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Summer 2005 THE SHHH CALIFORNIAN THE AWAKENING HOH COMMUNITY ODA spends $5.8 Million a Year But very few services go to the HOH By Grace W. Tiessen populations. Most of these funds are spent for services for the culturally Deaf. This report describes the Office of Deaf Access • There are 8 ODA regions and 20 outreach centers, provid- (ODA) and the services and support given to hoh people. ing services to 152,000 hard of hearing or deaf persons in The ODA is a government funded agency of the Cali- CA. fornia Department of Social Services, and supports a network • We have an opportunity to request more equitable distri- of offices and paid staff covering the entire state of California bution of our tax money for hard of hearing people. and gives money and services to deaf people almost exclu- We have an opportunity to do the following: sively. The long term trend is toward fewer and fewer deaf • Ask the ODA for captioning, especially for large people, due to testing the hearing of infants at birth, early in- events of over 200 people. Ask them why there is al- tervention, advances in technology for hearing aids and the ways a signer and never a captioner at these events. growing use of cochlear implants (CIs). At the same time, the (Remind them of the demographics listed above). number of hard of hearing people is growing rapidly due to an • Use your SHHH organization to represent the needs of aging population (a shift in the demographics towards more hard of hearing people, by asking for captioning, help people over age 50), a noisy environment, young people lis- with paying for captioning, printing your newsletter, tening to loud music and the growing implantation of CIs. publicity, providing assistive listening devices, like FM Does the declining number of deaf people and the and Infrared and providing training on how to use them. growing number of hard of hearing people threaten the • Of the 9 ODA websites, only three mention caption- survival of agencies that fail to provide services for the ing. Unless we ask for it, they don’t know we need it! hard of hearing community? Why did schools for the deaf • Of the 8 ODA regions, only two have Outreach persons close in Massachusetts, Nebraska, North Carolina and on staff to serve non-signing hard of hearing people. Wyoming? Does the ODA need to change course and be- Try to get your Region to create a paid position of a gin hiring qualified hard of hearing people to provide ser- hard of hearing Outreach person to support non- vices to the hard of hearing community? signing hard of hearing people and cochlear implan- tees. Some basic statistics: Teach the ODA about the needs of hard of hearing people: • Hoh people consider themselves as living in the hearing world. They socialize with hearing people, and get most services from hearing agencies. • Accessibility for hard of hearing people means technol- ogy: Captioning, Assistive listening devices, FM, Infra- red, Loop, Email • Most hard of hearing people don’t know sign language The ODA in Fresno (DHHSC) is leading the way, and is a model region for ODA. (Congratulations to Rosemary Diaz, Susan Coulter and Lynn Toschi!). See www.shhhca.org/html/chapters/fresno.htm • They have the only full time paid staff member in Cali- • This pie chart represents 3,500,000 people in California fornia (Susan Coulter, a hard of hearing SHHH member), who are hard of hearing or deaf whose job is to develop programs to support non-signing • 1.5% of these or 52,500 Californians are culturally Deaf, hard of hearing people and cochlear implantees. and use sign language only • DHHSC received a grant from the city of Fresno for a • The ODA spends $5.8 million dollars a year. When justi- Living with Hearing Loss program. Lynn Toschi, (a hard fying the numbers of qualifying residents, the numbers of hearing SHHH member) was hired part time to assist always reflect both the Deaf and the hard of hearing (Continued on page 2) Page 2, Summer 2005 The SHHH Californian (Continued from page 1) tioning Susan in meeting the needs of hard of hearing clients. Two Outreach Centers: Imperial Valley and Vista Outreach • They supply the meeting room for the Fresno SHHH Region II, Riverside, www.codie.org chapter, and Susan Coulter is the President. Zibby Bayarsky, Director, Center on Deafness Inland Empire • They present an excellent one-year “Living with Hear- firstname.lastname@example.org ing Loss” series. Website: Sign language and Captioned notetakers • They provide publicity for the SHHH meeting in One Outreach Center: Victorville Outreach Fresno. Region III, Orange County, www.ocdeaf.org • They provide an FM Loop and Real-Time Captioning Edward Kelly, Director, Orange County Deaf Equal Access for this meeting. Foundation, email@example.com • They recognize hard of hearing people in the name of Website: Sign language only, with no mentioning of captioning their agency, Deaf and Hard of Hearing Service Cen- Region IV, GLAD, Los Angeles, www.gladinc.org ter. Patricia Hughes, PhD, CEO, Greater Los Angeles Agency on Several ODA regions have done a few things, but we Deafness, firstname.lastname@example.org Website: Sign language only, with no mention of captioning need to ask for more: Two Outreach Centers: Antelope Valley and Bakersfield Out- • DHHSC (Fresno) and NorCal (Sacramento) have Out- reach reach Counselors (hard of hearing SHHH members) on Region V, Tri-County GLAD, Oxnard, www.tcglad.org staff to develop programs for non-signing hard of hear- Juliana Fjeld, Director, Tri-County GLAD ing people and cochlear implantees. email@example.com • GLAD (Los Angeles) pays for captioning at the San Website: Sign language only, with no