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HEADLINER Brain Injury Association of Oregon


  • pg 1
The Newsletter of the Brain Injury Alliance of Oregon
                                                                                                            Summer 2012
                                                                                                            Vol. XIX Issue 3

  What’s                New hand-held scanner
 Inside?                can detect brain injury
  The President’s
      Corner           A new hand-held, battery-operated sensor that          brain bleed.
      Page 2           can help detect the most serious of brain bleeds
                       could soon be making its way to the fleet.            The scanner’s
 Board of Directors                                                          fiber optics can
      Page 2           The device looks a lot like a Nintendo Wii            get a reading
    Professional       controller and can be used in a mass casualty         through hair so
     Members           situation to prioritize needs. Corpsmen can use       heads don’t
      Page 3-5         this device can to detect invisible wounds from       need to be shaved.
                       explosive blasts. It could also be used at sea in
 The Lawyer’s Desk                                                           An area in the brain with a bleed would hold about
                       the event of a mishap or even to detect an athletic
      Page 6-7                                                               10 times more hemoglobin than the uninjured
 Congratulations to                                                          portion. The scanner can detect that concentration
   John Coletti        What you need to know:                                and identify the location of the bleed.
      Page 7
                        The device: The InfraScanner, designed by           The measurements can be completed and results
  BIAOR Calendar        Philadelphia-based InfraScan Inc., is designed      obtained in about two minutes.
      Page 7            to aid in identifying the type of brain bleeds that
                        could result in death or serious brain damage.        Specs: The brain scanner weighs about one
                        It’s portable enough that corpsmen can keep the       pound. It’s approximately 9 inches by 3.5 inches
                        scanner in their pack. The device is resistant to     by 2 inches. The screen on the front shows the
      Page 8
                        water and performs well in a wide range of            results — it doesn’t need to be plugged into a
 Acts One, Two and      temperatures.                                         second device.
       Page 9           How it works: The scanner uses infrared light        The cradle is used to recharge the battery and
                        to measure the brain. Eight spots are measured       transfer data to a computer. The part of the device
  Legal View Point
    Page 10-11          — four on the right and four on the left. Any                                 (Brain Scanner Continued on page 5)
                        asymmetry between the sides can indicate a
   Idaho Update
      Page 12
   CBIRT Update
     Page 12
                                     The Secret To Happiness
   Aging with TBI                                 (even after a brain injury!)
    Page 13-14
                                                                                 So what is happiness? For Aristotle, it was
   Brain Injury &                                                                the practice of virtue. For a Buddhist, it
     Fighters                                                                    involves freedom from suffering and cravings
     Page 17                                                                     through the Eightfold Path. Thomas Aquinas
Drug triggers neuron                                                             described happiness as the “beatific vision of
       growth                                                                    God’s essence in the next life”.
      Page 18
                                                                                 While spiritual views undoubtedly play a role in
Symptoms of Stroke                                                               happiness for many people, we will define
     Page 19                                                                     happiness as a state of mind or feeling
  What Did I Gain?                                                               characterized by contentment, satisfaction,
    Page 20-22                                                                   pleasure or joy. What’s more, we’ll look at the
                                                                                 key findings of rigorous research into what
    Resources                                                                    puts a lasting smile on our faces. It certainly
    Page 22-25                                                                   can’t hurt — happier people get sick less often,
  Support Groups                                                                 live longer and have more relationships.
    Page 26-27
                                                                                                        (Happiness Continued on page 5)

The Headliner                                           Summer 2012                                                         page 1
       Brain Injury Alliance of Oregon
             Board of Directors
Ralph Wiser, JD/President….....Lake Oswego
                                                               The President’s Corner
Chuck McGilvary, Vice Pres..…..Central Point                                      By Ralph Wiser, JD
Cheryl Coon, JD Secretary…………...Portland
Carol Altman, Treasurer……………...Hillsboro
David Dubats ……………….…………Waldport                          Summer is here, which often means more            footprint is limited to
Coleen Carney, RN…………….……..Portland                       time for reading. I’m finding there are           this region as our
Paul Cordo, PhD ……….......……...…Portland                  many more entertaining, fact-filled and           outreach and
Lisa Cunningham……………………...Portland                        story-driven books about the brain                connections span the
Wayne Eklund, RN.……………………..Salem                          available that rival the best novels.             nation. In this
Rep. Vic Gilliam …….…...…………...Silverton                  Perhaps this is because they answer the           regard, Sherry Stock
Rik Lemoncello,PhD………………….Portland                        interest, or perhaps craving, for more            has been invited to
Steve Wright …………………………..Portland                                                                           appear at the NABIS
                                                          information about the anatomy and
                 Advisory Board
Kristin Custer, QLI………..…….….Omaha, NE
                                                          function of the brain and, in some cases,         conference in Florida
Danielle Erb, MD..............….........…...Portland      cutting edge treatments for brain disorders.      to participate in a panel on brain
Dr. Herbert Gross ………….……….. California                   Two that come to mind are the Tell-Tale           rehabilitation. In addition, BIAOR receives
Andrea Karl, MD …….…….…....….Clackamas                    Brain, by V.S. Ramachandran, and                  inquiries from brain-injured persons and
Dave Kracke, JD.………….….....……Portland                     Incognito, by David Eagleman. You may             organizations from around the nation.
Col. Daniel Thompson…………....……..Salem                     have read brain-related books that you can
Bruce Wojciechowski, OD…….......Clackamas                 recommend. If so, please do not hesitate          As regards upcoming events, long-time
                         Staff                            to email me with your selections and              member Bruce Wojceschowski, O.D., will
Sherry Stock, MS CBIST Executive Director                                                                   present a lecture at Good Samaritan
                                                          recommendations at ralph@wiserlaw.com.
Jeri Cohen, JD Associate Director                                                                           Hospital in the Medical Office Building
John Botterman, Editor                                    I will publish a list of these books in a later
                                                          column.                                           Auditorium on Saturday August 4, 2012,
Becki Sparre, SG Facilitator, Admin, Trainer
                                                                                                            from 9:30–12:00 p.m. The event is free and
     Brain Injury Alliance of Oregon                      Although summer is here, the BIAOR                open to the public. The lecture is titled, “A
                PO Box 549                                keeps humming along under the                     Real Look Into Brain Injury.” As you know,
       Molalla, Oregon 97038-0549                         stewardship of its energetic Executive            vision is largely a construct of the brain (see
   800-544-5243 • Fax: 503-961-8730                       Director, Sherry Stock. Sherry reports that       Incognito, above). Dr. Wojceschowski’s
           www.biaoregon.org                              movements are afoot on the national and           presentation is sure to be informative and
          biaor@biaoregon.org                             regional levels which may make our                well-done.
     501 (c)(3): Fed. ID 93-0900797                       affiliations with other brain injury
              Headliner DEADLINES                         organizations more productive and                 Finally, we have welcomed new Board
Issue          Deadline            Publication            rational. It appears that our organization        members to the Board. They possess
Spring         April 15            May 1                  may benefit by affiliating with brain injury      unique talents that will contribute to the
Summer         July 15             August 1               organizations in the Pacific Northwest and        further success of the organization.
Fall           October 15          November 1             Alaska to deliver information and services
Winter         January 15          February 1             to our constituency, rather than with             Enjoy the summer.
Editor: Sherry Stock, John Botterman                      national organizations based primarily in
Co-Editor: Jeri Cohen, 503-704-6122                       the east, given issues of funding,                Be safe.
                                                          geography and the provision of services.          Ralph Wiser, JD, can be reached at
        Advertising in Headliner                          That is not to say that our organization’s        ralph@wiserlaw.com or (503) 620-5577.
Rate Schedule            Issue       Annual/4
(Color Rate)                           Issues
A: Business Card $100(125) $350(450)
B: 1/4 Page           $200(250) $700(900)
C: 1/2 Page           $300(375) $1000(1300)
D: Full Page          $600(700) $2000(2400)
E. Sponsor Headliner $2500           $10,000
     Advertising on BIAOR Website:
    $10,000 for Banner on every page
       $5000/year for Home Page
  $250 for active link Pro-Members page                                   David Dubats | CEO
                       Policy                                                                 H
                                                                          Second Step, Inc. | " elping People Walk Again"
The material in this newsletter is provided for                           P.O. Box 42121 | Eugene OR 97404
education and information purposes only. The Brain
Injury Alliance of Oregon does not support, endorse or
recommend any method, treatment, facility, product or                     david@secondstepinc.com | secondstepinc.com
firm mentioned in this newsletter. Always seek                            Toll Free: 877.299.STEP | Direct: 541.337.5790 |
medical, legal or other professional advice as                            Fax: 866.596.0765
appropriate. We invite contributions and comments
regarding brain injury matters and articles included in
The Headliner.

page 2                                                                           Summer 2012                                       The Headliner
When looking for a professional, look for someone who knows and understands
brain injuries. The following are supporting professional members of BIAOR.
Attorneys                                    Stephen Piucci, Piucci & Dozier, Portland       Karen Campbell, Highland Height Home
                  Oregon                        503-228-7385                                   Care, Inc, Gresham & Portland, 971-227-
                   Bend                      Charles Robinowitz, Portland, 503-226-            4350 or 503-618-0089 Medically Fragile
† Dwyer Williams Potter Attorney’s LLC,         1464                                         £ Casa Colina Centers for Rehabilitation,
  Bend, 541-617-0555www.RoyDwyer.com         J. William Savage, Portland 503-222-0200          Pomona, CA, 800-926-5462
John Warren West, Law Offices of John        Joshua Shulman, Shulman DuBois, LLC,            Maria Emy Dulva, Portland 503-781-1170
  Warren West, Bend, 541-382-1955               Portland, 503-222-4411                       Fe Gutierrez, Everlasting Adult Care Home,
                Eugene Area                  € Richard A. Sly, Portland 503-224-0436,          Milwaukie, 503-654-6559
Thomas Cary, Cary Wing Edmunson, PC,            SSI/SSD/PI                                   Deanna Gwin, Portland, 503-238-1406
  Eugene, 541-485-0203 WC                    Steve Smucker, Portland 503-224-5077              Medically Fragile-Ventilators
Don Corson, Corson & Johnson Law Firm,       Ray Thomas, Swanson, Thomas & Coon,             Jay Herzog, The Mentor Network, Portland
  Eugene, 541-484-2525                          Portland, 503-228-5222                         503-258-2440
Charles Duncan, Eugene, 800-347-4269         ¥ Tichenor& Dziuba Law Offices, Portland        Kampfe Management Services, Pam Griffith,
† Derek Johnson, Johnson, Clifton, Larson       503-224-3333,                                  Portland, 503-788-3266 Apt
  & Schaller, P.C., Eugene 541 484-2434      Uffelman, John, Adams & Uffleman LLP,           Learning Services, Northern CA & CO, 888-
Tina Stupasky, Jensen, Elmore &                 Beaverton, 503-644-2146                        419-9955
  Stupasky, PC, Eugene, 541-342-1141,        Richard Vangelisti, Vangelisti Law Offices      Joana Olaru, Alpine House, Beaverton, 503-
  Sisters, 541-549-1617                         PC, Portland 503-595-4131                      646-9068
               Portland Area                 Ralph Wiser III, Wiser & Associates, Inc.,      † Oregon Rehabilitation Center, Sacred
William Berkshire, Portland 503-233-6507        Lake Oswego 503 620-5577, PI & SSI/            Heart Medical Center, Director: Katie
  PI                                            SSDI                                           Vendrsco, 541-228-2396
Mark Bocci, Portland, 503-607-0222 PI                        Salem Area                      Quality Living Inc (QLI), Kristin Custer,
‡ Cheryl Coon, Swanson, Thomas &             Vance Day, Adams, Day & Hill, Salem, 503          Nebraska, 402-573-3777
  Coon, Portland, 503-228-5222                  399-2667                                     † Ridgeview Assisted Living Facility, Jolene
  www.stc-law.com SSDI                       Daniel Hill, Adams, Day & Hill, Salem, 503-       White, Medford, 541-779-2208
James Coon, Swanson, Thomas & Coon,             399-2667                                     Fabiola Ruiz, All Season’s Care, Salem, 503
  Portland, 503-228-5222 PI                                   Roseburg                         -588-7470
Tom D'Amore, D'Amore & Associates,           Samuel Hornreich, Roseburg, 541-677-            † Sharon Slaughter, Windsor Place, Inc.,
  Portland 503-222-6333                         7102                                           Salem, 503-581-0393
Aaron DeShaw, Portland 503-227-1233                          Washington                      Melissa Taber, Oregon DHS, 947-5169
D’Autremont, Bostwick, Carter & Krier,                                                       Wally & Donna Walsh, Delta Foundation/
  Portland, 503-224-3550                                   Bremerton                           Snohomish Chalet, Snohomish, WA 360-
¥ Lori Deveny, Portland, PI 503-225-0440     Kenneth Friedman, Friedman Rubin,                 568-2168
Wm. Keith Dozier, Portland 503-594-0333       Bremerton, 360-782-4300
                                                                                             Chiropractic/Massage Therapists
† R. Brendan Dummigan, Portland 503-                           Seattle                       Carol Ford, Portland Cranial Sacral Therapy,
  223-7770                                   Richard Adler, Adler Giersch, Seattle, WA         Portland, 503-608-2372
Chris Frost, Swanson, Thomas & Coon,           206.682.0300                                  Thomas Kelly, DC, Chiropractic Neurologist,
  Portland, 503-228-5222                     ‡ Kevin Coluccio, Stritmatter Kessler             Kelly Chiropractic, PS, Vancouver, WA,
Peggy Foraker, Portland 503-232-3753           Whelan Coluccio, Seattle, WA 206-448-           360-882-0767
Sam Friedenberg, Nay & Friedenberg, 503-       1777 www.stritmatteer.com                     Garreth MacDonald, DC, Eugene, 541-343-
                                             CareGiver & Support Services                      4343
€ Bill Gaylord, Gaylord Eyerman
                                             Micki Carrier, Caregiver Connection,            Lawrence Nelson, Wilsonville, 503-722-7733
  Bradley,PC, Portland 503-222-3526
                                               Portland, 503-246-4672                        Bradley Pfeiffer, Bend 541-383-4585
Timothy Grabe, Portland, 503-282-5223
                                             Cy Osborne, Pegasus Social Services, an         George Siegfried, DCPC, Dunn Chiropractic,
James R. Jennings, PC, Gresham 503-669
                                               Oregon Home Care Services Co,                   McMinnville/Portland 503-977-0055
  -3406 PI
David Kracke, Nichols & Associates,            Portland, 503.380.4443                        Cognitive Rehabilitation Centers/ Rehab
  Portland 503-224-3018 PI                   Care Facilities/TBI Housing                       Therapists/Specialists
Sharon Maynard, Bennett, Hartman, Morris     (subacute, community based, inpatient,          Jane Conboy, certified TAT Trainer, Portland
  & Kaplan, Portland 503-227-4600, SSI/      outpatient, nursing care, supervised-living,      503-703-3703
  SSD                                        behavior, coma management, driver evaluation,   † Gentiva Rehab Without Walls, Mountlake
                                             hearing impairment, visual impairment,
Jeff Merrick, Lake Oswego 503-665-4234                                                         Terrace, WA 425-672-9219
                                             counseling, pediatric)
Jeffrey Mutnick, Portland 503 595-1033       Carol Altman, Homeward Bound,                   † Progressive Rehabilitation Associates—
Robert Neuberger, Portland 503-228-1221        Hillsboro 503-640-0818                          BIRC, Portland, 503-292-0765
Cynthia Newton, Swanson, Thomas &            Uhlhorn Program, Eugene, 541 345-4244           Lynne Williams, Lynne Williams Cognitive
  Coon, Portland, 503-228-5222 PI/             Supported Apt                                   Rehab. Therapy, Central Point 541-655-
  MediMal                                    Ashland View Manor-WestWind Enhanced              5925
Craig Allen Nichols, Nichols & Associates,     Care, Dan Gregory, Medford, 541-857-          Counseling
  Portland 503-224-3018                        0700                                          Sharon Evers, Face in the Mirror
‡ Paulson Coletti, John Coletti, Jane        Linda Beasley, LPN CBIS, Autumn House,            Counseling, Art Therapy, Lake Oswego
  Paulson Portland, 503.226.6361                Beaverton, 503-941-5908                        503-201-0337

