State Interagency Coordinating Council
April 23, 2012 9:00 AM – 12:00 PM
CAFAP 2189 Silas Deane Highway, Rocky Hill, CT amended
ICC Members Present: Mary Ann Dayton Fitzgerald, Stephen DeAngelis, Nancy
DiMauro, Rita Esposito, Corinne Griffin, Dr. Mark Greenstein, Cindy Jackson,
Lynn Skene Johnson, Dr. Robert LaCamera, Ginny Mahoney, Miriam Martinez,
Joe McLaughlin, Deborah Pagano, Lolli Ross, Robin Tousey-Ayers, Louis
Tallarita, Myra Watnick
Mark A. Greenstein, M.D.
Patrick Ruddy ICC Vice Chair ICC Members Absent: Rob Kelly, Tierney Gianotti, Lorna Quiros-Dilan, John
Mary Ann Dayton Fitzgerald
Reilly, Patrick Ruddy, Maria Synodi, Representative Jack Thompson
Commission on the Deaf and
Vacancies awaiting appointments: Early Head Start, parent(s)
Dept. of Insurance
Dept. for Children and Families
Rita Esposito The meeting began at 9:27 AM.
Parent Introductions: All present members introduced themselves, plus 12 members of the
Tierney Gianotti, alternate
Center for Excellence public.
Children’s Therapy Services
Lynn Johnson Public comment: none today
Department of Developmental Services
Robert Kelly, alternate for
Senator Anthony Musto Housekeeping: none today
Robert LaCamera, M.D.
American Academy of Pediatrics
Ginny Mahoney New Business
Dept. of Social Services
Miriam Martinez Welcome Nancy DiMauro –Child Welfare Director for early and middle childhood at
the Department of Children and Families
McLaughlin and Associates
Lorna Quiros-Dilan Approval of February ICC meeting minutes: One edit requested to pg. 3.
Office of Protection and Advocacy
John Reilly Motion to approve as amended by Lolli, seconded by Cindy, no abstentions.
Board of Education and Services
For the Blind th
Laurel Ross The Executive Committee Report from March 28 was given by Mark. Council
membership and appointments were discussed, as well as the process for seeking
State Dept. of Education (re)appointment. This is a lengthy, multi-step process, with no guarantee of
SDE-Homeless Children appointment or reappointment. The ICC Orientation Manual is very out-dated. The
Rep. John W. Thompson Communications Committee will undertake this task and invite Miriam Martinez/all
Robin Tousey-Ayers parent members to contribute. ICC member attendance requirements were clarified:
Dept. of Public Health The by-laws are clear that the Chair has discretion to enforce or not. There is no
Rehabilitation Associates, Inc. need to revise by-laws at this time. The agenda for the April 23rd ICC meeting was
Early Head Start
developed. Satisfaction with current meeting refreshments vendor was confirmed.
Vacant The ICC budget was reviewed. $15k was allocated by the lead agency to the ICC for
FY12. There are adequate funds left for the usual meeting costs and parent
reimbursements through the end of the fiscal year on June 30 . OSEP Mega meeting
in D.C. will be held during next FY. The status of House Bill 205 was discussed and
will be revisited at the April 23 meeting. ICC by-laws were updated and approved on
December 20, 2009. There is no current need to revise them, but a “clean” version is
needed. Eileen will remove all old editing marks (strikethroughs, bold type, line
numbers) and provide a copy to each Council member.
House Bill 205: see Lead Agency report
RFP results for Hard of Hearing programs: see Lead Agency report
State ICC appointments: The by-laws are sufficient to address absences due to valid
reasons. Mark as the Chair has discretion to enforce or not.
Under One Subcommittee
Corinne Griffin announced that the group has met twice already with future meetings to immediately follow State ICC
meetings. At the March 5 meeting, the group discussed the intention to continue to investigate factors that contribute to
comprehensive identification of eligible infants younger than one year, despite an announcement that the federal Office of
Special Education Programs (OSEP) will no longer be conducting on-site data verification visits. Participants developed
the list of questions to be asked of other states that ranked higher than Connecticut on Child Find for infants younger than
one year. They also discussed outreach to immigrant and refugee families and cultural contributors to family decisions
about learning differences, seeking assistance and enrollment in early intervention. The CSPD Council has agreed to
support the Under One initiative with a review of literature addressing evaluation and assessment tools, effectively
working with families of very young infants and strategies to enhance infant development. At this afternoon’s meeting, the
group will address Connecticut state agency databases that may contain information about infants under one year. State
ICC agency representatives will be contacted soon and asked to identify their respective agency databases and contact
persons. Mark emphasized that this is closely aligned with the mission and purpose of the Interagency Coordinating
Lead Agency Update: Lynn Skene Johnson distributed a written report, which includes a summary of system
expenditures and enrollments.
