Field data by luckboy

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									UKCP
Name
UKCP_ID RegCode RegID Sex YOB MOB BW Gest ResBrth Infants BthOrder MAge Status DOD SCBU RAbnorm RJerky RWrithe RTremor RFlxExt EAbnorm EJerky EWrithe ETremor EFlxExt EIncoord EPostur RUTone LUTone RLTone LLTone Cntrct ASymTone WrstSide WUpper WLower Speech Swallow Drool Head Trunk WalkAids

Description
Unique identifier (Register code & record sequence) Register code Register ID Sex Year of birth Month of birth Birthweight (g) Gestation (wks) Resident in area at birth? Number of babies delivered Birth order Mothers age at birth Live or dead? Date of death Special care nursery? No unwanted movements at rest? Short/jerky movements at rest? Slow/writhing movements at rest? Tremor at rest? Flexor/extensor spasms at rest? No unwanted movements with excitement? Short/jerky movements with excitement? Slow/writhing movements with excitement? Tremor with excitement? Flexor/extensor spasms with excitement? Inco-ordination with excitement? Abnormal postures with excitement? Tone - right upper arm Tone - left upper arm Tone - right lower limb Tone - left lower limb Contractures? Obvious asymmetry of tone? Worst side (asymmetry) Upper worse than lower? Lower worse than upper? Problems with speech? Problems with swallowing? Problems with drooling? Head and neck control? Trunk control Aids used to facilitate walking?

Field values

1=Male, 2=Female, 9=Not known 9999=Not known 99=Not known 9999=Not known 99=Not known 1=Resident in area at birth, 2=Resident outside area, 9=Not known 1=Singleton, 2=Twins, 3=Triplets, 4=Quadruplets, 5=Quintuplets, 6=Sextuplets, 7=Heptuplets, 8=>1, 99=Unknown 1=First infant, 2=Second infant, 3=Third infant, 4=Fourth infant, 5=Fifth infant, 6=Sixth infant, 7=Seventh infant, 9=Not known 99=Not known 1=Live, 2=Dead 8888=Not applicable, 9999=Not known 1=Yes, 2=No, 9=Not known 1=Yes, 2=No, 9=Not known 1=Yes, 2=No, 9=Not known 1=Yes, 2=No, 9=Not known 1=Yes, 2=No, 9=Not known 1=Yes, 2=No, 9=Not known 1=Yes, 2=No, 9=Not known 1=Yes, 2=No, 9=Not known 1=Yes, 2=No, 9=Not known 1=Yes, 2=No, 9=Not known 1=Yes, 2=No, 9=Not known 1=Yes, 2=No, 9=Not known 1=Yes, 2=No, 9=Not known 1=Within normal range, 2=Increased, 3=Decreased, 4=Varying, 9=Not known 1=Within normal range, 2=Increased, 3=Decreased, 4=Varying, 9=Not known 1=Within normal range, 2=Increased, 3=Decreased, 4=Varying, 9=Not known 1=Within normal range, 2=Increased, 3=Decreased, 4=Varying, 9=Not known 1=Yes, 2=No, 9=Not known 1=Yes, 2=No, 9=Not known 1=Right, 2=Left, 8=Not applicable, 9=Not known 1=Yes, 2=No, 9=Not known 1=Yes, 2=No, 9=Not known 1=Yes, 2=No, 9=Not known 1=Yes, 2=No, 9=Not known 1=Yes, 2=No, 9=Not known 1=Normal, 2=Abnormal but head up, 3=Poor but hold short period, 4=No control, 9=Not known 1=No problem, 2=Sit unsupp, 3=Cannot sit unless supp, 4=Severe impairment, 9=Not known 1=Yes, 2=No, 3=Not applicable, 9=Not known

24 June 2002

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UKCP
Name
LoLimbFn

Description
Lower limb function

Field values
1=No functional consequences/walks fluently/no problems/normal, 2=Walking restricted but unaided/functional non-fluent/minimal defect, 3=Walking limited with aids/restricting lifestyle/reduced or restricted mobility/uses sticks or crutches, 4=Unable to walk even with aids/uses wheelchair or is bedridden, 9=Not known 1=Normal/no problem, 2=Some difficulty, 3=Able to feed self/needs help to dress/eat, 4=Unable to feed self/dress, 9=Not known 1=Yes, 2=No, 9=Not known 1=Yes, 2=No, 9=Not known 1=Yes, 2=No, 9=Not known 1=Yes, 2=No, 9=Not known 1=Yes, 2=No, 9=Not known 1=Yes, 2=No, 9=Not known 1=Yes, 2=No, 9=Not known 1=Yes, 2=No, 9=Not known 1=Yes, 2=No, 9=Not known 1=Yes, 2=No, 9=Not known 1=Yes, 2=No, 3=Uncertain, 8=Not applicable, 9=Not known 1=Yes, 2=No, 9=Not known 1=Yes, 2=No, 9=Not known 1=Normal/mild/IQ>=70, 2=Moderate, 3=Severe, 9=Not known 1=Yes, 2=No, 3=Uncertain, 9=Not known 1=Spastic, 2=Dystonic dyskinesia, 3=Choreo-athetotic dyskinesia, 4=Ataxia, 5=Monoplegia, 6=Dyskinesia, 9=Not known 1=Bilateral, 2=Hemiplegic, 8=Not applicable, 9=Not known 2=2 limbs, 3=3 limbs, 4=4 limbs, 8=Not applicable, 9=Not known 1=Yes, 2=No, 9=Not known 99=Not known 99=Not known 99=Not known 1=Yes, 2=No, 9=Not known

UpLimbFn

Upper limb function

VImp VImpSev Glasses Squint SqntSurg AbnoEyeM Fixation Tracking HImp HImpSev HearAids IImp IImpSev ILevel Seizure TypeCP

Visual impairment? Severe visual impairment? Glasses or other aids to vision? Squint present? Surgery for squint? Abnormal eye movements? Problem with fixation? Problem with tracking? Hearing impairment? Severe hearing impairment? Does child use hearing aids? Intellectual impairment (IQ<70)? Severe intellectual impairment (IQ<50)? Intellectual level Seizures? CP type by SCPE classification

TypeSpas TypeBila ConMal PrevPreg LiveBths Miscarr PNIns PNInsCd1 PNInsAge

Type of spastic CP Type of bilateral CP Congenital malformation present? Number of previous pregnancies Number of previous livebirths Number of previous miscarriages Post neonatal insult? Post neonatal insult code 1? Post neonatal insult age?

24 June 2002

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