The Headliner                                              Summer 2012                                                        page 3
                     Looking for an Expert? See our Professional Members here
Donald W. Ford, MA, LMFT, LPC,              £ Disability Rights Oregon, Portland, 503-   Janice Cockrell MD, Pediatric
  Portland, 503-297-2413                      243-2081                                     Development & Rehabilitation-Emanuel
Joyce Kerley (503) 281-4682                 Eastern Oregon Center for Independent          Children’s Hospital, Portland 503-413-
Kate Robinson, MA, CRC, Portland,             Living(EOCIL), Ontario 1-866-248-8369;       4418
  503-318-5878                                Pendleton 1-877-771-1037; The Dalles 1-    Maurice Collada, Jr, MD, PC,
                                              855-516-6273                                 Neurosurgeon, Salem 503-581-5517
                                            Independent Living Resources (ILR),          Danielle L. Erb, M.D., Brain Injury Rehab
Dr. Nicklis C. Simpson, Adult Dental Care
                                              Portland, 503-232-7411                       Center, Portland 503 296-0918
  LLC, Gleneden Beach 541-764-3113
                                            ThinkFirst Oregon, (503) 494-7801            John French, MD, Salem Rehabilitation
Educators/Researchers                                                                      Associates, Salem 503-561-5976
Diana Allen, Linn Benton Lincoln ESD,       Legislators
                                                                                         M. Sean Green, MD, Neurology, OHSU
  Albany                                    Vic Gilliam, Representative,
                                                                                         Steve Janselewitz, MD, Pediatric
Paul Cordo, PhD, Senior Researcher,           503-986-1418
                                                                                           Physiatrist, Pediatric Development &
  OHSU, 503-223-3442                        Long Term TBI Rehab/Day Program’s/             Rehabilitation-Emanuel Children’s
Sandra Crews, Southern Oregon ESD,            Support Programs                             Hospital, Portland Nurse: 503-413-4418
  Medford, 541-776-8555                     Carol Altman, Bridges to Independence Day      Dept:503-413-4505
Laurie Ehlhardt Powell, CBIRT, Eugene,        Program, Portland/Hillsboro, 503-640-      Andrea Karl, MD, Director, Center for
  541-346-0572                                0818                                         Polytrauma Care Unit, Portland, VA
Penny Jordan, TBI Team Liaison,             Anat Baniel, Anat Baniel Method, CA 415-       Hospital 1-800-949-1004 x 34029
  Portland, 503-260-4958                      472-6622                                   Michael Koester, MD, Slocum Center,
± McKay Moore-Sohlberg, University of       £ ElderHealth Northwest, Patti Dahlman,        Eugene, 541-359-5936
  Oregon, Eugene 541-346-2586                 Seattle WA 206-467-7033                    ± Oregon Rehabilitation Medicine, P.C.,
Lisa Myers, Portland Community College      Benjamin Luskin, Luskin Empowerment            Portland, 503-230-2833
Expert Testimony                              Mentoring, Eugene, 541-999-1217            Francisco Soldevilla, MD, Neurosurgeon,
Janet Mott, PhD, CRC, CCM, CLCP, Life       Marydee Sklar, Executive Functioning           Northwest Neurosurgical Associates,
  Care Planner, Loss of Earning Capacity      Success, Portland, 503-473-7762              Tualatin, 503-885-8845
  Evaluator, 425-778-3707                   Medical Litigation Funding                   Thomas P. Welch, MD, Psychiatry,
                                            Dr. Ihan Rodriguez, Co-Funder, Medical         Portland 503-292-4382
Financial Services                                                                       Gil Winkelman, ND, MS, Alternative
Kayla Aalberg Eklund, Structured              Funding Consultants, LLC, 407-448-8988
                                                                                           Medicine, Neurobiofeedback,
  Settlement Broker, Oregon, 503-869-     Medical Professionals                            Counseling, Portland, 503-501-5001
  6518                                    Gerry Aster, RN, MS, South Pasadena CA,
                                            541-896-3001                                 Psychologists/ Neuropsychologists
Life Care Planners/Case Manager/                                                         Tom Boyd, PhD, Sacred Heart Medical
  Social Workers                          Diana Barron, MD, Brownsville, (541) 451-
                                            6930 clinic                                    Center, Eugene 541-686-6355
Gerry Aster, RN, MS, Nurse Case                                                          James E. Bryan, PhD, Portland
  Manager, Vida, 541-896-3001             Marie Ekkert, RN/CRRN, Legacy
                                            HealthCare, Portland, 503-413-7918             503.284.8558
Priscilla Atkin, Providence Medford                                                      *Caleb Burns, Portland Psychology Clinic,
  Medical Center, Medford, 541.732.5676   Marsha Johnson, AnD, Oregon Tinnitus &
                                            Hyperacusis Treatment Center, Portland         Portland, 503-288-4558
Rebecca Bellerive, Rebecca Bellerive, RN,                                                Patricia S. Camplair, Ph. D., OHSU Dept
  Inc, Gig Harbor WA 253-649-0314           503-234-1221
                                          Kristin Lougee, CBIS, 503-860-8215-cell          of Neurology, Portland, 503-827-5135
Coleen Carney, RN, Carney Smith &                                                        Amee Gerrard-Morris, PhD, Pediatrics,
  Associates, Beaverton 503-680-2355      Carol Marusich, OD, Neuro-optometrist,
                                            Lifetime Eye Care, Eugene, 541-342-3100        Portland, 503-413-4506
Wayne Eklund, Wayne Eklund RN                                                            Elaine Greif, PhD, Portland 503-260-7275
  CNLCP Salem 888-300-5206                † Kayle Sandberg-Lewis, LMT,MA,
                                            Neurofeedback, Portland, 503-234-2733        Jacek Haciak, PsyD, Oregon State
Michele Lorenz, BSN, MPH, CCM, CHPN,                                                       Hospital, Salem, 503-945-2800
  CLCP, Lorenz & Associates, Medford,     Dorothy Strasser, VA Medical Center,
                                            Rehab, Portland, 503-285-6356                Nancy Holmes, PsyD, CBIS, Portland 503-
  541-538-9401                                                                             235-2466
Vince Morrison, MSW, PC, Astoria, 503-    Bruce Wojciechowski, OD, Clackamas,
                                            Neuro-optometrist, Northwest EyeCare         Terry Isaacson, PhD, Roseburg
  325-8438                                                                                 Counseling Services, Roseburg 541-957
Michelle Nielson, Medical Vocational        Professionals, 503-657-0321
  Planning, LLC, West Linn, 503-650-9327 Physicians                                      Sharon M Labs PhD, Portland 503-224-
Simon B. Paquette, LICSW, LCSW,           Sharon Anderson, MD, West Linn 503-650-          3393
  Vancouver WA 360 903-4385                 1363                                         Ruth Leibowitz, PhD, Salem Rehab, 503-
Thomas Weiford, Weiford Case              Bryan Andresen, Rehabilitation Medicine          814-1203
  Management & Consultation, Voc            Associates of Eugene-Springfield,            Michael Leland, Psy.D, CRC, Director, NW
  Rehab Planning, Portland 503-245-          541-683-4242                                  Occupational Medicine Center, Inc.,
  5494                                    Diana Barron, MD. Barron-Giboney Family          Portland, 503-684-7246
Karen Yates, Yates Nursing Consulting,      Medicine, Brownsville, OR (541) 451-         Will Levin, PhD, Eugene, 541-302-1892
  Wilsonville, 503-580-8422                 6930                                         Kate Morris, PhD, Salem Rehab Hospital,
Legal Assistance/Advocacy/Non-Profit      Jeffrey Brown, MD, Neurology, Portland 503       Salem
£ Deborah Crawley, ED, Brain Injury         -282-0943                                    Susan Rosenzweig, PsyD, Center for
  Association of Washington, 253-238-     James Chesnutt, MD, OHSU, Portland 503-          Psychology & Health, 503-206-8337
  6085 or 877-824-1766                      503-494-4000

To become a supporting professional member of BIAOR see page 23 or contact BIAOR, biaor@biaoregon.org.
page 4                                                       Summer 2012                                            The Headliner
Speech and Language                          in “day of the life” films Bend, 541-312-           Laurie Burke, TN
Channa Beckman, Harbor Speech                8398                                                Bruce Buchanan
  Pathology, WA 253-549-7780               Veterans Support                                      William Griffiths, West Linn
John E. Holing, Glide 541-440-8688         Mary Kelly, Transition Assistance Advisor/            Debby Hessick, Aloha
± Jan Johnson, Community Rehab               Idaho National Guard, 208-272-4408                  Helen Mills, Milwaukie
  Services of Oregon, Inc., Eugene, 541                                                          Senator Bill Morrisette, Springfield
  -342-1980                                Vocational Rehabilitation/Rehabilitation/             James & Janet Moore, Portland
Sandra Knapp, SLP, David Douglas             Workers Comp                                        Craig Ness, Wasilla Alaska
  School District , Sandy 503-256-6500     Arturo De La Cruz, OVRS, Beaverton, 503-              ± Bill Olson, Salem
Rik Lemoncello, Ph.D., CCC-SLP,              277-2500                                            Meg Rawlings & Russ Rudometkin,
  PSU, Portland                            † Marty Johnson, Community Rehab                        Medford
Linda Lorig, Springfield, 541-726-5444       Services of Oregon, Inc., Eugene, 541-342           Charlene Sparlin, Roseburg
Anne Parrott, Legacy Emanuel Hospital        -1980
                                           ‡ Oregon Completive Employment                        In Memory
  Warren 503-397-6431                                                                            Tina Treasurer In Memory of Tom
                                             Project, Salem 503-947-5469 www.win-
State of Oregon                              oregon.com                                            Treasurer
Dave Cooley, Oregon Department of          Ben Luskin, Launch Employment Mentoring,              Carol Sherbenou in Memory of David
  Veterans Affairs, Salem, 503-373-          Eugene, 541-999-1217                                  Sherbenou
  2000                                     Bruce McLean, Vocational Resource                     Names in bold are BIAOR Board members
Stephanie Parrish Taylor, State of           Consultants, Ashland, 541-482-8888                  † Corporate Member ‡ Gold Member
  Oregon, OVRS, Salem , (503) 945-         † SAIF, Salem, 503-373-8000                           € Silver Member       ± Bronze Member
  6201 www.oregon.gov/DHS/vr/              Stephanie Parrish Taylor, State of Oregon,            ¥ Sustaining Member £ Non-Profit
Technology/Assistive Devices                 OVRS, Salem, (503) 945-6201                         ∆ Platinum
Performance Mobility, Portland, OR, 503      www.oregon.gov/DHS/vr/                              To become a professional member see page 23
  -243-2940                                Kadie Wellington, OVRS, Salem, 503-378-                 or go to the BIAOR website:
Second Step, David Dubats, Eugene,           3607                                                  www.biaoregon.org/catalog-store.htm
  877-299-STEP                             Patrons/Professional Members
Video/Filming                              Sharon Anderson, West Linn OR
NuVideo Productions, LLC, specializing     Carol Berger, Talent OR

(Happiness Continued from page 1)          unknown factors and the result of actions           (Brain Scanner Continued from page 1)
                                           in which we deliberately engage.                    that actually touches the patient is
What Doesn’t Make Us Happy?
                                                                                               disposable, clipping to the top of the
Money can’t buy happiness. Once we         This last category is very important, as            scanner and thrown out after the patient’s
have enough money to meet our basic        these variables are the ones over which             measurements are taken.
survival needs, money has little           we can often do something about. These
bearing on lasting happiness despite       variables include:                                      On land: Marine Corps Systems
what all those pop songs and ads               relationships and social interaction               Command has been working with a
might say.                                                                                        rugged version of the InfraScan. The 60
                                               employment or meaningful activities                tweaks or so the Marine Corps
Youth? Nope. Studies consistently              exercise                                           requested are nearly complete, and the
show older people are happier.                                                                    sensor will be distributed for testing this
                                               optimism                                           month.
Being smart? Your IQ has no bearing           being around other happy people.
on your happiness, and neither does                                                            The device can help corpsmen determine
your education. So what can lift ones      Our Relationships Are Crucial                       the priority of injuries in the field. If there
mood and make a difference?                                                                    were 10 troops involved in a blast, for
                                           Human relationships are consistently                example, a corpsman could start checking
What the Experts Tell Us                   found to be the most important                      for brain bleeds immediately.
                                           correlation with human happiness. If you
So what can the experts tell us about      have a brain injury, it means that staying            At sea: Retired Cmdr. (Dr.) Luis
happiness? Researchers believe that        on good terms with your family,                       Becerra used an earlier version of the
about 50% of our happiness depends         maintaining your existing friendships,                scanner in Iraq in 2008. He said he sees
on our genetic makeup, so we are well      and creating new ones through a support               applications for it at sea, especially
on the way to happiness if we were         group, are all crucial steps to                       because necessary technology isn’t
born with a cheerful disposition and low   happiness. Work hard on those social                  always available on-site.
levels of depression and anxiety.          skills, close interpersonal ties and
                                           social supports for a much improved                 “I’ve been on ships and in submarines,
An additional 10% to 15% of                future!                                             and I know we’re very far away, and I have
happiness is due to variables such as                                                          to think about how I’m going to get them
socioeconomic status, marital status       The same applies for caregivers; you                over to a hospital,” he said.
and health.                                may feel guilty taking time off for
                                                                                               The scanner could identify injuries in the
                                           socializing, but this is vital if you are to
The remaining 40% of happiness is                                                              interim, he said.
                                           maintain your happiness and energy to
attributable to a combination of                            (Happiness Continued on page 15)   Source: Navy Times: http://www.navytimes.com/news/2012/06/navy-

The Headliner                                              Summer 2012                                                                          page 5
     The Lawyer’s Desk: A Look at TBI Legal Representation
                                        By David Kracke, Attorney at Law
                                      Nichols & Associates, Portland, Oregon

