Jo Moriarty by xl771209

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									The participation of adult service users in developing social care
Jennifer Taylor Vic Forrest Jo Moriarty

SCIE Birmingham 14/06/2007

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What we are going to do
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Welcome
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Thank you for coming to this seminar

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Short presentations from
Jennifer  Vic  Jo
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Time for us all to share our ideas and discuss
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SCIE Birmingham 14/06/2007

Not everyone involved is here today
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This is the work of a team from:
King’s College London  Shaping Our Lives  Centre for Citizen Participation  Race Equality Foundation  Royal Free and University College School of Medicine
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What we did
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Shaping Our Lives organised two meetings
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They wrote a report of what people said

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People organising services helped
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They told us what they did and how they helped service users to participate

We read what other people had written  We put together everything we learned in one report
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Ground rules (summary)
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Jennifer will read out ‘ground rules’:
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Shaping Our Lives think that in meetings we should all…
Respect and value our different opinions  Only talk one at a time  Use simple words and no abbreviations  Try and talk slowly  Ask people to repeat things that are unclear  Don’t use personal names when talking about what we have said in reports or discussions
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Jennifer (1)
I would like services to change  I want the bullying to stop  We need to stand up to services  People sometimes haven’t got funding for transport  Some services can be good; some are bad  I like to have control over my life
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Jennifer (2)
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I don’t like no one being nasty to me Good service staff are nice I feel in control when I get the right support
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I feel in control of the book of the book I have done. The book is called ‘We are not stupid’ When I go to meetings with other people with learning difficulties

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Good staff give you a better service Bad staff are not behaving well
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Vic
Supports people in different ways  Need to think about the help people need to participate
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Need for big changes
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We found it helpful to think about participation being like a jigsaw
CULTURE STRUCTURE

PRACTICE

REVIEW

Wright et al., 2006
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Culture
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Describes the way that people usually behave
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Jennifer’s example of people saying nasty things

Some people might need training
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Service users can help with training People should recognise how much service users know If service users have more control, they can say what people should and shouldn’t do

Service users are experts
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Structure (1)
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This covers all the things that make it more difficult for people to participate
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Jennifer’s example of transport Choose venues carefully Send out (short) papers before meeting Have people who can help with explanations
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Need to plan in advance
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Pictures, interpreters

Set aside time for service users to say what they want to say
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Control of agenda
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Structure (2)
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Make it easier for people to join in meetings
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‘Ground rules’
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‘Excluding users deliberately [by using jargon is] a form of bullying. We show them a red (a warning) and yellow card (to stop them) at our meetings if they do that in their presentations’ Stick to time
Plan budgets to cover travel and support costs Fees can be complicated but this should not be used as an excuse

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Make sure people don’t lose out financially
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Provide training to help people participate

SCIE Birmingham 14/06/2007

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Practice (1)
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The way people behave can make it a good or bad experience
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Jennifer said that ‘good staff’ are friendly

Need for ‘atmospheric access’  Need different types of participation
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Vic’s example of different types of support

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Need to make it more fun
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Stories, photos, as well as questionnaires
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SCIE Birmingham 14/06/2007

Practice (2)
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‘Day to day’ participation is important
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Jennifer’s example of people saying ‘half and half’ about their control over their life Funding for ‘forums’ so people can look at what happens every day
Language and communication
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Harder to achieve than holding meetings
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Need to think about support needs
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SCIE Birmingham 14/06/2007

Review
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Review means looking to see what has changed and if not why not
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Jennifer said ‘not sweeping things under the carpet’

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Some organisations found it hard to go over what they had done
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Knowing how to do it and having the money to do it were problems Service users sometimes included in this work

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Others had systems
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What we concluded (1)
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Things have improved but it’s not perfect
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It’s not about what we do but what happens as a result

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Organisations and professionals often think in terms of meetings
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Not everyone likes meetings

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What we concluded (2)
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They know what to do but don’t always do it
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Can underestimate level of skills needed (Vic)

Not just about social care and health services
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Housing and transport Attitudes in society (Jennifer)

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Participation and quality are not always linked but they should be

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Guide will give you
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Ideas from service users on what to do
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Action points

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Summaries of what researchers (including service user researchers) have written
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Many are available free on the web

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Ideas from organisations about they have done
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Thanks
Thank you for listening  Thanks to everyone who helped with the guide  Thanks to SCIE for funding the guide
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