mentioning of captioning Fernando Valley Chapter meeting. One Outreach Center: Santa Maria Outreach • DCARA (San Leandro) has generously given money Region VI, Fresno, www.dhhsc.org Rosemary W.Diaz, CEO, Deaf & Hard of Hearing Service Center- for captioning. Central California, firstname.lastname@example.org • DCARA is developing remote on line captioning. Website: Sign language only, with no mentioning of captioning • DHHSC in Fresno, CODIE in Riverside and NorCal in Support staff for hard of hearing people: Susan Coulter & Lynn Sacramento sponsor an SHHH chapter and pay for Toschi (SHHH members) some captioning. Three Outreach Centers: Salinas, Merced and Visalia Outreach So where do we go to find our local ODA region, and Region VII, NorCal, Sacramento, www.norcalcenter.org ask for help? Sheri A. Farinha, CEO, Northern California Center on Deafness ODA is part of the California Department of Social email@example.com Website: Real-time captioning services Services. Support staff for hard of hearing people: Go to www.dss.cahwnet.gov Colette Noble (SHHH member) Click on CDSS Web Sites Five Outreach Centers: Chico, Modesto, Redding, Stockton Click on Office of Deaf Access and Yuba City Outreach Click on Deaf Access Assistance Program Region VIII, DCARA, San Leandro, www.dcara.org Click on DAP to see the counties in each region Robert Roth, CEO, Deaf Counseling, Advocacy & Referral Agency Click on DAP Headquarters and Outreach List to get firstname.lastname@example.org contact information for the 8 regions and 20 outreach Website: Captions OnLine centers Six Outreach Centers: Eureka, Fremont, San Francisco, San Jose, San Leandro, and Santa Rosa Outreach Following is the main office of ODA, the 8 regions and Continuing in our theme of a call to action for SHHH CA the 20 Outreach Centers. members: See if you can use this information to help you with Office of Deaf Access, main State website: your mission for 2004, when you will choose ONE action to www.dss.cahwnet.gov/cdssweb/DeafAccess_196.htm help improve accessibility for hard of hearing people. This is Ms. Lisa Bandaccari, Chief a resource that we can all use, so let’s let our voices be heard Office of Deaf Access for the benefit of all of those who are hard of hearing. California Department of Social Services 744 P Street, M.S. 6-91 PICASSO Sacramento, CA 95814 Website: Sign language only, with no mentioning of captioning Recognizing Pablo Picasso, a man inquired of the artist Region I, San Diego, www.dcsofsd.org why he did not paint people “the way they really are.” Picasso Ray Trybus, PhD, CEO, Deaf Community Services of San Diego asked what he meant by that expression. The man opened his Info@dcsofsd.org wallet and took out a snapshot of his wife, saying, “That’s my Website: Sign Language only, with no mention of cap- wife.” Picasso responded, “Isn’t she rather small and flat?” The SHHH Californian Page 3, Summer 2005 Coping with Carol WRITE A LETTER/EMAIL IT’S IN THE ATTITUDE Ask your U.S. Representative to by Carol Waechter, M.S., Psychologist cosponsor HR 414 There’s a story circulating about the golf phenom, 47 cosponsors, only one from Tiger Woods, and the exceptional musician who also happens California. to be blind, Stevie Wonder. It seems that these two happened to meet at a social gathering. At the time, Stevie compli- This is a very important bill. H.R.414 is a good first mented Tiger on his golf game and shared the fact that he also step in the process of getting coverage for hearing aids. It plays golf. Tiger was enthralled with the fact that a blind per- brings Federal recognition and credibility to hearing aids son could play golf so Stevie explained how he has a friend and their benefits. We need to get a foot in the door and this who stands on the green and calls to him so he knows in which is a start. We would like to get 100 cosponsors. So far we direction to hit the ball. have 47. There are 53 California U.S. representatives. Stevie then challenged Tiger to a game. Tiger graciously de- But only one, U.S. Representative Adam Schiff has clined but Stevie pressed on, offering $100 as a bet on the out- agreed to be a cosponsor. come of the game. Tiger, naturally, said he couldn’t do that U.S. Representative Jim Ryun (R-KS), hard of hear- but still, Stevie pressed on. Finally, Tiger agreed to the game ing and a former Olympic miler, has reintroduced the and the bet saying, “OK, when shall we play?” Without hesita- Hearing Aid Tax Credit Act of 2005, HR 414, which will tion, Stevie answered, “Midnight, tomorrow night!” provide a tax credit of up to $500 per device toward the pur- chase of hearing aids ($1000 for two). The tax credit may If this story is true, much can be learned from Stevie be taken by an individual age 55 or older or by their depend- Wonder’s attitude about his disability. There is a time in a ent child or parent and may be used once every five years. disabled person’s life when he or she must accept the dis- Please contact your U.S. Representative and urge him/ ability and move on. For those born with a disability, this her to co-sponsor Bill HR 414. To find his/her name/email often comes at puberty. In trying to form his identity, the ado- address, go to www.house.gov and enter your zip code. lescent has to confront his disability and in doing so realizes he Following is a sample letter. To phone, call U.S. Capitol is different from his peers and that he will always be that way. Switchboard at 202-224-3121. Psychologists tell us that the key to his forming a stable iden- To see the wording of this bill or to check to see tity that encompasses his disability lies with the relationships whether or not your representative has signed on as a co- he has been