CAREGIVER PROGRAM DATA SUMMARY

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					CAREGIVER PROGRAM
  DATA SUMMARY
  N4A Conference Intensive
       July 10, 2005
            Data and the Caregiver
                 Program (1)
 Use of Data
    Multiple Data Sources
    Demonstrate Program Results
    Support Program Initiatives
 AoA Data Initiatives
    SPR, National Surveys, Data Integration, Data
     Analysis and Dissemination
 New Caregiver Data Specs
    Minimal Requirements
          Data and the Caregiver
               Program (2)
 Importance of Caregivers

 Success of Program Implementation

 Importance of OAA Support of Caregivers

 Role of the Network in Supporting Caregivers
                                             Federal Interagency
                                             Forum on Aging
                                             Related Statistics –
                                             12 Federal Agencies
                                             (OMB, AoA, Census,
                                             SSA, NIA, CMS, etc.)




37 Indicators in 5 key areas:
                                        Released: Nov. 2004
   Population                           Copies sent to
                                        SUAs/AAAs
   Economics
   Health Status                        www.agingstats.gov
   Health Risks & Behaviors
   Health Care                  [Sample charts follow]
              ORIGINAL
            EXPECTATIONS
 Initiate program implementation
  immediately.
 Serve 250,000 Caregivers per year in the early
  years.
 Pursue multi-faceted programs providing a
  variety of services.
 20% of States to provide all five types of
  caregiver services.
            FY 2002 RESULTS

                          Number Served
 Information                 4 million
 Access                      440,000
 CSGT                        180,000
 Respite                     76,000
 Supplemental                56,000
 44 States (86%) provided services in all five
  categories
            FY 2003 RESULTS
                      Number Served
 Information                 8 million
 Access                      590,000
 CSGT                        300,000
 Respite                     200,000
 Supplemental                223,000
 48 States (94%) provided services in all five
  service categories.
      CHANGE 2002 TO 2OO3

                 Percent Change
 Information       + 100%
 Access            + 34%
 CSGT              + 67%
 Respite           + 163%
 Supplemental      + 298%
           National Caregiver
             Pilot Surveys
 Sample Surveys of Caregivers of OAA
  Clients, AND Caregivers Served by NFCSP
 Survey Provides Data on:
   Caregiver Characteristics
   Caregiving Provided
   Caregiver Support Needed
   Caregiver Burdens and Rewards
   Caregiver Assessment of OAA Services to
    Elderly OAA Clients
         WHO THEY ARE (1)
 70% Are Women (79% in 04)
    40% Are Daughters (51% in 04)
    7% Are Wives (9% in 04)
 46% Are Aged 60 and Over (37% in 04)
    One-Third Are 65 and Over (30% in 04)
    27% Have a Condition That Limits the Care
     They Can Provide (33% in 04)
 95% Are Relatives (91% in 04)
 20% Are Minority (20% in 04)
          WHO THEY ARE (2)
 38% Live In Rural Areas (29% in 04)
 But Distance Problems Do Not Appear to Be
  Significant with These Caregivers
    34% Live in the Same Household (44%)
    80% Are Less than 20 Minutes Away (82%)
    95% Are Within an Hour’s Distance (99%)
 46% Are Employed (39%)
    34% Full Time (29%)
 50% Reported Income Under $25,000 (50%)
    One-Third Had Income of $40K or More (28%)
              WHAT THEY DO
   85% Take Them Out Shopping/to Doctors (85%)
   78% Prepare Meals and Do Laundry (78%)
   70% Kept Track of Bills and Finances (72%)
   56% Helped with Medicine and Bandages (60%)
   45% Helped with Dressing/Eating/Bathing (49%)
                     ~~~~~~~~
 31% Said They Were the Only Caregiver for the
  Elderly Person They Cared For (35%)
 15% Reported Caring 24 Hours a Day (21%)
 65% Reported Caring 1 to 8 Hours a Day (60%)
       WHAT THEY NEED (1)

          INFORMATION!!!!
             ~~~~~~~~~~
 76% Want One Place to Call for Help (83%)
 64% Want Help Dealing with Bureaucracies
  (67%)
 58% Want Information on How to Pay for
  Nursing Home Care (64%)
 42% Want Help in Selecting a Nursing Home
  or Other Care Facility (49%)
         WHAT THEY NEED (2)