There is always a follow-up. Any attorney        are better now than they were just after     she met a neurologist
will tell you that there is always something     her injury. In her words, she has            who got it. When the
else to explore, some other avenue to walk       accepted reality for what it is and will     neurologist said “You
down, some other question to ask. What I         always be pushing forward toward her         know you had a
have from time to time done in this column       continuing recovery.                         traumatic brain injury?”
is explore the realities of a legal case, what                                                a weight was lifted
                                                 Cheryl wasn’t always the outgoing person
it means to the parties involved, what the                                                    from Cheryl’s
                                                 that her friends now know. On the
litigation process is, what the client can                                                    shoulders. Here was
                                                 contrary, before the bike accident that
expect in any given situation. In other                                                       recognition. Here was
                                                 caused the final brain injury in a series of
words, I have tried to follow up the                                                          understanding. Here
                                                 acquired brain injuries, she says that she
information I have imparted in this column                                                    was the key to moving forward with her life.
                                                 was shy, cynical, and not very positive
over the years so as to complete the                                                          When the neurologist acknowledged her
                                                 about what life had to offer.
picture of the legal process better. But in                                                   situation, acknowledged that there was a brain
all my columns, I have neglected to follow       The bike accident happened ten days          injury, Cheryl found strength. She was
up with what happens after the lawsuit is        before Cheryl was to begin her dream job empowered by the recognition. It was a little
over, after the injuries have healed as best     as a speech pathologist at OHSU. She         thing, in reality, but for Cheryl, having the
as they can, after the judge pounds the          had worked years to achieve her Master’s neurologist understand the struggles she was
gavel on the desk and the jury is                degree in Fine Arts as well as her           enduring made all the difference.
adjourned.                                       qualifications for the speech pathologist’s
                                                                                              About this same time, Cheryl also met the
                                                 position. After the bike accident, it was
No story is exactly alike with regard to the                                                  good people at BIRRDsong, especially
                                                 obvious to those around her that the
follow up from a TBI. There are similarities                                                  BIRRDsong’s founder Marih Alyn-Claire.
                                                 dream job was no longer an option, but
found in many of the stories, and that is                                                     Cheryl found in this group a place where her
                                                 Cheryl didn’t see it that way. She kept
what I want to explore here. To do so, I will                                                 life skills were needed, where she could quash
                                                 fighting reality without the self-awareness
focus on a friend of mine whose recovery                                                      the feelings of uselessness, where she did not
                                                 necessary to assess the situation
and life after her head injury led to many                                                    feel as if her life was being wasted. Cheryl
                                                 accurately. Months went by before she
awakenings, many discoveries and many                                                         found a group that motivated her to do her
                                                 finally understood that her life had
challenges.                                                                                   best, and where, so importantly, she felt
                                                 changed. It was then that Cheryl
Cheryl Green is the current president of the     recognized that things were different. It
Brain Injury Information Referral and            was then that she began her recovery         At BIRRDsong, Cheryl was given tasks that
Resource Development, otherwise known            process.                                     “had to be done,” so Cheryl had to do them,
as BIRRDsong. Cheryl and the other                                                            and after a while found that she could do
                                                 Brain injuries are invisible to the outside
“Birrdies” form a support group that has                                                      them. She felt that her life’s skills were re-
                                                 world and even some of Cheryl’s doctors
had real, tangible results in Cheryl’s                                                        building because here was a group that
                                                 behaved in ways that made her wonder if
recovery from her TBI, results that have led                                                  needed her. She was recognizing again that
                                                 those doctors understood the challenges
Cheryl to an acceptance of her situation, an                                                  she was valuable, that the skills she had
                                                 that she was facing. In her words, she
acceptance of where she is now in relation                                                    before were the same skills that she was
                                                 would do “stupid stuff.” One time, during
to where she was before the bike accident                                                     applying in her new volunteer position. She
                                                 a doctor’s appointment, she flung her
that injured her brain. With the help of her                                                  was realizing that there was an opportunity to
                                                 head backwards to demonstrate a point
friends, and with the understanding that                                                      do something more. Before BIRRDsong she
                                                 only to hit her head on some medical
comes only with deep soul searching,                                                          would say “I used to be good at this.” Now,
                                                 equipment, probably giving herself
Cheryl understands the process she is in,                                                     she was realizing that she could be good at
                                                 another concussion. After this incident,
she accepts the challenges, and while she                                                     this again.
                                                 the doctor was fed up with the “crazy girl.”
knows that things are harder now and
                                                 Similar episodes with other doctors          With this realization came a willingness to
different now, she also knows that things
                                                 frustrated her as well. Finally, however,    push the envelope. Cheryl had been an artist
                                                                                              in her pre-injury life, and the arts again called
                                                                                              to her. She was given an opportunity to make
                                                                                              a film about her situation and decided to use
                                                                                              the act of cooking as a metaphor for the
                                                                                              struggles she experienced as a result of her
                                                                                              TBI. From this opportunity came the short film
                                                                                              “Cooking with Brain Injury.”
                                                                                              I met Cheryl after watching this hilarious film
                                                                                              at a BIRRDsong event. Because Cheryl was
                                                                                              “in the boat” with regard to being a TBI
                                                                                              survivor, she could say things in her film that
                                                                                              would be difficult for a non-injured person to

                                                                                                                (Lawyer’s Desk Continued on page 7)

page 6                                                            Summer 2012                                                 The Headliner
                                       Congratulations John!!!
John Coletti has been inducted into The Inner Circle of Advocates. Founded in 1972, The Inner Circle
of Advocates is an invitation-only group of 100 of the best trial lawyers in America who are selected
for their character, experience and success in the courtroom. The Inner Circle of Advocates was
described by The Washington Post as, “A select group of 100 of the nation’s most celebrated trial
lawyers,” and is recognized as one of the most exclusive groups of attorneys in the nation. Although
spread across the country, members work collectively to share experience, skills and knowledge in
pursuit of justice.

John is a major supporter of BIAOR and we are very happy to have one of our professional members
receive this outstanding honor.

(The Lawyer’s Desk Continued from page 6)
say. She could show a character not turning the stove on                                       Order 2011 Conference DVDs
and wondering why it was taking so long for the food to                                           $ 10 each —No CEUs
cook. She could show a character turning the heat to high
and then stepping out for a cigarette with the food burning
away. Where this material might be offensive if presented                       Music and the Brain
by a non-survivor, with Cheryl’s deft direction it was                          Cognitive Rehabilitation: Using research evidence and careful
extremely funny, extremely insightful.                                                   documentation to strengthen the case for insurance funding
                                                                                Searching the Cure: Advances in Brain Injury Rehabilitation
I want everyone who reads this article to go to Cheryl’s                        Aggressive Recovery Focused Physical Therapy
website and watch the short trailer for her film. Her site is                   Teaching Executive Functioning Skills: Time Management Tools to
found at ww.brainreel.wordpress.com. Contact her for                                     Support the Brain Client
more information. Buy her DVD. Let her know that she                            TBI: Introduction & Overview for Families and Caregivers
got it right.
                                                                                Concussion Is Not Just a Bump on the Head: Sequelae Of Mild TBI
“Art brought me back to life,” Cheryl told me recently. Where some                       Associated with Sports and Other Traumatic Injuries
will see her art as therapy, Cheryl sees it as what she does, what              Toward Universal Access to Health Care
she did before the injuries, and what she will do now, after the                Improving School Services for Students with TBI
injuries, after finding herself again, after going through the gauntlet
                                                                                $90 for all $3 S&H    Send Check to: BIAOR, PO Box 549, Molalla OR
and finding on other side a life like the one she had before
everything changed. The effort she has put forth, the success she
has had, have given her a new outlook. “It’s about hope and
motivation for me,” she told me. Truer words were never spoken.
David Kracke is an attorney with the law firm of Nichols & Associates in
Portland. Nichols & Associates has been representing brain injured
individuals for over twenty two years. Mr. Kracke is available for
consultation at (503) 224-3018.

                2013 BIAOR Calendar of Events
      For updated information, please go to www.biaoregon.org
            Call the office with any questions or requests

Oct                BIAOR Fundraiser                                                          steve@portlandlawyer.com     503-224-5077     fax: 503-299-6178

Nov                Anat Baniel Method Workshop - Transforming
                   the lives of Children and Adults with TBI through
                   practical applications of Brain Plasticity
March 7            Pre-Conference Workshop
                   Art & Music Rehabilitation After a Brain Injury                           HANDICAP VEHICLES AND MOBILITY EQUIPMENT IN CO , OR
March 8            BIAOR Conference Dinner, Music, Dancing and                               & WA
                   Wine Tasting                                                              Performance Mobility is committed to providing the highest
                                                                                             quality wheelchair accessible transportation to enhance
March 7-9 Annual Pacific Northwest Regional Conference                                       quality of life for individuals and families. You'll find an
          2013: Living with Brain Injury                                                     informational, no-pressure approach and mountains of
          www.biaoregon.org/annualconference-2013.htm                                        experience to meet your transportation needs.

                                                                                                503-243-2940 www.performancemobility.com
The Headliner                                                              Summer 2012                                                           page 7
                          Challenging Behaviors
WHAT IS A CHALLENGING BEHAVIOR ?                         The message or purpose of a behavior will usually       responses are likely to escalate the situation for
There are two aspects to a challenging behavior.         be communicating an unmet need. Examples                someone with a brain injury.
First, it can be a behavior that endangers the           include:
person displaying the behavior or anyone nearby             There is a change in my routine that is making       ESCALATION PHASE
(e.g. self-injury or violence towards others). Two, it      me very anxious                                      There is still a good chance here to prevent the
can be inappropriate behaviors that limit or prevent        I’m bored!                                           behavior reaching a crisis point if we remain calm
access to the community (e.g. screaming in                  This environment is far too bright, crowded or       and provide the planned responses to the unmet
public). So challenging behaviors include:                  strange for me                                       need in the given situation. if your family member
   self-injury                                              I’m experiencing a very unpleasant sensation         tries to tell you about this but feels you aren’t
   violence toward other people                             e.g. too much noise                                  listening, or are critical, then you are likely to
   damaging property                                        I’m very tired/sad/frustrated at the moment and      trigger the behavior again!
   impulsive behavior                                       can’t cope with tasks
   not complying with reasonable requests.                 Too many demands are being made of me at            POSITIVE BEHAVIOR SUPPORT
                                                            once and I can’t cope.                             Positive Behavior Support is currently the most
THE PURPOSE OF THE BEHAVIOR?                                                                                   effective response to challenging behaviors
This is the most important question we can ask —         THE BEHAVIOR CYCLE                                    available. Why?
there is always a message being communicated.            A challenging behavior involves a number of steps,       It avoids old-fashioned approaches like
But after a brain injury, it can be difficult for        and there are positive responses we can make at          punishment but aims to encourage appropriate
someone to recognize and express causes of               each step either to prevent or minimize the              behaviors
unpleasant emotions, so we need to find the              behavior.                                                It provides valuable life skills for dealing with
message. When we are tired or frustrated, it is                                                                   difficult situations
much easier to say, ‘Oh he’s having another              TRIGGER PHASE
                                                                                                                  It isn’t just reactive but proactive, looking for
tantrum,” instead of looking for the message.            Learn all the things that can act as a trigger. These
                                                                                                                  ways to prevent challenging behaviors before
Example? Steve begins throwing everything out of         can then either be avoided or minimized, or we
                                                                                                                  they occur
his school bag when his mother drives a different        can provide the person with coping strategies.
                                                                                                                  It provides consistent positive, rational
way to school to avoid a traffic buildup because it’s    There should be a consistent response planned for
                                                                                                                  responses that aren’t based on our own
not Steve’s usual routine. His mother’s response         each trigger. Any instruction should be given in a
                                                                                                                  negative feelings and frustration.
will be more constructive if she understands the         simple way as comprehension and understanding
reason rather than just yelling at Steve to “stop        will be very limited.
                                                                                                               Any challenging behavior is approached in the
being silly”.                                            CRISIS PHASE                                          following way:
                                                                    The goal is to minimize the chances of       Find the message behind the behavior and the
                                                                    harm to the person or others (including       unmet need being communicated
                                                                    yourself!). It is still very important to     Determine the triggers and how can they be
                                                                    remain calm as criticism or yelling will      avoided or minimized and which coping
                                                                    only heighten or prolong the crisis           strategies are needed
                                                                    phase.                                        Choose the best strategy for behavior change
                                                                                                                  Develop the responses for each stage of the
                                                                    RECOVERY PHASE                                behavior (the behavior cycle above).

                                                                   Do not attempt to talk through the            EXAMPLE
                                                                   situation until the person has completely     John sometimes begins yelling when taken into
                                                                   calmed down. During this recovery,            stores, throws any item that he can get hold of,
                                                                   there will still be trouble with thinking     then runs away to a quieter area. The message of
                                                                   clearly, so questions like, “Now why did      this behavior is that John is at times unable to
                                                                   you behave like that?” or “How are we         cope with shopping and gets extremely anxious.
                                                                   going to prevent this in the future?” could
                                                                   easily trigger the behavior again. It is      Careful analysis shows that the triggers are dogs,
                                                                   important to review the situation, but not    the sounds of young children yelling and too large
                                                                   until enough time has passed for the          and/or noisy crowds.
                                                                   person to be calm enough for this.
                                                                   Actively listen and be empathetic. We         In some cases the triggers can now be avoided,
                                                                   are often annoyed or frustrated               i.e. such as walking the other way when a dog is
                                                                   ourselves, but remember there is a            spotted. Shopping can be scheduled for times
                                                                   message to every behavior trigger (e.g.       when it is not so busy.
                                                                   when Judy gets very anxious about a           Strategies for behavior change are selected. For
                                                                   future event, we remind her to do her         example, John may find certain relaxation
                                                                   deep-breathing exercises). It is crucial      exercises can help when the triggers can’t be
                                                                   that our response is done in a calm and       avoided.
                                                                   non-judgmental way, as loud critical

page 8                                                                   Summer 2012                                                              The Headliner
                                  Acts One, Two and Three
                                                        by Wendi Herzog
On a dry but bone-chilling winter after-        read ahead in my personal script and            every brain injury is the same, nor is
noon as a coupe makes a left turn, a            had the answers to the many questions           every healing process or acceptance of
pickup truck barrels through a red light at     and conflicts along the way. Answers to         the new person a survivor is becoming.
highway speed and slams into the side of        such questions as: What is the difference       There are, however, common threads
it. The coupe's driver sustains multiple        between a physical therapist, speech            and the knowledge every person with a
physical injuries including a traumatic         therapist and an occupational therapist?        TBI is not alone in their recovery. There
brain injury.                                   Why can't family and friends see me as          are many people who have walked down
                                                injured, not as lazy or unmotivated? Why        the path a person with a TBI is now trav-
Like a screenplay, this was my Act One          does a dark, quiet room often feel like a       eling and others who have studied the
introduction into the conflict of living with   warm embrace? Why do I feel and sense           road. I believe both groups care deeply
a TBI. As difficult as it has been to admit     things so much stronger than before my          enough to assist survivors on this new
at times over the last four and a half          accident? Why are my creative talents           life journey.
years, in this first scene my life forever      amplified?
changed.                                                                                        My hope is this column will not only pro-
                                                And, like a screenplay, during these trials     vide guidance and inspiration from survi-
I had started a new screenplay of my life       of my personal second act when, at              vors and professionals but also serve as
that January afternoon. And, like a script,     times, all seemed hopeless, I wish I had        a hopeful reminder that, like a screen-
my antagonists were many, but none as           heard others' third acts in which some          play, there is an Act Three in which res-
difficult as myself and my personal chal-       conflicts were resolved and many survi-         olutions and a promising new life
lenge to accept the fact I had a TBI.           vors lead enriching lives. In some cases,       emerge.
                                                lives more fulfilling than before their trau-
Looking back over the years of my se-           matic brain injuries.                           Email Wendy with any questions to:
cond act, including the trials of untangling                                                    biaor@biaoregon.org
the web of doctors, therapists and the       On my own path to recovery I have found
legal system, I wish I had been able to      no one-size-fits-all healing process. Not

                                                                            "With most brain injuries, the filter in our heads
                                                                            that we all use to get along in society slips.
                                                                            People lose their inhibitions in ways both
                                                                            shocking and painful for their loved ones."
                                                                            In an Instant: A Family's Journey of Love and Healing,
                                                                            written by Lee and Bob Woodruff.

