade projects. I was him, here are a few valuable lessons I’ve learned from Jonathan. impressed to find that Jonathan is able to learn skills from simply watching a 1) Treat and talk to people how you would like to be treated. project being done on TV. Some of his projects include; the previously men- 2) Work hard until the job is done. tioned Adirondack chairs, a 10x12 foot shed in his backyard, an entertain- 3) Find the bright side of every situation. ment center, and crown moldings in his fathers’ office. He can do a wide 4) You can turn a plain piece of wood into something very beautiful. A Parent’s Third Party Fundraising Update A Parent’s Stor y Stor y We am a like to acknowledge the following individuals, organizations andI I would parent of a child with special needs. Many years ago to the house, we had the boys make their own dinner at my house I am a parent of a child with special needs. Many years ago I to the house, we had the boys make their own dinner at my house we their own dinner at to the house, we had the boys make dinners after Specialmy house I am a parent of a needs. and events to ago Many years worked on the Boardchild with special Abilities Network. OurraiseI companies that have recently coordinated programs Network. Our son worked on the Board of Trustees with Abilities Network. Our son (supervised), we have gone out to dinners after Special Olympic (supervised), we have gone out to dinners after Special Olympic of Trustees with worked on the Board weTrustees with Abilities special needs. son of found out that he had (supervised), have gone out to practice & yesterday we spent the entire day together as there was Olympic was adopted and later we found out that important funds to support Abilities Network. he had special needs. We was adopted and later we found out that he had special needs. We was adopted and later practice & yesterday we spent the entire day together as there was practice & yesterday we spent the entire day together as there was dropped everything else and made our son our main focus. We An Easy Way to Give dropped everything else and made our son our main focus. We everything else and our son our main focus. We We no school. no school. dropped other children and Imade a background in Recreational have no no school. Williamsport, I had a background in Recreational • The 1st annual children and MD Bike Night was held on July 19th, have no other children and I had a background in Recreational have no other just come natural for me had I am sending some pictures from yesterday. However, I have a lot Therapy. It has just come natural for me I am sending some pictures from yesterday. However, I have a lot from I am sending some picturesmore - yesterday. However, I have a lot Therapy. of the proceeds supportingfor me Therapy. It has just and everything the Abilities Network. The event with half It has come natural pos- to provide anything and everything pos- more - as I use the pictures with my son If writing a check to Abilities Network/ Epilepsy Foundationwith my son of the to provide anything and everything pos- Bruce Logan from High- as use the pictures with my son more - as I events. Abilities Network can use the pictures to discussI events. Abilities Network can to provide anything ride”, coordinated by began sible to with a “bike progress to be the sible to help my son progress to be the to discuss now, Abilities Network can difficult right Chesapeake Region; EFCR, is to discuss events. you can still help sup- help my son way to help my son progress to be the sible personLeather, where ridershas been to participate in a poker best Song that he can be. It registered be very proud of Karla as she is doing a best person that he can be. It has been best person that hethealmostIt hasabeen night” in downtown Wil- be very proud of Karla as she is doing a be very proud your place of employment port us. Giving through payroll deduction at of Karla as she is doingto beautiful job with Kenny. She is able to a run. After the ride, can be. group extremely difﬁcult and almost held “bike