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                                                                                                                                                                         Volume 2, Issue 3�
                                                                                                                                                                             Fall 2008




Network News
The Official Newsletter of Abilities Network
Project ACT • Healthy Families • Support Services • Community & Employment Partners • Epilepsy Services • Autism Services



                                   Walkabout Abilities
                 2nd Annual Time Out for Monday Night Football
                                            TouchdownDeck Designs, American Office,Network!
                                                                 for Abilities and Systems,
                       Scores a Zoo in Baltimore for Bottling Group, Advance Business Comcast. Lafarge, Creative
Everyone enjoyed sun and fun while raising awareness of all dis-
abilities on May 31, 2008 at The Maryland
Walkabout Abilities, presented by Alex Cooper Auctioneers.                                           Thank you to:
On October 13th, 2008 the 2nd annual Time Out for Monday Night                                       Hope to see you at the 2009 Walkabout Abilities!
                                                                                                     Our Corporate Sponsors
Nearly 480 participants came out to help support Abilities
Football scored a touchdown with the amount of money and awareness                                   Touchdown Sponsors: Campbell & Company, Kim West Field Goal Spon-
Network and raised over $106,000!
raised for Abilities Network! With the attendance of over 400 people and                             sors: The Dyer Kroneberger Group, Play Centers, Inc., Miles & Stock-
Thegenerous donations received, the event raised a little over $30,000,
the walk began with breakfast provided by The Fresh Market                                           bridge, Kelly & Associates Insurance Group, Wilmington Trust, The Pillas
which will directly support the services Abilities Network provides! the
and beverages provided by Pepsi. Brick Bodies kicked off                                             Family, MedStar Health, Venable, LLP., Merritt Properties, LLC, VIP Bar
                                               walk with Foundation,
Thanks to a grant from The Harry and Jeanette Weinberg a warm-up,                                    Sponsor: Richard J. Pricinsky & Associates, Inc., Lobby Bar Sponsor: FBW/
                                               and of$60,000!
this money will be matched creating a grand totalSteve Davis from                                    Royal Bank of Canada Registration Table Sponsor: Blue & Obrecht Realty
                                                         WBAL emceed the
                                                         morning       activities.
                                                         Abilities      Network
                                                         Executive Director, Lee
                                                         Kingham, Walkabout
                                                         Abilities Co-Chair Brian
                                                         Cooper,     and    Miss
                                                         Maryland, Shana Powell,
                                                         cut the ribbon to get
  Abilities Network board member,       Time Out committee member          Quinn Sypniewski, Chris Chester and Haloti   Haloti Ngata participating   Dan Wilcox participating in   Quinn Sypniewski
 Diana Pillas, with started and her
the walkers Dina Moyerinto the zoo! Sainz posing with the
                                    Pablo                                   Ngata all participating in the Q&A panel        in the Q&A panel              the Q&A panel            posing with Katie
          son Evan Moyer                     Ravens cheerleaders           hosted by Keith Mills from WBAL and Stash                                                               Marchman in the
The "family friendly" walk strolled through exhibits                     including the 98 Rock!
                                                                                         from                                                                                      Studio Grill Room

The evening began with a VIP tailgating party for Families, friends,
rhinos, giraffes, and even the chimp house. our Corporate                                            Game Arena Sponsor: RSM McGladrey, Inc. Silent Auction Sonsor: Fedder
Sponsors, which rounded back up at the Boat Lake Pavilion to
and co-workerswas followed by our main event. Several Ravens players                                 & Garten Rookie Sponsors: Next Day Medical, The Harris Family, Gorfine
came to show their support by face painting, a moon bounce,
gather together and enjoyparticipating in a Q&A panel emceed by                                      & Schiller, Dr. James Rubenstein, M.D., The Ready Family
Keith Mills of an exciting magic show provided by Jay Silverman.
games, and WBAL and Stash from 98 Rock. Dan Wilcox, Haloti Ngata,
                                                                                                     Our Media Sponsors
Quinn Sypniewski, Chris Chester, and Samari Rolle were played live
Senioritis, a trio of seniors from St. Paul’s school,some of the
                                                                                                     WBAL, 98 Rock, and Patuxent Publishing
players and Sprockit the the cause.
music, that came to support Robot wowed the crowd with facts
about epilepsy, autism, and other disabilities.                                                      Special Thanks to:
The Q&A panel led into an exciting live auction, featuring items such as                             Grazie’s Fine Food & Wine, Ironclad, Great Moments, Haloti & Christina
a Hearts teams and individual by Smyth Jewelers, and a 1983 World
The topon Fire necklace, donated fundraisers received medals that
                                                                                                     Ngata, Naylor Wine Cellars/Mr. & Mrs. Naylor, Tim & Suzanne Schau-
morning. Top Team was Carson’s Crew, Team Noah 2008 took
Champion Baltimore Orioles team signed bat. To add to the excitement,                                man, Geneva Farms, Alex Cooper Auctioneers, Willow Springs Golf
2nd, and Cooper’s Crew was awarded 3rd place. The top fundrais- a
Baltimore’s own Ravens cheerleaders sold raffle tickets for guests to win                            Course, Mitchell’s Golf Complex, Black & Decker, Rams Head Live!, James
signed Ravens jersey and football!by Brian Cooper in 2 , and Paul
er was Pablo Sainz, followed                               nd
                                                                                                     Rubenstein, M.D., Under Armour, Diana Pillas, Crystal Palace Soccer
Trinkoff in 3rd. Epilepsy Services took home the group traveling                                     Team/Pete Medd, Tom James Custom Tailors, Aldo’s, San Sushi, Balti-
trophy weren’t seen enjoying the
If guestsfor the 2 year in a row. delicious food or unlimited video
                  nd
                                                                                                     more Symphony Orchestra, Travel Advantage Network, Direct TV, Donna
game selection, they could be seen bidding on the exclusive silent                                   Shriver Photography, Photos by greg n/Greg Nickey, The Baltimore
Thanks to all of our in-kind donors and volunteers for that day
auction items in the Studio Grill which was also where 98 Rock’s                                     Opera, Chef’s Expressions, Janice Barbour, Smyth Jewelers, Charm City
including The Fresh Market, Pepsi, Steve Davis, Brick Bodies,
Irresponsible Radio with Theo aired live! Theo and the rest of the crew in-                          Cupcakes, Dr. Greg Bergey, 100 West Hair Studio, About Faces, Joe
Shana Powell, Jay Silverman, members of the Abilities Network
teracted with the guests and created a lot of excitement at the event.                               Rumenap, Giuseppe’s, That’s Dancing, The Senator Theatre, American
staff, the 2008 Walkabout Abilities committee, and everyone
                                                                                                     Visionary Art Museum, Jon Howland, Ron Ohringer, ESPN Zone,
who Out 2008 was a great success, to it could not
Time participated and/or donatedbut the event. have been done                                        Courthouse Copy, and Baltimore Magazine.
without thanks to the Presenting Sponsor, Alex our Time
Special the contribution of many dedicated people including Cooper
                                                                                                     Thank you to Jackie Sainz for doing all of the photography for the event!
Out Committee and co-chairs, Mike and Gerry Harris andWilmington
Auctioneers, and our additional sponsors, including; Paul Trinkoff.
Trust, thanks go the Ravens players who came out Laboratories,
Special Richard J.toPricinsky & Associates, Abbottto support Time
Out. Thank you to everyone who contributed to the live and silent
auctions and all of the volunteers who donated their time and efforts                                  Grants Update
to the event. We hope to see everyone next year as we once again take                                   Abilities Network would like to highlight and acknowledge several grants
Time Out to support Abilities Network!                                                                  that have recently been awarded in support of enhancing the lives of the
 INSIDE THIS ISSUE                                                                                      individuals and families we serve.
                                                                                                        1. The United Way Community Partnership of Baltimore County, which is a
                                                                                                        part of the United Way of Central Maryland, awarded a grant in the amount
 InsIde ThIs Issue                                                                                      of $5,000 to support our Healthy Families Baltimore County Program.