                                                                                          Summer Sudoku
                                                                              The object is to insert the numbers in the boxes to
                                                                              satisfy only one condition: each row, column and 3 x
                                                                              3 box must contain the digits 1 through 9 exactly
                                                                              once. (Answer on page 11)

The Headliner                                                 Summer 2012                                                       page 9
      Legal View Point: Disability Benefits for Children with Brain Injuries
                                             By Cheryl Coon, Attorney at Law
                                     Swanson Thomas Coon & Newton, Portland, Oregon

                           Several years ago I          immediately or later in life, as an adult – and the      If a child is
                           received a call from the     availability of disability benefits for a child with a   determined to be
                           sister of a young man.       brain injury.                                            “markedly” limited
                           She mentioned his                                                                     in at least two of
                                                        The Social Security disability system includes a         these areas, he
                           difficulty holding a job,
                                                        program that applies to children with brain injuries:    can qualify for
                           describing impulsive
                                                        Title XVI, Supplemental Security Income (SSI).           disability benefits.
                           and childlike behavior
                                                        The catch is that SSI is only available
                           that repeatedly got him                                                               As Dr. Rachel
                                                        when a family meets the law’s limitations on
                           into trouble at the                                                                   Berger, a
                                                        income and resources. But the first step is
                           workplace and                                                                         pediatrician and
                                                        determining whether a child meets the substantive
                           ultimately caused him to                                                              associate director of the Safari Center for
                                                        criteria for receiving disability benefits.
                           be fired from every job.                                                              resuscitation research at the University of
                           But it was when she          The Social Security Administration (SSA)                 Pittsburgh medical center, noted in recent
described how her brother, at the age of seven,         evaluates disability in children somewhat                Congressional testimony:
was hit by a car while riding his bike, that her        differently from its evaluation of adults, where the
story began to make sense. I asked about head           focus is on ability to perform past or future work.         ”The least mature area of the brain in an infant
injury and she told me yes, he’d had a closed           For a child, SSA looks at six areas of functioning         or child and the part that appears to be most
head injury but he had recovered.                       (which SSA calls “domains”) and compares the               vulnerable to early injury is the pre-frontal
                                                        child claimant to others his age. These six                cortex. This area of the brain is critically
As a social security disability attorney, I meet                                                                   important for executive function. The first two
                                                        domains include:
daily with folks who are disabled in a variety of                                                                  domains above cover executive function.
ways, both physical and mental. Many of my              1.   Acquiring and using information
clients have, at some point in their lives, suffered    2.   Attending and completing tasks                        “Since normal children do not develop
a brain injury. When their brain injury results in a    3.   Interacting and relating with others                  executive function when they are very young,
significant decrease in their ability to perform        4.   Moving about and manipulating objects                 depending on the age they are at the time of
past or new work, it may be appropriate to seek         5.   Caring for oneself                                    injury, it may be difficult to assess executive
disability benefits. In this column, I’ll discuss how   6.   Health and physical well-being
the impact of a brain injury may affect a child --                                                                             (Legal View Point Continued on page 11)

page 10                                                                        Summer 2012                                                         The Headliner
(Legal View Point Continued from page 10)                      milestones and who ultimately cannot perform           many children, this will be enough to determine
  function or the extent to which it is impaired as            their age appropriate activities. (For example, if     whether they qualify for benefits. But for others,
  a result of brain injury until children are older. “         a child gets a brain injury at age two and injures     testing may be necessary. For the young man
                                                               the part of the brain which is required for            described above, it took neuropsychological
  The least mature area of the brain in an infant
                                                               reading, disability will not be recognized until the   testing to demonstrate just how impaired he was.
  or child and the part that appears to be most
                                                               child goes to kindergarten and reading becomes         To the rest of the world, he seemed like an
  vulnerable to early injury is the pre-frontal
                                                               an age appropriate activity.)                          impulsive young man with a childlike sense of
  cortex. This area of the brain is critically
                                                                                                                      adventure and mischief. But the testing revealed
  important for executive function. The first two              Early documentation is important because it            the degree of his limitations. With no other
  domains above cover executive function.                      makes it easier to link the brain injury to the        evidence than this, we were able to win him
                                                               emerging disability. For some children, the            benefits.
  Since normal children do not develop
                                                               extent of disability can be identified on a
  executive function when they are very young,
                                                               standard IQ test; for others, neuropsychological       The good news is that many children with brain
  depending on the age they are at the time of
                                                               testing is needed. (Unfortunately, such testing is     injuries will recover sufficiently to lead normal
  injury, it may be difficult to assess executive
                                                               very expensive, rarely covered by medical              lives. For those who do not, SSI fills an important
  function or the extent to which it is impaired as
                                                               insurance and the number of qualified pediatric        gap to support the child and the family. It’s worth
  a result of brain injury until children are older.
                                                               neuropsychologists is limited.)                        considering if this fits your family.
  Demonstrating disability is most problematic
                                                             So what should parents do? First, early                  Cheryl Coon, who practices social security
  for children who appear to have recovered or
                                                             documentation of the injury itself and thereafter,       disability and veterans’ benefits law, can be
  to be only mildly impaired at discharge from a
                                                             regular documentation of a child’s progress (by          reached at 503-228-5222 or ccoon@stc-law.com.
  hospital but who later fail to develop
                                                             parents and by teachers) are important steps. For

   Have you had an insurance claim for cognitive therapy denied?
                                     If so call: Julia Greenfield, JD Staff Attorney
                                                 Disability Rights Oregon
                                  620 SW Fifth Avenue, Suite 500, Portland, OR 97204
              Phone: (503) 243-2081 Fax: (503) 243 1738 jgeenfield@disabilityrightsoregon.org

              Summer Sudoku
                (Answer from page 9)
      7                       1             3    9
      5                 4     9     8       1   7
            9     6           2     3       5   4        8
                  1     9     5             2   6        4
      2                 8     6     1                    7
      6     7     9           3     4       8
      4     6     5     1     8             7   2
            8     2     5     7     6                    9
            1     7           4                          5
The Headliner                                                                 Summer 2012                                                                    page 11
                                                                         Idaho Update
                                                                          By Russ Spearman, M.ED.
                              Currently Idaho       ADRC sites and also via the Money Follows the         Wakefield, Ph.D., R.N. “They reach out to
                              is working on         Person grant offered through the Idaho                families and help them and their children
                              two initiatives       Department of Health and Welfare. It is projected     thrive.”
                                                    that along with building local sites, ADRC third-
                          Idaho's Aging             year funds will support the development of an         IPUL, in collaboration with the Federation for
and Disability Resource Center - Five Year          online data base and online consumer decision         families and FACES- Family Advocacy Center
Strategic Plan                                      support tools                                         and Education Services, recently modified a
                                                                                                          support group training manual specifically for
The Institute of Rural Health at Idaho State        Parent Training Center in Idaho Receives              children who have been sexually abused and
University recently submitted a letter of support   Funding To Continue as the State Family To            plans to offer training in the fall. IPUL is also
for Idaho's Aging and Disability Resource           Family Health Information Center                      working in collaboration with the Division of
Center (ADRC) Five Year Strategic Plan                                                                    Medicaid and the Children’s Health
coordinated by the Idaho Commission on Aging        Idaho’s Parent Training and Technical Assistance      Improvement Collaborative (CHIC) which
(ICOA). The purpose of the plan is to develop       Center- Idaho Parents Unlimited (IPUL) was            involves the establishment of medical home
and implement an Aging and Disability               recently awarded $95,700 in funding to support        pediatric practice sites. Currently, care
Resource Center initiative in Idaho. In             Family-to-Family Health Information Centers,          coordinators exist in three sites around the
conjunction with the six area agencies on           primarily non-profit organizations run by and for     state: Coeur d’Alene Pediatrics; St. Luke’s;
aging, the ICOA will establish designated sites     families with children with special health-care       and Primary Health Pediatrics. These
in the six regions for statewide coverage. With     needs. Created in 2005, the centers are state-        coordinators work approximately 10-15 hours
over 260 ADRC's nationally, the vision of the       wide, family-led organizations that provide           per month and receive a stipend of
Idaho ADRC falls in line with the newly-formed      information, education, training, outreach and peer   approximately $150.00. IPUL and the CHIC
Administration for Community Living to              support to families of children and youth with        collaborative will assist in training the Parent
increase access to community supports while         special health care needs and the professionals       Partners. IPUL will provide ongoing support and
focusing attention and resources on the unique      who serve them. The centers are staffed by            resources. The Institute of Rural Health
needs of older Americans and people with            trained family leaders who have both children with    participates on the advisory committee for this
disabilities, including people with brain injury.   special health care needs and expertise in            project. For more information on the program,
The ICOA established an agreement with              navigating federal, state and local public and        and other HRSA maternal and child health
Idaho's 211 Care Line to be the centralized         private health care systems. HHS’ Health              programs, visit http://www.mchb.hrsa.gov/.
phone number for the ADRC, and it anticipates       Resources and Services Administration (HRSA)          Information on the Affordable Care Act can be
that this agreement will provide streamlined        oversees the centers. “The centers benefit all        found at www.HealthCare.gov.
access to services for people in Idaho. The 211     families and especially those with the greatest
Care Line operators will screen and refer to the    needs,” said HRSA Administrator Mary K.               Contact Russ at spearuss@isu.edu

      There are two ways to live: you can live as if nothing is a miracle; or
                   you can live as if everything is a miracle.
                                                                      Albert Einstein

 Center on Brain Injury Research and Training (CBIRT) Update

 Quick insights and strategies regarding             come in here for?” you will appreciate                has experience as a project
 brain injury are now available on our               Cory’s new column, “Here One Minute,                  coordinator with projects focusing on
 Facebook page, http://                              Gone the Next”. There are even some                   juvenile justice, middle-school aged
 www.facebook.com/CBIRTonline in the                 ideas about coping strategies. Cory’s                 girls, preschool transition, and suicide
 new series, Did You Know. A new issue               Corner can be found at cbirt.org.                     and depression. Her background also
 of Did You Know will be posted each                                                                       includes mentoring parents with
 Wednesday. From the cbirt.org                       Over 1000 people have completed our
                                                                                                           cognitive limitations including those
 website, click the Facebook icon at the             interactive training module, “Traumatic
                                                                                                           with TBI. Priscilla has a M.A. in
 bottom of the page to follow us. Our                Brain Injury, an Overview”. This free
                                                                                                           Applied Linguistics from the University
 Facebook page provides links to                     training provides basic information
                                                                                                           of Illinois, and a B.A. in Psychology
 current topics related to TBI.                      helpful for anyone working with
                                                                                                           from St. Mary's College.
                                                     individuals with brain injury. The training
 Spinning has many definitions. For one              is available under Resources at cbirt.org.            Please follow us on Facebook at
 survivor’s description of spinning, see                                                                   CBIRT Online! There is a direct link at
 the latest Cory’s Corner. If you have               Priscilla Havlis joined the CBIRT team
                                                                                                           the bottom of cbirt.org.
 ever said to yourself, “now what did I              on our Transition Web project. Priscilla

page 12                                                              Summer 2012                                                 The Headliner
The Headliner   Summer 2012   page 13
page 14   Summer 2012   The Headliner
(Happiness Continued from page 5)              starting a daily diary that records
                                               everything you are thankful for can
be effective in the caring role.               reduce pain and raise your mood
                                               and energy level
Choosing to be around happy people is
important too. Recent research suggests        volunteering, helping others, and
that happiness might spread through a          acts of kindness each day provide
population like a virus. A 2008 study          a big boost to our happiness levels
in the British Medical Journal reported        personally thanking someone for
that happiness in social networks may          their support or kindness can have
spread from person to person in clusters       a lasting effect on feeling positive
that spread up to three degrees of
separation. It might pay to spend less         find the coping strategies for
time around gloomy pessimists if you           depression, anxiety and stress that
are struggling with unhappiness                work best for you
yourself.                                      look for negative thought
                                               patterns and deliberately replace them
Getting Religion?                              with positive ones                          feel even worse! You may also find that
Extensive research by American                                                             a strategy loses its effect over time, so
                                               exercise regularly – while the effects
researchers suggests that religious            of exercise on depression may have          feel free to ditch it and experiment with
people living in predominantly religious       been overestimated in recent years, it      other strategies.
countries are happier and less stressed,       still definitely has a positive impact on
although the causes are unclear. It could                                                  There is single, definite answer to lasting
                                               our mood                                    joy for everyone, but it’s worth exerting a
be the social contact and support
gained from religious activities, the           eat a healthy diet and sleep well.         lot of effort into exploring possibilities;
likelihood of behaviors related to good                                                    after all, what have you got to lose? It is
                                             It should be noted that research shows        your happiness at stake!
health (e.g. avoiding substance abuse),
                                             that not all of these strategies will work
promotion of optimism and coping
                                             for everyone — in fact, writing letters of
strategies, or a greater sense of
                                             gratitude can make depressed people
purpose to life.

But I Am Grumpy. Can I Change?
Some of us are genetically programmed
to be negative, fearful, depressed and
shy; other of us are exactly the
opposite. This programming is very
strong and usually has a greater effect
than life circumstances. There are
numerous cases of lottery winners
believing they have found lasting
happiness, but within two years their
happiness levels are usually only slightly
higher than before their windfall. Then
there are those incurably cheerful
people who lose their legs in an accident
but are often almost as happy two years
after their loss of mobility. It should be
noted though, that this happiness often
does not return when the capacity for
work is lost — something that can be
quite common after a brain injury.

Are we stuck on this baseline that our
genes have determined? Or can we
make ourselves happier? Yes we can
make ourselves happier, because how
we think and live do ultimately influence
how we feel. It takes hard work to
change a lifetime of grumpy negativity.
But given time and commitment, there          Fox Tower
are strategies that can eventually alter      805 SW Broadway, Suite 2540
how we think and feel permanently.            Portland, OR 97205
Some useful ones are:                         503-277-1233                                              866-843-3476
The Headliner                                              Summer 2012                                                      page 15
           HAPPINESS TIPS IF YOU                                 HAPPINESS TIPS IF YOU
            HAVE A BRAIN INJURY                                    ARE A CAREGIVER
          Work on your social skills to help retain old              Use respite care and take time off to
          friendships and build new ones.                            maintain friendships and your social
          Keep working on all those coping strategies for            supports.
          issues like depression, anxiety and stress.                Join a caregivers’ support group.
          Choose to look on the bright side — start a daily          Exercise.
          diary about things you are thankful for.                   Eat and sleep well.
          Take the focus off yourself and put it on others           Caregiving can be exhausting and
          for a happiness boost — make a daily habit of              frustrating! Don’t bottle it up — talk
          compliments, kind acts and volunteer work.                 about it with a good friend, in a support
          Can’t work? Build a weekly schedule of                     group or with a telephone counselor if
          pleasurable activities and tasks for meaningful            necessary.
          structure to your life.
          Exercise. Eat and sleep well.

