2729 sherry dupuis building authentic partnerships in dementia care by US8mod


									      A Changing Melody:
Building Authentic Partnerships
       in Dementia Care

          Sherry Dupuis, Lisa Loiselle, Cathy Conway,
          Brenda Hounam, Lynn Jackson, Ken Hancock,
          Jack Henderson, Gina Bendo

          Sunday March 27, 2011
          Alzheimer Disease International Conference
            Group Reflections

          Identifying Disablers
On your table, you will find a page of quotes.
Choose one person to read the quotes aloud.
Share your reflections of the quotes with others
  at your table.

Think about: What types of things disable
   persons with dementia?
Early Beginnings
         Summer 2001 – getting
         the call
         Investigated other forums
         Partnerships explored
         (MAREP, ASO, ASC,
         First meeting held on
         February 25, 2002
         Website questionnaire
         Naming the forum
Purpose: working in partnership with others, to
provide a positive environment for persons with
dementia, family members, and other care partners to
come together and learn from one another about how
to live a meaningful life with dementia and actively
improve the quality of life of all those experiencing it.
Learnings from Our Failed Attempt

value, listen and include all voices
relevance and accessibility
make time for regular reflection on the
consider language and communication
build safety and trust
know target audience
must work together
Why use an authentic partnership approach?
   persons with dementia have the right to be, and must
      be, involved in dementia care

   understanding the experiences of dementia from the
      perspective of those living with dementia is critical
      to QOL

   persons with dementia can continue to grow and
      learn but need adequate information, resources
      and support to do so

   good dementia care requires strong partnerships
      between all those involved in dementia care
What is an Authentic Partnership?

An Authentic Partnership…
• actively incorporates and values diverse
  perspectives and includes all stakeholders
  directly in decision making
             Guiding Principle #1
             A Genuine Regard for
                Self and Others
       focuses on recognizing abilities and
       demonstrating mutual caring,
       concern, and respect for the welfare
       of others

‘[This approach] values me as a person and the contributions
      that I can make to dementia care, to my own care.’
• How can we include the contributions of
  others in decision-making?
• How can I get to know others in the
  partnership and help them know me?
• How do we demonstrate to others that we
  value them and their input?
• How can I feel valued in this partnership?
• What strengths does each person bring to the
           Guiding Principle #2
         Synergistic Relationships
    focuses on integrating the collective
    abilities and gifts of the group to develop
    new and innovative responses to issues

 ‘An authentic partnership will be stronger together than
apart, with everyone acknowledging others expertise and
   strengths, but realising it is the group as a whole that
      decides on the direction or action that is taken.’
• What are the collective assets of the group?
• How are opinions/perspectives of partners
  shared among the group?
• Who is included? Who is not? Why not?
• How do we support all partners in sharing
  their perspectives and strengths?
• How can we incorporate all contributions into
  a combined solution?
• How can we build and maintain trust?
             Guiding Principle #3
           Focusing on the Process
      being attuned to new learnings and
      possibilities, required adaptations, and
      unanticipated outcomes that emerge
      throughout the process and not just at
      the end
 ‘In any program, or anything we attempt in life, is always a
continuous adapting. Having a group of people that is willing
  to shift and change as things change, that’s so important.’
• How do we demonstrate more flexibility?
• What other approaches and possibilities
  should we be considering?
• What changes do we need to make? How?
• What have I/we learned thus far from the
• How can we be more creative in our
      Factors that Enable
     Authentic Partnerships
1. Connecting and committing
2. Creating a safe space
3. Valuing diverse perspectives
4. Establishing and maintaining open
5. Conducting regular critical reflection and
Authentic Partnerships in Practice:
Success Stories and Key Learnings

               A Learning and sharing
               Forum for Persons with
               Early-stage Dementia and
               their Partners in Care
           Group Dialogue #1

     Identifying Possibilities
Thinking about the principles and enabling
factors of authentic partnerships, how
might you incorporate an authentic
partnership approach in your own work?
      Group Dialogue #2

     Identifying Supports
What do you need (supports, resources,
knowledge, etc.) to adopt an authentic
partnership approach?

How can we support you?

      Watch yourself.
      Every minute we
It is a great opportunity.
        At any point,
 we can step out of our
         frozen selves
       and our ideas
     and begin afresh.
(Natalie Goldberg, 1986, Writing Down the Bones)
Thank-you for your participation and

For more information about MAREP, please
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