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					                                                                                                                                                                                                                                                            Spring 2004
                                                                                                 NON-PROFIT ORGANIZATION
                                                                                                      U.S. POSTAGE
                               650 CLARK WAY, PALO ALTO, CA 94304 TEL 650.326.5530 FAX
                                                                                                        P A I D
                               650.688.0206
                                                                                                  PALO ALTO, CALIFORNIA
                                                                                                     PERMIT NO. 20




                                                                                                                                                                             Newsletter of the Children’s Health Council

                                                                                                                                        News in Brief
                                                                                                                                                                                 Occupational Therapy for
                                                                                                                                                                                                                                   Children
                                                                                                                           N ovember 25 - 26: CHC Ar t Show
                                                                                                                           showcases client and staff talent
                                                                                                                              The CHC Art Show included over 200 pieces
                                                                                                                           of artwork. Contributors included students from       The American Occupational Therapy Association has designated
                                                                                                                           the Esther B. Clark School, clients of the Chil-      the month of April to be National Occupational Therapy Month.
                                                                                                                           dren with Complex Medical Problems (CCMP)
                                                                                                                           Program , and CHC staff. Artwork by the EBC              For most of us, dressing ourselves and brushing our
                                                                                                                           School students focused on exploring legend-          teeth are simple tasks done habitually every morning.
                                                                                                                           ary artists throughout history. They utilized vari-   Rarely do we think twice about how our body moves
                                                                                                                           ous art mediums in a therapeutic manner by            to allow us to accomplish these feats. However, for
 In this issue:                                                                                                            exploring the expression and techniques of many       people who have survived a physically debilitating
                                                                                                                           artists including Renoir, Matisse, Andy Warhol,
                                                                                                                                                                                 disease or accident, performing these daily activi-
                                                                                                                           and Henry Moore. Artwork by the CCMP cli-
                                                                                                                           ents depicted their own experiences, feelings         ties may require hard work and time. Fortunately,
 Page 1 - State reviews EBC School                                                                                         and thoughts as children with medical difficul-       with the help of occupational therapy, patients of all
                                                                                                                           ties. For more information on the CHC Art             ages can now get the specialized assistance they
 Page 3 - Celebrating Our 50th Anniversary
                                                                                                                           Therapy Program, please call (650) 326-5530.          need.
 Page 6 - Auxiliary Corner                                                                                                                                                          Occupational Therapy (OT) is a profession that emerged
                                                                                                                           February 17 - 20: Schools Attuned Training            shortly after World War I when soldiers who had physical and
                                                                                                                           continues to educate K-12 teachers
                                                                                                                                                                                 psychological deficits required rehabilitation. Since then, the field has ex-
 Featured Topic                                                                                                               As a regional training site for Schools Attuned,
                                                                                                                           26 educators from across the country came to          panded significantly and, in the last 20 years, has become one of the fastest
 Occupational Therapy for Children                                                                                                                                               growing professions.
                                                                                                                           CHC and received new information, as well a
                                                                                                                           system of innovative tools, to meet the diverse
                                                                                                                           needs of K-12 students. Based on over thirty          Pediatric OT
                                                                                                                           years of work by Dr. Mel Levine, Schools Attuned        While the three traditional areas of practice in OT are rehabilitation, psychia-
Calendar of Events                                                                                                         offers teachers new methods of recognizing, un-       try and pediatrics, over one-third of all occupational therapists work in pediatric
                                                                   Summer Symphony 2004                                    derstanding, and managing students with differ-
                                                                                                                           ences in learning. Two upcoming workshops in
                                                                                                                                                                                 hospitals, school systems and pediatric health care facilities. Patients from
April 22 CHC Spring Exchange: Staying Connected                                                                            June and August are expected to bring over 150        pediatric hospitals often require OT for their acute or chronic disabilities,
with Your Teenager                                                                                                         educators from around the world.                                                                       See Occupational Therapy on page 4.
A dinner and discussion moderated by Dr. Michael Riera.                                                                       CHC continues to take Schools Attuned “on
This event is sponsored by the CHC Auxiliary. For more                                             featuring               the road” with local customized trainings, by         School receives excellent results from state review
information, please call (650) 617-3814.                                                                                   bringing programs and seminars onsite to                The Esther B. Clark School certainly has much to be proud of this year. On
                                                                                         Kenny Loggins                     schools. Marin County has embraced the                January 22, a reviewer from the California Department of Education (CDE) met
May 15 - 16 Sunset Celebration                                                                                             Schools Attuned methodology and, for the sec-
                                                                                                                                                                                 and interviewed EBC School staff as part of a Coordinated Compliance Review
Sign up as a CHC volunteer! Sunset will make a donation                                                                    ond year running, has requested a county-wide
to CHC for every hour worked by a CHC volunteer! For                                                                       local customized training. For more information
                                                                                                                                                                                 (CCR), an onsite review required for all certified non-public schools. Upon a
more information, please call (650) 617-3818 or email                                                                      on Schools Attuned at the Children’s Health           complete review of the EBC School, the reviewer gave the school full-approved
                                                                                         Opening performance by the                                                              certification with no required corrective actions.
volunteers@chconline.org.                                                                                                  Council, please call (650) 688-3675 or email                                                                 “Less than 10% of
                                                                                         California Youth Symphony         bcombellick@chconline.org.                              “We are very proud of this accomplishment as it
                                                                                                                                                                                                                                        these sites pass the
May 22 Professional Development: Pediatric                                                                                                                                       assures us that we are indeed providing a quality
Psychopharmacology Update                                                                                                  February 25: Guest artist announced for               program with outstanding results and making a          CCR visitation...”
