Global ehealth trends 2001 by Dr

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Childhood Cancers – Cure Rates
80% Survival Rates in Developed Countries

St. Jude Children’s 2 Research Hospital

Childhood Cancers – Cure Rates
0-30% Rates in countries with limited resources

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International Visitors to St. Jude

Dr. Georgette Chammas with International Visitors

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Donations of Hospital Infrastructure

Dr. Barrett Haik with a donation of a Retcam to Guatemala

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www.Cure4Kids.org
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Objectives of Cure4Kids
• Provide online education on catastrophic diseases in children to doctors, nurses, health care providers, patients and families. • Provides for group communication tools for users of Cure4Kids anytime, anywhere. • Provide assistance for Internet connectivity to partner sites.
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Cure4Kids Global Usage Statistics

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Users Country of Origin Cure4Kids Usage Statistics
9%

14% 41%

International Partners 36% Other International St. Jude Users Other USA Users
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1550 Users from 82 Countries
519 United States 181 Brazil 105 Mexico 57 Venezuela 50 Chile 38 Russia 32 El Salvador 32 Lebanon 31 Peru 31 Colombia 29 Canada 28 Jordan 25 Argentina 22 China 21 Morocco 21 Spain 17 Japan 16 Guatemala 13 Ecuador 12 Romania 10 Costa Rica 10 United Kingdom 9 Honduras 8 Philippines 7 India 7 Paraguay 7 Netherlands 6 Panama 6 Ireland 6 Zimbabwe 5 Syria 5 Iran 5 Saudi Arabia 5 Qatar 5 Egypt 5 South Africa 5 Australia 4 Bolivia 4 Ukraine 4 Nicaragua 4 Italy 4 Uruguay 4 Singapore 4 Sweden 4 Iraq 3 Armenia 3 Germany 3 Hong Kong 3 Taiwan 3 France 3 Israel 3 Czech Republic 2 Malta 2 Albania 2 Dominican Republic 2 Cuba 2 Latvia 2 Croatia 2 Pakistan 1 Switzerland 1 Malaysia 1 Tunisia 1 Madagascar 1 Midway Islands 1 Bulgaria 1 Bangladesh 1 Norway 1 Kuwait 1 Haiti 1 Gibraltar 1 Rwanda 1 Trinidad and Tobago 1 Belarus 1 Micronesia 1 Nepal 1 Andorra 1 Slovakia 1 Thailand 1 Algeria 1 Portugal 1 Kyrgystan 1 Slovakia 1 Thailand 1 Algeria 1 Portugal 1 Kyrgystan

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Cure4Kids Online Content
• Clinical Case Discussions

• Online Lectures
• Digital Library

• Online Live Lectures

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Cure4Kids Online Seminars
• 120 Seminars available in 7 languages

• Online Quiz and Feedback forms
• Online Medical Education Credits (CME,CNE,CEU) • Usage is widespread by all disciplines. • Sometimes viewed and discussed as a group
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Cure4Kids Digital Library
• Medical Textbooks • Medical Journals • Medical Dictionaries • Literature Databases • Selected Web Links

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Cure4Kids – Paper of the Month
Journal Article of the Month
Selected and reviewed by Dr. Raul C. Ribeiro St. Jude Children's Research Hospital

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Live meeting using web conferencing

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International Online Conference

Rabat, Morocco Casablanca, Morocco
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Cure4Kids Conference Rooms
• • • • • • 18 groups meet regularly on Cure4Kids Central America Morocco Lebanon Brazil Conference Room A – general meeting

Emerging Global Collaboration Network
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Cure4Kids Homepage >> Courses >> Pediatric Oncology Nursing Course

The goal of this course is to provide the participants (nurses) basic pediatric oncology nursing training. This course consists of on demand lectures, online papers, online live class discussions, and links to external educational resources.
1 Historical Perspectives of Pediatric Oncology 2 Biological Basis of Pediatric and Adolescent Cancer 3 Assessments 4 Planning 5 Implementation 6 Oncologic Emergencies 8 Infection Control 9 Pain Assessment and Pain Management 10 Survivorship and Late-effects of cancer 11 End-of-life and Palliative Care 12 Professional portfolio development 13 Individual disease Entity

7 Symptom Management and Supportive Care

14 Future Trends in Pediatric Oncology Nursing

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Cure4Kids Online Courses
• Online lectures • Online readings • Online testing

• Feedback forms
• Links to external web sites

• Live online class meetings
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Online Usage Statistics

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Cure4Kids Items Accessed Per Month

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Cure4Kids Usage Statistics
• Detailed usage statistics by • Country • Occupation

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Telemedicine
Dr. Francisco Pedrosa, IMIP/CEHOPE, Recife, Brazil

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Telemedicine
Recife is located in Pernambuco in the Northeast of Brazil, one of the poorest areas of the country. Recife has 3 million inhabitants, of which 50% are children.
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35

Telemedicine

36

Telemedicine
Telemedicine technology has been utilized at SJCRH to support the goals of the IOP in providing education and consultative expertise to medically under-served regions
37

Telemedicine

IMIP, a SJCRH partner hospital, was selected to develop the pilot IOP TELEMEDICINE program.

