World Alzheimer’s Report 2012 Reveals Stigma And Social Exclusion Are Major Barriers For People With Dementia And Their Carers

Document Sample
World Alzheimer’s Report 2012 Reveals Stigma And Social Exclusion Are Major Barriers For People With Dementia And Their Carers Powered By Docstoc
					    World Alzheimer’s Report 2012 Reveals Stigma And Social
 Exclusion Are Major Barriers For People With Dementia And Their
                              Carers

   75% of people with dementia and 64% of family carers believe there are
    negative associations for those diagnosed with dementia in their countries
   40% of people with dementia report they have been avoided or treated differently
   Report provides 10key recommendations for governments and societiesto
    include people with dementia into everyday activities

London and New York, 21 September 2012: The latest World Alzheimer Report
entitled: Overcoming the stigma of dementia,released today by Alzheimer’s Disease
International (ADI) reveals that nearly one in four people with dementia (24%) hide or
conceal their diagnosis citing stigma as the main reason. Furthermore, 40% of
people with dementia reportnot being included in everyday life. What is startling is
that nearly two out of three people with dementia and their carers believe there is a
lack of understanding of dementia in their countries.

The World Alzheimer Report 2012 provides 10 recommendations to enable
governments and societies to overcome stigma, including greater public education,
with nearly half of the survey respondents indicating education and awareness as a
huge priority. Anotherkey point is to encourage people with dementia to share their
experiences and to ensure that they are included in everyday activities.

Nicole Batsch, author World Alzheimer Report 2012comments,"Stigma remains a
barrier to making progress in all other dementia initiatives, such as improving care
and support for people with dementia and family carers and funding for
research. The Alzheimer 2012 report reveals that people with dementia and carers
feel marginalised by society, sometimes by their own friends and family
members. What they want is to be treated like normal people with a focus on their
abilities and not on their impairments.Bringing light to these issues will help improve
the quality of life for people with dementia and for their carers."

Marc Wortmann, Executive Director of ADI, says, “Dementia and Alzheimer’s
disease continue to grow at a rapid rate due to global ageing. The disease has a
huge impact on the families that are hit, but also affects health and social systems
because of the economic cost. Countries are not prepared and will continue not to be
prepared unless we overcome the stigma and enhance efforts to provide better care
for those who have dementia and find a cure for the future.”
The Latest World Alzheimer Reportreveals the following:

    24% of people with dementia and more than one in ten carers (11%) admitted
     to hiding or concealing the diagnosis of dementia– withthose under the age of
     65 believing they might face special issues in their workplace or children’s
     school
    40% of people with dementia reported not being included in everyday life
         o Nearly 60% of the above indicated that friends are the most likely
             people to avoid them or lose contact after diagnosis followed by family
             members
    A quarter of carers (24%) feel there are negative associations in their country
     about carers of people with dementia while a similar number (28%) feel they
     have been treated differently or avoided
    Both people with dementia and carers admitted they had stopped themselves
     forming close relationships as it was too difficult
    Education, information and awareness were identified as priorities to help
     reduce the stigma of dementia

The Alzheimer 2012report is based on a global survey of 2500 people (those with
dementia and family carers) across more than 50countries. Just over 50% of the
respondents with dementia had Alzheimer’s disease and just under a half of the total
number were under the age of 65. The main aims of the survey were to record
individual experiences of stigma by people with dementia and family carers and help
identify whether national dementia plans have had an impact on reducing stigma.

Dementia is seriously disabling for those who have it as well as their families and
carers. According to estimates from the World Health Organisation (WHO), there is
currently one new case of dementia every four seconds. If we take into account the
rapid increase in the elderly population, there will potentially be 115 million people
with dementia worldwide in the next 40 years, thus placing amajor burden on health
and social systems. Only eight nations out of 193 WHO countries have implemented
national dementia plans, showing that more could be done by governments to help
alleviate the associated economic and social costs.

For more information visit http://www.alz.co.uk/research/world-report-2012

For more information contact:

Sarah Smith                              MitaliRajan/Marie Sterry
Alzheimer’s Disease International        Euro RSCG London PR
T: +44 (0)20 7981 0880                   T: +442074679247 / +44207 467 9259
E: s.smith@alz.co.uk                     E: mitali.rajan@eurorscg.com /
                                         marie.sterry@eurorscg.com
Notes to Editors:

Recommendations to tackle stigma surrounding dementia

   1. Educate the public
   2. Reduce isolation of people with dementia
   3. Give people with dementia a voice
   4. Recognise the rights of people with dementia and their carers
   5. Involve people with dementia in their local communities
   6. Support and educate informal and paid carers
   7. Improve the quality of care at home and in care homes
   8. Improve dementia training of primary healthcare physicians
   9. Call on governments to create national Alzheimer’s disease plans
   10. Increase research into how to address stigma


About Alzheimer’s Disease International
ADI is the international federation of 78 Alzheimer associations around the world, in official
relations with the World Health Organization. ADI's vision is an improved quality of life for
people with dementia and their families throughout the world. ADI believes that the key to
winning the fight against dementia lies in a unique combination of global solutions and local
knowledge. As such, it works locally, by empowering Alzheimer associations to promote and
offer care and support for people with dementia and their carers, while working globally to
focus attention on dementia and campaign for policy change from governments.

The distribution of the World Alzheimer Report 2012 has been made possible by Nutricia
Advanced Medical Nutrition, a specialised healthcare division of the food company Danone.

				
DOCUMENT INFO
Shared By:
Stats:
views:13
posted:10/4/2012
language:English
pages:3
Description: The latest World Alzheimer Report entitled: Overcoming the stigma of dementia,released today by Alzheimer’s Disease International (ADI) reveals that nearly one in four people with dementia (24%) hide or conceal their diagnosis citing stigma as the main reason.