Lecturers, who are leaders in their respective fields, will                                                                Summer Symphony 2004
                                                                                                                                                                                 measurable difference in the lives of our students,” beams Lucia D’Souza, EBC
share the latest research & medications/treatments                                Sunday, July 18, 2004                      Grammy-award winning artist Kenny Loggins
                                                                                                                           will be headlining the 45th annual Summer
                                                                                                                                                                                 School Director.
regarding ADHD, anxiety, depression, mood disorders &                                                                                                                              Every four years, the CDE conducts these visits to review current operating
                                                                                                                           Symphony concert on Sunday, July 18th.
juvenile aggression. For more information or to register,          Individual and corporate sponsorship packages                                                                 policies and procedures, current behavioral, academic and therapeutic pro-
                                                                                                                           Loggins is well known for his contribution to hit
please call (650) 617-3806.                                        available now for advanced purchase.                    movie soundtracks, including Footloose and Top        grams and to review the quality of the overall program. The information is then
                                                                                                                           Gun. The event will also feature an opening           shared with parents, school districts and staff.
June 21 - 25 Schools Attuned Training                                                                                      performance by the California Youth Symphony.
CHC is one of nine regional training sites in the country for      To become a sponsor, please call (650) 326-0643                                                                 The reviewer met and interviewed staff, took a tour of the facilities, observed
                                                                                                                           Last year, legendary trio Peter, Paul and Mary
the nationally acclaimed Schools Attuned Program created           or visit www.summersymphony.org.                                                                              classrooms and reviewed student files and other required documentation.
                                                                                                                           helped raise over $600,000 for CHC programs
by Dr. Mel Levine. For more information, call (650) 688-                                                                   and services. For more information on the event,
                                                                                                                                                                                   “The CDE monitors over 350 [non-public school] sites in and out of CA. Less
3675 or email bcombellick@chconline.org. More                      Individual tickets go on sale June 1.                   please call the Summer Symphony Hotline at            than 10% of these sites pass the CCR visitation without requiring any correc-
information can also be found at www.schoolsattuned.org.                                                                   (650)    617-3859       or   go    online     to                                                                See State Review on page 7
                                                                                                                           www.summersymphony.org.
            2                                                                                                                                                                                                                                   7

From the Executive Director
                                                                                   CHC FOUNDER
                                                                                   Esther B. Clark, M.D. (1900 - 1990)
                                                                                                                         State Review (continued from cover)
                                                                                                                         tive action,” says Jerry Elmore, Site Reviewer for the
                                                                                                                                                                                             Special Gifts the Children’s Health Council
                                                                                                                                                                                                         to
                                                                                   BOARD OF DIRECTORS                    CDE.
                                                                                   2003-2004                                                                                           The following special gifts were made to CHC in honor or memory of loved ones
                                                                                                                            The EBC School and its staff received commen-              between November 1, 2003 and March 24, 2004. (Names of honorees are
                   Dear Friends of CHC,                                            Patrick J. McGaraghan                 dations for the following:                                    indicated in bold.)
                                                                                   Chair
                                                                                                                              · Administration, faculty and support staff for          MEMORIALS                                May Elsinger Perkins
                   Typically winter is a time for hibernation – for drawing in,    Ross Jaffe, M.D.
                                                                                   Vice Chair
                                                                                                                                their dedication in providing a quality educa-         Ila Anderson                              John S. Perkins
                   for slowed down activity, but as you will clearly see in this                                                tion to all their students                               Chuck and Marion Hauser                Judith M. Peterson
                                                                                   John Kriewall                                                                                       Mollie Apple                              Sarah and Tom Clark
                   issue of New Futures, such is not the case at CHC. We           Secretary                                  · Behavior intervention program
                                                                                                                                                                                         Myles and Carol Berg                   William “Bill” Phy
                   have found ourselves at an exciting time to look back,                                                     · Transition program                                     Marian Barry                              Carol M. Phy
                                                                                   Mark Gates, Jr.
                   assess the present and eagerly anticipate the possibili-        Treasurer                                  · Art and Music Therapy programs                           Gail Drewes, CHC Auxiliary             Miles Poinier
                   ties of our future.                                                                                        · Organization of the on-site review process               Bobbie and Charlie Munch                The Sanders Family Fund
                                                                                   John Buoymaster
                                                                                   Harvey Cohen, M.D.                         · Extra-curricular activities that allow student           Mildred S. Nilsson                     Yvonne Fay Raffel
                                                                                   Bruce G. Fielding, Jr.                       participation, including such activities as              Linda Plount                            Anonymous
                   Our rich history, so replete of wonderful volunteers            Rita DeSales French, Ph.D.                                                                            Grace and Frank Vitale                 Barbara D. Read
                   accomplishing remarkable feats, is being captured under         Thomas J. Friel                              Black History Month and Summer Symphony                Shirley Boeddiker                         Lee S. Read, Jr.
