Pathways to Accessible Housing

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							               Pathways to Accessible Housing
         in Cambridge City and South Cambridgeshire

    An assessment of the supply of wheelchair accessible housing
                and the needs of wheelchair users




                           The Papworth Trust
                               July 2004




   “The number of people who need accessible local authority or housing
association homes and who will not obtain such housing within twelve months
                          is estimated at 168.”
                                               CONTENTS

1.       Introduction, summary findings and recommended actions ........... 1
2.       Number and age of wheelchair users ................................................ 5
3.       Accessible housing – supply and demand ........................................ 6
4.       Survey of housing and support needs ............................................... 8
5.       Views of Wheelchair Users; Social Care; Health; and Voluntary
         Sector Staff ......................................................................................... 21
6.       Management report: Full survey results .......................................... 23
Appendix A.................................................................................................... 26
Acknowledgements ...................................................................................... 28




The Pathways to Accessible Housing project was undertaken by The Papworth Trust,
working in partnership with Cambridge City and South Cambridgeshire Council.
The Papworth Trust and the project sponsors are very grateful to all those who
provided information or helped in other ways. These included: nearly 600 people who
responded to the postal survey of wheelchair users or took part in group interviews;
officers of Cambridge City and South Cambridgeshire Council; staff of the local NHS
Wheelchair Service; and representatives of voluntary agencies and consumer groups.
Copies of the published Guide to assessing the housing and support needs of
wheelchair users, together with a software analysis programme on interactive CD and
a report on the original pilot research for ‘Pathways to Accessible Housing’, can be
ordered from:

The Papworth Trust
Papworth Everard
Cambridge CB3 8RG

Tel: 01480 830341
Website: www.papworth.org.uk
1. Introduction, summary findings and recommended actions

The ‘Pathways to Accessible Housing’ project in Cambridge and South
Cambridgeshire is the second to follow the approach laid out in the practical
Guide produced in 2001 by the Papworth Trust and Habinteg Housing
Association. The aim is to assess the current and unmet need for alternative,
accessible housing, home adaptations and support or care services among
those who use wheelchairs. The project relates to all age groups, part-time
and full-time wheelchair users and people across all housing tenures and
types of accommodation.

The method has four stages:
Stage 1       Population estimates
Stage 2       Mapping of supply of accessible housing and known demand
Stage 3       Survey of need for housing, adaptations and support or care
Stage 4       Estimates of current and unmet need

These stages are graphically represented in the ‘house model’ (Figure 1.1).
The method takes you through from Frame 1 to Frame 16, starting with the
number of wheelchair users living in the area and ending with an estimate of
the unmet need for local authority and housing association homes. The
detailed methods used to obtain the information are explained in the relevant
chapters of this report.

The survey and statistical analysis were substantiated by views of wheelchair
users, disability groups and professionals expressed through a series of focus
groups.

The full findings of the needs assessment are given in the management report
(chapter 6). The summary findings presented below relate only to the selected
figures produced for the completion of the model. Further explanation and
comment on the figures is given in the relevant chapters.

   Frame 1. The estimated number of wheelchair users in the Cambridge and
    South Cambridgeshire area is 5,957. This is 2.5% of the local population
    with estimated ages of wheelchair users as follows:
                 74% of wheelchair users are aged 65 or over
                 18% are aged from 35 to 64
                 4% are aged from 18 to 34
                 4% are aged 0-17.

   Frames 2 and 3. There are 645 properties, in general needs stock owned
    by the local authority and housing associations, which are known either to
    be purpose-designed for wheelchair users or to have some degree of
    accessibility. This includes properties which have been significantly or
    moderately adapted, Lifetime Homes and houses built to the standards laid
    down in Part M of the Building Regulations. There are also 584 fully or
    partially accessible properties in sheltered and supported housing owned
    by the local authority or housing associations. This is likely to be an under-
    estimate of supply in view of some of the difficulties housing providers had
    in providing this information.

                                                                                 1
   Frame 4. The number of fully or partially accessible properties reported to
    be available for letting over twelve months is estimated at 301, or 24% of
    the accessible housing stock. This relatively high percentage reflects that
    many new properties are now being completed to higher standards of
    accessibility.

   Frame 5. The number of housing applicants known to be waiting for
    accessible properties is reported to be 154. This figure is likely to include
    those wanting fully wheelchair accessible housing only.

   Frame 6. The local authority and housing associations do not have data on
    the percentage of accessible properties which accommodate households
    without a wheelchair user.

   Frames 7 and 8. The number of home adaptations (£500+) carried out for
    tenants who are wheelchair users over twelve months is estimated at 68. A
    further 14 Disabled Facilities Grants over £500 were awarded to people
    using wheelchairs and living in privately owned accommodation.

   Frame 9. Just over two-thirds of wheelchair users (4,042) have suitable
    housing and support and do not wish to move or to obtain additional help.

   Frame 10. A little under one in ten of the wheelchair users (469) need to
    move to alternative accommodation. The most frequently mentioned
    reason for wanting to move is that the design of the current home is
    unsuitable. The main preference is for bungalows.

   Frame 11. Almost a quarter of wheelchair users (1,046) require adaptations
    to their current home. The most frequently mentioned adaptations needed
    are ramps to the entrance and level access to the garden/outdoors.

   Frame 12. A relatively small number of wheelchair users (301) need extra
    support or care services in their current housing. Domestic assistance
    (cleaning, shopping, food preparation etc) and help with transport/mobility
    are the most frequently mentioned needs for extra support.

   Frame 13. The number of people who need extra support and care
    services, including all those who want to move and will need additional
    support when they do so, is estimated at 466.

   Frame 14. The number of people who need home adaptations and who will
    not obtain such adaptations within twelve months is estimated at 702.