extremely difﬁcult and almost impossible impossible beautiful job with Kenny. She is able to job with to work hard and beautifulto help. Kenny. She is able is a simple, pain free and effective way encourage Kenny to work hard and extremely difﬁcultbikers enjoyed numerous vendors and the live band and to ﬁnd another parent of a impossible liamsport, where parent of a child with to ﬁnd another parent of a child with encourage Kenny to work hard and encourage Kenny at the same time, to ﬁnd anotherand their child towith special needs and their child to be child make progress while at the same time, while make progress while at the same Jugglehammer! special needs and their child to be special needs our family. I suppose friends with be make progressthat Kenny pay can how Having only $5 or $10 deductedis obvious paycheck each knows time, it from your it is obvious that Kenny knows how friends with our family. I suppose it is obvious that Kenny knows how friends with our family. I suppose because it has been difﬁcult to ﬁnd much she loves him. She is truly dedi- make a big difference in helping us continue tohim. She is truly dedi- provide individualized much she loves him. She is truly dedi- because it has been difﬁcult to ﬁnd it has been difﬁcult to ﬁnd because in the inclusion setting and she loves much to her job! cated to her job! friends in the inclusion setting and friends in the inclusion setting and cated differing disabilities throughout services to adults and children with to her job! cated friends I have such high expectations because I have such high expectations because I have such high expectations because son. Eventually I became my My son and I are no more have found Maryland. Many people look at the deduction asthrilled tothan the cost My son and I are thrilled to have found for my My son and I are thrilled to have found for my son. Eventually I became my for my son. Eventually I became my son’s Activities Director (inviting people Karla, Kenny and his mother. They of a fast food meal, a movie ticket, orKenny and his mother. They a popular magazine. Karla, Kenny and his mother. They son’s Activities Director (inviting people Karla, added so much to our life. have added so much to our life. Director son’s Activitiesrecruiting (inviting people to the house, recruiting volunteers from have added so much to our life. have to the house, recruiting volunteers from to the house,etc.). volunteers from Yesterday, we jogged at the park, went Many employers run payroll deduction campaigns during the fall. went Yesterday, we ate at a restaurant If Yesterday, we jogged at the park, went high schools etc.). high schools high schools etc.). to the library, jogged at the park, (the to the library, ate at a restaurant (the yours does, please consider authorizing an amount to be deducted (the to the library, ate at a restaurant Today I am writing this letter to praise Ms. Karla Mancero who boys used their devices to order meals), went swimming & watched used their devices to order meals), went swimming & watched boys your check devices to order meals), went swimming & watched Today I am writing this letter to praise Ms. Karla Mancero who Today foram writing this letter to Karla and Kenny back in February I praise Ms. Karla Mancero who boys their each payday and designating learning so much from from used We had a full day and the guys areAbilities Network/ EFCR a movie. We had a full day and the guys are learning so much from works for Abilities Network. I saw Karla and Kenny back in February a movie. works for Abilities Network. I saw Karla and Kenny back in February works Abilities Network. I saw at a Special Olympics basketball game and I noticed Kenny using his recipient. Most pledge forms have a are and Kenny is exactly a theother. had a full day and from Kenny learning to saylearning asmovie. WeNathan is learning the guys place for you so much from each other. Nathan is learning from Kenny and Kenny is learning each other. Nathan is at a Special Olympics basketball game and I noticed Kenny using his at a Special Olympics