Taking an active part in decisions affecting my later life by GuJc2W

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									Taking an active part in decisions
affecting my later life…


     A Personal Journey

                 by

         Lynn Jackson
“Life is either a daring
adventure…

Or nothing.”



Helen Keller
The Aricept Generation
I am one of those being helped by
   new drugs

Diagnosed with fronto-temporal
  dementia

An emergency room nurse for 14
  years and then…things began to
  happen
Making Decisions Now…
(not waiting until later)



 Come to terms with my illness

 Eagerness to learn

 Discovered others like me

 “Knowledge is power”
        “DASNI Effect”

        Dementia Advocacy
       and Support Network
           International

We are autonomous and competent people

We believe that shared knowledge is
  empowerment

We believe our strengths provide a supportive
  network

We are a voice and a helping hand



www.dasninternational.org
Set up a support
    network


Family my biggest supporter

Friends

www.dasninternational.org

My Doctor
      Teaching others

“Knowledge is power” – a slogan
  that has helped me
  communicate with family and
  friends

  I passed on information to
  them…



Now they are knowledgeable
  My biggest fear


I will not be able to tell
   people what I want as my
   disease progresses
Imaging the options


I learnt the lingo…

  And found out more than
  I ever wanted to know
Representation Agreement

  • I choose personal
    representative
  • More than power of attorney
  • Can override my wishes if I
    become irrational
My representatives know:

 What kind of nursing home
 Likes & dislikes
 Aware of religious beliefs

 And they have power of attorney
One size does not fit all

Everything written down
No ‘heroic’ efforts

It comes down to this:

“If I have developed into a
state where I am not able to
indicate to you what I do or
do not want, then please
follow the written
instructions.”
Stop and smell
   the roses
Focus on Strengths


Friendships
Traveling
Connecting
Supporting
 Maintaining
Relationships
In summary…



Come to terms with illness
Set up a support system
Clarify your options
Make the necessary decisions
Prepare any legal documents
Focus on your strengths
Set realistic goals
Maintain relationships!
Think Positive!!!!
“I am prepared to meet my Maker.
Whether my Maker is prepared
for the great ordeal of meeting
me is another matter”


Sir Winston Churchill

								
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