   Frame 15. The number of people who require more accessible alternative
    housing, and who wish to move because their home design is unsuitable or
    they want to live more independently, is estimated at 469. This includes
    people wanting privately owned accommodation as well as those looking to
    the local authority or housing associations.

   Frame 16. The number of people who need accessible local authority or
    housing association homes and who will not obtain such housing within
    twelve months is estimated at 168.

                                                                                    2
Recommended actions

   The Local Authority housing strategies; the Cambridge Sub-Regional
    Housing Strategy and the Regional Housing Strategy should recognise the
    figure for unmet housing need (Figure 1.1, Frame 16) and seek ways of
    increasing the supply of accessible housing and improving the efficiency of
    letting adapted properties. The Councils should also work with private
    developers to increase the number of accessible new homes in the private
    sector (Note – The Greater London plan recommends 50% of new housing
    to be built to Lifetime Home Standards and 10% to be fully wheelchair
    accessible including new private sector housing).

   There should be more accurate records of the supply of accessible and
    adapted housing within Cambridge and South Cambridgeshire. In
    particular, local housing providers need to improve their knowledge of
    properties that are designed to mobility standards or that have been
    significantly or moderately adapted.

   The number of accessible or adapted properties let or re-let each year
    should also be recorded by individual housing providers and monitored by
    the Councils, as these figures establish the availability of such properties
    as a baseline for assessing housing need.

   Bungalows remain the accessible property of choice for wheelchair users.

   Children and young people who use wheelchairs appear to be relatively
    neglected groups. The use requirements of the whole family need to be
    recognised when designing for households that include a child who is a
    wheelchair user.

   Housing lettings policies should recognise that some disabled people
    require a larger property in order to accommodate a personal assistant.

   There is a continuing high demand for adaptations to make properties more
    accessible (Figure 1.1, Frame 14). Housing associations are currently
    offering a very low level of adaptations work. This issue should be
    investigated to see if housing association tenants are disadvantaged.

   The number of disabled facilities grants and housing association
    adaptations carried out for wheelchair users should be monitored – as
    should adaptations for wheelchair-using council tenants. This will aid an
    understanding of the respective contribution that adapting existing homes
    can make in comparison with new build fully wheelchair accessible
    housing.

   The need for additional support or care services is significantly lower than
    the need for adaptations (Figure 1.1, Frame 13), but attention should be
    given to the particular needs of those who want to move and will require
    extra support when they do so.




                                                                                   3
Figure 1.1
                      Pathways to accessible housing in
                          Cambridge City and South
                              Cambridgeshire



     16.                 15.                14.               13.
     Current             Current            Unmet need        Current and
     unmet need          housing need       for               anticipated
     for local           (all tenures)      adaptations       need for
     authority and                          (all tenures)     support and
     HA housing                                               care services

         168                  469                702              466



     9.                  10.              11.               12.
     Housing and         Need to move     Need for          Need for extra
     support/care        to alternative   adaptations in    support/care in
     appropriate         housing          current housing   current housing




         4052                 469              1046              301



     8.                7.                 6.                5.
     Number of         Number of          Percentage of     Number of
     private sector    local authority    accessible        housing
     adaptations       and HA             properties with   applicants
     (DFGs) –          adaptations –      no wheelchair     (new and
     12 months         12 months          users             transfer)

          14                 68                 28               154



     1.                2.                 3.                4.
     Population of     Accessible         Accessible        Vacant and new
     wheelchair        local authority    sheltered and     accessible
     users             and HA             supported         properties
                       properties –       housing –         available –
                       total supply       total supply      12 months

         5889                645               584               301




                                                                              4
2. Number and age of wheelchair users

The first figures to be produced for the planning model are the total population
of wheelchair users and the numbers in different age groups. The method
used takes the number of people supplied with NHS wheelchairs and makes
adjustments for those who use a private provider instead (estimated at 2%)
and those who are no longer using the chair supplied (estimated at 1%). The
estimates were made by the NHS Wheelchair Services.

This gives an estimated population of 5,889 wheelchair users (2.5% of the
total population of 238,966). The breakdown by age based on information
provided by the NHS Wheelchair Services, and is shown in Figure 2.1.


Figure 2.1 – Age of wheelchair users in Cambridge City and South
Cambridgeshire


            Age                Number (% of all wheelchair users)

            0-17               235    (4%)

            18-34              235    (4%)

            35-64              1060   (18%)

            65+                4359   (74%)




                                                                                   5
    3. Accessible housing – supply and demand

    The figures on the supply of accessible housing and known demand are
    obtained through a postal survey of all registered social landlords (housing
    associations) and the local authority housing departments. Survey forms were
    sent to the thirty housing associations known to have property in the area. Of
    these, twenty four responded. The supply figures are therefore likely to be on
    the low side.

    There are three levels of accessibility defined for the needs assessment (see
    appendix A). These are:

            Fully wheelchair accessible housing
            Significantly adapted or mobility housing
            Moderately adapted housing, Lifetime Homes or ‘Part M’ housing

    There is a total of 43 general needs properties known to be fully wheelchair
    accessible, plus a further 91 units in sheltered and 366 in supported housing.
    The combined totals for the other, more modest levels of accessibility are:
    general needs – 602; sheltered – 72; supported housing – 55. This gives an
    overall total of 1229 properties built to certain defined standards of
    accessibility or adapted for a specific tenant (Figure 3.1). This is approximately
    6.5% of all properties in the area owned by the local authority or housing
    associations.


