NATIONAL ORGANIZATIONS FOR ADVOCACY SUPPORT AND GENERAL

Document Sample
NATIONAL ORGANIZATIONS FOR ADVOCACY SUPPORT AND GENERAL Powered By Docstoc
					     NATIONAL ORGANIZATIONS FOR ADVOCACY, SUPPORT AND
          GENERAL INFORMATION ON BRAIN DISORDERS
                   AND MENTAL ILLNESSES
Advocacy Unlimited
(Web site) www.mindlink.org

The Alzheimer’s Association
(Web site) www.alz.org

Alzheimer Web
(Web site) werple.mira.net.au/∼dhs/ad.html

American Academy of Child & Adolescent Psychiatry
3615 Wisconsin Avenue, NW
Washington, DC 20016-3007
(Phone) 202-966-7300 (Fax) 202-966-2891 (Web site) www.aacap.org

American Academy of Neurology
(Web site) www.aan.com

American Anorexia/Bulimia Association, Inc.
293 Central Park West, Suite 1R
New York, NY 10024
(Phone) 212-501-8351

American Association of Suicidology
4201 Connecticut Ave., N.W., Suite 408
Washington, DC 20008
(Phone) 202-237-2280 (Fax) 202-237-2282 (Web site) www.suicidology.org

American Foundation for Suicide Prevention
120 Wall Street, 22nd floor
New York, NY 10005
(Phone) 888-333-2377 (Fax) 212-363-6237 (Web site) www.afsp.org

American Psychiatric Association
1400 K Street, NW, Suite 501
Washington, DC 20005
(Phone) 202-682-6000 (Web site) www.psych.org

American Psychological Association
750 First Street, N.E.
Washington, DC 20002
(Phone) 202-336-5500 (Web site) www.apa.org

Anorexia Nervosa and Related Eating Disorders, Inc. (ANRED)
P.O. Box 5102
Eugene, OR 97405
(Phone) 541-344-1144

Anxiety and Phobia Treatment Center
www.phobia-anxiety.com




                                                 1
Anxiety Disorders Association of America
6000 Executive Boulevard, #513
Rockville, MD 20852
(Phone) 301-231-9350 (Fax) 301-231-7392 (Web site) www.adaa.org (E-mail) anxdis@aol.com

Anxiety Disorders Education Program (ADEP)
National Institute of Mental Health
National Institutes of Health
5600 Fishers Lane, Room 7-99
Rockville, MD 20857
(Phone) 301-443-4536 or 1-88-88-ANXIETY (Web site) www.nimh.nih.gov/anxiety

Asperger Syndrome Education Network (ASPEN, Inc.)
(Asperger Syndrome, Pervasive Developmental Disorder, high-functioning Autism)
(Web site) www.aspenng.org (Send E-mail) info@aspennj.org

Autism Research Institute
4182 Adams Avenue
San Diego, CA 92116
(Phone) 619-281-7165 (Fax) 619-563-6840

Autism Society of America
7910 Woodmont Ave., Suite 650
Bethesda, MD 20814-3015
(Phone) 301-657-0869 or 800-328-8476        (Web site) www.autism-society.org

Bazelon Center for Mental Health Law
1101 15th Street NW, Suite 1212
Washington, DC 20005
(Phone) 202-467-5730 (Web site) www.bazelon.org

The Bipolar Child
(Demitri Papolos’s, MD and Janice Papolos’s Web site) www.bipolarchild.com

BPSO
(Web site) www.BPSO.org (click on Children and Adolescent icon)
Internet support group for people in relationships with someone who has a bipolar disorder (children, parents,
siblings, spouses, etc.).

Boston University Center for Psychiatric Rehabilitation
930 Commonwealth Avenue
Boston, MA 02215
(Phone) 617-353-3549

Center for Mental Health Services
Office of Consumer, Family and Public Information
Knowledge Exchange Network (KEN)
Information sent from:                         Send information to:
       P.O .Box 42490                                 5600 Fishers Lane, Rm. 13
       Washington, DC 20015                           Rockville, MD 20857
       (Phone) 800-789-2647
       (Web site) www.mentalhealth.org




                                                       2
The Child and Adolescent Bipolar Foundation (CABF)
1187 Willmette Ave., #PMB 331
Willmette, IL 60091
Phone: 847-256-8525 (Web site) www.bpkids.org
Interactive website offers online support groups, chat rooms, message boards, learning center, database of
professional members and local support groups, plus resource page with information on Social Security, drug
database.