 School is in Session.............................................................2                     2. Healthy Families Baltimore County also received grant support in the
                                                                                                        amount of $2,500 from the M&T Charitable Foundation.
 Developing an Effective Bedtime Routine ..........................2
                                                                                                        3. Our upcoming October 2008 Epilepsy Medical Symposium has been
 H.O.P.E................................................................................3               awarded grant contributions from the following funders:
 Children’s Books on Epilepsy..............................................3                            Pfizer, Inc. - $10,000
 Summer Education Series..................................................4                             Shire Pharmaceutical - $1,000
 “The Woodnutt”...................................................................4                     UCB Pharma, Inc. - $5,000
                                                                                                        Ortho-McNeil Janssen Scientific Affairs - $9,996
 Third Party Fundraising Update.......................................5                                 Valeant Pharmaceutical - $2,000
 Save the Date ......................................................................5                  LifeBridge Health, Brain & Spine Institute, Sinai Hospital - $1,500
 An Easy Way to Give...........................................................5                        THANK YOU FOR YOUR SUPPORT!
                                          School DayS
        School is in Session!                                               Developing an Effective
              Tr y This Fun Activity
                     By: Tiffany Noël Hiob, LCPC
                                                                               Bedtime Routine
                                                                                                    By: Ann DeComo
                      Director of Autism Services
                                                                               Healthy Families Family Support and Assessment Worker
Creating an Egg Carton School Bus is a fun and simple activity to do
with your class, or with your own child, at the start of the new school
year. It is important to provide the necessary supervision and guid-
ance to assist in making this an enjoyable and creative experience.

• Cut off the top lid of a cardboard egg carton and let the child
  color or paint it yellow.
                                                                           Everyone knows how important it is to get a good night’s sleep in
• Let the child cut or tear two circles out of black construction paper
                                                                           order to do well the next day. This does not only apply to adults
  and glue this on the bottom of the egg carton for wheels (glue
                                                                           but also to children attending school. It is very important for them
  sticks work great).
                                                                           to be well rested in order to do their best. Having a bedtime rou-
• Let the child try to write “SCHOOL BUS” along the top of the egg
                                                                           tine can help parents ensure that their children are ready for the
  carton (provide hand-over-hand assistance as needed for writing).
                                                                           challenges of learning. Here are some proven tips to assist in
• Let the child cut out small pictures from magazines or photos, or
                                                                           developing a bedtime routine:
  let them draw people onto construction paper. Paste images into
  the holes in the center of the egg carton.
                                                                           • Have the same routine every night. This allows the child’s brain
                                                                             to tell their body that they are preparing to go to sleep.

                                                                           • Turn off the TV at least 45 minutes before you start the bedtime
                                                                             routine.

                                                                           • Talk to your child about the bedtime routine (what will happen
    This activity, along with other back to school crafts,
                                                                             and when it will happen). Tell them what they should do if they
            may be found at www.dltk-kids.com
                                                                             wake up during the night.

Children are sometimes nervous about the first day of school. It is
                                                                           • Have your child participate in making choices such as selecting
not uncommon for children to take two to three months to adjust
                                                                             which book to read and which stuffed animal they want to sleep
to school routines. It is helpful to keep ongoing communication with
                                                                             with.
your child and his/her teachers, reviewing school routines, sched-
ules, rules, and expectations. Some of the best ways to facilitate
                                                                           • Turn off the light, but have a night light if your child is afraid of
communication with teachers is by email, setting up a time to meet
                                                                             the dark.
periodically or even logging daily or weekly notes into a communica-
tion journal. For parents, volunteering is an excellent way to become
                                                                           • When you have completed the routine and your child is cuddled
more familiar with the children, teachers, and school activities.
                                                                             in bed, do not entertain any additional requests (i.e. giving them
It is important to have conversations with children about going to
                                                                             something to drink, etc.). If they get up, take their hand and
school, riding the bus, etc. This not only helps children adjust to
                                                                             lead them back to bed. Do not make eye contact! Simply say
going to school but it builds important language and literacy skills.
                                                                             some thing like, “It’s time for bed” and leave the room. Do not
Based on a plethora of research, it is certain that children learn
                                                                             read another story, get water or give additional hugs and kisses.
literacy skills through consistent language-rich opportunities. When
children interact with teachers and parents in “conversation stretch-
ing” activities, these opportunities build language and literacy skills.          Remember routine, routine, routine!
Essentially, these meaningful conversations that take place daily
with children assist them with being better readers and writers. For
example, instead of asking, “What color is the school bus?” ask a
child, “Tell me some things you do on the school bus?” Open-ended
questions and statements require children to answer with their own
knowledge and feelings rather than responding with a quick, one
word remark. Questions starting with “how” or “why” encourage a
full and meaningful discussion.