                   SERVICES
                   ~~~~~~~~~~
   52% Want Stipend/Tax Break/Financial Help (62%)
   49% Want Help with Housekeeping (61%)
   38% Want Help with Transportation (50%)
   33% Want Help with Bathing/Toileting (35%)
   27% Want Help with Shopping (40%)
   24% Want Respite Care or Adult Day Care (39%)
        ASSESSMENT OF OAA
             SERVICES
 65% Were Very Satisfied with Services (57%)
    28% Were Somewhat Satisfied (35%)
 69% Said Services Helped a Lot to Make
  Them Better Caregivers (69%)
    28% Said They Helped a Little (25%)
 48% Said OAA Services “Definitely” Helped
  Them Provide Care Longer (42%)
    38% Thought the Services Helped Them Provide
     Care Longer (41%)
    NFCSP WHO THEY ARE (1)
 77% Are Women (79%)
   35% Are Daughters (51%)
   29% Are Wives (9%)
 63% Are Aged 60 and Over (37%)
   HALF Are 65 and Over (30%)
   45% Have Condition That Limits Care They Can
    Provide– 53%: Caregiving Worsens Condition
    (33%)
 98% Are Relatives (91%)
 20% Are Minority (20%)
       NFCSP WHO THEY ARE (2)

 29% Live In Rural Areas (29%)
 But Distance Problems Do Not Appear to Be
  Significant with These Caregivers
    72%% Live in the Same Household (44%)
    87% Are Less than 20 Minutes Away (82%)
    97% Are Within an Hour’s Distance (99%)
 26% Are Employed (39%)
    15% Full Time (29%)
 50% Reported Family Income Under $25,000 (50%)
    28% Reported Income of $40,000 or More (28%)
        NFCSP WHAT THEY DO
   87% Take Them Out Shopping/to Doctors (85%)
   91% Prepare Meals and Do Laundry (78%)
   88% Kept Track of Bills and Finances (72%)
   83% Helped with Medicine and Bandages (60%)
   71% Helped with Dressing/Eating/Bathing (49%)
                     ~~~~~~~~
 18% Said They Were the Only Caregiver for the
  Elderly Person They Cared For (35%)
 42% Reported Caring 24 Hours a Day (21%)
 34% Reported Caring 1 to 8 Hours a Day (60%)
      NFCSP WHAT THEY NEED (1)

           INFORMATION!!!!
              ~~~~~~~~~~
 85% Want One Place to Call for Help (83%)
 75% Want Help Dealing w/Bureaucracy (67%)
 72% Want Information on How to Pay for
  Nursing Home Care (64%)
 56% Want Help in Selecting a Nursing Home or
  Other Care Facility (49%)
        NFCSP WHAT THEY NEED (2)

                   SERVICES
                   ~~~~~~~~~~
   71% Want Stipend/Tax Break/Financial Help (62%)
   64% Want Help with Housekeeping (61%)
   43% Want Help with Transportation (50%)
   43% Want Help with Bathing/Toileting (35%)
   27% Want Help with Shopping (40%)
   65% Want Respite Care or Adult Day Care (39%)
        ASSESSMENT OF OAA
         SERVICES --NFCSP
 69% Were Very Satisfied with Services (57%)
    23% Were Somewhat Satisfied (35%)
 74% Said Services Helped a Lot to Make
  Them Better Caregivers (69%)
    23% Said They Helped a Little (25%)
 52% Said OAA Services “Definitely” Helped
  Them Provide Care Longer (42%)
    31% Thought the Services Helped Them Provide
     Care Longer (41%)
       ANALYSIS SUMMARY (1)
 Indicators related to the elderly population
  suggest that the need for caregivers and the
  need to support caregivers will remain strong.
 Program data indicate that the States, area
  agencies on aging and providers have worked
  hard to get this program off the ground,
  exceeding initial production expectations.
 Caregivers are feeling the pressure and are
  considering institutions even though OAA
  services help.
       ANALYSIS SUMMARY (2)

 Caregivers recognize the value that OAA
  programs and services provide in helping
  elderly individuals maintain their
  independence in the community.
 Caregivers receiving services from the
  Network are serving very old and vulnerable
  people, often their own spouse, and provide
  more care.
 Caregivers served by the Network are also
  older and more vulnerable themselves.
       ANALYSIS SUMMARY (3)

 Assessments for served caregivers appear to
  be slightly higher than those of caregivers
  who are not clients; a possible effect of the
  caregiver program itself.
 Program and consumer assessment data have
  resonated in Washington: better assessment
  scores from OMB; greater support of AoA
  plans to modernize the OAA to better support
  the Network.