    Figure 3.1 – Supply of accessible housing in Cambridge and South
    Cambridgeshire

          Level of               General needs        Sheltered          Supported
        accessibility              housing             housing            housing
Fully wheelchair accessible            43                 91                 366
Significantly adapted or
                                       46                  0                  48
mobility standard
Moderately adapted,
                                       556                72                  7
Lifetime Homes or ‘Part M’
All levels                             645               163                 421


    The figures suggest that Cambridge and South Cambridgeshire has a
    relatively low supply of accessible housing, as Housing Corporation figures
    nationally show that 1.6% of housing association properties are designed to
    full wheelchair standard and 12.4% reach the level of ‘general accessibility’.
    However, the responses from both housing associations and the local
    authority indicate that accurate and up-to-date information on the number, type
    and location of accessible and adapted properties is not generally held by the
    individual housing providers. It is possible, therefore, that the figures, in
    particular for adapted properties and those that are not fully wheelchair
    accessible, under-estimate the supply.




                                                                                     6
The total number of accessible and adapted properties known to have been let
over twelve months to new tenants, or people transferring from other
properties within the same organisation, is 301. This is 24% of the 1229
accessible properties identified, a much higher figure than the 6.25% national
figure given by the Housing Corporation for the annual rate of re-lets of
wheelchair standard properties.

The planning model asks for the number of adaptations carried out over twelve
months for tenants who are wheelchair users and for other people, also
wheelchair users, living in private accommodation. Five of the housing
associations responding to the survey said that they had carried out an
adaptation costing over £500, with four of the five undertaking more than one
adaptation. This represents a relatively good response compared with
previous research in other areas as part of the piloting of the Pathways Model.
Cambridge City Council reported doing 84 adaptations over £500 in its own
properties, but had no record of how many were for wheelchair users. The
local authority also paid out 93 Disabled Facilities Grants over £500 to people
in private sector housing. South Cambridgeshire carried out 104 adaptations
over £500 in its properties, 34 of which were for wheelchair users. It paid out
72 Disabled Facilities Grants and an estimated 6 were to wheelchair users.




                                                                              7
4. Survey of housing and support needs

The quantitative information on the needs of wheelchair users for suitable
housing and support services is collected through a postal survey of people
who have been supplied with wheelchairs by the NHS Wheelchair Service. In
addition, the method involves interviews with individual wheelchair users
contacted through local voluntary organisations or service providers. These
interviews, which are reported on in chapter 5 of this report, give qualitative
data against which to assess the quantitative information obtained through the
wider postal survey. They also provide details of people’s experiences and
their views on current provision and services.

The survey questionnaire was sent to 1350 people, across all age groups. The
sample selection was carried out by staff of the NHS Wheelchair Service,
which serves the Cambridge and South Cambridgeshire areas. While this
method of sampling excludes those who do not use the NHS service, the NHS
Wheelchair Services indicated that this group constitutes only a very small
percentage of all wheelchair users. It is not possible to include private
suppliers of wheelchairs in the needs assessment, for two reasons: firstly,
some people will have both an NHS wheelchair and a privately-owned chair
and so could be double-counted; and secondly, issues of commercial
confidentiality come into play when requests are made for detailed figures on
wheelchair use and supply.

The response rate to the survey was 44% (589 people), which is good for a
postal questionnaire. The age breakdown of the sample shows that the
number of people aged 65 and over matches the national figures (51%), is
lower than the national figures (66.2%), while the 35-64 age group (36%) is
lower than the sample (22% nationally). The two younger age group samples
are similar to national figures (Figure 4.1).

Figure 4.1 - Age of respondents


                60
                                                         52
                50

                40                         36
   Percentage




                30

                20

                10    6      6

                0
                     0-17   18-34         35-64         65+
                                    Age




                                                                              8
The gender breakdown of respondents (63% female and 37% male) is similar
to the national figures for wheelchair users, which indicate that 64% are female
and 36% male (Figure 4.2). The ethnic origin of respondents is given in Figure
4.3.

Figure 4.2 – Gender of respondents


                                 Gender of Respondents




                                                                  Male, 37%

                Female, 63%




Figure 4.3 – Ethnic origin

                      91.17
                100

                 80
   Percentage




                 60

                 40
                              2.55   0   0.17   0     0.17 0.68 0.85   0   0.34 1.19
                 20

                  0
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                                                    Ethnicity



The great majority of respondents are either retired (53%) or long term sick or
disabled (31%). Twenty-four people in the sample say that they are in full-time
or part-time employment.

In response to the question on how much they use their wheelchair, just under
a third (30%) say that they use it all the time. The majority report using their
wheelchair some of the time (both inside and outside) 18%, or outside only
52% (Figure 4.4). The figures for part-time wheelchair use in Cambridge and


                                                                                       9
South Cambridgeshire are considerably higher than those reported in the
earlier pilot Pathway studies.

Figure 4.4 – Use of wheelchair


                      60                                                                                            52
                      50
         Percentage



                      40
                                       30
                      30
                                                                              18
                      20
                      10
                       0
                           Use a wheelchair all the           Use a wheelchair some Use a wheelchair outside
                                    time                            of the time              only
                             (inside & outside)                 (inside & outside)
                                                                  Use of Wheelchair



The survey includes a number of questions about respondents’ current
housing situation, the accessibility of their home and their level of satisfaction.

A third of the respondents (23%) live on their own. Approximately half of the
respondents live with a partner only (43%) or with a partner and children (11%)
(Figure 4.5).

Figure 4.5 – Types of household

                      50                     43
                      45
 Percentage




                      40
                      35      23
                      30
                      25
                      20                                        11
                      15                                                                          11
                                                                                                                                 5
                      10                                                            4                                 3
                       5
                       0
                                                                                                              accommodation
                                                                                                                  relatives in
                                                                               With children




                                                                                                                                 Not stated
                                                                                               With parents
                                                              With partner
                                                              and children




                                                                                               and/or other



                                                                                                                  With non-

                                                                                                                     shared
                                                                                      only
                                            With partner or




                                                                                                 relatives
                              On own




                                               friend only




                                                                             Household



Almost 73% of respondents live in their own/joint home, including both owner-
occupied and rented accommodation. The next largest groups are living in
sheltered housing (7%) or (in the home of parents, relatives or friends 9%).
More than half of the 18-34 age group live in the home of parents etc, while
18% of the people aged 65 and over live in sheltered housing. A very small
proportion (3%) live in supported housing, (Figure 4.6).