School days can provide wonderful opportunities for fun activities
and learning! The important thing to remember is to do activities
with your class, or child, which are enjoyable and incorporate literacy
and language opportunities!
                                     November is
                              EpliEpSy awarEnESS Month
                                                                  H.O.P.E
                                                      By: Mary Wontrop, Education Coordinator

Imagine living life as an active teenager; attending school, partici-         Epilepsy Services is offering a mentoring program. The Epilepsy Founda-
pating in sports and extracurricular activities, and hanging out with         tion’s H.O.P.E. (Helping Other People with Epilepsy) Program provides
friends. One day you are informed that you have been diagnosed                trained speakers, who are directly or indirectly affected by epilepsy,
with epilepsy (seizure disorder). This quote was taken from a 17              for community presentations about this complex and diverse medical
year old:                                                                     condition.

“Growing up, I had the best of friends, and the best of girl friends, too.    H.O.P.E. presentations
For a long time it seemed my life was perfect. For example, in sports I         • Present facts about epilepsy including causes, diagnosis,
was always one of the best athletes, no matter what the sport (except soc-         treatment, and seizure first aid
cer). I was always able to quickly make friends... But when I developed         • Offer shared personal experience and discuss the impact of
seizures a couple years ago, it seemed like I lost everything. “                   epilepsy on education, employment, safety, and coping with
                                                                                   emotions
Or, imagine being the parent of a beautiful baby. You are enjoying              • Serve as a valuable resource for the epilepsy patient, family,
all of the pleasures of watching them develop and grow when the                    and caregiver
unexpected happens:                                                             • Provide information to find community resources and learn
                                                                                   good self-management habits
“We are parents of a precious little girl. One day in August, all of our
hopes and dreams changed suddenly. What was once important to us was          These presentations can be tailored to different audiences. Groups
no longer of great significance. Our little 4 month old girl was sleeping     that can benefit from a H.O.P.E. presentation include: churches, civic
so peacefully in her crib while daddy was at work, and her 3 year –old        organizations, corporations or any other interested community group.
brother and I watched a circus on television. I heard something from her      Other people that would benefit from a H.O.P.E. presentation are newly
crib, turned on the light, and saw that our little baby was stiff, and then   diagnosed epilepsy patients, their families, and loved ones.
she began jerking and salivating heavily. She was blue in the face and
was not breathing. “                                                          If you are interested in becoming a H.O.P.E. mentor, or would like to
                                                                              schedule a presentation, please contact Mary Wontrop at 410-828-
Epilepsy offers many struggles and challenges for the 50,000 Mary-            7700 or mwontrop@abilitiesnetwork.org.
landers living with the disorder. In order to help these individuals
deal with the difficulties of seizure disorder, Abilities Network,            (Quotes are from the book The Brainstorms Family, Steven C. Schachter, M.D.,
                                                                              Georgia D. Montouris, M.D., and John M. Pellock, M.D., page 36 and page 117)




                                   Children’s Books on Epilepsy
                                             May we suggest the following children’s books for your library:

                        Becky the Brave: A Story About Epilepsy by Laurie Lears
                        Nothing seems to scare Sarah’s big sister Becky, until having an epileptic seizure makes her reluctant to return to school,
                        and so Sarah summons her own courage to explain the disease to the other students.
                        Pre-school

                        Dotty the Dalmatian has Epilepsy by Tim Peters -
                        A delightful illustrated story for young children. Dotty the Dalmatian discovers she has epilepsy. At first she feels
                        embarrassed and afraid, but she learns to accept and control her seizures and goes back to her important job of helping
                        the firefighters save lives. A large colorful poster accompanies the book.
                        ages 2-6

                        The Rabbit with Epilepsy by Deborah M. Moss -
                        Read your child this delightful story about the young rabbit with epilepsy. It tells how Lee and her family cope with the
                        challenges of epilepsy, beginning with Lee’s first seizure and initial visit to the doctor, through her diagnosis and
                        treatment. Use it to explain epilepsy to your child with epilepsy, as well as to brothers, sisters, and friends.
                        ages 3-6

                        Taking Seizure Disorders to School : A Story About Epilepsy by Kim Gosselin
                        This story dispels the myths and fears surrounding epilepsy in a positive, upbeat and entertaining style while
                        explaining seizures in an understandable fashion.
                        ages 9-12

                        Epilepsy on Our Terms: Stories by Children with Seizures and Their Parents (The Brainstorms Series)
                        by Georgia D. Montouris and John M. Pellock
                        This enlightening book presents the firsthand personal accounts of children with seizure disorders and their
                        parents. In their own words, these children and parents vividly describe the experiences of handling the crisis of the
                        initial seizure, adjusting to the diagnosis of epilepsy, coping with seizures, managing medications and side
                        effects, and dealing with health care providers, teachers, schoolmates, siblings, and friends.
                        For all ages
                                              WHAT AN EVENT!
                                                The summer educaTIon serIes
                                                                By: Laurie Moran, M.Ed., Director of Project ACT

Abilities Network’s Project ACT and the Family Empowerment Network held an exciting and informative
two-part education series event for families, teachers, and early childhood professionals. Both of these
events were free for all, and onsite childcare and dinner were provided. The event was held in the Training
Institute at the Abilities Network Towson Office. Although the panel discussion was the big event for both
nights, people who attended this event had the opportunity to network, visit vendors, collect resource
information at the vendor tables, and participate in raffles.

Through a generous grant from Maryland State Department of Education (MSDE), Project ACT is training
childcare professionals on School Readiness and offering community events that promote inclusion and
school readiness opportunities. As a result of this grant, Project ACT has formed a collaborative partner-
ship with Baltimore County Public Library! The library brought their Read Rover bus for all to enjoy the first                   Sammy Larrimore, age 15 months, enjoying childcare
night. Teachers, providers, parents and children toured the bus and saw this “library on wheels” first hand.                          at the Summer Education Series event!
Parents were able to get a library card application for their child.