able to form. Stable relationships encourage sta- sponsor, go to http://thomas.loc.gov, enter HR 414, click ble identities. Stevie Wonder encompasses his blindness into on Bill Summary & Status, click on Cosponsors. his identity and doesn’t use it as an excuse for not participating Here is a sample letter/email in life. An individual who acquires a disability later in life may have The Honorable (full name) his identity shattered. “Imperfection” may not fit into his iden- House of Representatives tity and may require a confrontation with the disability. This “midlife” identity crisis does not differ greatly from the first Dear Mr./ Mrs./ Ms Last Name: one. The individual must realize he is different than he was, I support HR 414, the Hearing Aid Tax Credit Act of that he will always be that way and then decide that he can 2005, and ask that you co-sponsor it. move on with his life in spite of it. Sometimes priorities and We need a special tax treatment for hearing aids be- attitudes have to be re-evaluated and brought into line with cause they are not covered by Medicare and most insurance. abilities. But, here again, relationships, if stable before, will While 95% of individuals with hearing loss could be success- encourage continuing stable identities. With a stable iden- fully treated with hearing aids, only 22% currently use them. tity, hearing loss is not used as an excuse to stop living life The average out of pocket expense for two hearing aids today to its fullest. is over $2,800, and thousands of people are unable to afford them. (Use this paragraph to describe your own experience with hearing aids, why they are so important to you, and the burden the high costs place on your and your family.) I strongly support this Bill because it would bring the benefit of hearing aids to close to two million people with hearing loss - those over the age of 55 and dependent chil- dren. Please let me hear from you about co-sponsoring HR 414. Your name, title, SHHH chapter Page 4, Summer 2005 The SHHH Californian PRESIDENT’S MESSAGE It was really good to see so many of Training days in the Fall, right here in California. The you in February attending our SHHH-CA first one will take place in Southern California on State Conference. In spite of truly wet, rainy September 17, and the second in the San Francisco weather, we had over 200 attendees. It was a Bay area on October 29. These trainings are free, really enjoyable weekend. Jim Montgomery and will accommodate up to five people from each did a great job taking photos throughout the chapter. Please see the flyer on page 8 of this newslet- conference and even showed them on the big ter for complete details. You may also download this screen at the opening session. More were flyer from our website, www.shhhca.org. The train- shown at the Sunday morning breakfast, many ings will be captioned and have assistive devices for of which were contributed by Ann Marie discussion groups. Marilyn Finn, Carol Waechter, Henson of Advanced Bionics. A big “thank Sister Ann Rooney and your state chapter coordinators you” to the conference planning committee will all be involved in the excitement of this day. and everyone who participated, whether as SHHH supports adding coverage of cochlear volunteer, sponsor, speaker, workshop presenter, or implants to CalPERS insurance. Most private and public health exhibitor, to make this conference such a successful plans in the United States already provide coverage for this vital event! and life changing medical procedure. We do not understand why The following weekend, on February 26, I had CalPERS has decided to deny care for people with severe to pro- the privilege of attending the Oticon Award Luncheon found hearing loss. You, our active California SHHH members, in San Diego. Brenda Battat was awarded the Oticon can help make a difference by writing to your local state repre- Advocacy Award. Her advocacy efforts have directly sentatives. Those of you who are already CI wearers know what and indirectly influenced legislation and regulations a difference this amazing device has made in your lives. Please that affect people with hearing loss. In the areas of write to your state representatives urging them to include cover- telecommunications accessibility, community accessi- age for CIs in the CalPERS health insurance. Our legislators bility, and healthcare coverage for life changing tech- need to be educated on the importance of this issue to people with nology such as hearing aids and cochlear implants, severe to profound hearing loss. Brenda has made tremendous contributions. It was a The 25th anniversary of SHHH will be celebrated at the great honor to be present to see Brenda receive this convention in Washington DC on June 30 through July 3. We award. Also present were Joan Ireland and Brenda’s hope to gather all our Californians present there for a short meet- husband Joe and son James. ing and photo session. Please watch for a notice on the bulletin SHHH-CA is proud to announce another excit- board telling when and where! See you in DC! ing opportunity for our California chapter members. Sincerely, Sandi Streeter We will be conducting two special Chapter Leadership The SHHH Californian Page 5, Summer 2005 6th Leadership Training Program for SHHH Chapters Deadline July 15, 2005 Here is a great opportunity to develop your leadership skills. This program provides intensive training for potential or current affiliate leaders who wish to improve their skills in work- ing with SHHH volunteers, communicating the SHHH mission and message, and reaching out to people with hearing loss. A grant from Sprint and the AT&T Foundation has en- abled us to develop the Leadership