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					The realities of putting
 change into practice
ADI - 2005
             ADI aims
• Build and strengthen Alzheimer
  Associations throughout the world
  so they are better able to meet the
  needs of people with dementia and
  their carers

• Raise world awareness about
  dementia
                   ADI

•   4 staff
•   Annual income US$500,000
•   Based in London
•   Founded 1984
•   In official relations with WHO
1)Why are Alzheimer associations
  important?

2)How can Alzheimer associations can
  bring about change?

3)How can ADI help Alzheimer
  associations to achieve success?
       Why are Alzheimer
      associations important?

•   Dementia is a chronic, progressive
    condition
•   Give hope when there is no cure
•   Improve quality of life for people
    with dementia and their carers
"The Alzheimer's association has
  become a source of warmth,
  encouragement and enlightenment
  for the family, and most especially
  for me.”
         - Yvonne Ihegihu talking about her
                     grandmother, Nigeria.
  Alzheimer associations can:
• Provide information
      • Newsletter
      • Educational materials
• Provide support services
      • Telephone helpline
      • Support groups
      • Legal & financial help

• Care services

• Encourage research
 Alzheimer associations can:
• Raise awareness
    • Challenge stigma
    • Educate carers & professionals
• Advocate on behalf of people with
  dementia and carers
• Assist in the development of public
  policy issues
     Mrs Masu Kimura and her
      husband Takeo, Japan
"The Japanese Alzheimer Association
  have been a great support to me.
  This photo of us was taken on a 2-
  day trip organised for carers and
  their families by the Kyoto branch of
  the Association."
How Alzheimer associations
  can bring about change
• Motivated board/ staff/ volunteers

• Identify aims and appropriate
  services/ activities
How Alzheimer associations
  can bring about change

• World Alzheimer’s Day

• Lobby governments

• Conferences/ meetings
   Jacob Roy and his father Kor
         Episcopa, India
"We started to notice that his memory
 was failing, we were helpless. Over
 the ensuing years my mother cared
 for him. We took my father to many
 doctors, none of them could tell us
 what was wrong.”
 ADI’s 1998 conference changed
the face of dementia care in India
• Increase in awareness
• Acceptance of dementia as a distinct
  entity
• National growth
• Birth of the ADI 10/66 Dementia
  Research Group
   Raising Awareness in
         Sri Lanka

“Our World Alzheimer’s Day activities
 have definitely created more
 awareness about the disease: there
 has been an increase in telephone
 calls and letters and more caregivers
 have joined the caregiver support
 group.” Lanka Alzheimer’s
 Foundation.
 How can ADI help Alzheimer
    associations achieve
         success?
• Provide advice, support and training
  to associations
• Produce and disseminate
  information
• Annual international conference,
  regional meetings
How can ADI help Alzheimer
   associations achieve
        success?
• Collaborate with WHO, Alzheimer
  Europe and other international
  organisations
• 10/66 Dementia Research Group
• Co-ordinate World Alzheimer’s Day,
  21 September each year
   Hussain Jafri, Pakistan,
"The Alzheimer University gave me a
new look into the aims and
objectives of Alzheimer's Pakistan.
We cannot do everything. I think for
the moment we work towards raising
awareness, education and training. I
will go back with a better
understanding of how to run my
organisation."
   Aims of 10/66 Dementia
      Research Group
• Quantify prevalence in regions where
  it has not been studied
• Learn more about causes
• Describe care arrangements
• Quantify impact of providing care
• Encourage development of services
  and education
    Using World Alzheimer’s Day
       to raising awareness
•   Profound lack of awareness
•   Stigma and myth
•   Normal part of ageing
•   Nothing can be done
•   Lack of trained professionals
World Alzheimer’s Day
        2005

   We can make a
    difference!
28 Sept–1 Oct Istanbul, Turkey
      www.adi2005.org
“In a world of conflict and increasing
    tension, ADI is a positive reminder that
    common purpose transcends prejudice
    and unites people worldwide in our
    mission to improve the quality of life of
    people with dementia and their families.”

Henry Brodaty, Chairman & Elizabeth Rimmer,
   Executive director, Alzheimer’s Disease
   International
                 www.alz.co.uk

				
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