On August 6th, parents and early childhood teachers were invited to come to this event and learn about
School Readiness. It was a wonderful opportunity for participants to ask questions and listen to the
distinguished panel of experts.

On August 13th, the panel discussion topic was on Child Care, Early Intervention and Special Education
Services. Teachers, child care providers, and parents had the opportunity to listen to experts in the field
and to ask a variety of questions related to this topic. For some of the families that attended it was an ideal
opportunity to hear from other parents who had similar questions related to inclusion, special education and
the IEP / IFSP process and to receive helpful information. After this event, many of the panelists met with
families to answer more specific questions and to offer additional resources.

Overall, both nights were a huge success and many of the participants requested that more of these                                Inside Read Rover and the Librarian Steve Janowski
education series events be held quarterly.                                                                                             from the Baltimore County Public Library



                                                                         A Special Thank You!

                                                                         I would like to take this opportunity to thank the
                                                                         following companies for their generous dona-
                                                                         tions for the raffles. A big thank you to Lakeshore
                                                                         Learning Store for donating two $25.00 store gift
                                                                         certificates and to Brookes Publishing Company
                                                                         for donating six books!! Thank you to Port Discov-
                                                                         ery Children’s Museum for their generous dona-
                                                                         tion of a Port Discovery Fun Basket with a Port
      From left to right, Mary Coster: from PACT, Yvonne Bell: PT        Discovery Family Membership included. Also, a
      Consultant, Carol Marsiglia from The Coordinating Center                                                                           Yvonne Bell, a vendor and a panelist
                                                                         big thanks to Make -A -Bear-Anywhere for donat-
                                                                         ing two $150.00 gift certificates! We extend our
                                                                         sincere appreciation!




“The Woodnutt”                                                                              variety of carpentry including; fencing, shelving, roofing, siding, and other
                                                                                            advanced work. He has a workshop that can rival any professional workspace
By: Natasha Lett, Community and Employment Associate Assistant                              and business cards for his unofficial business, “Woodnutt Woodworks.”