                                                                                   Christopher Harris                         · On-site clinical component
                   the leadership of this year’s Auxiliary President, Gail         Susan M. Hyatt                                                                                        Mr. Robert E. Boeddiker                Alice Anne Roberts
                   Drewes. Gail and a team of Auxiliary members have               Mark G. Hyde                               · Service delivery model for Designated In-              Janice R. Bull                            Maxine Anderson
                                                                                   Jacque Jarve                                 structional Services (Speech & Language and              Claire Masso-Bull and William Bull     Jean Shoemaker
                   been searching through boxes and albums of photos and           Christine Johnson, Ph.D.
                                                                                                                                                                                         Bobbie and Charlie Munch                Ruth and John Richter
                                                                                   Robert Keller                                Occupational Therapy)
                   news clippings from the last 50 years. They are planning        Michele Kirsch                                                                                      Mary Lore Callas                         Grant Stevens
                                                                                   Bettina McAdoo, M.D.
                                                                                                                         For more information about the EBC School, please
                   to produce a special compilation to document our first 50                                                                                                             Myles and Carol Berg                    Chuck and Marion Hauser
                                                                                   Jeff Pickard                          call (650) 322-3065 or visit www.chconline.org.               Carol Cauwet                             Susan K. Thede
                   years.                                                          Larry Schwab
                                                                                   Elizabeth Shen                                                                                        Mrs. Marjorie Cary                      Robert H. Thede
                                                                                   Barbara Silverman                                                                                     Janet and Dawn Moser                   Graham Wolf
                   The present is represented by our Occupational Therapy          Hans Steiner, M.D.                           You!       You!
                                                                                                                          Thank You! Thank You!                                          Al and Carole Jacobs                    Cynthia Gilbert
                                                                                   Rosalie Whitlock                       The Esther B. Clark School would like to thank Betsy Haehl
                   programs where children experiencing clumsiness,                John G. Williams
                                                                                                                                                                                         Jean and Charles Lee                    Sally B. Gilbert
                                                                                                                          and John Kriewall for their generous gift of $10,000 in        Patricia Menary
                   awkwardness and fine motor problems can come to                 Kimberly Young
                                                                                                                          honor of the EBC School’s successful onsite review.            Jeannie Menary-Winefield               TRIBUTES
                   improve their ability to function in their home and in the      EX-OFFICIO                                                                                            Patricia S. Miller                     Penelope “Poppy” Baker Roberts
                   classroom. Our Occupational Therapy program currently           Gail Drewes                                                                                           Mr. and Mrs. Robert L. Nedd             Anonymous
                   has two gyms – soon to be three – specially equipped            Auxiliary President                   EBC Celebrates Black History Month                              Virginia W. Perkins                    Tristan Bince
                   with therapeutic gadgets like big round balls, a trapeze                                                                                                              Sherill and Andrew Sass                 Anonymous
                                                                                   Eve Jaffe                             “When I discover who I am, I’ll be free.”                       Mr. and Mrs. Thomas P. Shellworth      Robyn Carmel
                   and a slide. I hope you will take some time to read             Lou Ann Winchell
                                                                                   Summer Symphony Co-Chairs                                   - Ralph Ellison, American Writer          Velda H. Skagen and Karen S. Hiller     Dr. and Mrs. Jeffrey A. Carmel
                   through the feature article on occupational therapy. This                                                Amidst the rich pan-African offerings of the hour            Gloria and Owen Sullivan               Kristin France
                   is a fascinating therapy that has been largely misunder-        EXECUTIVE MANAGEMENT                  and a half EBC School assembly, the Black History               Carole Woods                            John A. Kriewall and Betsy A. Haehl
                   stood.                                                                                                                                                              Betty Codrington                         John Galen’s 80th Birthday
                                                                                                                         Month Celebration was more than a history lesson:               CHC Auxiliary &                         Lolly and Stuart Erlanger
                                                                                   Christopher Harris
                                                                                   Executive Director                    it was an invitation. Eager to share their talents and            Bargain Box Volunteers               Karen Grites
                   And for the future, we look with eager anticipation to our                                            passion, EBC School students emceed the celebra-              Betty DeBusk Evans                        John A. Kriewall and Betsy A. Haehl
                                                                                   Leon Wanerman, M.D.
                   Summer Symphony concert, this year featuring Kenny              Clinical Director                     tion and read poetry by Langston Hughes. A group                Mildred S. Nilsson                      Barbara Sourkes
                   Loggins, a personal favorite of mine (especially during                                               of students danced and lip-synced to a popular hip-           Sarah Cava Crane                         Katherine Hangauer’s 90th Birthday
                                                                                   Lucia D’Souza                                                                                         Association of Postdoctoral             Lisa and Robert McCann
                   the days of Loggins and Messina in the 1970’s). Of              Esther B. Clark School Director       hop song, and the EBC Blues Band provided a                       & Internship Centers                 Christopher Harris
                   course, the Summer Symphony represents so much                  Lynne Huffman, M.D.