Training Program. Please encourage people in your chapter to apply to partici- pate in the training program, which is scheduled for September 23, 24, and 25 in Bethesda, Maryland. Approximately 12 partici- pants from around the country will be selected. Travel, shared hotel accommodations and meals will be included. The training program will offer the following topics: Developing/refining skills in member participation, train- ing new leaders, working with hearing health care profes- sionals, planning meetings, carrying out publicity, etc. Understanding the SHHH structure, philosophy, and pri- orities. Understanding the SHHH programs and activities. Sharing of successful experiences by participants. The program is designed for existing leaders as well as indi- viduals who would like to serve in a leadership capacity within SHHH. Eligibility requirements and an application are available at http://hearingloss.org/msw/LTApplication.doc and must be re- turned to the SHHH office no later than Friday, July 15th. Those selected will be notified by August 1, 2005. Questions: Email Toni Barrient, Director of Member Ser- vices, email@example.com JAYNA ALTMAN Beauty Contestant and soon-to-be Au.D. Jayna Altman, a member of the SHHH-CA Board of Trustees, is competing in two more open beauty pageants- Miss Hollywood/Southland and Miss Southern California Regional, in her quest for the Miss California title. She was crowned Miss Orange County 2004, and was honored at the Miss California Pageant with the Spirit of Miss California award. Her dream is to win the Miss California title and then go on to become the next Miss America. Steven Noroian, President of Noroian Capital Manage- ment and our California Representative on the National SHHH Board of Trustees, is sponsoring Jayna in the Miss Hollywood/ Southland Pageant Jayna graduated from the University of California at San Diego with a B.A. in Communications with Department Honors and Distinction. Currently, she expects to pursue her Au.D. (Doctorate in Audiology) at the Washington University at St. Louis School of Medicine, to accomplish her dream of becom- ing a Pediatric Audiologist. After four years of medical school, she hopes to serve on the SHHH-CA board again. Page 6, Summer 2005 The SHHH Californian The SHHH Californian Page 7, Summer 2005 HOW HAS THE ADA HELPED HOH PEOPLE? by Grace W. Tiessen certain percentage of seats need captioning A day-long Public Forum for People with Disabili- Captioning should be routinely provided, just like a ties was held in Los Angeles, March 29, 2005, on the Im- Public Address system and ramps for wheelchair users. pact of the Americans with Disabilities Act of 1990 (ADA) Over 10% of the population have a hearing loss. With this on their lives. many people with invisible hearing loss, we can just as- It was sponsored by the National Council on Disabil- sume that captioning is always necessary. ity (NCD), Western Law Center for Disability Rights, and What is the solution? Goodwill Industries of Southern California. NCD, an inde- We need mandates in the ADA regarding hard of hearing pendent federal agency that advises the Congress and the people and captioning, like wheelchair users have. The Administration on disability policy, wants to learn whether ADA says that a certain percentage of parking spaces must and how the ADA has had an impact on the lives of Ameri- be for the disabled. cans with disabilities. Grace Tiessen spoke for hard of hear- We need a rule that says a certain percentage (10%) ing people. Following is some of her testimony. of seats in an auditorium must be saved in a block near the Due to an aging population and a noisy environment, stage (so hard of hearing people can speechread) and there there are more and more people with hearing loss. 25% of must be captioning for that block of seats. So in a 300-seat Americans over age 65, 33% over age 70 and 41% over age auditorium, there would be 30 seats in a block near the 75 are hard of hearing. We are by far the largest disability stage, with captioning for those seats. Or if the facility group, but are overlooked and ignored. The ADA is 14 years does not want to provide a block of seats, then they must old, but we have little or no access. We are a separate popu- caption for the entire audience. lation from the Deaf. Most hard of hearing people do not The way it is now, the hard of hearing person has to know sign language. request captioning for every program they want to attend. Why is it so hard to get communications access? And it is assumed that the entire audience is hearing except 1) We are part of the mainstream hearing culture and invisi- the person requesting access. ble. 2) It is assumed that every one is hearing, except the Suppose every time a wheelchair user wanted to do an person requesting access. 3) The medical profession has not errand, he had to phone ahead to be sure there was a disabil- been concerned with hearing health. However this is begin- ity parking space available. That is what people with hearing ning to change. Kaiser Permanente is beginning to listen to loss have to do every time they want to go out. us. 4) There are no standards in the ADA, mandating that a The ADA needs to include mandates to give hard of hearing people access. Page 8, Summer 2005 The SHHH Californian Chapter Leadership Training 2005 SHHH-CA is proud to present two, FREE, all-day Saturday Chapter Leadership Trainings: one for chapter leaders in Southern California on September 17, 2005, and one for chapter leaders in North- ern California on October 29, 2005. Participants will enjoy speakers and discussions on: Planning and Leading a Meeting, Setting Up and Staffing Committees, Projects, The Nuts and