It is always an exciting inspiration to work at the Abilities Network. As a                 Jonathan shared a funny story that once while building the shed, his mother
Community and Employment Associate Assistant, I have been fortunate                         was concerned about him working on the roof. Not only was she concerned
enough to work on many successful teams. One such team is that of Jona-                     that he might fall off, she was worried about his lack of roofing experience.
than, aka the “Woodnutt.” Amazingly Jonathan’s middle name is Woodnutt,                     So, she called in a family friend, who was also a professional roofer, to check
which is a family name that I find to be both fitting and ironic.                                         on his work. The roofer confirmed that Jonathan was doing
                                                                                                          excellent professional grade work, that was very impressive!
Jonathan is a quiet man in his 30’s. He is kind, funny, and
the most considerate person one could possibly meet. He                                                    One day Jonathan hopes to be able to sell his woodcrafts
loves to cook, go hiking, and eat at his favorite restaurant.                                              for a living, but until then he is employed at a local home
However, he has one main passion in life and that is                                                       improvement center. This is an ideal position for Jonathan,
woodworking. His interest began while he was watching                                                      and he may soon be working in the lumber department,
The New Yankee Workshop in his early teens, and he                                                         which is very exciting for him. Jonathan has been told many
wanted to try to complete the projects he saw on TV. He                                                    times that his goals are unachievable, but he has proved
taught himself how to work with wood, and his first project                                                them wrong time and time again. He never lets people take
was to make Adirondack chairs. In his 20s, Jonathan honed                                                  away his motivation to work hard, and he is possibly the
his skills by serving as an apprentice at a cabinet makers shop.                                           hardest worker I know. In fact, woodworking has helped
                                                                                                           Jonathan through some tough times and serves as a stress
Along with being a self-taught carpenter, an interesting aspect of Jonathan is              reliever in his life.
that he was born with Congenital Hydrocephalus. Congenital Hydrocephalus
is a build-up of excess fluid found in the brain at birth. Jonathan has never               I wish that everyone reading this could spend a day or two with Jonathan, so
let this stand in the way of his passion, and is therefore an extremely tal-                that he could inspire you as well. In case you don’t get the chance to meet
ented carpenter who has completed many professional grade projects. I was                   him, here are a few valuable lessons I’ve learned from Jonathan.
impressed to find that Jonathan is able to learn skills from simply watching a              1) Treat and talk to people how you would like to be treated.
project being done on TV. Some of his projects include; the previously men-                 2) Work hard until the job is done.
tioned Adirondack chairs, a 10x12 foot shed in his backyard, an entertain-                  3) Find the bright side of every situation.
ment center, and crown moldings in his fathers’ office. He can do a wide                    4) You can turn a plain piece of wood into something very beautiful.
                      A Parent’s
Third Party Fundraising Update
                      A Parent’s                                                        Stor y
                                                                                        Stor y
We am a like to acknowledge the following individuals, organizations andI
  I would parent of a child with special needs. Many years ago                     to the house, we had the boys make their own dinner at my house
  I am a parent of a child with special needs. Many years ago I                    to the house, we had the boys make their own dinner at my house
                                                                                                    we                           their own dinner at
                                                                                   to the house, we had the boys make dinners after Specialmy house
  I am a parent of a                                  needs. and events to ago
                                                              Many years
 worked on the Boardchild with special Abilities Network. OurraiseI
companies that have recently coordinated programs Network. Our son
 worked on the Board of Trustees with Abilities Network. Our son                   (supervised), we have gone out to dinners after Special Olympic
                                                                                   (supervised), we have gone out to dinners after Special Olympic
                            of Trustees with
 worked on the Board weTrustees with Abilities special needs. son
                            of found out that he had                               (supervised),        have gone out to
                                                                                   practice & yesterday we spent the entire day together as there was    Olympic
 was adopted and later we found out that
important funds to support Abilities Network. he had special needs. We
 was adopted and later we found out that he had special needs. We
 was adopted and later                                                             practice & yesterday we spent the entire day together as there was
                                                                                   practice & yesterday we spent the entire day together as there was
 dropped everything else and made our son our main focus. We
                                                                                               An Easy Way to Give
 dropped everything else and made our son our main focus. We
            everything else and                  our son our main focus. We  We    no school.
                                                                                   no school.
 dropped other children and Imade a background in Recreational
 have no                                                                           no school.
                    Williamsport, I had a background in Recreational
• The 1st annual children and MD Bike Night was held on July 19th,
 have no other children and I had a background in Recreational
 have no other just come natural for me  had                                       I am sending some pictures from yesterday. However, I have a lot
 Therapy. It has just come natural for me                                          I am sending some pictures from yesterday. However, I have a lot
                                                                                                                      from
                                                                                   I am sending some picturesmore - yesterday. However, I have a lot
 Therapy. of the proceeds supportingfor me
 Therapy. It has just and everything the Abilities Network. The event
  with half It has        come natural pos-
 to provide anything and everything pos-                                                                            more - as I use the pictures with my son
                                                                                   If writing a check to Abilities Network/ Epilepsy Foundationwith my son
                                                                                                                                                     of the
 to provide anything and everything pos- Bruce Logan from High-                                                              as use the pictures with my son
                                                                                                                    more - as I events. Abilities Network can
                                                                                                                                  use the pictures
                                                                                                                    to discussI events. Abilities Network can
 to provide anything ride”, coordinated by
  began
 sible to with a “bike progress to be the
 sible to help my son progress to be the                                                                            to discuss now, Abilities Network can
                                                                                                                    difficult right
                                                                                   Chesapeake Region; EFCR, is to discuss events. you can still help sup-
           help my son
  way to help my son progress to be the
 sible personLeather, where ridershas been to participate in a poker
 best Song that he can be. It registered                                                                            be very proud of Karla as she is doing a
 best person that he can be. It has been
 best person that hethealmostIt hasabeen night” in downtown Wil-                                                    be very proud of Karla as she is doing a
                                                                                                                    be very proud your place of employment
                                                                                   port us. Giving through payroll deduction at of Karla as she is doingto
                                                                                                                    beautiful job with Kenny. She is able to   a
  run. After the ride, can be.
                             group
 extremely difficult and almost held “bike
 extremely difficult and almost impossible
                                      impossible                                                                    beautiful job with Kenny. She is able to
                                                                                                                                job with to work hard and
                                                                                                                    beautifulto help. Kenny. She is able
                                                                                   is a simple, pain free and effective way
                                                                                                                    encourage Kenny to work hard and
 extremely difficultbikers enjoyed numerous vendors and the live band
                      and
 to find another parent of a impossible
  liamsport, where parent of a child with
 to find another parent of a child with                                                                              encourage Kenny to work hard and
                                                                                                                    encourage Kenny at the same time,
 to find anotherand their child towith
 special needs and their child to be  child                                                                         make progress while at the same time,
