ADVOCACY FOR THOSE WITH MENTAL ILLNESS

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ADVOCACY FOR THOSE WITH MENTAL ILLNESS Powered By Docstoc
					WCHS PROVIDER FORUM
   APRIL 5, 2011
WE ALL SHARE COMMON INTERESTS


             Families &
              Friends            Consumer




                    Regulators
      Providers
                    & Funders
TOPICS

 What NAMI has to offer
 NAMI, NAMI NC, NAMI Wake

 How you can help
WHAT NAMI WAKE OFFERS
                  Education Programs
All NAMI            Family to Family
Wake                Peer to Peer

programs          Support Groups - Ongoing
for families        MH Consumers
and                 Family & Other Caregivers

                 Monthly Education
consumers      
                 Meetings
are FREE.       Volunteer Opportunities
In Our Own Voice: A one-and-a-half hour
interactive, multimedia presentation by
consumers that offers hope and provides insight
into the recovery now possible for people with
mental illness.

Peer to Peer: A course for
consumers containing individual
relapse prevention planning, a
debriefing/storytelling week, and an
advance directive for psychiatric care.
FAMILY TO FAMILY (F2F)
   The NAMI Family-to-Family Education Program is a free, 12-
    week course for family caregivers of individuals (primarily
    adults) with severe mental illnesses.
   The course is taught by trained family members
   All instruction and course materials are free to class
    participants
   Over 115,000 family members have graduated from this
    national program
   Location & Time: Vary by class
   Contact: Susan Hadley, 787-5999, shadley@nami-wake.org
FAMILY TO FAMILY (F2F)

   What does the course include?
       Current information about schizophrenia, major depression,
        bipolar disorder (manic depression), panic disorder,
        obsessive-compulsive disorder, borderline personality
        disorder, and co-occurring brain disorders and addictive
        disorders
       Up-to-date information about medications, side effects, and strategies
        for medication adherence
       Current research related to the biology of brain disorders
        and the evidence-based, most effective treatments to
        promote recovery
FAMILY TO FAMILY (F2F)
   • Gaining empathy by understanding the
     subjective, lived experience of a person with
     mental illness
   • Learning in special workshops for problem
     solving, listening, and communication techniques
   • Acquiring strategies for handling crises and
     relapse
   • Focusing on care for the caregiver: coping with
     worry, stress, and emotional overload
   • Guidance on locating appropriate supports and
     services within the community
   • Information on advocacy initiatives designed to
     improve and expand services
NAMI BASICS
   NAMI Basics is an education program for parents and other caregivers of
    children and adolescents living with mental illnesses. The NAMI Basics
    course is taught by trained teachers who are the parent or other caregivers
    of individuals who developed the symptoms of mental illness prior to the
    age of 13 years.

   The course consists of six classes, each lasting for 2 ½ hours. Classes may
    be offered weekly for six consecutive weeks, or may be offered twice per
    week for three weeks to accommodate the hectic schedules of parents. All
    instruction materials are FREE to participants.

   Location & Time vary by class
   Contacts: Heidi Cranford heidi3623@nc.rr.com Chary
    Sundstrom chary@nc.rr.com
NAMI BASICS
   Introduction to the stages of emotional reactions of the family
    to the mental illness; including crisis, shock, denial, grief and
    acceptance.
   Insights into understanding of the lived experience of the child
    living with the mental illness, including learning to separate the
    child you love from the illness that alters their behavior and
    abilities
   Examples of strategies that have been found helpful in
    handling challenging behaviors in children and adolescents
   Information about the systems that are major players in the
    lives of children and adolescents with mental illness – the
    school system and the mental health system
NAMI BASICS
   Current information about Attention Deficit Disorder, Major
    Depression, Bipolar Disorder, Conduct Disorder, Oppositional
    Defiant Disorder, Anxiety Disorders, Obsessive Compulsive
    Disorder, Childhood Schizophrenia and Substance Abuse
    Disorders
   Current research related to the biology of mental illness and
    the evidence-based, most effective treatment strategies
    available, including medications used to treat mental illness in
    children and adolescents
   Specific workshops to learn problem solving, listening and
    communication skills
NAMI BASICS
   Exposure to personal record keeping systems that have proven
    to be effective for parents/caregivers in their interactions with
    the school and healthcare systems
   Information on planning for crisis management and relapse
   Information on locating appropriate supports and services
    within the community to build a community of support for the
    parent/caregiver
   Information on advocacy initiatives designed to improve and
    expand services, with an emphasis on personal advocates for
    the parent/caregiver and child on an individual level
PEER TO PEER
   Peer-to-Peer is a unique, experiential learning program for people with any
    serious mental illness who are interested in establishing and maintaining
    their wellness and recovery.