                                                                                                                         soulful musical offering. There was also a Capoeira           Cameron Cray, M.D.                        Susan and Bill Daniel
                   more than just entertainment. Just in the past two years,       Research Director                     (Afro-Brazilian martial art) presentation and two               Mrs. Marjorie O. Cray                  Eve Jaffe
                   this event, led by remarkable co-chairs Lou Ann Winchell        Karen Grites                          keynote speakers: an Olympic hopeful of the Palo                Richard Cameron Cray                    Pilar and Lew Davies
                                                                                   Training Director,                    Alto track club and EBC School Classroom 5                    Mary Cutting                              Sally and Craig Falkenhagen
                   and Eve Jaffe, has generated over $1 million of funding         Educational Services                                                                                  Gail Drewes, CHC Auxiliary             Ross and Eve Jaffe and Family
                   to support children and families who might otherwise not                                              Therapist John Pina, PhD.                                     Robert Donovan                            Jennifer and David Lombardi
                                                                                   Tom McPherson                            John encouraged the students to discover where
                   be able to receive excellent and much needed services.          Client Care Director
                                                                                                                                                                                         Elizabeth and Dean Shen                Junior League Members of
                                                                                                                         they came from by sharing his own story of discov-            Clarice Fay                                the EBC Society Committee
                                                                                   Hank Morgan                           ery. “My father was from the Cape Verde Islands,                Gail Drewes, CHC Auxiliary              Sally and Craig Falkenhagen
                   Finally, it’s a time for me personally to reflect on a very     Finance Director                                                                                    Jonathan Grossman                        Dr. Bettina McAdoo
                                                                                                                         off the west coast of Africa, near Senegal. He was
                   fulfilling eight years of affiliation with the Children’s       Terry Kurfess                                                                                         Ms. Sherry Grossman                     Gordon Russell
                                                                                                                         the first person in our family to come over to the
                   Health Council and to look forward at the end of the            Marketing and Development Director                                                                  Marie Hutton                             Placido Mallillin
                                                                                                                         States. It was only after someone else encouraged               Bonnie Scholes                          Anne Ayers Butler
                   summer to new experiences as I move onto new endeav-            Carol Roccuzzo
                                                                                   Human Resources Director
                                                                                                                         me to investigate my heritage that it became clear            Agnes Jarman                             Tom McPherson
                   ors on the East Coast closer to extended family.
                                                                                                                         to me that I had been neglecting it,” shares John.              Elizabeth Wills                         Hans Steiner, M.D.
                                                                                   Paulette Giovannoni                   “Now, I am happy to have had that opportunity to              Louise Kurfess Hansman                   Dylan Plount
                                                                                   Operations Director                                                                                   Kathy and Ralph Parker                  Kathy Lee Fier and Jeff Fier
                                                                                                                         learn about a very special part of my life. A lot of            Dorothy Rathbun                        Barbara Silverman
                   Sincerely,                                                      Tass Sperring                         people define themselves by what’s on the outside,
                                                                                   Information Systems Director                                                                        Jean B. Legg                              Roslyn and Mervin Morris
                                                                                                                         but learning about yourself helps define yourself               Mrs. Marion B. Raff                    LouAnn Winchell
                                                                                   Isabel Chou, New Futures Editor       from the inside”. John’s presentation was met by              Craig Mackey                              Marie and Craig Gladstone Vought
                                                                                   ichou@chconline.org                   applause and eager students hoping to share                     Chuck and Marion Hauser
                   Christopher Harris                                                                                                                                                  Betty Lou Mathews
                                                                                   Please send your comments to:         stories of their own families.                                  Jane Waggoner
                                                                                                                                                                                                                                Care has been taken to provide an accurate
                   Executive Director                                              New Futures                              The Black History Month Celebration is one of                                                       listing of donors and gifts received. Please
                                                                                   The Children’s Health Council
                                                                                                                                                                                         Paul and Donna Hedstrom                accept our apologies for any error or
                                                                                   650 Clark Way                         many unique activities at the EBC School to enrich            Fran O’Rourke                            omission and contact the Development
                                                                                   Palo Alto, CA 94304                   the education of students.                                      Jean R. and Robert E. Boeddiker        Office for corrections, (650) 326-0643.
                   6                                                                                                                                                                                                                                     3

   A U X I L I A R Y                                                        C O R N E R                                                           Celebrating our first 50 years:
                                                                                                                                                                                            A Journey of Discovery
Annual Domino Tournament a “domino trainings” in preparation for next                  tions. The students look forward to her
success for 43rd year      year’s tournament to encourage a new                        visit and benefit greatly from the one-
  Forty-three teams gathered for the       generation of players.                      on-one attention,” says Guy.