                                                                                                                                       while
                                                                                                                    make progress while at the same
  Jugglehammer!
 special needs and their child to be
 special needs our family. I suppose
 friends with                                     be                                                                make progressthat Kenny pay can how
                                                                                   Having only $5 or $10 deductedis obvious paycheck each knows time,
                                                                                                                    it from your
                                                                                                                    it is obvious that Kenny knows how
 friends with our family. I suppose                                                                                 it is obvious that Kenny knows how
 friends with our family. I suppose
 because it has been difficult to find                                                                                much she loves him. She is truly dedi-
                                                                                   make a big difference in helping us continue tohim. She is truly dedi-
                                                                                                                                        provide individualized
                                                                                                                    much she loves him. She is truly dedi-
 because it has been difficult to find
            it has been difficult to find
 because in the inclusion setting and                                                                                       she loves
                                                                                                                    much to her job!
                                                                                                                    cated to her job!
 friends in the inclusion setting and
 friends in the inclusion setting and                                                                               cated differing disabilities throughout
                                                                                   services to adults and children with to her job!
                                                                                                                    cated
 friends I have such high expectations
 because I have such high expectations
 because I have such high expectations
 because son. Eventually I became my                                                                                My son and I are no more have found
                                                                                   Maryland. Many people look at the deduction asthrilled tothan the cost
                                                                                                                    My son and I are thrilled to have found
 for my                                                                                                             My son and I are thrilled to have found
 for my son. Eventually I became my
 for my son. Eventually I became my
 son’s Activities Director (inviting people
                                                                                                                    Karla, Kenny and his mother. They
                                                                                   of a fast food meal, a movie ticket, orKenny and his mother. They
                                                                                                                              a popular magazine.
                                                                                                                    Karla, Kenny and his mother. They
 son’s Activities Director (inviting people                                                                         Karla, added so much to our life.
                                                                                                                    have added so much to our life.
                   Director
 son’s Activitiesrecruiting (inviting people
 to the house, recruiting volunteers from                                                                           have added so much to our life.
                                                                                                                    have
 to the house, recruiting volunteers from
 to the house,etc.).          volunteers from                                                                       Yesterday, we jogged at the park, went
                                                                                   Many employers run payroll deduction campaigns during the fall. went
                                                                                                                    Yesterday, we ate at a restaurant If
                                                                                                                    Yesterday, we jogged at the park, went
 high schools etc.).
 high schools
 high schools etc.).                                                                                              to the library, jogged at the park, (the
                                                                                                                  to the library, ate at a restaurant (the
                                                                                   yours does, please consider authorizing an amount to be deducted (the
                                                                                                                  to the library, ate at a restaurant
 Today I am writing this letter to praise Ms. Karla Mancero who                    boys used their devices to order meals), went swimming & watched
                                                                                          used their devices to order meals), went swimming & watched
                                                                                   boys your check devices to order meals), went swimming & watched
 Today I am writing this letter to praise Ms. Karla Mancero who
 Today foram writing this letter to Karla and Kenny back in February
         I                                     praise Ms. Karla Mancero who        boys         their each payday and designating learning so much from
                                                                                   from used We had a full day and the guys areAbilities Network/ EFCR
                                                                                   a movie. We had a full day and the guys are learning so much from
 works for Abilities Network. I saw Karla and Kenny back in February               a movie.
 works for Abilities Network. I saw Karla and Kenny back in February
 works      Abilities Network. I saw
 at a Special Olympics basketball game and I noticed Kenny using his                       recipient. Most pledge forms have a are and Kenny is exactly
                                                                                   a theother. had a full day and from Kenny learning to saylearning
                                                                                   asmovie. WeNathan is learning the guys place for you so much from
                                                                                   each other. Nathan is learning from Kenny and Kenny is learning
                                                                                   each other. Nathan is
 at a Special Olympics basketball game and I noticed Kenny using his
 at a Special Olympics basketball game andII noticed Kennyintroduce    using his                                a wonderful Kenny and each is learning
                                                                                   each Nathan. They arelearning frominfluence on Kennyother.
                                                                                   from you want your
 augmentative communication device. staffran over to
                         Some of the Abilities Network    who                      whereNathan. They money to go.
                                                                                   from Nathan. They are a wonderful influence on each other.
 augmentative communication device.Night ran over to introduce
                                          device. I
                              volunteered for Bike     I ran over to introduce
 augmentative communicationuses the exact same device. We have                     from                    are a wonderful influence on each other.
 myself to them as my son also uses the exact same device. We have
 myself to them as my son also uses the exact same device. We have                 I want to thank Abilities Network for all you do for the community.
            them as my son also
 myself toopportunity to use it with another student who uses a
 had no opportunity to DEOfest took place student who uses a                       I want to thank Abilities Network for all you do for the community.
                                                                                   If want tono charitable giving campaign where do for thelet us know.
                                                                                   I there is thank Abilities Network for all you you work, community.
• On Sunday, August 31st,use it with anotherin Fells Point and rose
 had no opportunity to use it with another student who uses a
 had no(that is something that I have been begging the school to
 device (that is something that I have been begging the school to
 device                                                                            Sincerely,
                                                                                   We will be happy to have our representative contact your employer
  over $6,000 for the Abilities Network! The event was held to celebrate
 device (that is something that I have been first meeting and it has                Sincerely,
 work on). So much has happened since our begging the school to                    Sincerely, Cervelloni
 work life of So much has happened since our passed away in January
 work on). So much has have individual who first we have beenitover
  the on). Matt DeOrsey, an  happened since our first meeting and has
                                                                                   Mrs. Amy Cervelloni
                                                                                   aboutAmy possibility of doing one.
                                                                                   Mrs. Amy Cervelloni
                                                                                   Mrs. theof a child with special needs)
                                                              meeting and has
 all been wonderful! We have met Kenny’s mom, we have beenitover
 all been wonderful! mal seizure. The event was chairedhave been over
                         We have met Kenny’s mom, we by Pete Medd,                 (mother of a child with special needs)
 all been wonderful! We
  2008 from a grand                  met Kenny’s mom,                              (mother of a child with special needs)
                                                                                   (mother
  along with many family and friends of Matt DeOrsey that contributed              Thank you for your support of the Abilities Network/ EFCR!
  to making the event a great success!