                                                                                                                                              10
                                                                                                                                       Percentage                                                                                            Percentage


                                                                                                                                                                                                                                             20
                                                                                                                                                                                                                                                  40
                                                                                                                                                                                                                                                       60
                                                                                                                                                                                                                                                            80




                                                                                                                                                                                                                                         0




                                                                                                                                      20
                                                                                                                                             40
                                                                                                                                                    60




                                                                                                                              0




     Figure 4.8.
                                                                                                                                                                                                              Live in own/joint home
                                                                                                                                                                                                                                                             73




                                                                                                         Owner occupied                                                                                         (owned or rented)




                                                                                                                                                    50
                                                                                                         housing/buying
                                                                                                         on a mortgage
                                                                                                                                                                                                            Live in own/joint home
                                                                                                                                                                                                                                             7




                                                                                                                                                                                                             (sheltered housing)
                                                                                                         Local authority
                                                                                                            tenancy




                                                                                                                                             30
                                                                                                                                                         Figure 4.7 – Housing tenure
                                                                                                                                                                                                            Live in the home of
                                                                                                                                                                                                                                             9




                                                                                                                                                                                                         parents/relatives or friends

                                                                                                       Housing association




                                                                                                                                      9
                                                                                                            tenancy
                                                                                                                                                                                                                   Live in supported
                                                                                                                                                                                                                                             3




                                                                                                                                                                                                                        housing
                                                                                                                                                                                                                                                                  Figure 4.6 – Current housing circumstances




                                                                                                            Private landlord




                                                                                                                                  3
                                                                                                                                                                                       Current Housing




                                                                                                                tenancy                                                                                       Live in a residential or
                                                                                                                                                                                                                                             2




                                                                                      Housing Tenure
                                                                                                                                                                                                                  nursing home




                                                                                                                                  1
                                                                                                       Shared ownership                                                                                        Live in NHS/hospital
                                                                                                                                                                                                                                             0




                                                                                                       (part buy/part rent)                                                                                      acccommodation



                                                                                                              Other (please                                                                              Live with parents/relatives




                                                                                                                                  2
                                                                                                                                                                                                                                             1




                                                                                                                specify)                                                                                  & stay at school/college
                                                                                                                                                                                                                                             5




     accommodation (Figure 4.7). The types of accommodation are shown in
                                                                                                                                                                                                                  Not answered
                                                                                                               Not stated         5




     50% of respondents live in owner occupied housing, while a further 39% are
     local authority or housing association tenants. Only 3% live in private rented




11
Figure 4.8 – Type of accommodation


                 60      50


    Percentage
                 40                              31


                 20                                                 9
                                                                                                     1                         3                                                  1                    2                               2.5
                                                                                                                                                       0.5

                  0




                                                                                               floor or above without




                                                                                                                                                                                                       Other (please specify)
                      (detached/semi/terrace)




                                                                                                        access by lift
                                                                floor flat or with access


                                                                                               Flat/maisonette - 1st
                                                              Flat/maisonette - ground




                                                                                                                                                          Flat/own room in
                                                                                                                                 Flat bungalow in




                                                                                                                                                                             Residential or nursing




                                                                                                                                                                                                                                        Not answered
                                                                                                                                                        supported housing
                                   House




                                                                                                                               sheltered housing
                                                  Bungalow




                                                                                 by lift




                                                                                                                                                                                         home
                                                                                            Type of Accommodation




19% of respondents say that their home is fully wheelchair accessible. Much
more commonly, the home has no adaptations at all for wheelchair use (38%)
or it has been adapted to some degree (26%) (Figure 4.9).

Figure 4.9 – Accessibility of home, by age and gender
Q10. Design of home

 Accessibility                                  Age                                                                                                 Gender
 counts                                         Age          Age                             Age
 %columns                                       0-           18 -                            35 -                        Age                        Not
                                                17           34                              64                          65+                        answered                 Male                     Female                                 Total
 Fully wheelchair                                 0            2                              11                          23                                        0         14                         22                                    36
 accessible                                       0%          12%                             13%                         11%                                       0%        12%                        12%                                   12%
 Significantly                                    1            4                               9                          11                                        0         12                         13                                    25
 adapted for                                     33%          25%                             11%                          5%                                       0%        11%                          7%                                   8%
 wheelchair use
 Moderately adapted                               1            4                              15                          35                              1                          21                                          33                     55
 for wheelchair use                              33%          25%                             18%                         17%                           100%                         18%                                         17%                    18%
 No adaptations made                              1            5                              45                         120                              0                          60                                         111                    171
 at all for wheelchair                           33%          31%                             54%                         59%                             0%                         53%                                         58%                    56%
 use
 Not answered                                      0           1                               4                          13                                        0          7                                                 11                     18
                                                   0%          6%                              5%                          6%                                       0%         6%                                                 6%                     6%
 Total                                             3          16                              84                         202                                        1        114                                                190                    305


The satisfaction of respondents with the design and location of their home is
shown in Figures 4.10 and 4.11. These questions relate specifically to the
accessibility of the accommodation and the local area, in terms of people’s
ability to get around and use facilities (within the home) or local amenities.