Bolts of Getting Your Meeting Room Hearing Acces- sible, Encouraging Membership Participation, Gleaning New Members From Communities, and more. There will be lots of sharing of chapter experiences. Register your chapter to attend this event! Come and learn. Come and interact with other chapter leaders in your area. Captioning will be provided. Five leaders from each chapter may attend. If you are not a chapter officer, but would like to attend, please contact your chapter officers to see if there is space for you. Southern California Saturday, Sept. 17, 2005 9 a.m. – 4 p.m. Weingart Senior Center, 5220 Oliva Ave., Lakewood, CA 90712 Deadline for chapter registration: Sept. 1, 2005 Contact: Carol Waechter, waechterC@aol.com Optional: We will plan to gather for dinner afterward, for those who can stay. Northern California Saturday, October 29, 2005 9 a.m. – 4 p.m. Deaf Community Center, 1550 San Leandro Blvd., San Leandro, CA 94577 Deadline for chapter registration: Oct. 14, 2005 Contact: Marilyn Finn, firstname.lastname@example.org Optional: We will plan to gather for dinner afterward, for those who can stay. ______________________________________________________________________________________ CHAPTER REGISTRATION FOR *FREE* LEADERSHIP TRAINING 2005 Chapter Name: ______________________ Email contact for chapter*:________________ Southern CA on Sept. 17, 2005 ___ or Northern CA on Oct. 29, 2005 ___ Attendees: 1) _______________________________, office ___________________________ 2) _______________________________, office ___________________________ 3) _______________________________, office ___________________________ 4) _______________________________, office ___________________________ 5) _______________________________, office ___________________________ Send completed registration to: South: Carol Waechter, 3621 Toland Ave., Los Alamitos, CA 90720-2255 North: Marilyn Finn, 101 Lafayette Circle, Apt. 1, Lafayette, CA 94549 *Registration confirmation, directions, etc. will be sent to your chapter email contact listed above. The SHHH Californian Page 9, Summer 2005 IS SHHH PRO OR ANTI WATCH YOUR LANGUAGE SIGN LANGUAGE ?? Hard of Hearing OR Deaf By Grace W. Tiessen By Dr. Terry Portis, Executive Director, SHHH Language/words describe our world. It is important to de- Once again, I have found myself in a conference scribe our world accurately. where a speaker suggested that more people learn American Sign Language (ASL) so we can support "deaf and hard of The International Federation of Hard of Hearing Peo- hearing people." ple, with members in 29 countries, and the World Federation Before I respond to this, let me say that the SHHH of the Deaf have agreed on the following terminology. They philosophy has always been "what works for you." If you will recognize the terms “hard of hearing” or “deaf”, but want to learn ASL to supplement your communication not “hearing impaired”. skills, go ahead. If it would do you no good, because you "Hard of hearing" means: all people who have a hear- don't even know anyone that uses sign, then that is OK too. ing loss and whose usual means of communication is by Most of our members rely on hearing technology and speech. It includes those who have become totally deaf after visual clues such as speech reading (or lip reading) to help acquisition of speech. them communicate. The last membership survey for SHHH "Hearing impaired" is a term which covers hard of showed fewer than 3% of our members know ASL. hearing and deaf individuals under a single category. However, That said, we need to be very clear that most of the hard of hearing and deaf persons in most countries reject this "deaf and hard of hearing" people in this country are definition because it fails to differentiate between these two not users of sign language. The most generous study I can social categories. find projects that 500,000 people are ASL users. That is out The joint declaration recognizes and respects the right of of 28 million people who are "deaf and hard of hearing." individuals with hearing losses ranging from mild to severe to Some studies suggest a more accurate figure would be regard themselves as either "hard of hearing" or "deaf" and 100,000 people. both organizations agreed to use the terms "hard of hearing" or In spite of this, how much of the state and federal dol- "deaf" only in their official terminologies. See www.ifhoh. lar is used to support the communication choice of the vast org/wfd.htm majority of people whose lives are impacted by hearing loss? While it is difficult to come up with exact numbers, I This newsletter now uses the terminology, “hard of hear- would suggest that state and federal funding for support- ing or deaf”. We are putting ourselves first, representing the ing hearing loss is exactly opposite of where it should be. same level of occurrence as in the population at large. The statistics of the hard of hearing are used to justify Hard of hearing and deaf people represent different funding that then usually never gets to them. populations. Hard of hearing people are not “deaf lite” or “less Sometimes we avoid saying what I have just said, be- deaf”. The solutions for Deaf people are not the same ones that cause we don't want to cause a rift in "the deaf and hard of work for hard of hearing people. The Deaf have a culture of hearing community." We do not want to get into the Deaf, their own, and are referred to as the “deaf or Deaf community”. deaf, hard of hearing, person with hearing loss, etc. debate. They possess the characteristics of a true community, with a However, it is time that advocates for people who are hard shared language (sign) and a social identity. Hard of hearing of hearing start to make