basketball game andII noticed Kennyintroduce using his a wonderful Kenny and each is learning each Nathan. They arelearning frominﬂuence on Kennyother. from you want your augmentative communication device. staffran over to Some of the Abilities Network who whereNathan. They money to go. from Nathan. They are a wonderful inﬂuence on each other. augmentative communication device.Night ran over to introduce device. I volunteered for Bike I ran over to introduce augmentative communicationuses the exact same device. We have from are a wonderful inﬂuence on each other. myself to them as my son also uses the exact same device. We have myself to them as my son also uses the exact same device. We have I want to thank Abilities Network for all you do for the community. them as my son also myself toopportunity to use it with another student who uses a had no opportunity to DEOfest took place student who uses a I want to thank Abilities Network for all you do for the community. If want tono charitable giving campaign where do for thelet us know. I there is thank Abilities Network for all you you work, community. • On Sunday, August 31st,use it with anotherin Fells Point and rose had no opportunity to use it with another student who uses a had no(that is something that I have been begging the school to device (that is something that I have been begging the school to device Sincerely, We will be happy to have our representative contact your employer over $6,000 for the Abilities Network! The event was held to celebrate device (that is something that I have been ﬁrst meeting and it has Sincerely, work on). So much has happened since our begging the school to Sincerely, Cervelloni work life of So much has happened since our passed away in January work on). So much has have individual who ﬁrst we have beenitover the on). Matt DeOrsey, an happened since our ﬁrst meeting and has Mrs. Amy Cervelloni aboutAmy possibility of doing one. Mrs. Amy Cervelloni Mrs. theof a child with special needs) meeting and has all been wonderful! We have met Kenny’s mom, we have beenitover all been wonderful! mal seizure. The event was chairedhave been over We have met Kenny’s mom, we by Pete Medd, (mother of a child with special needs) all been wonderful! We 2008 from a grand met Kenny’s mom, (mother of a child with special needs) (mother along with many family and friends of Matt DeOrsey that contributed Thank you for your support of the Abilities Network/ EFCR! to making the event a great success! Welcome New Board Welcome New Board • We would like to thank Ed Miller and all of the American Legion posts 2007-2008 Board of Directors 2007-2008 Board of Directors 2007-2008 Board of Directors 2008-2009 of Directors Members across Maryland for coordinating the Chicken Challenge every year Past President - David R. Paulson Past President - David R. Paulson Members and donating the proceeds to the Abilities Network/ Epilepsy Foun- President David R. Paulson Past President -- Mark V. Dyer President - Mark V. Dyer - Mark V. Dyer President Matthew T. Murnane dation of the Chesapeake Region. Vice President - Matthew T. Murnane Vice President - Matthew T. Murnane - Vice President Kim West, Pharm.D. Secretary - Kim West, Pharm.D. Secretary - Kim West, Pharm.D. Secretary - - Chris McBride kl Thank you all for your support! Treasurer - Chris McBride Treasurer - Chris McBride kl kl Treasurer Eric Kossoff, M.D., Chair, MD. PAB Eric Kossoff, M.D., Chair, MD. PAB Eric Kossoff, M.D., Chair, MD. PAB Darius Went West J. Patrick Collins Gregory K. Bergey, M.D. Gregory K. Cooper M.D. Gregory K. Bergey, M.D. J.Brian Bergey, J. Patrick Collins Written by: Niki Biggs, Program Director in Harford County J. Patrick Collins Louise J. Corwin Patrick Collins Louise J. Corwin Louise J. Corwin Joan Conry, M.D. Louise J. Corwin Joan Conry, M.D. Joan Conry, M.D. This film had the audience laughing one minute and crying the Mona Criswell Joan Conry, M.D. Mona Criswell next. On August 7th, Abilities Network partnered with the Arc of Mona Davis Mona Criswell Tom Criswell Tom Davis Tom Davis S. William