      Welcome New Board
      Welcome New Board
• We would like to thank Ed Miller and all of the American Legion posts
                                                                                                     2007-2008 Board of Directors
                                                                                                     2007-2008 Board of Directors
                                                                                                     2007-2008 Board of Directors
                                                                                                      2008-2009      of Directors

           Members
  across Maryland for coordinating the Chicken Challenge every year                                    Past President - David R. Paulson
                                                                                                       Past President - David R. Paulson

           Members
  and donating the proceeds to the Abilities Network/ Epilepsy Foun-                                        President David R. Paulson
                                                                                                       Past President -- Mark V. Dyer
                                                                                                            President - Mark V. Dyer
                                                                                                                         - Mark V. Dyer
                                                                                                            President Matthew T. Murnane
  dation of the Chesapeake Region.                                                                   Vice President - Matthew T. Murnane
                                                                                                     Vice President - Matthew T. Murnane
                                                                                                                       -
                                                                                                     Vice President Kim West, Pharm.D.
                                                                                                        Secretary - Kim West, Pharm.D.
                                                                                                        Secretary - Kim West, Pharm.D.
                                                                                                        Secretary - - Chris McBride
 kl
Thank you all for your support!                                                                            Treasurer - Chris McBride
                                                                                                           Treasurer - Chris McBride
 kl
kl                                                                                                         Treasurer
                                                                                                      Eric Kossoff, M.D., Chair, MD. PAB
                                                                                                      Eric Kossoff, M.D., Chair, MD. PAB
                                                                                                      Eric Kossoff, M.D., Chair, MD. PAB
     Darius Went West                                                                                            J. Patrick Collins
                                                                                                           Gregory K. Bergey, M.D.
                                                                                                           Gregory K. Cooper M.D.
                                                                                                           Gregory K. Bergey, M.D.
                                                                                                                 J.Brian Bergey,
                                                                                                                 J. Patrick Collins
     Written by: Niki Biggs, Program Director in Harford County                                                  J. Patrick Collins
                                                                                                                 Louise J. Corwin
                                                                                                                    Patrick Collins
                                                                                                                 Louise J. Corwin
                                                                                                                 Louise J. Corwin
                                                                                                                Joan Conry, M.D.
                                                                                                                 Louise J. Corwin
                                                                                                                Joan Conry, M.D.
                                                                                                                Joan Conry, M.D.
     This film had the audience laughing one minute and crying the                                                Mona Criswell
                                                                                                                Joan Conry, M.D.
                                                                                                                  Mona Criswell
     next. On August 7th, Abilities Network partnered with the Arc of
                                                                                                                  Mona Davis
                                                                                                                  Mona Criswell
                                                                                                                     Tom Criswell
                                                                                                                     Tom Davis
                                                                                                                     Tom Davis
                                                                                                                  S. William Feiss
     the Northern Chesapeake Region, the Arc of Baltimore, the Harford                                            S. Tom Davis
                                                                                                                  S. William Feiss
                                                                                                                     William Feiss
                                                                                                            John M. Freeman, M.D.
                                                                                                            JohnS. William Feiss
     County Commission on Disabilities, and Service Coordination to                                         John M. Freeman, M.D.
                                                                                                                   M. Freeman, M.D.
                                                                                                                 Michael S. Harris
                                                                                                            John M. Freeman, M.D.
                                                                                                                 Michael S. Harris
                                                                                                                 Michael S. Harris
     present two screenings of Darius Goes West. The screening was held                                        Edna Kane-Williams
                                                                                                                 Michael S. Harris
                                                                                                               Edna Kane-Williams
     at Patterson Mill Middle-High School in Bel Air, MD.                                                      EdnaW. Kossoff, M.D.
                                                                                                               Edna Kane-Williams
                                                                                                            Eric H. W. Kossoff, M.D.
                                                                                                                       Kane-Williams
                                                                                                            Eric H. W. Kossoff, M.D.
                                                                                                            Eric H.Krumholz, M.D.
                                                                                                             Allan W. Kossoff, M.D.
                                                                                                            Eric H. Krumholz, M.D.
                                                                                                             Allan Krumholz, M.D.
                                                                                                             Allan Krumholz, M.D.
     Darius Goes West is a multi-award-winning documentary about a                                          Michael W. Lochte, CPA
                                                                                                             Allan David Lipinski
     15 year old man, named Darius Weems, who has Duchenne Muscu-
                                                                                                                   David K. Miller
                                                                                                                Clement Lipinski
                                                                                                                   David
                                                                                                            Michael W. Lipinski CPA
                                                                                                            Michael W. Lochte, CPA
                                                                                                                Paul F.W. Lochte, III
                                                                                                            MichaelF. Obrecht, IIICPA
                                                                                                                           Lochte,
     lar Dystrophy. Duchenne Muscular Dystrophy (DMD) is an inherited                                           Paul F. Obrecht,
                                                                                                                Paul F. Obrecht, III
                                                                                                             KatharineObrecht, III
                                                                                                                Paul      O’Donovan
                                                                                                             Katharine O’Donovan
     disorder, characterized by rapidly-worsening muscle weakness that                                       Katharine O’Donovan
                                                                                                                    Diane Peters
                                                                                                             Katharine O’Donovan
                                                                                                                    Diane Peters
                                    starts in the legs and pelvis, and later                                        Diane Peters
                                                                                                                   Diana J.Peters
                                                                                                                   Diana J. Pillas
                                                                                                                    Diane
                                    affects the whole body. In the movie,                                          Diana J. Pillas
                                                                                                              Major Henry Pillas
                                                                                                              Major HenryPittman
                                                                                                                   Diana J. Pillas
                                                                                                              Major Henry Pittman
                                    Darius and 11 of his friends traveled                                     Major Henry Pittman
                                                                                                                  Michael Ready
                                                                                                                              Pittman
                                                                                                            James Rubenstein, M.D.
                                    across the country in a wheelchair
                                                                                                            James Rubenstein, M.D.
                                                                                                            James Rubenstein, M.D.
                                                                                                                     Rubenstein, M.D.
                                                                                                                 Maxine Seidman
                                                                                                                 Maxine Seidman
                                                                                                                 Maxine Seidman
                                                                                                                 Maxine Seidman
                                    accessible RV, to test accessibility                                         Audrey Thomas
                                                                                                                 Audrey Thomas
                                                                                                                 Audrey Thomas
                                                                                                                 AudreyTaneyhill
                                                                                                                           Thomas
                                                                                                                  Frank Taneyhill
                                    in America. Their ultimate goal was                                           Frank Taneyhill
                                                                                                                  Frank Taneyhill
                                                                                                                  Frank Trinkoff
                                                                                                                    Paul Trinkoff
                                    to convince MTV’s Pimp My Ride to                                               Paul Trinkoff
                                                                                                            EileenPaul Trinkoff M.D.
                                                                                                                    Paul Vining,
                                                                                                                     P.G. Vining, M.D.
                                                                                                                     P.G. Vining, M.D.
                                                                                                            Eileen P.G. Vining, M.D.
                                    customize Darius’ wheelchair, but                                                P.G.
                                                                                                            Eileen West, Pharm.D.
                                                                                                              Kim West, Pharm.D.
                                    their travels became so much more.                                        Kim West,Whitworth
                                                                                                             Ramsay M. Pharm.D.
                                                                                                              Kim
                                                                                                             Ramsay M.Whitworth
                                                                                                             Ramsay M.Whitworth
     The film shows the touching story of their adventures and the                                               Fabian Williams
                                                                                                             Ramsay M.Whitworth
                                                                                                                 Fabian Williams
                                                                                                                 Fabian Williams
                                                                                                                 Fabian Williams
     brotherhood that was formed along the way. Those who attended
     the screenings had the pleasure of meeting Darius, his mother                                         Administrative Staff
                                                                                                           Administrative Staff
                                                                                                           Administrative Staff
     Jamie, and 4 of the young men who were on the trip. There was                             Lee Kingham
                                                                                                Lee Kingham        Executive Director
                                                                                                                      Executive Director
     a question and answer session, which followed each screening.                              Lee Kingham
                                                                                                Lee Kingham
                                                                                               Sonya Bajwa            Executive Director
                                                                                                                      Executive Director
                                                                                                                   Director of Finance
                                                                                                Sonya Bajwa
                                                                                                Sonya Dunn
                                                                                                        Bajwa         Director of Finance
                                                                                                                      Director of Finance
     The cast members answered questions candidly and shared some                               Sonya Bajwa
                                                                                               Lauren Weaving
                                                                                                Betsy Weaving         Director of Finance
                                                                                                                   Director of DevelopmentServices
                                                                                                                      Director of Program Services
                                                                                                Betsy Weaving
                                                                                                BetsyRumenap
                                                                                               Lyn Elliot             DirectorHuman Resources
                                                                                                                   Director of of Program Services
                                                                                                                      Director of Program
     stories from the trip that were not included in the film. Darius even                      Joan                  Director of Special Projects
                                                                                                Joan Rumenap
                                                                                               Kathy Rumenap
                                                                                                JoanElliott
                                                                                                      Naviasky
                                                                                                Lyn Elliott
                                                                                                                      Director of Special Projects
                                                                                                                      Director of Special Projects
                                                                                                                   Director of Special Projects
                                                                                                                      Director of Human Resources
     wrapped up the evening session with a rap song!                                            Lyn Rumenap
                                                                                               Joan Elliott
                                                                                                Lyn                   Director of Human Resources
                                                                                                                      Director of Human Resources
                                                                                                                   Director of Special Projects &
                                                                                                Stacey Schiano
                                                                                                Stacey Schiano        Director of Development
                                                                                                Stacey Schiano
                                                                                               Betsy Weaving          Director of Development &
                                                                                                                   Director of Program Services &
                                                                                                                      Director of Development
                                                                                                                      Major Gifts
     Darius and his friends now have a new goal, “One Year, One Million                                               Major Gifts
                                                                                                                      Major Gifts
                                                                                                Lauren Dunn
                                                                                                Lauren Dunn           Director of Communications
                                                                                                                      Director of Communications
     DVDs.” They hope to sell one million copies of the film by July 22,                        Lauren News           Director of Communications
                                                                                               NetworkDunn Editor: Stephanie Sweeney News Editor
                                                                                                                      & Events, Network News Editor
     2009, to raise money for Duchenne Muscular Dystrophy research.                                                   & Events, Network News Editor
                                                                                                                      & Events, Network
     They also have school programs and lessons to accompany the DVD
     and are more than happy to visit schools to spread awareness. For
     more information about Darius Goes West, please visit the website
     at www.dariusgoeswest.org.
                                                                                                                                                            Non Profit
                                                                                                                                                           U.S. Postage
                                                                                                                                                              PAID
8503 LaSalle Road
                                                                                                                                                           Permit #5954
Towson, Maryland 21286
                                                                                                                                                           Towson, MD
                                                                                                                                                              21286
Return Service Requested