some noise about serious funding people are those who choose to live in the mainstream hearing inequities that are found throughout the country. world, and don’t have a community or culture of their own. Some questions you might want to ask in your state: They are more dispersed, and aren’t as unified in their social • How much does your state deaf and hard of hearing connections. service provider spend for ASL services versus CART services for example? • How much is spent providing technologies for hard NEW BABY - SHHH-LA of hearing people by your vocational services agency? CHAPTER • Will your local court system provide an ASL inter- Valerie Stern, president of the preter for a deaf person? Then, will they provide SHHH-LA chapter, and husband Willy, CART for a hard of hearing person? proudly present their newest addition to • Does your state fund video relay (so people can see the SHHH family, Aidan Nicole Stern. an interpreter)? Then, do they also provide an equal The production was nine months in the level of funding for CAPTEL phones? making, and opening night has come with I think these questions will help us begin to bring to light great reviews!! We're all thrilled at the some of the inequities that exist. news and couldn't be happier for Val, Willy and little Aidan. She attended her first SHHH meeting March 27, 2005, when she was exactly one month old. Page 10, Summer 2005 The SHHH Californian The SHHH Californian Page 11,Summer 2005 2006 BOARD OF TRUSTEES ELECTION Deadline September 15, 2005 The SHHH-CA Nominations Committee announces appli- cations will be accepted to fill three Board of Trustees positions. An applicant must be a member of SHHH and a resident of Cali- fornia. The term of office is three years with two Board meetings a year in February and August. Reasonable travel expenses will be reimbursed. Applications may be obtained online at www.shhhca.org, click on Board of Trustees. Or from Carol Waechter, SHHH-CA Secretary, 3621 Toland Avenue, Los Alamitos, CA 90720-2255, phone 562-598-3850, email@example.com. Completed ap- plications must be postmarked no later than September 15, 2005. COCHLEAR IMPLANTS Medicare Expands Coverage As of April 7, 2005, the Centers for Medicare & Medicaid Services (CMS) will expand coverage of cochlear implant de- vices (CIs). Previously, Medicare covered CIs for beneficiaries with open-set sentence recognition test scores of 30 percent correct or worse. Under today's decision, Medicare will cover CIs in benefi- ciaries who have test scores of 40 percent or less correct, and test scores over 40 percent up to 60 percent if they are participating in a clinical trial of cochlear implantation that meets certain re- quirements SHHH-CA SUPPORTS AB 181 More Captioning SHHH-CA has become one of a coalition of supporters for AB 181, introduced by California State Assembly Member Bob Huff (R-Diamond Bar). This bill would enact the Legislative Captioning Act of 2005, which would provide that the rules committee of the respective house shall provide closed- captioned and live-captioned broadcasts of the floor sessions and committee hearings of the Senate and Assembly. See www.leginfo.ca.gov IS YOUR WILL UP-T0-DATE? Because deaf and hard of hearing people use the Internet and email extensively, they need to put a clause into their Will and Living Trust documents, giving the Executor and Trustee full Power of Attorney over their email accounts and Internet websites, blogs, etc. Melike—Your Webmaster Meet Melike Bitlis Bush, the cheerful webmaster of our State website www.shhhca.org. She was chosen "Person of the Week" by a local Santa Barbara website. Melike helps make my life easy by updating our website with a 24-hour turnaround. She's fast, accurate and fun to work with. See a photo of Melike at www.edhat.com/site/tidbit.cfm?id=573 Page 12, Summer 2005 The SHHH Californian The SHHH Californian Page 13, Summer 2005 SHHH AND CIAI CHAPTERS ACROSS CALIFORNIA NORTHERN CALIFORNIA Sacramento Chapter Orange County Chapter –Orange Northern CA Chapter Coordinator Jim Ray, firstname.lastname@example.org Mary Clark, email@example.com Cindy Jagger, firstname.lastname@example.org 8665 Florin Rd #89, Sacramento, 95828 1713 Harvest Lane, Brea, CA 92821 1213 Pheasant Dr, Suisun City, CA *82-916-383-3777 714-529-0218 707-422-3753 V/CRS Tri-Valley Chapter –Pleasanton Redlands Area Chapter-Redlands Hiram Van Blarigan, 925-455-6591 Jim Koski, email@example.com Diablo Valley Chapter-Walnut Creek 716 Katrina, Livermore, CA 94550 18711 Tereticornis Ave, Jim Montgomery Lake Elsinore, CA 92532 Hvanblarigan@hotmail.com Jmontgomery@shhhca.org 951-674-5901 V 925-684-2731 V/TTY/Fax SOUTHERN CALIFORNIA Riverside Chapter Southern CA Chapter Coordinator Rick Terrazano firstname.lastname@example.org East Bay Chapter -Oakland Barbara Tucker, email@example.com 951-684-4139 Peter Townsend, firstname.lastname@example.org P.O. Box 761,Beaumont, CA 92223 549 Bonnie Dr, El Cerrito, CA 94530 951-849-9315 V San Fernando Valley Chapter –Encino 510-524-7964 V Phil Kaplan, email@example.com Dorothy Brookover, Burbank Chapter 19262 Pebble Beach Pl, Tulipup007@cs.com Leo Maggio, firstname.lastname@example.org Northridge, CA 91326 23410 Kittridge, West Hills, CA 91307 818-368-1303 818-340-1503 V/TTY/Fax Fresno Chapter Susan Coulter email@example.com Santa Barbara Chapter 5340 No. Fresno St., Fresno, CA 93710 Escondido Chapter Dorothy Holland-Kaupp, 599-225-3323 V 559-225-0116 Fax Dorothy Wormser, firstname.lastname@example.org email@example.com 851 Concerto Glen, Escondido, CA 92025 5140 San Lorenzo Dr, Santa Barbara, CA 760-747-3813 V 760-737-9149 Fax 805-967-5241 North Bay Chapter -Napa Bern Klein, ZBCKLEINZ@aol.com Hi-Desert Chapter –Victorville