38

Telemedicine
• Implemented on October 28, 1998 • Aims:

- increased survival rate - reduce early mortality - reduce advanced stage disease at diagnosis 39

Telemedicine
• Training and education of health care providers • Patient care (real time consultation) • Implementation of advanced diagnostic techniques • Continuing Education
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Telemedicina ISDN EMBRATEL Fiber optics 6 Lines (BRI) 768 Kbps

St Jude
41

IMIP

Telemedicine

42

Telemedicine
Case discussions with direct viewing of physical findings:

Radiology

Pathology
Surgery
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Telemedicine
80

From St Jude to IMIP = 264

70
60 50 40 30 20 10 0

Conferences
38 45

69

72

37
3
1998 1999 2000 2001 2002
44

2003

Telemedicine
30 25 20

From IMIP to St. Jude = 72
28 20

Second Opinion
9

15
10 5 0

8

4

3
2003

1998

1999

2000

2001

2002

45

Telemedicine
80 70 60 50 40 30 20 10 0

69

72

45 38 37

SJCRH IMIP

28 8 3 20 9 4

1998

1999

2000

2001

2002

IMIP 2003 SJCRH
46

3

Telemedicine
ALL – 1980-90

29%
n=91

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Telemedicine
ALL: 1997-2003 70±3% n=263

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Telemedicine
100 % 50
29

ALL
70

0

Survival
49

1980

2003

Telemedicine
NHL 1980-90
Cum Survival

44±8%

n=98
Years from Diagnosis
50

Telemedicine
NHL 1997-2003
84±3%

n=66

51

Telemedicine

100

%

NHL
84 44 1980 Survival 2003
52

50 0

Telemedicine

• Increased speed and accuracy
of diagnosis with positive impact on patient care

Benefits of Telemedicine

• Close scrutiny of overall

medical services and identification of areas requiring improvement (Pharmacy, Infection control, 53

Telemedicine
Benefits of Telemedicine
• Exposure of IMIP staff to current medical information and outstanding professional expertise without the need for travel • Opportunities for collaborative publications
54

Telemedicine
Benefits of Telemedicine

•Reduced “sense of isolation

and helplessness” and improved confidence level among IMIP staff

•Decreased patient referrals
55

Telemedicine

Conclusions
A telemedicine program linking international partner hospitals is technically feasible, has a positive impact on patient care, promotes more rapid diagnoses, and may lead to earlier, improved treatment of children with cancer. 56

Telemedicine

Our Team

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Telemedicine
Dr. Francisco Pedrosa, IMIP/CEHOPE, Recife, Brazil

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Patient Education Using Storytelling

59 Infection Control story – Dr. Miguela Caniza

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Cure4Kids - Feedback
“Yesterday I registered on Cure4Kids and did not move from my computer for 10 hours. I said to my wife God Bless Danny Thomas! It is from my heart, and I extend it to his followers who continue his work” (Egypt)
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Cure4Kids - Challenges
• • • • • • • • • Language Time Zones Levels of Expertise Cultural Differences Technology Financial Internet Accessibility Technical Support People
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Physician Authors
Raul Ribeiro, MD, Hematology/Oncology, St. Jude Judith Wilimas, MD, Hematology/Oncology, St. Jude Gaston Rivera, MD, Hematology/Oncology, St. Jude Miguela Caniza, MD, Infectious Diseases Bassem Razzouk, MD, Hematology/Oncology, St. Jude Monica Metzger, MD, Hematology/Oncology, St. Jude Scott Howard, MD, Hematology/Oncology, St. Jude Jesse Jenkins, MD, Anatomic Pathology Carlos Rodriguez Galindo, MD, Hematology/Oncology, St. Jude Ching-Hon Pui, MD, Hematology/Oncology, St. Jude

Faculty and staff from St. Jude and other institutions. 63
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Nurse Authors
Ayda Nambayan, DSN Curriculum Developer, International Outreach Program.

Georgette Chammas, EdD, Nursing Content Developer
Nora Donahue, BSN, Nursing Content Developer

Wren Kennedy, Certified Nurse Practitioner in Pediatric Oncology
Pamela S. Hinds, RN, PhD, St. Jude Director of Nursing Research
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Cure4Kids Team
• Raul Ribeiro, MD, Director, International Outreach Program • Lynne Jordan Bowers, PhD, Associate Director, International Outreach Program • Yuri Quintana, PhD – Education Director • Ayda Nambayan, DSN, Curriculum Developer • Richard O'Brien, Technologies Administrator • Ana Shuler, Member Services and Live Events Coordinator, • Aman Patel, Martin Norland, Cure4Kids Programming Team 65
St. Jude International Outreach Program - www.cure4kids.org - Yuri.Quintana@stjude.org

Cure4Kids Multimedia Team
• Peter Bloom, Contract Multimedia Developer. • Louis Kimery, Multimedia Developer. • Adam Simpson, Contract Multimedia Developer • Jorge Cruz, Cure4kids Multimedia Developer and Latin America online events coordinator • Soumya Vandanam, Contract Multimedia Developer
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Cure4Kids Admin Team
• Raisa Ioffe, Translation Coordinator and Content Facilitator

• Jamilah Howard, Contracts Accountant
• Adele Morton, Administrative Assistant II • Alicia Rodriguez, Administrative Assistant II • Wei Li, Administrative Support • Gail Pond, Administrative Support
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St. Jude Team
• • • • • • • St. Jude Biomedical Communications Internet Development Department Nursing Education Department Scientific Editing Department Clinical Research Department Information Technology Services Hartwell Center for Bioinformatics and Biotechnology • Public Relations • Volunteer Services • ALSAC
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Donors
• ALSAC

• Corporate Donors: Qwest Ingram-Micro

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Cure4Kids – Conclusions
• Motivated People Make it Happen • Global medical education possible • Great demand for high quality medical education

• Content is being used and discussed
• Online collaborations are increasing

• Cure4Kids is becoming an active global online community
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Cure4Kids.org

A hospital without walls

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Cure4Kids - Global Knowledge Sharing

www.Cure4Kids.org

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DOCUMENT INFO
Lingjuan Ma Lingjuan Ma MS
About work for China Compulsory Certification. Some of the documents come from Internet, if you hold the copyright please contact me by huangcaijin@sohu.com