Phone: 410-828-7700
Toll Free: 1-800-492-2523
Fax: 410-828-7708
www.abilitiesnetwork.org

 HARFORD COUNTY
 401 Market Street, Suite 100
 Aberdeen, Maryland 21001
 Phone: 410-272-3712, 1-866-454-9677 Fax: 410-272-3892

 SOUTHERN MARYLAND
 132 Holiday Court, Suite 211,
 Annapolis, Maryland 21401
 Phone: 410-266-7941, 1-800-966-7940 Fax: 410-841-2476

 PG/MONTGOMERY COUNTY
 1738 Elton Road, Suite 205
 Silver Spring, Maryland 20903
 Phone: 301-431-7740 Fax: 301-431-7742

 CHARLES COUNTY
 9375 Chesapeake Street, Suite 103
 LaPlata, Maryland 20646
 Phone: 301-392-3554 Fax: 301-392-3558

 WESTERN MARYLAND
 5300 Westview Drive, Suite 408
 Frederick, Maryland 21703
 Phone: 301-695-9505, 1-800-394-9504 Fax: 301-695-3340

 GARRETT & ALLEGANY COUNTIES
 317 Beall Street
  u
 C� mberland, Maryland 21052
 Phone: 301-777-2895 Fax: 301-777-2897

 MARYLAND RELAY
 711 IN MARYLAND (TTY/VOICE)
 1-800-735-2258 FROM ANYWHERE (TTY/VOICE)




                                  SUPPORT GROUPS
   Epilepsy Support Groups

    A support group for adults with seizure disorders and their loved ones/ caregivers to share concerns, exchange information and address the dynamics of living well
    with seizure disorders. New members and visitors are always welcome.

          PARENT GROUP                                                                  Harford County
          “Making Connections” Parent Support Group                                     Dates: November 5th, December 3rd, 6:00 PM
          Dates: November 18th, December 16th, 7:00-8:30 PM                             Location: Abingdon Library, 2510 S. Tollgate Road, Abingdon,
          Location: Abilities Network, 8503 LaSalle Road, Towson, MD 21286              MD 21009
          For more information contact: Sarah Pinsker at 410-828-7700 or                For more information contact: Trisha Stiles at 410-272-3712
          spinsker@abiltiesnetwork.org                                                  or tstiles@abilitiesnetwork.org

                                                                                        Howard County
          ADULT GROUPS                                                                  Dates: November 5th, December 3rd, 6:30 PM
          Anne Arundel County                                                           Location: Faulkner Ridge Center, 10598 Marble Faun Lane, Columbia,
          Dates: November 24th, December 22nd, 6:30-8:00 PM                             MD 21044
          Location: Severna Park Library, 45 McKinsey Road, Severna Park,               For more information contact: Cassandra Hitchcock at 410-828-7700
          MD 21146                                                                      or chitchcock@abilitiesnetwork.org
          For more information contact: Ken Case at 410-266-7941
          or kcase@abilitiesnetwork.org                                                 Montgomery County & Prince George’s County
                                                                                        Dates: November 20th, December 18th, 6:00 PM
          Baltimore County/ Baltimore City                                              Location: Abilities Network, 1738 Elton Road, Suite 312, Silver Spring
          Dates: November 18th, December 16th (Holiday Party),                          MD 20903
          7:00-8:30 PM                                                                  For more information contact: An Tran at 301-431-7740
          Location: Abilities Network, 8503 LaSalle Road, Towson, MD 21286              or atran@abilitiesnetwork.org
          For more information contact: Sarah Pinsker at 410-828-7700
          or spinsker@abiltiesnetwork.org                                               Tri-County Area (Calvert, Charles & St. Mary’s Counties)
                                                                                        Dates: November 13th, December 11th, 6:30 PM
          Frederick County                                                              Location: Charlotte Hall Library, 37600 New Market Rd. Charlotte Hall,
          Dates: November 4th, December 2nd, 6:30 PM                                    MD 20622
          Location: C. Burr Artz Public Library, Trust Conference Room,                 For more information contact: Danielle Wright at 301-392-3554
          110 E. Patrick Street, Frederick, MD 21701                                    or dwright@abilitiesnetwork.org
          For more information contact: Christine Semon at 301-695-9505
          or csemon@abilitiesnetwork.org                                                SIBSHOPS
                                                                                        Sibshops are support groups for children ages 8-13 who have siblings
                                                                                        with special needs. For further information, dates and location, please
                                                                                        visit our website at www.abilitiesnetwork.org.


    Dates and Times are subject to change due to inclement weather or scheduling conflicts.

				
DOCUMENT INFO