                                                                                                                                         For the past several months, CHC            about 6 years old,” Gail remembers.        opportunity for the archiving team to
43rd Annual Masters Domino Tourna-                                                        Since each classroom at the EBC
                                           Auxiliary members giving time to            School consists of students from mul-          Auxiliary President Gail Drewes and a             Last fall, in honor of CHC’s 50th       capture their stories.
ment. The event sponsored by the CHC                                                                                                  dedicated group of Auxiliary volunteers        Anniversary, a group of volunteers           The Auxiliary plans to produce the
Auxiliary made CHC the winner, raising     work with students                          tiple grades, having volunteers such as
                                              Wednesdays bring a little extra cheer    Fran Baron in Classroom 1 allows the           have been taking a sentimental                 decided it would be an opportune time
$14,000 for the agency.
  Many players have been playing in the    at the Esther B. Clark School. Mem-         staff to give proper attention to all of the   journey through boxes of past records,         to take on the archiving project. More
tournament every year for the last 43      bers of the CHC Auxiliary are lending a     grade levels. Says School Director             Auxiliary scrapbooks, old photo                than a dozen “historical” boxes that
years. “One player came up from San        hand to the lower division classrooms.      Lucia D’Souza, “It is a great help to have     albums and other treasures that                had been in storage were moved into
Diego for this long-standing tradition,”   By working one-on-one with EBC Stu-         Fran come in during reading time and           capture the history of CHC’s first 50          an empty office in the CHC Marketing
shares co-chair Connie West.               dents, these special Auxiliary members      work with one or two students – it is so       years.                                         and Development Office – and the
  Diane Bottoms, co-chair of the event,    are helping students practice their so-     important for our students to work in the         For Gail, the 50th Anniversary              digging began.
is always excited about the energy in      cial skills.                                appropriate grade level.”
                                              Every Wednesday, Auxiliary members                                                      archiving project has been both a labor           There are binders with Board
the room. Says Diane, “At 9:30 you can                                                    In addition to getting the kids excited
                                           like Glenda Derman and Fran Baron           about reading, Fran is filling another im-     of love and a journey of discovery. “It’s      meeting minutes, rosters and reports.
hear the dominos clicking loud and                                                                                                    amazing to see the information about           There are files of photos, including
quick, and by late afternoon, there is a   spend time with a class. Glenda joins       portant role for many of the EBC stu-
                                           Classroom 3 (grades 4-6) for lunch and      dents. “She is a grandmother figure that       CHC that was saved – largely by                some of Dr. Clark’s family, taken at the
more serious tone in the air.”
  Both of the event chairs acknowl-        engages the students in conversation        many of our kids don’t have,” shares           volunteers. We’ve found a lot of very          turn of the century. The boxes also
edged that their working committee         about their weekend, favorite activities    Mark Foust, Lead Teacher in Classroom          interesting bits about the early days of       held scrapbooks that – until just a few
makes the tournament the fun success-      and more. Guy Morrow, Lead Teacher          1. “Fran makes a point of visiting with        the Children’s Health Council, the             years ago – were faithfully kept by         Dr. Clark, far right in the first row, poses with
ful event that it has grown into today.    for Classroom 3 came up with the idea       all of the kids and they truly enjoy her       various fundraisers, and the members           Auxiliary volunteers with invitations,      her Stanford Medical School class. She was
“They make it easy and fun to raise        as a way to strengthen the student’s in-    energy and excitement.”                        of the community who supported us in           photos and news clippings that high-        one of three women in her class.
money for CHC,” explains Diane. The        terpersonal relationships.                     For more information about the CHC          those early years,” she notes.                 light various CHC fundraisers held         history – organized decade by
Domino Committee is planning to hold          “Glenda does a great job connecting      Auxiliary or the programs they support
                                           with the kids and initiating conversa-                                                        Gail has volunteered with CHC for           over the years.                            decade like a “yearbook” – by June,
                                                                                       please call 650-617-3816.
                                                                                                                                      more than 12 years, but her connec-               “Dr. Clark’s nephew told me that,       as a close to the 50th Anniversary
                                                                                                                                      tion to CHC and founder Esther B.              when Dr. Clark died, her personal          year.
Summer Symphony success lies                                                          Summer Symphony 2004
                                                                                                                                      Clark goes back even further. She
                                                                                                                                      grew up in Palo Alto, and Dr. Clark was
                                                                                                                                                                                     effects were all moved to her home in
                                                                                                                                                                                     Mendocino, but that home later burned
                                                                                                                                                                                                                                  Among the quotations that are sure
                                                                                                                                                                                                                                to find a place in the history is this
in dedication of volunteers                                                                Committee                                  her pediatrician. “She was one of the
                                                                                                                                      few pediatricians in town at that time
                                                                                                                                                                                     down in a fire,” Gail explains. “So, we
                                                                                                                                                                                     apparently have rare photos of Dr.
                                                                                                                                                                                                                                one from Dr. Clark – in which she
                                                                                                                                                                                                                                describes her vision:
   For 45 years now, great performers      co-chair Eve Jaffe. “We                              Event Co-Chairs                       and I have a strong memory of Dr.              Clark and her family. And it’s a trea-
like Ella Fitzgerald, Rosemary             would not be able to do all of                           Eve Jaffe
                                                                                                                                      Clark giving me a shot when I was              sure to have them!”