                                                                                                                                                                                                                                                          12
Figure 4.10 – Satisfaction with design and layout of home

               40
                                                                                      32


  Percentage
               30                                           25

               20                 17                                                                         16

               10                                                                                                                                              6
                                                                                                                                       4
                     0




                                                                                                                                     dissatisfied
                                                                                                                                     Extremely




                                                                                                                                                             response
                                                                                     satisfied
                                 Extremely




                                                                                                             Not very
                                                                                                             satisfied
                                                           satisfied
                                  satisfied




                                                                                      Quite
                                                             Very




                                                                                                                                                                No
                                                                            Design of Home




Figure 4.11 – Satisfaction with location of home




                            40                                                                   36
               Percentage




                            30                                           22
                                                                                                                         17
                            20                 13
                                                                                                                                                                   8
                            10                                                                                                                      4
                             0
                                              Extremely
                                               satisfied




                                                                                                                                                                 response
                                                                       satisfied




                                                                                                                         Not very
                                                                                                                         satisfied
                                                                                                 satisfied




                                                                                                                                              dissatisfied
                                                                                                                                              Extremely
                                                                         Very




                                                                                                  Quite




                                                                                                                                                                    No


                                                                                   Location of Home



The survey also asks whether respondents receive regular home care services
(domestic help) or personal care (help with getting up, bathing etc). In answer
to these questions, 70% say they receive home care and 64% say they
receive personal care. The survey does not enquire about the source of such
assistance (whether privately purchased, provided through public funding or
given informally by relatives or friends). In response to a further question, 62%
say they do not have regular visits from social care or health professionals
(e.g. district nurse, social worker).




                                                                                                                                                                            13
Figure 4.12 – Home care


                   Receiving regular Home Care




           Yes 70%

                                           No 30%




Figure 4.13 – Personal care


                Receiving regular Personal Care




             Yes 64%


                                          No 36%




                                                    14
Figure 4.14 – Visits from social care or health professionals


                      70                                                                              62


         Percentage
                      60

                      50

                      40

                      30
                                                                                                                     20
                      20                                                              11
                                                                          4
                      10          2                 1

                       0
                                Yes – once




                                                                                                                      No response
                                a week or




                                               Yes – between
                                               once a week &




                                                                      Yes – once




                                                                                   Yes – once




                                                                                                      No
                                                                                   every 6-12
                                               once a month




                                                                       every 3-6
                                  more




                                                                        months




                                                                                    months
                                               Visits from Care/Health Professionals



The responses to the key question on the need for suitable housing and
support show that almost two thirds (66%) think that their current housing and
support services (if any) are fully appropriate. 18% say they need adaptations
to their present housing and a small number (6%) say they need extra support
or care services. This leaves fifty-seven people in the sample of 589 (10%)
who say their housing is not satisfactory and they need to move (Figure 4.15).

Figure 4.15 – Need for housing, adaptations and support

                                        66
                           80

                           60
 Percentage




                           40
                                                                                           18
                           20                                        10                                          6

                            0
                                   Housing &                    Housing is not      Do not need to         Do not need to
                                support are fully                suitable and         move but do            move but do
                                 adequate and                  need to move to           need              need extra care
                                 do not need to                  alternative         adaptations to         and support in
                                     move                         housing           current housing          current home


                                                                   Current Position




                                                                                                                                    15
Among those who say they need to move, nearly a half (46%) want a move
involving the whole household, while in 23% of cases it is the wheelchair user
only who needs to move (Figure 4.16).

Figure 4.16 - Who needs to move


                   60                                                                                     46
      Percentage



                                                                                                                                                                                                                                 29
                   40
                                                 23

                   20
                                                                                                                                                                               2

                    0
                                                 Wheelchair
                                                  user only




                                                                                                                                                                                                                                    Non-respondents
                                                                                                          in the household
                                                                                                          Wheelchair user
                                                                                                          & everyone else




                                                                                                                                                        Wheelchair user


                                                                                                                                                        household (but
                                                                                                                                                        & one or more


                                                                                                                                                         not everyone)
                                                                                                                                                          others in the
                                                                                                          Who needs to move


Figure 4.17 - Reasons for needing to move


                   50   45

                   40
 Percentage




                   30

                   20                                             11                                                                                                                                                             11
                                                                                                             9
                                                      6                              6                                                                   6
                   10                                                                                                                                                                                         4
                                                                                                                                           2                                        0
                    0
                                                                                                                                                                                   Want to change tenure
                                                                                                               Need a larger home

                                                                                                                                    Want to live with




                                                                                                                                                           Need more support




                                                                                                                                                                                                                                 Other
                        Design of current home




                                                                                    Need a smaller home




                                                                                                                                                                                                           Want to live nearer
                                                   Location

                                                              Want to live more




                                                                                                                                       partner
                                                               independently




                                                                                                                                                                                                                 family




                                                                                  Reasons need to move



The main reason given for needing to move is that the home is unsuitable for
wheelchair use. The next most frequent reasons are the wish to live more
independently and the need for a larger home (Figure 4.17). When asked
what type of accommodation they would like, the great majority of those
needing to move (72%) say they would like a bungalow (Figure 4.18).




                                                                                                                                                                                                                                                      16
Figure 4.18 - Type of accommodation wanted

                                                                 72
                          80


             Percentage
                          60

                          40

                          20      7                                                                           4                                                       4                 5            6
                                                                                        2                                                  0
                           0




                                                                                                                                                                   Residential or




                                                                                                                                                                                             Other
                                                                                                                                                                   nursing home
                                                                                                                              Flat/maisonette
                                                                  Bungalow




                                                                                                                                                                                                     Non-respondents
                                                                                                          sheltered housing
                                       (detached/semi/terrace)




                                                                                                                                                in supported
                                                                                                          Flat/bungalow in
                                                                                        Flat/maisonette




                                                                                                                                                  housing
                               House




                                                                             Type of accommodation would like




49% of those who say they need to move also report that they need fully
wheelchair accessible accommodation (Figure 4.19). 26% opt for
accommodation that is significantly or moderately adapted for wheelchair use.

