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Confidentialitycollaboration - Charles Clarke

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					Confidentiality and Collaboration



The ethics of information sharing in
      health and social care
                Anecdotes
• Mother

• Grandmother

• Schools
           Data and Information
•   Massive transformation
•   Case conferences
•   Databases
•   Compatibility, eg PNIP
•   International EU, eg sex offenders
             Police, Security etc
•   Police, security,
•   Sex offenders register
•   CRB
•   Car number plates
•   Prison, probation
•   Immigration
          Health Social Care etc
•   Hospitals
•   GPs
•   Private
•   Mental Health

• Social Services
                 Finance etc
•   Tax
•   Council tax
•   Rent and Mortgage
•   Bank
•   Business
•   Electoral Register
             Rules for Access

• Law

• Ethics

• Professional practices

• ?Common Sense?
            Purpose of Access 1
•   Individual, ?absolute right?
•   Relatives and friends, Power of Attorney
•   Public authorities, eg tax
•   Benefit fraud, Sickness, Disability?
•   Private Investigators, Hacking
•   Marketing material
          Purpose of Access 2
• Police/security
  – Level of crime
  – Serious and organised
  – Terrorism
  – Suspected
  – Criminal Record
• Public protection, eg disease, diabetes
• Genetic?
• Sarah’s Law?
             Who Makes Rules?

• Law + Judges

   – Human Rights Act
   – RIPA

• Ethics

• Professional practices

• ?Common Sense?
         Who Makes Judgement?
•   Individual
•   Professional
•   Group of Professionals / Case Conference
•   ‘Public Interest’, Executive, Judicial
          Qualities of judgement
•   Facts, easier said than done
•   Legal, professional ethical frameworks
•   Wider consequences, eg trust
•   Conventional opinion, impact on practice
•   Openness and Transparency
•   Confidentiality – both ways
•   ‘Moral courage’
            Always a Balance
• Few absolutes (Swiss banks!)
• Different ethical frameworks not better or
  worse, just different
• Procedures for resolving differences
• Not always time
             Damned if you do
            Damned if you don’t
•   Social Work
•   Health
•   Probation
•   Police
          Regular reform of Law
•   Parliament
•   High Court judgements
•   Ethics should be part of debate about law
•   Professional standards
                   Conclusion
•   Important debate
•   Inter-professional dialogue essential
•   Informed public discussion
•   Balance always need to be struck
•   No absolutes

				
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posted:6/2/2014
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