Feiss the Northern Chesapeake Region, the Arc of Baltimore, the Harford S. Tom Davis S. William Feiss William Feiss John M. Freeman, M.D. JohnS. William Feiss County Commission on Disabilities, and Service Coordination to John M. Freeman, M.D. M. Freeman, M.D. Michael S. Harris John M. Freeman, M.D. Michael S. Harris Michael S. Harris present two screenings of Darius Goes West. The screening was held Edna Kane-Williams Michael S. Harris Edna Kane-Williams at Patterson Mill Middle-High School in Bel Air, MD. EdnaW. Kossoff, M.D. Edna Kane-Williams Eric H. W. Kossoff, M.D. Kane-Williams Eric H. W. Kossoff, M.D. Eric H.Krumholz, M.D. Allan W. Kossoff, M.D. Eric H. Krumholz, M.D. Allan Krumholz, M.D. Allan Krumholz, M.D. Darius Goes West is a multi-award-winning documentary about a Michael W. Lochte, CPA Allan David Lipinski 15 year old man, named Darius Weems, who has Duchenne Muscu- David K. Miller Clement Lipinski David Michael W. Lipinski CPA Michael W. Lochte, CPA Paul F.W. Lochte, III MichaelF. Obrecht, IIICPA Lochte, lar Dystrophy. Duchenne Muscular Dystrophy (DMD) is an inherited Paul F. Obrecht, Paul F. Obrecht, III KatharineObrecht, III Paul O’Donovan Katharine O’Donovan disorder, characterized by rapidly-worsening muscle weakness that Katharine O’Donovan Diane Peters Katharine O’Donovan Diane Peters starts in the legs and pelvis, and later Diane Peters Diana J.Peters Diana J. Pillas Diane affects the whole body. In the movie, Diana J. Pillas Major Henry Pillas Major HenryPittman Diana J. Pillas Major Henry Pittman Darius and 11 of his friends traveled Major Henry Pittman Michael Ready Pittman James Rubenstein, M.D. across the country in a wheelchair James Rubenstein, M.D. James Rubenstein, M.D. Rubenstein, M.D. Maxine Seidman Maxine Seidman Maxine Seidman Maxine Seidman accessible RV, to test accessibility Audrey Thomas Audrey Thomas Audrey Thomas AudreyTaneyhill Thomas Frank Taneyhill in America. Their ultimate goal was Frank Taneyhill Frank Taneyhill Frank Trinkoff Paul Trinkoff to convince MTV’s Pimp My Ride to Paul Trinkoff EileenPaul Trinkoff M.D. Paul Vining, P.G. Vining, M.D. P.G. Vining, M.D. Eileen P.G. Vining, M.D. customize Darius’ wheelchair, but P.G. Eileen West, Pharm.D. Kim West, Pharm.D. their travels became so much more. Kim West,Whitworth Ramsay M. Pharm.D. Kim Ramsay M.Whitworth Ramsay M.Whitworth The film shows the touching story of their adventures and the Fabian Williams Ramsay M.Whitworth Fabian Williams Fabian Williams Fabian Williams brotherhood that was formed along the way. Those who attended the screenings had the pleasure of meeting Darius, his mother Administrative Staff Administrative Staff Administrative Staff Jamie, and 4 of the young men who were on the trip. There was Lee Kingham Lee Kingham Executive Director Executive Director a question and answer session, which followed each screening. Lee Kingham Lee Kingham Sonya Bajwa Executive Director Executive Director Director of Finance Sonya Bajwa Sonya Dunn Bajwa Director of Finance Director of Finance The cast members answered questions candidly and shared some Sonya Bajwa Lauren Weaving Betsy Weaving Director of Finance Director of DevelopmentServices Director of Program Services Betsy Weaving BetsyRumenap Lyn Elliot DirectorHuman Resources Director of of Program Services Director of Program stories from the trip that were not included in the film. Darius even Joan Director of Special Projects Joan Rumenap Kathy Rumenap JoanElliott Naviasky Lyn Elliott Director of Special Projects Director of Special Projects Director of Special Projects Director of Human Resources wrapped up the evening session with a rap song! Lyn Rumenap Joan Elliott Lyn Director of Human Resources Director of Human Resources Director of Special Projects & Stacey Schiano Stacey Schiano Director of Development Stacey Schiano Betsy Weaving Director of Development & Director of Program Services & Director of Development Major Gifts Darius and his friends now have a new goal, “One Year, One Million Major Gifts Major Gifts Lauren Dunn Lauren Dunn Director of