Figure 4.19 - Level of accessibility required


                          60           49


                          40
Percentage




                                                                                                               21
                                                                                                                                                                                                          11
                          20                                                                                                                                                        9
                                                                                 5                                                                      5


                           0
                                                                              wheelchair use




                                                                                                          wheelchair use




                                                                                                                                                                                                                Non-respondents
                                                                               Significantly
                                    wheelchair




                                                                               adapted for




                                                                                                                                                                                    Don’t know
                                                                                                                                                 No adaptations

                                                                                                                                                 wheelchair use
                                                                                                            adapted for
                                                                                                            Moderately




                                                                                                                                                 made at all for
                                   accessible
                                      Fully




                                                                                     Level of accessibility would like



When asked whether they would need additional support or care services if
they move, just over a third say they would need such services (Figure 4.20).




                                                                                                                                                                                                                                  17
Figure 4.20 - Extra care and support required

                     Extra care and support required



                    No 53%




                                                Yes 35%




The survey asks those who need adaptations to their home what kinds of
adaptations they require. The most commonly mentioned adaptations are:
ramps and level access; nearly one quarter of those needing adaptations
(23%) say they do not know where or how to apply (Figure 4.22).

Figure 4.21 - Adaptations and equipment required

         Adaptations               Percentage

       Installing stair lift          48

  Ramps to entrance of home           43

             Other                    42

         Level access to
                                      35
         garden/outdoors
 Installing downstairs toilet or
                                      21
            bathroom
 Installing rails in bathroom or
                                      18
               toilet
    Adjusting the height of
 electrical switches and power        13
             sockets
   Installing an entry system         12

 Adjusting the height of kitchen
                                      12
  equipment and appliances
    Adjusting the height of
                                      12
      surfaces in kitchen

       Installing an alarm            10




                                                                          18
Figure 4.22 - Steps taken to get adaptations

        Q28 Applied yet                    Percentage
  No - not sure where or how to
                                               23
              apply
        Non respondents                        18
Yes - applied to local authority or
                                               16
       Housing Association
No - haven't applied yet but intend
                                               12
  to apply for grant/assistance
              Other                            11

 No - will be arranging and paying
                                               11
          for them privately
   Yes - applied for a Disabled
                                               5
           Facilities Grant
 Yes - agreed and now waiting for
                                               4
           work/installation
     Yes - agreed and work in
                                               0
               progress

The main additional services required by those who say they need extra
support are home care (domestic services) and help with transport and
personal care (Figure 4.23). 40% of those needing extra support say they also
need adaptations to their home (Figure 4.24).

Figure 4.23 - Types of extra support required

       Type of support            Percentage
 Home care (meals, cleaning,
                                      50
   cooking, shopping etc)
   Help with transport and
                                      54
           mobility
  Personal care (getting up,
                                      50
      bathing, eating)
   Nursing care (changing
                                      18
  dressings, injections, etc)

  Other support or assistance         25

 Help with managing finances          25

    Help with developing
                                      14
   domestic/practical skills
 Social support and help with
                                      32
    developing activities
  Help in gaining access to
                                      11
   work/training/education




                                                                            19
Figure 4.24 – Adaptations required by those needing extra support


                 Any adaptations or equipment




                                               Yes 40%


            No 60%




                                                                    20
5. Views of Wheelchair Users; Social Care; Health; and Voluntary Sector
   Staff

The following is a collection of views expressed by those participating in focus
groups held as part of the project.

Older People

      Daughter able to easily arrange “home help”

      Sister of wheelchair user able to arrange a move from 1 st floor London
       flat to Anchor sheltered housing scheme in Cambridge – “a bit of a wait
       (one year) – but they managed”.

      Referred to a “Safer Homes” agency who arranged for grab rails to be
       fitted in the bathroom.

      The Council arranged for a friend to move from a first floor maisonette
       to a nearby ground floor flat having become a wheelchair user. New flat
       fully adapted to meet his needs

      A woman is having to wait for the Council to install a ramp to her front
       door.

      A wheelchair user living in a sheltered housing scheme finds the front
       doors very heavy.

Children

      Policies - Housing needs to be put onto policymaker’s agenda. There
       seems to be a major mismatch between what is needed and what is
       being built or available; both within the social and private housing
       sectors. Policies regarding the points system are seen as unfair.
       Building Regulations can be inflexible and not allow for special needs.
       Legislation needs changing to reflect the needs of disabled children and
       housing.

      Design - Children want to be as independent as possible. All children
       need access to a bedroom as their own private space whether they
       have disabilities or not. Good design has to reflect the long term needs,
       this needs to include space for equipment and storage. New build
       properties need to have ‘disability factors’ designed in from the
       beginning. Children need an advocate in the design process.

      Planning for adaptations/new build properties - Ideally there needs
       to be purpose built housing; locally there is a lack of accommodation
       and a lack of space to build. Local planning decisions need revising –
       where new developments are being planned with accessible schools,
       planners need to ensure that there is suitable housing for families with
       disabled children. Location of adapted housing can be very important.
       Housing Departments need to be involved early on in the care pathway



                                                                                  21
       for a child. At present it would seem in some areas that there is a lack
       of co-ordination and information.

      Other housing concerns - There is a perceived inequality in obtaining
       adaptations for children who are fostered or adopted compared with
       those children living within their own families. Concern was expressed
       that having an adaptation built onto a privately owned house could
       devalue the property. Concern also expressed that social housing can
       be located in a poor environment.