Invoiced Direct Service Expenditure Statewide
FY12 FY12 FY11 FY10 FY09
MTD YTD YTD EOY EOY
Direct Services 2,721,787 21,606,966 21,033,766 30,852,544 32,374,076
Negotiated Supplemental Costs 680,810 5,223,917 3,429,305 4,467,293 6,129,428
Assistive Technology Devices 9,439 115,293 205,459 252,741 162,935
Initial IFSP 130,801 828,023 633,591 1,163,501 1,423,168
Services at No Cost 37,720 287,248 344,283 409,807 271,029
Evaluations 247,411 1,728,226 1,299,288 2,489,040 2,961,060
Other (24,113) (147,375) (115,661) 44,914 (64,603)
Subtotal 3,803,855 28,459,675 21,576,684 41,748,696 43,257,093
Third Party Reimbursement (413,063) (2,921,219) (2,524,761) (2,903,602) (3,023,348)
Total Incurred Services 3,390,792 27,053,130 25,934,914 38,845,094 40,233,745
Third Party Reimbursement
Gross Insurance Reimbursement (413,063) (2,921,219) (2,304,733) (3,226,224) (3,359,276)
Less: 10% Incentive - - (230,473) 322,622 335,928
Net Insurance Reimbursement (413,063) (2,921,219) (2,074,260) (2,903,602) (3,023,348)
As of April 1 , there were 305 children with an autism spectrum diagnosis enrolled in autism specialty programs and 57
children enrolled in general programs. Mark asked that the June fiscal report include more detailed information on the
effectiveness of the centralized billing office. Joe asked about reporting on Under One enrollment. Lynn shared that the
monthly data reports include a percentage of enrolled children who are younger than one year of age, which was 1.6% in
March. Alice explained that the 1.6% enrollment for children younger than one is different than the 1.2% reported to the
federal OSEP. The 1.6% uses DPH birth data as a denominator and is based on the total enrolled during the month,
while the federal indicator uses Census data and only includes a single day’s count. Even a monthly percentage should
be viewed within the context of a longer period of time since monthly fluctuations are common. Lynn was asked to please
consider adding referrals of infants <12 mo to future Lead Agency reports.
The percentage of families enrolled for services at no cost remained steady at 5% for each month November through
Withdrawal rates per month were shared. Most were due to the parent being satisfied with their child’s development.
The “Other” Column should include “Parents dissatisfied” and will be amended in future reports to show there were 2 in
October, and 1 in February. There were zero in all of the rest of the months. Miriam asked what happens if a parent
wants to stay enrolled, even if the team believes that the child is no longer eligible for Birth to Three services. Lynn
explained that if a parent is not in agreement with their team regarding exiting the system they can contact the Family
Liaison to request a review of the decision* and that families are not forced out.
*Added by Lynn Johnson after the meeting: If this does not resolve the issue the family has the right to request a due
Withdrawals of children prior to age three
or chose Parent satisfied with
Total Withdrawals Due to fees private services child’s development
July, 2011 57 9 21 27
August 62 10 12 40
September 62 5 12 45
October 86 4 25 57
November 31 3 12 16
December 34 2 12 20
January 2012 57 4 14 39
February 61 6 14 41
March 69 6 19 44
Services at No Cost to the Family
Number of Families Receiving Percentage of Total Enrollment Receiving
Services at No Cost Only Services at No Cost Only
July, 2011 212 4%
August 216 4%
September 225 4%
October 225 4%
November 247 5%
December 245 5%
January 253 5%
February 244 5%
March 240 5%
All contracts for FY13 are in the process of being completed. Achieve Beyond has chosen to close their program as of
March 30 . All families have been successfully transferred to other programs. Three programs have appealed the
proposal review process. These are handled by the DDS legal department and the current status is not available.
Contracts are both for programs that will continue to accept new referrals and those that will not receive new referrals but
will continue to serve the children enrolled as of the end of the fiscal year. The contracting process was extremely
competitive and the decisions to not award a program certain towns does not indicate that the program was unacceptable
in any way. No family will be pushed out of any program. Discussion ensued regarding information for families about
changes in program coverage areas. Some programs have chosen to notify their families, but the lead agency does not
currently plan to send notices. Contracting issues are different than quality assurance issues and the lead agency will
continue to monitor every program for quality. The Birth to Three System will immediately respond to any scenario when
a program chooses to close to ensure that families are smoothly transitioned. A request was made to post FAQs online
re. issues that may concern parents as they learn of changes within the System. The intention is to alleviate families’
potential anxiety. Lynn announced that the three hearing specialty programs that are being awarded contracts are the
American School for the Deaf, CREC Soundbridge and the New England Center for Hearing Rehabilitation (NECHEAR).
Bill 205, “An Act Concerning Insurance Coverage for the Birth to Three Program” has passed the Senate and is currently
with the House. Mark asked that the ICC be notified when the legislation passes so appropriate gratitude may be sent to
A Training and Technical Assistance team has been developed that includes Linda Bamonte, PT, Koleen Kerski, OT, Bob
Kiernan SLP and Bill Meakim, Special Educator. They will gradually transition into this role at Central Office as their Early
Connections caseloads diminish.
The Annual Performance Report (APR) was accepted by OSEP. There were no questions or need for clarification.