                                           Am I Having a Stroke?
                                               A STROKE OR A TIA IS AN EMERGENCY
                                                  GO TO HOSPITAL IMMEDIATELY
                                                    TIME LOST IS BRAIN LOST

                                   At Windsor Place, we believe in promoting
                                   the self-confidence and self-reliance of all
                                                 of our residents

 Sharon Slaughter
 Executive Director                                                      Windsor Place, Inc.
 sharons@windsorplacesalem.org                                           3009 Windsor Ave. NE Salem Oregon 97301
 Phone: 503-581-0393
 Fax: 503-581-4320
page 16                                                Summer 2012                                        The Headliner
Study of Fighters Shows Brain Changes Are Seen
Before Symptoms
   One of the questions Dr. Charles Bernick and
his colleagues ask boxers who come to the
Cleveland Clinic’s Lou Ruvo Center for Brain
Health here is, “How many times have you been
knocked out cold or gotten a concussion?” Most
say, “never.”
   MRI scans were used in the research. Some
fighters had changes in their brains but showed
no cognitive declines.
   Then the doctors ask, “How many times have
you felt dazed and stunned?” Most say, “many
   This is part of the Professional Fighters Brain
Health Study, now a year old and with results
from 109 fighters — more than have ever been
compiled in a single research project. The
principal finding: “There are detectable changes
in the brain even before symptoms appear,” like
memory loss or other changes in cognitive        among otherwise healthy elderly people, but              team. “It’s the first time we have a large group of
function resulting from repeated blows to the    these issues remain subjects for further study,          athletes who have their brains hurt on a regular
head, Dr. Bernick said.                          said Dr. Jay L. Alberts, director of the                 basis, with M.R.I. images, cognition tests, and a
   The physical changes, detected by M.R.I.      Cleveland Clinic’s Concussion Center.                    longitudinal aspect,” added Dr. Stern, who plans
scans, are a reduction in size in the               “Everyone knows repeated blows to the head            to conduct a similar study of former National
hippocampus and thalamus of the brains of        are not good for you,” Dr. Bernick said. “But            Football League players.
fighters with more than six years in the ring.   nobody knows how you evolve from getting                    This study of boxers will continue for at least
These parts of the brain deal with such          blows to developing long-term degenerative               five years, but the preliminary findings are worth
functions as memory and alertness. While those   diseases. Now we have some sense of                      the attention, as “nobody has the numbers we
who had fought for more than six years did not   sequence.”                                               do.” And he hopes, eventually, to help inform
exhibit any declines in cognitive function,         Like many doctors who study athletes’ brain           decisions made by boxers and state boxing
fighters with more than 12 years in the ring did.injuries, Dr. Bernick has concluded that much            commissions, as well as sports medicine
Thus, Dr. Bernick’s group concluded, the lag     of the research has focused too narrowly on              generally, when it comes to preventing
between detectability and physical symptoms      infrequent, hard blows to the head rather than           neurodegenerative conditions.
probably occurs sometime during those six        more constant lesser blows. “We may not                     Dr. Alberts of the Cleveland Clinic in Ohio said
years.                                           need to focus so much on concussions. It                 that brain damage caused by strong concussive
   The idea that an M.R.I. could help identify a could be that sustaining thousands of blows              blows versus lesser, but more frequent, hits was
degenerative brain disorder before a patient     that don’t knock you out could be more                   “a distinction that people are talking about, but at
reports cognitive problems could help a broad    important” to assessing the long-term health of          the moment we have no data, just a lot of hand-
range of people, from young athletes and         your brain.                                              waving.” He said the study of boxers should help
combat soldiers to others who have been             Dr. Bernick’s results rest on the Las Vegas           change that.
subjected to repeated blows to the head,         center’s ability to gather a large sample of                At the Las Vegas center, only three years old,
neurologists say.                                professional boxers and mixed-martial artists,           there are plans to include hundreds more boxers
   There may also be implications for            to classify them according to the amount of              in the next five years. For now, the brain images
understanding Alzheimer’s and other diseases     time they have spent in the ring, and to cross-          of 109 fighters are grouped according to the
                                                                           reference M.R.I.               length of time each participant has fought: less
                                                                                                          than 6 years, 6 to 12 years, and more than 12
    J              E
      ENSEN, LMORE & TUPASKY,           S                    P.C.          images of their brains
                                                                           and results from               years. The number of fights is also taken into
                                                                           cognitive tests.               account.
            A T T O R N E Y S A T L A W                                    “It’s the first study of its      Given that Las Vegas is billed as the “fight
                                                                           kind,” said Dr. Robert         capital of the world,” Dr. Bernick seems to be
   DAVID JENSEN, OF COUNSEL                                                Stern, director of the         guaranteed a steady stream of new patients.
                                                                           Alzheimer’s Disease               “It’s exciting,” he said, “to be in a field that
       EUGENE OFFICE                      SISTERS OFFICE                   Clinical Core at Boston        people know so little about.”
  199 EAST FIFTH AVE., SUITE 24        220 N. PINE • P.O. BOX 1408         University School of
                                                                                                          TIMOTHY PRATT Published: April 24, 2012; http://
     EUGENE, OREGON 97401            SISTERS, OREGON 97759-1408            Medicine, who was not          www.nytimes.com/2012/04/25/health/research/study-shows-changes
          (541) 342-1141                      (541) 549-1617
                                                                           part of the research           -in-fighters-brains-before-symptoms.html?emc=tnt&tntemail1=y

The Headliner                                                       Summer 2012                                                                         page 17
          Diabetes drug triggers neuron growth, potential to
              regenerate brain cells
A drug commonly used to control Type 2      showed was increased flexibility in terms
diabetes can help trigger stem cells to     of the way they learned the location of
produce new brain cells, providing hope     things," said Miller, explaining that the
of a potential means to treat brain         drug-treated mice had a greater ability to
injuries and even neurodegenerative         learn and remember.
diseases like Alzheimer's, researchers
                                          "If you then, for example, moved the
                                          platform some place completely different,
A study by scientists at Toronto's        the metformin-treated animals were                                   Brain Cell (Neuron)
Hospital for Sick Children found the drug remarkably good at just saying, 'OK,
metformin helps activate the mechanism things have changed' and learning the
that signals stem cells to generate       new thing and (were) much better than the         older, so it's unclear whether there
neurons and other brain cells.            controls (untreated mice)."                       would be adequate numbers of healthy
"If you could take stem cells that          Miller said it was serendipity that led the     brain stem cells to produce new
normally reside in our brains and           team to conduct the study. About 18             neurons that would have a therapeutic
somehow use drugs to recruit them into      months ago, they found a pathway known          benefit.
becoming appropriate neural cell types,     as PKC-CBP that signaled embryonic              Still, it's a possible and worthwhile line
then you may be able to promote repair      neural stem cells to make brain cells. At       of investigation, she said.
and recovery in at least some of the        about the same time, some U.S.
many brain disorders and injuries for       collaborators at Johns Hopkins University       Miller's team is already in discussions
which we currently have no treatment,"      found the same pathway was activated by         with clinical colleagues about launching
said principal investigator Freda Miller.   metformin in liver cells — the means by         a pilot study to test metformin in young
                                            which the drug controls glucose levels that     patients with acquired brain damage,
"This work is happening against a
                                            go awry in diabetes.                            either as result of treating a childhood
background of a lot of excitement in the
                                                                                            brain tumor or from a traumatic head
stem cell field about the idea that since   Based on those findings, Miller's team          injury.
we now know that we have stem cells in      thought metformin might activate the
many of our adult tissues, then perhaps     same pathway in neural stem cells.              Such a study would try to determine if
if we could figure out how to                                                               the drug could increase brain cell mass
                                            "I love this story because it's a classic       — using a functional MRI scan, for
pharmacologically tweak those stem
                                            example of how very basic research into         instance — and measuring any
cells, then perhaps we could help to
                                            how things work has led to a potential          improvement in cognition and behavior.
promote tissue repair," added Miller, a
                                            therapeutic endpoint," she enthused.
senior scientist at SickKids.
                                                                                            If approved, Miller said a pilot study
                                            One big bonus for researchers is that           could begin within the next year or so.
The research, published online in the
                                            metformin has been well-tested and long
journal Cell Stem Cell, involved lab-dish                                                   Source: http://www.winnipegfreepress.com/arts-
                                            prescribed for a number of diseases,
experiments using both mouse and                                                            and-life/life/health/diabetes-drug-triggers-neuron-
                                            including metabolic disorders in children.
human brain stem cells, as well as                                                          growth-potential-to-regenerate-brain-cells-study-
                                            The drug also has been shown to have            161446395.html
learning and memory tests performed
                                            anti-cancer properties.
on live mice given the drug.
Researchers started by adding
                                            "The advantage again is that because                A handful of patience
                                            metformin has been in people from seven
metformin to stem cells from the brains                                                          is worth a bushel of
                                            until 107, we have lots of safety data on it,
of mice, then repeated the experiment
                                            we know exactly what kinds of doses, et
with human brain stem cells generated
                                            cetera, et cetera," she said. "So that's a
                                                                                                  brains. Dutch Proverb
in the lab. In both cases, the stem cells
                                            really huge plus with moving forward."
gave rise to new brain cells.
                                            When it comes to progressive            Fabiola Ruiz
They then tested the drug in lab mice
                                            neurodegenerative diseases
and found that those given daily doses
                                            such as Alzheimer's, Miller said             — All Seasons Care, LLC —
of metformin for two or three weeks had
                                            there is a lot of excitement
increased brain cell growth and
                                            among scientists about finding a                940 Fairview Ave SE
outperformed rodents not given the drug
in learning and memory tasks.
                                            drug that could recruit stem cells                Salem, OR 97302
                                            to produce healthy neurons, "at
One standard test involves a water          least to give people just a bit
                                                                                               (503) 588-7470
maze in which the mice must swim            longer healthier cognition, if you
around until they locate a hidden           will."
platform.                                                                                     Caring for People in
                                            Metformin might be such a drug,
"And the remarkable thing is the mice       but the difficulty is that stem cells
                                                                                             “All Seasons” of Life.
that got the metformin, what they           age and diminish as people get

page 18                                                    Summer 2012                                                       The Headliner
                                       Symptoms of Stroke
The symptoms of stroke usually appear         accompanied by swallowing difficulty.         Subarachnoid hemorrhage may be
suddenly. The suddenness of onset             There may be difficulty understanding         preceded by the sudden (within seconds)
distinguishes stroke from other               others’ speech, finding the right words,      onset of an extremely severe
conditions such as migraine or brain          understanding written words or in             ‘thunderclap’ headache (the most intense
tumor. Every patient is affected              writing (aphasia).                            the patient has ever felt) together with
differently and the most common               Sudden trouble seeing in one or               neck stiffness. Irritation from light may
symptoms are:                                 both eyes.                                    also be a problem. After minutes to hours,
   Sudden numbness or weakness of             Difficulty with vision - may take the         the headache spreads to the back of the
  face, arm or leg, often on one side of      form of total loss of vision in one eye,      head, neck and back as blood tracks
  the body.                                   or loss of vision in half the visual field of down the spinal subarachnoid space.
  A lack of muscle strength in any            each eye, or double vision.                   Subarachnoid hemorrhage may be
  group of muscles, most commonly                                                           associated with drowsiness or loss of
                                              Sudden trouble walking, dizziness
  those on the face, hand, arm and leg                                                      consciousness and with other stroke
                                              loss of balance or co-ordination.
  on one side (called hemiparesis). At                                                      symptoms.
                                              Dizziness - injury to inner ear nerves
  least half of patients suffer some form     may cause loss of balance, a spinning         Less common symptoms include:
  of hemiparesis, some with a mild form       feeling, or feeling like the world is
  that involves difficulty in controlling                                                   Nausea and vomiting- can be
                                              moving (vertigo). May cause nausea,           associated with vertigo or involvement of
  movement, rather than weakness.             unsteadiness on the feet, a tendency to the ‘vomiting center’ (the medulla) of the
  A loss of sensation or feeling in           veer to one side or the other or an
  any part of the body. Numbness of                                                         brain; common at the outset of
                                              unexplained fall.                             subarachnoid hemorrhage.
  the skin of the face, hand, arm and/or       Sudden severe headache with no
  leg on one side (hemianaesthia) is          known cause.                                  Drowsiness or unconsciousness - also
  most common.                                                                              not common, but may occur, often briefly,
 Sudden confusion, trouble                  Headache - stroke and TIA do not                depending on the location of the injury in
 speaking or understanding.                 usually cause headache, but headache            the brain.
 Difficulty in speech - slurring of         may result from stretching or irritation of
                                            the membrane covering the brain                 Epileptic seizures (10% of patients with
  speech (from weakening of face,                                                           subarachnoid hemorrhage).
  mouth, throat muscles) may be             (meninges) or the blood vessels in the