   Location & Time vary by class
   Contact: Marc Jacques - jacques.1111@hotmail.com; 919-803-5013
PEER TO PEER
   Peer-to-Peer consists of ten two-hour units and is taught by a
    team of two trained “Mentors” and a volunteer support person
    who are personally experienced at living well with mental
    illness.
   Mentors are trained in an intensive three day training session
    and are supplied with teaching manuals.
   Participants come away from the course with a binder of hand-
    out materials, as well as many other tangible resources: an
    advance directive; a “relapse prevention plan” to help identify
    tell-tale feelings, thoughts, behavior, or events that may warn of
    impending relapse and to organize for intervention;
    mindfulness exercises to help focus and calm thinking; and
    survival skills for working with providers and the general public.
CRISIS INTERVENTION TEAM PROGRAM
   Initiated by NAMI Wake
   Partnership between WCHS, all law enforcement agencies in
    Wake County, and NAMI Wake
   Jail diversion program involving one week training program and
    mental health services and policies to allow transfer of custody
    to officer at WCHS Crisis Facility rather than taking person to
    Wake County Jail.

   NAMI Contact: Gerry Akland, gakland@nc.rr.com; 266 0766
TRAINING FOR GROUP HOME STAFF

 Initiated by NAMI Wake County
 Partnership by UNC Center for Excellence in
  Community Mental Health, NAMI-Wake and
  WCHS
 3 day experiential training course on working
  with mental health consumers for group home
  staff
Contact: Seldon Holt, UNC CECMH,
          holts@med.unc.edu
MONTHLY EDUCATION MEETINGS
   NAMI Wake Free Monthly Education Meeting
      4th Monday of each Month, Highland United Methodist
       Church, 1901 Ridge Rd., Raleigh, Conference Room, 7-8:30
       pm
      Topics vary – Examples of recent speakers

        Dr. Michael Zarzar, Bipolar Disorder
        Dr. Terry Clapacs, Depression
        Dr. Shane Rau, UNC, Schizophrenia
        Dr. Zachery Rosenthal, Duke, Borderline Personality
        Disorder
     Contact: Ann Akland, aakland@nami-org; 919 266 0766
MONTHLY EDUCATION MEETINGS
   SE Raleigh Community Forum
      2nd Tuesday of Each Month, 6:30 – 8pm

      LB Harrison Library, 1313 New Bern Avenue,
       Raleigh, NC
   Recent Speakers & Topics:
      Jerome Brown, Unit Supervisor, Forensics, Central
       Regional Hospital
      Dan McLaughlin, WCHS Drop-In Center

   Contact: Elaine Peebles-Brown     833-0160
NEWSLETTER

   The Iris – Published Monthly
     Meeting  Announcements
     Support Group & Education Classes Calendar

     Volunteer Opportunities

     Special Events

     Fundraising events

     Contributed articles

     NAMI Wake’s “editorials”

     Contact: Ann Akland; aakland@nami-wake.org
                919-266-0766
COMMUNITY AWARENESS OUTREACH

 Serve on public sector boards and committees
 Attend health fairs

 Speak to civic groups, communities of faith and
  other organizations.
 Annual Celebration of Courage Event

                   Contact: Ann Akland
                            aakland@nami-wake.org
                            919 266 0766
NAMI Wake Information/Support
Line:919-848-4490
NAMI CONNECTION RECOVERY SUPPORT GROUP

 NAMI Connection is a weekly
 recovery support group for
 people living with mental
 illness in which people learn
 from each others’
 experiences, share coping
 strategies, and offer each
 other encouragement and
 understanding.



 Time: First 3 Mondays of each Month, 7- 8:30p
 Location: Highland United Methodist Church, 1901 Ridge Rd., Raleigh, NC
 Contact: Richard Foy, iuwg1@bellsouth.net ; (919) 510-5169
FAMILY SUPPORT GROUPS
   Trained volunteer facilitators
   Uses the NAMI Support Group model which offers a set of key
    structures and group processes for facilitators to use to
    encourage full group participation in support group meetings.
   Time: First 3 Mondays of each Month, 7- 8:30p
      Location: Highland United Methodist Church,
                 1901 Ridge Rd., Raleigh, NC
       Contact: Gordon Gogola
                 919-601-3996
SUPPORT GROUP FOR FAMILIES OF CHILDREN

 Support meeting for parents and caregivers
 Under the age of 18 who have a behavioral
  health diagnosis.
 Meetings are for sharing and supporting one
  another especially in reference to the
  education system.
    Time: Second Sunday of the month