Santa Monica Chapter 3200 MacLeod St. Napa, CA 94558 Kathy Bates-Polster, Nanci Linke-Ellis 707-226-9832 V firstname.lastname@example.org Nanci.LinkeEllis@insightcinema.org 760-243-1209 V/TTY 310-452-8700 Peninsula Chapter -Redwood City SHHH-LA Chapter –Pasadena Raegene Castle, email@example.com Inland Empire Chapter –Beaumont Valerie Stern, firstname.lastname@example.org 827 Mohican Way, Redwood City, CA 94062 Sandi Streeter 310-477-7256 650-369-4717 P O. Box 483, Beaumont, CA 92223 Marjorie Heymans, 650-593-6760 V 951- 845-5174 TTY or Relay S.email@example.com SHHH-4-Lunch Chapter –Encino 1505 Ralston Ave. Belmont, CA 94002 Diane Gross, firstname.lastname@example.org 15455 Glenoaks Blvd. #355, Sylmar CA Irvine Groves Chapter –Irvine 818-367-8360 V, 818-367-2062 TTY San Francisco Chapter Lorraine Fanizza, email@example.com Ronda Bonati, RBEBE@aol.com 5200 Irvine Blvd., #308, Irvine, CA 92620 935 Diamond Street, CIAI CHAPTERS 714-669-0401 V/TTY/FAX San Francisco, CA 94114 Los Angeles CIAI chapter 415-705-0550 V Diane Rott, firstname.lastname@example.org Leisure World /Laguna Woods Chapter 451 E. Rowland #29, Covina, CA 91744 Marilyn Finn, email@example.com Woodley Butler, firstname.lastname@example.org 626-331-7547 2248-A Via Mariposa East, Laguna Woods, CA 92653-2179 Orange County CIAI Chapter –Orange San Jose Chapter 949-859-4088 V 949-699-2931 Fax Jack A Belt, JABELT@aol.com Bruce McClelland BMcClell@aol.com 1225 N. Harvest Walk Dr. Valinda, CA Long Beach/Lakewood Chapter 626-934--0127 Louise Allen, LAllen7099@aol.com 3033 Chatwin Ave.Long Beach, CA 90808 San Diego CIAI Chapter SHHHasta Chapter -Redding 562-429-7099 V Jacqueline Harding, Sharon Hunter email@example.com CFHJCH1995@aol.com 530-242-1574 Mission Viejo Chapter 4283 Rueda Drive, San Diego, CA 92124 Marion Peterson, firstname.lastname@example.org Pril Worcester Kirkeby 858-569-6301 P.O.Box 864, Anderson, CA 96007 email@example.com 530-365-0790 V 28091 Via Pedrell, Mission Viejo, CA 949-855-6786 V Where/when do these chapters meet? See www.shhhca.org/html/chapters.htm Page 14, Summer 2005 The SHHH Californian CONTACT THESE DESKS WITH YOUR HEARING LOSS QUESTIONS OR CONCERNS! Desks are volunteers with expertise in sub- jects that interest hard of hearing people. Education: Hard of Hearing Children Telecommunications Access for Deaf They will answer your questions, give ad- Grace Tiessen and Disabled Administrative Committee vice or just lend an ear, depending on your firstname.lastname@example.org and (TADDAC) specific needs. Helen Walter Philip Kaplan Chair 909-849-6713 V Philillini@aol.com Advocacy/Access and Accommodation for email@example.com 19262 Pebble Beach Place Hard of Hearing People 4325 Mockingbird Lane, Banning 92220 Northridge, Ca 90326 Phil Kaplan 818-368-1303 PHILILLINI@aol.com Health Care Access and Advocacy Margaret Azcona California Relay Service (CRSAC) Assistive Listening Devices 510-531-SHHH V FAX Cecilia Hartley 925-672-3421 V Eric Wormser firstname.lastname@example.org email@example.com 760-747-3813, firstname.lastname@example.org PO Box 600, Clayton CA 94517 Valerie Stern (Late Deafened) PO Box 301307, Escondido 92030 Hearing Aids, Assistive Listening Devices Valstern@verizon.net Audiology Issues/ Ethics/Training Ellen Baker, email@example.com 310-479-9144 Kenneth I. Billheimer, AuD 805-522-2159 V 925-484-3507 V; firstname.lastname@example.org 2719 Bitternut Circle, Equipment Program (EPAC) 4460 Black Ave. #C, Pleasanton 94566 Simi Valley, CA 93065 Karen Street 510-526-1950 V email@example.com Cochlear Implants 1721 Rose Street, Berkeley CA 94703 Cindy Jagger (Northern CA) Lip Reading 707-422-3753 Barbara Bishop firstname.lastname@example.org Work Related Issues: Getting and Keep- 510-601-9828 V, TTY ing a Job When Hard of Hearing 1213 Pheasant Drive, Suisun City 94585 Ptownmoma@aol.com and Robyn Tenensap 33 Linda Ave. #2502, 310-641-3214 TTY; 310-417-8326 FAX Darlene Fragale (Southern CA) Piedmont, CA 94611 MRTENENSAP@aol.com 909-882-4680 V And California Dept of Rehabilitation email@example.com Felice Kolda, CCC-AU 8929 S. Sepulveda Blvd., Ste. 300 2063 Mimosa Ct. 626-585-8766, Pasadena & LA Los Angeles 90045 San Bernardino, CA 92404 310-828-4389, Santa Monica 949-499-2740, Mission Viejo Youths with Hearing Loss Combined Hearing and Vision Loss Cathy Kirscher T. Jordan Goulder, Ph.D. c/o Helen Keller National Center Infant Hearing Screening 858-623-2777 x408 V; 858-552-1998 6160 Cornerstone Ct. E, San Diego 92121 Grace Tiessen TTY firstname.lastname@example.org email@example.com 858-623-2777 x 389 V 6160 Cornerstone Ct. E, San Diego 92121 858-646-0784 TTY; 858-642-0266 Fax LILS-Locations with Installed Listening and firstname.lastname@example.org Systems (customized lists available for $3) Nick Nichols Coping and Adjustments to Hearing Richard Panzer 760-745-4577 V Loss NicknFreda@aol.com 707-257-1718 TTY, V, Fax Carren J. Stika, Ph.D. 819 E. 5th Ave., Escondido 92025 email@example.com 858-623-2777 x386 V; 1315 Loma Vista Dr., Napa 94558- 858-554-1540 TTY 9443 To find an SHHH group near you or firstname.lastname@example.org To start a new SHHH group 6160 Cornerstone Ct. E, San Diego 92121 Dogs for the Deaf Cindy Jagger and Anne Hills email@example.com Laine Waggoner, M.A., M.S. Barbara Tucker 440 Meadowview Dr. 173 Club Circle Drive, Palm Springs CA La Canada, CA 91011 See page 13 for address/phone 760-324-4150 V 818-790-5056TTY LaineWaggoner@dc.rr.com 818-790-5416Fax Real Time Captioning at College SHHH California We welcome your suggestions or comments Colette Noble, firstname.lastname@example.org Sandi Streeter, President about the Desks Program. Please contact: 2151Oakland Road, Spc 254 951-845-5174TTY Barbara Bishop San Jose, CA 95131 email@example.com 