Clooney, Ben E. King, Trisha Yearwood      this without our volunteers.”                        Lou Ann Winchell
                                                                                                                                                                                        The archiving team quickly decided
and Peter, Paul and Mary have been            This year, Kenny Loggins                                                                                                               they’d need to focus their work – or
captivating fans at the Summer             has been signed to headline
                                                                                  Committee               Katherine Westerman           From the “Attic” of CHC                      they’d be sorting through boxes for the
                                                                                  Annie Barnett           Quin Whitman
Symphony, the annual fundraiser for        the concert. Having raised a                                                                 The history of an organization like          next several years!
                                                                                  Amy Boyle               Carol Young
the Children’s Health Council. As the      record-breaking $600,000                                                                                                                     “We decided to focus on CHC’s
                                                                                  Julie Brody             Kimberly Young                CHC is not found in just a single
agency’s largest fundraising event, the    last year with a sellout event         Charlene B. Cogan                                                                                  founding and how it grew, on the
                                                                                                                                        document or file or photo, but in a
success of Summer Symphony lies in         featuring legendary folk trio          Lisa Gerould            Members at Large                                                           fundraising efforts, and on the building
                                                                                                                                        large collection of materials that records
the dedication and hard work of a          Peter, Paul and Mary, this             Shelley Hutter          Suki Bigham                                                                efforts,” Gail explains.
small group of volunteers.                                                                                                              who, what, when, and where. Among
                                           year’s 23-member committee             Suzanne W. Killea       Susan Ford Dorsey                                                             They are reviewing old documents,
   Each year, a committee of commu-        is hopeful for another suc-                                                                  the treasures the Auxiliary volunteers
                                                                                  Kathy Layendecker       Lulu Frye                                                                  files and photos by decade – and then
nity volunteers work over 3,000 hours      cessful concert.                                                                             have discovered:
                                                                                  Michael J. Lazarus      Alexandra Gifford                                                          will use this wealth of materials to
in planning the event. Each volunteer         “Kenny Loggins appeals to           Ellen Leanse            Jan Harris                                                                 prepare a comprehensive history of
belongs to a sub-committee and is          such a large audience, we              Kim LeMieux             Julie Helfrich                    An album of photos taken by Dr.
                                                                                                                                                                                     CHC’s first 50 years. “Our goal has
responsible for at least one aspect of     hope that fans will come out           Janice Meisel           Jacque Jarve                      Clark of family and friends in the
                                                                                                                                                                                     been to prepare a history that we can
the event, including finding individual    to hear him and support the            Lisa Mooring            Lisa Keith                        Palo Alto area. One photo shows a
                                                                                                                                                                                     distribute to Board members, major
and corporate sponsorships, market-        wonderful work of CHC,”                Chris Rivera            Anne Lawler                       view of the western hills long           donors and others who are interested
ing, hospitality, securing talent and      says event co-chair Lou Ann            Annette C. Siegel       Betsy Matteson                    before the 280 freeway was built.        in CHC’s work,” Gail says.
organizing operations on the day of        Winchell.                              Mary Stevens            Ellen Rose                        Photos of the original building that                                                 Dr. Clark with her two favorite animals.
                                                                                                                                                                                        As part of the project, the team also
the event. In addition to the commit-         “There are no words to              Suzanne Valdez          Lisa Wan                          Dr. Clark obtained for $1 – and the      contacted past Auxiliary presidents          “I got the idea, a little naïve, to have
tee volunteers, an additional 200          express the agency’s grati-                                                                      process of moving it to the Willow       and other long-time volunteers and         an area in the world where any child’s
volunteers are needed on the day of        tude for the tremendous                                                                          Road site.                               requested personal histories of their      needs would be provided for. I looked
the event to usher, set-up chairs, take    fundraising accomplished by the               programs that CHC offers to children               A 1960 report about CHC that             volunteer efforts at CHC. To date,         around Palo Alto and there were
tickets and more.                          committee, “ remarks Terry Kurfess,           and families. And those introductions              Gail believes was largely authored       more than 15 volunteers have contrib-      plenty of good pediatricians, but there
   “Summer Symphony is a full-             Director of Marketing and Develop-            translate into interest and financial              by Dr. Clark herself.                    uted their personal memories – which       was a lack of a single place where
production concert, with 6,000 people      ment. “Members of the committee               support of CHC!”                                   A 1981 proclamation from the             will all become part of CHC’s rich mix     children with emotional upsets,
in attendance, complete with talent        assume personal pride and responsi-                                                              City of Palo Alto honoring Dr.           of history and memory. In April, the       learning problems, physical handi-
agents, caterers, police, news crews       bility in introducing friends, family and If you would like to volunteer on July                 Clark and her brother, Birge, as         Auxiliary will host a brunch for long-     caps or mental retardation could go to
and a full symphony!” describes event      corporations to the services and              18, please call 650-617-3859 for more              distinguished citizens.                  time volunteers. It will be another        and have diagnosis and treatment all
                                                                                         information.                                                                                                                           in one place. That was the essence
                                                                                                                                                                                                                                of what I wanted, and the CHC came
                      4                                                                                                                                                                                                                                                5


                                                                                                                                                 One Child’s Story:
                                                                                                                                                                                                   Brandon                                       Autism: A Review
Occupational Therapy                               requires OT services is to get a thor-
[continued from cover]                             ough assessment,” says CHC occupa-
including juvenile rheumatoid arthritis,           tional therapist and department head
birth defects, cystic fibrosis, cerebral           Barbara Ram. “That will guide what you                                                                                                                                                        April is also National Autism Aware-
                                                                                                                                                 Brandon was diagnosed with Autism at the age of 3 in Singapore. He came to CHC in the
palsy, or muscular dystrophy. Occupa-              should do for treatment.”                                                                                                                                                                     ness Month. In recognition of this
                                                                                                                                                 Fall of 2003 when he joined SPOT, a speech and occupational therapy group for
tional therapists in schools often see                A comprehensive assessment is                                                                                                                                                              observance, we hope you will take
                                                                                                                                                 preschool-aged children. CHC Occupational Therapist Elizabeth Zias evaluated Brandon
children with developmental delays,                dependent on the level of detail, the                                                                                                                                                         some time to review the following
                                                                                                                                                 and due to his low scores on tests of motor functioning, he was diagnosed with
learning disabilities and deficits because         number of assessments used and the                                                                                                                                                            information on Autism.*
                                                                                                                                                 Developmental Coordination Disorder. Shortly thereafter, he started one-on-one sessions
of prematurity, and help children pursue           number of skills assessed. Often, the
                                                   occupational therapist is looking for a                                                       with Elizabeth.