The Headliner                                              Summer 2012                                                      page 19
                                                   “What Did I Gain?”
                 For my Fellow Faraday Friends with Thanks and Blessings for Peace from
                                            Heidi Sieberts
      It has been 14 years since the auto accident     perspective on my healing journey. The accident        several regions including the
that left me with a head injury and lots of pain.      occurred under high-visibility, mid-morning            sphenoid, foramen magnum,
For many of those years I searched in vain for         conditions on April 7, 1998 on a major                 C-2, C-5, S-2, S-3, S-4 and
the silver lining. “What did I gain?” Often the        thoroughfare in Portland, Oregon. While I was in       first coccyx segment. The
question itself seemed insensitive because of the      the middle of an intersection on a green light, my     chiropractor concluded that
seeming devastation that followed upon the             Jeep Sport, which I had owned for one month,           the damage at the attachment
accident.                                              was broadsided and spun by a commercial                of the meninges probably
      Yet, those interested in healing want to         vehicle with a crane. It was operated by an            affected dopamine production,
know. Recently, a chiropractor in a water              elderly gentleman working for his son, who was         which, in turn, could affect my
aerobics class asked the question. Finally, I          an independent electric company contractor.            mood and sleep. Other areas
answered from the perspective of a healed soul.              My car was totaled and I was taken in an         of injury suggested to the
More on that later. As a healer myself prior to        ambulance to Oregon Health Sciences Hospital           chiropractor the digestive problems I had been
the accident, I have long known that, in order to      where I stayed overnight. Some of my injuries          experiencing. Except for herbal remedies I had
be complete, a healing has to go through all           were due to the airbag hitting my chest and chin       refused pain and sleep medications, because they
levels of the human energy body—mental,                (I am a smallish, 5’2” woman), causing TMD,            simply created more problems than they solved.
emotional, physical and spiritual. It’s a process      small fractures to ribs, bruising of my heart and      Five years later a physician at Kaiser Permanente
that ultimately includes accepting human               chest, and inner ear damage causing hearing,           referred me to 20 pain management classes.
limitations and embracing what lies beyond the         balance and visual perspective problems. I was                The pain-management classes verified my
human.                                                 told by a neurologist--who had witnessed some          view on pain and sleep medication. I witnessed
      In the first year of my healing journey, I       “irregularity” in the brain stem--that the head        how such medications had apparently destroyed
wanted to know what my prospects were. My              injury was caused by the air bag knocking my           the lives of many people who were taking them.
search led me to a brain injury support group in       head back and forth and the spinning car causing       Some individuals were on as many as 10
Portland, Oregon. The Faraday Group was                my head to hit the window sideways. He labeled         medications and Tens machines. Their lives were
composed of former professionals who elected           my brain injury as “mild,” but considering the         centered on getting relief from remedies with a lot
their membership. The range of disabilities            repercussions on my life that were to follow, it       of negative side-effects, and possibly interactions,
evidenced by the group was broad. As a result,         was far from mild. I was to discover from an           a tact that did not seem to be working. Attendees
sometimes the meetings failed to track very well.      angiogram conducted 11 years later that I also         could lie down, walk around, sit or stand during the
Perhaps for that very reason the group was             had a brain aneurism, which may have been              1.5 hour classes. As for me, before the end of
pivotal to my healing process.                         caused by the accident. Other injuries to my           each class I was in so much pain that I wanted to
      For the first time in my life, I was not         arms, neck, legs, hips, back and shoulders were        scream and bolt. However, I started to adjust my
tracking well. Prior to the accident I had been a      due to being banged between the door and               life to some of the recommendations and began to
business consultant, therapist and had founded         console during the spinning.                           experience some relief.
and operated a 4-year energy healing school. I               Most of my injuries were labeled “soft tissue”          Essentially, I learned to back off everything.
was identified with my work and felt that I was on     damage, a label that seemed to discount my             Having been athletic, my normal approach was to
the cutting edge in both business and healing          suffering. I have since experienced extreme pain       push through pain. Although that approach
fields. Prior to starting the school, I had studied    for many years, despite treatment by practitioners     probably helped me achieve goals before the
for 8 years with various physicians in the United      of many healing modalities, as well as many            accident, after the accident it only served to
States and Europe beyond achieving my                  arthritic changes in the precise areas that were       exacerbate a high level of pain. A key learning for
Master’s Degree with a 4-point at the University       most injured during the accident. On the day           me was to do nothing or something-for-a-short-
of California, Davis. You could say that I had         after the accident I could walk, painfully, but felt   period-of-time. It may have been the beginning of
been competitive, if not pushy.                        like a chicken with broken wings. Thus began a         my accepting my limitations. It certainly helped
      Yet, a year after the accident, all I could do   healing journey that continues to this day.            reduce the level of pain I was experiencing.
was cry at cognitive rehabilitation training. The            There were many unexpected side-effects of              “Vary activity” and “Refresh It” became my
most basic mental exercises were too difficult for     the injuries sustained in the accident. In addition    mottos. Instead of sitting 10 hours in front of the
me. My potential was looking bleak, and I felt         to pain, the physical symptoms I experienced in        computer, I sat 10 minutes at a time and gradually
desperate to discover who I now was. Doctors           the first few years included but were not limited to   increased the minutes, varying sitting with
could not tell me.                                     nausea, anxiety, TMD, sleeplessness,                   standing, walking or lying down. Instead of a 1-
      It was the Faraday Group that provided a         nightmares, waking up screaming, fatigue,              hour aerobics class with flailing limbs, I
way for me to see where I fit. I learned about the     dizziness, fainting, loss of balance, reflux,          concentrated on the core with Pilates for 15
field of brain injury and measured myself against      pancreatitis, diverticulosis, raw stomach, bloating,   minutes to start. I gave up back-packing for
the levels of injury and life experience of            weight gain, high blood pressure and rapid             obvious reasons. Due to the risk of further head
members of the group. Although I was still             heartbeat. My endocrine and digestive systems          injury and the sense that my bones would re-align
preoccupied by pain, I felt compassion for other       in addition to my bone, brain, muscle and              on points if I fell, I also gave up skiing. Although I
members, even as others extended compassion            connective tissue systems required mending.            could not get my hips up in the water to swim, I
to me. I was greatly aided by their fellowship         Many of these symptoms re-emerge periodically          discovered that water aerobics was gently
and stories and hope mine will be of benefit to        to this day.                                           supportive. Blood and lymph still needed some
them in some way.                                            EMG and thermal scans conducted by a             activity to get into those painful joints to nourish
      Perhaps a summary retrospective of the first     chiropractor within the first year provided            and carry away toxins. I adopted a diet that
several years will suffice to provide some             evidence of severe pain (373% of normal) in                          (What Did I Gain? Continued on page 21)

page 20                                                                  Summer 2012                                                             The Headliner
(What Did I Gain? Continued from page 20)               therapists, and Chinese medicine physicians—           deficiencies as the result of the head injury, hired
included more anti-inflammatory elements.               most of whom were helpful. When I ran out of           an independent contractor to recruit a job for me,
      The accident brought losses to many other         money and insurance, I used a free clinic or the       which ultimately was unsuccessful, and provided
areas of my life during the first year and following.   National Naturopathic College at reduced rates.        retraining for me as a stager.
I could no longer remember my clients’ names,                 Approximately 10 months after the accident             After I closed my office and apartment, I
develop a plan for therapy or adjust that plan in a     a neuropsychologist referred me to cognitive           moved into my mother’s home. This move was far
session based upon shifting energy. Also                remediation, to the Faraday Group for support,         from a walk in the park. My brother, who was ill,
consistent with head injury, I had difficulty           and to the Oregon State Department of                  also lived in her home and died there in 2002. For
initiating anything. For example, although I            Vocational Rehabilitation in order to re-evaluate      many years I served as a caregiver for my mother,
wanted to clean my closet, I could not figure out       my career in light of my head injury.                  who suffered from congestive heart failure and
how to do it. I drained my savings to maintain my             Acting upon the ill-considered advice of my      dementia. The plan was to recover myself, while
office and commitments for the next year and a          Vocational Rehabilitation Counselor,                   assisting my mother, trying other jobs, and starting
half, and then borrowed money to stay afloat until      approximately 1.5 years after the accident, I          a home staging business. I joined a meditation
I was compelled to give up both my office and my        closed my office and accepted a job in the State       group following the Advaita Vedanta tradition.
apartment. The career in which I had invested so        Department of Human Services, Division of              However, stress wore down my health further, and
many years was gone forever. The active lifestyle       Abuse and Neglected Children, as a Social              in 2007 another health emergency compelled me
that I had enjoyed was no longer doable. Pain           Service Specialist and, later, Caseworker.             to move out for good. I received home care from a
and disability kept me from engaging with friends.      Initially, my job entailed driving children to and     kind friend for three months.
Because I looked okay—after all, I wasn’t in a          from foster homes and supervising parental visits.           Even with the job failures and the growing
wheel chair—friends and relatives had                   When I drove a car, inner ear damage caused the        awareness of my deficiencies, the momentum of
expectations of me that I could no longer fulfill. I    sensation of being in a rocking boat. I was easily old ambitions persisted. Two years after the
felt misunderstood and hated explaining myself          distracted, suffered from visual perspective           accident I was certified as a Master Trainer by
as a victim.                                            problems, experienced a couple of near                 Oregon State University and taught an online class
      The aftermath of the accident was like a          accidents, and should not have been driving            at Marylhurst University. However, there was a
rebirth without dying into a new body with a new        anyone. My empathy for the victims of abuse,           discrepancy between my performance and my
nervous system. Probably the head injury and            and negotiating the frustrating state system in        persistent image of myself as a trainer. At the
the pain combined to cause me to become                 order to aid them, exacerbated my already over-        least, my memory, speed at gathering my
impulsive, irritable and easily distracted. My          taxed emotions. Coming to my senses, I quit the thoughts, and mental tracking abilities were
capabilities and skills were reduced significantly.     job after approximately a year. As previously          impaired. Since the accident, I have had a
I could no longer track a simple train of thought,      mentioned, cognitive remediation had failed, but       checkered job history in low-paying jobs, and one
focus, do simple math or find the right words to        the Faraday Group had provided helpful support         of the most difficult things for me has been to scale
express myself. I had to be helped to balance my        during this time.                                      down my pre-accident ambitions in light of the
checkbook. I was confused about who I was with                Thereafter, my Vocational Rehabilitation         current realities. My current file cabinet, which is
these new traits, how to manage them, and what          Counselor helped me make another poor                  full of training materials, testifies to the fact that
I might do next. People reacted differently to me       decision about a job as a Trainer in the State         outworn images and ambitions die hard.
than they had in the past because I was different.      Workers Compensation Division in Salem. The                  The first year after my accident my treatment
I was needy and not good company. All the               job required me to sit on a bus for at least an        took most of my time and cost approximately
familiar internal and external behavioral               hour each way and to work in a cubicle. As is                          (What Did I Gain? Continued on page 22)
reinforcements of one’s identity were gone. Poof!       consistent with brain
      I regret to say that I felt let down by many of
the so-called “helping professions.” Generally,
                                                        injury reactions, the
                                                        conditions were so           RALPH E. WISER
the allopathic physicians were somewhat                 distracting and over-
dismissive. I was referred to doctors of internal
medicine, neurology, neurophysiology,
                                                        stimulating that I found
                                                        myself running in the
neuropsychology, radiology, ear-nose-throat,            office. Unfortunately, my
gynecology, etc. However, there were several            supervisor criticized me
MD’s who were outstanding in supporting me and          for failing to provide an               Brain Injured Individuals
addressing symptoms—two who did cranial                 adequate explanation
sacral therapy, one who did acupuncture and one         during training--and              Auto and other accidents
who was an ear-nose-throat specialist.                  suggested one that I             Wrongful Death
      The alternative physicians tended to              would consider                   Sexual Abuse
consider my case to be “complex” and eventually         unnecessary today. I
diagnosed me with fibromyalgia among other              was fired a month later,
                                                                                         Elder Abuse
things. Generally, they were more helpful in            for an inappropriate             Insurance issues and disputes
providing temporary relief, case management and         remark—one that still            Disability: ERISA and Non-ERISA, SSD, PERS
compassion. However, during the first couple of         seems perfectly sensible
months following the accident when I did not            to me.                                            One Centerpointe Drive, Suite 570
respond well to physical therapy and the pain                 The State                                    Lake Oswego, Oregon 97035
was exacerbated, I felt blamed by the                   Vocational Rehabilitation                 Phone: (503) 620-5577          Fax: (503) 670-7683
practitioner. Labels placed upon me in general          Department continued to                             Email: ralph@wiserlaw.com
tended to add insult to injury. Through the years I     assist me for several
have utilized the services of several                   years. My new
chiropractors, naturopaths, physical therapists,        Counselor helped                        FREE INITIAL CONSULTATION
herbalists, cranial sacral practitioners, massage       identify my workplace                          Free Parking/Convenient Location
The Headliner                                                           Summer       2012                                                               page 21
(What Did I Gain? Continued from page 21)
$75,000.00. This did not count the two surgeries I had for removal
of melanoma, which events were also frightening because my
father had died of melanoma.
      Although I have received a great deal of alternative therapy in
the past 14 years to address the residual and reoccurring effects
from the accident, I have not been fully compensated by
insurance. Moreover, State Farm failed to find a replacement for
my totaled car as required by the terms of our contract and to fully
compensate me for its market value.
      My attorney chose to treat my case as though it was a one-
year event. She seemed to interpret her job as collecting my case
records for one year only. After that she was negligent about any
record keeping. After five years it was clear to me that she
intended to do nothing, while my ability to pay my way faltered and
my symptoms continued. In order to move forward with my life, I
settled with State Farm for payment of my medical bills for the first
year and $13,000, while my attorney took $9,000.
      In the past when I was asked what I have gained from the
accident, my internal reaction was, “Hey, I’ve had all these losses,
pain and suffering, and I am supposed to feel grateful for it, too?!”
The better question for me then, as now, was, “Who am I?”
Sometimes the question led me to silence. Other times it led me                     Oregon Centers for Independent Living
to a deep exploration of what I am NOT and the gentle                                                 Contact List
relinquishment of my conditioning.                                                 CIL                    LOCATION              COUNTIES SERVED
      Fast forward to the present. What was my answer to the
chiropractor in my water aerobics class who recently asked, “What                                   20436 Clay Pigeon Court
                                                                               ABILITREE                                         Crook, Deschutes,
have I gained?” I have learned that I am not my career, my body,                                        Bend, OR 97702
                                                                        Director: Glenn Van Cise                                     Jefferson
my brain, my emotions, my pain, my losses or my gains. I am not                                          1-541-388-8103
defined by how others evaluate or treat me, by my home, my                                             322 SW 3rd Suite 6
                                                                                                                                  Gilliam,, Morrow,
education, my car, paycheck, awards, settlements, investments--or                                     Pendleton, OR 97801
lack thereof. All these things come and go in shifting states. But,                                      (541) 276-1037
                                                                                                                                   Union, Wheeler
underlying everything is something pervasive and self-sustaining.                                  1-877-711-1037 (Toll Free)
Call it a divine blueprint. One can see from this written word that I             EOCIL            400 E Scenic Dr., Ste 2349
am not where I was immediately following the accident. As if by                                                                   Columbia , Hood
                                                                        (Eastern Oregon Center        The Dalles, OR 97058
magic, our bodies, minds and spirits, come back to center, be it                                                                  River, Sherman,
                                                                         for Independent Living)          541-370-2810
slow or fast. Not the same center, because we are not the same.                                                                        Wasco
                                                                          Director: Kirt Toombs          1-855-516-6273
Without judgment, we are neither worse nor better, and we don’t                                       1021 SW 5th Avenue
have to be.                                                                                            Ontario, OR 97914        Baker, Grant, Harney,
      Maybe I needed to be turned upside down, shaken and drop-                                     (541) 889-3119 or 1-866-     Malheur , Wallowa
kicked in order to create the willingness in me to give up my silly                                         248-8369
notions. Considering the eons it might otherwise take, I feel it                  HASL
propelled me onto the fast-track to freedom. Maybe that’s what            (Independent Abilities        305 NE "E" St.
my soul was seeking all along, and—unknown to me—my primary                                                                      Josephine, Jackson,
                                                                                 Center)            Grants Pass, OR 97526
purpose in this life.                                                                                                           Curry, Coos , Douglas
                                                                             Director: Randy           (541) 479-4275
      Be at peace.                                                             Samuelson
                                                                                                     99 West 10th Ave#117        Lane, Marion, Polk,
  It is difficult to say                                                    (Lane Independent
                                                                                                      Eugene, OR 97401          Yamhill, Linn, Benton,
                                                                              Living Alliance)
                                                                                                        (541) 607-7020                  Lincoln
   what is impossible ,                                                  Director: Sheila Thomas
  for the dream of yesterday                                                      ILR
                                                                          (Independent Living        1839 NE Couch Street            Clackamas,
   is the hope of today and                                                   Resources)              Portland, OR 97232             Multnomah,
  the reality of tomorrow.                                                Director: Barry Fox-
                                                                                                        (503) 232-7411               Washington

