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					Patients acess to their health data
on the Danish national e-health

Morten Elbæk Petersen

•   The Danish Health Care System
•   The eHealth Portal
•   Bjarne’s story
•   Experiences and challenges
The Danish Health Care System

• Public health care (85 % of costs are financed through
• Free access to most health services for all Danish citizens
• A homogenous health care system
       NATIONAL: Legislation
       REGIONAL: 5 Regions; 80 Hospitals and more
       LOCAL: 98 Municipalities
Step by step: Danish health it

1992: Health Data Network established
1994: MedCom established to standardize messages
2001: The regions involve the national government in the
      establishment of a National eHealth Portal
2003: the eHealth Portal ( is launched
2004: the eHealth Portal supports log-on, and displays
      personal information
2008: Patient-to-patient dialogue introduced on
2009: the eHealth Portal improves performance by updating
      platform using .net
2010: All regions make EHR’s available using the same

•   The Danish Health Care System
•   The eHealth Portal
•   Bjarne’s story
•   Experiences and challenges
Objectives for
• information related to the use of the healthcare
• communication between patients and the health care
• support the patient in attending to his or her
  individual health situation.
• inter-patient communication on how to cope with
  chronic diseases; ”online patient networks”

•   The Danish Health Care System
•   The eHealth Portal
•   Bjarne’s story
•   Experiences and challenges

Bjarne is 58 years old and married. He has been diagnosed with diabetes
5 years ago.

Bjarne has had a tough time adjusting to a life with diabetes, and has
never put an emphasis on a healthy life style.

Bjarne will end up costing the health services a great deal of money if he
remains passive and is not offered prevention.
 Bjarne prepares for a check up

Bjarne is summoned to a regular check up at his GP, and uses his
netbanking id to access the eHealth portal and be reminded of the
goals of his treatment.

See what Bjarne finds
Bjarne at the GP

Bjarne’s GP access data that benchmarks Bjarne’s
progress with other diabetes patients in Denmark.

See what the GP finds

Bjarne’s numbers show that he does not exercise
enough and has more sugar in the diet than
Bjarne at the GP

Bjarne is motivated to start living healthier.

Bjarne is referred to a patient education course in his

           Bjarne’s GP finds a relevant course for
           Bjarne in the cross-sectoral list of health
           and prevention programs offered by
           municipalities or hospitals.
           See what the GP finds
Bjarne is given answers and

Bjarne’s GP receives the results of the blood test 2
days later, and shares the results with Bjarne via a
secure email.

The GP adds a link with diet advice from the Doctor’s
Handbook to the email.

The GP reminds Bjarne that his next check up is at
the hospital.

See the link to diet advice
Bjarne’s yearly check up at the hospital

Bjarne asks a question regarding the relationship between his wellbeing
and his diet.

              The doctor at the hospital access his
              Bjarne’s Medicine Profile with prescriptions
              to check if his medicine can explain his
              mood swings.
              See what the doctor finds
Has his vision deteriorated?

Bjarne is reminded that he should have his vision checked, since vision
can be impaired as a consequence of diabetes. Bjarne has tried calling his
ophthalmologist, but he has retired and the clinic is no longer open.

The hospital doctor suggests that Bjarne should find a new

What does Bjarne do?
 His eyesight is worse

Bjarne finds a new ophthalmologist in his area in the national directory of
the eHealth portal.

See what Bjarne saw before he chose

The ophthalmologist discovers that Bjarne’s vision has deteriorated and
that it is time for laser surgery.
Laser surgery

The operation is a succes and improves Bjarne’s sight.

Bjarne remembers that he is intolerant of the eye drops he was
prescribed an earlier time, but not which eye drops.

The ophthalmologist wants to make sure that Bjarne uses eye drops, and
accesses his Medicin Profile to avoid using the same eye drops.

See how the ophthalmologist found the name of the eye drops
Bjarne feels better

The improvement of his sight helps Bjarne lighten up, and he is very
motivated as he joins the patient education course of the municipality.

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•   The Danish Health Care System
•   The eHealth Portal
•   Bjarne’s story
•   Experiences and challenges
Has it made a difference?

• What about Bjarne?
• Acceptance from the general public
• International and peer recognition
What do the health services gain from
involving Bjarne?

A well prepared patient who already knows what needs to be adressed and allows the
conversation to focus on motivation etc.

A patient who feels co-responsible for his own health even though Bjarne may never
be a ’healthfreak’

Avoided complications that would have resulted in comprehensive expenses
Public acceptance: Total unique visitors
Graf 2
Documented effects

• 1 million consultations and transport saved just by
  providing information
• Online contact saves time and app. 10 million
  kilometers of transport
• Patients agree that access to personal data helps
  assume responsibility
• 55 % of the patients in cross-sector treatment find
  the digital exchange of information beneficial
International and peer recognition

•   EU eHealth award 2004
•   Top of the web 2005 (DK)
•   E-commerce award 2006 (DK)
•   The digitalization award 2006 (DK)
•   The Computerworld Honours Program 2007

Important recognition from
• Health Consumer Powerhouse (2008)
• ITIF - The Information Technology and Innovation
  Foundation (2009)
Next step… national strategy for
The strategy for 2010-2012 includes:
• A more patient-centric presentation of data
• More patient-to-patient dialogue
• Extended opportunities for the citizens to comment
  and add data to their own records ex. Patients room.
• Providing as content for other
• Telemedicine – as an expansion of existing solutions
  for diabetics and patients in AC Therapy
• Enabling access from mobile phones.

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