The application for federal funds under the Individuals with Disabilities Education Act Part C along with the updated
procedures to meet requirements of the new Part C Regulations were mailed and emailed to OSEP on April 13, 2012.
This budget portion was based on last year’s federal allocation since a current allocation for July 1, 2012 has not been
Aileen McKenna, Birth to Three Family Liaison, is in the process of thoroughly revising the set of family handbooks and
the IFSP form to align all information with the new Part C regulations. She distributed a draft version of the revised IFSP
form along with a feedback sheet for use by Council members. Provider input was solicited at March regional provider
meetings. Components that were retained are required by federal law or regulations and are guided by research and
best practice. Today’s comments included: the updated version is very family friendly; strong relationship-based
orientation; the format helps communicate to families what Birth to Three is all about; please add a method for identifying
page numbers so the recipient knows that they have a complete set of pages for the IFSP; can collect information across
two family meetings and if so, the date that the parent signature is obtained is the “end date” used to calculate timely
initiation of new services; this is great; please add check box to indicate parent consent on file to release (do not
incorporate the release – best to keep separate to emphasize the decision to give consent); consider adding a section re.
family stresses in addition to p.4 “What’s on my mind/I worry about…” and p. 7 “What’s next for us?” so that family
assessment is enriched while respecting the newness of the team’s emerging relationship with a family (use skill and
other assessments when and where sensitive information is recorded). A feedback form was distributed to continue the
input and refinement process. Comments received before May 7 will be considered. The final version will be included
in the updated Family Handbook II which must be redesigned and printed in time for distribution by July 1 .
IDEA Determinations: Alice Ridgway distributed a draft federal fiscal year (FFY)11 summary of programs’ compliance
with required indicators. Three had been initially determined to need assistance, one was determined to need assistance
due to non-correction of identified issues. Twenty-four programs’ data were consistently accurate such that they did not
elicit any requests for data clarification or correction. Twenty had some data errors. Thirty-four out of 44 programs had
no complaints by families, with two programs determined to need assistance based on a family complaint. Six programs
will develop corrective actions plans with the lead agency to address specific identified issues. It was noted that the three
hearing specialty programs all are listed as needing assistance. Alice responded that this is due in part to the fact that
they have very small numbers of children, have experienced several changes in administrative staff and there is not
unusual concern about the quality of their service delivery.
Family Support Council Report
Tesha distributed a report of outreach activities recently completed, including a workshop on summer camp options.
Miriam asked how to refer a parent to the family faculty program, which was clarified as an ongoing process. Contact
Jennifer Carroll directly with this input at 1-877-FSN-2DAY (877-376-2329).
Committee Work and Reports
Communication: The committee will work to fill current vacancies and ensure cultural diversity among parent members,
specifically developing a mentoring process for new parent members. They will also review and revise the SICC
Quality Assurance: The committee discussed the upcoming RFP to contract for family support and leadership
enhancements. They will send a letter to the lead agency with specific suggestions of topics and items to be included in
Legislative / Fiscal: Discussed the need to have two people at each IFSP meeting in order to have multidisciplinary
participation in light of increasing transportation costs. The new regulations are still being interpreted at federal and state
levels. The lead agency will provide the sections of the regulations that relate to this for further review.
There was discussion of unionization of personal care assistants and what the fiscal impact may mean for families. It
was noted that this is not really relevant for infants and toddlers most of whom are typically cared for by their parents, not
personal care assistants. Children and Youth with Special Health Care Needs Program within the Department of Public
Health and the Family Support Network will work to prepare families for the future implications since they work on behalf
of youth up to age 21 years.
Nancy shared that the DCF went live on March 6 with their new Differential Response System. Commissioner Katz and
Deputy Commissioner Gruendel are strongly invested in improving relationships with families. The focus has moved to
family engagement at every level of the organization, including staff training. Nancy also shared that the letter received by
Commissioner Katz from the SICC regarding the practice of infants and toddlers being transported by DCF staff who are
strangers to the child elicited a DCF internal communication to eliminate this practice. Please let Nancy know if any
ongoing situations are identified.
Deborah Pagano specifically introduced Lisa Heisman and Wade Chartier, two parents who may seek appointment to the
Council, and thanked them for their time and interest. Shari Lundgren also came to today’s meeting and is seeking
appointment to the Council as a parent member.
No Motion to end the meeting was made since a quorum of members was no longer present. Mark closed the
meeting at 12:23 PM.
Respectfully Submitted, Formatted: Font: 10 pt
Eileen McMurrer, M.Ed., B-3 Child Find Coordinator, Interim Lead Agency Staff Support Formatted: Font: 10 pt
Cindy Jackson, B-3 Provider, State ICC Recording Secretary
Formatted: Font: 10 pt
Future State ICC Meetings: Future Executive Committee Conference Calls:
June 11, 2012 May 16
August 20, 2012 July 18
October 15, 2012 Sept. 12
December 3, 2012 Nov. 14
State ICC meetings and ICC Executive Committee phone conferences are open to any and all
SICC members and any members of the public.
Please plan to participate.