the “occupations” of learning, playing,                                                                                                                                                                                                          What is Autism?
and growing.                                       child’s developmental level, dexterity,                                                                                                                                                       Children with autistic disorder have
                                                                                                                                                 Initially, Brandon had great difficulty remaining alert and attentive during circle time.
   Premature infants often benefit from            endurance, flexibility, joint range of                                                                                                                                                        difficulties in social interaction and
                                                                                                                                                 Because he would often come into sessions lethargic and resist participating in one-on-
occupational therapy. Some of a baby’s             motion, primitive postural reflexes,                                                                                                                                                          communication, as well as restricted
                                                   muscle tone and strength, sensory                                                             one and group activities, Elizabeth implemented strategies that helped him gain a greater
“occupations” are to eat and grow, but if                                                                                                        ability to focus. For instance, she had him participate in a movement activity at the           interests and/or repetitive behaviors.
developmental complications cause                  function, rate in rhythm of movement,               responding to techniques and strate-                                                                                                      Notably, they have difficulty under-
                                                   independence in self-care, sensory                  gies we are providing?”                   beginning of each session to help increase his activity level and attentiveness. Brandon’s
feeding problems, a pediatric occupa-                                                                                                                                                                                                            standing and using language, using
                                                   integrative skills, and psychosocial,                  “Sensory motor intervention can be     mom was also asked to give him more opportunities for movement before coming to OT
tional therapist can often provide                                                                                                                                                                                                               nonverbal communication (gestures,
                                                   cognitive and visual-perceptual skills.             likened to a computer CPU. There is a     and throughout the day to help him maintain an even level of alertness.
treatments that improve the baby’s                                                                                                                                                                                                               eye gaze, a range of facial expres-
ability to take in nourishment.                                                                        sensory input, a neurological through-
                                                                                                                                                 Brandon has shown great progress in therapy. Several months ago, he would lean on his           sions), developing conversational
   The goal of pediatric OT is to help                    Treatment                                    put, and a resulting motor output,”
                                                              Following a detailed assessment to       explains Barbara. “Some children love     arms rather than sit with an upright posture; he needed many verbal and physical cues to        and other turn-taking abilities,
infants and children achieve age-                                                                                                                                                                                                                developing friendships and showing
                                                          guide the goals for therapy intervention,    these sensations, but some are fearful    correct his posture. Now, he is showing improved trunk strength and does not lean onto his
appropriate self-help, play, and leisure                                                                                                                                                                                                         imagination and creativity in play.
                                                          a family may decide to proceed with          of them. We have to approach each         arms. While he will sit with a slumped posture, Elizabeth only needs to touch his lower
skills. By using purposeful activity,                                                                                                                                                                                                            Though the exact cause of autism is
occupational therapy aims to minimize                     treatment.                                   child according to his or her comfort     back and/or his shoulders lightly and he will respond by correcting his own posture.
                                                              “We use a number of neurological and     level.”                                                                                                                                   still unknown, experts have generally
the effects of disease, injury, congenital
                                                          sensory strategies and facilitation             Parent follow-through and compli-      Brandon was also tactilely                                                                      accepted that the disorder is caused
deficit, disability, developmental delay, or
                                                          techniques as well as developmental          ance at home also play major roles in     defensive and reacted negatively          “He would often come into sessions                    by irregularities in brain structure or
deprivation.
                                                          approaches,” explains Barbara. “But          a child’s rate of progress. Parents       to certain types of touch or the          lethargic and resist participating in                 function. Autism is the most com-
Assessment                                                overall, we have to keep the therapy         must remember that while a few            way certain textures felt against         one-on-one and group activities...”                   mon among five forms of Pervasive
  “One of the most important first steps                  focus playful because play is a child’s      children do make dramatic changes,        his skin, like having glue on his                                                               Developmental Disorders (PDD).
in determining whether or not a child                     primary occupation. It is their primary      most children typically make slow and     hands. Tactile defensiveness is
                                                                         learning modality.            steady incremental gains over the         an over-reaction or aversion to
                                                                           “We typically use sus-      course of several months.                 touch that is considered
                                                                                                                                                                                                                                                      Did you know?