Children and Adults with Attention Deficit Disorders (CH.A.D.D.)
499 N.W. 70th Avenue, Suite 101
Plantation, FL 33317
(Phone) 800-233-4050 (Web site) www.chadd.org

Consumer Managed Care Network
National Association of State Mental Health Program Directors (NASMHPD)
66 Canal Center Plaza, #302
Alexandria, VA 22314
(Phone) 703-739-9333 (Fax) 703-548-9517

Consumer Satisfaction Team, Inc.
520 N. Delaware Ave., Suite 4-A-01
Philadelphia, PA 19123
(Phone) 215-923-9627

Council on Anxiety Disorders
Rt. 1, Box 1364
Clarkesville, GA 30523
(Phone) 910-722-7760 (Fax) 706-947-1265

Department of Housing and Urban Development (HUD)
Office of Fair Housing and Equal Opportunity
Disability Rights Office
451 7th St., SW, Room 5242
Washington, DC 20410
(Phone) 202-708-2618, Ext. 345

Depression and Bipolar Support Alliance (formerly National Depressive and Manic-Depressive
Association)
730 N. Franklin Street, Suite 501
Chicago, IL 60610
(Phone) 800-826-3632 or 312-642-0049 (Fax) 312-642-7243 (Web site) www.DBSAlliance.org

Depression and Related Affective Disorders Association
Johns Hopkins Hospital, Meyer 3-181
600 N. Wolfe St.
Baltimore, MD 21287-7381
(Phone) 410-955-4647 (Fax) 410-614-3241 (Web site) www.med.jhu.edu/drada

Depression Awareness Recognition and Treatment (D/ART)
National Institute of Mental Health
5600 Fishers Lane, Rm. 10-85
Rockville, MD 20857
(Phone) 301-443-4140 or 800-421-4211 (Web site) www.nimh.nih.gov/publicat/eduprogs/dart.htm

Dr. Ivan Goldberg’s Site
www.psycom.net/depression.central.html


                                                     3
Dystonia Medical Research Foundation
One E. Wacker Dr., Suite 2430
Chicago, IL 60601-2001
(Phone) 800-377-3978 or 312-755-0198 (Web site) www.zipnet.net/users/dystonia
(E-mail) dystfndt@aol.com

Equal Employment Opportunity Commission
Americans with Disabilities Act
1801 L Street NW
Washington, DC 20507
(Phone) 202-663-4900 or 800-669-3362

Family Advocacy and Support Association
P.O. Box 74884
Washington, DC 20056-4884
(Phone) 202-576-6065

Family Voices
3411 Candelaria NE, Suite M
Albuquerque, NM 87107
Phone: 888-835-5569
(E-mail) kidshealth@familyvoices.org   (Web site) www.familyvoices.org

Federation of Families for Children’s Mental Health
1021 Prince Street
Alexandria, VA 22314-2971
(Phone) 703-684-7710 (Web site) www.ffcmh.org

       Federation of Families for Children’s Mental Health, Colorado Chapter
       2950 Tennyson St.
       Denver, CO 80215
       (Phone) 720-855-3493

Frequently asked questions about neurological disorders -
Cleveland Clinic
(Web site) www.neus.ccf.org/patients/faq.html

Gateway to Neurology at Massachusetts General Hospital
(Web site) demOnmac.mgh.harvard.edu/

International Association of Psychosocial Rehabilitation Services (IAPSRS)
10025 Governor Warfield Pkwy, #301
Columbia, MD 21044-3357
(Phone) 410-730-7190 (Fax) 410-730-5965 (E-mail) iapsrs33@aol.com

Juvenile Bipolar Research Foundation (JBRF)
49 S. Quaker Hill Road, Pawling, NY 12564
(E-mail) info@bpchildresearch.org (Web site) www.bpchildresearch.org

Lithium Information Center
C/o Madison Institute of Medicine
PO Box 628365
Middleton, WI 53562-8365
(Phone) 608-827-2470 (Fax) 608-827-2479




                                                      4
McMan’s Depression and Bipolar Web
www.mcmanweb.com
Nearly 200 highly readable articles, including articles on early-onset bipolar disorder. Online weekly newsletter
– latest research from new therapies to social legal issues to book and movie reviews. Available on a
subscription basis, but go to website for free samples.