                                                                          SPOKES UNLIMITED             1006 Main Street
                                                                           Director: Christina     Klamath Falls, OR 97601         Klamath, Lake
                               Robert Goddard                                   Fritschi                (541) 883-7547
                                                                         UVDN (Umpqua Valley        736 SE Jackson Street,
                                                                         disAbilities Network)     Roseburg, OR 97470 (541-           Douglas
                                                                         Director: David Fricke        672-6336 (voice)

page 22                                                                 Summer 2012                                                   The Headliner
                 Understanding Mild Traumatic Brain                                 Recovering from Mild Traumatic Brain Injury A handbook of hope for
                 Injury (MTBI): An Insightful Guide to                              military and their families. Edited by Mary Ann Keatley, PhD and Laura L.
                 Symptoms, Treatment and Redefining                                 Whittemore
                 Recovery                                                           This clear and concise handbook speaks to our Wounded Warriors and their
                 Understanding Mild Traumatic Brain Injury                          families and helps them navigate through the unknown territory of this often
                 (MTBI): An Insightful Guide to Symptoms,                           misunderstood and unidentified injury. It provides an insightful guide to
                 Treatment and Redefining Recovery                                  understanding the symptoms, treatment options and redefines "Recovery" as
                 Edited by Mary Ann Keatley, PhD and                                their new assignment. Most importantly, the intention of the authors is to inspire
                 Laura L. Whittemore $16.00                                         hope that they will get better, they will learn to compensate and discover their
                                                                                    own resiliency and resourcefulness. $18.00
The Essential Brain injury Guide
The Essential Brain Injury Guide provides a wealth of vital                                                      Brain Injury Alliance of Oregon
information about brain injury, its treatment and
rehabilitation. Written and edited by leading brain injury                                                      New Member                  Renewing Member
experts in non-medical language, it’s easy to understand.                                  Name: ___________________________________________
This thorough guide to brain injury covers topics including:
Understanding the Brain and Brain Injury; Brain Injury                                     Street Address: _____________________________________
Rehabilitation; Health, Medications and Medical                                            City/State/Zip: ______________________________________
Management; Treatment of Functional Impacts of Brain
Injury; Children and Adolescents; Legal and Ethical                                        Phone: ___________________________________________
Issues; and MORE! Used as the primary brain injury reference by thousands of               Email: _____________________________________________
professionals and para-professionals providing direct services to persons with
brain injury over the past 15 years. $60.00                                                                       Type of Membership
                      Ketchup on the Baseboard                                                Survivor Courtesy $ 5 (Donations from those able to do so are appreciated)
                      Ketchup on the Baseboard tells the personal story of the                Basic $35      Family $50        Students $25           Non Profit $75
                      authors' family’s journey after her son, Tim, sustained a brain         Professional $100      Sustaining $200            Corporation $300
                      injury. Chronicling his progress over more than 20 years, she           Lifetime $5000
                      describes the many stages of his recovery along with the                                           Sponsorship
                      complex emotions and changing dynamics of her family and                Bronze $300        Silver $500       Gold $1,000        Platinum $2,000
                      their expectations. More than a personal story, the book
                      contains a collection of articles written by Carolyn Rocchio as      Additional Donation/Memorial: $________________
                      a national columnist for newsletters and journals on brain
                                                                                           In memory of: ______________________________________
                      injury. $20
                                                                                                                           (Please print name)
A Change of Mind                                                                                                            Member is:
A Change of Mind by Janelle Breese Biagioni is a very                                         Individual with brain injury     Family Member   Other:_________
personal view of marriage and parenting by a wife with two                                     Professional. Field: _______________________________
young children as she was thrust into the complex and
confusing world of brain injury. Gerry Breese, a husband,
father and constable in the Royal Canadian Mounted Police                                                    Book Purchase ($2 per book for mailing):
was injured in a motorcycle crash while on duty. Janelle                                       The Caregiver’s Tale $15          Change of Mind $20
traces the roller coaster of emotions, during her husband’s
                                                                                               Fighting for David $15         Ketchup on the Baseboard $20
hospital stay and return home. She takes you into their
                                                                                              The Essential Brain Injury Guide $60
home as they struggle to rebuild their relationship and life at home. $20
                                                                                              Recovering from MTBI $18         Understanding MTBI $16
                 Fighting for David
                 Leone Nunley was told by doctors that her son David was in a                                           Type of Payment
                 "persistent coma and vegetative state"--the same diagnosis                     Check payable to BIAOR for $ ________________________
                 faced by Terri Schiavo's family. Fighting for David is the story
                 how Leone fought for David's life after a terrible motorcycle                   Charge my VISA/MC/Discover Card $ __________________
                 crash. This story shows how David overcame many of his                    Card number: _________ __________ _________ __________
                 disabilities with the help of his family. $15                             Expiration date: _____________ Security Code from back _________
The Caregiver's Tale: The True Story Of A Woman, Her                                       Print Name on Card: __________________________________
Husband Who Fell Off The Roof, And Traumatic Brain                                         Signature Approval: __________________________________
Injury                                                                                     Date: ______________________________________________
From the Spousal Caregiver's, Marie Therese Gass, point                                                         Please mail to:
of view, this is the story of the first seven years after severe
Traumatic Brain Injury, as well as essays concerning the                                                        BIAOR PO Box 549
problems of fixing things, or at least letting life operate                                                      Molalla, OR 97038
more smoothly. Humor and pathos, love and frustration,                                                800-544-5243 Fax: 503– 961-8730
rages and not knowing what to do--all these make up a                                               www.biaoregon.org • biaor@biaoregon.org
complete story of Traumatic Brain Injury. $15                                                     501 (c)(3) Tax Exempt Fed. ID 93-0900797

The Headliner                                                          Summer 2012                                                                         page 23
    For Parents, Students,                                                      Returning Veterans Project
        Educators and                                Returning Veterans Project is a nonprofit organization comprised of politically unaffiliated and
        Professionals                                independent health care practitioners who offer free counseling and other health services to
                                                     veterans of past and current Iraq and Afghanistan campaigns and their families. Our volunteers
           The Oregon TBI Team                       include mental health professionals, acupuncturists and other allied health care providers. We believe it
                                                     is our collective responsibility to offer education, support, and healing for the short and long-term
The Oregon TBI Team is a multidisciplinary group
                                                     repercussions of military combat on veterans and their families. For more information contact: Belle
of educators and school professionals trained in
                                                     Bennett Landau, Executive Director, 503-933-4996 www.returningveterans.org email:
pediatric brain injury. The Team provides in-service
training to support schools, educators and families
of students (ages 0-21) with TBI. For evidence
based information and resources for supporting
                                                                              Center for Polytrauma Care-Oregon VA
students with TBI, visit: www.tbied.org                 Providing rehabilitation and care coordination for combat-injured OIF/OEF veterans and active duty
For more information about Oregon’s TBI                                                            service members.
www.cbirt.org/oregon-tbi-team/                        Contact: Ellen Kessi, LCSW , Polytrauma Case Manager Ellen.Kessi@va.gov 1-800-949-1004
Melissa Nowatske 541-346-0597                                                              x 34029 or 503-220-8262 x 34029
tbiteam@wou.edu or nowatzkm@cbirt.org
                                                                                   Washington TBI Resource Center
“Brain Injury Partners: Navigating                         Providing Information & Referrals to individuals with brain injury, their caregivers,
                                                           and loved ones through the Resource Line. In-Person Resource Management is
the School System,” an interactive, multi-               also available in a service area that provides coverage where more than 90% of TBI
media intervention, is now available on-line free of                Incidence occurs (including counties in Southwest Washington.
charge. The easy-to-use website is designed to
give parents of school-aged children with a brain                 For more information or assistance call: 1-877-824-1766 9 am –5 pm
injury the skills they need to become successful                                        www.BrainInjuryWA.org
advocates. http://free.braininjurypartners.com/.             Vancouver: Carla-Jo Whitson, MSW CBIS 360-699-4928 jarlaco@yahoo.com
     Oregon Parent Training and
     Information Center (OR PTI)                                                                      Legal Help
A statewide parent training and information center       Disability Rights Oregon (DRO) promotes Opportunity, Access and Choice for individuals with
serving parents of children with disabilities. 503-581   disabilities. Assisting people with legal representation, advice and information designed to help solve
-8156 or 888-505-2673 info@orpti.org                     problems directly related to their disabilities. All services are confidential and free of charge. (503) 243
www.orpti.org                                            -2081 http://www.disabilityrightsoregon.org/

                   LEARNet                               Legal Aid Services of Oregon serves people with low-income and seniors. If you qualify for food
Provides educators and families with invaluable          stamps you may qualify for services. Areas covered are: consumer, education, family law,
information designed to improve the educational          farmworkers, government benefits, housing, individual rights, Native American issues, protection from
outcomes for students with brain injury.                 abuse, seniors, and tax issues for individuals. Multnomah County 1-888-610-8764 www.lawhelp.org
                                                         Lewis & Clark Legal Clinic is a civil practice clinic for the Northwestern School of Law of Lewis &
  FREE Brain Games to Sharpen Your                       Clark College. Representing low-income individuals experiencing a cariety of civil and administrate
                                                         problems. 503-768-6500
         Memory and Mind
 www.realage.com/HealthyYOUCenter/Games/                 Oregon Law Center Legal provides free legal services to low income individuals, living in Oregon,
          intro.aspx?gamenum=82                          who have a civil legal case and need legal help. Assistance is not for criminal matter or traffic tickets.
 Home-Based Cognitive Stimulation Program
                                                         Oregon State Bar Lawyer Referral Services refers to a lawyer who may be able to assist. 503-684-
                                                         3763 or 800-452-7636
             Sam's Brainy Adventure                      The Oregon State Bar Military Assistance Panel program is designed to address legal concerns of
   http://faculty.washington.edu/chudler/flash/          Oregon service members and their families immediately before, after, and during deployment. The
                     comic.html                          panel provides opportunities for Oregon attorneys to receive specialized training and offer pro bono
                Neurobic Exercise                        services to service members deployed overseas. 800-452-8260
Brain Training Games from the Brain Center of            St. Andrews Legal Clinic is a community non-profit that provides legal services to low income families
                      America                            by providing legal advocacy for issues of adoption, child custody and support, protections orders,
www.braincenteramerica.com/exercises_am.php              guardianship, parenting time, and spousal support. 503-557-9800

page 24                                                                  Summer 2012                                                              The Headliner
                                                  ARE YOU A MEMBER?
The Brain Injury Alliance of Oregon relies on your membership dues and donations to operate our special projects and to assist families and
survivors. Many of you who receive this newsletter are not yet members of BIAOR. If you have not yet joined, we urge you to do so. It is
important that people with brain injuries, their families and the professionals in the field all work together to develop and keep updated on
appropriate services. Professionals: become a member of our Neuro-Resource Referral Service. Dues notices have been sent. Please remember
that we cannot do this without your help. Your membership is vitally important when we are talking to our legislators. For further information,
please call 1-800-544-5243 or email biaor@biaoregon.org. See page 23 to sign up.

Home-Based Cognitive Stimulation     Affordable Naturopathic Clinic in Southeast                                                                   Portland
           Program               An affordable, natural medicine clinic is held the The clinic is located at:
http://main.uab.edu/tbi/show.asp?                                 second Saturday of each month. Dr. Cristina Cooke,       The Southeast Community Church of the
durki=49377                                                       a naturopathic physician, will offer a sliding-scale.    Nazarene
The UAB Home Stimulation Program is a                             Naturopaths see people with a range of health concerns   5535 SE Rhone, Portland.
free program that provides activities to use                      including allergies, diabetes, fatigue, high blood-      For more information of to make an
with individuals following their brain injury.                    pressure, and issues from past physical or emotional     appointment, please call:
challenging. You can select activities you feel                   injuries.                                                Dr. Cooke, 503-984-5652
might be appropriate and increase the level
of difficulty. PDF file with program lessons.                     Tammy Greenspan Head Injury Collection A terrific collection of books specific to brain
                                                                  injury. You can borrow these books through the interlibrary loan system. A reference librarian
                                                                  experienced in brain injury literature can help you find the book to meet your needs. 516-249-9090
             Financial Assistance
Long Term Care—Melissa Taber, Long Term Care TBI
  Coordinator, DHS, State of Oregon 503-947-5169                                                     Valuable Websites
The Low-Income Home Energy Assistance Program                       www.BrainLine.org: a national multimedia project offering information and resources about
(LIHEAP) is a federally-funded program that helps low-
                                                                    preventing, treating, and living with TBI; includes a series of webcasts, an electronic
income households pay their home heating and cooling
                                                                    newsletter, and an extensive outreach campaign in partnership with national organizations
bills. It operates in every state and the District of Columbia,
as well as on most tribal reservations and U.S. territories.        concerned about traumatic brain injury.
The LIHEAP Clearinghouse is an information resource for             www.iCaduceus.com: The Clinician's Alternative, web-based alternative medical resource.
state, tribal and local LIHEAP providers, and others
                                                                    www.oregon.gov/odva: Oregon Department of Veterans Affairs
interested in low-income energy issues. This site is a
supplement to the LIHEAP-related information the LIHEAP             http://fort-oregon.org/: information for current and former service members
Clearinghouse currently provides through its phone line 1-
                                                                    www.idahotbi.org/: Idaho Traumatic Brain Injury Virtual Program Center-The program
800-453-5511 www.ohcs.oregon.gov/OHCS/
                                                                    includes a telehealth component that trains providers on TBI issues through video-
                                                                    conferencing and an online virtual program center.
Food, Cash, Housing Help from Oregon Department of
Human Services 503-945-5600                                         www.headinjury.com/ - information for brain injury survivors and family members
http://www.oregon.gov/DHS/assistance/index.shtml                    http://activecoach.orcasinc.com Free concussion training for coaches ACTive: Athletic
Housing                                                             Concussion Training™ using Interactive Video Education
Various rental housing assistance programs for low                  www.braininjuryhelp.org Peer mentoring help for the TBI survivor in the Portland Metro/
income households are administered by local community               Southern Washington area. 503-224-9069
action agencies, known as CAAs. Subsized housing, such
as Section 8 rental housing, is applied for through local           www.phpnw.org If you, or someone you know needs help-contact: People Helping People
housing authorities. 503-986-2000 http://oregon.gov/                Sharon Bareis 503-875-6918
OHCS/CSS_Low_Income_Rental_Housing_                                 www.oregonpva.org - If you are a disabled veteran who needs help, peer mentors and
Assistance_Programs.shtml                                           resources are available
Oregon Food Pantries http://www.foodpantries.org/st/                http://oregonmilitarysupportnetwork.org - resource for current and former members of the
oregon                                                              uniformed military of the United States of America and their families.
Central City Concern, Portland 503 294-1681
                                                                    http://apps.usa.gov/national-resource-directory/National Resource Directory The National
Central City Concern meets its mission through innovative
                                                                    Resource Directory is a mobile optimized website that connects wounded warriors, service
outcome based strategies which support personal and
community transformation providing:                                 members, veterans, and their families with support. It provides access to services and
• Direct access to housing which supports lifestyle                 resources at the national, state and local levels to support recovery, rehabilitation and
    change.                                                         community reintegration. (mobile website)
• Integrated healthcare services that are highly effective          http://apps.usa.gov/ptsd-coach/PTSD Coach is for veterans and military service members
    in engaging people who are often alienated from                 who have, or may have, post-traumatic stress disorder (PTSD). It provides information about
    mainstream systems.                                             PTSD and care, a self-assessment for PTSD, opportunities to find support, and tools–from
• The development of peer relationships that nurture and            relaxation skills and positive self-talk to anger management and other common self-help
    support personal transformation and recovery.                   strategies–to help manage the stresses of daily life with PTSD. (iPhone)
• Attainment of income through employment or
    accessing benefits.