510-601-9828 V, TTY 408-944-0898 Ptownmoma@aol.com PO Box 483,Beaumont, CA 92223 33 Linda Ave. #2502, Piedmont, CA 94611 The SHHH Californian Page 15, Summer 2005 250 NEW SHHH MEMBERS IN 2005 Our new statewide project Remember how happy and amazed you were when you first found SHHH. Give the gift of a FREE six month’s membership in SHHH to others. Our primary target is new hearing aid purchasers who have never before heard of SHHH. You are encouraged to enlist the help of your local audiologists to find new members. Audiologists come in contact with peo- Board of Trustees ple who need our organization and its benefits every day Sandi Streeter, President Inland Empire Chapter 951-845-5174 TTY or Relay JOIN SHHH: Only $25 for an individual/couple/family firstname.lastname@example.org How do I know if I am a member of SHHH? You are a member if you receive the bi-monthly Hearing Loss Journal. You can sign up online at our secure site, www. Jim Montgomery, hearingloss.org. Or make a check payable to SHHH and mail to SHHH, 7910 Woodmont Vice President (CI) Diablo Valley Chapter Ave., Suite 1200, Bethesda, MD 20814. 925-684-2731 V/TTY/Fax email@example.com RENEW/SUBSCRIBE to your Newsletter, only $7 Carol Waechter, Secretary Long Beach/Lakewood Chapter Please make your check payable to SHHH-CA and mail to Grace Tiessen, 714 Prospect 562-598-3850 Blvd., Pasadena, CA 91103. Cwaechter@shhhca.org Gene Cox, Treasurer (CI) SUCCESS - EASY OUTREACH CIAI-LA Chapter 818-363-4518 Audiologists/Teachers firstname.lastname@example.org reach out to your HOH clients Marilyn Finn This is an easy way to spread the word about SHHH, to reach out to hard of hearing San Francisco Chapter people looking for support and information. 925-284-2847 The following have ordered bulk copies of The SHHH Californian. Mfinn@shhhca.org • Colette Noble, Client Advocate at NorCal, Sacramento (15copies) • Laine Waggoner, Hearing loss Education and Relationships, Palm Springs (30copies) Grace Tiessen, Past President San Fernando Valley Chapter • Bruce McClelland, San Jose SHHH Chapter (20 copies) 626-796-0034 Voice/Fax Gtiessen@shhhca.org Bulk copies of The SHHH Californian for distribution. Jayna Altman If you would like to receive bulk copies of the State newsletter to distribute in hospitals, San Diego Youth Chapter audiologists’ offices, senior centers etc., please email email@example.com by July 20, 2005 858-503-0201 firstname.lastname@example.org to let her know how many copies of the Fall 2005 issue you could profitably use. Delia Itanen Orange County Chapter SHHH-California publishes The SHHH Californian quarterly in mid February, May, 714-964-6212 August and November email@example.com Demographics. Our database consists of 3400 records--1250 California SHHH members; Ann Rooney 1330 California audiologists; 100 CA Department of Rehabilitation Hard of Hearing or Deaf Peninsula Chapter 650-343-0114 Counselors; 120 Itinerant Teachers of the hoh or Deaf; 30 Office of Deaf Access regional/ firstname.lastname@example.org outreach centers, 50 members of CIAI (Cochlear Implant Assn International), 20 members of ALDA (Association of Late Deafened Adults), 45 Costco Hearing Aid Centers, 20 HEARx Cindy Jagger, ex officio (CI) No. CA Chapter Coordinator Hearing Aid Centers, 30 Kaiser Permanente audiologists and others interested in hearing loss 707-422-3753 Voice issues. email@example.com Editor: Grace W. Tiessen, firstname.lastname@example.org Barbara Tucker, ex officio (CI) Layout: Raymond Blue, email@example.com So. CA Chapter Coordinator PO Box 761, Beaumont, CA Contributions are eligible for income tax deductions as provided in Section 501 (c) (3) of 951-849-9315 Voice the Internal Revenue Service Code. firstname.lastname@example.org Mention of goods or services in articles or advertisements does not imply endorsement, Steve Noroian, ex officio nor does exclusion suggest disapproval. National Board of Trustees 925-938-7235 Fax Any portion this newsletter may be reprinted or disseminated, as long as credit is given Sanoroian@aol.com to the individual author or to this publication. Submissions for the Summer 2005 issue are due no later than July 15, 2005 and should be sent to email@example.com. Inclusion and/or editing will be at the full discretion of the Editor. Grace W. Tiessen 714 Prospect Blvd, Pasadena, CA 91103 Address Service Requested SELF HELP FOR HARD OF HEARING PEOPLE, INC. Supporting SHHH Chapters throughout California. Who We Are Self Help for Hard of Hearing People, Inc. is an international, non-sectarian, educational, consumer organization of hard of hearing people, their relatives and friends. It is devoted to the wel- Self Help for Hard of Hearing People, Inc. fare and interests of those who cannot is the largest consumer organization of hard of hearing people in the United States. hear well but are committed to partici- pating in the hearing world. Our Mission Statement: SHHH NATIONAL To open the world of communication to people with hearing loss 7910 Woodmont Avenue, Suite 1200 by providing information, education, support and advocacy. Bethesda, Maryland 20814 301-657-2248 V 301-657-2249 TTY 301-913-9413 FAX Watch your websites for the latest news. firstname.lastname@example.org SHHH-National: www.hearingloss.org www.hearingloss.org. SHHH-California: www.shhhca.org Webmasters: Grace W.Tiessen & MBBDesign, www.Mbbdesign.com SHHH-CA, California State Associa- tion of Self Help for Hard of Hearing People, is affiliated with the national organization headquartered in Be- thesda, MD. Both are non-profit and tax-exempt. Anyone residing in Cali- fornia who has joined our national organization is a member of SHHH- CA.
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