Mental Health Matters
MH and MI Information and Resources for MH Professionals, Consumers & Families
www.mental-health-matters.com

Mental Health Net
Surfer-friendly site; recommended reading, professional resources, pharmacological encyclopedia
www.cmhc.com

National Alliance for the Mentally Ill (NAMI)
Colonial Place Three
2107 Wilson Blvd., Suite 300
Arlington, VA 22201-3042
(Phone) 703-516-7600 or 800-950-6264 (TDD) 703-516-7991
(Web site) www.nami.org (Fax) 703-524-9094

       NAMI Colorado
       1100 Fillmore Street
       Denver, CO 80206
       303-321-3104

National Alliance for Research on Schizophrenia and Depression (NARSAD)
60 Cutter Mill Road, Suite 404
Great Neck, NY 11021
(Phone) 516-829-0091 or 800-829-8289 (Web site) www.narsad.org

National Anxiety Foundation
3135 Custer Dr.
Lexington, KY 40517-4001
(Write for information only; web site in preparation – consult www.dana.org)

National Association of Anorexia Nervosa and Associated Disorders (ANAD)
PO Box 7
Highland Park, IL 60035
(Phone) 847-831-3438

National Association for Children of Alcoholics
11426 Rockville Pike, Suite 100
Rockville, MD 20852
(Phone) 301-468-0985

National Community Mental Healthcare Council
12300 Twinbrook Parkway, #320
Rockville, MD 20852
(Phone) 301-984-6200

National Depressive and Manic-Depressive Association (NDMDA)
See Depression and Bipolar Support Alliance




                                                       5
National Empowerment Center
20 Ballard Rd.
Lawrence, MA 01843
(Phone) 800-769-3728

National Foundation for Depressive Illnesses
PO Box 2257
New York, NY 10116
(Phone) 800-248-4344 (Web site in preparation; consult www.dana.org)

National Institute on Alcohol Abuse and Alcoholism
6000 Executive Blvd., Willco Building
Bethesda, MD 60610
(Web site) www.niaaa.nih.gov

National Institute of Mental Health
Office of Communications and Public Liaison
 Information Resources and Inquiries Branch
6001 Executive Blvd, Rm. 8184, MSC 9663
Bethesda, MD 20892-9663
(Phone) 301-443-4513 or 800-421-4211 (Web site) www.himh.nih.gov (E-mail) nimhinfo@nih.gov

National Institute of Mental Health Suicide Research Consortium
(Web site) www.nimh.nih.gov/research/suicide.htm

National Institute on Drug Abuse
6001 Executive Blvd.
Bethesda, MD 20892
(Phone) 800-644-6432 (Web site) www.nida.nih.gov

National Library of Medicine
www.nlm.nih.gov/medlineplus

National Foundation for Depressive Illness
P.O. Box 2257
New York, NY 10116-2257
(Phone) 212-268-4260 or 800-248-4344

National Mental Health Association
2001 N. Beauregard St., 12th floor
Alexandria, VA 22311
(Phone) 703-684-7722 or 800-969-6642 (Fax) 703-684-5968 (TTY) 800-443-5959
(Web site) www.nmha.org

      Mental Health Association of Colorado
      6795 E. Tennessee Avenue, Suite 425
      Denver, CO 80224
      (Phone) 303-377-3040 (Fax) 377-4920

National Mental Health Consumers Self-Help Clearinghouse
1211 Chestnut Street, Suite 1000
Philadelphia, PA 19107
(Phone) 800-553-4539 (TTY) 215-751-9655 (Fax) 215-636-6310
(E-mail) info@mhselfhelp.org. (Web site) www.mhselfhelp.org/index2.html




                                                   6
National Mental Illness Screening Project
One Washington Street, Suite 304
Wellesley Hills, MA 02481
(Phone) 800-573-4433 (Depression Screening) (Fax) 781-431-7447 (Web site) www.nmisp.org

National Schizophrenia Foundation
403 Seymour Street, Suite 202
Lansing, MI 49833
(Phone) 517-485-7168, 800-482-9534 (consumer line) (Fax) 485-7180
(Web sites) www.NSFoundation.org www.SAnonymous.org

National Sibling Network
P.O. Box 300040
Minneapolis, MN 55403
(Phone) 612-872-1565