The Headliner                                                                Summer 2012                                                                  page 25
                                Oregon Brain Injury Support Groups
Astoria                                                Hillsboro                                                    BIRC Alumni Support Group
Astoria Support Group                                  Westside SUPPORT GROUP                                       On hiatus until further notice
3rd Tuesday 6-7:30                                     3rd Monday 7-8 pm
Pacific NW Occupational Therapy Clinic                                                                              BRAINSTORMERS Il
                                                       For brain injury survivors, their families, caregivers and
1396 Duane St. Astoria OR 97103                                                                                     3rd Saturday 10:00am-12:00noon
Kendra Ward 1-888-503-7760                                                                                          Survivor self-help group
                                                       Tuality Community Hospital
                                                                                                                    Emanuel Hospital, M.O.B.-West
                                                       335 South East 8th Street, Hillsboro, OR 97123
Bend                                                                                                                2801 N Gantenbein, Portland, 97227
                                                       Carol Altman, (503)640-0818
CENTRAL OREGON SUPPORT GROUP                                                                                        Steve Wright stephenmwright@comcast.net
2nd Saturday 10:30am to 12:00 noon                     Klamath Falls                                                503-816-2510
St. Charles Medical Center                             SPOKES UNLIMITED BRAIN INJURY SUPPORT
2500 NE Neff Rd, Bend 97701                                                                                         BIRRDsong Support Group
Rehab Conference Room, Lower Level                                                                                  1st Saturday, 9:30-11 am
                                                       2nd Tuesday 1:00pm to 2:30pm
Joyce & Dave Accornero, 541 382 9451                                                                                Peer Support Group for Survivors & Family
                                                       1006 Main Street, Klamath Falls, OR 97601
Accornero@bendbroadband.com                                                                                         Wistar-Morris Room
                                                       Dawn Lytle 541-883-7547
                                                                                                                    2211 NW Marshall St., Portland 97210
Ablitree Thursday Support Group                                                                                     Next to Good Samaritan Hospital
Every Thursday 10:30 am-12pm                           SPOKES UNLIMITED BRAIN INJURY RECREATION                     Survivorgroupcoordinator@birrdsong.org
Fox Hollow Assisted Living Center                      4th Tuesday
2599 NE Studio Rd, Bend OR 97701                                                                                    CROSSROADS (Brain Injury Discussion Group)
                                                       Contact Dawn Lytle for additional information:
Rich Zebrowski 541-388-8103 x 203                                                                                   2nd and 4th Friday, 1-3 pm
                                                       541-883-7547 dawn.lytle@spokesunlimited.org
richz@coril.org                                                                                                     Independent Living Resources
                                                       Lebanon                                                      1839 NE Couch St, Portland, OR 97232
Corvallis                                              BRAIN INJURY SUPPORT GROUP OF LEBANON                        Sarah Gerth, 503-232-7411 sarah@ilr.org
STROKE & BRAIN INJURY SUPPORT GROUP                    1st Thursday 6:30 pm                                         Must Be Pre-Registered
1st Tuesday 1:30 to 3:00 pm                            Lebanon Community Hospital, Conf Rm #6
Church of the Good Samaritan Lng                       525 North Santiam Hwy, Lebanon, OR 97355                     FAMILY SUPPORT GROUP
333 NW 35th Street, Corvallis, OR 97330                Lisa Stoffey 541-752-0816 lstoffey@aol.com                   3rd Saturday 1:00 pm-2:00 pm
Call for Specifics: Shawn Johnson, CCC-SLP                                                                          Self-help and support group
541-768-5157 smjohnson@samhealth.org                   Medford                                                      Currently combined with
                                                       Southern Oregon Brainstormers Support & Social               PARENTS OF CHILDREN WITH BRAIN INJURY
Coos Bay (2)                                           Club                                                         Emanuel Hospital, Rm 1035
Traumatic Brain Injury (TBI) Support Group             1st Tuesday 3:30 pm to 5:30 pm                               2801 N Gantenbein, Portland, 97227
2nd Saturday August 9th 3:00pm – 5:00pm                751 Spring St., Medford, Or 97501                            Joyce Kerley (503) 320-6092 joycek1145@aol.com
Kaffe 101, 171 South Broadway                          Lorita Cushman @ 541-621-9974
Coos Bay, OR 97420 tbicbsupport@gmail.com              BIAOregon@AOL.COM                                            FARADAY CLUB
Growing Through It- Healing Art Workshop                                                                            Must be pre-registered -
Wednesdays, 9-10:30am                                                                                               1st Saturday 1:00-2:30pm
                                                       BRAIN INJURY SUPPORT GROUP OF MOLALLA
The Nancy Devereux Center                                                                                           Peer self-help group for professionals with BI
                                                       5:30 pm—7:00, Every Monday
1200 Newmark Avenue, Coos Bay, Oregon                                                                               Emanuel Hospital, Rm. 1035
                                                       Support group and Hydro-exercise - Molalla Pool
Bittin Duggan, B.F.A., M.A.,                                                                                        2801 N Gantenbein, Portland, 97227
                                                       Sherry Stock sherry@biaoregon.org 503-740-3155
541-217-4095 bittin@growingthroughit.org                                                                            Arvid Lonseth, (503) 680-2251 (pager)
                                                       Must Be Pre-Registered
Eugene (3)                                             Newport
Head Bangers                                                                                                        HELP
                                                       BRAIN INJURY SUPPORT GROUP OF NEWPORT
3rd Tuesday, Feb., Apr., June, July, Aug., Oct. Nov.                                                                (Help Each Other Live Positively)
                                                       2nd Saturday 2-4 pm
6:30 pm - 8:30 pm Potluck Social                                                                                    4th Saturday - 1:00-3:00 pm
                                                       4909 S Coast Hwy Ste 340,
Monte Loma Mobile Home Rec Center                                                                                   TBI Survivor self-help group (Odd months)
                                                       South Beach, OR 97366
2150 Laura St;, Springfield, OR 97477                                                                               TBI Family & Spouse (Even Months)
                                                       (541) 867-4335 or progop541@yahoo.com
Susie Chavez, (541) 342-1980                                                                                        Cognitive Enhancement Center
admin@communityrehab.org                                                                                            604 SE Water Ave Portland 97214
                                                       Oregon City                                                  Brad Loftis, (503) 760-0425
Community Rehabilitation Services of Oregon            3rd Friday 1-3 pm (on hiatus)                                cmuse2002@yahoo.com
3rd Tuesday, Jan., Mar., May, Sept. and Nov.           Clackamas Community College                                  Please contact at least two days in advance
7:00 pm - 8:30 pm Support Group                        Sonja Bolon, MA 503-816-1053
St. Thomas Episcopal Church                            sonjabolon@yahoo.com                                         PARENTS OF CHILDREN WITH BRAIN INJURY
1465 Coburg Rd.; Eugene, OR 97401                                                                                   3rd Saturday 12:30 - 2:30 pm
Jan Johnson, (541) 342-1980                            Portland (14)                                                self-help support group.
admin@communityrehab.org                               BRAINSTORMERS I                                              12:30-1 pm Currently combined with THRIVE
                                                       2nd Saturday 10:00 - 11:30am                                 SUPPORT GROUP for Pizza then joins
BIG (BRAIN INJURY GROUP)                               Women survivor's self-help group                             FAMILY SUPPORT GROUP
Tuesdays 11:00am-1pm                                   Wilcox Building Conference Room A                            Emanuel Hospital, Rm 1035
Hilyard Community Center                               2211 NW Marshall St., Portland 97210                         2801 N Gantenbein, Portland, 97227
2580 Hilyard Avenue, Eugene, OR. 97401                 Next to Good Samaritan Hospital                              Joyce Kerley (503) 281-4682 joycek1145@aol.com
Curtis Brown, (541) 998-3951                           Jane Starbird, Ph.D., (503) 493-1221
BCCBrown@aol.com                                       drstarbird@aol.com

page 26                                                                       Summer 2012                                                              The Headliner
                                                                                                         *TBI Self-Development Workshop
 Brain Injury Support Groups provide face-to-face interaction among people whose                         “reaching my own greatness” *For Veterans
 lives have been affected by brain injury, including Peer Support and Peer Mentoring.                    2nd & 4th Tues. 11 am- 1 pm
                                                                                                         Spokane Downtown Library 900 W. Main Ave.,
Positive Brain Injury Support Group                 IDAHO & SURROUNDING TBI SUPPORT GROUPS               Spokane, WA
Must be pre-registered                                                                                   Craig Sicilia (509-218-7982; craig@tbiwa.org)
                                                    STARS/Treasure Valley BI Support Group
For career persons with brain injury
                                                    4th Thursday of each month 7-9 pm                    Spokane TBI Survivor Support Group
Every other Monday 4:30- 6 pm
                                                    Idaho Elks Rehab Hosp, Sawtooth Room (4th Floor),    2nd Wednesday of each month 7 p.m.
4511 SE 39th Ave., Portland, 97202
                                                    Boise ID                                             St. Luke's Rehab Institute, 711 S. Cowley, #LL1,
Call: Nancy Holmes, PsyD, (503) 235-2466
                                                    Kathy Smith (208-367-8962; kathsmit@sarmc.org)       Spokane, WA
                                                    Greg Meyer (208-489-4963; gmeyer@elksrehab.org)      Craig Sicilia (509-218-7982; craig@tbiwa.org)
THRIVE SUPPORT GROUP                                                                                     Michelle White (509-534-9380;
                                                    Southeastern Idaho TBI support group
3rd Saturday 12:30 - 2:30 pm On Hiatus until Sept                                                        mmwhite@mwhite.com)
                                                    2nd Wednesday of each month 12:30 p.m.
Teenage and Young adult Brain Injury Survivor                                                            Valerie Wooten (360-387-6428)
                                                    LIFE, Inc., 640 Pershing Ste. A, Pocatello, ID
support group
                                                    Tracy Martin (208-232-2747)                          Spokane Family & Care Giver BI Support Group
Emanuel Hospital, MOB West
                                                    Clay Pierce (208-904-1208 or 208-417-0287;           4th Wednesday of each month, 6 p.m.
Medical Office building West on N.Graham St
                                                    clayjoannep@cableone.net)                            St. Luke's Rehab Institute, 711 S. Cowley, #LL1,
Directly across from parking lot 2
2801 N Gantenbein, Portland, 97227                  Twin Falls TBI Support Group                         Spokane, WA
Kate Robinson, 503-318-5878                         3rd Tuesday of each month 6:30-8 p.m.                Melissa Gray (melissagray.mhc@live.com)
                                                    St. Lukes’ Idaho Elks Rehab Hosp, Twin Falls, ID     Craig Sicilia (509-218-7982; craig@tbiwa.org)
TBI SOCIAL CLUB                                                                                          Michelle White (509-534-9380;
                                                    Keran Juker (keranj@mvrmc.org; 208-737-2126)
Location varies, call for times & locations                                                              mmwhite@mwhite.com)
Meets twice a month - days and times vary            *Northern Idaho TBI Support Group
call for information                                *For Veterans                                        Spokane County BI Support Group
Michael Flick, 503-775-1718                         3rd Sat. of each month 1-3 pm                        4th Wednesday of each month
                                                    Kootenai Med. Center, 2003 Lincoln Way               6:30 p.m.-8:30 p.m.
Greater Persons Toastmasters Club (for People                                                            12004 E. Main, Spokane Valley WA
                                                    Rm KMC 3
with Brain Injury) On Hiatus until further notice                                                        Craig Sicilia (509-218-7982; craig@tbiwa.org)
                                                    Coeur d’Alene, ID
Caleb Burns, (503) 913-4517                                                                              Toby Brown (509-868-5388)
                                                    Sherry Hendrickson (208-666-3903,
Roseburg                                            shendrickson@kmc.org)                                Spokane County Disability/BI Advocacy Group
UMPQUA VALLEY DISABILITIES NETWORK                  Craig Sicilia (509-218-7982; craig@tbiwa.org)        511 N. Argonne, Spokane WA
2nd Monday 12 noon - 1:15pm                         Ron Grigsby (208-659-5459)                           Craig Sicilia (509-218-7982; craig@tbiwa.org)
736 SE Jackson St, Roseburg, OR 97470
                                                    Quad Cities TBI Support Group                        Moses Lake TBI Support Group
(541) 672-6336 udvn@udvn.org
                                                    Second Saturday of each month, 9 a.m.                2nd Wednesday of each month, 7 p.m.
Salem (3)                                           Tri State Memorial Hosp. 1221 Highland Ave,          Samaritan Hospital
SALEM BRAIN INJURY SUPPORT GROUP                    Clarkston, WA                                        801 E. Wheeler Rd # 404, Moses Lake, WA
4th Thursday 4pm-6pm                                Deby Smith (509-758-9661; biaqcedby@earthlink.net)   Jenny McCarthy (509-766-1907)
Salem Rehabilitation Center, Conf Rm 2 A/B
2561 Center Street, Salem OR 97301                  Stevens County TBI Support Group                     Pullman TBI Support Group
Megan Snider (503) 561-1974                         1st Tuesday of each Month 6-8 pm                     3rd Tuesday of each month, 7-9p.m.
megan.snider@salemhealth.org                        Mount Carmel Hospital, 982 E. Columbia,              Pullman Regional Hospital, 835 SE Bishop Blvd,
                                                    Colville, WA                                         Conf Rm B
SALEM COFFEE & CONVERSATION                         Craig Sicilia 509-218-7982; craig@tbiwa.org          Pullman, WA
Fridays 11-12:30 pm                                 Danny Holmes (509-680-4634)                          Alice Brown (509-338-4507)
Ike Box Café
299 Cottage St, Salem OR 97301                                                                           Pullman BI/Disability Advocacy Group
                                                                                                         2nd Thursday of each month, 6:30-8:00p.m.
SALEM STROKE SURVIVORS & CAREGIVERS                                                                      Gladish Cultural Center, 115 NW State St., #213
SUPPORT GROUP                                                                                            Donna Lowry (509-725-8123)
2nd Friday 1 pm –3pm
Salem Rehabilitation Center
2561 Center Street, Salem OR 97301
Scott Werdebaugh 503-838-6868
Ruby McEliroy 503-390-3372
TBI Support Group
2nd and 4th Thursday 2pm to 3pm
Legacy Salmon Creek Hospital, 2211 NE 139th
conference room B 3rd floor Vancouver WA 98686
Carla-Jo Whitson, MSW, CBIS

The Headliner                                                          Summer 2012                                                              page 27
                                                                                                                      NON-PROFIT ORG
                                                                                                                        U. S. Postage
              The Brain Injury Alliance of Oregon                                                                           PAID
                                                                                                                       PORTLAND, OR
              Formally the Brain Injury Association of Oregon                                                         PERMIT NO. 3142
              PO Box 549
              Molalla OR 97038

                                         1450 Standard Plaza
                                          1100 SW Sixth Ave
                                          Portland, OR 97204

                           the Rights
                              of the                                  The journey of a thousand miles begins
                             Injured                                  with the first step, so keep walking and
                                                                      before long you will be able to look back
                Personal Injury Practice Areas:
                                                                      and see how far you have already
          Brain Injury Accidents     Dangerous Premises
          Automobile Accidents       Defective Products               come . . . because you decided to take
          Maritime Accidents         Bicycle Accidents                that first step. — Craig J. Phillips
          Construction Accidents     Motorcycle Accidents
          Trucking Accidents         Sexual Harassment/Abuse
          Medical Malpractice        Aviation Accidents
          Wrongful Death             Legal Malpractice
          How To Contact Us                                          Donations
          Brain Injury Alliance of Oregon (BIAOR)                    Through a partnership with VDAC (Vehicle Donations to Any
PO Box 549                                                           Charity), The Brain Injury Alliance of Oregon, BIAOR, is now a part
Molalla, OR 97038                   Email: biaor@biaoregon.org       of a vehicle donation system. BIAOR can accept vehicles from
(503) 740-3155                      Website: www.biaoregon.org       anywhere in the country. VDAC will handle the towing, issue a
                                    Fax: 503-961-8730
Toll free: (800) 544-5243                                            charitable receipt to you, auction the vehicle, handle the transfer of
BIAOR Open biaoropen-subscribe@yahoogroups.com                       title, etc. Donations can be accepted online, or call 1-866-332-
BIAOR Advocacy Network                                               1778. The online web site is http://www.v-dac.com/org/?
           This newsletter was sponsored in part by cbirt.org.                 Thank you to all our contributors and advertisers.
page 28                                                          Summer 2012                                                 The Headliner

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