   Other

      There are real issues of different levels of service delivery depending on
       where people live. For example people living in towns and cities are
       advantaged by being able to access a wider range of services, whereas
       those living in rural areas do not have local access and need to travel to
       receive services.

      People with learning difficulties are perceived to have access to a wider
       range of support services than people with physical impairments. A
       number of reasons were cited for this. Firstly, this client group received
       a higher focus and priority as part of the programme to close
       institutions. Also the learning disability client group has traditionally
       had a more active user/advocacy support network. Physical disability
       services have had a lack of focus in the past, being subsumed as part
       of services for older people.

      There is a maze of bureaucracy that needs to be negotiated to achieve
       any form of housing solution. Comments were made such as “there
       isn’t any housing”, “it’s a nightmare for clients”, “there are no options, no
       choice”.

      The time it takes to adapt a home or achieve appropriate re-housing for
       someone who has acquired a disability is a real problem. A halfway
       house for people who have acquired a disability and are undertaking
       rehabilitation would be helpful.

“I can think of two people with MS, who are wheelchair users, and cannot even
get out of their house without being carried over awkward steps or door
ridges”.

“People cannot wait the length of time it takes before appropriate wheelchair
housing can be offered”.

“Fitting grab rails to the walls of some of the all new properties being built can
be a real problem”

“The housing needs of clients with motor-neurone disease are not well
understood. Needs can change very quickly and sometimes have to be
provided rapidly”.



                                                                                  22
6. Management report: Full survey results

This management report gives the key findings of the ‘Pathways to Accessible
Housing’ project carried out in the Cambridge and South Cambridgeshire area
in 2004. The project looked specifically at the housing and related support
needs of people who use wheelchairs.

    Population of wheelchair users

1.    The estimated number of wheelchair users in Cambridge and South
      Cambridgeshire is 5,889. This is 2.5% of the total local authority
      population of 238,966. The figure includes people who use a wheelchair
      all the time and those who do so on a part-time basis.

2.    There are an estimated 4359 wheelchair users aged 65 or over (74%). A
      further 1060 are aged between 35 and 64 (18%), 235 are aged 18-34
      (4%) and 235 (4%) are aged under 18.

    Survey of housing providers

3.    There are 43 homes known to be fully wheelchair accessible in general
      needs housing owned by the local authority or housing associations
      (Registered Social Landlords - RSLs).

4.    In addition to the fully wheelchair accessible homes within general needs
      housing, there are an estimated 46 which are to mobility standard or
      significantly adapted and 556 which are moderately adapted, designed to
      Lifetime Homes standards or meet the requirements of Part M of the
      Building Regulations.

5.    Sheltered housing for older people. The current supply is estimated to
      comprise 91 fully wheelchair accessible properties, 0 that is significantly
      adapted or to mobility standard and 72 that are moderately adapted,
      Lifetime Homes or ‘Part M’ standard.

6.    Supported Housing. The total supply is estimated as 421 made up of 366
      fully wheelchair accessible, 48 significantly adapted or to mobility
      standard, and 7 moderately adapted, Lifetime Homes or ‘Part M’
      standard.

7.    The number of accessible homes in general needs housing which have
      been let or re-let by the local authority or RSLs over twelve months is
      301.

8.    The number of housing applicants known to be needing a home with
      some degree of accessibility is 469.

9.    The percentage of fully wheelchair accessible properties in local authority
      and RSL stock which is occupied by households with no wheelchair user
      has not been estimated as no figures are available.




                                                                                    23
10. The number of housing adaptations carried out for wheelchair user
    tenants by the local authority and housing associations over twelve
    months is 40.

     A further 6 people who use wheelchairs have had major adaptations to
     their privately owned homes through a Disabled Facilities Grant.

   Survey of wheelchair users

11. A postal questionnaire was sent to 1350 wheelchair users, of which 588
    were returned (44% response).

12. Age, gender, ethnicity and employment status. The majority of the
    respondents (52%) are aged 65+, with 36% aged between 35 and 64, 6%
    between 18 and 34 and 6% under 18. The majority of those responding
    (62%) are female. Almost 91% of the respondents define their ethnicity as
    ‘White UK’, with 2.5% describing themselves as White European. Only
    4% of the respondents are in full-time or part-time employment.

13. Wheelchair use. Nearly two thirds of the respondents (52%) use a
    wheelchair outside only. The second largest group (30%) use a
    wheelchair all the time.

14. Living circumstances. 23% of respondents live on their own.

15. Tenure and type of accommodation. 73% of respondents live in their
    own/joint home. 7% per cent live in sheltered housing and 9 % are in the
    home of parents, relatives or friends. 50% of all respondents are in owner
    occupied housing, with 39% being local authority or housing association
    tenants.

16. Design of property. Only 19% of respondents have fully wheelchair
    accessible housing. 38% say that no adaptations have been made for
    wheelchair use.

17. Satisfaction with design and location. Overall, 42% of respondents are
    extremely or very satisfied with the design and layout of their home and
    another 32% are quite satisfied. The levels of satisfaction with the
    location of the home follow a very similar pattern.

18. Use of care and health services. 30% of all respondents do not receive
    any home care services and 36% do not receive personal care services.
    62% of the respondents are not visited by social services or health staff.

19. Need for alternative housing, adaptations or support and care services.
    The majority of respondents say that their current housing and support
    are fully appropriate. 10% need to move, 18% need adaptations to their
    current housing and 6% need extra support in their current housing.

20. People who need to move. Where people express a need to move to
    other housing, 23% require accommodation for themselves only, while
    46% need a move for the whole household. The most common reasons


                                                                               24
     are: the design of their current housing is not suitable for wheelchair use
     (45%) and the person wants to live more independently (11%).