    Location: Whole Foods, 3540 Wade Avenue, Raleigh from 4-6pm.
    Contacts: Heidi Cranford heidi3623@nc.rr.com Chary
    Sundstrom chary@nc.rr.com
DEPRESSION SUPPORT GROUPS

 New Initiative with WCHS
 Groups for people with mild to moderate
  depression
 Hope to partner with some providers
     Volunteers   for once monthly education meeting

     Contact:   Gerry Akland, gakland@nc.rr.com
                 919 266 0766
RESEARCH ISSUES AND PREPARE REPORTS
NAMI Wake Report, Prisons & Jails are North Carolina's New Mental
Hospitals – We have regressed to the late 1800's.

Involuntary Commitments, NC Sheriff’s Office impact, (Including
observations on the outcomes for people with mental illness), 2009
Update
                                   Click here
                         Support, Advocacy & Education
                                      Join
                     for people with brain diseases & their
                                  Publications
Indicators of the Impact of North Carolina’s “Mental Health Reform”
                                      NAMI
                                    families
on People with Severe Mental Illness Including State-wide Results,
Local Management Entity Scorecard & Impact on Local Law
Enforcement

Report II: NAMI Wake Report, State Psychiatric Hospital Admission
Delays, July - September 2010.
               Small amount of funding for
Special         one-time emergencies for
Needs           consumers when no other
Fund            funding source can be
                identified.

            Contact: Kathy Smith; ksmith@nami-wake.org




WHAT NAMI WAKE OFFERS
WHAT IS NAMI?
   Largest grassroots mental health organization in US
   NAMI has National, State & local organizations
   1,100 local affiliates—34 in North Carolina
   NAMI Wake is largest NAMI Affiliate in NC
• National Office
  • maintains a strong presence on Capitol Hill in
    Washington, DC, by educating legislators and
    policymakers.
  • NAMI has developed unique education programs,
    F2F, Peer to Peer, BASICs
  • NAMI developed and supports NAMIWalks
  • Information Helpline: (800) 950-NAMI
NAMI NC
Advocates at the state level within the legislative, executive, and judicial
branches for goals and objectives of NAMI NC Board

• Monitor the budgets and activities of state agencies; and
• support affiliate growth and development by working with new and small local
  affiliates
• Publishes a quarterly state-wide newsletter
• Organizes NAMIWalks.
• Statewide coordination for Education Programs, Membership, NAMI on
  Campus, Consumer Council
• NAMI NC HELPLINE: 800- 451-9682 ( NC only)
  Monday - Friday 8:30 am to 5 pm.
How we are ALIKE



• We are grassroots, membership organizations
• One dues payment provides membership to all 3
  levels.
• Education programs were developed by NAMI
  national;NAMI NC tracks training sessions and
  reports to national;Volunteers in NAMI affiliates
  organize & teach classes
• We are aligned in our overall mission
How we are Different



• Each is a separate 501 (c)(3), tax exempt corporation
• We compete for donations and program funding
• While we are aligned in our overall mission, we form
  our own public policy positions which sometimes differ.
• NAMI and NAMI NC have salaried staff & Executive
  Directors
• NAMI Wake has NO paid staff—We accomplish our
  goals through approximately 70 active volunteers.
WHAT YOU CAN DO TO HELP
   Refer families and consumers to our programs
   Join NAMI Wake and encourage your staff to join and
    get involved.
       More people, more clout
       Get provider voice, partnership, advocacy
   Help NAMI Wake with fundraising.
       Small contributions add up!
   Become a sponsor or form a team for NAMI Walks!
    BUT be sure to designate NAMI Wake to receive a
    share of the funds you raise.
   Volunteer & encourage your clients & staff to
    volunteer
VOLUNTEER OPPORTUNITIES

 Speaker                Support Group
 Health Fairs            Facilitator
 Advocacy               Education Program
 Outreach Committee      Teacher
 Fundraising Committee  NAMI Wake Board

 Data entry             Contact: Rita Tolley
                                  919 215 0401
 Phone calls                     Ritatolley123@nc.rr.com

 Newsletter mail out
AWARENESS

NAMIWalks – 80 cities across   Location:   Dorothea Dix State Hospital
US – 500,000 walkers                       Campus
                                           Raleigh, NC



                               Date:       Sat, April 30, 2011

                               Distance:   2 MI

                               Check-in:   9:00 am

                               Start Time: 10:00 am
                               Contact: Kathy Driver\
                                        kathydriver@nc.rr.com
                                        919-781-9393 or 919-621-0236.

				
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