Communications Director of Communications DVDs.” They hope to sell one million copies of the film by July 22, Lauren News Director of Communications NetworkDunn Editor: Stephanie Sweeney News Editor & Events, Network News Editor 2009, to raise money for Duchenne Muscular Dystrophy research. & Events, Network News Editor & Events, Network They also have school programs and lessons to accompany the DVD and are more than happy to visit schools to spread awareness. For more information about Darius Goes West, please visit the website at www.dariusgoeswest.org. Non Proﬁt U.S. Postage PAID 8503 LaSalle Road Permit #5954 Towson, Maryland 21286 Towson, MD 21286 Return Service Requested Phone: 410-828-7700 Toll Free: 1-800-492-2523 Fax: 410-828-7708 www.abilitiesnetwork.org HARFORD COUNTY 401 Market Street, Suite 100 Aberdeen, Maryland 21001 Phone: 410-272-3712, 1-866-454-9677 Fax: 410-272-3892 SOUTHERN MARYLAND 132 Holiday Court, Suite 211, Annapolis, Maryland 21401 Phone: 410-266-7941, 1-800-966-7940 Fax: 410-841-2476 PG/MONTGOMERY COUNTY 1738 Elton Road, Suite 205 Silver Spring, Maryland 20903 Phone: 301-431-7740 Fax: 301-431-7742 CHARLES COUNTY 9375 Chesapeake Street, Suite 103 LaPlata, Maryland 20646 Phone: 301-392-3554 Fax: 301-392-3558 WESTERN MARYLAND 5300 Westview Drive, Suite 408 Frederick, Maryland 21703 Phone: 301-695-9505, 1-800-394-9504 Fax: 301-695-3340 GARRETT & ALLEGANY COUNTIES 317 Beall Street u C� mberland, Maryland 21052 Phone: 301-777-2895 Fax: 301-777-2897 MARYLAND RELAY 711 IN MARYLAND (TTY/VOICE) 1-800-735-2258 FROM ANYWHERE (TTY/VOICE) SUPPORT GROUPS Epilepsy Support Groups A support group for adults with seizure disorders and their loved ones/ caregivers to share concerns, exchange information and address the dynamics of living well with seizure disorders. New members and visitors are always welcome. PARENT GROUP Harford County “Making Connections” Parent Support Group Dates: November 5th, December 3rd, 6:00 PM Dates: November 18th, December 16th, 7:00-8:30 PM Location: Abingdon Library, 2510 S. Tollgate Road, Abingdon, Location: Abilities Network, 8503 LaSalle Road, Towson, MD 21286 MD 21009 For more information contact: Sarah Pinsker at 410-828-7700 or For more information contact: Trisha Stiles at 410-272-3712 firstname.lastname@example.org or email@example.com Howard County ADULT GROUPS Dates: November 5th, December 3rd, 6:30 PM Anne Arundel County Location: Faulkner Ridge Center, 10598 Marble Faun Lane, Columbia, Dates: November 24th, December 22nd, 6:30-8:00 PM MD 21044 Location: Severna Park Library, 45 McKinsey Road, Severna Park, For more information contact: Cassandra Hitchcock at 410-828-7700 MD 21146 or firstname.lastname@example.org For more information contact: Ken Case at 410-266-7941 or email@example.com Montgomery County & Prince George’s County Dates: November 20th, December 18th, 6:00 PM Baltimore County/ Baltimore City Location: Abilities Network, 1738 Elton Road, Suite 312, Silver Spring Dates: November 18th, December 16th (Holiday Party), MD 20903 7:00-8:30 PM For more information contact: An Tran at 301-431-7740 Location: Abilities Network, 8503 LaSalle Road, Towson, MD 21286 or firstname.lastname@example.org For more information contact: Sarah Pinsker at 410-828-7700 or email@example.com Tri-County Area (Calvert, Charles & St. Mary’s Counties) Dates: November 13th, December 11th, 6:30 PM Frederick County Location: Charlotte Hall Library, 37600 New Market Rd. Charlotte Hall, Dates: November 4th, December 2nd, 6:30 PM MD 20622 Location: C. Burr Artz Public Library, Trust Conference Room, For more information contact: Danielle Wright at 301-392-3554 110 E. Patrick Street, Frederick, MD 21701 or firstname.lastname@example.org For more information contact: Christine Semon at 301-695-9505 or email@example.com SIBSHOPS Sibshops are support groups for children ages 8-13 who have siblings with special needs. For further information, dates and location, please visit our website at www.abilitiesnetwork.org. Dates and Times are subject to change due to inclement weather or scheduling conflicts.