21. Type of housing preferred. A bungalow is the preferred choice of housing
    for 72% of those needing to move. 49% say they need fully wheelchair
    accessible housing, while 26% require housing that is significantly or
    moderately adapted for wheelchair use.

22. People who need adaptations. Where people are not seeking to move but
    say they require adaptations to their current housing, the most commonly
    mentioned adaptations are: entrance ramps and level access;. Twenty
    three per cent of the people who need adaptations say they are not sure
    where or how to apply.

23. People who need extra support or care services e.g. Among those who
    need extra support to stay in their home, home care (domestic services)
    help with mobility and transport; and personal care are the most
    frequently mentioned type of additional support required.

   Estimates of need for accessible housing and support

24. Once the results of the survey of wheelchair users have been weighted
    for age and applied to the total population of wheelchair users in
    Cambridge and South Cambridgeshire, the estimate for the number of
    people requiring additional support or care services is 466 (Box 13 in
    Pathways model).

25. The estimated number of people currently needing housing adaptations,
    including all tenures, is 702 (Box 14 in Pathways model).

26. The estimated number of people currently needing to move to alternative
    housing, including all tenures, is 469 (Box 15 in Pathways model).

27. The estimated number of people who currently need an accessible local
    authority or housing association property and whose need will not be met,
    given the present rate of supply, is 168 (Box 16 in Pathways model).




                                                                               25
                                                                    Appendix A

                       Pathways to Accessible Housing:
                          Definitions of accessibility



Fully wheelchair accessible housing

This definition is based on the Housing Corporation’s Scheme Development
Standards, as laid out in the Wheelchair Housing Design Guide (Construction
Research Communications, 1997).

       1. High degree of accessibility within the housing development
       2. Spaces within the area of the home are accessible, useable and, where
           appropriate, secure
       3. Ease of approach to the home by car, wheelchair or intermediate vehicle
           with good cover and protection at entrance and point of transfer
       4. Entrance doors can be operated and negotiated independently, whether
           entering or leaving
       5. Wheelchair users can: approach and open door, enter, transfer from
           outdoor to indoor chair, leave outside chair on charge
       6. Direct connection to external spaces by an easily opened but secure door
       7. Wheelchair users can conveniently manoeuvre, approach and negotiate all
           doors within the circulation area and approach and use storage space
       8. Wheelchair users can move between floor levels, if necessary, without the
           need to transfer and without restriction to space
       9. Living and bedrooms can accommodate the normal range of furniture,
           while allowing the wheelchair user to approach and transfer to beds,
           operate windows etc.
       10. Ease of approach to, and use from a wheelchair of the sink, worktops,
           equipment, appliances, controls and all kitchen storage
       11. Independent approach and safe transfer to all bathroom fittings. Choice
           between shower or bath, or both
       12. All internal doors can be operated conveniently
       13. Independent control of windows, passive and mechanical ventilation.
           Balance of daylight, views out, privacy and security
       14. All essential controls are accessible and easily manipulated or operated


Significantly Adapted or Mobility Standard Housing

This includes properties which have been designed to high levels of ‘visitability’, but
not to full wheelchair accessible standards. The category of ‘mobility housing’ is now
less widely used, as new categories have been introduced (see below). ‘Significantly
adapted’ properties are those that have had major structural adaptations, usually to
allow a particular wheelchair user to live in and make proper use of the home. They
should have a good proportion of the features outlined above for fully wheelchair
accessible housing. Examples include: a property which has had an extension or re-
design of the ground floor to allow for an accessible WC, bathroom or bedroom; and a
property which has had major alterations to the kitchen to enable it to be fully used by
the occupier.




                                                                                      26
Moderately Adapted, Lifetime Homes or ‘Part M’

   Moderately adapted homes have been adapted to a lower standard of
    accessibility and have fewer of the features of fully wheelchair accessible housing
    than those in the previous category (significantly adapted).

   Lifetime Homes - definition from Building Lifetime Homes, Joseph Rowntree
    Foundation, 1997:

    1.  Where car parking is adjacent, it should be capable of attaining 3.3m width
    2.  Minimum distance from car parking to home, level or gently sloping
    3.  Approach to all entrances level or gently sloping
    4.  Illuminated entrances with level threshold and covered main entrance
    5.  Accessible lift, where provided
    6.  Width of doorways and hallways to accord with established accessibility
        standards
    7. Space for turning of wheelchair in kitchens, dining areas and sitting rooms and
        adequate circulation space elsewhere
    8. Sitting room/family room at entrance level
    9. In houses with two or more storeys, ground floor space that could be used as
        bed space
    10. Wheelchair accessible downstairs WC and drainage to provide for a shower to
        be fitted at a later date
    11. Walls capable of taking handrails etc
    12. Provision for a future stair lift and space for the installation of a through-floor
        lift to the first floor
    13. Bathroom/bedroom ceiling strong enough to support a hoist. Provision for a
        connecting floor to ceiling door to allow passage of hoist between bedroom
        and bathroom
    14. Bathroom layout designed for ease of access to the bath, WC and wash basin
    15. Living room glazing to begin at 800mm or lower and windows easy to operate
    16. Switches, sockets and service controls at a height of between 600mm and
        1200mm from the floor

   Part M (Building Regulations, 1999 – applying to all new flats as well as houses)

    1. Level or ramped approach to the house, at least 900mm wide
    2. Accessible entrance threshold
    3. Entrance door with a minimum clear opening of 775mm
    4. WC at entrance level with access for wheelchair users
    5. Corridors and hallways at entrance level sufficiently wide for circulation
    6. No changes of level in entrance storey using steps (except on steeply sloping
       plots)
    7. Switches and sockets sited between 450mm and 1200mm from the floor


                          -----------------------------------------------




                                                                                         27
Acknowledgements

To follow




                   28

						
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