Sample news release for World Hemophilia Day. Please adapt or translate for use by
your organization; insert appropriate information where indicated.
[Insert Name/logo of National Member Organization]
Access to diagnosis and treatment limited for most people with bleeding
disorders: Help Close the Gap
(City, Date, 2012): An estimated 1 in 1,000 women and men has a bleeding disorder.
However, 75% still receive very inadequate treatment or no treatment at all. What will it
take to close the gap?
On World Hemophilia Day 2012 help us “Close the Gap” of care around the world.
Together, we can work towards a day when treatment will be available for all globally.
“On World Hemophilia Day we want to inspire people to help close the gap and to
improve accessibility and quality of care so that Treatment for All becomes a reality,”
says [insert name of your representative and the name of your organization]. [Insert
additional quote on your event or activities].
Join the international bleeding disorders community on April 17 to mark World
For World Hemophilia Day 2012, [insert name of your organization] will be organizing
[briefly outline your World Hemophilia Day events].
In [insert your country], there are [insert number] people diagnosed with hemophilia
[include number of people with other bleeding disorders, if known]. [Include an
estimate of how many remain undiagnosed or without care in your country].
“The reality is that most people with hemophilia or other bleeding disorders do not
receive adequate diagnosis, treatment, and management for their conditions,” said
Mark Skinner, World Federation of Hemophilia (WFH) president. “This is important
whether good treatment is already established but needs to be protected or where
treatment needs to be improved.”
To learn more about hemophilia and what it is like to live with a bleeding disorder, visit
On World Hemophilia Day, help us Close the Gap.
About hemophilia and other bleeding disorders
Hemophilia, von Willebrand disease, inherited platelet disorders, and other factor
deficiencies are lifelong bleeding disorders that prevent blood from clotting properly.
People with bleeding disorders do not have enough of a particular clotting factor, a
protein in blood that controls bleeding, or else it does not work properly. The severity of
a person’s bleeding disorder usually depends on the amount of clotting factor that is
missing or not functioning. People with hemophilia can experience uncontrolled internal
bleeding that can result from a seemingly minor injury. Bleeding into joints and muscles
causes severe pain and disability while bleeding into major organs, such as the brain,
can cause death.
About [insert name of your organization]
[Insert a paragraph describing the mission of your organization and the work it does
to introduce and improve care for people with hemophilia in your country.]
About the World Federation of Hemophilia (WFH)
For 50 years, the World Federation of Hemophilia, an international not-for-profit
organization has worked to improve the lives of people with hemophilia and other
inherited bleeding disorders. Established in 1963, it is a global network of patient
organizations in 118 countries and has official recognition from the World Health
Organization. Visit WFH online at www.wfh.org.
For more information please contact:
[List contact names, telephone numbers, and e-mail of your organization]