   What to look for                                                      pended equipment, like

   OT
                                                                                                                                                 excessive by most standards. When a child like Brandon demonstrates this defensiveness,
                                                                         swings and hammocks, as       CHC as a resource                         he also often shows a great need to touch others or touch objects. It is hypothesized that
      in a 3-4 year old                                                  facilitation techniques
                                                                         because we are facilitating
                                                                                                          CHC offers a comprehensive pediat-
                                                                                                       ric occupational therapy program with
                                                                                                                                                 deep pressure touch helps to organize the nervous system and ultimately helps the child                  ... 1.5 million Americans are
                                                                                                                                                                                                                                                          affected by autism
                                                                                                                                                 remain focused on a task. Often these children will seek out deep pressure as long as they
    Mobility in Standing                                                 certain areas in the brain    four occupational therapists on staff.    are in control of it, but when they cannot control it (i.e. another child touches them), they
    Runs around obstacles; turns corners                                 in terms of sensory re-       While the therapists do conduct           feel threatened and over-react. Brandon’s sensory seeking behaviors included frequently                  ... 50 children are diagnosed
                                                                         sponsiveness. We are          individual single-discipline assess-      touching his carpet square, moving about on the square, rocking, touching his face and, at               with autism every day
    Development of Grasp                                                 trying to elicit specific     ments, each therapist does a sizable
    Crayon held with fingers; hand on top of tool;                                                                                               times, touching other children seated next to him. He would take his carpet square and
                                                                         motor responses.”             number of collaborative team assess-                                                                                                               ... autism is the fastest
    forearm turned so thumb is directed downward;                                                                                                wrap it around his legs tightly while sitting on it. He often needed Elizabeth to sit behind
                                                                           While the length of         ments with therapists in other disci-                                                                                                              growing developmental
    pencil held with mature grasp, but no isolated                                                                                               him and assist him back to the center of his square. Now he is able to self-monitor his
                                                                         therapy depends on the        plines.                                                                                                                                            disability in the U.S.
    movements within the hand                                                                                                                    position and does not need this assistance at all.
                                                                         progress of the individual       Clients who come to CHC are often
                                                                         child, it is important to     of a sub-specialty group. Many are
    Development of Manipulative Prehension                                                                                                       Brandon was often fearful to try new motor tasks, especially climbing activities. With step-
                                                                         remember that a child         young children, starting at less than
    Holds paper with one hand while writing with the                                                                                             by-step instruction, prompting and encouragement, he is less fearful. He can now climb
    other hand
                                                                         should be treated on a
                                                                         continuum. “Compared to
                                                                                                       one year old, and have problems like
                                                                                                       feeding disorders. Other clients are      up a rope ladder with little fear though he continues to need instruction to know where to      For more information
                                                                         adults, children are still    older, through adolescence, and           place his feet and hands.
    Jumping Skills                                                                                                                                                                                                                                 www.autism-society.org
    Hops on one foot; skips on one foot; jumps over                      learning in all phases of     require OT because of problems like
                                                                                                                                                 With fine motor tasks (i.e. coloring, writing, drawing), Brandon often became extremely           www.autism.org
    objects                                                              development – cognitively,    Autism, ADHD, fine motor coordination
                                                                                                                                                 distracted by the materials presented to him. They usually had to be removed then given to
                                                                         motorically and behavior-     and handwriting.
    Development of Climbing                                              ally,” says Barbara. “While      “One of the reasons to come to CHC     him one at a time. He can now attend more easily to the task at hand and does not need            For more information on services,
    Climbs easy nursery apparatus                                        we evaluate and compare       is to obtain the comprehensive evalua-    this excessive structuring in order to complete these activities. To help Brandon gain better     please call CHC at (650) 688-3625
                                                                         each child to his or her      tion and to benefit from the team         motor control when writing or coloring, Elizabeth uses adaptive equipment, like slant             or email intake@chconline.org
    Development of Ball Skills                                                                                                                   boards and pencil grips. He used an immature and less functional pencil grasp and
    Catches ball with elbows bent in front of body;                      peers, we are more            collaboration – if it is warranted,”
                                                                         concerned with the indi-      describes Barbara. “Our therapists        required constant cues to coach the use of a tripod hold. Now, with the use of the pencil
    throws ball using shoulders and elbows                                                                                                       grip and practice he rarely needs cues and can hold a pencil appropriately much of the
                                                                         vidual child’s rate of        tend to be more experienced, senior-
     * From Transdisciplinary Play-Based Assessment, Linder, 1990        progress. How quickly is      level clinicians with advanced training   time                                                                                              * Information originally appeared in
                                                                         their nervous system          and advanced practice certification.”                                                                                                       New Futures Fall/Winter 2002.
                                                                                                          For more information about occupa-
                                                                                                       tional therapy and services provided