National Women’s Health Information Center (NWHIC)
(Phone) 800-994WOMAN (TTY) 888-220-5446 (Web site) www.4woman.gov

Obsessive Compulsive Information Center
Dean Foundation
8000 Excelsior Dr., Suite 302
Madison, WI 53717-1914
(Phone) 608-836-8070

The Obsessive-Compulsive Foundation
PO Box 70
Milford, CT 06460-0070
(Phone) 203-878-5669 (Web site) pages.prodigy.com/alwillen/ocf.html (E-mail) jphs28a@prodigy.com

Panic Disorder Education Program
National Institute of Mental Health
5600 Fishers Lane, Rm. 7C-02
Rockville, MD 20857
(Phone) 800-647-2642 or 800-950-6264 (Web site) www.nimh.nih.gov (E-mail) nimhinfo@nih.gov

Parent Advocacy Coalition for Educational Rights
4826 Chicago Avenue, South
Minneapolis, MN 55417
(Phone) 612-827-2966 (E-mail) mnpacer@gteens.com.

Parents of Bipolar Children
(Website) www.bpparent.org (E-mail) bpparents@geocities.com
Instructions for subscribing to BPParent listserv, the greatest source of support and information available to
parents, are on this site.

Pendulum Resources
www.pendulum.org

The Parkinson’s Web
(Web site) neuro-chief-e.mgh.harvard.edu/parkinsonsweb/Main/PDmain.html

Recovery, Inc.
802 N. Dearborn St.
Chicago, IL 60610
(Phone) 312-337-5661     (Web site) www.ed.psu.edu/∼recovery


                                                        7
Schizophrenics Anonymous
c/o MHAM
15920 W. Twelve Mile Rd.
Southfield, MI 48076
(Phone) 248-557-6777

Selective Mutism Foundation, Inc.
P.O. Box 450632
Sunrise, FL 33345-0632
(Phone & Fax) 305-748-7714

The Stanley Foundation Bipolar Network
5430 Grosvenor Lane, Suite 200
Bethesda, MD 20814
(Phone) 800-518-7326 (Web site) www.bipolarnetwork.org

Substance Abuse and Mental Health Services Administration (SAMHSA)
National Clearinghouse for Alcohol and Drug Information
P.O. Box 2345
Rockville, MD 20847-2345
(Phone) 301-468-2600 (Web site) www.samhsa.gov/cmhs/cmhs.htm.

Suicide Prevention Advocacy Network
5034 Odin’s Way
Marietta, GA 30068
(Phone) 888-649-1419 (Web site) www.spanusa.org

Surgeon General of the United States
(Web site) www.surgeongeneral.gov

Tardive Dyskinesia/Tardive Dystonia National Association
4244 University Way, NE
P.O. Box 45732
Seattle, WA 98145-0732
(Phone) 206-522-3166 (Web site) www.dana.org

Teaching LD.Org
www.teachingLD.org
Information on research-based teaching strategies and approaches and interviews with experts in all aspects
of learning disabilities. Helpful to teachers with questions about the best way to work with bipolar children is
the “Find a Colleague” section in which a teacher can build a profile and search a database in order to find
other teachers and mentors who are dealing with a child of the same age with the disorder and then share
knowledge and strategies of what has been effective.

Tourette Syndrome Association, Inc.
42-40 Bell Boulevard
Bayside, NY 11361-2820
(Phone) 800-237-0717 or 718-224-2999 (Web site) neurowww2.mgh.harvard.edu/tsa/tsamain.nclk
(E-mail) tourette@ix.netcom.com

Trichotillomania Learning Center
1215 Mission Street, Suite 2
Santa Cruz, CA 95060
(Phone) 408-457-1004 (Web site) www.dana.org




                                                        8
VidaPress (Web site) www.dana.org
Website for Xavier Amador, author of I AM NOT SICK I DON’T NEED HELP. You can subscribe to a
newsletter where you will get up-to-date information about advances in treatment of serious mental illnesses,
new research, legal news, and other updates that you can use.

Youth Mental Health Update
P.O. Box 3926
New Hyde Park, NY 11040




Developed and distributed by Colorado Division of Mental Health. For more information contact Donna Stains,
303-866-7191 or donna.stains@state.co.us.


                                                                                Organizations Updated January 20, 2004




                                                          9